Here is an article which is in today's South Bend (Indiana) Tribune Health
section. It is about a teen boy in Elkhart, IN, who has TM.
Gary, Niles, MI
http://www.southbendtribune.com/apps/pbcs.dll/article?AID=/20080708/Lives/533203569/1047/Lives
Great story of hope. Thanks Gary
Diane in Canada
- Original Message -
From: [EMAIL PROTECTED]
To: TMIC List
Sent: Wednesday, July 09, 2008 9:42 AM
Subject: [TMIC] from Gary Thomas
Here is an article which is in today's South Bend (Indiana) Tribune Health
section
Ann,
It is good to know that you are still improving after a number of years. It
gives me hope. I hope you will continue to improve.
I still have not seen a neurologist and don't plan to. I don't think one
could help me at this point. I am still fighting to get more therapy. Pray
that it will be possible some day, especially for
the little ones.
Hope this will also help others.
Regards
Ann
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Tuesday, June 26, 2007 5:15 PM
Subject: Re: [TMIC] from Gary
Gary,
I
Ann, Naomi, Gary, etc. My story is pretty much the same too.Was
thunderstruck Sept. 05. Still havent been 100% diagnosed but I am pretty
sure
its TM. Have gone to numerous neurologists - I dont know why. They dont
really do anything. I just figure there may be something new
Subject: Re: [TMIC] from Gary
Sally,
I think I agree with your statement
Unless you feel like you're having another attack, it seems to me that
the original 'attack' of TM is long past and you're just dealing with
the aftermath of the attack and treatment meds, like most of us.
I think
Again, just my opinion, but any of us could get 'hit' again! But if there's no
signs of a repeat attack, it seems a little over-cautious to worry about it.
(How many TMers have ended up with MS? I know there's some, but my impression
is, there's a whole bunch of us that only have TM.)
PROTECTED]
Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] from Gary
Again, just my opinion, but any of us could get 'hit' again! But if
there's no signs of a repeat attack, it seems a little over-cautious to
worry about it. (How many TMers have ended up with MS? I know
]
Cc: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Wednesday, June 27, 2007 5:01 AM
Subject: Re: [TMIC] from Gary
Again, just my opinion, but any of us could get 'hit' again! But if there's
no signs of a repeat attack, it seems a little over-cautious to worry about it.
(How many
Jude,
You must have misunderstood my e-mail. I cannot walk, due to deterioration
of my body, for lack of therapy. I am consider a quad, because my TM affects
all four limbs. I do not have any use of my right hand or leg. My left leg
works okay, but my left arm has limited use and so
PROTECTED]
Sent: Tuesday, June 26, 2007 5:55 PM
To: tmic-list@eskimo.com
Subject: RE: [TMIC] from Gary
Here's what I can't figure out. I have symptoms of TM and MS. The
doctor thinks it's TM only because they don't see any lesions on my
brain or spine. BUT...when they did the spinal tap, the only
I dont think coincidences really happen. There is something more to it. My
next door neighbor in a condo (we shared a party wall) was diagnosed with TM
about 12 years ago. He was around the same age that I am now (a little bit
old). Same symtoms that I had and spent the rest of his life
The frequent return trips most likely is related to the age of your Neuro. If he/she is young, it's student loans, building a new practice, house payments ect If he/she is older it's most likely college fund for theirs, alimoney payments a new BMW, country club dues ect
Larry in Oklahoma
Gary,
I am pretty much in the same boat as you. I was diagnosed with TM July
2005. At that time, I had spinal taps and plasmapheresis. I stayed in the
hospital for four months for rehabilitation. Since I've left the hospital, I
have
not seen a neurologist. I do not have a regular
Larry in Oklahoma, you are one crazy guy.
Naomi
C-4 quad, incomplete since July 2, 2005
** See what's free at http://www.aol.com.
I was diagnosed with TM five yrs. ago. When I went over to Medicare I had to
get all new doctors.. My new neuro decided it was MS. So he did a spinal tap
(thankfully, he's very good at it) but I did have to lay there for two hours
afterwards so bring some tapes!! The spinal tap was no more
Gary,
I'm no expert here but this sounds concerning to me. It was my impression that
the spinal tap they did in the ER was to establish if there was a viral cause
of the TM (or was it bacterial? - sorry I always get the 2 confused). They
even put me on meds just in case and sent the sample
PROTECTED]
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: Tuesday, June 26, 2007 5:26 PM
Subject: Re: [TMIC] from Gary
Gary,
I'm no expert here but this sounds concerning to me. It was my impression
that the spinal tap they did in the ER was to establish
Valley Drive
Little Rock, AR 72212-3913
-Original Message-
From: Trudy [mailto:[EMAIL PROTECTED]
Sent: Tuesday, June 26, 2007 2:43 PM
To: tmic-list@eskimo.com
Subject: RE: [TMIC] from Gary
I was diagnosed with TM five yrs. ago. When I went over to Medicare I
had to
get all new
Pam,
What is the difference between a neuro, and a neurologist? I thought neuro
was short for neurologist. The only issues that I have had that need
attending to, are a lingering side affects of TM. Either my primary care
physician
or my physical medicine and rehab doctor takes care
Sally,
You are so, so right. I did not get my plasma exchange until arriving at a
second hospital, eight days later. I think that time difference makes the
difference between walking and paralyze. Not until I received the exchange,
that I get any movement back. I am still classified
]
Sent: Monday, June 25, 2007 9:40 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] from Gary
What ever you do, stay flat on your back as long as you can. After my
first one no body told me to stay down and I reached to the end of the
bed to get something and Bam! I thought
Before recently changing physicians it had been five years, since the onset
of my TM since I had seen a Neurologist. My new doc found that unacceptable
and immediately set me up with one at our local hospital. Now, I am seeing
the neuro for a second appt. in three months.
It only takes
Jude,
Medical information that was given to me, states that plasma exchange should
be done within the first 48 hours. The sooner, the better. Although some
information states, it can be done as late as 20 days later. So in your case,
I wouldn't expect a great improvement, but with this
Thanks to all who gave an input about fatigue. I went to my neurologist today
but did not accept a prescription at this time. I think I'll try some of the
non-prescription suggestions including trying to rest more. I do work full-time
and clean our church for three hours twice a week plus
AMTo: TMIC ListSubject: [TMIC] from Gary
Thanks to all who gave an input about fatigue. I went to my neurologist today but did not accept a prescription at this time. I think I'll try some of the non-prescription suggestions including trying to rest more. I do work full-time and clean our church for t
months?
Candy K.
-Original Message-
From: Larry Throne [EMAIL PROTECTED]
Sent: Jun 25, 2007 9:39 PM
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] from Gary
What ever you do, stay flat on your back as long as you can. After my first
one no body told me to stay down
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