> > *Hiya Kevin,*
*Boy, I sure can relate to the family thing, and friends slowly disappearing. My oldest child, (33 yrs old) a son, has never seen me during my flat on my back, paralyzed and blind episodes, but has only seen me afterwards. He seems to think that as long as I can stand up, and speak, and get around a bit, that all is well. My ex husband has tried to talk to him to get him more or less prepared for the worst, but it falls on deaf ears. Jay (My ex) think that the kids are just in denial about the whole thing---not my oldest daughter, but my oldest and youngest. (17)* ** *The friends thing is a bit different for me. I have too many well meaning friends that want to drag me here and there, want to see me get out more, and do more---but Kevin, I can't. You know how the fatigue can be, and for me using Rituxan infusions now, it's even more so---so, whenever I decline an invitation (And that's fairly often.) they start buzzing about me being *depressed*. Kevin, I'm not depressed----just incredibly tired the majority of the time. Seems like I'm dam*ed if i do, and dam*ed if I don't. * ** *Grace *
