Hello all, Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks like some support was needed for you guys and maybe for some just lurking and not feeling up to writing in. Believe me, I sympathize with you and your pain.
This time of year, when it's cold in many parts of the country and world, my symptoms get worse also. It seems that some of us have symptoms that are exacerbated by the cold and some by heat. The barometric pressure can affect many. Mine are much worse in the cold, and especially if it's rainy. My skin can be warm to the touch, but I can feel cold to the bone (as I say). I actually think that it may be the nerves that are cold and it is so hard to warm up again. It can be really painful. I get under the blankets and also wrap my legs in blankets, sometimes a heated one, and pray it goes away soon, but I can only do that when I'm at home. I try not to go out of the house unless absolutely necessary during this time of year, and I am sure that this is why the winter blues set in. This is something we have to be very careful of, because it can cause a lot of depression. Please be aware of this. This is another reason why it's important to keep in touch. Hugs, Barbara A in Auburn CA -----Original Message----- From: L T CHERPESKI <cherp...@msn.com> To: tmic-list <tmic-list@eskimo.com>; Barbara Alma <balmat...@aol.com>; Dalton Garis <malugss...@gmail.com> Sent: Sun, Nov 7, 2010 4:43 pm Subject: Re: [TMIC] hello out there Hi Dalton & Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list.... After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a "trial period" to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda ----- Original Message ----- From: Dalton Garis To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma Sent: Sunday, November 07, 2010 5:19 PM Subject: Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton From: L T CHERPESKI <cherp...@msn.com> Date: Sun, 7 Nov 2010 16:33:40 -0700 To: <tmic-list@eskimo.com>, Barbara Alma <balmat...@aol.com> Subject: Re: [TMIC] hello out there Resent-From: <tmic-list@eskimo.com> Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me "attack" free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer~~~~~ Linda in Eagle, ID
