Have a huge headache. Hope this isn't going to be a side effect for me. It was for sprycel. John do you remember how much ponatinib you took in the beginning?
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 6:13 PM, John Barrons <jl...@rogers.com> wrote: > > Hi I live in Toronto. I am normally on two 15mg per week. Sometimes I take > three but that amount really drops my counts hb, platelets white blood cells > to low levels. So I then go back to two per week. It's a balancing act. John > > Sent from my iPad > >> On Jan 26, 2015, at 6:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> Dear John, Thanks for the info. Are you on one pill at 15 milligrams twice a >> week? Or 45? Just checking in about the dosage? Also, where are you >> from...always curious about people's doctors who are willing to do dosages >> that simply work for a patient but are not the standard. Thanks, Beth >> >> >> -----Original Message----- >> From: John Barrons <jl...@rogers.com> >> To: CML Hope <cmlhope@googlegroups.com> >> Sent: Mon, Jan 26, 2015 4:29 pm >> Subject: [CMLHope] Ponatinib >> >> Hi I have been on ponatinib for over two years. I started at 45mg and have >> been >> on two pills a week for quite a while. But I am so sensitive to it I can >> only be >> on it for about three or four weeks and have to go off it for two to three >> weeks. Right now I have been off it three weeks as I was away. I see the >> doctor >> on Wednesday and will probably go back on two pills a week. I have really >> had no >> side effects from it and no heart problems although I do have blocked >> artery, >> but I won't get into that. >> >> Sent from my iPad >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email >> to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
