Well now That rigidity you talk about sounds a lot like part of what I have been describing for years.
Dalton Garis New York, New York On Jun 26, 2012, at 5:10 PM, James Berg <molokai...@gmail.com> wrote: > Hi all--I'm one who has tried all of the drugs and learned about Lyrica from > Dalton. Now I can't live without it. My legs spasm so bad that without it > that my wife would leave me if I didn't take it. Seriously, there was no > sleep for either of us before the Pregabalin (generic Lyrica). I understand > the heat Dalton talks about as I stretch the doses as far as I can it get > worse. I take a huge dose about 11 pm, 300 mg. and by 8:00 am I am kicking > the blankets off the bed. It or the TM puts me out by 2pm and I sleep until > 6pm. Lately I have been rubbing my heels together at night without knowing > it. I do have full body rigidity attacks, usually in the morning--my body > tightens all around me and I lift up off the bed, only head and feet touching > for 10 seconds or so. No, I can't feel much in my legs except the buzzing > heat. > > Anyway Janet, the spasms due stop with the Lyrica but maybe other things work > for you too. One thing I think all of us can agree on it that we all seem to > be different in so many ways with how the disease effects us but similar in > some others. It is a tough road to hoe. > > Jim > > On Tue, Jun 26, 2012 at 10:13 AM, Dalton Garis <malugss...@gmail.com> wrote: > Actually; > > The situation was much improved for a while. But now they are back again, > having Segwayed into a kind of mental fog, which comes on quickly then leaves > me with limited speech and locomotion capacities, and in need of around 3-4 > hours sleep almost immediately. I am really a shut-in now, since I can't > depend on more than around 6 hours of lucidity before the next attack. > > How are you doing? > > Love to all, > > DG > Dalton H. Garis > Flushing, Queens > New York, USA > > From: Janice Nichols <jan...@centurytel.net> > Date: Tuesday, 26 January 2012 10:23 AM > To: Dalton Garis <malugss...@gmail.com>, Janet Dunn <j.d...@shaw.ca>, > <tmic-list@eskimo.com> > > Subject: Re: [TMIC] Looking for input. > > Dalton, how are you doing with your seizures? Haven’t heard much about it > lately. Hope it means there is vast improvement. > Janice > > From: Dalton Garis > Sent: Monday, June 25, 2012 9:59 PM > To: Janet Dunn ; tmic-list@eskimo.com > Subject: Re: [TMIC] Looking for input. > > We love you, and your struggle; > > It is all of our struggles, also. Our solidarity has done sooo much to keep > me going, to get up and try to make something useful of the lucid and > non-distracted time I can get. > > DG > > Dalton H. Garis > Flushing, Queens > New York, USA > > > From: Janet Dunn <j.d...@shaw.ca> > Date: Monday, 25 January 2012 10:43 PM > To: "tmic-list@eskimo.com" <tmic-list@eskimo.com> > Subject: Re: [TMIC] Looking for input. > Resent-From: <tmic-list@eskimo.com> > Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 > > Thank you for all of the replies. I am going to try the baclofen as needed. > Yes, I am taking other meds - effexor, welbutrin, oxycontin fast acting, and > oxycontin time release, and either tylenol or advil. I also have flexeril if > I need it. > > I have come to the conclusion that it is a combination of the lack of Lyrica > and the heat. Hot for us where I live is 24 degrees celcius - which is > about 75 degrees. Cold is -35 or 40. > > I don't want to go back on the Lyrica, so I am going to try the baclofen. I > have never had spasms like this before. Wow - how some of you live with > bigger and badder (I know, I know) spasms is beyond me. I cannot tolerate > the pain and uncomfortableness of the darn things. > > Always something new to enjoy ahem, ahem. It will be eight years in August > for me, and this disease never ceases to frustrate me. > > Thanks again, so glad we are such a friendly helpful group. I will not whine > about the heat again after hearing how hot it is in Texas, and other places. > Where I live we may get one or two days of 30 Celcius which is about 82ish. > And then we get an awesome thunder show. > > Take care my friends, > > Love Janet >
