Your curiosity is well placed. I am also curious. These attacks are weakness in the limbs and torso; and muscle contractions in my entire backside from buttocks to head, then becoming contractions from legs to head on the front side. These contractions last long enough for my face to turn beet red. Then they let go and I wait for the next one. Breathing is hard. And talking makes these contractions start when I try to speak.
After several hours of this I get well enough to talk again without convulsing. I will be very weak for another day or so then I regain most of my strength so that I can once again make coffee and walk with a cane short distances. That's about it. Right now it is the next day after a very bad day and night. So I walk with elbow crutches and have no coordination or stamina. Is it from earlier exertion? I don't know. I lecture in a college and don't exercise any more so I can't imagine. Thanks for your interest, Dalton Dalton Garis Abu Dhabi +971-050-668-5760 -----Original Message----- From: "Gary Thomas" <gbthomas8...@sbcglobal.net> Date: Tue, 8 Mar 2011 23:25:14 To: Dalton Garis<malugss...@gmail.com>; Janice Nichols<jan...@centurytel.net>; <jack...@att.blackberry.net>; TMIC<tmic-list@eskimo.com> Subject: Re: [TMIC] Connected? Dalton, Maybe I'm missing something, but what exactly are these "attacks" you describe? I don't understand what your neurologist calls "cycling" as far as worsening of TM symptoms. I have always understood, and have read somewhere, perhaps on this list or the TM Journal, that we have the onset of TM experiences (lesions on the spinal cord) which for most of of us is a one-time occurrence with possibly lasting symptoms, AND we have times of exacerbation brought on by physical or mental overexertion, maybe an illness such as even a cold and so on (I have worse banding from sitting too long or standing too long) which are not caused by further damage to the spinal cord but worsening of symptoms at least temporarily. So, again, Dalton, I am confused as to your attacks--could it be another lesion, could you be experiencing MS? I hope not, but just wonder what is happening--and forgive me for my curiosity. Gary in Michigan ----- Original Message ----- From: Dalton Garis To: Janice Nichols ; jack...@att.blackberry.net ; TMIC Sent: Tuesday, March 08, 2011 1:58 PM Subject: Re: [TMIC] Connected? Hi; Thanks for your support. I got another attack today. It started slowly with pain in my feet and hands yesterday, which became weaker by the hour. Then it slowly worked itself up the legs and arms today, weakening me as it went. Then it hit my lower and upper back, and I could no longer stand up, and am now unable to walk without the aid of crutches, and only for a few yards. When it got really bad today, I was unable to speak more than a few words without causing convulsions in my back and arms. After a while I could speak again. I had to be careful with the swallowing which was no longer on automatic. Same with urinating. It took great concentration to sort of identify the nerves and wake them up. There were moments when I could not feel my legs and didn't know if I could move them. Again, it took concentration to wake the nerves up and get the legs moving again. The pain in the legs and arms and back is terrific and nothing touches it. My neurologist has told me that there are, of course, stronger medications which can mostly arrest this cycling and give me some peace. But also, of course, they would make me a zombie for most of the day and I would likely become unable to work any longer. I am happy to be able to type again. It is five minutes before eleven pm and I can finally work my hands a little, for typing, making coffee, and getting some snacks from the fridge. Well, I wrote all this because some have been saying that it is vey quiet. So here's a raft of symptoms to look at. Thanks so much, friends, for being here. Dalton Garis Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: Janice Nichols <jan...@centurytel.net> Date: Mon, 7 Mar 2011 10:31:30 -0600 To: Dalton Garis <malugss...@gmail.com>, <jack...@att.blackberry.net>, TMIC <tmic-list@eskimo.com> Subject: Re: [TMIC] Connected? Dalton, no, but I do have cycles of feeling okay and then feeling more discomfort from nerve pain and spasms. Can't believe the doc's can't get you under control better than that. How about going to one of the best known hospitals - especially those fairly familiar with TM? Or, maybe you have. All it takes is one doctor who can understand what is going on with you - hopefully. I realize you are also trying to hold down a job and you have the pressure from that to always be there, but I just can't believe there isn't some way this can be controlled. I wish you the best. Janice From: Dalton Garis Sent: Sunday, March 06, 2011 9:57 PM To: jack...@att.blackberry.net ; TMIC Subject: Re: [TMIC] Connected? So; I can report that I have about a 5-day period wherein I am mostly free of severe difficulties, able to walk with a cane and to work for about 6 hours of the day. After this interlude, I have two or three days of extreme weakness and convulsions limiting me to the big Morris chair or to bed. That has been my cycle for about three months now. It will be one year since my first violent attack of convulsions of 23 April 2010. Anyone else have this kind of almost weekly cycling of symptoms? Thanks, Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: <jack...@att.blackberry.net> Reply-To: <jack...@att.blackberry.net> Date: Mon, 7 Mar 2011 00:56:44 +0000 To: TMIC <tmic-list@eskimo.com> Subject: [TMIC] Connected? Resent-From: <tmic-list@eskimo.com> Resent-Date: Sun, 6 Mar 2011 16:57:59 -0800 Hello Haven't been getting posts from TMIC- but have about ldn. Did group change? Its interesting and New people - I don't know how but - if group changed that's ok. If it didn't what do I need 2 do 2 get back on. Are All posts from past week only about low dose naltrexone? Thanks :) jackduv Sent via BlackBerry by AT&T
