Wow........!!! Nice to see all of this sudden activity at the TMIC
list......... seems to me that y'all were hiding because of the crappy
weather.
Nice to hear from 'some many' again.
Yep, we're ones of the earlier members. Me missus had her first attack on
97 September. How time flies.
regards, Bobberino
---- Original Message -----
From: "Roger & Terese Pratt" <r.c.pr...@frontier.com>
To: "Barbara H." <barbara...@gmail.com>
Cc: "Jeron Rampersad" <rumc...@hotmail.com>; <bpe...@austin.rr.com>;
<cherp...@msn.com>; <tmic-list@eskimo.com>; "kevin weilacher"
<hwyfli...@yahoo.com>
Sent: Tuesday, August 30, 2011 10:47 AM
Subject: Re: [TMIC] gone to facebook
Barbara, You were one of my first "friends" online. I too have had TM
for 16-17 years and now I have mononeutritis multiplex, another autoimmune
condition that effects peripheral nerves. Knowing that I have friends out
there, even if we don't post that often, means a great deal to me. - Roger
in Kennewick, WA
----- Original Message -----
From: "Barbara H." <barbara...@gmail.com>
To: "kevin weilacher" <hwyfli...@yahoo.com>
Cc: "Jeron Rampersad" <rumc...@hotmail.com>, bpe...@austin.rr.com,
cherp...@msn.com, tmic-list@eskimo.com
Sent: Tuesday, August 30, 2011 7:44:02 AM
Subject: Re: [TMIC] gone to facebook
I'm still here, too. I don't comment as much -- if someone else has
already said what I might have said, then I don't usually chime in. The
TMIC as a whole is not nearly as active as it was when I first joined back
some...oh, 14-15 years ago. I'm coming up on my 16th "anniversary" with TM
on Sept. 1. I think one reason is that there is a lot of information
available online now, and that's a good thing. When I first contracted TM,
I didn't have a computer, and the local library had a two-page spread in
one medical book, and that was it. TM was the first thing I searched for
when we did get a computer, and this group was the first concrete link I
found. It was a godsend, really, to have somewhere to post questions and
compare notes. But now that so much more information is online, people may
be getting their questions answered in their own research.
And I think, too, for some of us who have been here a while, we've gotten
our basic questions answered (even if the answer in some cases is that
there is no known answer), so there's not as much to talk about. The main
reason I stay on now is to be of help if anyone else has a question or
just needs some empathy and support.
Too, as Roger said, some have gone on to other means of communication now.
I think the TM message board or bulletin board was pretty active for a
while, and now Facebook is where many people go to interact online. I was
in the group there for a while, but left -- the 50+ messages Bobby Jim
referred to were just too much for me. When I first came online, TMIC was
about the only thing I "did" online besides an occasional e-mail to family
who had e-mail. But now nearly everybody has e-mail, many friends are on
Facebook, I've found several blogs I read as well as news and
entertainment -- now I have to be careful not to let computer time eat up
too much of my day. And I don't know, but I think that may be the biggest
reason some folks aren't as active.
When I send out birthday greetings, if an e-mail bounces back to me, I'll
make a note of it so I don't post that non-working e-mail again next time,
but I don't delete the name in case they come back. It is sad every month
to see that there are almost as many inactive names there as there are
active now. I miss hearing from some of those folks and wonder how they
are.
But I truly think as long as there is a TMIC, there will be some of us
here. We just need to wave every now and then. :-)
Barbara H.
http://barbarah.wordpress.com