Granted...the Facebook groups aren't for everyone...but a large majority of
people are actively seeking out the groups now
In the TM Folks group, the majority of the info posted, is TM related...and of
course, there is the occasional post that takes a different turn off subject.
Personally,
I have been on the Facebook TM rooms and found much too much chatting and not
enough TM info. My mailbox was constantly filled with just chit chat. I hated
when this happened in our group and I still do. I like to hear how people are
doing but I do not want qan hour by hour dialogue. Sorry but
Actually,
The best Facebook group is the Transverse Myelitis Folks group...
https://www.facebook.com/groups/TMFolk/
That is where you'll find the most activity and the majority of the old timers
that were on this group
It is a closed group meaning that only people that are members of that gr
Sorry, it's an automated process you have to do yourself. Here are the
instructions from the TMIC web site at http://www.myelitis.org/tmic/:
Unsubscribe from TMIC-LIST
To unsubscribe from the list, send email to
tmic-list-requ...@eskimo.com,
with the Subject *unsubscribe*. That's all that's needed
PLEASE REMOVE ME FROM EVERYONES LIST! I hav requested that in the past but keep
getting e mails. Thank you in advance!
--
On Thu, May 17, 2012 11:33 AM CDT Candy wrote:
>Hi. I am a new member and finding it very hard to find anyone using the
>actual website. I do
Candy,
What kind of treatment is rutaxin? What will it do for you and how has TM
left you?
Janice
From: Candy
Sent: Thursday, May 17, 2012 11:33 AM
To: rn11...@yahoo.com
Cc: Robert Pall ; tmic
Subject: Re: [TMIC] Is anyone here?
Hi. I am a new member and finding it very hard to find anyon
pH,
I hope you are able to do all you mentioned.I find myself outside as much
as possible too - until it gets hot that is!
Janice
From: fr...@franksheldon.com
Sent: Thursday, May 17, 2012 8:25 AM
To: Butcher, Bernie (S&FS) ; Janice Nichols ; tmic-list@eskimo.com ; Robert
Pall
Subject: R
Hi. I am a new member and finding it very hard to find anyone using the actual
website. I do not like Facebook. Was hoping the forum used on the site would
stay current with folks given their experiences and treatment. I use to blond
to a site for sarcoidosis called "team inspire". they
Hi Frank,
Wish I could do any of those. Can't even sit outside for more than 10 minutes
since any changes in type of chair causes increased spasms and even tighter
banding.
I'm happy for those that can go out and enjoy themselves.
Cheryl
From: "fr...@fra
Hi, yes I'm still here although I'm never quite sure whether I should be.
I seem to be the only UK contributor and would like to say thanks everyone
for including me. I miss the regular emails and have joined Facebook with
a view to making contact there.
Iris UK
On Thu, May 17, 2012 at 3:10 PM, G
Hi,
I am still here. I have been busy going to the nursing home where my mom is,
with Alzheimers. I also spend a lot of time pertaining to my dad, who is on
his own but needs help with different areas of his life. It is alway great to
hear from those on this list, asking questions, seeking co
Original Message
Hello everyone!
The TM Network has grown beyond what we could ever imagine. Now at over
1000 members, we are scaling the walls of advocacy for our cause. For
all of you who have been on the journey since the network began, thanks
for standing with us in th
There is a specific group on Facebook called "People Living with
Transverse Myelitis" that you can join. it's like this, but you can chat
with people live without emails, and also share as we do here. I just
got the invite on Facebook, or you can join and search "People Living
with Transverse M
Hi Rob,
I'm still here,but seldom get posts from the tmic site. Sadly,it seems almost
everyone has moved to facebook.
I'm not a fan of that site,so I just don't post much anymore. If I post on
tmic, I get few replies.
I do wish facebook would go away (fat chance of that) so we could have our
g
>>Is anyone here?
Actually, some people are outside gardening, some people are working on their
boats(getting them ready to be launched for the season), some people have been
traveling to and from a graduation, some have been just sitting outside
listening to the birds, grass and trees singi
Getting you loud & clear on Long Island Rob
Barney
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Thursday, May 17, 2012 9:13 AM
To: tmic-list@eskimo.com; Robert Pall
Subject: Re: [TMIC] Is anyone here?
Still here! It seems to be another "quiet" ti
Barb, couldn’t help but laugh with your comments.We seem to really be in
the same boat.Good luck to us!
Janice
From: Barbara H.
Sent: Thursday, May 17, 2012 7:54 AM
To: Robert Pall
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Is anyone here?
Still here! :-) It seems like the list here
Still here! It seems to be another “quiet” time. At night after going
to bed, I seem to think of things I want to ask the group, but then with my
brilliant memory, I forget by morning.
We have had some new people join the group lately, which is good. I think
there are many of us th
Rob we are still here. At least I know I am. It seems everyone has
gone to the several Face Book groups like Transverse Myelitis Folks.
I know all the posts can be a bit much at times.. I am doing the best
I can hope you are too.
Patti
On Thu, May 17, 2012 at 7:33 AM, Robert Pall wrote:
Still here! :-) It seems like the list here goes pretty quiet for several
days in a row and then will have a flurry of mail for a few days.
I'm about the same -- walking, but not always steady, balance issues,
bathroom issues, fatigue and muscle spasms, but overall doing well.
Barbara H.
http://b
Hi...lately the only mail I receive is from"friends living with TM" I just
left that facebook room because I was getting far to many chats. Is our network
still active or has everyone joined another group. This is where I started and
this is where I belong.
I would love to hear back from all
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