Thanks Kevin. You can explain it so much better than I ever could. Before these groups, I never checked my FB account, but now I do everyday. At first, I was also loaded with e-mails from FB, sometime 100 per day. My daughter then changed my settings for me, and now I only get the e-mails from our TMIC group, but there have been so few that I figured most went to FB.
Our FB groups have expanded so much with so many new and younger people, and you get such a nice feeling to be able to help all the newbies with information. I for one am so thankful that you and Greg had the idea to set up the FB group. Patti -- Wisconsin On Tue, Aug 30, 2011 at 9:06 AM, kevin weilacher <hwyfli...@yahoo.com>wrote: > Hello all, > > I'm still a member here too...and read every single post that comes from > this group.... > and this group still has it's place in the TM Community...because for some, > this is the type of correspondence that they are comfortable with... > But....I started the TM Folks group on Facebook first of all, for those of > us that were already on Facebook and wanted to connect that way....and > second, is because the majority of the "newbies" that are younger and also > the ones that are now coming on board.....generally look to Facebook for a > group that is pertinent to them... > I have had literally dozens of people that have had TM for a long > time...and have never reached out to any of the TM communities before...for > whatever reason.., and now they have decided to reach out and they have gone > to Facebook to look for others... > When I made the TM Folks group....I made it so that it is a "closed" > group...meaning that none of the posts that are made in there, can be seen > by anyone other than the other members....so that assures us some privacy > and saves some of our dignity too....because some of the things that are > talked about, are obviously, of a very personal nature. > Other people within Facebook can search for 'Transverse Myelitis" and the > group will appear,(except for the posts) but a person has to request to be > allowed into the group, they can't just join... > The one other thing that I like about the Facebook group...is that you can > chat with others that are within the group.....if there are others, that are > online and they are on your "friends" list...you have a private group chat > box, and you can chat away..... > The one drawback as Bobberino said...is that you do get inundated with > emails...every time someone posts, an email gets sent out... > but, that can be changed, by editing your settings in the group....It's a > very easy thing to do... > Anyway, the group is extremely active...there is always something going on, > information being put out there...or whatever... > I didn't mean this to be a "sales pitch" for the group...I just wanted to > explain so that folks understand a little more about the Facebook group... > As I said, this group here still has it's place....and hopefully always > will...because there are those that just feel more comfortable with this > type of format... > and I'll continue to be a member for as long as this group stays around > too... > > Mindy Edwards-King and Greg Sapp are my co-admins on there... > > Thanks all.... > and keep posting here... > > Kevin Weilacher > N.E. Ohio (Canton) > > ------------------------------ > *From:* Jeron Rampersad <rumc...@hotmail.com> > *To:* bpe...@austin.rr.com; cherp...@msn.com; tmic-list@eskimo.com > *Sent:* Tuesday, August 30, 2011 7:51 AM > *Subject:* RE: [TMIC] gone to facebook > > > Hey guys, > I too am on facebook, but to me this seems more appropriate. I get honest > and open discussions from you guys and that's something I need to have. On > facebook your privacy is not kept and sometimes things I'll say on here > aren't things that i would share naturally with family or friends that don't > understand TM and the life that I am forced to endure. Also, with my current > situation, going through a messy divorce and traveling by myself for the > last few months, I'd like to be as discreet about my life as possible. I can > only find solace here and you guys give more value to my life than the > people I'd always pray would understand instead of thinking of me as a > burden. So, I'm always going to be right here.....where I found the most > beautiful bunch of people on the planet. > Jeron, from Planet Earth! > > ------------------------------ > Date: Tue, 30 Aug 2011 04:03:18 -0500 > From: bpe...@austin.rr.com > To: cherp...@msn.com; tmic-list@eskimo.com > Subject: Re: [TMIC] gone to facebook > > *Hi Linda et all, > I'm still here with ya'll, but I do have the Facebook along with this. > And I wouldn't dream of leaving this list either. This is where it all > began, and it's like a warm blanket. I don't post much as it's always the > same, day after day; nothing to report. But that has a good side I guess.... > lol. Take care and God Bless! > Peace, > Bernie in burning Texas > * > > >
