Hi Heather, I have been using an 'Anonymised person' archetype for this purpose, including a 'Vital status' element which came out of the PARENT work and European Rare Disease registry definitions.
This is still in an Incubator. http://openehr.org/ckm/#showArchetype_1013.1.1745 Ian Dr Ian McNicoll mobile +44 (0)775 209 7859 office +44 (0)1536 414994 skype: ianmcnicoll email: i...@freshehr.com twitter: @ianmcnicoll Co-Chair, openEHR Foundation ian.mcnic...@openehr.org Director, freshEHR Clinical Informatics Ltd. Director, HANDIHealth CIC Hon. Senior Research Associate, CHIME, UCL On 5 January 2016 at 06:43, Heather Leslie < heather.les...@oceaninformatics.com> wrote: > Hi everyone, > > > > Seeking some advice please. > > > > In the context of a data registry or research database to record if a > person is alive or dead. Maybe there might be an alternative value of > ‘unsure’ or ‘indeterminate’ as well, I guess. > > > > I’m wondering if there is any naming convention for this data element – > I’ve come across ‘Alive status’ and ‘Vital status’ by googling and > researching all the places I can think of. Surprisingly there seems very > little available on the topic. SNOMED CT has alive and dead within the > ‘General clinical state finding (finding)’ hierarchy, although ‘deceased’ > is part of the ‘Finding related to general body function (finding)’ > hierarchy. > > > > ‘Living status’ was proposed on a forum, but seems a bit weird if they are > dead. > > > > To add to the confusion, the requirements I am modelling uses the name > ‘Status’ (which needs some sort of archetype context) and the values are > ‘Alive’ and ‘Deceased’ which cross the SNOMED CT hierarchies! > > > > We could just be very pragmatic and label the data element ‘Alive vs Dead?’ > > > > Curious problem – I thought there would be more on the internets J. > > > > Any wisdom you can share would be most appreciated. > > > > And then I guess we need to think of related data elements that might be > grouped with this status. > > > > Regards > > > > Heather > > > > *Dr Heather Leslie *MBBS FRACGP FACHI > *Consulting Lead*, Ocean Informatics <http://www.oceaninformatics.com/> > > *Clinical Programme Lead, *openEHR Foundation <http://www.openehr.org/> > p: +61 418 966 670 skype: heatherleslie twitter: @omowizard > > > > > > _______________________________________________ > openEHR-clinical mailing list > openEHR-clinical@lists.openehr.org > > http://lists.openehr.org/mailman/listinfo/openehr-clinical_lists.openehr.org >
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