Hi Debbie,
Very interesting. No I have not checked re optic migraines. My neuro didn't
say anything about that either. If they were optic migraines would I have this
going on all day, every day for 8 weeks? Just like all TMers I've had my share
of weird symptoms, but this one takes the cake. I have an appt with a new
Rheumatologist Sept 13 because I also have Sjogrens and my neuro is interested
in his opinion of what's going on. (I just moved to Eagle, Idaho from Seattle a
few months ago - so I've had to set up a whole new network of doctors. Boy, what
a lot of work it has been to do that! The good thing about it is that I was able
to get the top notch docs.
Hugs - and thanks for the support. I'll let you know what
happens.
Linda C
----- Original Message -----
Sent: Tuesday, September 05, 2006 9:36
AM
Subject: Re: [TMIC] tm
Hello Linda,
Have you checked with an
optometrist or ophthalmologist to rule out optic migraines? I work for
an optometrist and he gets them once in a while. What you are describing
sounds exactly what he describes to me. But he doesn't panic because he
knows what it is. I guess you could say that he is
"self-diagnosing". Hope you get to the bottom of this, and
soon!
Take care,
Debbie
----- Original Message -----
Sent: Monday, September 04, 2006 9:32
PM
Subject: Re: [TMIC] tm
A question to Linda Elgi - your description of how your TM started
intrigues me. Do you know where your
lesion is? I have some of those symptoms also, and my lesions are
are C4,5&6. And I have had a NEW and even better symptom than all of the
others I have - I have shooting pains on the right side of my head, shooting
clear over the top almost to my forehead. Have had them about 8 weeks now.
Not fun. Neuro not completely sure what is going on - still more testing -
the never ending tests. Has anyone else had this happen - the head
thing?
Thanks
Linda C
----- Original Message -----
Sent: Monday, September 04, 2006 2:49
PM
Subject: RE: [TMIC] tm
Mine hit me all at once, in half hours time.Started with a
tingly in my low back, and progressed to my legs geting rubbery and
falling alseep and that was it...lost both my legs and got rushed to the
hosp.
Linda Egli <[EMAIL PROTECTED]>
wrote:
My
symptoms came on over a 6 week period. Started with numbness in
hands & feet, moved to arms & legs, then to trunk & chest
with banding below my shoulder & thankfully stopped there. Took
about 6 months for all this to level out & now left with numbness
esp. in hands and feet, fatigue with anything I do, & poor
balance. My main problem now is increasing tremors in my right
hand & now some in lower jaw (have never heard anyone mention this),
but my neuro thinks it is normal.
Jill Z
<[EMAIL PROTECTED]> wrote:
Mine
came on gradually also. I thought it was Cauda Equina Syndrome
again like my dr. said the first time 2 yrs
ago....
"Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> wrote:
I think mine
came on gradually - when I thin back to what happened before I went
totally numb, tingly and lame on my left side, there were some
instances where I think it may have been my spinal condition:
walking wobbly, bumping into things, spilling coffee , klutzy kinda
things.
BERNARD
BUTCHER
I notice that every thing refers to acute TM. Has anybody
in the group had TM that has come on gradually. Everyone
should read the link that Frank sent about GP's. There I guess
is nothing we can do about this but we certainly should be
informed. At a hospital here in Virginia who employs
physicians unless they see patients in an allotted time the
physician is asked to leave. Am afraid that this is becoming
the norm and is certainly a poor way to practice good
medicine.
Ann in
Virginia
Krissy
Zodda
Tri State Support Group
Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
~I'm
In pretty Good Shape
For the Shape I am in~
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