[QUAD-L] taking down website
I would check into thatseems odd. _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, October 01, 2007 1:27 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] About the roll in shower Speaking of things legal. I was asked by the city 'fathers' to take down my website ( old Glendale Commission on http://ocgrands.com/gcopd/index-old.html Persons With Disabilities (GCOPD) ) where I had pictures of local voting places and described the shortfalls in regards to handicapped accessibility that we the mayor's commission on persons with disabilities were chartered to inspect. They claimed it was 'improper' to put city oriented research and info on a private website and could possibly lead to legal implications. When my district representative called, she wondered why we were doing that activity anyway. Talk about the left hand not knowing what the right hand is doing then cloaking it all in legaleeze mumbo jumbo. Dave In a message dated 10/1/2007 10:08:17 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: I've been on two commitees to design and build housing locally for handicapped people. One thing I learned was handicapped people are hard on bathroom floors. If you treat the entire bathroom like its the floor of the shower, cleanups and mildew are much simpler to handle. It's expensive at 1st, but you save big on disasters that you don't have. Extreme home makeovers have products they want to sell. Disability products are such a small part of the remodeling market, I'd rather bet on getting struck by lightening on a sunny day. I'd be happy to live in an apartment that I helped get built but somehow, being on the commitee would make my living there a conflict of interest. The first handicapped accesible section 8 apartments I worked on are now filthy slums where the term disability was twisted to mean alcoholic and drug addict. On my last visit there were no machines in the laundry room. they had been sold by a tennant that was mentally ill. The building security system no longer existed and the entire first floor was being run by a pimp. The city claimed they spent 20g a year on security. You guessed it, the pimp got 20g a year. The city has since sold it to a judge. (the uncle of the pimp) The second building I worked on was to be run by local presbytery under Bush's plan to let charities take over things the gov't sucks at. That is suspended untill the federal gov't finds money it isn't sending to Iraq. Sure feel bad for the crippled soldiers coming back. I'm trying to get the city interested in a building strictly for spinal cord injuries that require wheelchairs but no takers yet. As one councilman said, we already have all the good parking places! Where ever you're at, don't give up. Remember, Only lawyers believe lawyers are needed. Keep them out. They are put on earth to make sure we all believe in hell. good luck, john - Original Message From: Nichole Rohling [EMAIL PROTECTED] To: John S. [EMAIL PROTECTED]; Quadlist quad-list@eskimo.com Sent: Monday, October 1, 2007 12:05:51 PM Subject: Re: [QUAD-L] About the roll in shower DO YOU LIVE ON SOCIAL SECURITY? MAYBE THEY WOULD DO THIS ON EXTREME HOME MAKEOVER. - Original Message - From: John S. mailto:[EMAIL PROTECTED] To: Tim Thompson mailto:[EMAIL PROTECTED] ; Nichole mailto:[EMAIL PROTECTED] Rohling Sent: Monday, October 01, 2007 9:29 AM Subject: Re: [QUAD-L] About the roll in shower You really do need a shower chair, but I found these bathrooms need a copper subfloor with a special tile that drains to a universal drain in the bathroom. The tile has microgrooves to direct the water to the drain and theres very little tilt. The copper subfloor is needed because anything you do may fail in one or more places and the copper can also be designed to drain. I like putting a heated cement subfloor below the copper. Along with a vent fan the bathroom needs a small fan stirring the air for about 10 minutes after you leave it. It should be set to turn on every 12 hours if its not used. This helps stop mold and mildew from forming. john - Original Message From: Tim Thompson [EMAIL PROTECTED] To: Nichole Rohling [EMAIL PROTECTED] Sent: Sunday, September 30, 2007 9:16:11 PM Subject: Re: [QUAD-L] About the roll in shower Ha ha, You need a SHOWER CHAIR. And no, they're not elec. stunt On 9/30/07, Nichole Rohling [EMAIL PROTECTED] wrote: The only problem is me and my electric chair together weigh over 400 lbs. I have mirrors in my corner shower so I can wheel in at an angle and fix my hair and I turn sideways to put on my make-up - I don't think fiberglass or pre-fab could hold the weight without it eventually cracking. i'd like to pour concrete and have my entire bathroom concrete - Original Message - From: RONALD L PRACHT mailto:[EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, September 29, 2007 10:40 PM Subject: [QUAD-L]
Re: [QUAD-L] taking down website
picky, picky, pickynext thing you'll want is a ballot. If you are on his commitee then hes right. You can't make the findings public untill the city has had time to address them. You are suppose to spot them, point them out and then wait for a bribe to shut up. If your not on his commitee you can do as you please in finding violations and pointing them out. The ADA has provisions for negotiating the remedies to the problem. On the other hand, It took them six years to remedy the polling place I went to. It had 3 steps up to get inside where you imediately walked down three steps. Obviously built by an architech that believed in making things hard on everyone. Have you tried your local public buildings, such as town halls, schools, theaters, restaurants, hotels, motels, etc. I have found buildings 5 years old that are grandfathered in. TGIFridays are about the worst as a restaurant chain. Amuzement parks, no freakin way do they want crips on the property. The city hall in my city is on the second floor with 14 steps and no elevator or plans to correct any shortcomings. If I were elected to city counsel I couldn't take part in a single meeting. I am welcome to protest as long as I don't block the door. I was fined $35 for running my chair in the street. The mayor brought his desk to the firestation to levy the fine and when I told them I'd rather goto jail it was revoked. Can't get a wheelchair in the jail and frankly, nobody cares that much. welcome to America and the ADA. john - Original Message From: Elizabeth Treston [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 2, 2007 10:37:09 AM Subject: [QUAD-L] taking down website I would check into thatseems odd. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, October 01, 2007 1:27 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] About the roll in shower Speaking of things legal. I was asked by the city 'fathers' to take down my website ( old Glendale Commission on Persons With Disabilities (GCOPD) ) where I had pictures of local voting places and described the shortfalls in regards to handicapped accessibility that we the mayor's commission on persons with disabilities were chartered to inspect. They claimed it was 'improper' to put city oriented research and info on a private website and could possibly lead to legal implications. When my district representative called, she wondered why we were doing that activity anyway. Talk about the left hand not knowing what the right hand is doing then cloaking it all in legaleeze mumbo jumbo. Dave In a message dated 10/1/2007 10:08:17 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: I've been on two commitees to design and build housing locally for handicapped people. One thing I learned was handicapped people are hard on bathroom floors. If you treat the entire bathroom like its the floor of the shower, cleanups and mildew are much simpler to handle. It's expensive at 1st, but you save big on disasters that you don't have. Extreme home makeovers have products they want to sell. Disability products are such a small part of the remodeling market, I'd rather bet on getting struck by lightening on a sunny day. I'd be happy to live in an apartment that I helped get built but somehow, being on the commitee would make my living there a conflict of interest. The first handicapped accesible section 8 apartments I worked on are now filthy slums where the term disability was twisted to mean alcoholic and drug addict. On my last visit there were no machines in the laundry room. they had been sold by a tennant that was mentally ill. The building security system no longer existed and the entire first floor was being run by a pimp. The city claimed they spent 20g a year on security. You guessed it, the pimp got 20g a year. The city has since sold it to a judge. (the uncle of the pimp) The second building I worked on was to be run by local presbytery under Bush's plan to let charities take over things the gov't sucks at. That is suspended untill the federal gov't finds money it isn't sending to Iraq. Sure feel bad for the crippled soldiers coming back. I'm trying to get the city interested in a building strictly for spinal cord injuries that require wheelchairs but no takers yet. As one councilman said, we already have all the good parking places! Where ever you're at, don't give up. Remember, Only lawyers believe lawyers are needed. Keep them out. They are put on earth to make sure we all believe in hell. good luck, john - Original Message From: Nichole Rohling [EMAIL PROTECTED] To: John S. [EMAIL PROTECTED]; Quadlist quad-list@eskimo.com Sent: Monday, October 1, 2007 12:05:51 PM Subject: Re: [QUAD-L] About the roll in shower DO YOU LIVE ON SOCIAL SECURITY? MAYBE THEY WOULD DO THIS ON EXTREME HOME MAKEOVER. - Original Message - From: John S. To: Tim
[QUAD-L] Psuedamonas UTI
Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H.
Re: [QUAD-L] Psuedamonas UTI
I've had uti's and have had to take iv drugs bc the only med by mouth would interfere with my current meds. I just do them at home. I have another uti bc of the accidents from the antibiotic I'm on. I tried the acidophilus and it isn't helping. I even took extra pills and still didnt help. I'm sick of the repeated accidents and infections bc of them. One would think it would counteract itself since it is a powerful broad spectrum antibiotic but nope. I hope things getting better for you, Stacy - Original Message From: Danny Hearn [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 2, 2007 1:56:21 PM Subject: [QUAD-L] Psuedamonas UTI Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H. Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo.com/search?fr=oni_on_mailp=summer+activities+for+kidscs=bz
RE: [QUAD-L] Psuedamonas UTI
Try and look at www.sciwire.com as the nurse maybe able to answer your question, _ From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 02, 2007 1:56 PM To: quad-list@eskimo.com Subject: [QUAD-L] Psuedamonas UTI Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H.
[QUAD-L] Duoderm advice
I've rarely ever had to use duoderm throughout my sci years but have had an abrasion just above my tailbone area about 1 oval in size and has been stubborn in healing up. My pca put a piece of duoderm on it three days ago and am wondering when I should change it. Should I just wait until it weakens and comes off by it's self? I'm hesitant in pealing it off and ruining any healing that has taken place. Anyone here with good duoderm experience? Tim The QUADLINK + - Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search.
Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY
I realize that but what I was saying it isn't helping. I've taken an extra pill andstill not working. Zyvox,the antibiotic that I am on is broad spectrum and causing theaccidents by killing the bacteria and the accidents are causingthe uti's because they are messy,especially after I do a bowel prep. I think I'm done and then I have really loose stool the next morning so I've given upon a bowel prep because it comes out no matter what. I've been taking the acidpohilus for a couple of weeks so I've given up. What is depressing is as soon as I get the help, I'm ready to get up out of bed but will be alone during the day so if I have an accident, I'll have to sit in it so now I don't want to get up until I get my bowels back to normal. I know its the antibiotic because I didnttake it for a few weeks and was normal about 2 weeks after I stopped it and then a week after I started taking it again, I became a mess again. It sucks because they want to make sure that there isn't anymore infection in my back that caused the osteomyelitis which I know is important and I thought all this time it was for the VRE that it also got rid of. On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; Danny Hearn [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, October 2, 2007 2:31:22 PM Subject: Re: [QUAD-L] Psuedamonas UTI Stacy, acidophilus will do nothing for the infection. It is to replace the good bacteria that the antibiotics is killing off along with the bad bacteria. KK Remember: life is like a roll of toilet paper. The closer it gets to the end, the faster it goes... Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. http://mobile.yahoo.com/go?refer=1GNXIC
Re: [QUAD-L] Wheelchair snow
I have a push chair and just don'tgo out in the snow. All I end up doing is spinning. It sucks because it melts everywhere except on my van where my ramp goes down because it blocks the sun and the house blocks i from the other side. I have a parking area that is made of the leftover concrete in the truckand I can't seem to get theother side smoothed down enough with driving over it to get hard enough to get my chairthrough it. I can't go in my yard either unless we haven'thad any rain in a while. Stacy - Original Message From: Tim Thompson [EMAIL PROTECTED] To: KK [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Sunday, September 30, 2007 9:12:58 PM Subject: Re: [QUAD-L] Wheelchair snow Tell them to shovel ;^P I never used special tires the 4 winters going to college, and very seldom exp any problems. Do take the freezing cold in consideration, and Denver is a mi up, so the air's a bit thinner. stunt On 9/30/07, KK [EMAIL PROTECTED] wrote: This southern girl has a question. I know that there are special tires for taking the wheelchair in the sand. Big bubble looking tires. But what about going out in the snow? My son just sent me pictures from Denver my daughter lives in Lake Tahoe - both snowy places. If I visit either place , is there anything special that I would have to do? KK Remember: life is like a roll of toilet paper. The closer it gets to the end, the faster it goes... Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=listsid=396545469
Re: [QUAD-L] Psuedamonas UTI
Stacy, acidophilus will do nothing for the infection. It is to replace the good bacteria that the antibiotics is killing off along with the bad bacteria. KK Remember: life is like a roll of toilet paper. The closer it gets to the end, the faster it goes...
Re: [QUAD-L] Psuedamonas UTI
Hope you get better soon also Stacy, this quad life can get us down at times, but all we can do if fight and take it one day at a time and hope to get thru our current struggles and back to better days. Dan H. Stacy Harim [EMAIL PROTECTED] wrote: I've had uti's and have had to take iv drugs bc the only med by mouth would interfere with my current meds. I just do them at home. I have another uti bc of the accidents from the antibiotic I'm on. I tried the acidophilus and it isn't helping. I even took extra pills and still didnt help. I'm sick of the repeated accidents and infections bc of them. One would think it would counteract itself since it is a powerful broad spectrum antibiotic but nope. I hope things getting better for you, Stacy - Original Message From: Danny Hearn [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 2, 2007 1:56:21 PM Subject: [QUAD-L] Psuedamonas UTI Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H. - Need a vacation? Get great deals to amazing places on Yahoo! Travel.
Re: [QUAD-L] Psuedamonas UTI
Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. *Neither have I* but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder *for years and kept growing.* Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one really cares about your well-being! This quack that you keep going to has not been very helpful... has he? Therefore, because these things can get quite serious... you better get real proactive real fast. If I sound like I am yelling at you or preaching to you... maybe it is because that I care more about you than your doctor does! Tough love if you want to call it that. :-) I was so upset when I got a Pseudomonas infection AFTER having my bladder stones out and my doctor was not happy either. *I* finally found the answer on the Internet. To be brief... I found out that by me eating a banana a day... that amount of potassium was severely altering the pH of my urine. It was staying too alkaline (7.5 or more) when it should be much more acidic to keep the bugs away (ideally a pH of 6). After I stopped eating bananas... wala! I have not had an infection since! Who would have ever thought? My doctor was unsure why we could not get my pH number lower even by taking cranberry capsules, drinking cranberry juice and other acidic juices. She (my Urologist) was pretty impressed that I was able to find out the information that I did. My body was not going to be able to take many more infections and the bugs were just getting stronger and stronger and that would ultimately lead to my demise. That is the second time the Internet information has saved my life. Anyway, Danny... please heed my advice to go get a damn new doctor! Also, have your pH checked if you have not already. If your urologist is competent, as well as the medical technicians who tested your urine, they should be able to provide you with what your last pH was during the culture. Just call and ask because it is usually part of the lab report. If not... insist on finding out even if you have to give them a new specimen and ask for that specifically. Good luck buddy! Lori Michaelson C4/5 complete quad, 27 years post Tucson, AZ On 10/2/07, Danny Hearn [EMAIL PROTECTED] wrote: *Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very
Re: [QUAD-L] Psuedamonas UTI
In my previous email... there were a bunch of Dragon typos/errors I hope you can tread through. I shoulda proofread but was in a hurry. It typed position instead of physician and in instead of and, etc, etc. I apologize for my haste. Lor :-) On 10/2/07, Danny Hearn [EMAIL PROTECTED] wrote: *Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H.*
Re: [QUAD-L] Duoderm advice
Ok Pam, thanks. I think I'll just let it loosen up too. Tim The QUADLINK Pam Kennedy [EMAIL PROTECTED] wrote: Hi Tim, I've used DuoDerm for the last 20 years. In that time, I've had pressure sores about the same size and in the same spot as yours. When my PCA pulled off my DuoDerm off, any new skin that had grown over it was pulled off. As a result, I just leave mine on until it loosens and is ready to fall off. It even keeps blistered skin from breaking open! My sores heal every time! If it wasn't for DuoDerm, I'd be bedridden! Hope that helps! Pam On 10/2/07, Tim Syfert [EMAIL PROTECTED] wrote:I've rarely ever had to use duoderm throughout my sci years but have had an abrasion just above my tailbone area about 1 oval in size and has been stubborn in healing up. My pca put a piece of duoderm on it three days ago and am wondering when I should change it. Should I just wait until it weakens and comes off by it's self? I'm hesitant in pealing it off and ruining any healing that has taken place. Anyone here with good duoderm experience? Tim The QUADLINK + - Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. -- Pam Kennedy Writers Brigade Intern Rehabilitation Engineering Research Center on Communication Enhancement (AAC-RERC) [EMAIL PROTECTED] and [EMAIL PROTECTED] - Don't let your dream ride pass you by.Make it a reality with Yahoo! Autos.
Re: [QUAD-L] Psuedamonas UTI
You are a pretty good detective Lori, I salute your efforts and successes. I had about 6 utis last year, 3 of them requiring hospitalization and fancy new (to me) drugs Zosyn and _Vancomyosin_ (http://www.jci.org/cgi/reprint/114/9/1181.pdf) , and finally in November I told the doc to remove what I thought was the offending part. I had been using a condom catheter since 1967 and figured it was doing me just fine even tho it allowed me to retain about 300 cc in my bladder. I was sure foleys were a much bigger possibility for introducing utis into my system. Now since my _orchiectomy_ (http://www.beavercleaver.net/orchiectomy_slides.htm) and the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 or 2 minor utis. I now seem to be noticing cleaner output since using collidal silver, alka seltzer, and vinegar some great home remedies for _Bladder Infections_ (http://www.otan.dni.us/webfarm/emailproject/bladder.htm) . Dave In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. Neither have I but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder for years and kept growing. Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one really cares about your well-being! This quack that you keep going to has not been very helpful... has he? Therefore, because these things can get quite serious... you better get real proactive real fast. If I sound like I am yelling at you or preaching to you... maybe it is because that I care more about you than your doctor does! Tough love if you want to call it that. :-) I was so upset when I got a Pseudomonas infection AFTER having my bladder stones out and my doctor was not happy either. *I* finally found the answer on the Internet. To be brief... I found out that by me eating a banana a day... that amount of potassium was severely altering the pH of my urine. It was staying too alkaline (7.5 or more) when it should be much more acidic to keep the bugs away (ideally a pH of 6). After I stopped eating bananas... wala! I have not had an infection since! Who would have ever thought? My doctor was unsure why we could not get my pH number lower even by taking cranberry capsules, drinking cranberry juice and other acidic juices. She (my Urologist) was pretty impressed that I was able to find out the information that I did. My body was not going to be able to take many more
Re: [QUAD-L] Psuedamonas UTI
I always hesitate to write a long e-mail and diatribe but is sometimes to get all the information across... it has to be done that way. Yes... the one IV antibiotic that was used on me for was Zosyn as well. I think for Proteus. Vancomycin has been around for approximately 10 years. So many doctors as well as the spinal cord injured population hold by their statements that indwelling Foley catheters are more opportunistic for bacteria. But I have to disagree. For the first 20 years of my injury within indwelling catheter... I only had about four or five UTIs. The doctors were always so surprised. It wasn't until I had boulders in my bladder that I began to have problems. In the near future I will write about lab technicians and lazy ones and how we can suffer from their laziness. It occurs so frequently that if patients really knew what was going on in the laboratories they surely would not be paying for doctors or medical anything! Lori Michaelson C4/5 complete quad, 27 years post Tucson, AZ On 10/2/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: You are a pretty good detective Lori, I salute your efforts and successes. I had about 6 utis last year, 3 of them requiring hospitalization and fancy new (to me) drugs *Zosyn* and Vancomyosinhttp://www.jci.org/cgi/reprint/114/9/1181.pdf, and finally in November I told the doc to remove what I thought was the offending part. I had been using a condom catheter since 1967 and figured it was doing me just fine even tho it allowed me to retain about 300 cc in my bladder. I was sure foleys were a much bigger possibility for introducing utis into my system. Now since my orchiectomyhttp://www.beavercleaver.net/orchiectomy_slides.htmand the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 or 2 minor utis. I now seem to be noticing cleaner output since using collidal silver, alka seltzer, and vinegar some great home remedies for Bladder Infections http://www.otan.dni.us/webfarm/emailproject/bladder.htm . Dave
Re: [QUAD-L] Psuedamonas UTI
Quoting the website: No Scalpel Vasectomy by Beaver Cleaver D.C. Bilateral Orchiectomy Procedure This procedure has the potential of adding 14 years to the average male life expectancy by significantly reducing the risk for prostate cancer and totally reducing the risk of testicular cancers. (however professional body builders using this technique in conjunction with steroid therapy for the purpose of body sculpting, are at somewhat greater risk to develop prostate cancers because of the increased hormone levels being introduced). No scalpel? What were the 2cm incisions made with. Beaver Cleaver D.C.? You're putting me on! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 02, 2007 5:24 PM Subject: Re: [QUAD-L] Psuedamonas UTI You are a pretty good detective Lori, I salute your efforts and successes. I had about 6 utis last year, 3 of them requiring hospitalization and fancy new (to me) drugs Zosyn and Vancomyosin , and finally in November I told the doc to remove what I thought was the offending part. I had been using a condom catheter since 1967 and figured it was doing me just fine even tho it allowed me to retain about 300 cc in my bladder. I was sure foleys were a much bigger possibility for introducing utis into my system. Now since my orchiectomy and the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 or 2 minor utis. I now seem to be noticing cleaner output since using collidal silver, alka seltzer, and vinegar some great home remedies for Bladder Infections . Dave In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. Neither have I but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder for years and kept growing. Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one really cares about your well-being! This quack that you keep going to has not been very helpful... has he? Therefore, because these things can get quite serious... you better get real proactive real fast. If I sound like I am yelling at you or preaching to you... maybe it is because that I care more about you than your doctor does! Tough love if you want to call it that. :-) I was so
Re: [QUAD-L] Psuedamonas UTI
I included the link only because it had an explanation and pictures. In my case i think they actually used a brick and a large hammer. Dave In a message dated 10/2/2007 3:29:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Quoting the website: No Scalpel Vasectomy by Beaver Cleaver D.C. Bilateral Orchiectomy Procedure This procedure has the potential of adding 14 years to the average male life expectancy by significantly reducing the risk for prostate cancer and totally reducing the risk of testicular cancers. (however professional body builders using this technique in conjunction with steroid therapy for the purpose of body sculpting, are at somewhat greater risk to develop prostate cancers because of the increased hormone levels being introduced). No scalpel? What were the 2cm incisions made with. Beaver Cleaver D.C.? You're putting me on! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:quad-list@eskimo.com) Sent: Tuesday, October 02, 2007 5:24 PM Subject: Re: [QUAD-L] Psuedamonas UTI You are a pretty good detective Lori, I salute your efforts and successes. I had about 6 utis last year, 3 of them requiring hospitalization and fancy new (to me) drugs Zosyn and _Vancomyosin_ (http://www.jci.org/cgi/reprint/114/9/1181.pdf) , and finally in November I told the doc to remove what I thought was the offending part. I had been using a condom catheter since 1967 and figured it was doing me just fine even tho it allowed me to retain about 300 cc in my bladder. I was sure foleys were a much bigger possibility for introducing utis into my system. Now since my _orchiectomy_ (http://www.beavercleaver.net/orchiectomy_slides.htm) and the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 or 2 minor utis. I now seem to be noticing cleaner output since using collidal silver, alka seltzer, and vinegar some great home remedies for _Bladder Infections_ (http://www.otan.dni.us/webfarm/emailproject/bladder.htm) . Dave In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. Neither have I but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder for years and kept growing. Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one
Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY
In a message dated 10/2/2007 1:57:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy I know that it might sound a bit silly at this point, but have you considered taking the apple cider vinegar/ honey mix, twice a day for a week. Baseline the PH of your urine at the beginning and at one week intervals. This mix should not interfere with the meds you are taking, but if you have any questions, ask your doctor. Let us know and best wishes W ** See what's new at http://www.aol.com
[QUAD-L] ever get a cold?
It seems like y'all took acidophylus and it caused a UTI from a psuedamonas strain. I've never not tested positive for psuedamonas. If it isn't dominant then your pretty normal and the best treatment is excersize and rest. We have these immune systems that can pull us through some pretty nasty infections without a lot of the major anti biotics. I use to have a para friend that intermitant catheterized himself with a catheter he kept in his hatband. Yea, Yucky! I'm cetainly not telling anyone what to take or not take, I'm just pointing out that as quads most of us do not have impaired immune systems. How many of you remember having a cold. 32 years as a quad, I've had some kickass infections, septicemia, pneumonia, bone infections, influenza, even a brain infection(explains a lot) but never a cold. About Stacy having the runs. every anti-biotic has that as a side effect which in turn subjects you to e.coli which causes a different infection that needs another anti-biotic that also causes the runs. Trust me the acidophylus didn't make it worse. In fact, acidophylus and other pro biotics eat the stuff the bad bacteria needs and can help maintain your system where your not taking the stuff that gives you the runs. Also, opiates will help stop the runs and several over the counter treatments may work for you. I do wish my advice would work quickly for you, Stacy. I also spend long periods of time waiting for help when I get runs or a condom comes off. I often have gas and cant tell if I had an accident. I have a weird neighbor that thinks that is so funny he stops in to break wind to try to torment me. We have quadriplegia in common , but quads just aren't all alike. What works for me may not work for you. I don't treat UTI's as long as I can live with them. I get a low grade fever, I take tylenol. About every 5 years I get an IVP to see what my system is doing and if there is any stones. The ladies don't have an option to use a condom catheter and looking at some new statistics, there isn't a significant reduction in infections with one. A lot of the differences we have is the doctors we see. My doctors are usually just curious why I'm still alive. I don't go for tests that don't produce information about me that I don't need. Doctors love running tests on us that produce generalized data that has nothing to with me. My doctor told me I had a syrinx before an MRI was available. I'm on Medicare/Medicaid and this test will change nothing. Oh, by the way, if you sit in on a part of a medical lecture, nobody cares. If there is a university hospital nearby, I highly recomend this. Just say you didn't want to interupt and couldn't leave without help. Dr. Randall Braddom is a goldmine of information and only talks down to stupid doctors. The people at your local GNC can be great help. Once again, Stacy, don't give up. it is a hard balance to get but it will work. If you use an opiat to stop from having a bowel movement then use miri-lax the day before you want your bowels to move. Wear lots of perfume? Seriously, do you guys get colds? Best wishes and always in my prayers, john Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. http://smallbusiness.yahoo.com/webhosting
RE: [QUAD-L] ever get a cold?
Now that you mention it, no... I get the sniffles but I think its just allergies Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX From: John S. [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 02, 2007 6:13 PM To: quad-list@eskimo.com Subject: [QUAD-L] ever get a cold? It seems like y'all took acidophylus and it caused a UTI from a psuedamonas strain. I've never not tested positive for psuedamonas. If it isn't dominant then your pretty normal and the best treatment is excersize and rest. We have these immune systems that can pull us through some pretty nasty infections without a lot of the major anti biotics. I use to have a para friend that intermitant catheterized himself with a catheter he kept in his hatband. Yea, Yucky! I'm cetainly not telling anyone what to take or not take, I'm just pointing out that as quads most of us do not have impaired immune systems. How many of you remember having a cold. 32 years as a quad, I've had some kickass infections, septicemia, pneumonia, bone infections, influenza, even a brain infection(explains a lot) but never a cold. About Stacy having the runs. every anti-biotic has that as a side effect which in turn subjects you to e.coli which causes a different infection that needs another anti-biotic that also causes the runs. Trust me the acidophylus didn't make it worse. In fact, acidophylus and other pro biotics eat the stuff the bad bacteria needs and can help maintain your system where your not taking the stuff that gives you the runs. Also, opiates will help stop the runs and several over the counter treatments may work for you. I do wish my advice would work quickly for you, Stacy. I also spend long periods of time waiting for help when I get runs or a condom comes off. I often have gas and cant tell if I had an accident. I have a weird neighbor that thinks that is so funny he stops in to break wind to try to torment me. We have quadriplegia in common , but quads just aren't all alike. What works for me may not work for you. I don't treat UTI's as long as I can live with them. I get a low grade fever, I take tylenol. About every 5 years I get an IVP to see what my system is doing and if there is any stones. The ladies don't have an option to use a condom catheter and looking at some new statistics, there isn't a significant reduction in infections with one. A lot of the differences we have is the doctors we see. My doctors are usually just curious why I'm still alive. I don't go for tests that don't produce information about me that I don't need. Doctors love running tests on us that produce generalized data that has nothing to with me. My doctor told me I had a syrinx before an MRI was available. I'm on Medicare/Medicaid and this test will change nothing. Oh, by the way, if you sit in on a part of a medical lecture, nobody cares. If there is a university hospital nearby, I highly recomend this. Just say you didn't want to interupt and couldn't leave without help. Dr. Randall Braddom is a goldmine of information and only talks down to stupid doctors. The people at your local GNC can be great help. Once again, Stacy, don't give up. it is a hard balance to get but it will work. If you use an opiat to stop from having a bowel movement then use miri-lax the day before you want your bowels to move. Wear lots of perfume? Seriously, do you guys get colds? Best wishes and always in my prayers, john _ Don't let your dream ride pass you by. Make http://us.rd.yahoo.com/evt=51200/*http:/autos.yahoo.com/index.html;_ylc=X3o DMTFibjNlcHF0BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDYXV0b3MtZHJlYW1jYXI- it a reality with Yahoo! Autos.
[QUAD-L] Fwd: FW: Apple Pickin Time
Got our first snow last night, 27 degrees this morning when I went for the paper. Time to pick apples. Can you get 50% in the pail ? THIS ONE WILL DRIVE YOU NUTS!! Let's go, it's Apple pickin' time! This will keep you busy for a while CLICK HERE - See what's new at AOL.com and Make AOL Your Homepage.
