I just got off of the phone with Patti and she seems to be doing quite well. I guess I have not been posting as much as I thought, because she mentioned not hearing from me too. Sorry everyone. I guess that I am having a minor "pity party" and don't feel like other people care to hear about my woes when they have troubles of their own. I can't imagine having TM the way I do and trying to raise a family at the same time. Those of you with children have a blessing and a burden at the same time. And I mean that in the most loving way. If Dave and I had children, with me being paralyzed, our children would be sorely lacking in so many ways. Dave would have made a wonderful father, so patient and kind, but I don't know what I could have contributed. I feel terribly guilty because I don't give Dave all of the loving appreciation he deserves as my husband. But most of the time I am in too much pain to feel like being intimate. Am I wrong? Should I try harder? Should I try to hide the pain and force myself? Or, should I continue to smile when I can, tell him how much I love and appreciate him all of the time like I do, and try to not worry about the other things because as he says, "I am happy with things just the way they are." And he means what he says. How many of you feel guilty about not being as intimate as you used to be before TM? I live my life from a hospital bed and am in bad pain all of the time. Along with the intense pain, my abdomen feels like it is being squeezed by a python or a super-tight corset being pulled increasingly more and more tight. Plus I don't feel especially sexy with an indwelling catheter. The most Dave and I do together is watch a movie. We recently lost our 21 yr. old cat...one of our "babies". Her brother was buried in the spring so we were lucky to have Sadie as long as we did. They were like our children because we couldn't have any of our own and Dave never wanted to adopt although I would have loved any child, mine or otherwise. How boring for me to go on this way. Please accept my apology but I must have needed to get it out. God's Love to you all... Jude In a message dated 11/24/2008 2:57:51 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes:
Jude, Neuro's haven't said anything about it. I know there has been discussions on the Transverse Myelitis Association Forum and there are several people who have family members with similar illnesses. My Dad suffered from arthritis terribly and then he died as complications of Alzheimer's. My youngest sister had 'Colitis' when she was in here teens. She had her large bowel and rectum removed at age 19. She is now 58 yrs old and suffers from arthritis, can't each much anymore due to complications with intestines and had a never ever ending bladder infections. She has lived with pain almost her whole life. I call her my hero and have done so since 1972 when she had her major surgeries. She went on to marry and have two children now aged 22 and 18. She amazes me. But her health is bad. So me with TM at age 58 (it started then), my next sister now 60 has had MS diagnosed for almost 20 yrs and then my youngest sister aged 58 (who has suffered for most of her life). Autoimmune disorders all of them. I do think there is a connection with us all. Nice to see you back on-line. Hope you are doing okay right now. We met up with Patti and Jim again in October in Ontario. We were down that way for a month and they came over from the USA for 2 days. It was so good to see them again. Hugs to you Heather ----- Original Message ----- From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) Sent: Monday, November 24, 2008 12:30 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 What do the neuro's say about the fact that your sister has MS and you have TM? What are the chances of that in one family? Jude In a message dated 11/24/2008 2:21:21 P.M. Eastern Standard Time, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) writes: That is the way I understand it too Jude. My sister who is 3 yrs younger than me has MS. It is the one that progresses slowly but everytime she has and MRI she has more lesions on both spine and brain. Heather in Calgary ----- Original Message ----- From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ; [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) Sent: Monday, November 24, 2008 12:06 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 Hello All, It has been my understanding that with TM one must have lesions on the spine but not on the brain. If one has lesions on the brain it is indicative of MS. Am I misinformed regarding this information? God Bless You, Jude In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) writes: Frank, They were never able to locate a lesion on my spine and from what I have read on the message forums this is true for alot of people. I had mutiple MRIs done both with and without contrast. Lynne --- On Sun, 11/23/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> > Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 > To: "jrushton" <[EMAIL PROTECTED]>, [EMAIL PROTECTED], "TMIC" <tmic-list@eskimo.com> > Date: Sunday, November 23, 2008, 4:30 PM > > i have a question, has anyone else been told that > they don't have > lesions on their spine? my neuro > says mine is just swelling from c6-t3 > and t9-t10., so > what does that mean? > > What does swelling from c6-t3 > and t9-t10 mean?? > > Did you have an MRI with and with out gadolium > (enhansement)? > > F ____________________________________ One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp&icid=aolcom40va nity&ncid=emlcntaolcom00000001) today! ____________________________________ One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp&icid=aolcom40va nity&ncid=emlcntaolcom00000001) today! **************One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001)
