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" I got the idea that the Melbourne hospital is the only
hospital
in Australia with the staff and facilities to provide the
care. Don't know
where this care is available overseas."
I think that it would be well worth looking into this and finding out
more about the diagnosis and the new treatments and how and where these
treatments are available.
I do hope that others on the list can shed more light on this for these
people and their baby. How amazing it would be to be
able to give this babes parents some hope.
I think the parents are treading a hard road and have the courage to
give their baby the best life they can - no matter how long or short it
may be.
Sending them my love and strength and hope.
Rhonda.
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