: Re: [TMIC] Another Symptom
Naomi,
I see my neurologist every 3 months along with my PCP. My next appt. is
6/27 for my neuro and 6/29 for my PCP. I had PT/OT in the hospital along
with 6 month outpatient PT/OT.
I had 7 PLEX treatments in the hospital along with 4 over 2 month
Candy,
I just asked about the neurologists, because I was curious. I haven't had
any issues that haven't been handled by my Primary Care physician or my
Physical Medicine and Rehab doctor. I haven't had any health issues that were
of
concern, except constant UTI's. If I have a problem
Jude,
Good for you! It's about time someone gets something they need. I am so
happy that you are getting the help that you need. I am still working on it,
and hopefully there will be an end to my fight, and I'll get what I need also.
PS. Whereever did to find that cute hug at the end
Does everyone here on this site have a neurologist? I have only seen the
neurologist once since I let the hospital, which was in November 2005. My
healthcare is managed by my Physical Medicine and Rehabilitation
doctor(Physiatrist). Any problems that I have had since my diagnosis in July
I saw a neurologist regularly for about the first year -- he kept track of
my progress and answered hundreds of questions for me. But after we moved away
from the area I didn't seek out a new one because there was really no need
for me to -- though still having problems I was on a stable
.
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, May 10, 2007 12:04 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
Does everyone here on this site have a neurologist? I have only seen
the neurologist once since I let
.
- Original Message -
From:
To: [EMAIL PROTECTED];tmic-list@eskimo.com
Sent: 5/10/2007 12:05:36 PM
Subject: Re: [TMIC] Another Symptom
Does everyone here on this site have a neurologist? I have only seen the
neurologist once since I let the hospital, which was in November 2005. My
Ryder' Cc: [EMAIL
PROTECTED] ; tmic-list@eskimo.com
Sent: Friday, May 04, 2007 1:07 PM
Subject: RE: [TMIC] Another Symptom
I too have had my arms flail away when I have fallen asleep in a chair
watching the awful news or reading the even more depressing paper⦠I donât
Does this mean continious contracted? I'd call it when spasticity even if it
is spastic rigidity or is that just a spasm?
Candy K
- Original Message -
From: natalie mizenko
To: [EMAIL PROTECTED];Transverse Myellitis
Sent: 5/9/2007 1:43:40 PM
Subject: Re: [TMIC] Another Symptom
To: natalie mizenko [EMAIL PROTECTED], [EMAIL PROTECTED],
Transverse Myellitis tmic-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
Does this mean continious contracted? I'd call it when spasticity even if it
is spastic rigidity or is that just a spasm?
Candy K
]
Date: 2007/05/09 Wed PM 01:56:02 EDT
To: natalie mizenko [EMAIL PROTECTED], [EMAIL PROTECTED],
Transverse Myellitis tmic-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
Does this mean continious contracted? I'd call it when spasticity even if it
is spastic rigidity or is that just
with the Stem Cell saga. We pray in your sons
name. Rick
From: Kevin Wolfthal [EMAIL PROTECTED]
Date: 2007/05/09 Wed PM 03:23:47 EDT
To: [EMAIL PROTECTED], Tmic-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
The last neurologist I went to told me that I can't have Transverse
Myelitis
-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
The last neurologist I went to told me that I can't have Transverse
Myelitis because
I have spasticity in my legs. Say what? She also subsequently lost some of
my EMG test results. I no longer go to her, needless to say. It is sad
how
] (mailto:[EMAIL PROTECTED]) ;
[EMAIL PROTECTED] (mailto:tmic-list@eskimo.com)
Sent: Friday, May 04, 2007 1:07 PM
Subject: RE: [TMIC] Another Symptom
I too have had my arms flail away when I have fallen asleep in a chair
watching the awful news or reading the even more depressing paper… I
PROTECTED],
'Alton Ryder' [EMAIL PROTECTED]
CC: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] Another Symptom
I too have had my arms flail away when I have fallen asleep in a chair
watching the awful news or reading the even more depressing paper. I don't
think
I agree, Rick. I've made various 'charts' off and on, to keep track of
supplements, meds, exercise, nutrition, and how I feel.
I use charts, too, to tell me when I need a lidocaine infusion as the infusion
helps but slowly wears off over a week. After 2 to 4 weeks of 1 to 2 the pain
Okay you guys, you sound like my husband and he is healthy --- I wonder. He
flaps his arms and jerks his legs in his sleep
Natalie, Alton, et al,
This is common.
I, too, do this when dreaming, I'm a bird. The symptoms are worse when I'm
dreaming, I'm a wild turkey, or great blue heron.
it!!
:-) . He is my hero..
Trudy
_
From: Natalie Boyles [mailto:[EMAIL PROTECTED]
Sent: Thursday, May 03, 2007 5:48 PM
To: Alton Ryder
Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Another Symptom
Okay you guys, you sound like my husband and he is healthy --- I wonder. He
Don't they call this spasticity..?
Bobberino
From: Trudy To: 'Natalie Boyles' ; 'Alton Ryder' Cc: [EMAIL
PROTECTED] ; tmic-list@eskimo.com
Sent: Friday, May 04, 2007 1:07 PM
Subject: RE: [TMIC] Another Symptom
I too have had my arms flail away when I have fallen
can't help you if you don't make notes. Your friend Rick
From: Trudy [EMAIL PROTECTED]
Date: 2007/05/04 Fri PM 02:07:17 EDT
To: 'Natalie Boyles' [EMAIL PROTECTED],
'Alton Ryder' [EMAIL PROTECTED]
CC: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] Another Symptom
I too
I agree, Rick. I've made various 'charts' off and on, to keep track of
supplements, meds, exercise, nutrition, and how I feel. Sometimes I feel
really self-centered doing it, but on more than one occasion I was able to
review it and find that certain things resulted when I did (or ate, or
Hey Jude,
Wow Jude, I am glad you have an appt. this week and hopefully can get an
answer. Let us know what you find out. Have a great dayJenna
[EMAIL PROTECTED] wrote:
Hello All,
After five years with TM and no improvements or changes per se', I am having
a new
I have something similar. Sometimes, when I am lying down during the
day and I start to nod off, both arms will fly forward and the left
leg might jerk towards my head. Not always, but it always wakes me.
It doesn't happen when I go to bed. If either hand is holding
something, that hand
Okay you guys, you sound like my husband and he is healthy --- I wonder. He
flaps his arms and jerks his legs in his sleep so badly, I must leave the
bed. If you find an answer to this dilemma please let me know about it. I
am tired of being beaten.
Natalie
On 5/3/07, Alton Ryder [EMAIL
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