Hang in there, Mindy. Sounds like you can still improve!
Janice
----- Original Message -----
From: Lawrence King
To: tmic-list@eskimo.com ; fr...@franksheldon.com
Cc: Lawrence King
Sent: Saturday, July 25, 2009 11:51 AM
Subject: Re: [TMIC] TM
Whoa there!
your statement regarding true TM and Paralysis is incorrect! Acute TM means
damage is done in a matter of hours or days. Sub-acute TM means damage over
weeks. The information my Neuro gave me at the time of diagnosis stated that
the rate of paralysis from TM was 50/50 I suffered sub-acute TM at C4-C5 in the
spring of 2007. The MRI's and Spinal Tap analysis were pretty conclusive that
I had TM. My leg weakness was very small and passed within a matter of hours,
I was never incapacitated. My bladder difficulties (I could always pee with
effort) passed in the first 6 months. Body and hand weakness took more than a
year. My worst symptom was and continues to be acute pain (Central Pain
Syndrome) from the shoulders down. My suffering led to a contemplation of
suicide. Those of us who fall into the "CPS only" sufferers are a small
minority among TM survivors but as a whole our prognosis for recovery is poor.
The good news is that my only major improvement in pain has come after my 2nd
anniversary.
Mindy the Artisan
On Jul 25, 2009, at 8:58 AM, fr...@franksheldon.com wrote:
*Yes, a small lesion can affect a relatively small part of the body.
Myelitis simply means inflammation of the spinal cord. Transverse, means
*across*.*
True transverse myelitis results in para or quadra plegia depending on the
level of demyelination.
I have a very small area of demyelination- C6, right side of spinal cord,
size of a small pea- but it results affecting my whole body from my shoulders
down. So you have a small lesion affecting an incredibly large area of the body.
It's a bit like a gun shot wound- through my hand minimal treatment,
through my heart maximum treatment, through my head death!
My two cents
F
