I have had Shingles twice since TM onset. Mine were only slightly painful and
very itchy. My physicians will not give me the shingles vaccine, or any other
vaccine for that matter.
They fear it may make my immune system over react again.
Lynne
--- On Sat, 3/13/10, bobby jim
Jeanne,
I am so sorry to find you have shingles. TM is bad enough to deal with
without another problem, especially a painful one. My husband had shingles
3-4 years before
I got TM and it was no picnic.Worst problem was that the medicine he was to
take for it made him even sicker.
Lynne,
Talk about a bummer! Do they feel you can expect more onsets of shingles?
Does the medicine for it help you?
Janice
From: lynne myers
Sent: Sunday, March 14, 2010 6:54 AM
To: tmic
Subject: Re: [TMIC] shingles
I have had Shingles twice since TM onset. Mine were only
I am curious about this too. Just Doesn't sound right. Janice
From: Gary Thomas
Sent: Saturday, March 13, 2010 10:48 PM
To: Pieter and Heather ; jrushton ; j ra ; tmic
Subject: Re: [TMIC] Re: Hope
I wonder about this also. What surgery would help? Does a medical person not
*It is very possible that she is suffering from recurrent TM, which is rare,
but does happen especially in the context of diseases like NMO, Sjogren's,
SLE. We don't have quite enough of her history to make any assumptions. As
for her spasms, they appear to be tonic Not your usual run of the
I had really bad headaches 24/7 until I got on neurontin in the begining. Had
them again for 5 days when I stopped neurontin 1,800 mg daily ( down from 3,600
mg ) and started on Lyrica 300 mg daily cold turkey. My doctor told me I
wouldn't have any problems. I wouldn't do it that way again.
How would your system over react? I'm usually the first to say no to
vaccines, but where shingles are concerned, doesn't this become a
quality of life issue? I'd probably risk another relapse over the idea
of getting shingles.
Laura
You can easily judge the character of a man by how he
But doesn't recurrent TM usually categorize someone as having MS or
Devic's? I have lesions on my spine that caused the TM...but those
lesions are there more than likely because of my MS...if I get new
lesions (already have 2 on the spine..C6-7 and T10), then it is MS
related in my case.
MS is defined as multi focal and multi phasal, recurrent TM is multi phasal,
yet not multi focal. It occurs in the same area.
--
From: Laura Beaudin laura.beau...@gmail.com
Sent: Sunday, March 14, 2010 11:36 AM
To: Grace M. grace...@gmail.com
Cc:
Betty I had a severe case of shingles about 15 years ago. Your pain sounds
much like that which I experienced. It would come and go like someone was
sending electrical shocks through my body. My rash was also around my
waist, from the belly button to the small of my back on my right side. At
Well, herpes and shingles and zosters and other afflictions are related. Part
of the neural system, I believe.. ergo the TM connection should be obvious.
BobbyJim in Elvisland
From: Patricia Cooley To: 'Betty Shaffer' ; tmic-list@eskimo.com
Sent: Sunday, March
OMGosh! Your little Grand Daughters are gorgeous!
XO
GracieP.S. Your son is very handsome, also. :-)
HI JUDE, GOOD TO HEAR FROM YOU. HOPE YOU HAVE BEEN OK. I HAVE MISSED
SEEING YOU HERE.
JANE/SPLENDORA
Hi all,
I weaned off Cymbalta 10 months ago after a major improvement in
pain, my other medication is Lyrica and I have been on it since
before TM was diagnosed as the cause of my nerve pain. I was taking
150 mg 2X a day for the majority of the last 3 years, not knowing if
it was
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