Oh yes, I'm thankful for those things too. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center
> On Dec 22, 2017, at 5:19 PM, 'Susan Zimmerman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hi Jeanie! > > Was wondering if you are on a statin drug for high cholesterol. Every statin > drug causes achy joints in varying degrees for people. This is the biggest > side effect of statin drugs. I refuse to go on them. Was on lipitor for > awhile until I did some research. But of course everyone can do their own > thing. > > I also take turmeric (a simple spice) with pepper combined to keep my > inflammation in general down. It is very effective. Without something in > pepper that helps the turmeric digest, you are wasting your turmeric. It does > not absorb into your body without it. Everyone fights inflammation for one > reason or another. Just a tip. > > Also fighting essential tremors and other things, besides the cml. Beginning > another new drug today to help tremors. In reference to Marty saying we can > all feed ourselves, pee, etc. Funny, but I am trying to learn to eat with my > other hand because I shake too bad with the usual hand. Soooo thankful I am > somewhat ambidextrous! But typing has become a problem. Did I mention I am so > thankful I can pee, sleep, chew food, walk, talk and especially laugh? My > husband makes sure of that. > > Have wonderful holidays and enjoy every day!!! > Thanks Marty for making us all laugh!!! > 18's, > Love and prayers, > Susan Z. > > > > > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > > On Friday, December 22, 2017 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > wrote: > > Hi all, > Have you considered Moffitt cancer center. I go there and like it. You go to > the blood center and get your blood checked and then in about an hour they > are faxed over to doctor and you see him. I go every three months. > I was wonder if any of you have your bones aching? My right little finger > and hand ache and legs hurt sometimes at night. I've been fighting cml for > almost 14 years and never had this. Blood counts are all good. Thanks all. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Dec 21, 2017, at 6:56 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Listen Greenie, > > This is what i do because of a promise that i once made to GOD. Let me tell > you about this. > When i was about to receive my total body radiation almost 30 years ago, > > just before they were about to close and lock that radiation chamber door i > got down on my knees clasped my hands in front of me and prayed to GOD asking > HIM if he would spare me i would help people that were in my situation that i > would try to help them. So far i have helped 1,286 people in the past 30 > years, and wrote my journal about each and every one of them. This will never > be published because of confidentiality reasons, but on occasion i will send > some of them parts of my book in order to try and help them. > > Listen i am no saint just a plain human being but someone that once made a > promise to GOD and i am still here after many many death defying things that > i have gone trough. And that is why i do what i promised to do. I hope that > you understand why i do what i do... > > There is also why i write 18's when ever i end any posts that i make, because > that is what i believe. 18's to me represents LIFE. > > If you care to send me your personal email address i would like to send you > something. Mine is wa2yyx@gmail,com > > 18's, > > Marty > >> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Marty, I want to thank you for your fast reply, I hear you. I do have a >> Nephrologist and he had me get some blood work last month and he seems to be >> O.K. with the results. I do have the paper work and will scan it and send >> it out so you can check it out. I want to thank you so much, you have made >> me feel so much better and I will listen to what you wrote me. Again I want >> to thank you. >> >> Greenie >> >> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, >> wa2...@gmail.com writes: >> Hi Greenie, >> >> First of all, you mention that you are worried. Why may i ask are you so >> worried? When people worry about things that they have little or no control >> over then it not only effects your mind but also your body. I know all about >> this because that is exactly what i used to do and i learned to direct my >> mind in more productive ways. Now just try to relax and get yourself going >> in the right direction. >> >> Now you mention about CRI so read this.. >> >> CRI (color rendering index) is a measure of how accurately a light source >> illuminates objects' true colors. Our LED lights have CRI values of up to >> 98, indicating that our LED lights are able to produce white light that >> approximates halogen or incandescent lighting and natural daylight. >> >> It however has some effect on your kidneys because if they are having >> problems than it is a very simple thing to just go to a Nephrologist and see >> what is happening and why. >> >> As you mentioned the normal Hemoglobin count for women should be from around >> 13 to 17 however not necessarily for men because men don't have their time >> of the month as woman do, so men require a bit less of Hemoglobin. >> >> Now a count of 10.7 shows that you are enemic and that can from a verity of >> different things. One being the effects from your TKI being Gleevic which i >> think may be the cause, now mind you I am not a doctor but someone that does >> a lot of research into things that i have already been through. >> >> Another thing would be kidney problems which i kind of doubt because your >> doctors haven't mentioned it. Do you know what your >> >> Levels of creatinine in the blood reflect both the amount of muscle a person >> has and their amount of kidney function. Most men with normal kidney >> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of >> creatinine. Most women with normal kidney function have between 0.5 to 1.1 >> mg/dL of creatinine.. >> >> My Creatinine level was 8.2 before i started on my dialysis and i had to go >> onto dialysis which lasted for four years. Then i was able to get a kidney >> transplant from a 20 year old deceased man who was anonymous, and about two >> weeks later it dropped down to 4.1 and kept dropping to where it is now at >> .8 and it now stays there. Remember, i have only one kidney while most >> other people have two kidneys so i know that having only one kidney is doing >> very well for me, and no more dialysis for me anymore. >> >> What you did mention is that your counts are now at "My white count is >> find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - >> 450)". Which are quite acceptable and very good for you. >> >> And speaking about your kidneys let me give you some information. When my >> kidneys started to fail i noticed that my Hemoglobin also was dropping >> especially after i began to receive dialysis. They were at 14 then would >> gradually drop to being 9.9 and that was the magic bullet that triggered >> that i would be able to start receiving Procrit or Epogin injections which >> brought my Hemoglobin to usually 11 and it would take about a week. Then a >> few weeks later another shot and so on. The reason why is that your kidneys >> produce a *hormone that is sent to your bone marrow that stimulates Red >> Blood cells into your bone marrow. >> *Erythropoietin (EPO) is a hormone produced by the kidney that promotes the >> formation of red blood cells by the bone marrow. The kidney cells that make >> erythropoietin are sensitive to low oxygen levels in the blood that travels >> through the kidney. >> >> This is what happened to me so i know what i am talking about. Ever since i >> received my kidney transplant about two and a half years ago my Hemoglobin >> has gotten to be around 14 >> >> Now i am not saying that you have any problems with your kidneys but i am >> puzzled why did your doctor mention about CRI? As I mentioned why not go to >> see a Nephrologist . Couldn't hurt. >> >> Another suggestion that you have already mentioned, and because you have a >> smart doctor looking after you why spend over $600 to fly to Chicago when >> you have loads of very fine doctors in Florida especially in your area? >> >> Now I have given you a lot of useful information and hopefully it will help >> you and do you know why? It's because i was there and had to go through all >> of this and i learned what i had to do, and besides your worth it! Yes you >> are. Just as was my friend Lottie. She did a lot of research as well in her >> time which i never forgot... In fact so did Zavie, >> >> Now finally, since AOL is going out then you already did the right thing by >> switching over to another (FREE, I love that four letter F letter word) >> internet provider. You also may want to get another F word like gmail just >> in case as a backup. >> >> Please, please Greenie try to stop worrying, just take it one day at a time. >> You know it will all work out. >> >> 18's, >> >> Marty >> >>> On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> To all of my CML friends and care givers. >>> >>> I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood work. >>> A week later she called me to tell me that my Hemoglobin was down to 10.7 >>> and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is 38.0 >>> - 50 %. >>> She wants me to get a Bone Marrow test here in Florida because the airfare >>> to Chicago would be $601.00. That's not going to happen. I'm also taking >>> Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. >>> >>> She sent my other cancer Doctor down here a fax as to what she wants. I >>> have and appointment set for Jan. 2 and talk to him about what to do. (I'm >>> worried). She made a note to him that I also have CRI which may be >>> Contributory. >>> >>> So back in 2010 my counts on these two item were Hemoglobin 13.3 and >>> Hematocrit was 39.0. >>> >>> So back in 2015 my counts on these two items were Hemoglobin 12.0 and >>> Hematocrit was 36.1. So the counts are coming down and I think it's from >>> the Gleevec. >>> >>> My white count is find at 5.8). Iron was 88 (50-212), Iron binding >>> capacity was 281 (250 - 450). >>> >>> So anyone that may have some answers that may make me feel better just hop >>> right it and I will very happy to hear from you. >>> >>> ALSO, I don't know now to do it but AOL is no longer going to be as of Jan >>> 15. My new email address is (myvet...@comcast.net) and it's free for me >>> and much better. >>> >>> Any feedback would be deeply appreciated. >>> >>> Thank you all and have a Very Happy and Safe Holiday. >>> >>> Greenie for South Fort Myers, FL. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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