Greenie,

We had 15 inches on Sunday.  Roads are all clear and back to normal today.  I 
enjoy being stuck in by the wood stove keeping warm and hunkering down.  NEVER 
thought I'd say that!  Must be getting old.  I was always a gadabout, but as 
life and health changes, we change!  Mine is for the good, thank God.


I was very surprised when I got my "test results" back from my latest bcr/abl 
after spending the night in Chicago and spending lots more than usual to enjoy 
a little fun.  ($$$)  The results were "insufficient test blood"!!!!  Never 
happened before, (well maybe once in Fla.)


So back to the drawing board.  We moved it out to a 3 month visit, so unless I 
get it done locally it will be six months.  Last results were .04 INT LOVE to 
all of you and praying for you all, my family.


Love and 18's,

Susan




-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 6:57 am
Subject: Re: [CMLHope] Ponatinib



Hi Beth, I received a call from my son Derek about the snow he lives in North 
Chicago.  I hope I never have to move back north, can't handle the cold and 
snow.
 
greenie
 

In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, 
cmlhope@googlegroups.com writes:
Dear Skip and Jeanie, Thinking of you both as   you navigate new terrains. Hope 
the ponatinib works soon Jeanie and sorry you   are struggling Skip. Do let us 
know if you what you decide regarding   ponatinib. I think about it also. ...   


  
Greenie, hope you and your wife are feeling much better. 
  


  
Snow here in Chicago. 21 inches, drifts up to my waist when I opened my   front 
door this morning. Now work today..have a cold so it was a good day to   bunker 
down here.
  


  
Blessings and love to all. Beth


  
-----Original   Message-----
From: Myvety2k via CMLHope   <cmlhope@googlegroups.com>
To: cmlhope   <cmlhope@googlegroups.com>
Sent: Mon, Feb 2, 2015 3:45 pm
Subject:   Re: [CMLHope] Ponatinib

  
  
  
Jeanie, it's a good thing we don't get snow or ice here in   Florida because 
the way these people drive here the insurances companies would   go out of 
business in one day.  They can't drive here when the roads are   dry.
  
 
  
greenie
  
 
  
  
In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, 
cmlhope@googlegroups.com   writes:
  
    
Thanks Skip-I've never had blood counts that low--always battling high     
ones. 
    
 Wow!  That storm sounds neat!
    
We never get sleet and snow in Florida.   I saw a sleet and snow     storm in 
my visit to Switzerland.  My kids loved it and were playing in     it.  I 
wasn't that brave--I went inside hehe. 
    
I hope you get your platelets soon. 
    

Prayers & Blessings Jeanie 18's 
    

On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" 
<cmlhope@googlegroups.com>     wrote:


    
      
      
      
      
I am so sorry you counts       vary so much mine have been doing that now for a 
few years, Fri my       HGB was 79.. my wbc was 1.5, ..       plts was 17 .. 
neut 0.3... ANC 0.279 normally I would get somePLTS       tomorrow but we have 
another big storm going to hit tonight and will       have freezing rain in 
morning and all the snow will turn to ice.. so we       will hold off until 
Wed.  I am sorry for not posting much but I find       using the computer very 
makes me very tired lately. still       thinking about Ponatinib, this is my 
fourth year without anything except       blood and platelet infusions 
      
Skip Duffie
  
      
      
      
      
               
      
      
      
      
      
My brother lives in Naples, I       live in South Fort Myers min. from the 
beach.  The weather will be       Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and 
Sat 68. Below normal should       be in the low 80's BUT better then SNOW>
      
 
      
Greenie
      
 
      
      
In a message dated 1/31/2015       11:39:12 P.M. Eastern Standard Time, 
jl...@rogers.com writes:
      
Hi I am OK I had my counts done last         Wednesday and my platelets were 35 
and white blood cells 2.8 and         neutrofils were 1.5. Hemoglobin 135. I am 
still off the drug and have         another check this coming Wednesday. I will 
go back on the drug then and         probably at 2 or three a week. My wife and 
I will be coming to Naples         Florida to visit friends for a week or so. I 
hope it will be warm. Have         your counts come down ?

Sent from my iPad

> On Jan 31,         2015, at 3:04 PM, 'Icandoallttc' via CMLHope 
> <cmlhope@googlegroups.com>         wrote:
> 
> Hi John 
> I go to Moffitt cancer         center.   How are you?
> 
> Prayers &         Blessings Jeanie 18's 
> 
>> On Jan 31, 2015, at 10:47         AM, John Barrons <jl...@rogers.com>        
>>  wrote:
>> 
>> Hi Jeanie: Where are getting treated?         John
>> 
>> Sent from my iPad
>> 
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