Actually; The situation was much improved for a while. But now they are back again, having Segwayed into a kind of mental fog, which comes on quickly then leaves me with limited speech and locomotion capacities, and in need of around 3-4 hours sleep almost immediately. I am really a shut-in now, since I can't depend on more than around 6 hours of lucidity before the next attack.
How are you doing? Love to all, DG Dalton H. Garis Flushing, Queens New York, USA From: Janice Nichols <jan...@centurytel.net> Date: Tuesday, 26 January 2012 10:23 AM To: Dalton Garis <malugss...@gmail.com>, Janet Dunn <j.d...@shaw.ca>, <tmic-list@eskimo.com> Subject: Re: [TMIC] Looking for input. Dalton, how are you doing with your seizures? Haven¹t heard much about it lately. Hope it means there is vast improvement. Janice From: Dalton Garis <mailto:malugss...@gmail.com> Sent: Monday, June 25, 2012 9:59 PM To: Janet Dunn <mailto:j.d...@shaw.ca> ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. We love you, and your struggle; It is all of our struggles, also. Our solidarity has done sooo much to keep me going, to get up and try to make something useful of the lucid and non-distracted time I can get. DG Dalton H. Garis Flushing, Queens New York, USA From: Janet Dunn <j.d...@shaw.ca> Date: Monday, 25 January 2012 10:43 PM To: "tmic-list@eskimo.com" <tmic-list@eskimo.com> Subject: Re: [TMIC] Looking for input. Resent-From: <tmic-list@eskimo.com> Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 Thank you for all of the replies. I am going to try the baclofen as needed. Yes, I am taking other meds - effexor, welbutrin, oxycontin fast acting, and oxycontin time release, and either tylenol or advil. I also have flexeril if I need it. I have come to the conclusion that it is a combination of the lack of Lyrica and the heat. Hot for us where I live is 24 degrees celcius - which is about 75 degrees. Cold is -35 or 40. I don't want to go back on the Lyrica, so I am going to try the baclofen. I have never had spasms like this before. Wow - how some of you live with bigger and badder (I know, I know) spasms is beyond me. I cannot tolerate the pain and uncomfortableness of the darn things. Always something new to enjoy ahem, ahem. It will be eight years in August for me, and this disease never ceases to frustrate me. Thanks again, so glad we are such a friendly helpful group. I will not whine about the heat again after hearing how hot it is in Texas, and other places. Where I live we may get one or two days of 30 Celcius which is about 82ish. And then we get an awesome thunder show. Take care my friends, Love Janet
