Welcome back, Janice!  Sounds like you had a wonderful time.  (Sorry fellas, 
you might want to zone out for a minute) ~~~~ I'm glad your "hot" spells are 
better in the cold weather.  Mine stopped immediately and never came back when 
TM became my special friend.  One nice perk ~~~~~

Linda
  ----- Original Message ----- 
  From: Janice Nichols<mailto:jan...@centurytel.net> 
  To: cherp...@msn.com<mailto:cherp...@msn.com> ; 
tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; 
malugss...@gmail.com<mailto:malugss...@gmail.com> ; Barbara 
Alma<mailto:balmat...@aol.com> 
  Sent: Tuesday, November 09, 2010 6:43 PM
  Subject: Re: [TMIC] hello out there


  Actually, I love the winter weather.    At least then I don't have many "hot" 
spells.   I can control that better in cold weather.  Anyone else like that?
  Janice


  From: Barbara Alma<mailto:balmat...@aol.com> 
  Sent: Sunday, November 07, 2010 7:44 PM
  To: cherp...@msn.com<mailto:cherp...@msn.com> ; 
tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; 
malugss...@gmail.com<mailto:malugss...@gmail.com> 
  Subject: Re: [TMIC] hello out there


  Hello all,

  Well, maybe I shouldn't have asked this question, but I'm glad I did.  It 
looks like some support was needed for you guys and maybe for some just lurking 
and not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  

  This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.

  Mine are much worse in the cold, and especially if it's rainy.  My skin can 
be warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I can 
only do that when I'm at home. 

  I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

  Hugs, Barbara A in Auburn CA



  -----Original Message-----
  From: L T CHERPESKI <cherp...@msn.com>
  To: tmic-list <tmic-list@eskimo.com>; Barbara Alma <balmat...@aol.com>; 
Dalton Garis <malugss...@gmail.com>
  Sent: Sun, Nov 7, 2010 4:43 pm
  Subject: Re: [TMIC] hello out there


  Hi Dalton & Everyone ~~

  You're right Dalton.  Many of us seem to be having additional challenges 
right now.  Could be why we've been so quiet on the list....

  After I read your post about the horrific day you had, I did a little 
research, and I think I came back even more confused - sorry to say.  I'm sure 
I've asked you this before, but I'll ask again.
  Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a "trial period" to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

  Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

  So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

  Linda
    ----- Original Message ----- 
    From: Dalton Garis<mailto:malugss...@gmail.com> 
    To: L T CHERPESKI<mailto:cherp...@msn.com> ; 
tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; Barbara 
Alma<mailto:balmat...@aol.com> 
    Sent: Sunday, November 07, 2010 5:19 PM
    Subject: Re: [TMIC] hello out there


    Seems as if everyone went down at the same time.  Is it possible that I 
might have recurrent TM?  I wish I could get the neuro interested in my case.  
But he just keeps me in Lyrica and has no further interest.

    Dalton


----------------------------------------------------------------------------
    From: L T CHERPESKI <cherp...@msn.com<mailto:cherp...@msn.com>>
    Date: Sun, 7 Nov 2010 16:33:40 -0700
    To: <tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>>, Barbara Alma 
<balmat...@aol.com<mailto:balmat...@aol.com>>
    Subject: Re: [TMIC] hello out there
    Resent-From: <tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>>
    Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

    Have been trying to keep myself calm and quiet as I am in a full blown 
flare.  I'm 2 months past my Rituxan infusions, which obviously is not good.  
Hoping they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me "attack" free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~~~~~

    Linda in Eagle, ID


       
       


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