Hi I live in Toronto. I am normally on two 15mg per week. Sometimes I take three but that amount really drops my counts hb, platelets white blood cells to low levels. So I then go back to two per week. It's a balancing act. John
Sent from my iPad > On Jan 26, 2015, at 6:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Dear John, Thanks for the info. Are you on one pill at 15 milligrams twice a > week? Or 45? Just checking in about the dosage? Also, where are you > from...always curious about people's doctors who are willing to do dosages > that simply work for a patient but are not the standard. Thanks, Beth > > > -----Original Message----- > From: John Barrons <jl...@rogers.com> > To: CML Hope <cmlhope@googlegroups.com> > Sent: Mon, Jan 26, 2015 4:29 pm > Subject: [CMLHope] Ponatinib > > Hi I have been on ponatinib for over two years. I started at 45mg and have > been > on two pills a week for quite a while. But I am so sensitive to it I can only > be > on it for about three or four weeks and have to go off it for two to three > weeks. Right now I have been off it three weeks as I was away. I see the > doctor > on Wednesday and will probably go back on two pills a week. I have really had > no > side effects from it and no heart problems although I do have blocked artery, > but I won't get into that. > > Sent from my iPad > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email > to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
