[QUAD-L] Fwd: ICYMI: Momentum to Update SSI's Asset Limits

[Jim Lubin]

https://www.votervoice.net/UnitedSpinal/campaigns/107795/respond


-- Forwarded message -
From: United Spinal Association 


I know with the holiday season, travel plans, and last-minute shopping,
things can get hectic for all of us.

But in case you missed the email we sent earlier in the week, I just wanted
to bump it up to the top of your inbox because we do have a very real and
exciting chance to make a long-overdue change to SSI's asset limits - so
long as all of us take a moment to send a quick message to our members of
Congress. Can you help us?

So much has changed since 1989. One thing that has not changed is the asset
limits for Supplementary Security Income (SSI) - $2,000 for an individual
and $3,000 for a couple.

SSI is a lifeline for millions of people with disabilities in the United
States. Not only does it provide some income support, but the Medicaid
eligibility it provides is so crucial for so many. However, the lack of an
update to the asset limit since 1989 has trapped those on SSI in effective
poverty - and nobody should be trapped in poverty because they have a
disability. It's long past time this was addressed.

Thankfully, momentum is building to finally fix this. The *SSI Savings
Penalty Elimination Act (H.R. 5408/S. 2767)* has been introduced by members
of Congress from both parties in both the House of Representatives and the
Senate. A wide coalition of supporters, including disability organizations,
businesses, and religious groups, have mobilized to tell Congress to pass
this legislation.
Support the SSI Savings Penalty Elimination Act


This bill would raise the SSI asset limit to $10,000 for an individual and
$20,000 for a couple and then update that each year for inflation. This
would allow people on SSI to be able to save for emergencies, remove a
barrier to employment, and make it easier for people with disabilities to
find safe, stable housing.

What we need to do now is contact our Representatives and Senators to ask
them to cosponsor this important bill that would change the lives of so
many. If you have trouble with the button above, you can click the link here
.

Thanks,

Steve Lieberman

Director, Advocacy & Policy, United Spinal Association





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Spinal Association.
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Re: [QUAD-L] nighttime alert

[Jim Lubin]

I use a baby monitor and Amazon echos (multiple throughout the house)

https://www.amazon.com/gp/product/B08DF55XYX



On Thu, Oct 12, 2023 at 2:10 PM Ben Mattlin  wrote:

> I'm so far behind the curve! But, yes, that's the kind of thing I was
> thinking of – being able to call out from bed, say, or any other time I'm
> away from my phone or computer.
>
>
>
> *From:* Edward Tessier 
> *Sent:* Thursday, October 12, 2023 1:38 PM
> *To:* Ben Mattlin ; 'Noel' 
> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ;
> 'Quad List' 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> Oh and one more great feature of the Amazon/Alexa smart speakers
>
>
>
> Being able to intercom hands-free to my attendant, no matter where in the
> house  she is
>
>
>
> Also, when my wife and kids are not around, I know my wife appreciates the
> fact that I can use the Alexa to call anybody hands-free, or call 911
> --
>
> *From:* Edward Tessier 
> *Sent:* Thursday, October 12, 2023 1:29 PM
> *To:* Ben Mattlin ; 'Noel' 
> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ;
> 'Quad List' 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> What   nest products were you thinking of using? Just a thermostat?
> Cameras? Doorbell?
>
>
>
> We've had a lot of luck with smart things, Which is basically the Samsung
> home ecosystem
>
>
>
> We use Amazon smart speakers as the control in each room because they are
> so affordable
>
>
>
> https://www.samsung.com/us/smart-home/smartthings/b2bapp/
>
> 
>
> Samsung SmartThings: Smart Home Automation | Samsung US
> 
>
> Check in on your home anytime with home security systems that you can view
> from your smartphone. Set up motion and audio alerts so you don’t miss a
> thing.
>
> www.samsung.com
>
>
>
>
> --
>
> *From:* Ben Mattlin 
> *Sent:* Thursday, October 12, 2023 11:25 AM
> *To:* Edward Tessier ; 'Noel' 
> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ;
> 'Quad List' 
> *Subject:* RE: [QUAD-L] nighttime alert
>
>
>
> Thanks for the feedback and advice, everyone! What a great community!
>
>
>
> *From:* Edward Tessier 
> *Sent:* Wednesday, October 11, 2023 10:35 PM
> *To:* Ben Mattlin ; 'Noel' 
> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ;
> 'Quad List' 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> We tried nest. Lots of glitches and updates and not connecting well to
> Wi-Fi.
> --
>
> *From:* Ben Mattlin 
> *Sent:* Tuesday, October 10, 2023 3:14 PM
> *To:* 'Noel' 
> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ;
> 'Quad List' 
> *Subject:* RE: [QUAD-L] nighttime alert
>
>
>
> Anybody tried Google Nest?
>
>
>
> *From:* Noel 
> *Sent:* Tuesday, October 10, 2023 11:20 AM
> *To:* Ben Mattlin 
> *Cc:* Jeffrey Gaede ; Eric Olson ;
> Quad List 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> Surprisingly yes, it even whispers back.
>
>
>
> On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin  wrote:
>
> You mean Alexa or Echo can hear even a whisper? Definitely have to check
> it out. I haven't made the plunge into "smart" devices yet. Thanks for the
> good ideas, everyone!
>
>
>
> *From:* Jeffrey Gaede 
> *Sent:* Tuesday, October 10, 2023 10:01 AM
> *To:* Noel ; Eric Olson 
> *Cc:* Ben Mattlin ; Quad List 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> You get a couple of the cheapest Amazon Echos, assuming you have Internet,
> and turn the volume up because that's both the speaker and the microphone,
> and keep it nearby. Should work fine
>
>
>
> On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson <
> whee...@wi.rr.com> wrote:
>
>
>
>
>
> I go low tech and just use a baby monitor.
>
>
>
> On Mon, Oct 9, 2023 at 3:11 PM Noel  wrote:
>
> I use an Amazon Echo, it can hear me whisper at night for controlling the
> TV. Can make phone calls, or drop in on other echo devices
>
>
>
> On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin  wrote:
>
> I have basically no muscle or movement and not much voice. Trying to
> figure out how to alert someone who is in another room if I need help at
> night, when I am in bed and not mobile. A baby monitor? A very sensitive
> voice-activated cell phone? Not sure what would work. All suggestions
> welcome!
>
> Thanks.
>
> Ben
>
>
>
>

[QUAD-L] Greg Wickenburg

[Jim Lubin]

this posted on facebook

To all the friends, family and supporters of Greg Wickenburg,
Our hearts are heavy to have to tell you that Greg passed away last night,
February 5th 2023. He was surrounded by family and died peacefully at home.
Greg was an amazing, inspiring, creative, generous, determined, funny
"smartass", and as genuine as they come.
Even facing his difficult challenges in life, he never failed to stay
positive. He will forever be in our hearts and now he is free to fly.
We love you Greg. You will be missed by all.

Re: [QUAD-L]

[Jim Lubin]

This website explains what it is
https://www.ablenrc.org/what-is-able/what-are-able-acounts/

Basically, it is a way for a person with a disability to be able to put
money into an account without it affecting being eligible for benefits.

On Mon, Jan 23, 2023 at 10:33 AM Shala Silverstein 
wrote:

> Hi Jim, my name is Shala and I'm a C4,5&6 quadriplegic and I'm a little
> confused about the able account. I had my accident when I was 18 but where
> does the money come from? I'm definitely at poverty level only receiving
> about 800 a month, could this benefit me?
>

Re: [QUAD-L] An Introduction to ABLE Accounts

[Jim Lubin]

There a few different quadriplegic and spinal cord injury groups on
facebook. I don't know if there are other places.

On Sat, Jan 14, 2023 at 7:21 PM Tod Santee  wrote:

> Hi Jim... I've been  a member here a long time and I check in on Quad List
> messages from time to time, though I rarely have much to offer when I see a
> question that seems like it's been fully answered once I see it.  I'm
> seeing fewer and fewer posts and/or new members.  Do you know if people are
> "meeting" or communicating on a different forum or some other list?  I've
> been meaning to ask for a while now but I'm just getting more curious since
> I sometimes see a few days between messages.
>
> Thanks!
> Tod Santee
>
> On Tue, Jan 10, 2023, 11:58 PM Jim Lubin  wrote:
>
>>  What happens to the ABLE account after the death of the account owner?click
>> for more information
>> When the account owner passes away, the funds in the ABLE account can be
>> used for any outstanding qualified disability expenses, including funeral
>> and burial expenses. The ABLE plan can advise you on what is needed such as
>> a death certificate or whether there is a special form to complete. It is
>> up to the individual state, whether or not to file a claim for Medicaid
>> recovery of funds which were paid on behalf of the account owner since the
>> account was opened. If someone has never received Medicaid, this is not an
>> issue. If the state pursues a claim, In addition to allowing for the
>> repayment of outstanding QDEs, including funeral and burial expenses,
>> Medicaid buy-in premiums paid since opening the ABLE account will be
>> reimbursed. Thereafter, the remainder of funds are payable to the Estate.
>> https://www.ablenrc.org/frequently-asked-questions/
>>
>>
>> On Tue, Jan 10, 2023 at 7:48 AM SHIRLEY BELL  wrote:
>>
>>> My question that I can't find the answer to, is if you have an able
>>> account and die doe the state get your money? Thanks Jim
>>>
>>> On January 10, 2023 at 10:34 AM Jim Lubin  wrote:
>>>
>>> Age Limit — Eligibility is currently limited to people who developed
>>> their disability before age 26; anyone who becomes disabled later in life
>>> does not qualify. Fortunately, in late 2022, Congress signed off on
>>> adjusting this age limitation beginning in 2026. At that time, individuals
>>> who became disabled before age 46 (rather than age 26) will be eligible to
>>> open an ABLE account.
>>> https://specialneedsanswers.com/an-introduction-to-able-accounts-17586
>>>
>>>
>>>
>>>
>>

Re: [QUAD-L] An Introduction to ABLE Accounts

[Jim Lubin]

 What happens to the ABLE account after the death of the account owner?click
for more information
When the account owner passes away, the funds in the ABLE account can be
used for any outstanding qualified disability expenses, including funeral
and burial expenses. The ABLE plan can advise you on what is needed such as
a death certificate or whether there is a special form to complete. It is
up to the individual state, whether or not to file a claim for Medicaid
recovery of funds which were paid on behalf of the account owner since the
account was opened. If someone has never received Medicaid, this is not an
issue. If the state pursues a claim, In addition to allowing for the
repayment of outstanding QDEs, including funeral and burial expenses,
Medicaid buy-in premiums paid since opening the ABLE account will be
reimbursed. Thereafter, the remainder of funds are payable to the Estate.
https://www.ablenrc.org/frequently-asked-questions/


On Tue, Jan 10, 2023 at 7:48 AM SHIRLEY BELL  wrote:

> My question that I can't find the answer to, is if you have an able
> account and die doe the state get your money? Thanks Jim
>
> On January 10, 2023 at 10:34 AM Jim Lubin  wrote:
>
> Age Limit — Eligibility is currently limited to people who developed their
> disability before age 26; anyone who becomes disabled later in life does
> not qualify. Fortunately, in late 2022, Congress signed off on adjusting
> this age limitation beginning in 2026. At that time, individuals who became
> disabled before age 46 (rather than age 26) will be eligible to open an
> ABLE account.
> https://specialneedsanswers.com/an-introduction-to-able-accounts-17586
>
>
>
>

[QUAD-L] ABLE Account Age Adjustment a Bright Spot in Omnibus Passage

[Jim Lubin]

https://specialneedsanswers.com/able-account-age-adjustment-a-bright-spot-in-omnibus-passage-19405#

[QUAD-L] An Introduction to ABLE Accounts

[Jim Lubin]

Age Limit — Eligibility is currently limited to people who developed their
disability before age 26; anyone who becomes disabled later in life does
not qualify. Fortunately, in late 2022, Congress signed off on adjusting
this age limitation beginning in 2026. At that time, individuals who became
disabled before age 46 (rather than age 26) will be eligible to open an
ABLE account.
https://specialneedsanswers.com/an-introduction-to-able-accounts-17586

[QUAD-L] Check this out – ​Will Congress Finally Increase SSI’s Asset Limits? - Reeve Foundation

[Jim Lubin]

Will Congress Finally Increase SSI’s Asset Limits? - Reeve Foundation
https://www.christopherreeve.org/blog/life-after-paralysis/will-congress-finally-increase-ssis-asset-limits

[QUAD-L] 10 Interesting Online Jobs You May Not Have Heard About

[Jim Lubin]

https://www.makeuseof.com/interesting-online-jobs-not-heard/?utm_source=MUO-NL-RP_medium=newsletter

[QUAD-L] 33 years

[Jim Lubin]

Today marks 33 years since my transverse myelitis onset. I woke up with a
pain in my shoulder. Two hours later I could not remain able to stand and
then stopped breathing. I have been paralyzed from the neck down and
dependent on a ventilator to breathe to keep me alive ever since. I am
otherwise in great health and not in pain, so life is good.

[QUAD-L] Re: Questing information on online-support group

[Jim Lubin]

Hi Laura,

Are you looking for an online or in-person support group?


On Thu, Apr 21, 2022 at 7:01 PM Laura Tinker 
wrote:

>
> Hi my name is Laura. I’m a care giver to my brother Andrew. Andrew is 39
> years old. He has Schizophrenia and is a quadriplegic from a Traumatic
> brain Injury in a car accident last year. He was a pedestrian hit by a car.
> He can talk a little bit and can use his left hand and both arms. He can
> not use his legs. He has expressed to me he would like to be a part of a
> support group.
>  If you have any suggestions please email me at:
>
>  ms.lauratin...@gmail.com
>
> Thank you!
> Sent from my iPad

Re: [QUAD-L] Let's try a Zoom Meeting earlier - Thursday, April 7th

[Jim Lubin]

shoot, I forgot!

On Tue, Mar 29, 2022 at 1:14 PM Don Price  wrote:

> It's hard to find a time that works for everyone, but let's try an earlier
> meeting. I apologize to anyone who cannot make this time.
> How about we try 2pm PST  on Thursday, April 7th.
> That's
>
> 5pm EST
> 4pm CST
> 3pm MST
>
> I'll send out the ZOOM link.
>
> Don.
>
>

[QUAD-L] The 10 Best Side Business Ideas for Full-Time Workers

[Jim Lubin]

https://www.makeuseof.com/best-side-business-ideas-full-time-workers/

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Jim Lubin]

Randy, I've been in bed for 9 years. Started out because I had a pressure
sore then after it healed it just made my life easier staying in bed.

On Thu, Mar 17, 2022 at 12:00 PM Randy Anderson 
wrote:

> I love the idea, but I've never joined in. I've been in bed quite a bit
> with a pressure sore among other excuses.
> I should be able to make it on most of the times that have been suggested,
> but haven't.
> I hope they've been going fine and with some results. I hope for those
> involved that you can keep it up.
> Thanks, Randy
>
> On Thu, Mar 17, 2022 at 12:25 PM Nichole Rohling 
> wrote:
>
>> Anytime between 1 pm and 4 pm CST
>>
>>
>>
>> Nicki
>>
>>
>>
>> *From:* Jim Lubin [mailto:jlu...@eskimo.com]
>> *Sent:* Wednesday, March 16, 2022 8:44 PM
>> *To:* Edward Tessier
>> *Cc:* Don Price; Greg; quad-list@eskimo.com
>> *Subject:* Re: [QUAD-L] Quadlist Zoom Meeting, 3/15
>>
>>
>>
>> Only Don and I.
>>
>>
>>
>> What is a good time for everyone? Earlier is better for me, 10am or 1pm
>> Pacific
>>
>>
>>
>> On Wed, Mar 16, 2022 at 12:36 PM Edward Tessier 
>> wrote:
>>
>> How did the zoom go last night?
>>
>>
>>
>> Unfortunately I have a funeral to attend.
>> --
>>
>> *From:* Don Price 
>> *Sent:* Tuesday, March 15, 2022 4:29 PM
>> *To:* Greg ; quad-list@eskimo.com <
>> quad-list@eskimo.com>
>> *Subject:* RE: [QUAD-L] Quadlist Zoom Meeting, 3/15
>>
>>
>>
>> Still on…. Starting soon.
>>
>>
>>
>> *From: *Greg 
>> *Sent: *Tuesday, March 15, 2022 4:09 PM
>> *To: *Don Price ; quad-list@eskimo.com
>> *Subject: *Re: [QUAD-L] Quadlist Zoom Meeting, 3/15
>>
>>
>>
>> I hope the meeting is still on. Did I miss it, or is it an hour later
>> than advertised?
>>
>>
>>
>> Greg
>>
>>
>>
>>
>>
>> On Mon, Mar 7, 2022 at 4:57 PM Don Price  wrote:
>>
>> Hey all!
>>
>>
>>
>> We did a Quadlist Zoom meeting a few weeks ago, and even though only four
>> of us attended it was still very enjoyable. I finally got to see and talk
>> to my hero, Jim Lubin, the man who started the Quadlist.
>>
>>
>>
>> Anyhow, I want to schedule another meeting, and rather than trying to get
>> a consensus on date/time, i'm just going to schedule it for Tuesday, March
>> 15th at 5pm AZ time. That's:
>>
>> 7pm ET
>>
>> 6pm CT
>>
>> 5pm MT
>>
>> 4pm PT
>>
>>
>>
>>
>>
>> Topic: Quad-List Chat
>>
>> Time: Mar 15, 2022 05:00 PM Arizona
>>
>>
>>
>> Join Zoom Meeting
>>
>> https://us02web.zoom.us/j/85753852801
>>
>>
>>
>> One tap mobile
>>
>> +16699006833, 
>> <http://voice.google.com/calls?a=nc,%2B16699006833>,85753852801#
>> US (San Jose)
>>
>>
>>
>> Join if you can!!!
>>
>>
>>
>> Don.
>>
>>
>>
>>

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Jim Lubin]

Only Don and I.

What is a good time for everyone? Earlier is better for me, 10am or 1pm
Pacific

On Wed, Mar 16, 2022 at 12:36 PM Edward Tessier 
wrote:

> How did the zoom go last night?
>
> Unfortunately I have a funeral to attend.
> --
> *From:* Don Price 
> *Sent:* Tuesday, March 15, 2022 4:29 PM
> *To:* Greg ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* RE: [QUAD-L] Quadlist Zoom Meeting, 3/15
>
>
> Still on…. Starting soon.
>
>
>
> *From: *Greg 
> *Sent: *Tuesday, March 15, 2022 4:09 PM
> *To: *Don Price ; quad-list@eskimo.com
> *Subject: *Re: [QUAD-L] Quadlist Zoom Meeting, 3/15
>
>
>
> I hope the meeting is still on. Did I miss it, or is it an hour later than
> advertised?
>
>
>
> Greg
>
>
>
>
>
> On Mon, Mar 7, 2022 at 4:57 PM Don Price  wrote:
>
> Hey all!
>
>
>
> We did a Quadlist Zoom meeting a few weeks ago, and even though only four
> of us attended it was still very enjoyable. I finally got to see and talk
> to my hero, Jim Lubin, the man who started the Quadlist.
>
>
>
> Anyhow, I want to schedule another meeting, and rather than trying to get
> a consensus on date/time, i'm just going to schedule it for Tuesday, March
> 15th at 5pm AZ time. That's:
>
> 7pm ET
>
> 6pm CT
>
> 5pm MT
>
> 4pm PT
>
>
>
>
>
> Topic: Quad-List Chat
>
> Time: Mar 15, 2022 05:00 PM Arizona
>
>
>
> Join Zoom Meeting
>
> https://us02web.zoom.us/j/85753852801
>
>
>
> One tap mobile
>
> +16699006833,,85753852801# US (San Jose)
>
>
>
> Join if you can!!!
>
>
>
> Don.
>
>
>

Re: [QUAD-L] REMINDER--QUAD-LIST ZOOM TODAY (2/15/22)

[Jim Lubin]

Thanks for setting this up Don. It was nice to see you guys. We'll have to
do it again some time.

On Tue, Feb 15, 2022 at 11:13 AM Don Price  wrote:

> I hope to meet some of you today!
> 5pm Eastern
> 4pm Central
> 3pm AZ and Mountain
> 2pm pacific
>
> I've set up this Zoom meeting. Join if you can. It would be fun to connect
> faces with names!
>
> Don Price is inviting you to a scheduled Zoom meeting.
>
> Topic: Quadlist Meetup Zoom
> Time: Feb 15, 2022 03:00 PM Arizona
>
> Join Zoom Meeting
> https://us02web.zoom.us/j/81350063298
>
> Meeting ID: 813 5006 3298
> One tap mobile
> +12532158782, ,81350063298#
> US (Tacoma)
> +13462487799, ,81350063298#
> US (Houston)
>
> Dial by your location
> +1 253 215 8782
> US (Tacoma)
> +1 346 248 7799
> US (Houston)
> +1 669 900 6833
> US (San Jose)
> +1 301 715 8592
> US (Washington DC)
> +1 312 626 6799
> US (Chicago)
> +1 929 205 6099
> US (New York)
> Meeting ID: 813 5006 3298
> Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma
>
>
>

Re: [QUAD-L] REMINDER--QUAD-LIST ZOOM TODAY (2/15/22)

[Jim Lubin]

Thanks for setting this up Don. It was nice to see you guys. We'll have to
do it again some time.

On Tue, Feb 15, 2022 at 11:52 AM Don Price  wrote:

> I hope to meet some of you today!
> 5pm Eastern
> 4pm Central
> 3pm AZ and Mountain
> 2pm pacific
>
> I've set up this Zoom meeting. Join if you can. It would be fun to connect
> faces with names!
>
> Don Price is inviting you to a scheduled Zoom meeting.
>
> Topic: Quadlist Meetup Zoom
> Time: Feb 15, 2022 03:00 PM Arizona
>
> Join Zoom Meeting
> https://us02web.zoom.us/j/81350063298
>
> Meeting ID: 813 5006 3298
> One tap mobile
> +12532158782,,81350063298# US (Tacoma)
> +13462487799,,81350063298# US (Houston)
>
> Dial by your location
> +1 253 215 8782 US (Tacoma)
> +1 346 248 7799 US (Houston)
> +1 669 900 6833 US (San Jose)
> +1 301 715 8592 US (Washington DC)
> +1 312 626 6799 US (Chicago)
> +1 929 205 6099 US (New York)
> Meeting ID: 813 5006 3298
> Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma
>
>
>

Fwd: [QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time

[Jim Lubin]

-- Forwarded message -
From: Jim Lubin 
Date: Mon, Feb 14, 2022 at 4:38 PM
Subject: Re: [QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time
To: Edward Tessier 
Cc: Don Price , Quad-list Post 


I was just checking the time.
Is 3 pm AZ Time = 2 pm Pacific Time = 5 pm Eastern Time?


On Tue, Feb 8, 2022 at 6:16 PM Edward Tessier  wrote:

> Thanks Don!
>
>  Can't wait to finally see everybody
>
>  Ed Tessier
> --
> *From:* Don Price 
> *Sent:* Tuesday, February 8, 2022 1:29 PM
> *To:* Quad-list Post ; Edward Tessier <
> e...@artecopartners.com>
> *Subject:* Quadlist Zoom Meetup, 2/15, 3pm AZ Time
>
> I've set up this Zoom meeting. Join if you can. It would be fun to connect
> faces with names!
>
> Don Price is inviting you to a scheduled Zoom meeting.
>
> Topic: Quadlist Meetup Zoom
> Time: Feb 15, 2022 03:00 PM Arizona
>
> Join Zoom Meeting
> https://us02web.zoom.us/j/81350063298
>
> Meeting ID: 813 5006 3298
> One tap mobile
> +12532158782, <http://voice.google.com/calls?a=nc,%2B12532158782>,81350063298#
> US (Tacoma)
> +13462487799, <http://voice.google.com/calls?a=nc,%2B13462487799>,81350063298#
> US (Houston)
>
> Dial by your location
> +1 253 215 8782
> <http://voice.google.com/calls?a=nc,%2B12532158782>US (Tacoma)
> +1 346 248 7799
> <http://voice.google.com/calls?a=nc,%2B13462487799>US (Houston)
> +1 669 900 6833
> <http://voice.google.com/calls?a=nc,%2B16699006833>US (San Jose)
> +1 301 715 8592
> <http://voice.google.com/calls?a=nc,%2B13017158592>US (Washington DC)
> +1 312 626 6799
> <http://voice.google.com/calls?a=nc,%2B13126266799>US (Chicago)
> +1 929 205 6099
> <http://voice.google.com/calls?a=nc,%2B19292056099>US (New York)
> Meeting ID: 813 5006 3298
> Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma
>
>
>

Re: [QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time

[Jim Lubin]

I was just checking the time.
Is 3 pm AZ Time = 2 pm Pacific Time = 5 pm Eastern Time?


On Tue, Feb 8, 2022 at 6:16 PM Edward Tessier  wrote:

> Thanks Don!
>
>  Can't wait to finally see everybody
>
>  Ed Tessier
> --
> *From:* Don Price 
> *Sent:* Tuesday, February 8, 2022 1:29 PM
> *To:* Quad-list Post ; Edward Tessier <
> e...@artecopartners.com>
> *Subject:* Quadlist Zoom Meetup, 2/15, 3pm AZ Time
>
> I've set up this Zoom meeting. Join if you can. It would be fun to connect
> faces with names!
>
> Don Price is inviting you to a scheduled Zoom meeting.
>
> Topic: Quadlist Meetup Zoom
> Time: Feb 15, 2022 03:00 PM Arizona
>
> Join Zoom Meeting
> https://us02web.zoom.us/j/81350063298
>
> Meeting ID: 813 5006 3298
> One tap mobile
> +12532158782,,81350063298# US (Tacoma)
> +13462487799,,81350063298# US (Houston)
>
> Dial by your location
> +1 253 215 8782 US (Tacoma)
> +1 346 248 7799 US (Houston)
> +1 669 900 6833 US (San Jose)
> +1 301 715 8592 US (Washington DC)
> +1 312 626 6799 US (Chicago)
> +1 929 205 6099 US (New York)
> Meeting ID: 813 5006 3298
> Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma
>
>
>

Re: [QUAD-L] Re: Testing my email

[Jim Lubin]

I'm still alive and well.

On Sat, Jan 15, 2022 at 1:00 PM radnbada...@aol.com 
wrote:

> Ray (radnbadatpj) Still here  c/5 Prescott Valley AZ 20yrs post, miss all
> the old timers:( Jim who started this site, I think he’s still here,  W
> (Wheelchair who’s son was a quad) and he always gave awesome advice and
> just knew a bunch of stuff. Eric who’s still here, Dave from Phoenix
> injured during gymnastics meet (I think), Jim ( he did donkey trails
> little inspirational quotes on here.) Mark who was Quad Pirate, Silas,
> the farmer, Houston the gangster, who was going to college, Little Quad
> can’t remember her name, Lori who just recently passed away,  Dave from
> Texas, Boyd who at the time was the oldest member on the quad list, I think
> he was a pilot,  Joan can’t remember if it was her or Nancy who raised
> miniature horses. Greg he also lives in Arizona. These are just a few of
> the names that come to mind:-) I found this site a couple years after my
> accident and have followed it through the years. Sorry for rambling on,
> anyway I pray everyone is off to a great New Year and good health keep the
> post’s coming
>
>
>
> Sent from the all new AOL app for iOS
> 
>
> On Saturday, January 15, 2022, 11:07 AM, Carla Aarssen <
> caars...@hotmail.com> wrote:
>
> I am still here. 42yr old female C5 quadriplegic from Ontario, Canada 
>
> Get Outlook for Android 
> --
> *From:* Eric Olson 
> *Sent:* Saturday, January 15, 2022 12:41:59 PM
> *To:* Jeffrey Gaede 
> *Cc:* Edward Tessier ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* Re: [QUAD-L] Re: Testing my email
>
> I just meant how many people are actually subscribed to the list.  I think
> most of the people that were on the list at one time have moved on to
> social media.  Shame.
>
> On Fri, Jan 14, 2022 at 11:22 AM Jeffrey Gaede  wrote:
>
> As in? Quadriplegics? Tetraplegics?
>
> On Friday, January 14, 2022, 09:18:05 AM PST, Eric Olson <
> whee...@wi.rr.com> wrote:
>
>
> I often wonder how many of us there are.
>
> On Thu, Jan 13, 2022 at 10:03 PM Edward Tessier 
> wrote:
>
> My message got through.
>
>  Thanks everybody!
> --
> *From:* Edward Tessier
> *Sent:* Thursday, January 13, 2022 7:52 PM
> *To:* quad-list@eskimo.com 
> *Subject:* Testing my email
>
> I haven't posted in a long time that I want to make sure it still works
> with my current email.   If anybody sees this, just give me a quick howdy.
>
>  Thanks
>
>

[QUAD-L] 10 Work From Home Careers You Should Know About

[Jim Lubin]

https://www.makeuseof.com/work-from-home-careers-to-know/

Re: [QUAD-L] Breathing

[Jim Lubin]

I knew someone who was a C2 quad dependent on a vent to breathe and changed
to a diaphragm pacemaker. She wrote an article about it
https://files.wearesrna.org/newsletters/j5/journal-5-11.htm

She suffered from depression and stopped eating then passed away a few
years ago.

On Tue, Jul 27, 2021 at 5:28 PM Greg  wrote:

>
> I'm still having problems with my breathing, I'm not on trech now, I was
> last year for a week or two. I am on a respirator but only at night,
> sometimes during the day if I'm really out of breath. I've been to so many
> doctors they just can't find my problem. My oxygen levels are fine, but I
> feel like I'm out of breath. Sometimes it feels like a heavy chest,
> sometimes I feel like I've been running around the block, and other times I
> just don't feel like I'm getting air.
>
> My next test is an EMG. To test the diaphragm for electrical currents. And
> they also talked about a sniff test.
>
> My breast feel like they're big enough, I'm just breathing real hard. I
> have had blood pressure issues, often in the 70s/40s. So I am taking a
> blood pressure medication.
>
> They're also talking about a diaphragm Peacemaker. Is anyone ever had that
> or know someone who has? I worry that will make my breathing not natural,
> like making me take breaths when I'm trying to breathe out xcetera.
>
> It all started the day after I had a heart ablation to fix A-Flutter on my
> heart. But that shouldn't have anything to do with it, except I was
> intubated. I left the hospital and had to go back that night my breathing
> was so hard. They thought it was a CO2 buildup, but that's gotten a lot
> better.
>
> I haven't had a good breath in about 2 months now. At least one that felt
> normal. I don't know what's worse not breathing well for being on that darn
> ventilator. I don't want to go to trech again.
>
> Greg
>

Re: [QUAD-L] Vent ?

[Jim Lubin]

I can't breathe at all on my own the vent is breathing for me so the
experience is different.

On Thu, Jul 22, 2021 at 11:39 AM Greg  wrote:

> you guys on vents ever get use to it?
> I have to use one at night, I use a face mask not trach. I just can't get
> the breathing to match mine good enough. Plus the face mask is just too
> much. I keep trying different kinds.
>
> I dont want the trech, when its not on, just the trech tube in the throat
> blocks too much air.
>
> Greg
>

Re: [QUAD-L] Bed/Mattress Question

[Jim Lubin]

Pressure-reducing support surfaces
Part B covers pressure-reducing support surfaces as durable medical
equipment (DME) that your doctor prescribes for use in your home.
https://www.medicare.gov/coverage/pressure-reducing-support-surfaces

Find medical equipment & suppliers
https://www.medicare.gov/medical-equipment-suppliers/

On Fri, Apr 9, 2021 at 9:56 PM Jim Lubin  wrote:

> I had two pressure sores 6 years ago and the wound care doctor prescribed
> an invacare MA65. I just moved and wanted to replace it. I just got the
> invacare MA600 and love it.
>
> On Fri, Mar 19, 2021 at 11:28 AM Nancy  wrote:
>
>> What bed/mattress do you use to prevent skin breakdowns? I'm looking for
>> info and recommendations - comfort, durability, reliability...
>>
>> I currently use a Drive Medical Lateral Rotation Mattress with Low Air Loss.
>> I don't use the turning feature because it never returned me to the correct
>> position. I got this bed in 2015 and I'm now having a lot of problems
>> wit it. I can no longer get comfortable, it bulges and makes hard lumps under
>> my injury site, bones and muscles. I can't sleep through the night anymore
>> and I'm getting headaches frequently. I hurt all the time. On the plus
>> side, it continues to prevent pressure sores. I've tried to get
>> insurance (MLTC Medicare/Medicaid) to cover a new mattress but have been
>> denied. After nearly 53 years, I have two chronic sores so I spend most
>> of my time in bed. This is killing me both physically and mentally! Any
>> suggestions will be appreciated.
>> Nan
>>
>

Re: [QUAD-L] Bed/Mattress Question

[Jim Lubin]

Invacare microAIR Alternating Pressure Low Air Loss Mattress System, 500
lb. Weight Capacity, MA600
https://smile.amazon.com/Invacare-microAIR-Alternating-Pressure-MA600/dp/B07T99MF3B/


On Fri, Apr 9, 2021 at 9:56 PM Jim Lubin  wrote:

> I had two pressure sores 6 years ago and the wound care doctor prescribed
> an invacare MA65. I just moved and wanted to replace it. I just got the
> invacare MA600 and love it.
>
> On Fri, Mar 19, 2021 at 11:28 AM Nancy  wrote:
>
>> What bed/mattress do you use to prevent skin breakdowns? I'm looking for
>> info and recommendations - comfort, durability, reliability...
>>
>> I currently use a Drive Medical Lateral Rotation Mattress with Low Air Loss.
>> I don't use the turning feature because it never returned me to the correct
>> position. I got this bed in 2015 and I'm now having a lot of problems
>> wit it. I can no longer get comfortable, it bulges and makes hard lumps under
>> my injury site, bones and muscles. I can't sleep through the night anymore
>> and I'm getting headaches frequently. I hurt all the time. On the plus
>> side, it continues to prevent pressure sores. I've tried to get
>> insurance (MLTC Medicare/Medicaid) to cover a new mattress but have been
>> denied. After nearly 53 years, I have two chronic sores so I spend most
>> of my time in bed. This is killing me both physically and mentally! Any
>> suggestions will be appreciated.
>> Nan
>>
>

Re: [QUAD-L] Bed/Mattress Question

[Jim Lubin]

I had two pressure sores 6 years ago and the wound care doctor prescribed
an invacare MA65. I just moved and wanted to replace it. I just got the
invacare MA600 and love it.

On Fri, Mar 19, 2021 at 11:28 AM Nancy  wrote:

> What bed/mattress do you use to prevent skin breakdowns? I'm looking for info
> and recommendations - comfort, durability, reliability...
>
> I currently use a Drive Medical Lateral Rotation Mattress with Low Air Loss.
> I don't use the turning feature because it never returned me to the correct
> position. I got this bed in 2015 and I'm now having a lot of problems wit
> it. I can no longer get comfortable, it bulges and makes hard lumps under
> my injury site, bones and muscles. I can't sleep through the night anymore
> and I'm getting headaches frequently. I hurt all the time. On the plus
> side, it continues to prevent pressure sores. I've tried to get insurance
> (MLTC Medicare/Medicaid) to cover a new mattress but have been denied.
> After nearly 53 years, I have two chronic sores so I spend most of my
> time in bed. This is killing me both physically and mentally! Any
> suggestions will be appreciated.
> Nan
>

[QUAD-L] Fwd: Take Action: Support the ABLE Age Adjustment Act

[Jim Lubin]

-- Forwarded message -
From: United Spinal Advocacy Network 
Date: Fri, Apr 9, 2021 at 2:07 PM
Subject: Take Action: Support the ABLE Age Adjustment Act
To: James Lubin 


Fellow advocate,United Spinal supports the ABLE Age Adjustment Act (H.R.
1219/S.331), which would expand eligibility for ABLE accounts by increasing
the age limit on the onset of disability from 26 to

Fellow advocate,

United Spinal supports the *ABLE Age Adjustment Act* (H.R. 1219/S.331),
which would expand eligibility for ABLE accounts by increasing the age
limit on the onset of disability from 26 to 46, allowing 6 million more
individuals the opportunity to enroll. ABLE accounts are tax-advantaged
savings accounts for individuals with disabilities and their families which
can cover disability-related expenses such as education, housing,
transportation, employment support and other support expenses.
[image: Take Action]



Seven years after the passage of the ABLE Act, it is time to pass the ABLE
Age Adjustment Act.  The opportunity provided through the ABLE Act to
assist in securing more financial stability for individuals with
disabilities and their families is profound; however, it is limited to
those individuals with an age of onset of disability prior to their 26th
birthday. Many individuals who could benefit from ABLE accounts are left
out since many conditions can and do occur later in life, including
multiple sclerosis, ALS, or paralysis. Additionally, veterans who become
disabled as a result of their service after age 25 are currently ineligible
for ABLE accounts.  Tell Congress to support the ABLE Age Adjustment Act
today! 

Thanks,

United Spinal Advocacy and Policy Team
--
Click here
 to
unsubscribe from this mailing list.
[image: Powered by VoterVoice] 

[QUAD-L] SCI-COG Study

[Jim Lubin]

*SCI-COG Study*

The purpose of this study is to test the effectiveness of a cognitive
screening test in a SCI population. We are doing this research to improve
how well a person’s medical team can identify whether a patient needs to
see a specialist about memory, attention, and other thinking skills.  If
you are eligible and choose to participate, we will set up a Zoom visit to
complete hands-free testing that will examine your thinking skills. We will
test things like language skills, how fast you can process information,
your ability to remember new information, and pay attention for long
periods of time. At the end of these tests, you will be asked to complete
some questionnaires. All the testing takes about 2.5 hours to
complete, and *you
will be compensated $75.00* for your participation. *No in-person visits
required*.  *CONTACT US: Call 206-744-5196  or email sci...@uw.edu
*

Re: [QUAD-L] Voice Operated TV Google, Alexa, others?

[Jim Lubin]

This device lets you use a cell phone to connect to a phone with a jack.
Cell2jack - Cellphone to Home Phone Adapter - Make and Receive Cell Phone
Call on Your landline Phone Free
https://smile.amazon.com/gp/product/B089984QRT/


On Thu, Feb 25, 2021 at 5:32 PM Lori Michaelson 
wrote:

> Yup I do know that Aaron but thank you. What I am paying for right now is
> Internet and a landline and I am currently looking into a desktop phone
> that I can use and push the buttons with my fist to call numbers or you
> have to push a button (I need that independents) and have it looked up to
> my cell phone number and set up my home number. I have found someone who
> has done that but they have much more movement than I do and she is not a
> quad.
>
> ~Lori
>

[QUAD-L] Come As You Are (2019) - IMDb

[Jim Lubin]

https://www.imdb.com/title/tt6722726/?ref_=nv_sr_srsg_0

I just watched this on Starz. I liked it. Funny.

Re: [QUAD-L] For the Quach that are paralyzed from the neck down a question

[Jim Lubin]

I mainly use my cell phone, a Moto G7, through a program called Vysor on my
Windows 10 laptop. 

I have also used the free Voice Access app for Android that lets you
control your device with spoken commands. Use your voice to open apps,
navigate, and edit text hands-free. To my surprise it actually works well.

If you have an Android phone, Get started with Voice Access
https://support.google.com/accessibility/android/answer/6151848


On Sun, May 17, 2020 at 1:09 PM  wrote:

> Hello my friends I was wondering for the quad that paralyzed from the neck
> down how do you use your cell phone when you are in bed also or on your
> wheelchair thank you and God bless you
>
>
>
>
>

[QUAD-L] Celebrating Life 31 years after Transverse Myelitis!

[Jim Lubin]

On May 17, 1989, I suddenly, within minutes, went from a sharp pain in my
shoulder to becoming paralyzed from the neck down and dependent on a
ventilator to breathe due to acute idiopathic transverse myelitis. My
condition has not changed but I am otherwise in good health and grateful
for every day I am alive.

[QUAD-L] Re: Just checking in.

[Jim Lubin]

I'm doing good. Hope you are doing well

On Mon, Apr 27, 2020 at 7:13 AM Nancy  wrote:

> Just want to know how you all are doing. Thinking of you all!
>
> Nan
>

[QUAD-L] Update about COVID-19 Economic Impact Payments for Beneficiaries

[Jim Lubin]

Commissioner of Social Security Shares Update about COVID-19 Economic
Impact Payments for Beneficiaries


Posted on April 3, 2020 by Andrew Saul, Commissioner, Social Security
Administration
“I want to provide an update to people who receive benefits from the Social
Security Administration.

The Department of the Treasury (Treasury) announced on April 1 that Social
Security beneficiaries who are not typically required to file tax returns
will not need to file an abbreviated tax return to receive an economic
impact payment. The Internal Revenue Service (IRS) will use the information
on the Form SSA-1099 to generate $1,200 economic impact payments to Social
Security beneficiaries who did not file tax returns in 2018 or 2019.


Treasury, not Social Security, will make automatic payments to Social
Security beneficiaries. Beneficiaries will receive these payments by direct
deposit or by paper check, just as they would normally receive their Social
Security benefits.

For updates from the IRS, visit their web page.

Note for Supplemental Security Income (SSI) Recipients:

We are working closely with Treasury to address outstanding questions about
our SSI recipients in an attempt to make the issuance of economic impact
payments as quick and efficient as possible. We realize people are
concerned, and the IRS will provide additional information on their web
page when available. Please note that we will not consider economic impact
payments as income for SSI recipients, and the payments are excluded from
resources for 12 months.

We will continue to update Social Security’s Coronavirus COVID-19 web page
as further details become available.”

Re: [QUAD-L] Anyone know how Quads will fair if they get Virus?

[Jim Lubin]

I saw an interview with an ENT doctor. He said NOT to use filters from
vacuum cleaner bags since they are coated with chemicals that you don't
want to be inhaling. He recommends microfiber cloths inside the cotton
layers. Also be sure to wash/dry them at least daily.


On Fri, Apr 3, 2020 at 12:05 PM Gail Holmes 
wrote:

> I’m thinking everyone entering your territory within 10 feet or so should
> wear at least a surgical type mask.
>
> A coffee filter, vacuum cleaner bag, and AC furnace filter can be used as
> a disposable filter for masks that have pockets.
>
> If nothing else, a cone- shaped coffee filter can be helpful.
> Punch holes on either side and loop together rubber bands to make ear
> loops.
> Reinforce the hole for the rubber bands with tape.
>
> I’m gonna start cranking up my sewing machine soon to make some.
>
> One problem is the one I’ve tried makes conversation difficult.
> The mask works it’s way down when talking.
>
>
>
>
>
>
>
>
>
> Sent from my iPhone
>
> On Apr 2, 2020, at 2:16 PM, Furious  wrote:
>
> 
> Not nice.
>
> On Mon, Mar 30, 2020 at 1:12 PM Eric Olson  wrote:
>
>> Unfortunately, you're probably spot on.
>>
>> On Mon, Mar 30, 2020 at 11:30 AM Greg  wrote:
>>
>>> My guess is not well. Higher the level, the less well.
>>> Greg
>>>
>>> On 3/18/2020 9:52 AM, DAVID LEWIS wrote:
>>>
>>> Anyone know of Quads getting the virus yet?
>>>
>>>
>>>

[QUAD-L] Social Security Recipients Will Automatically Receive Economic Impact Payments

[Jim Lubin]

https://home.treasury.gov/news/press-releases/sm967
Social Security Recipients Will Automatically Receive Economic Impact
Payments
April 1, 2020

WASHINGTON – The U.S. Department of the Treasury and the Internal Revenue
Service today announced that Social Security beneficiaries who are not
typically required to file tax returns will not need to file an abbreviated
tax return to receive an Economic Impact Payment. Instead, payments will be
automatically deposited into their bank accounts.



“Social Security recipients who are not typically required to file a tax
return do not to need take an action, and will receive their payment
directly to their bank account,” said Secretary Steven T. Mnuchin.



The IRS will use the information on the Form SSA-1099 and Form RRB-1099 to
generate $1,200 Economic Impact Payments to Social Security recipients who
did not file tax returns in 2018 or 2019. Recipients will receive these
payments as a direct deposit or by paper check, just as they would normally
receive their benefits.

Re: [QUAD-L] Do you guys know if

[Jim Lubin]

might be $1200

https://www.aarp.org/politics-society/advocacy/info-2020/coronavirus-stimulus-checks.html


On Sat, Mar 28, 2020 at 3:49 AM  wrote:

> Hello guys that check that the president going to send to everybody if is
> going to affect us on our disability check and my other question is do you
> know if is going to be only one time only or every month thank you and God
> bless you
>
>
>

Re: [QUAD-L] Hello guys I have a question for you

[Jim Lubin]

This could be what your friend heard

https://www.medicaid.gov/state-resource-center/disaster-response-toolkit/federal-disaster-resources/index.html



*View in browser
*
|
Distributed by Center for Medicaid and CHIP Services (CMCS)
[image: Medicaid.gov]


Today, in keeping with its commitment to ensure states have the necessary
tools to respond to the 2019 Novel Coronavirus (COVID-19) pandemic, the
Centers for Medicare & Medicaid Services (CMS) approved an additional six
state Medicaid waiver requests under Section 1135 of the Social Security
Act (Act), bringing the total number of approved Section 1135 waivers for
states to twenty nine. The waivers were approved within days of states’
submitting them, with average approval time taking less than seven calendar
days. The waivers offer states new flexibilities to focus their resources
on combatting the outbreak and providing the best possible care to their
Medicaid beneficiaries. These waivers support President Trump’s commitment
to operating a COVID-19 response that is locally executed, state managed
and federally supported. All Section 1135 approval letters will be posted
here

as
they are issued.

CMS approved waivers for the following states today:

   - New York
   - Colorado
   - Hawaii
   - Idaho
   - Massachusetts
   - Maryland

CMS provides guidance to states on how to apply for Section 1135 waivers
through the Medicaid Disaster Response Tool Kit, which can be found here
.
To further the agency’s efforts, CMS has developed checklists and tools

to
expedite requests and approvals for waivers and other commonly requested
flexibilities.  CMS will continue to expeditiously review and approve, as
appropriate, all Section 1135 waivers and other requests that the agency
receives to ensure that we are providing our state partners with the
maximum flexibility they need to care for their Medicaid beneficiaries
during the public health emergency.

These waivers, and earlier CMS actions in response to COVID-19, are part of
the ongoing White House Task Force efforts. To keep up with the important
work the Task Force is doing in response to COVID-19, visit
www.coronavirus.gov
.
For a complete and updated list of CMS actions, and other information
specific to CMS, please visit the Current Emergencies Website.

Additionally, CMS has launched a dedicated, Medicaid.gov, COVID-19 resource
page

Re: [QUAD-L] Magic Bullet Suppositories

[Jim Lubin]

I use Bisacodyl (Dulcolax) - Suppositories, 10 mg for my bowel program.
https://smile.amazon.com/dp/B000K6J2DU/

On Fri, Mar 20, 2020 at 7:07 PM  wrote:

> Hello.  Does anyone know where I can get the Magic Bullet Suppositories?
> I went to the Allegro website and it said they were out of stock.
>

Re: [QUAD-L] Any you guys has a trach I will like to ask you

[Jim Lubin]

Had a trach 31+ years.
Use a Shiley 4CFS Non-Fenestrated Tracheostomy Tube, Cuffless, Size 4
Change the trach every 3 months
No surgery


On Mon, Feb 17, 2020 at 5:18 AM  wrote:

> Any you guys that has Trait I will like to ask you couple questions how
> often you change your trach also have your doctor ever told you that you
> have dry secretion insight and my third question have you ever had surgery
> on your trach remove some tissue from the insight and my last two questions
> what kind of trach you have and what sites and my last question how long
> you have been with a trach thank you and God bless you
>
>
>

Re: [QUAD-L] Wondering

[Jim Lubin]

I found this page with contact info depending on what issue you have
https://hhs.texas.gov/services/health/medicaid-chip/about-medicaid-chip/medicaid-chip-contact-us

some have online forms instead of email contacts.

On Sun, Feb 9, 2020 at 6:41 PM  wrote:

> Hello my friends I am from Texas do you guys know if there's some way that
> I could get Medicaid email address any ideas will be appreciated thank you
> and God bless you
>

Re: [QUAD-L] I would like to say to everyone a you

[Jim Lubin]

I also want to wish everyone a healthy new year! Take care and God Bless!


On Mon, Dec 30, 2019 at 4:24 PM  wrote:

> Hello my friends the ear is almost over tomorrow midnight is going to be a
> you ear beside we don't know each other I want to wish you every one of you
> and to your family a happy new year and a safe one hopefully this ear
> coming up is a better year for you and your family I will be praying for
> you for your wish that will come through also very healthy ear you have
> these here coming up I know it is hard to stay away from the hospital
> nobody likes to be in the hospital but our condition doesn't help and we
> don't have too much choices in life a course some of us are age doesn't
> help were not getting any younger some of us keep on holding on I know
> being a quadriplegic is not simple I will be praying everyone of you that
> these ear coming up is a better year for you and your family I do
> understand everyone a you and takes another disabled person to understand a
> disabled person also I will be praying for everyone to you that Jesus will
> open that right door for your future and better things and God bless you
> every one of you and to your family and happy new year again take care
>
>
>

[QUAD-L] Re: HELP Spasms will not stop

[Jim Lubin]

I take baclofen 20mg x 4 and dantrolene 25mg x 3. both are used to treat
muscle spasticity

On Fri, Nov 29, 2019 at 9:11 AM DAVID LEWIS  wrote:

> How  much baclofen mg can u up a day.?
>
> I already take 20 mg 3 times a day
> thanks
>

[QUAD-L] cell phone holder

[Jim Lubin]

I got a new cell phone holder that claps to my over-the-bed table. This one
is for phones 4in to 6.3in.
https://smile.amazon.com/dp/B07P2VK93P/

The old holder turned out was too tight a grip on my phone that it actually
split the back right off my phone!

Re: [QUAD-L] alexa and others

[Jim Lubin]

Switchbot mini hub will send infrared signals
https://www.switch-bot.com/hub-mini

What do you mean screen mirroring? From Windows 10 to TV? If that is what
you want then any Roku can do that.

On Wed, Oct 30, 2019 at 9:48 AM Glenn A Henry  wrote:

> Good afternoon,
> I have been playing around with some of the TV controllers, mostly fire
> cube and fire TV stick. So far I haven't found one that will do what I want
> to do. Anybody have any suggestions?
>
> I want to be able to:
>
> turn the TV on and off
> adjust the volume
> switch from the cable box to HDMI
> screen mirroring
> Any suggestions?
>
>
>

Re: [QUAD-L] SSI disability

[Jim Lubin]

Took awhile to find it. https://www.ssa.gov/ssi/text-income-ussi.htm in the
example calculations it says gross income.

On Tue, Oct 22, 2019 at 8:19 AM Todd Daugherty 
wrote:

> Hi everyone.  I've passed my 30yr anniversary and am considering
> transitioning from working full time to SSI disability.  It says that in
> addition to benefits, I can make between 880 and 1220/mo and still receive
> benefits but I cannot find anywhere if that is net or gross.
>
> Any idea on this? Thanks
>
> Todd C6 inc '89
>

Re: [QUAD-L] Wondering

[Jim Lubin]

I use an onscreen remote on my Windows 10 laptop. More information here
https://at-eadl.blogspot.com/2019/07/infrared-ir-remote-from-windows-laptop.html


My cable company DVR (Comcast Xfinity X1) doesn't work with infrared
remote, so for that I use a web app

https://at-eadl.blogspot.com/2019/07/comcast-xfinity-x1-control-for-people.html



On Mon, Sep 23, 2019 at 4:09 PM  wrote:

> Hello guys I was wondering if you are paralyzed from the neck down how do
> you control your television house phone and window unit from your bed thank
> you and God bless you
>
>
>

Re: [QUAD-L] how is Greg?

[Jim Lubin]

Greg just posted on his facebook page. He's home, gradually improving.
Doing good.

On Wed, Jul 10, 2019 at 2:31 PM Judy Meredith 
wrote:

> I am sorry to hear about Bobbie and Greg. I too am battling a severe sore.
> I don't post much lately, however they both have touched my life.
>
> Meredith
>
> On Sun, Jun 16, 2019, 12:12 PM Lori Michaelson 
> wrote:
>
>> I read most of this from Greg's mom on Facebook. But nothing was said
>> about what he went in there for (which was deadly serious itself) -
>> terrible infection that went right down to the bone from the wound he had
>> that was so very deep. A wound that bad has to be seriously addressed as we
>> all know. I know he was going to see a wound doctor but not sure that he
>> was staying off of it as much as he should have. Anyway, I am wondering how
>> that is because that infection that is body is trying to fight along with
>> everything else...  :-(
>>
>> *Light and thoughts* (that Greg's mother requested) going to him and his
>> family!
>>
>> On Sat, Jun 15, 2019 at 1:04 PM Jim Lubin  wrote:
>>
>>> I contacted Greg's mom. She told Greg the quadlist was asking how he is
>>> doing. She said Greg wanted me to pass this along.
>>> Thanks for everyone's concern. In a nutshell...
>>> His kidney biopsy reveals that they have completely shut down and no
>>> meds can reverse it. So he will probably need dialysis 3 times a week for
>>> life, but there is always hope that things will reverse. They continually
>>> need to drain fluid from around his lungs. Almost 2 liters on two different
>>> occasions and almost one on another. They recently inserted a semi
>>> permanent valve to make it easier and less invasive to drain fluid if
>>> needed. He  might need to come home with a trach. The lung dr seems to
>>> think so, but might only need to be hooked up to a respirator at night. He
>>> looks better today. We don't know how long he will be in hospital.
>>>
>>> On Sat, Jun 15, 2019 at 9:58 AM Eric Olson  wrote:
>>>
>>>> I was also wondering how he's doing
>>>>
>>>> On Sat, Jun 15, 2019 at 10:40 AM Shirley Bell  wrote:
>>>>
>>>>> Does anyone know how Greg is doing??
>>>>>
>>>>
>>
>> --
>> "Petting, scratching and cuddling a dog could be soothing to the mind and
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean
>> Koontz
>>
>

[QUAD-L] get a free google mini (free shipping too!)

[Jim Lubin]

https://googlenest.reevefoundation.org/

Re: [QUAD-L] Any you guys have a trait

[Jim Lubin]

On Mon, Jul 22, 2019 at 10:04 PM  wrote:

> Hello I will like to ask you several questions any you guys are paralyze
> from the neck down and also connected to a respirator
>
> my second question how often you change your trait
>
every 2 months

my third question does your trait is couplets they have to put air in the
> balloon
>
cuffless trach so no balloon

my fourth question does your trait has a in your cannula
>
yes

my fifth question have you had your trait sense your accident happened
>
30 years

number six question what kind of trait you have
>
Shiley 4CFS tracheostomy tube

number seven question are you able to talk very well or you whispered to a
> person
>
I think so. Most people can hear and understand me. I use an inline one-way
valve which helps with speaking. Alex echo can usually hear me if there is
little other noise in the room. Here is a video of me from a few years ago
https://youtu.be/zvsnCpXpook

> number eight question have you ever have surgery in your trait to remove a
> tissue insight your stoma or other surgery insight your throat
>
no

number nine question how often they clean your trait
>
clean around the outside of the trach daily but don't clean the inside of
the trach

my last question are you able to breathe on your own are you depend on the
> respirator hundred percent
>
completely dependent on respirator to breathe

Re: [QUAD-L] anniversary

[Jim Lubin]

I celebrate still being alive all those extra years.

On Thu, Jul 11, 2019 at 9:15 PM Dana Wray  wrote:

>  It’s good to hear from you again Glyan. Someone asked me the other day,
> why do we celebrate our anniversaries of being paralyzed? I think it is
> great do you make it another year and still be alive to enjoy life. What do
> you think? Dana C4-5 MVA 45 years on the 26th.
>  We all face a lot of obstacles to survive. I’m so sorry to hear about
> Bobby and Greg. I hate it when we lose one of our fellow members  and
> friends.Comfront their love ones and surround them with angels. Amen
>
> On Wed, Jul 10, 2019 at 5:12 PM Eric Olson  wrote:
>
>> I'm actually glad you posted.  May I ask what your disability is?  SCI?
>> If so, what level?  With all the bad news lately, something positive is
>> welcome
>>
>> On Wed, Jul 10, 2019 at 3:29 PM glenn henry  wrote:
>>
>>>
>>>  I wasn't going to post, but I guess I will. At this time 53 years ago I
>>> was in surgery. I think I made it, at least on your now. The last year has
>>> been very rough, but we keep plugging on.
>>>
>>> Why be able to post 54, we will see.
>>>
>>> Glenn Henry/ Pennsylvania
>>>
>>

[QUAD-L] Congress Finally Passes The Disability Integration Act (DIA) – Rolling Without Limits: Your mobility may be limited. Your voice, boundless.

[Jim Lubin]

https://www.transfermaster.com/blog/view-post/Congress-Finally-Passes-The-Disability-Integration-Act-DIA

Congress Finally Passes The Disability Integration Act (DIA)

Disability rights advocates explained that only the passage of the Disability
Integration Act (DIA)

can
guarantee enough protection for Americans with disabilities.

Over the past 3 years, disability rights advocates have lobbied for the
passage of the Disability Integration Act (DIA)

 by Congress
.
The DIA

was
finally passed by Congress in June 2019. The act was first introduced into
Congress

by
Sen. Chuck Schumer (D-NY) and into the House by Representatives

Jim
Sensenbrenner (R-WI).

People with disabilities who need long-term services and supports are still
forced to live in institutions and are losing their civil rights. The act
is aimed at protecting the civil right of people with disabilities.
Although the provision of community-based services is the most
cost-effective way to support people with disabilities, institutional bias
remain within the Medicaid

system,
specifically where the federal government requires states to pay for
institutional care, and where coverage of most community-based services is
considered optional.

John Griffin, a member of the Independent Living Centre of South California

said,
"[The] Disability Integration Act (DIA) will help people with disabilities
across the United States to enjoy more independence and accessibility."

With the passage of the Disability Integration Act (DIA), people who are
eligible for long-term rehab services and supports would have the right to
live in their homes and receive these services, rather than live in
institutions. In other words, people with disabilities will have the legal
right to decide how they receive services and support as well as where they
are provided (i.e., in their home or institutional setting).

The DIA would also require states to increase affordable and accessible
housing for people with disabilities.

Shawn Paul, a member of United Spinal

said,
"The DIA will help governors in paying more attention to accessibility
across their various states."

The Disability Integration Act (DIA) will help secure Americans with
disabilities and help strengthen the Medicaid

 and Medicare

.

Re: [QUAD-L] anniversary

[Jim Lubin]

Wow 53 years. Enjoy your life!

On Wed, Jul 10, 2019 at 1:29 PM glenn henry  wrote:

>
>  I wasn't going to post, but I guess I will. At this time 53 years ago I
> was in surgery. I think I made it, at least on your now. The last year has
> been very rough, but we keep plugging on.
>
> Why be able to post 54, we will see.
>
> Glenn Henry/ Pennsylvania
>

Re: [QUAD-L] Concerns about fellow quads...

[Jim Lubin]

Well this sucks. I looked up Bobbie on facebook. Messages from her family
she passed away April 12. Here is her obituary
https://www.legacy.com/obituaries/dailyrecord/obituary.aspx?n=barbara-jean-humphreys-bobbie=192614187;

Take care all.

On Mon, Jul 8, 2019 at 6:13 PM Danny Hearn  wrote:

> Yes, I Think We all wonder about each other, especially when some are sick
> or in hospital, I joined this list of Jim's back in 1998years back this
> list was so busy, almost too busy to keep up with, lolSo many of us
> are getting older and so many of us have passed---( remember some time back
> we were listing names of many that used to be on here that are now gone )
> Dave from Arizona- Dave from Texas- Jimmy Who ran the White Donkey Tracks
> Flyer- Houston who was from Indiana I think...plus many more !   There
> don't seem to be a lot of new comers the last few years, Maybe the newer
> folks are on another type quad list??
> Dan Hearn C-6  Car Accident  August 3rd 1997. ***
> On Monday, July 8, 2019, 04:18:07 PM PDT, Lori Michaelson <
> lorilivin...@gmail.com> wrote:
>
>
> Yes, I have certainly been wondering about Greg (who lives just 90 minutes
> north of me or so), Steve Oldaker (who I have remained great friends with
> for years and knew that he had an infection that went septic and had to be
> in the hospital and then had to be on a ventilator and going into a rehab
> facility for quadriplegics trying to get off ventilators) and Bobbie
> Humphrey's who I have e-mailed twice with no response.
>
> It's now been since last September that I have heard from Steve. The last
> information I got was from Bobbie who gave me the latest update of him
> being in a rehab  facility but that has been a while now. I called Steve's
> home today which I have been meaning to do for a long time now but I had to
> leave a message. His parents take care of him for the most part.
>
> I don't want this to be a gossip type e-mail but I am truly concerned
> about Greg, Steve and Bobbie (who have all had bad wounds) now. So I guess
> if they want us to know (or their family members) they will let us.
>
> We lost Billy Kimberlin (from Florida) awhile back and the Quad list has
> been pretty quiet. I am just busy keeping alive in trying to keep up with
> bills which is getting tougher and tougher.
>
> Hope everyone else is having a good or fair summer wherever you are!
>
> ~Lori
>
> On Mon, Jul 8, 2019 at 2:09 PM Jim Lubin  wrote:
>
> I haven't heard anything more yet. I messaged his mom on facebook.
>
> On Mon, Jul 8, 2019 at 2:02 PM Eric Olson  wrote:
>
> I just asked Jim the same thing.  I guess he's on everyone's minds.
>
>
> <https://www.avast.com/sig-email?utm_medium=email_source=link_campaign=sig-email_content=webmail_term=icon>
>  Virus-free.
> www.avast.com
> <https://www.avast.com/sig-email?utm_medium=email_source=link_campaign=sig-email_content=webmail_term=link>
> <#m_-148954721556527444_m_5873268636525245425_m_-7262750724732327089_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Mon, Jul 8, 2019 at 3:45 PM Don Price  wrote:
>
> Does anyone have an update on Greg?
>
> Thanks,
> Don
>
>
>
> --
> “Petting, scratching, and cuddling a dog could be as soothing to the mind
> and heart as deep meditation and almost as good for the soul as prayer.”
> ― Dean Koontz
>

Re: [QUAD-L] How is Greg?

[Jim Lubin]

I haven't heard anything more yet. I messaged his mom on facebook.

On Mon, Jul 8, 2019 at 2:02 PM Eric Olson  wrote:

> I just asked Jim the same thing.  I guess he's on everyone's minds.
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_-7262750724732327089_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Mon, Jul 8, 2019 at 3:45 PM Don Price  wrote:
>
>> Does anyone have an update on Greg?
>>
>> Thanks,
>> Don
>>
>

[QUAD-L] Re: [QUAD-L] Watch This—You Can Control Xfinity X1 with Just Your Eyes

[Jim Lubin]

it's a web-based remote. if you Xfinity X1 you can use it here
https://accrem.apps.cloud.comcast.net/


On Mon, Jun 17, 2019 at 11:52 AM Lori Michaelson 
wrote:

> If I enjoyed watching TV then I might be interested into getting it
> (however you get it and the process at  of getting it) but I don't care for
> TV.
>
> On Mon, Jun 17, 2019 at 10:43 AM Jim Lubin  wrote:
>
>>
>> https://www.tomsguide.com/us/comcast-xfinity-x1-eye-control,news-30371.html
>>
>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

[QUAD-L] Watch This—You Can Control Xfinity X1 with Just Your Eyes

[Jim Lubin]

https://www.tomsguide.com/us/comcast-xfinity-x1-eye-control,news-30371.html

Re: [QUAD-L] how is Greg?

[Jim Lubin]

Greg's mom just sent me this.

Greg was just intubated and will be under sedation for the next few days,
so if anyone on the quad list was planning to visit, would you let them
know not for the next few days. Ill fill u in on everything later. Thanks.

On Sun, Jun 16, 2019 at 12:12 PM Lori Michaelson 
wrote:

> I read most of this from Greg's mom on Facebook. But nothing was said
> about what he went in there for (which was deadly serious itself) -
> terrible infection that went right down to the bone from the wound he had
> that was so very deep. A wound that bad has to be seriously addressed as we
> all know. I know he was going to see a wound doctor but not sure that he
> was staying off of it as much as he should have. Anyway, I am wondering how
> that is because that infection that is body is trying to fight along with
> everything else...  :-(
>
> *Light and thoughts* (that Greg's mother requested) going to him and his
> family!
>
> On Sat, Jun 15, 2019 at 1:04 PM Jim Lubin  wrote:
>
>> I contacted Greg's mom. She told Greg the quadlist was asking how he is
>> doing. She said Greg wanted me to pass this along.
>> Thanks for everyone's concern. In a nutshell...
>> His kidney biopsy reveals that they have completely shut down and no meds
>> can reverse it. So he will probably need dialysis 3 times a week for life,
>> but there is always hope that things will reverse. They continually need to
>> drain fluid from around his lungs. Almost 2 liters on two different
>> occasions and almost one on another. They recently inserted a semi
>> permanent valve to make it easier and less invasive to drain fluid if
>> needed. He  might need to come home with a trach. The lung dr seems to
>> think so, but might only need to be hooked up to a respirator at night. He
>> looks better today. We don't know how long he will be in hospital.
>>
>> On Sat, Jun 15, 2019 at 9:58 AM Eric Olson  wrote:
>>
>>> I was also wondering how he's doing
>>>
>>> On Sat, Jun 15, 2019 at 10:40 AM Shirley Bell  wrote:
>>>
>>>> Does anyone know how Greg is doing??
>>>>
>>>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] how is Greg?

[Jim Lubin]

I contacted Greg's mom. She told Greg the quadlist was asking how he is
doing. She said Greg wanted me to pass this along.
Thanks for everyone's concern. In a nutshell...
His kidney biopsy reveals that they have completely shut down and no meds
can reverse it. So he will probably need dialysis 3 times a week for life,
but there is always hope that things will reverse. They continually need to
drain fluid from around his lungs. Almost 2 liters on two different
occasions and almost one on another. They recently inserted a semi
permanent valve to make it easier and less invasive to drain fluid if
needed. He  might need to come home with a trach. The lung dr seems to
think so, but might only need to be hooked up to a respirator at night. He
looks better today. We don't know how long he will be in hospital.

On Sat, Jun 15, 2019 at 9:58 AM Eric Olson  wrote:

> I was also wondering how he's doing
>
> On Sat, Jun 15, 2019 at 10:40 AM Shirley Bell  wrote:
>
>> Does anyone know how Greg is doing??
>>
>

Re: [QUAD-L] Test Message

[Jim Lubin]

I'm still here :-)

On Mon, Jun 10, 2019 at 12:22 PM  wrote:

> Just checking to see if anyone in the Quad list is there.  I haven’t
> received anything lately.  Thank you.
>

Re: [QUAD-L] Sweating

[Jim Lubin]

Quad-list, I just saw this message on facebook from Greg's mom:

Just a quick note to let all of you wonderful friends of Greg know that he
is currently in intensive care due to severe complications from his bone
infection. Please send him good thoughts and prayers.
Joanne, Greg's mom

Re: [QUAD-L] I have a new email address debradew1957@Gmail, & I are there any groups for us on Facebook? TY

[Jim Lubin]

https://www.facebook.com/groups/quadlist/
https://www.facebook.com/quadlist/

another group I am on is https://www.facebook.com/groups/SCPSUSA/


On Tue, May 28, 2019 at 7:04 PM DEBRA DEW  wrote:

> I have a new email address debradew1957@Gmail, & I are there any groups
> for us on Facebook? TY
> –– – –Debra Dew Scruggs – – –
>
> formerly homeschooling mom of 9 & a 99 with wings clipped , Maule N148DP
> pilot cloud dancer, currently tetraplegic from vaccinations in nursing home
> hell 18 years. – S.C. Student 25 years. GRATEFUL THANKFUL BLESSED.–
>
> NO GREATER WORDS COULD one hear then "well-done, thou good and faithful
> servant.", From the creator of the universe.
> That should be the goal of every believer that JESUS IS THE LIVING WORD!
>
> Experience is the knowledge which enables you to recognize a mistake when
> you make it again and wisdom is derived from experience, and sadly
> experience comes from poor judgment, SO KISS THE PADDLE because an
> undisciplined child is an unloved child so as a child of God, appreciate
> the correction;  Pray your name be written in The Book of Life. That
> judgment last for eternity.
>

Re: [QUAD-L] Baclofen ?

[Jim Lubin]

I've on 20mg x 4/day for 30 years. I also take dantrolene 25mg x 3/day also
for muscle spasms.

On Fri, May 17, 2019 at 10:20 AM Eric Olson  wrote:

> I've been using baclofen since my injury 32 years ago.  I know I still
> need it because I've been hospitalized several times for GI issues and they
> hold all my meds to let my gut rest.  After a couple of days without
> baclofen, I start having a lot of spasms.  My body gets really jumpy even
> without being touched.
>
> On Fri, May 17, 2019 at 11:29 AM Danny Hearn  wrote:
>
>> I just got out of the hospital after about a 10 day stay..I went in
>> trying to find out what was causing dysreflexia and bad spasms in
>> legs,belly and back. They were clueless and just kept pumping me full of
>> tons of oral and IV antibiotics of all kinds thinking it must be a UTI
>> infection. All they did was cause me to get my bowels impacted from so much
>> antibioticsthat caused me a 3 day stay to turn into 10 days. I have
>> been home for 2 days now and all the Dysreflexia and Spasms are coming
>> back. I can't find the causethey did CT Scans and X-Rays but can't find
>> anything. I have been a C-6/7 Quad for over 21 Years but have never needed
>> Baclofen but starting to wonder how many of You use it and may that
>> help???  About the only thing I can think of other than what we have
>> checked is that I have a Syrinx in my spine, but most doctors don't want
>> nothing to do with that issue. I sure wish my life could just get back to
>> my normal Quad life without all this Dysreflexia and Spasms going on.  Dan
>> H***  St.Louis, Mo.
>>
>

[QUAD-L] Celebrating Life 30 years after Transverse Myelitis!

[Jim Lubin]

Today marks 30 years since I suddenly became paralyzed from the neck down
and dependent on a ventilator to breathe due to acute idiopathic transverse
myelitis. Feeling blessed to be in good health.

[QUAD-L] Universal Wireless WiFi Smart IR 2.4G Remote Control Hub with Alexa Google Home | eBay

[Jim Lubin]

https://www.ebay.com/itm/Universal-Wireless-WiFi-Smart-IR-2-4G-Remote-Control-Hub-with-Alexa-Google-Home/283405228921?ssPageName=STRK%3AMEBIDX%3AIT&_trksid=p2057872.m2749.l2649

[QUAD-L] Re: NCIL Advocacy re EVV.doc

[Jim Lubin]

National Council on Independent Living

Electronic Visit Verification (EVV) Task Force Statement of Principles and
Goals

Electronic Visit Verification (EVV) requirements were passed into federal
law as part of the 21st Century Cures Act (‘Cures Act’) of 2016. The Cures
Act requires the implementation of EVV to monitor all personal care
services (PCS) and home health care services (HHCS) funded by Medicaid.

States were initially tasked to ensure that all state Medicaid and waiver
PCS provided in the home comply with EVV guidelines by January 2019. Recent
federal legislation extended this deadline to January 2020. Because many
people with disabilities rely on these services to live independently in
our homes and communities, the disability community is negatively impacted
in a variety of ways by EVV policies and mandates.

The National Council on Independent Living (NCIL) believes that people with
disabilities have the right to be integrated in society and control our own
lives. EVV systems undermine the intent and integrity of the Independent
Living Model and personal care services, including Consumer-Directed
Services (CDS). EVV systems threaten the privacy of countless Americans
with disabilities who would otherwise be free of intrusive governmental
monitoring.

NCIL advocates for the leadership of people with disabilities in all policy
discussions and decisions that impact our lives. The expertise and active
engagement of people with disabilities is critical in all EVV development,
implementation, and evaluation.

download more information here
https://drive.google.com/file/d/0Bzc-_TWzrhSadVFGXzJrV3BjTGYzSFdUMk9wNk5aTlNmUlNz/view?usp=sharing

On Fri, Apr 12, 2019 at 10:50 PM Dana Wray  wrote:

>
>
>
>
> Sent from my iPad

[QUAD-L] Electronic Visit Verification (EVV) Is Here – Disability Visibility Project

[Jim Lubin]

https://disabilityvisibilityproject.com/2019/03/24/electronic-visit-verification-evv-is-here/

[QUAD-L] Robotic finger!

[Jim Lubin]

I found I was asking my caregivers several times each day to press the
buttons on my bed mattress controller at the foot of my bed, either
"static" or "alternate". I found a way I can now "press" the buttons myself
from a phone app and SwitchBot. It's a little robotic finger that presses
buttons! It's been working great. The SwitchBot Hub Plus can also send IR
signals to control a TV or other things. Very handy.

https://www.switch-bot.com/hub-plus

here's a video review on youtube https://youtu.be/8b5aWO5sBoE

I remember awhile back someone asking for a way to press the power button
on a laptop. This should work to do that using an Amazon Echo or Google
Home.

[QUAD-L] Support S.651 ABLE Age Adjustment Act

[Jim Lubin]

Support S.651 ABLE Age Adjustment Act
United Spinal supports the ABLE Age Adjustment Act, S.651, which would
increase the age of onset of disability from up to the age of 26 to up to
the age of 46, adding millions of new potential ABLE account holders into
the pool of eligible individuals. ABLE accounts are tax-advantaged savings
accounts for individuals with disabilities and their families which can
cover disability-related expenses such as education, housing,
transportation, employment support and other support expenses.

https://www.unitedspinal.org/advocacy-action/?vvsrc=%2fcampaigns%2f60168%2frespond

[QUAD-L] Quiet Victory: The Charlie Wedemeyer Story (TV Movie 1988) - IMDb

[Jim Lubin]

https://www.imdb.com/title/tt0095945/

Just saw this on Netflix. True story. He has ALS.

[QUAD-L] Senators Look To Expand ABLE Program - Disability Scoop

[Jim Lubin]

https://www.disabilityscoop.com/2019/03/06/senators-expand-able-program/26125/

Legislation introduced this week by a bipartisan group of senators would
raise the eligibility age for ABLE accounts.

Under the plan known as the ABLE Age Adjustment Act, S. 651, individuals
with disabilities that present by age 46 could open the accounts. Current
law limits ABLE accounts to those with disabilities that onset prior to age
26.

[QUAD-L] Reeve Connect

[Jim Lubin]

a new support community
https://www.christopherreeve.org/your-community

Re: [QUAD-L] "He won't get far on foot" movie

[Jim Lubin]

It's now free on Prime Video
https://www.amazon.com/dp/B0797G6XK1/

On Tue, Jan 1, 2019 at 10:04 AM Jim Lubin  wrote:

> This is what I found:
>
> John Callahan, a quadriplegic, alcoholic cartoonist whose work in
> newspapers and magazines made irreverent, impolitic sport of people with
> disabilities and diseases and those who would pity and condescend to them,
> died on Saturday in Portland, Ore. He was 59 and lived in Portland.
>
> The causes were complications of quadriplegia and respiratory problems,
> his brother Tom said
>
> https://www.nytimes.com/2010/07/28/arts/design/28callahan.html
>
>
> On Mon, Dec 31, 2018 at 7:39 PM Bobbie Humphreys <
> bobbiehumphre...@gmail.com> wrote:
>
>> Last night I watched "He won't get far on foot" on Amazon prime video
>> $1.99
>> I liked it. He was in a circle bed like I was. I was also on a Stryker
>> frame bed too.
>> I wish they mentioned what he passed away from, does anyone know?
>> Definitely worth renting.
>> Bobbie
>
>

Re: [QUAD-L] PULST/DNR

[Jim Lubin]

Thanks for that information.
I found a national site that links to each state
https://polst.org/programs-in-your-state/


On Thu, Feb 7, 2019 at 2:35 PM Bobbie Humphreys 
wrote:

> A PULST/DNR is a single piece of paper that you would show first
> responders or in the hospital to show, in writing what your wishes are.
> It must be signed by the patient and physician, any physician. It does not
> need to be notarized
>
> You can get the form from your Doctor
>
> The POLST/DNR forms are different in every state
>
> Bobbie
>
> Peace on Earth

Re: [QUAD-L] Web Hosting

[Jim Lubin]

There are a lot of options available now for people to make a website using
a website builder. The website builder on these sites have templates you
choice and some are drag and drop. So it's not complicated as it use to be.
It looks like some offer a free option (with ads) to try it before you pay
for a premium plan.

Here are a few I found
https://www.dreamhost.com/website-builder/   (I use another plan on
Dreamhost for my site)
https://www.weebly.com/   (I made a free site for business here, it was
easy to use)
https://www.godaddy.com/websites/website-builder   (I've made a few sites
at GoDaddy but have not tried the web builder)
https://www.wix.com/(seen it advertised but I have no personal
experience)

On Sat, Feb 2, 2019 at 6:24 AM Greg  wrote:

> Anyone have their own web page, where you own the domain and have email
> with it?
>
> Where is a good place to host it? GoDaddy / Wik ?
> Is it very complicated?
>
> Thx, Greg
>

Re: [QUAD-L] Viewers Choice surveys

[Jim Lubin]

$5 = 100 points
$10 = 200 points
$25 = 500 points
$50 = 1000 points
$100 = 2000 points

surveys are different amounts. Sometimes after answering a few questions,
it says I didn't qualify for that particular one.

On Tue, Jan 22, 2019 at 1:05 PM Greg  wrote:

> How may surveys do you need to do for $50?
> Greg
>
> On 1/19/2019 12:43 PM, Jim Lubin wrote:
>
> Anyone interested in doing surveys for points to redeem for gift cards?
> This one is for  Bravo, USA, E!, SYFY and Oxygen. Last year I got $50 in
> Amazon gift cards.
>
> Let me know if you are interested and I can submit your email address. If
> you join before Feb 14, 2019 I will receive 50 points per person (up to 250
> points).
>
>
>

Re: [QUAD-L] Viewers Choice surveys

[Jim Lubin]

Don't remember. I redeemed points twice for $25 gift cards.

On Tue, Jan 22, 2019 at 1:05 PM Greg  wrote:

> How may surveys do you need to do for $50?
> Greg
>
> On 1/19/2019 12:43 PM, Jim Lubin wrote:
>
> Anyone interested in doing surveys for points to redeem for gift cards?
> This one is for  Bravo, USA, E!, SYFY and Oxygen. Last year I got $50 in
> Amazon gift cards.
>
> Let me know if you are interested and I can submit your email address. If
> you join before Feb 14, 2019 I will receive 50 points per person (up to 250
> points).
>
>
>

Re: [QUAD-L] Wondering quadriplegic that is paralyzed from the neck down

[Jim Lubin]

>From my bed I control most things from programs on my computer.
TV: I have a program called IRCommand2 and an IR sender/receiver that plugs
into a usb. This lets me operate anything that has IR. More details and
links here:
https://at-eadl.blogspot.com/2018/04/control-motorola-dvr-from-windows-pc.html

I have Comcast Xfinity X1 for my cable TV which does not work with IR, so I
have an Android virtual machine with the X1 Android app.

Lights: Smart wifi light bulbs I can control from a Windows app or by voice
with Amazon Echo
https://at-eadl.blogspot.com/2018/04/amazon-echo-tv-lights.html

Fan: table fan plugged into a smart plug that can be turned on/off from an
Android app or voice with Amazon Echo

Android phone: I use a program called Vysor that lets me control my Android
phone from my laptop (plugged into usb). So, if there is an Android app on
my phone I can use it from my Windows laptop.



On Sun, Jan 20, 2019 at 7:51 AM Ismael Cavazos 
wrote:

> Hello you guys that are paradise from the neck down I have a question for
> you guys from your bed how do you control your television and your window
> unit and the phone for your house and also what other things you are able
> to do from your bed thank you and God bless you
>
>
>

[QUAD-L] Another survey for points

[Jim Lubin]

This is another survey I have been doing if anyone is interested. These are
on a variety of topics: politics, entertainment, brand regulation. You need
a lot more points to get $50 or $100. Most surveys are 500 to 1000 points.
I like giving my opinion on various topics. I figure Google and Facebook
know a lot about my likes by tracking me everywhere I visit anyway so, by
doing the surveys I might as well get something out of it.

Using my referral link I will receive 2000 points after you complete 4
surveys.
https://today.yougov.com/refer/1wJjOMam0CiwQd6qYgilug/

[QUAD-L] Viewers Choice surveys

[Jim Lubin]

Anyone interested in doing surveys for points to redeem for gift cards?
This one is for  Bravo, USA, E!, SYFY and Oxygen. Last year I got $50 in
Amazon gift cards.

Let me know if you are interested and I can submit your email address. If
you join before Feb 14, 2019 I will receive 50 points per person (up to 250
points).

Re: [QUAD-L] Quad Movies

[Jim Lubin]

I'll probably watch it when it comes to video. It looks like a bad American
remake of The Intouchables which was excellent!

On Wed, Jan 9, 2019 at 6:15 PM Rose Chase  wrote:

> I am going to see Upside next week. Hopeffully it is good and worth
> seeing.  Rose
>
> On Tue, Dec 18, 2018 at 3:23 PM Jim Lubin  wrote:
>
>> Looks like the quad movies, are:
>>
>> * Inspiring biographies
>> * rich person biography
>> * fictional rich person
>> * fictional comedy
>>
>>
>> On Tue, Dec 18, 2018 at 12:05 PM Jim Lubin  wrote:
>>
>>> Updated my list
>>>
>>> https://www.imdb.com/list/ls051082586/?sort=list_order,desc_dt==detail=1
>>>
>>>
>>> On Tue, Dec 18, 2018 at 8:43 AM Greg  wrote:
>>>
>>>> The quads in movies always seem rich, not always, but often.
>>>> Though I guess a movie about me would be boring.
>>>> Greg
>>>>
>>>

Re: [QUAD-L] What would you say & do?

[Jim Lubin]

I read my mom your message, she said, "what an ignrant bitch!"

On Sat, Jan 5, 2019 at 2:20 PM Bobbie Humphreys 
wrote:

> I had a nurse, 3rd time here, come Tuesday.
> She asked me
> "How long have you been a quad"?
> I told her  46 years and she said as she looked to the ceiling  ... very
> loudly
> "I thank God everyday that I'm not you"!
>
> What would have said and done?
> Bobbie

Re: [QUAD-L] Wondering

[Jim Lubin]

The device I use, Adap2U, is no longer available. There are some other
options available but I am so use to the customizations I use with this
device that I have not changed, but the other one is a good backup system
for me.

Check my page here for more information.
https://www.makoa.org/jlubin/morsecode.htm

Yes, I use a sip for a dot and puff for dash. No, I am not a ham radio
operator. I learned morse code by pattern not by sound when I was in rehab
in 1989.

If you are interested in using morse code for computer access I recommend
either the TandemMaster <http://www.tandemmaster.org/home.html> or the
Jouse3 <
http://www.compusult.net/web/guest/assistive-technology/our-at-products/jouse3
>



On Fri, Jan 4, 2019 at 9:20 AM Greg  wrote:

> Hi Jim.
>
> May I ask where you get the sip and puff switches you use to send Morse
> code? Also, do you sip for a dot and puff for a dash (or vice versa) or do
> you straight key it? Finally, are you a ham radio operator?
>
> Thanks, Greg
>
> On Thu, Jan 3, 2019 at 2:42 PM Jim Lubin  wrote:
>
>> Guess it depends on what method you are using to access the computer:
>> voice, switch, mouth joystick. I think most methods can be used with either
>> Apple Mac or Microsoft Windows.
>>
>> The Morse code device I use is hardware so it works with any computer
>> with an usb port, it doesn't matter what operating system it has (Windows,
>> Mac, Linux, Android). I can use it with no voice and no hand or head
>> movement. I sip and puff morse code into an air tube.
>>
>> Mouth joystick is another hardware option that connects to a usb port. It
>> requires some head movement but enables you to move a mouse around.
>>
>> On Thu, Jan 3, 2019 at 11:14 AM Ismael Cavazos 
>> wrote:
>>
>>> Besides the apple computer what other computer model do you all
>>> recommend for a person paralyzed from the neck down.? Thank you and God
>>> bless you
>>>
>>>
>>>
>>

Re: [QUAD-L] Wondering

[Jim Lubin]

Guess it depends on what method you are using to access the computer:
voice, switch, mouth joystick. I think most methods can be used with either
Apple Mac or Microsoft Windows.

The Morse code device I use is hardware so it works with any computer with
an usb port, it doesn't matter what operating system it has (Windows, Mac,
Linux, Android). I can use it with no voice and no hand or head movement. I
sip and puff morse code into an air tube.

Mouth joystick is another hardware option that connects to a usb port. It
requires some head movement but enables you to move a mouse around.

On Thu, Jan 3, 2019 at 11:14 AM Ismael Cavazos 
wrote:

> Besides the apple computer what other computer model do you all recommend
> for a person paralyzed from the neck down.? Thank you and God bless you
>
>
>

Re: [QUAD-L] Click Lock

[Jim Lubin]

Try this program
Point-N-Click is a FREE stand-alone on-screen virtual mouse designed for
anyone with a disability that makes it difficult or impossible to click a
physical computer mouse. As long as they can move a mouse, trackball or
other pointing device, they can send mouse clicks to virtually any Windows
application or DOS application that can run within a window and even many
that are full screen.

http://polital.com/pnc/

On Wed, Jan 2, 2019 at 7:10 AM Greg  wrote:

> I use ClickLock a lot. As I mentioned, it just stopped working. At least
> when using my laptop's Touchpad. It just stopped. But yet, I plugged in a
> mouse and it works fine.
>
> I tried changing Touchpad setting, set back to Default. Still, not working
> with the Touchpad.
>
> Frustrating, I use it a lot. All the other StickyKey stuff still works
> great.
>
> Greg
>

Re: [QUAD-L] "He won't get far on foot" movie

[Jim Lubin]

This is what I found:

John Callahan, a quadriplegic, alcoholic cartoonist whose work in
newspapers and magazines made irreverent, impolitic sport of people with
disabilities and diseases and those who would pity and condescend to them,
died on Saturday in Portland, Ore. He was 59 and lived in Portland.

The causes were complications of quadriplegia and respiratory problems, his
brother Tom said

https://www.nytimes.com/2010/07/28/arts/design/28callahan.html


On Mon, Dec 31, 2018 at 7:39 PM Bobbie Humphreys 
wrote:

> Last night I watched "He won't get far on foot" on Amazon prime video $1.99
> I liked it. He was in a circle bed like I was. I was also on a Stryker
> frame bed too.
> I wish they mentioned what he passed away from, does anyone know?
> Definitely worth renting.
> Bobbie

Re: [QUAD-L] Don't Worry, He Won't Get Far on Foot (2018) - IMDb

[Jim Lubin]

I rented it on Prime Video for $2.
It was good. I had heard about him but did not know his story.


On Sat, Dec 29, 2018 at 2:29 PM Bobbie Humphreys 
wrote:

> I have been waiting for this movie to come out for many, many years!
> Bobbie
>
> On Dec 29, 2018, at 5:24 PM, Jim Lubin  wrote:
>
> https://www.imdb.com/title/tt6288124/?ref_=ttls_li_tt
>
> based on the quad cartoonist, John Callahan
>
>

[QUAD-L] Don't Worry, He Won't Get Far on Foot (2018) - IMDb

[Jim Lubin]

https://www.imdb.com/title/tt6288124/?ref_=ttls_li_tt

based on the quad cartoonist, John Callahan

Re: [QUAD-L] Oldest living Quads

[Jim Lubin]

Some of the quads in this group are the longest living that I have seen.
Maybe it's the good company. 

Merry Christmas

On Wed, Dec 26, 2018 at 1:15 PM Bobbie Humphreys 
wrote:

> Depends on a lot of factors
> I ca feel myself dying, I'm at 46 years
>
> Merry Christmas 
> Bobbie
>
> On Dec 26, 2018, at 1:48 PM, Shirley Bell  wrote:
>
> Hi Guys, Merry Christmas!! kinda late. My family has me dead and buried
> before long!  Made me mad. I am 59 been a quad 41 yrs. Are there any stats
> on life expectancy of us? thanks
>
>

Re: [QUAD-L] Wondering

[Jim Lubin]

not affected
https://www.businessinsider.com/government-shutdown-2018-social-security-checks-still-paid-2018-1


On Wed, Dec 26, 2018 at 3:13 AM Ismael Cavazos 
wrote:

> Hey guys do you know if on the government shutdown if is going to affect
> our disability check any you guys heard anything thank you and God bless
> you have a nice day
>

Re: [QUAD-L] Strange Question

[Jim Lubin]

Four or Five times all due to ventilator problems (mechanical or tube
disconnects when no one was nearby)

On Thu, Dec 20, 2018 at 5:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>

Re: [QUAD-L] Quad Movies

[Jim Lubin]

Looks like the quad movies, are:

* Inspiring biographies
* rich person biography
* fictional rich person
* fictional comedy


On Tue, Dec 18, 2018 at 12:05 PM Jim Lubin  wrote:

> Updated my list
>
> https://www.imdb.com/list/ls051082586/?sort=list_order,desc_dt==detail=1
>
>
> On Tue, Dec 18, 2018 at 8:43 AM Greg  wrote:
>
>> The quads in movies always seem rich, not always, but often.
>> Though I guess a movie about me would be boring.
>> Greg
>>
>

Re: [QUAD-L] Quad Movies

[Jim Lubin]

Updated my list
https://www.imdb.com/list/ls051082586/?sort=list_order,desc_dt==detail=1


On Tue, Dec 18, 2018 at 8:43 AM Greg  wrote:

> The quads in movies always seem rich, not always, but often.
> Though I guess a movie about me would be boring.
> Greg
>

Re: [QUAD-L] Movie title?

[Jim Lubin]

I really enjoyed "Breathe". It's on prime video.

On Tue, Dec 18, 2018 at 10:56 AM Bobbie Humphreys <
bobbiehumphre...@gmail.com> wrote:

> Anybody ever see "Breathe"?
> Bobbie
>
> > On Dec 18, 2018, at 8:53 AM, Noel  wrote:
> >
> > The theory of everything
> >
> > On Mon, Dec 17, 2018 at 9:03 PM Bobbie Humphreys
> >  wrote:
> >>
> >> What is the name of the movie about Steven Hawkings?
> >> Bobbie
> >>
>

Re: [QUAD-L] TV control

[Jim Lubin]

Did some more research. You need 2 things: "Xbox One S" and the add-on
"Xbox One Kinect Sensor"

Use voice commands to control TV on Xbox One S
https://support.xbox.com/en-US/xbox-one/live-tv/control-tv-with-voice
As with all voice navigation on Xbox, using voice while watching TV in
OneGuide requires a compatible headset or Kinect—some way to input the
sound of your voice.

OneGuide and Live TV
https://support.xbox.com/en-US/browse/xbox-one/live-tv




On Wed, Nov 21, 2018 at 2:19 PM Jim Lubin  wrote:

> I saw this on Facebook demonstrating using a Xbox One to control the TV
> using voice only
>
> https://www.thetsf.org/
> https://www.facebook.com/148425091884505/videos/1387274131332922/
>
> Here is a video of me demonstrating how to control a television hands-free
> using Xbox one. Also a thank you letter from one of the TSF's recipients
> who received help getting this set up.
>
> "Tyler,
> I wanted to send you a quick thank you note for your help in finding some
> assistive technology that has given me a great deal of freedom. As being
> legally blind and a quadrapoligic, I spend a significant portion of my day
> listening to the television. For the last month or so, thanks to your
> recommendation, I have been using an Xbox to control my television. Where
> as before, I had to sit and endure the same channel for hours on end. A
> very frustrating experience indeed. With the Xbox voice control capability
> my situation has improved significantly. Being able to change or mute the
> volume, change chanels at a whim or even switching the TV on and off has
> enabled me to have much greater control over my environment. This is a
> significant improvement from the past where I was totally dependent on a
> caregiver to do these simple tasks. It was very frustrating when I had no
> caregiver and the chanel wasn't right, or I wanted to take a nap and the
> volume was too high. Having the freedom that your solution has afforded me
> has greatly improved my quality of life, and your assistance helping
> setting the system up is really appreciated.
> Thank you very much!"
>
> Ray Newby
>
> On Wed, Nov 21, 2018 at 1:13 PM Raymond Kelly  wrote:
>
>> I am looking for a device that will control a smart TV by voice. I
>> believe Apple has something out there but I can't figure out exactly what I
>> need. Does the device already know the IR codes for the different
>> televisions or do they have to be trained into the device? Any information
>> somebody could give me about this I would really appreciate.
>>
>> Thank you very much in advance.
>>
>> Raymond
>>
>

Re: [QUAD-L] TV control

[Jim Lubin]

I saw this on Facebook demonstrating using a Xbox One to control the TV
using voice only

https://www.thetsf.org/
https://www.facebook.com/148425091884505/videos/1387274131332922/

Here is a video of me demonstrating how to control a television hands-free
using Xbox one. Also a thank you letter from one of the TSF's recipients
who received help getting this set up.

"Tyler,
I wanted to send you a quick thank you note for your help in finding some
assistive technology that has given me a great deal of freedom. As being
legally blind and a quadrapoligic, I spend a significant portion of my day
listening to the television. For the last month or so, thanks to your
recommendation, I have been using an Xbox to control my television. Where
as before, I had to sit and endure the same channel for hours on end. A
very frustrating experience indeed. With the Xbox voice control capability
my situation has improved significantly. Being able to change or mute the
volume, change chanels at a whim or even switching the TV on and off has
enabled me to have much greater control over my environment. This is a
significant improvement from the past where I was totally dependent on a
caregiver to do these simple tasks. It was very frustrating when I had no
caregiver and the chanel wasn't right, or I wanted to take a nap and the
volume was too high. Having the freedom that your solution has afforded me
has greatly improved my quality of life, and your assistance helping
setting the system up is really appreciated.
Thank you very much!"

Ray Newby

On Wed, Nov 21, 2018 at 1:13 PM Raymond Kelly  wrote:

> I am looking for a device that will control a smart TV by voice. I believe
> Apple has something out there but I can't figure out exactly what I need.
> Does the device already know the IR codes for the different televisions or
> do they have to be trained into the device? Any information somebody could
> give me about this I would really appreciate.
>
> Thank you very much in advance.
>
> Raymond
>

[QUAD-L] Fwd: Very bad side effects taking when taking antibiotics for UTI

[Jim Lubin]

-- Forwarded message -
From: DAVID LEWIS 
Date: Wed, Nov 14, 2018 at 10:17 AM
Subject: Very bad side effects taking when taking antibiotics for UTI
To: Quad-list 


Hi
Ive been a quad since i was 18 from auto accident. Im 60 now.
I have had a Texas cath all my quad life.
Its a condom and glue that holds it externally.
Ive had some uti infections now and again .
1 have one now and my urology dr. put me on sulfameth/tmp 2 times a day for
7 days
i have taken antibiotics before but i never ever had such a bad reaction
effects from.this one. I was light headed felt sick to my stomach, could
not eat anything because of no appetite felt, felt anxiety, got blurry
vision and could not sleep from stomach upset.
i finished the week but i will NEVER EVER take that med again.
Can you guys please  tell me how you put up with uti antibiotics that you
had a hard time takings.
Also is there any ideas to prevent these bad side effects when taking uti
meds.
What if i had taken this in IV and it  would bypass stomach?
What do you guys think?
I hope some of your comments back can help me
Thank you sooo much.
Johhny

Re: [QUAD-L] Do you know of a good way to send and receive text messages ?

[Jim Lubin]

Google voice is what I've been using too. It's free.
https://voice.google.com/

After I got a smart phone I started using a program Pulse SMS. It works
better with pictures and group messages.
https://messenger.klinkerapps.com/overview/signup.html



On Fri, Nov 9, 2018 at 7:05 AM Noel  wrote:

> Dave, I use the Google hangouts app to send and receive text messages.
> When you sign up with Google voice, you receive a phone number that you can
> use not only for text messages but for free phone calls as well.
>
> On Fri, Nov 9, 2018 at 7:39 AM Dave Krehbiel 
> wrote:
>
>> I'm using Dragon NaturallySpeaking, and I do most of my communication by
>> email. But there are lots of people who prefer text messages.
>>
>>
>>
>> Do you have a favorite way of sending and receiving text messages?
>>
>>
>>
>> Thanks so much, and take care,
>>
>>
>>
>> Dave Krehbiel
>>
>> Olney, MD
>>
>>
>> 
>>  Virus-free.
>> www.avast.com
>> 
>> <#m_1117391624877224009_m_-6339371267737799664_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>
>

Re: [QUAD-L] Mobizen

[Jim Lubin]

I think I did before Mobizen but couldn't get it to work. Vyor is working
good for me.

Yes, Android, moto g6. When first deciding on which phone to get I could
not find any way to control and iphone from a Windows pc. I can mirror an
iphone/ipad to my pc but can't control it. With Android I can use my pc
(with my adaptive keyboard/mouse) to control the phone.

On Fri, Nov 2, 2018 at 10:05 AM Eric Olson  wrote:

> Have you ever tried Airdroid (assuming you have an Android phone)?
>
>
> <https://www.avast.com/sig-email?utm_medium=email_source=link_campaign=sig-email_content=webmail_term=icon>
>  Virus-free.
> www.avast.com
> <https://www.avast.com/sig-email?utm_medium=email_source=link_campaign=sig-email_content=webmail_term=link>
> <#m_-5315113332566265674_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Thu, Nov 1, 2018 at 7:00 PM Jim Lubin  wrote:
>
>> Glad it works for you! It was working for me, but then it stopped working
>> with my new phone. It was mirroring but I was no longer able to control the
>> phone.
>>
>> I am now using Vyor Pro https://www.vysor.io/
>> It works pretty much the same as Mobizen but nothing needs to be running
>> on the phone.
>>
>> On Thu, Nov 1, 2018 at 12:34 PM  wrote:
>>
>>> Jim
>>>
>>> I want to thank you for telling me About Mobizen.  It has given me
>>> another step of independence as I now I don’t have to ask for help with my
>>> phone.  Each and every thing helps just a little.   Joan
>>>
>>>
>>>
>>> "Nothing is impossible, the word itself says I'm possible" Audrey
>>> Hepburn
>>>
>>>
>>>
>>>
>>>
>>