I had one full seizure and many, many mini-seizures (didn't pass out, just lots of muscle spasms and trouble talking)for 2 years before I was diagnosed with TM. I can still have them only very occasionally when I get really tired. Medication does help and they usually don't happen until late evening when I try to relax. This TM business can be really complex sometimes.
Roger in Kennewick, WA ________________________________ From: Janice Nichols <jan...@centurytel.net> To: Dalton Garis <malugss...@gmail.com>; Janet Dunn <j.d...@shaw.ca>; tmic-list@eskimo.com Sent: Tuesday, June 26, 2012 6:48 PM Subject: Re: [TMIC] Looking for input. Actually, I am doing pretty well. Still getting stronger in my legs after 5 years of TM. Balance isn’t terrific, but I can deal with it. What do you do to keep your brain going since you are practically a shut in now? You always kept busy with mental activities. You and Bridget are the only ones I have known that have the seizure problems. Surely the doc’s can come up with something for you two to carry on decent lives. I pray for you both. Janice From: Dalton Garis Sent: Tuesday, June 26, 2012 3:13 PM To: Janice Nichols ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Actually; The situation was much improved for a while. But now they are back again, having Segwayed into a kind of mental fog, which comes on quickly then leaves me with limited speech and locomotion capacities, and in need of around 3-4 hours sleep almost immediately. I am really a shut-in now, since I can't depend on more than around 6 hours of lucidity before the next attack. How are you doing? Love to all, DG Dalton H. Garis Flushing, Queens New York, USA From: Janice Nichols <jan...@centurytel.net> Date: Tuesday, 26 January 2012 10:23 AM To: Dalton Garis <malugss...@gmail.com>, Janet Dunn <j.d...@shaw.ca>, <tmic-list@eskimo.com> Subject: Re: [TMIC] Looking for input. Dalton, how are you doing with your seizures? Haven’t heard much about it lately. Hope it means there is vast improvement. Janice From: Dalton Garis Sent: Monday, June 25, 2012 9:59 PM To: Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. We love you, and your struggle; It is all of our struggles, also. Our solidarity has done sooo much to keep me going, to get up and try to make something useful of the lucid and non-distracted time I can get. DG Dalton H. Garis Flushing, Queens New York, USA From: Janet Dunn <j.d...@shaw.ca> Date: Monday, 25 January 2012 10:43 PM To: "tmic-list@eskimo.com" <tmic-list@eskimo.com> Subject: Re: [TMIC] Looking for input. Resent-From: <tmic-list@eskimo.com> Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 Thank you for all of the replies. I am going to try the baclofen as needed. Yes, I am taking other meds - effexor, welbutrin, oxycontin fast acting, and oxycontin time release, and either tylenol or advil. I also have flexeril if I need it. I have come to the conclusion that it is a combination of the lack of Lyrica and the heat. Hot for us where I live is 24 degrees celcius - which is about 75 degrees. Cold is -35 or 40. I don't want to go back on the Lyrica, so I am going to try the baclofen. I have never had spasms like this before. Wow - how some of you live with bigger and badder (I know, I know) spasms is beyond me. I cannot tolerate the pain and uncomfortableness of the darn things. Always something new to enjoy ahem, ahem. It will be eight years in August for me, and this disease never ceases to frustrate me. Thanks again, so glad we are such a friendly helpful group. I will not whine about the heat again after hearing how hot it is in Texas, and other places. Where I live we may get one or two days of 30 Celcius which is about 82ish. And then we get an awesome thunder show. Take care my friends, Love Janet
