You are really helping me a lot John. I have just come off sprycel also. I developed mutant to it. I was also very sick. I am just feeling better.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 27, 2015, at 9:30 AM, John Barrons <jl...@rogers.com> wrote: > > Hi I had just come off sprycel and started at 45 mg daily of ponatinib. I > can't remember how long I was at that level. But I know I reacted positively > to it better than I had reacted to gleevec or sprycel. My counts are quite > low and I could tell you what they are but in Canada we measure them > differently. > > Sent from my iPad > >> On Jan 27, 2015, at 7:43 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Have a huge headache. Hope this isn't going to be a side effect for me. >> It was for sprycel. >> John do you remember how much ponatinib you took in the beginning? >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Jan 26, 2015, at 6:13 PM, John Barrons <jl...@rogers.com> wrote: >>> >>> Hi I live in Toronto. I am normally on two 15mg per week. Sometimes I take >>> three but that amount really drops my counts hb, platelets white blood >>> cells to low levels. So I then go back to two per week. It's a balancing >>> act. John >>> >>> Sent from my iPad >>> >>>> On Jan 26, 2015, at 6:00 PM, bkbarney via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> Dear John, Thanks for the info. Are you on one pill at 15 milligrams twice >>>> a week? Or 45? Just checking in about the dosage? Also, where are you >>>> from...always curious about people's doctors who are willing to do dosages >>>> that simply work for a patient but are not the standard. Thanks, Beth >>>> >>>> >>>> -----Original Message----- >>>> From: John Barrons <jl...@rogers.com> >>>> To: CML Hope <cmlhope@googlegroups.com> >>>> Sent: Mon, Jan 26, 2015 4:29 pm >>>> Subject: [CMLHope] Ponatinib >>>> >>>> Hi I have been on ponatinib for over two years. I started at 45mg and have >>>> been >>>> on two pills a week for quite a while. But I am so sensitive to it I can >>>> only be >>>> on it for about three or four weeks and have to go off it for two to three >>>> weeks. Right now I have been off it three weeks as I was away. I see the >>>> doctor >>>> on Wednesday and will probably go back on two pills a week. I have really >>>> had no >>>> side effects from it and no heart problems although I do have blocked >>>> artery, >>>> but I won't get into that. >>>> >>>> Sent from my iPad >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email >>>> to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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