Hi, You're right,it is a circus. I got tm on 8/13/95. MRI showed lesion from T4-T5. Started out paralyzed from T4 to toes. Now numb in that area,with a few areas of hypersensitivity on left side. I have bladder/bowel problems,spasms,numbness and tingling. I walk with a walker. A year or so after dx. I had a flare-up and had another MRI. The original lesion was gone. My dx remains tm. I've never had an LP. Are your docs planning another LP? Why do they say there is not any sign of demyl from the spinal fluid? Isn't that what made them think (along with the spot on the brain) it was MS? I'm confused! Cheryl in Easthampton,MA
--- On Wed, 6/1/11, jeff bernier <jeffsmokeea...@yahoo.com> wrote: From: jeff bernier <jeffsmokeea...@yahoo.com> Subject: [TMIC] the run around To: msersl...@yahoogroups.com, tmic-list@eskimo.com Date: Wednesday, June 1, 2011, 10:24 AM hello,i havnt posted on here in years,recognise most of you and see alot of new names,just thought i would throw this out there and see what you all think. in feb 2000,i fell through a staircase fighting a fire and landed on my heels,i had a shockwave go up my spine and went over on my head.had no sighns of numbness or the pins and needles untill 3 weeks later,it got so bad i started falling on my face and became so weak the wheelchair was the only other option,i was given all the ms test and came up neg,but they found lesions on my c spine and were extremely quick to call what i had transverse myelitis ( inflamation of the spinal chord ).through the course of 5 years,i went through all the crap that comes with ms,everything from spasms,bladderdisfunct,sexual problems etc etc and experienced every range of emotion there is.in 2005 i was dx with ms after a positive lp and a small lesion on the brain,the lesions on the c spine were gone and i thought i was finally going to get some answers.well in jan i had a repeat mri done and found the spot on the brain is still there,but was told the spinal fluid they took in 2005 showed no sighns of demyl and they changed my dx back to tm.now how frustrating is that? 11 years,22 doctors,3 major hospital centers and 15 therapy centers later to be put back to square 1 with still no answers.what a circus. DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
