Oh yes, I'm thankful for those things too. 

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 5:19 PM, 'Susan Zimmerman' via CMLHope 
> <cmlhope@googlegroups.com> wrote:
> 
> Hi Jeanie!
> 
> Was wondering if you are on a statin drug for high cholesterol. Every statin 
> drug causes achy joints in varying degrees for people. This is the biggest 
> side effect of statin drugs. I refuse to go on them.  Was on lipitor for 
> awhile until I did some research. But of course everyone can do their own 
> thing.
> 
> I also take turmeric (a simple spice) with pepper combined to keep my 
> inflammation in general down. It is very effective. Without something in 
> pepper that helps the turmeric digest, you are wasting your turmeric. It does 
> not absorb into your body without it. Everyone fights inflammation for one 
> reason or another. Just a tip.
> 
> Also fighting essential tremors and other things, besides the cml. Beginning 
> another new drug today to help tremors. In reference to Marty saying we can 
> all feed ourselves, pee, etc. Funny, but I am trying to learn to eat with my 
> other hand because I shake too bad with the usual hand. Soooo thankful I am 
> somewhat ambidextrous! But typing has become a problem. Did I mention I am so 
> thankful I can pee, sleep, chew food, walk, talk and especially laugh?  My 
> husband makes sure of that.
> 
> Have wonderful holidays and enjoy every day!!!
> Thanks Marty for making us all laugh!!!
> 18's,
> Love and prayers,
> Susan Z.
> 
> 
> 
> 
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Friday, December 22, 2017 'Jeanie' via CMLHope <cmlhope@googlegroups.com> 
> wrote:
> 
> Hi all,
> Have you considered Moffitt cancer center. I go there and like it. You go to 
> the blood center and get your blood checked and then in about an hour they 
> are faxed over to doctor and you see him. I go every three months. 
> I was wonder if any of you have your bones aching?  My right little finger 
> and hand ache and legs hurt sometimes at night. I've been fighting cml for 
> almost 14 years and never had this. Blood counts are all good. Thanks all.  
> 
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
> 
> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
> 
> Listen Greenie,
> 
> This is what i do because of a promise that i once made to GOD. Let me tell 
> you about this.
> When i was about to receive my total body radiation almost 30 years ago,
> 
>  just before they were about to close and lock that radiation chamber door i 
> got down on my knees clasped my hands in front of me and prayed to GOD asking 
> HIM if he would spare me i would help people that were in my situation that i 
> would try to help them. So far i have helped 1,286 people in the past 30 
> years, and wrote my journal about each and every one of them. This will never 
> be published because of confidentiality reasons, but on occasion i will send 
> some of them parts of my book in order to try and help them.
> 
> Listen i am no saint just a plain human being but someone that once made a 
> promise to GOD and i am still here after many many death defying things that 
> i have gone trough. And that is why i do what i promised to do. I hope that 
> you understand why i do what i do...
> 
> There is also why i write 18's when ever i end any posts that i make, because 
> that is what i believe. 18's to me represents LIFE.
> 
> If you care to send me your personal email address i would like to send you 
> something. Mine is wa2yyx@gmail,com
> 
> 18's,
> 
> Marty 
> 
>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
>> <cmlhope@googlegroups.com> wrote:
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a 
>> Nephrologist and he had me get some blood work last month and he seems to be 
>> O.K. with the results.  I do have the paper work and will scan it and send 
>> it out so you can check it out.  I want to thank you so much, you have made 
>> me feel so much better and I will listen to what you wrote me.  Again I want 
>> to thank you.
>>  
>> Greenie
>>  
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
>> wa2...@gmail.com writes:
>> Hi Greenie,
>> 
>> First of all, you mention that you are worried. Why may i ask are you so 
>> worried? When people worry about things that they have little or no control 
>> over then it not only effects your mind but also your body. I know all about 
>> this because that is exactly what i used to do and i learned to direct my 
>> mind in more productive ways. Now just try to relax and get yourself going 
>> in the right direction. 
>> 
>> Now you mention about CRI so read this..
>> 
>> CRI (color rendering index) is a measure of how accurately a light source 
>> illuminates objects' true colors. Our LED lights have CRI values of up to 
>> 98, indicating that our LED lights are able to produce white light that 
>> approximates halogen or incandescent lighting and natural daylight.
>> 
>> It however has some effect on your kidneys because if they are having 
>> problems than it is a very simple thing to just go to a Nephrologist and see 
>> what is happening and why.
>> 
>> As you mentioned the normal Hemoglobin count for women should be from around 
>> 13 to 17 however not necessarily for men because men don't have their time 
>> of the month as woman do, so men require a bit less of Hemoglobin.  
>> 
>> Now a count of 10.7 shows that you are enemic and that can from a verity of 
>> different things. One being the effects from your TKI being Gleevic which i 
>> think may be the cause, now mind you I am not a doctor but someone that does 
>> a lot of research into things that i have already been through.
>> 
>> Another thing would be kidney problems which i kind of doubt because your 
>> doctors haven't mentioned it. Do you know what your 
>> 
>> Levels of creatinine in the blood reflect both the amount of muscle a person 
>> has and their amount of kidney function. Most men with normal kidney 
>> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of 
>> creatinine. Most women with normal kidney function have between 0.5 to 1.1 
>> mg/dL of creatinine..
>> 
>> My Creatinine level was 8.2 before i started on my dialysis and i had to go 
>> onto dialysis which lasted for four years. Then i was able to get a kidney 
>> transplant from a 20 year old deceased  man who was anonymous, and about two 
>> weeks later it dropped down to 4.1 and kept dropping to where it is now at 
>> .8 and it now stays there. Remember, i have only one kidney while  most 
>> other people have two kidneys so i know that having only one kidney is doing 
>> very well for me, and no more dialysis for me anymore.
>> 
>> What you did mention is that your counts are now at   "My white count is 
>> find at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 - 
>> 450)". Which are quite acceptable and very good for you.
>> 
>> And speaking about your kidneys let me give you some information. When my 
>> kidneys started to fail i noticed that my Hemoglobin also was dropping 
>> especially after i began to receive dialysis. They were at 14 then would 
>> gradually drop to being 9.9 and that was the magic bullet that triggered 
>> that i would be able to start receiving Procrit or Epogin injections which 
>> brought my Hemoglobin to usually 11 and it would take about a week. Then a 
>> few weeks later another shot and so on. The reason why is that your kidneys 
>> produce a *hormone that is sent to your bone marrow that stimulates Red 
>> Blood cells into your bone marrow.
>> *Erythropoietin (EPO) is a hormone produced by the kidney that promotes the 
>> formation of red blood cells by the bone marrow. The kidney cells that make 
>> erythropoietin are sensitive to low oxygen levels in the blood that travels 
>> through the kidney.
>> 
>> This is what happened to me so i know what i am talking about. Ever since i 
>> received my kidney transplant about two and a half years ago my Hemoglobin 
>> has gotten to be around 14
>> 
>> Now i am not saying that you have any problems with your kidneys but i am 
>> puzzled why did your doctor mention about CRI?  As I mentioned why not go to 
>> see a Nephrologist . Couldn't hurt. 
>> 
>> Another suggestion that you have already mentioned, and because you have a 
>> smart doctor looking after you why spend over $600 to fly to Chicago when 
>> you have loads of very fine doctors in Florida especially in your area?
>> 
>> Now I have given you a lot of useful information and hopefully it will help 
>> you and do you know why? It's because i was there and had to go through all 
>> of this and i learned what i had to do, and besides your worth it! Yes you 
>> are. Just as was my friend Lottie. She did a lot of research as well in her 
>> time which i never forgot... In fact so did Zavie,
>> 
>> Now finally, since AOL is going out then you already did the right thing by 
>> switching over to another (FREE, I love that four letter F letter word)  
>> internet provider. You also may want to get another F word like gmail just 
>> in case as a backup. 
>> 
>> Please, please Greenie try to stop worrying, just take it one day at a time. 
>> You know it will all work out.
>> 
>> 18's,
>> 
>> Marty  
>> 
>>> On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope 
>>> <cmlhope@googlegroups.com> wrote:
>>> To all of my CML friends and care givers.
>>>  
>>> I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood work. 
>>>  A week later she called me to tell me that my Hemoglobin was down to 10.7 
>>> and the norm is 13.0 - 17.5.  My Hematocrit was 32.1% and the norm is 38.0 
>>> - 50 %.
>>> She wants me to get a Bone Marrow test here in Florida because the airfare 
>>> to Chicago would be $601.00. That's not going to happen.  I'm also taking 
>>> Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9.
>>>  
>>> She sent my other cancer Doctor down here a fax as to what she wants. I 
>>> have and appointment set for Jan. 2 and talk to him about what to do. (I'm 
>>> worried). She made a note to him that I also have CRI which may be 
>>> Contributory.
>>>  
>>> So back in 2010 my counts on these two item were Hemoglobin 13.3 and 
>>> Hematocrit was 39.0.
>>>  
>>> So back in 2015 my counts on these two items were Hemoglobin 12.0 and 
>>> Hematocrit was 36.1. So the counts are coming down and I think it's from 
>>> the Gleevec.
>>>  
>>> My white count is find at 5.8).  Iron was 88 (50-212), Iron binding 
>>> capacity was 281 (250 - 450).
>>>  
>>> So anyone that may have some answers that may make me feel better just hop 
>>> right it and I will very happy to hear from you.
>>>  
>>> ALSO, I don't know now to do it but AOL is no longer going to be as of Jan 
>>> 15. My new email address is  (myvet...@comcast.net) and it's free for me 
>>> and much better.
>>>  
>>> Any feedback would be deeply appreciated. 
>>>  
>>> Thank you all and have a Very Happy and Safe Holiday.
>>>  
>>> Greenie for South Fort Myers, FL.
>>>  
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