Bridget,
Are you sure you can’t get into the doc until August?Have you told them
your symptoms and they still refuse until August? How about seeing your
yearly doc you saw before TM? He/she
could probably get you in way before August.
I have taken both Neurontin and Lyrica.I am
if you have a family Doc,they could refer you for another opinion. there seams
to be more going on here than meets the eye. hard to find a happy middle ground
in neurological medicine,while one Doc will pit you to sleep another will let
you scream with pain and anguish. never be
thats right Dalton. it would be terrible if we had nobody like us to talk to
because everyone else seams to just not understand
From: Dalton Garis malugss...@gmail.com
To: Janet Dunn j.d...@shaw.ca; tmic-list@eskimo.com tmic-list@eskimo.com
Sent: Monday, June
Tell me again where you live - I think I want to move there. Since TM, I
LOVE cold weather!
Janice
From: Janet Dunn
Sent: Monday, June 25, 2012 9:43 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for input.
Thank you for all of the replies. I am going to try the baclofen as
Dalton, how are you doing with your seizures? Haven’t heard much about it
lately. Hope it means there is vast improvement.
Janice
From: Dalton Garis
Sent: Monday, June 25, 2012 9:59 PM
To: Janet Dunn ; tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for input.
We love you, and your
Hello Bridget and all.
Susan Kleinz here - Phoenix, Arizona
Today it is going to be 113!
The heat is hard, but the cold is worse for me.
I have been on baclofen for 22 years. It has saved me from painful
spasms.
I take it every six hours.
neurontin also helps me. I take it 3 times a day.
Actually;
The situation was much improved for a while. But now they are back again,
having Segwayed into a kind of mental fog, which comes on quickly then
leaves me with limited speech and locomotion capacities, and in need of
around 3-4 hours sleep almost immediately. I am really a shut-in
Hi all--I'm one who has tried all of the drugs and learned about Lyrica
from Dalton. Now I can't live without it. My legs spasm so bad that
without it that my wife would leave me if I didn't take it. Seriously,
there was no sleep for either of us before the Pregabalin (generic
Lyrica). I
Well now
That rigidity you talk about sounds a lot like part of what
I have been describing for years.
Dalton Garis
New York, New York
On Jun 26, 2012, at 5:10 PM, James Berg molokai...@gmail.com wrote:
Hi all--I'm one who has tried all of the drugs and learned about Lyrica from
Dalton.
Susan, what time every day do you take your baclofen? Also, how old
were you when TM hit you?
Janice
From: Susan Kleinz
Sent: Tuesday, June 26, 2012 10:42 AM
To: Bridget Skinner
Cc: Janice Nichols ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for
Actually, I am doing pretty well.Still getting stronger in my legs after 5
years of TM.Balance isn’t terrific, but I can deal with it.
What do you do to keep your brain going since you are practically a shut in
now? You always kept busy with mental activities.You and Bridget are
I had one full seizure and many, many mini-seizures (didn't pass out, just lots
of muscle spasms and trouble talking)for 2 years before I was diagnosed with
TM. I can still have them only very occasionally when I get really tired.
Medication does help and they usually don't happen until late
it is frustrating to say the least,,,your thinking,,im going to do this,,and
then you move and your body begins to dictate otherwise to the point you say in
going to do nothing.that heade thrashing scares me though...might jerk it into
something!,,,ive done my legs that way and it left a
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