Hi Jaime - now this is really weird. Ann inflamed nerve and not related to
TM. The reason I originally believed mine was TM related is that the shooting
pains started from my lesions, shot up the right side of my head, then they got
worse and went clear over my head almost to my forehead. Now that scared me.
Well, all I can say is I hope we all find out what the heck it is because it's
downright scary.
Take care and let me know what you find out - I hope all 3 of us aren't
told completely different things!
We'll see....I have never met Dr Kerr, but that might be a good idea to
email him. I just can't believe this hasn't come up before.
Linda C
----- Original Message -----
Sent: Tuesday, September 05, 2006 7:39
PM
Subject: Re: [TMIC] tm
I have that exact thing on the right side of my
head. Severe shooting pains. My neuro said it is an inflammed
nerve and not related to TM. Today I had some pretty bad ones that made
me think I was really having a problem but then they go away and I ignor
it. I just ignor it. I do not know if I should be doing anything
about it or not. Maybe Dr. Kerr at Hopins knows about this. Do you
know of him, you could email him. I won't because I met him and I think
I was a pain to him when I saw him. I was really sick in my mind.
But, I have the shooting weird pain on the right side of my head alot and I
ignor it.
----- Original Message -----
Sent: Monday, September 04, 2006 11:32
PM
Subject: Re: [TMIC] tm
A question to Linda Elgi - your description of how your TM started
intrigues me. Do you know where your
lesion is? I have some of those symptoms also, and my lesions are
are C4,5&6. And I have had a NEW and even better symptom than all of the
others I have - I have shooting pains on the right side of my head, shooting
clear over the top almost to my forehead. Have had them about 8 weeks now.
Not fun. Neuro not completely sure what is going on - still more testing -
the never ending tests. Has anyone else had this happen - the head
thing?
Thanks
Linda C
----- Original Message -----
Sent: Monday, September 04, 2006 2:49
PM
Subject: RE: [TMIC] tm
Mine hit me all at once, in half hours time.Started with a
tingly in my low back, and progressed to my legs geting rubbery and
falling alseep and that was it...lost both my legs and got rushed to the
hosp.
Linda Egli <[EMAIL PROTECTED]>
wrote:
My
symptoms came on over a 6 week period. Started with numbness in
hands & feet, moved to arms & legs, then to trunk & chest
with banding below my shoulder & thankfully stopped there. Took
about 6 months for all this to level out & now left with numbness
esp. in hands and feet, fatigue with anything I do, & poor
balance. My main problem now is increasing tremors in my right
hand & now some in lower jaw (have never heard anyone mention this),
but my neuro thinks it is normal.
Jill Z
<[EMAIL PROTECTED]> wrote:
Mine
came on gradually also. I thought it was Cauda Equina Syndrome
again like my dr. said the first time 2 yrs
ago....
"Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> wrote:
I think mine
came on gradually - when I thin back to what happened before I went
totally numb, tingly and lame on my left side, there were some
instances where I think it may have been my spinal condition:
walking wobbly, bumping into things, spilling coffee , klutzy kinda
things.
BERNARD
BUTCHER
I notice that every thing refers to acute TM. Has anybody
in the group had TM that has come on gradually. Everyone
should read the link that Frank sent about GP's. There I guess
is nothing we can do about this but we certainly should be
informed. At a hospital here in Virginia who employs
physicians unless they see patients in an allotted time the
physician is asked to leave. Am afraid that this is becoming
the norm and is certainly a poor way to practice good
medicine.
Ann in
Virginia
Krissy
Zodda
Tri State Support Group
Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
~I'm
In pretty Good Shape
For the Shape I am in~
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