Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
The description you gave sounds familiar. I didn't and could not have gone back to my banking job. My biggest anxiety in the early days of TM was my inability to think. It took four months before i could read And longer to comprehend. I got stuck or stumbled on words when trying to talk and

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Cooley
Pattie V: It has been a little over 2 yrs since I have gone to my neuro. The last time she said I had enough MRI's over the last couple of years, and didn't need anotherl. She also said I didn't need to see her unless there was a change or new symptoms, which there hasn't been. My primary has

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
We are talking about the need for a neurologist. I just saw mine yesterday. For my pain he recommended a pain pump. I'm going to have a trial pump put in to see if it will work for me. If it does, they will implant a permanent one in my body, next to the spine with a catheter leading

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
Dalton, I just tried to mail an answer to a message and it was addressed to exactly the same people as you have mailed this message to, only mine came back as undeliverable. I used the same addresses as you have used. Is there anything you can do to help me? To answer your question,

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Susan Kleinz
I was diagnosed with TM two years ago. 20 years prior - probable MS I think keeping a neurologist is paramount. New things happen every day! My family doctor, gynecologist, orthopod had never heard (or believe) in TM! So frustrating I have constant banding, and would love to know if anyone

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Roger Terese Pratt
My doctor has prescribed Zanaflex, which is a muscle relaxant.  Check with your doctor, but this might help. - Roger in Kennewick, WA From: Susan Kleinz skle...@cox.net To: I Whiddett i.whidd...@sky.com Cc: heyjude48...@aol.com heyjude48...@aol.com;

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Dalton Garis
My regimen is gabepentin, pregabelin and dilantin. Since using these the banding has all but disappeared, though that may just be coincidental to a natural reduction during this time. Banding is now only noticeable when lying down for the night. Dg Dalton Garis Flushing, Queens New York, USA

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
I too have constant banding around my torso. Have had it ever since 2002 when I contracted TM. Have been on many different drugs over the years, but nothing has really worked. I was on so many drugs that my heart and lungs were being affected, so now I simply live with the banding and

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
Dear Regina, I forgot to answer your question. I have decided to keep my leg and try to get it to heal by using electrical stimulation and maybe the oxygen tank and I am having a Matrix pain pump put it. Waiting for them to call to set up the date and time. First they will put a

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
I know that Baclofen helps with my banding. I take 10mg 3 x daily. My neuro wrote the rx for 4x in case I want to take an extra one. I also take 100mg Lyrica 3x daily. An RN on this site told me Lyrica also helps with banding so I guess I'm getting double the help. Patti V - Michigan

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
Thanks. I sure am glad to see that you are still here. When I didn't see you earlier I was afraid you had gone to Facebook. Love, Judy In a message dated 1/16/2013 9:29:36 P.M. Eastern Standard Time, xbeecla...@gmail.com writes: Hi Judy, So glad to hear you may still be able to

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Heyjude48458
So is your banding gone? In a message dated 1/16/2013 8:41:50 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: I know that Baclofen helps with my banding. I take 10mg 3 x daily. My neuro wrote the rx for 4x in case I want to take an extra one. I also take 100mg Lyrica 3x

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
Yes, the torso banding is usually control. Sent from my iPad On Jan 16, 2013, at 9:38 PM, heyjude48...@aol.com wrote: So is your banding gone? In a message dated 1/16/2013 8:41:50 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: I know that Baclofen helps with my banding. I

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Dalton Garis
Lyrica has been a wonder drug for me. Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Pat Voorheis pjv1...@chartermi.net Date: Wednesday, 16 January 2013 10:11 PM To: heyjude48...@aol.com heyjude48...@aol.com Cc: tmic-list@eskimo.com tmic-list@eskimo.com Subject: