RE: [QUAD-L] Totally hands-free calling using Google home

[Joan Anglin]

This should answer all your questions.  I love my Alexa.
https://www.cnbc.com/2017/05/11/how-to-make-calls-with-amazons-alexa.html

Joan 

 

From: Julie Napper [mailto:jnapp...@msn.com] 
Sent: Tuesday, September 05, 2017 1:45 PM
To: greg ; quad-list 
Subject: RE: [QUAD-L] Totally hands-free calling using Google home

 

Hi Greg,

Can you call any cell phone?  Or just one's connected to Alexa?

 

Thanks, Julie

 

 

 

Sent from my Samsung Galaxy TabR4



 Original message 
From: greg mailto:g...@eskimo.com> > 
Date: 9/4/2017 6:51 PM (GMT-07:00) 
To: quad-list@eskimo.com   
Subject: Re: [QUAD-L] Totally hands-free calling using Google home 

I just got Echo setup to call a cell phone. All I do is say Alexa, call Greg

Pretty cool. I just needed it.

My chair is plugged in and someone was at the door. I just called family who
was in the back yard.

Greg

> FYI: you can now make telephone calls hands-free using Google Home.

> I have tested it a bit, and it works great.

> 

> 

> Take care,

> 

> 

> Dave Krehbiel

> 

> Olney, MD

RE: [QUAD-L] Totally hands-free calling using Google home

[Joan Anglin]

It did not work with the blue tooth for me, but I have no problem using
earplugs, so I can hear it clearly.  Have a great day, our heat spell is
finally ready to break, the last 80 days have been mostly in the nineties
and hundreds!  Back to the eighties.

Joan

Reno, Nevada

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Monday, September 04, 2017 5:01 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Totally hands-free calling using Google home

 

FYI: you can now make telephone calls hands-free using Google Home. I have
tested it a bit, and it works great. 

 

Take care,

 

Dave Krehbiel

Olney, MD

 


 
 

Virus-free.
 www.avast.com 

 

RE: [QUAD-L] Food

[Joan Anglin]

I also use probiotics and benefiber.  What works for me when I get that yucky 
feeling at dinner is to take a couple of Tums and it goes away right away.

I’m not ready to give up, too many grandchildren to watch grow up.  Luckily I 
am quite healthy overall, and at our recent Reno high school 60 year reunion I 
had less to complain about than many of my former schoolmates.  So I will count 
my blessings.  Hope everyone has a beautiful day, and prayers for those in the 
Huston area.

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Monday, August 28, 2017 7:36 PM
To: Quad-list Post 
Subject: Fw: [QUAD-L] Food

 

 

 

I take a digestive enzyme and probiotics. They were "prescribed" by a 
naturopathic doctor. Talk to your doctor, but don't give up…

 

  _  

From: Danny Hearn mailto:ddh...@sbcglobal.net> >
To: Bryce Willis mailto:lwillis82...@msn.com> >; 
"quad-list@eskimo.com  " mailto:quad-list@eskimo.com> > 
Sent: Monday, August 28, 2017 6:23 PM
Subject: Re: [QUAD-L] Food

 

When I'm eating that seems to happen to me at times, then I take a few big 
gulps of water or something and it gets better. Same here with the quad 
problems , seems there is always problems, pain and issues...but I have family 
also and hope to hang around for a couple more years if possible.  Dan H.**

 

On Monday, August 28, 2017 7:38 PM, Bryce Willis mailto:lwillis82...@msn.com> > wrote:

 

You guys ever feel like your food just stops at the top of your stomach ? Then 
it hurts and wants to come backup. I know my quadgut is probably the problem. 
So tiring. If I could in good conscience end thisquad life I would do it in a 
heartbeat. But got family and kids to consider. Larry Willis

 

Sent from my iPad

 

 

 

RE: [QUAD-L] Echo

[Joan Anglin]

I decided to go with Anymote for my TV and I am glad that I did.  I looked at 
Harmony, but because I do not have an elaborate sound system it didn’t seem 
worth the money.  Now I see that Dish works with Echo so imagine that Direct TV 
will follow shortly.  Love my Echo.

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Tuesday, August 01, 2017 3:33 PM
To: greg ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Echo

 

Greg, why was the Harmony booster necessary?

 

  _  

From: greg mailto:g...@eskimo.com> >
To: quad-list@eskimo.com   
Sent: Saturday, July 29, 2017 9:59 AM
Subject: [QUAD-L] Echo

 

The Echo is pretty cool. understands me better than my old SiCare and that's my 
recorded voice commands. My only issue is it seems you have to buy a new add-on 
piece every time you want it to do something new.

 

The Echo

Harmony Hub

Harmony Booster

 

I understand having to buy the plug sockets or light switches, but the Echo 
should have that other stuff built in. And should be more specific in the 
description. I bought a switch for the ceiling fan. Said it works with the 
Harmony Hub. After installation, trying to go though set up, it says you need 
to order the Harmony Booster for it to work. Frustrating. Should say all this 
on the package. So you can order it and not have to wait.

 

Greg

 

 

[QUAD-L] Hands free cell phone

[Joan Anglin]

Hands free cell phone For those of you who have no hand or finger control
and have not found a way to utilize a cell phone voice controlled, I'd like
to share my solution.

I have tried numerous hands free devices', the no button hands free, using
speakerphone alone, a special blue tooth, but none of them survived for
long-term.

Im using a Samsung S4 with Dragon Mobile Assistant.  I have attentive mode
turned on in Dragon.  I turn on hands free mode in settings, my device.  I
use screen on to keep my screen awake.  This works then as a speaker phone,
but does not work with the blue tooth.  However I discovered I can use an
ear bud and have a private conversation.  And still call out, text message,
do quite a few things that I'm still learning about.  I know it works in
android at least.  Good luck.

Joan

RE: Fwd: [QUAD-L] Fell Forward, bad time

[Joan Anglin]

Mine was somewhat different-I tipped over backwards, legs flew over my head, 
nothing I could do.

About an hour later one of my Foster guys came home and found me and wanted to 
know if this was the new game-he's a little slow.  LOL

He brought me a phone and I called my son and asked him where he was, of course 
it was 25 miles away.  He said OK, I will be there in a while.  I then told him 
I was upside down, and luckily he made it a very short while.

 

 

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Friday, July 21, 2017 2:02 PM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Fell Forward, bad time

 

I'm guessing we all have similar, multiple stories. I keep telling myself that 
this time will be the last time, whether because I'll be more careful or the 
results won't be positive, but, like you said, it's part of quadlife…

 

  _  

From: Bryce Willis mailto:lwillis82...@msn.com> >
To: "quad-list@eskimo.com  " mailto:quad-list@eskimo.com> > 
Sent: Friday, July 21, 2017 1:36 PM
Subject: Fwd: [QUAD-L] Fell Forward, bad time

 

When my son was two, he and I were out tooling around in the neighbors 
backyard. It was about 90°. We were going at a pretty good clip when all of a 
sudden my front wheel found a pothole hiding beneath the grass. Like you my 
head was thrown between my knees. I could not get up nor yell. It scared my 
little son to death. It was a heck of a situation. Finally, he ran to the back 
door crying. My wife finally heard him and came looking for me. I was rescued 
at the last second. To be that hot, breathless, and helpless is something I 
never want to repeat again. Just another one of the hellish attributes of 
quadom. Thank God for my young son.
Sent from my iPad


Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com> >
From: Larry Willis mailto:lwillis82...@gmail.com> >
Date: July 21, 2017 at 09:27:25 EDT
To: quad-list@eskimo.com  
Subject: Fwd: [QUAD-L] Fell Forward, bad time

Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com  
From: greg mailto:g...@eskimo.com> >
Date: July 20, 2017 at 21:55:19 EDT
To: mailto:quad-list@eskimo.com> >
Subject: [QUAD-L] Fell Forward, bad time

I was going out the back door and fell forward. Into my lap. Joystick jammed my 
shoulder, but kept me from going further forward. Outside, 100 degrees, record 
humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. 
I thought it was hours, but it was just over 1 hour. I had to dump cold water 
on my head, put ice packs on. No one could hear me. It was no fun. The thoughts 
that go though your head. Between the pain, overheating, breathing, etc. No 
more going without chest strap. Greg

 

 

RE: [QUAD-L] Shingles Shot ?

[Joan Anglin]

There are some of us who are too old to have had most of the childhood 
vaccines.  :-)

I have a friend with shingles, I would not wish that on my worst enemy.  So I 
got the shot, and I'm very glad I did so.

 

 

 

From: Randy Anderson [mailto:randyanderson...@gmail.com] 
Sent: 14 June, 2017 10:59 AM
To: quad-list 
Subject: Re: [QUAD-L] Shingles Shot ?

 

Hello

Thanks everybody for your comments and suggestions on the shingles shot.

Randy

 

On Tue, Jun 13, 2017 at 5:31 PM, Carolyn Boyles mailto:cboy...@swbell.net> > wrote:

Your doctor would tell you it's perfectly safe, but I have to agree with other 
folks that unless you absolutely have to have a shot, don't do it. You never 
had your childhood vaccines?

Carolyn

 

[QUAD-L] RE: [QUAD-L] Joan. Mouth stick question. Touchscreen compatible?

[Joan Anglin]

https://www.etsy.com/listing/64832134/mouthstick-stylus

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 10 June, 2017 10:43 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Joan. Mouth stick question. Touchscreen compatible?

 

mouth stick question.  I need it to use on a touchscreen, and from the
website, I cannot figure out if it will work with a  touchscreen. Do you
know? And which one should I purchase?  They have a few different models.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

[QUAD-L] RE: [QUAD-L] mouth stick. If you use one please tell me about it because I need one desperately

[Joan Anglin]

They work great.
https://www.amazon.com/s/ref=nb_sb_noss_2?url=search-alias%3Dindustrial&fiel
d-keywords=mouthstick

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 10 June, 2017 10:21 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] mouth stick. If you use one please tell me about it
because I need one desperately

 

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] TV remote

[Joan Anglin]

Hi Jeffrey

I have had the Ecole for quite awhile so I am not interested in Google Home.  I 
do know that Google Home can control TV with Harmony Hub.  I already have 
Insteon so I did not want another hub.  Hope that helps.  The echo can also 
make phone calls but it is experiencing some glitches right now.  I am sure it 
will get straightened out soon.  Best wishes Joan

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 02 June, 2017 10:04 AM
To: Joan Anglin 
Subject: Re: [QUAD-L] TV remote

 

Hi, Joan.  Any idea if the Google Home will perform everything you've 
mentioned?  I like the idea that it can make phone calls.  Jeff

 

  _  

From: Joan Anglin mailto:poaj...@sbcglobal.net> >
To: 'glenn henry' mailto:gah17...@gmail.com> >; 
quad-list@eskimo.com <mailto:quad-list@eskimo.com>  
Sent: Tuesday, May 30, 2017 6:27 PM
Subject: RE: [QUAD-L] TV remote

 

I am very happy with Amazon Echo and Anymote.  Controls TV, stereo, DirecTV Et 
cetera.  It took a little getting used to, having to say “echo tell anymote to 
blank blank” was difficult at first.  Then I found out you can just have echo 
open anymote and then tell it what to do in sequence.  Drawback is, you must 
have prime from Amazon.  Setup cost was about $140 with the Amazon dot.  Love 
my echo.  Use it multiple times every day Joan, enjoying nice weather at last.

 

From: glenn henry [mailto:gah17...@gmail.com] 
Sent: 30 May, 2017 1:10 PM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] TV remote

 

Anybodyknow a voice activated remote that will control tv (change fromsource 
tv/component/hdmi1

hdmi2, hmdi3 and roku.

 

RE: [QUAD-L] TV remote

[Joan Anglin]

I am very happy with Amazon Echo and Anymote.  Controls TV, stereo, DirecTV Et 
cetera.  It took a little getting used to, having to say “echo tell anymote to 
blank blank” was difficult at first.  Then I found out you can just have echo 
open anymote and then tell it what to do in sequence.  Drawback is, you must 
have prime from Amazon.  Setup cost was about $140 with the Amazon dot.  Love 
my echo.  Use it multiple times every day Joan, enjoying nice weather at last.

 

From: glenn henry [mailto:gah17...@gmail.com] 
Sent: 30 May, 2017 1:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] TV remote

 

Anybodyknow a voice activated remote that will control tv (change fromsource 
tv/component/hdmi1

hdmi2, hmdi3 and roku.

RE: [QUAD-L] Who cares for the family caregivers?

[Joan Anglin]

Dave

I totally agree with the strain that it puts on families.  Going on 27
years, my youngest daughter was only 15, and it has been a roller-coaster
ride over the years.  She learned how to take care of me while I was still
in rehab, and although she wasn’t my attendant until later my PCA’s would
expect her to take over if they couldn’t make it.  It was very difficult to
keep a mother daughter relationship, when the mother needs the help and the
daughter feels obligated to step in and help no matter what she had planned.

 

She has been my attendant for the last nine years four days a week, and I’ve
tried to make sure that she’s doing this willingly and not under any sense
of obligation.  But it is difficult.  For example, my night time attendant
is going to be off for 2 to 3 months for medical reasons.  She just assumed
that my daughter would step in and take over those 5 days.  I had to explain
that my daughter would of course be available for an emergency, but for the
most part her days off and evenings were untouchable.  It has taken up a lot
of talking and walking in each other’s footsteps for my daughter and I too
have a great relationship, mother/daughter and client/attendant being
balanced.

 

I was a caregiver for my mother for three years before I broke my neck, and
that gave me the different perspective to help me prepare for being the
“needy” person.  One of the little things that has helped us is the phrase
“I would like you” vs.  “I need you” to allow my daughter, my older
daughter, and my daughter in law to say no without any guilt feelings when I
say “I would like you”.  I try not to use “I need you” unless I have no
other options.

 

Each state is so different in what they are willing to provide in
caregiving-and even among agencies.  The program I have allows me 5 hours
per day of direct care only.  They are not allowed to take me grocery
shopping, start dinner for the family, clean my house-except for my direct
living quarters-, take me to doctors etc..  Other programs will provide
housecleaning, cooking, taking you out if you have $25.00 an hour to spare.
So all of the rest of the things fall upon my family and friends.  Luckily
Reno has a great accessible bus system that can take me shopping, to
doctors, or to visit friends.  So I am able to utilize that for some things.

 

Just as I feel my daughter is my angel, so too is your wife and we are
beyond blessed to have them in our lives.  Good luck.

 

Are you a member of the spinal cord peer support?  They have a lot of people
on there who are caregivers for family, and I do think they have a special
caregiver for SCI facebook.

 

Getting excited about warm weather, from 43°for a high last Friday to
79°next Monday!  I will take it.  LOL 

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: 19 May, 2017 6:35 AM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: RE: [QUAD-L] Who cares for the family caregivers?

 

My wife works full-time. We have caregivers to provide activities of daily
living, and since she has good insurance through the state of Maryland, I've
been able to see a variety of doctors and nurses and so forth. But she has
been taking care of me at the expense of taking care of herself. And she
spends time nearly every day fighting with insurance companies and various
service providers while at work. The daily battles are taking their toll.

 

It seems to me that being a family caregiver can be very socially isolating.
Someone on this forum said, the majority of people they are friends with now
are people they met after the accident. The two of us can't go to many
social events (e.g. a 30th wedding anniversary party for good friends)
because most homes are not wheelchair accessible. Most social events have to
be here, and that needs cleaning up before, cooking, shopping, hosting, and
cleaning up afterwards. Regarding maid service, I think that could be very
helpful, especially around the holidays.

 

From: wheelch...@aol.com 
[mailto:wheelch...@aol.com] 
Sent: Friday, May 19, 2017 9:18 AM
To: davekrehb...@earthlink.net  ;
quad-list@eskimo.com  
Subject: Re: [QUAD-L] Who cares for the family caregivers?

 

Dave, your wife is an angel. Have you checked out your local Independent
Living Center (ILC) Do you qualify for home health or maid service in your
area?

Best Wishes

 

In a message dated 5/19/2017 7:51:26 A.M. Central Daylight Time,
davekrehb...@earthlink.net   writes:

I have been a quadriplegic for nearly 10 years now, and as a consequence, my
wife has taken on the role of being a family caregiver for almost 10 years.

 

She needs help. I have some ideas about setting up an organization to help
support family caregivers, and right now I am doing some research.

 

Are you aware of any helpful programs or resources or information or
organization supporting family care

RE: [QUAD-L] headset volume controls

[Joan Anglin]

Why don't you put a piece of tape after your headset is turned to the
volumes you want?

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 13 May, 2017 12:28 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] headset volume controls

 

I'm using a headset  for Dragon NaturallySpeaking with an in-line volume
control for the microphone, and I need to know how to control it Using
computer settings since I obviously am unable to use my hands to adjust it.

 

I'm using the sennheiser PC 131 headset and the nurses inadvertently tturn
the volume all  the way down without realizing it about once a day, which
often leaves me stranded without any way to communicate with anyone, because
the nurse calling device is decades old and only works intermittently. Don't
lecture me about complaining about it because I even talked to the Florida
State nursing home licensing  board people when they more here for an
inspection and when they tried to turn it on, they could never get it to
turn on at all. I thought for sure something would be done about it.Ha ha.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] Would this enable a person to use a cell phone completely hands-free by voice only?

[Joan Anglin]

It certainly will not.  It says right on the information you need to click.
I think you have had several ideas sent your way in the past that would work
for you.  Here are two: http://nobuttonsheadset.com/ ,
https://www.cnet.com/news/touch-free-phone-disabled-app-quadriplegic-sesame-
app-tech-enabled/, also you obviously use a computer, and you can put an app
on it called Txtdrop
http://download.cnet.com/webware/txtdrop/3260-20_4-6301392-1.html, to send
text messages and it will reply on your computer.  I hope this helps.

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 01 May, 2017 9:41 PM
To: DEBRA DEW ; quad-list@eskimo.com
Subject: [QUAD-L] Would this enable a person to use a cell phone completely
hands-free by voice only?

 

Please help me to ascertain if this would enable me to use a cell phone
completely hands-free by voice only. Having a phone would give me a great
deal of security, which I am currently in lack of, if I could have a cell
phone to call for assistance with when I am in a bad situation.

http://www.pcbyvoice.com/shop/clicktophone-disability-mobile/

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[Joan Anglin]

They appear to be according to the report that I read.

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: 07 April, 2017 10:21 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | 
Jesse Jones - KIRO TV

 

These jobs are not work from home are they?

Meredith

 

Sent from my LG Mobile

 

-- Original message--

From: Jim Lubin 

Date: Thu, Apr 6, 2017 11:50 PM

To: quad-list@eskimo.com  ;

Subject:[QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse 
Jones - KIRO TV

 

http://jessejones.com/story/amazon-to-hire-3-virtual-customer-service-workers/

RE: Fwd: [QUAD-L] Getting Old

[Joan Anglin]

So very true, we are the same but totally different.  Have a great day everyone.

 

From: greg [mailto:g...@eskimo.com] 
Sent: 06 April, 2017 2:10 PM
To: quad-list@eskimo.com
Subject: RE: Fwd: [QUAD-L] Getting Old

 

I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing.

 

Without pain meds, my leg will not go straight. Spasms are so bad, I grunt, 
almost pull myself out of my chair, and the worst thing is my chest gets so 
heavy it's hard to breath. Like someone is sitting on my chest. If I miss my 
meds, within hours my body is like 1 solid muscle clinch.

 

They almost OD me trying to raise Baclofen high enough to ease my spasms. Many 
tests to find the cause. Finely took pain meds for my shoulder and it was like 
life changing difference. Docs said no way would pain meds stop spasms, I need 
more Baclofen. I went in and showed them, I'm not spasming. Then finely they 
agreed it was pain causing the spasms. And they found the cause.

 

Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse.

 

Greg

[QUAD-L] RE: [QUAD-L] Alternating air pressure mattress not doing what is supposed to I believe. Need your opinions

[Joan Anglin]

Looks good.  Do you have it in lateral rotation, alternating pressure
therapy, or float mode?

If it still isn't working contact the company.  Good luck.

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 06 April, 2017 1:43 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Alternating air pressure mattress not doing what is
supposed to I believe. Need your opinions

 

I've tried out this mattress for two days and I cannot tell the difference
from my old one. I just went back to having the nurse put a bed pillow
between my bottom and the mattress to try to keep me from touching the thing

 

I was assured it would be rotating my body a small amount to be able to
relieve pressure areas on my bottom but I cannot feel anything being shifted
and I have been told I could feel it moving me slightly if it was working
properly.

 

I am severely disappointed and need to figure out a solution posthaste
before I get another bed sore.

I would be able to purchase my own mattress if I only knew what would work.
Below is the brand and model I am using currently.

 

http://www.cascadehealthcaresolutions.com/PressureGuard-APM2-Deluxe-Control-
Unit-p/5800.htm


 
 

 
 PressureGuard APM2 Deluxe Control Unit by Span America

www.cascadehealthcaresolutions.com
 

Need a Span America PressureGuard APM2 Deluxe Control Unit? Cascade
Healthcare Solutions PressureGuard APM2 Deluxe Control Units - 5800

 

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: Fwd: [QUAD-L] Getting Old

[Joan Anglin]

Since I haven’t gotten older without being a quad I have nothing to judge this 
by.  It’s been 26 ½ years for me, and I turned 78 on Tuesday.  I have to agree 
with you Jeffrey that I don’t know if what I am feeling is what everyone else 
feels but I have learned to live with it.  My head inching, sciatica burn, nose 
running and no way to wipe it, cold at night-hot at night-cold at night!  
Because I’m in a wheelchair I can still go as fast as I want to and not worry 
about stumbling and breaking a hip.  On the other hand I can’t really wear 
hearing aids which I need, because I’m unable to adjust them even if I could 
afford them.  I have learned to say pardon me, I didn’t hear what you said in 
many ways.

I was recently hospitalized for four days with blood clots and now I am on a 
blood thinner as well as a new filter.  I had had an embolism two weeks after 
breaking my neck and they put a filter in, but I was never on blood thinners.  
But evidently the filter finally clogged so hence the emergency room for the 
first time in several years.

I am so thankful for modern technology, even though I curse it so often when it 
does not do what I want it to do.  I recently liberated myself from having to 
depend on someone else to restart my computer when it decides to go on strike 
by buying a large trackball that I can operate with my reading mouth stick.  
Yeah for small things that make me more independent.  Now if I can just design 
something to push my pillow down to fluff it up at night!

But as we do choose to live so we learn to live with each of our burdens.  I’ve 
tried to remain positive, because there is no other way I can be a part of my 
children and grandchildren and great grandchildren lives if I am not here.  
Great discussion guys.  Made me put on my thinking cap and be glad for what I 
have.  

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 06 April, 2017 6:59 AM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Getting Old

 

I feel like I've been pretty blessed when I hear what you guys have been 
through; what you are currently going through.  I used to wonder a lot about 
phantom pain.  I didn't know if I was actually feeling what you're feeling and 
I have learned long ago to somehow just ignore what was taking place or that 
maybe I'm just not feeling what you are feeling.  I am 38 years post injury and 
I can stop at any moment in the day and think about what I'm feeling throughout 
the paralyzed portion of my body.  I can feel, at this moment, an intense 
tingling in my left calf, it feels like bumblebees living throughout my left 
leg, I've got this weird numb kind of hurt in my right leg, my gut and/or 
abdomen is just uncomfortable, both my feet and toes feel weird at the moment, 
with a somewhat intense tingling feeling.  I could go on and on but I have no 
idea if I learned long ago to just ignore this for the most part and deal with 
life or if you guys are feeling something completely different.  I've started 
having this "restless legs" situation just over the past couple months.  I 
think it's actually been going on longer but it's gotten to the point where it 
causes dysreflexia, so that's not good.  But I've been having one of my 
attendants exercise them some before she leaves and it helps.  It didn't help 
much last night but it's been helping.  I've got the same itchy scalp problem.  
In fact I've even got a couple small scabs on the back of my head where I 
rubbed it raw at times  I really try to resist but obviously I haven't tried 
hard enough.  I don't know, Dudes.  Obviously, getting older affects everyone, 
paralyzed or not.  And I agree that those first number of years were much 
easier in some ways and yet I went through a whole lot of learning the hard way 
about some things that I know to avoid now.  No one said it was going to be 
easy, but you would think being paralyzed was enough and from there you could 
at least not be in pain, deal with sores, just be relaxed instead of stressed 
and not knowing which way to turn with what's going on with your body.  Nope.  
Just doesn't work that way.  For those of us who choose to live after becoming 
paralyzed, it's a hard road.  But we must be getting something out of it to put 
up with all this crap!  Jeff

 

  _  

From: Bryce Willis mailto:lwillis82...@msn.com> >
To: "quad-list@eskimo.com  " mailto:quad-list@eskimo.com> > 
Sent: Thursday, April 6, 2017 6:42 AM
Subject: Fwd: [QUAD-L] Getting Old

 

Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sores on my 
hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post.

Sent from my iPad


Begin forwarded message:

Resent-From: mailto:quad

RE: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad.

[Joan Anglin]

Can I ask for a Thunder from Down Under then?  I have an Echo and yes it can do 
blinds if you have electric blind opener, and all sorts of things with Insteon, 
TP-link and other things, some of them just plain fun.

Here are a couple of ideas for a drinking tube and other accessibility ideas. 
https://www.instructables.com/howto/drink+tube+for+wheelchair/

I have this, bought it several years ago when it didn’t cost so much.  
https://www.drink-aide.com/

Or you could make it yourself for half the price. 
https://www.grainger.com/category/ecatalog/N-1z0dtrh?analytics=altTerms

I have a hospital table with a hole drilled the size of my drink cup and place 
it by the side of my bed and place the tube over my bed so that I can drink 
whenever I want.  We’ve replaced the cup a couple of times.  I also have this 
out during the day so that I can drive up and get a drink whenever.  Have a 
great day every one, Joan

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 23 March, 2017 3:57 AM
To: da...@immortaldesigns.co; quad-list@eskimo.com
Subject: Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a 
c2 quad.

 

I suggest  a really hot woman  who will do anything you ask..  If that can't be 
managed…

 

I've heard on here that Amazon Echo can run Insteon products which can help you 
with turning on/off by voice. Voice-activated software,, like Dragon 
NaturallySpeaking  – it's gone to some other name again –  can help you 
actually operate the computer by voice. The window  and blinds  might have to 
be made  electronic,, so I'm not sure the technical side  of that part,, but if 
they were and it simply took an infrared or radio signal, whichever it is that 
Amazon uses, it would help.. I have a service dog. He can be trained to open 
Blinds, an  windows if it was all setup right.

 

If by "in upright position"you mean your wheelchair, I purchased a kitchen 
table  – there's only two of us – from a store that provides  
furniture/equipment to restaurants,, and found a table at the right height for 
sitting a large cup  with a long straw (easily found online) aand driving under 
part of the table until I could reach the straw.

  _  

From: Danny Espinoza mailto:da...@immortaldesigns.co> >
To: quad-list@eskimo.com   
Sent: Thursday, March 23, 2017 12:14 AM
Subject: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 
quad.

 

I get really thirsty sometimes at night and thus far have been struggling 
between calling my family for a drink or my window open/fan up. I’ve found a 
few home automation projects in the past buf I figure my quad list 
buddies/family would know best. So ir was
1> Able to drink something cold on my own while in upright position.
2> Ability to control my bed/window/blinds with sip’n’puff, my PC or my right 
arm to the wrist.

-Danny
ex network/security engineer

 

RE: [QUAD-L] Raining

[Joan Anglin]

I usually love Reno weather, most winter days are sunny with the highs in the 
forties to fifties.  Not this year.  Our average total rainfall is 6 inches, so 
far from January 1 14 inches combined snow and rain!  Mud city and erosion and 
saturated ground.  UGH.  If I wanted rainy weather I would have stayed in 
England.  :-)

 

 

 

From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: 20 February, 2017 11:21 AM
To: Nichole Rohling 
Cc: RONALD L PRACHT ; greg ; 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Raining

 

I love ❤️ the rain ☔️ or when it's misty out.

We have a courtyard in our apartment complex and a small part has an over hang. 
I love to sit outside under the over hang and listen to the rain ☔️ while 
reading 📖 or meditating. The only thing better is a good thunderstorm ⛈

  Now a snow ❄️ storm ⛈ ... well now your talking. 

Bobbie 



"Be the change you want to see in the world". Gandhi


On Feb 20, 2017, at 2:04 PM, Nichole Rohling mailto:zoocr...@windstream.net> > wrote:

Greg I agree and Ronald I’m with you! Oklahoma is bipolar. We had 85 degrees a 
week ago Saturday and it is suppose to be 82 Thursday. I‘m ready for Spring

 

What temperature do you keep your thermostat on? 77 here!

 

Nicki

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Sunday, February 19, 2017 6:44 PM
To: Quad-list Post
Subject: Re: [QUAD-L] Raining

 

Come on down to Missouri(Misery)where a quad has to hibernate between 
Nov-April. Every year I think Im going to be tough, but cant fight below 30 in 
my old quad years.

 

Ron

 

On Sunday, February 19, 2017 5:19 PM, greg mailto:g...@eskimo.com> > wrote:

 

I hate these rainy days. I get so sore.
Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
rather 60 and sunny than 80 and clowdy.

I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
Hot Coco, Coffees, Cider
rain rain go away...

Greg

 

RE: [QUAD-L] Wheelchair backrest

[Joan Anglin]

I have used the deep contour for several years, there’s very little padding but 
that has never been a problem for me.  I really like the security that it gives 
me.

I sit very erect so not much pressure on the lower lumbar area so I would 
imagine it depends on your seating positioning.

I too am looking at permobile but I want front wheel drive, so hopefully the 
F3.  I would hate to go back to rear wheel drive.

 

 

From: Fragile [mailto:swl...@gmail.com] 
Sent: 03 January, 2017 6:50 AM
To: quad-list 
Subject: [QUAD-L] Wheelchair backrest

 

I have a Permobil M 300 with the corpus seating. I like the plastic wedges that 
you can put on both sides of the lower part of the backrest for better lumbar 
support, they don't get in the way that the swing away lateral supports do.

 

After a few years, my lower back began to hurt, so I put in the dense foam 
inserts for the lumbar region that came with it. The pain went away pretty 
quickly, but it has caused a pressure sore.

 

I'm going to start the process for a new chair this summer. I asked the 
wheelchair technician that ordered me the chair about different backrests that 
are less likely to cause a pressure sore, he recommended a company called 
Comfort Company that has air backrests. They look nice, the only problem is I 
would probably have to go back to the swing away lateral supports.

 

Looking at the Jay 2, Deep Contour backrests, they look like they wrap around 
the lower body pretty well. But nervous about the amount of foam in the lumbar 
region. Has anybody tried one of these backrests? Is the thickness of the foam 
adequate? Would greatly appreciate any advice.

[QUAD-L] Happy new year

[Joan Anglin]

HAPPY NEW YEAR May 2017 bring peace.

Reading the attached article reinforces my belief that we can push through
almost anything if we want to.

 

https://unstoppable.me/life-lessons/?utm_source=facebook&utm_medium=Social&u
tm_campaign=SocialWarfare

Whether or not you believe in this person is immaterial, the message of
never giving up is what's important.

 

 

Creativity is intelligence having fun.  Albert Einstein

 

Joan

RE: Fwd: [QUAD-L] What did fellow quads get for christmas?

[Joan Anglin]

My five grandkids together with their mom for the first time in 18 months.  
Clothes, earrings, munchies and lots of love.  What more can we ask for.

 

 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: 27 December, 2016 1:02 PM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] What did fellow quads get for christmas?

 

I got a nice back and shoulder massager made by Homedics...it massages and has 
heat also, Also got a gift card for dinner with a movie included and a few cool 
snacks and etc.  Dan H**

 

On Tuesday, December 27, 2016 1:52 PM, Bryce Willis mailto:lwillis82...@msn.com> > wrote:

 

The new CDs by John prine and Rolling Stones, cheese box from Figis, and some 
much needed new clothes.

Sent from my iPad


Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com> >
From: Lori Michaelson mailto:lorilivin...@gmail.com> >
Date: December 27, 2016 at 2:40:08 PM EST
To: RONALD L PRACHT mailto:r.pra...@sbcglobal.net> >, 
quad-list mailto:quad-list@eskimo.com> >
Subject: Re: [QUAD-L] What did fellow quads get for christmas?

* Chocolate (I couldn't live without it... LOL).

 

* Omaha Steaks gift that included 2 filet mignon steaks, chicken, and other 
foods to make a meal with meat.

 

* Money.

 

* Gift cards.

 

* A super soft lap blanket or bed blanket very rich in colors with dogs all 
over it since I love dogs.

 

* A full life-sized stuffed Golden retriever that looks SO real that every time 
I go buy it and out of the corner of my eye and think it is my Golden 
(retriever) daughter!

 

* Christmas ornaments

 

That's all I needed.  Will pass along photos soon.

 

On Tue, Dec 27, 2016 at 9:17 AM, RONALD L PRACHT mailto:r.pra...@sbcglobal.net> > wrote:

I got a portable dvd player for my table by my bed. An Atari portable to relive 
my childhood games. A hobby mat to work on my r/c models. Other misc junk.

 

How about you?

 

Ron 





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

 

RE: [QUAD-L] Unidentified subject!

[Joan Anglin]

A very compassionate person who has so much to give to us and continues to 
share.  Merry Christmas

Joan 

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 23 December, 2016 2:45 PM
To: Gail Holmes ; wheelch...@aol.com
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Unidentified subject!

 

I'm sorry to hear about the loss, Wheelchair.

 

  _  

From: Gail Holmes mailto:fgdhol...@cox.net> >
To: wheelch...@aol.com   
Cc: quad-list@eskimo.com  
Sent: Friday, December 23, 2016 2:38 PM
Subject: [QUAD-L] Unidentified subject!

 

Im thinking of this time of year how with the joy and hope we there is often 
increased sadness for those who have family and friends who have passed on to 
the other side. 

 

There are probably others on this list who are mourning but I'm particularly 
thinking of "Wheelchair" who had a recent and sudden loss of his son. 

 

Thank you Wheelchair for continuing to contribute to this list even as no doubt 
the pain is still so fresh and raw.

 

May  God comfort you and bring you peace.

 



Sent from my iPhone


On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com   
wrote:

Oxy, is a very potent and dangerous drug.  Users, should not advertise its use. 
It can become habit forming is less than 90 days of use.  The FDA, is cracking 
down on pain doctors, on its use for pain meds.  Those seniors with shoulder, 
hips and knee replacements are becoming addicted to the drug, without knowing 
it, which only adds to the health care cost as they go into recovery clinic to 
kick the drug. The symptoms should be reported to the doctor that issued the RX.

 

Best Wishes

 

In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, 
r.pra...@sbcglobal.net   writes:

It is a different shaped pill, usually I get round ones but this time they are 
elongated oval shape. Could be a little different causing the issue. I was 
concerned of my stomach lining maybe getting screwed up.

 

Ron 

 

On Friday, December 23, 2016 12:52 PM, Larry Willis mailto:lwillis82...@gmail.com> > wrote:

 

Ron, have you had a new prescription filled lately? Sometimes I'll get a batch 
that cause me to itch terribly. With the next bottle the itching goes away. Bad 
batch, I assume. Are you taking it in combo with anything else?

Larry Willis 

Retired and proud of it

 


On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT  wrote:

Why would taking oxycodone cause my head to sweat and go into mild dysreflexia? 
Ive been on it for 4 years and it never did this to me. I hope its not stomach 
lining damage or something??

 

Ron

 

 

RE: [QUAD-L] Tissues and issues

[Joan Anglin]

I use a chin controller to control my wheelchair.  They essentially take the
hand controller and we mounted on a bib that hangs around my neck.  I have
used one for 26 years.  It was either a sip and puff or chin controller as I
have absolutely no use of my arms or hands.  

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 21 December, 2016 10:11 AM
To: Joan Anglin 
Subject: Re: [QUAD-L] Tissues and issues

 

Joan, why on earth would it need to weigh 1 1/2 pounds? I considered using
one can turnn on a telepphone, that did not choose it because I figured it
would constantly be falling out of my reach. I also assumed it would be very
lightweight and made out of aluminum or fiberglass. Send pictures if you
can, because I am totally mystified. Best wishes to you, as always

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

 

  _  

From: Joan Anglin mailto:poaj...@sbcglobal.net> >
Sent: Wednesday, December 21, 2016 11:39 AM
To: 'Ed Tessier'; 'Gail Overton'
Cc: 'Larry Willis'; quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: RE: [QUAD-L] Tissues and issues 

 

Larry

I hear what you’re saying about the dentist, just went through a similar
thing.  I’m 77 going on 78 and sort of feel the same way about dentists.
I’m having done what needs to be done when it is necessary.

Physical therapy helped me a lot with neck and shoulder pain last year, and
I’m going back for another run in a couple of months.  He helped to correct
my posture.  I use a chin controller so I always have 1½ pounds hanging off
my neck which does not help.  But it gives me the most freedom so it is
worth the sacrifice.

By the way, my physical therapist was not a special guy with spinal cord
injury, but just an extremely practical and intuitive therapist.  We don’t
have anyone in Reno that specializes unless you’re with the VA.

Have a great day.  Joan 

 

From: Ed Tessier [mailto:e...@teamjeved.com] 
Sent: 20 December, 2016 6:01 PM
To: Gail Overton mailto:ga...@pennwell.com> >
Cc: Larry Willis mailto:lwillis82...@gmail.com> >;
quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: Re: [QUAD-L] Tissues and issues

 

The only thing that is the neck and shoulder  pain has been craniosacral
therapy

 

On Tue, Dec 20, 2016 at 1:03 PM, Gail Overton mailto:ga...@pennwell.com> > wrote:

Only thing that has worked for my husband's neck and shoulder pain has been
acupuncture.


-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com
<mailto:lwillis82...@gmail.com> ]
Sent: Tuesday, December 20, 2016 1:07 PM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] Tissues and issues

I have a couple of serious issues that cry for quad wisdom. First, I went to
the dentist yesterday to have a crown replaced. Instead, he tells me that I
have three teeth (including the crown tooth) that need to be pulled. That
will be a total of nine teeth, none of them visible, that I have had
removed. Chewing anything crunchy, like baby carrots, is already a task. He
wants to put in implants, something that will cost a small fortune. Now, I
am almost 65, 45 years post. Common sense says I am nearing the end of my
rope. I am leaning toward doing nothing and removing each tooth as it
becomes a problem. The implants would also require repeated trips to
Louisville, a 200 mile round trip.
Secondly, my neck and shoulders have become unbearably painful. Have any of
you tried glucosamine chondroiten or anything similiar like CQ3?
I surely would appreciate some input on these things. I feel like I am
sinking in quicksand with no rope. Larry WILLIS

Larry Willis
Retired and proud of it

 

RE: [QUAD-L] Tissues and issues

[Joan Anglin]

Larry

I hear what you’re saying about the dentist, just went through a similar thing. 
 I’m 77 going on 78 and sort of feel the same way about dentists.  I’m having 
done what needs to be done when it is necessary.

Physical therapy helped me a lot with neck and shoulder pain last year, and I’m 
going back for another run in a couple of months.  He helped to correct my 
posture.  I use a chin controller so I always have 1½ pounds hanging off my 
neck which does not help.  But it gives me the most freedom so it is worth the 
sacrifice.

By the way, my physical therapist was not a special guy with spinal cord 
injury, but just an extremely practical and intuitive therapist.  We don’t have 
anyone in Reno that specializes unless you’re with the VA.

Have a great day.  Joan 

 

From: Ed Tessier [mailto:e...@teamjeved.com] 
Sent: 20 December, 2016 6:01 PM
To: Gail Overton 
Cc: Larry Willis ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Tissues and issues

 

The only thing that is the neck and shoulder  pain has been craniosacral therapy

 

On Tue, Dec 20, 2016 at 1:03 PM, Gail Overton mailto:ga...@pennwell.com> > wrote:

Only thing that has worked for my husband's neck and shoulder pain has been 
acupuncture.


-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com 
 ]
Sent: Tuesday, December 20, 2016 1:07 PM
To: quad-list@eskimo.com  
Subject: [QUAD-L] Tissues and issues

I have a couple of serious issues that cry for quad wisdom. First, I went to 
the dentist yesterday to have a crown replaced. Instead, he tells me that I 
have three teeth (including the crown tooth) that need to be pulled. That will 
be a total of nine teeth, none of them visible, that I have had removed. 
Chewing anything crunchy, like baby carrots, is already a task. He wants to put 
in implants, something that will cost a small fortune. Now, I am almost 65, 45 
years post. Common sense says I am nearing the end of my rope. I am leaning 
toward doing nothing and removing each tooth as it becomes a problem. The 
implants would also require repeated trips to Louisville, a 200 mile round trip.
Secondly, my neck and shoulders have become unbearably painful. Have any of you 
tried glucosamine chondroiten or anything similiar like CQ3?
I surely would appreciate some input on these things. I feel like I am sinking 
in quicksand with no rope. Larry WILLIS

Larry Willis
Retired and proud of it

 

RE: [QUAD-L] sex

[Joan Anglin]

That applies to so many things, not just sex.

shoulda had a V8

 

:)

 

From: Ed Tessier [mailto:e...@teamjeved.com] 
Sent: 18 December, 2016 2:08 PM
To: Quad-list Post 
Subject: [QUAD-L] sex

 

Just had a lazy afternoon sex with my wife... all oral, since that's what works 
dependably...

 

 so enjoy times like this… So why does it happen so infrequently, why do I let 
my chronic aches and pains and hassles distract me from enjoying life?  I 
struggle so hard to get through the day sometimes, I don't leave any energy for 
something that should be IMPORTANT

 

Anybody else in this boat?

RE: [QUAD-L] RE: [QUAD-L] Amazon echo. Anyone using it successfully?

[Joan Anglin]

I've had the echo for six months, wish I had gotten it earlier.  So many things 
are possible.  Lights, heaters, fans, not even mentioning the music.  Every 
couple of weeks I check to see what new skills are available.  Mind-boggling

 

 

 

From: Johnny Cammon [mailto:quadjkin...@gmail.com] 
Sent: 17 December, 2016 2:33 AM
To: Joan Anglin 
Cc: DEBRA DEW ; quad-list@eskimo.com
Subject: Re: [QUAD-L] RE: [QUAD-L] Amazon echo. Anyone using it successfully?

 

I have an Echo-dot..i caught the black friday sale.i love it an have her 
bye my pillow next to my keyboard...if you a Amazon account or Pandora.you can 
tell it to play your musicshe has tons of skill apps to enchance her 
knolegde an capabilities.she has a My Buddy skill to locate someone your close 
with for help which it will send a text even voice .im still amazed at how 
smart Alexa is,the mic voice works pretty good for us Quads i wuuld still 
consider buy the 3mm speaker jack so she'd hear you ok when playing music

 

On Fri, Dec 16, 2016 at 10:52 AM, Joan Anglin mailto:poaj...@sbcglobal.net> > wrote:

Good luck in finding your telephone, you have had many excellent suggestions 
several of which will fill your needs.  Have a great day 

 

From: DEBRA DEW [mailto:n14...@hotmail.com <mailto:n14...@hotmail.com> ] 
Sent: 16 December, 2016 6:50 AM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] Amazon echo… Anyone using it successfully?

 

I have no function in my hands whatsoever, and I am looking for a cellular 
phone for safety reasons, or a landline that I can turn it on, without touching 
it.

 

Please tell me if you are successfully using such a telephone.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333  
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

 

RE: [QUAD-L] hi

[Joan Anglin]

Ha Ha 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 16 December, 2016 8:59 AM
To: wheelch...@aol.com; Quad-list Post 
Subject: Re: [QUAD-L] hi

 

 


Welcome, Annette. Look, no hand-use, Ma, 35 years post, two months before 
graduating high school; now MBA, married, divorced, full-time job with Feds, my 
own house, just wish I would have made it accessible so I could go inside :-)


Jeff

  _  

From: "wheelch...@aol.com  " mailto:wheelch...@aol.com> >
To: atsxn...@mchsi.com  ; quad-list@eskimo.com 
  
Sent: Friday, December 16, 2016 5:38 AM
Subject: Re: [QUAD-L] hi

 

Welcome Annette!  What have you done since? There are so many here willing to 
share their stories and experiences.  Again, Welcome.

 

Best Wishes

 

In a message dated 12/16/2016 5:58:54 A.M. Central Standard Time, 
atsxn...@mchsi.com   writes:

I heard about this group from a friend and she thought I would benefit from 
like she does.

 

My name is Annette.  I am a level C 5/6/7 break.  My spinal cord has only a few 
strains still connected. 

I had my accident May 30th 1981 just after my Junior year of high school.  I am 
a 35 plus year survivor.

 

I don’t mind being asked questions about my accident and life since so if 
someone is interested just ask.

 

I look forward to being part of this group.

 

Annette

 

RE: [QUAD-L] hi

[Joan Anglin]

Welcome aboard, this group has several Long lived quads, and we are a good 
listening group.  I’m Joan and live in Reno, Nevada  a complete C4 since 1991 
and still living life to the fullest.  Merry Christmas.

 

From: Annette Storesund [mailto:atsxn...@mchsi.com] 
Sent: 16 December, 2016 3:59 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] hi

 

I heard about this group from a friend and she thought I would benefit from 
like she does.

 

My name is Annette.  I am a level C 5/6/7 break.  My spinal cord has only a few 
strains still connected. 

I had my accident May 30th 1981 just after my Junior year of high school.  I am 
a 35 plus year survivor.

 

I don’t mind being asked questions about my accident and life since so if 
someone is interested just ask.

 

I look forward to being part of this group.

 

Annette

[QUAD-L] RE: [QUAD-L] Amazon echo. Anyone using it successfully?

[Joan Anglin]

Good luck in finding your telephone, you have had many excellent suggestions
several of which will fill your needs.  Have a great day 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 16 December, 2016 6:50 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Amazon echo. Anyone using it successfully?

 

I have no function in my hands whatsoever, and I am looking for a cellular
phone for safety reasons, or a landline that I can turn it on, without
touching it.

 

Please tell me if you are successfully using such a telephone.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] Fwd: How to Control Your Android Device Entirely with Your Voice

[Joan Anglin]

So much fun trying this out.  So far very cool and reliable.  I’m waiting until 
somebody is here to rescue me in case it freezes to try some of the extra 
stuff.  Thanks Jim for the heads up.  If you want to know if it will work on 
your phone just go to google play, click on voice access and it will tell you 
if your phone is compatible.  Have fun everyone, this opens a whole new world 
of phone control.  The following link are some of the commands that are 
available.

https://support.google.com/accessibility/android/answer/6151854?hl=en

 

From: daano...@gmail.com [mailto:daano...@gmail.com] 
Sent: 04 December, 2016 10:17 PM
To: Jim Lubin 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Fwd: How to Control Your Android Device Entirely with 
Your Voice

 

Do you know if it will work on an iPhone 6 Plus. Thank you
Dana 


Sent from my iPhone


On Dec 3, 2016, at 9:06 PM, Jim Lubin mailto:jlu...@eskimo.com> > wrote:

I just installed this free app from Google on my Nexus 5x. Amazing! Once 
installed, setup and "Ok Google" is set to always listening, I am able to use 
my phone completely hands-free by voice. It puts numbers next to everything 
then you just say the number next to the item.

 

https://support.google.com/accessibility/android/#topic=6151842

 

https://play.google.com/apps/testing/com.go 
ogle.android.apps.accessibility.voiceaccess 

 

 

-- Forwarded message --
From: Jim Lubin mailto:jlu...@makoa.org> >
Date: Sat, Dec 3, 2016 at 12:00 AM
Subject: How to Control Your Android Device Entirely with Your Voice



http://www.makeuseof.com/tag/control-android-device-entirely-voice/

 

RE: [QUAD-L] Sesame cell phone---do any of you use this and is it effective? Thank you

[Joan Anglin]

It looks awesome, but the price tag puts it way beyond what I can afford.
The need to have it positioned directly in front would be a great
disadvantage if one were mobile and moving around in their chair.  Great
technology and eventually it will go down in price.  

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 27 November, 2016 9:21 AM
To: DEBRA DEW ; quad-list@eskimo.com
Subject: [QUAD-L] Sesame cell phone---do any of you use this and is it
effective? Thank you

 

http://www.notimpossiblenow.com/the-latest/hands-free-technology-brings-smar
tphones-to-the-disabled-community.


 
 Hands-Free Technology Brings Smartphones
to the Disabled ...

www.notimpossiblenow.com  

Touch screen cell phones dominate the market, but a new touch-free phone
could be the way to go for those with limited mobility. Touch screen cell
phones dominate the ...

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] Everyone that you

[Joan Anglin]

Happy thanksgiving, and blessings to all.

Joan

 

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: 23 November, 2016 1:26 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Everyone that you

 

 

Happy Thansgiving to all of you.

 

Meredith

 

-- Original message--

From: Johnny Cammon 

Date: Wed, Nov 23, 2016 12:15 PM

To: Larry Willis;quad-list@eskimo.com  ;

Subject:Re: [QUAD-L] Everyone that you

 

happy holidays to my quadriplegic friends and everyone. Let's enjoy our  day in 
a grateful way. God bless you

 

On Wed, Nov 23, 2016 at 9:53 AM, Larry Willis mailto:lwillis82...@gmail.com> > wrote:

Love and blessings to all my fellow quads. In our situation, it is often hard 
to give thanks.. We in the US are still blessed beyond belief. Just watch the 
evening news.. So much suffering, pain, and hopelessness in this world. God 
bless you, my peeps. Let us give thanks for life and for each other on this day 
of Thanksgiving. Larry Willis

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com  
From: wheelch...@aol.com  
Date: November 23, 2016 at 8:51:09 AM EST
To: ismaelcavaz...@gmail.com  , 
quad-list@eskimo.com  
Subject: Re: [QUAD-L] Everyone that you

Thank You!  and May You Have Just Enough.

Best Wishes

 

In a message dated 11/23/2016 2:59:24 A.M. Central Standard Time, 
ismaelcavaz...@gmail.com   writes:

Hello quadriplegic friends I want to wish you every one that you and happy 
Thanksgiving beside we don't know each other and have a safe one you and your 
family are main problem as a quadriplegic we get constipated very often but 
Thanksgiving is one time out of the year and make it worth it and God bless you 
to you and your family my friends

 

RE: [QUAD-L] Bluetooth, a quad can utilize question

[Joan Anglin]

The system that I described does not require any touching of buttons to call
or to answer.  Infrequently people will not hang up when they have called
me, and then I am stuck until they realize it.  Doesn't happen too often.
But that is using Samsung galaxy S4 and a Bluetooth

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 18 November, 2016 2:15 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Bluetooth, a quad can utilize question

 

with a Bluetooth, would I be able to turn it on my turning my head into the
neck pillow. I use to hold up my head?

 

I have to figure out I could turn one on and off without touching it.

 

People ARE READY TO PURCHASE ONE FOR ME, but only if I can tell them what to
buy and that it will work for me. Absolutely.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] please tell me what kind of cellular phone with you are able to use!

[Joan Anglin]

I used the Blueant Q2 and Q3 for several years but could never get around
making a totally hands free call until I went to

  http://nobuttonsheadset.com/ which

worked fabulously.  Three years ago I went to my present setup.

Looking on the web site of the Blueant it still says you have to tap the
command bar in order to make a call.  Are you saying that you have a way not
to have to push the command bar?  I'd be interested, always looking for
something as a backup for myself I know that the Blueant S4 is all voice
activated, but it is a speaker system, and I have trouble hearing people on
speakerphones, plus I like the privacy of my conversations.  :)

Joan

 

 

 

From: Derrick [mailto:wheel...@centurylink.net] 
Sent: 12 November, 2016 11:53 AM
To: quad-list@eskimo.com; n14...@hotmail.com
Subject: Re: [QUAD-L] please tell me what kind of cellular phone with you
are able to use!

 

I have a BluAnt product that I bought so that I could answer/call people
while I was driving.
I can use it anywhere though. It uses voice and bluetooth to connect to my
smartphone. I downloaded the Blueant app to my smartphone for more options.

If you are interested , i will look for the manual & find the product
number.
BlueAnt has newer models but for some reason I bought the older model.

Let me know if you already tried it or need more info,
derrick (in getting below freezing PA)

On 11/8/2016 11:54 AM, DEBRA DEW wrote:

I cannot figure out how a quadriplegic can utilize one without being able to
touch it to turn it on. I desperately need one and have the money available,
but cannot find one to buy.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

 

RE: [QUAD-L] please tell me what kind of cellular phone with you are able to use! Samsung galaxy 4

[Joan Anglin]

Because I use the Amazon Echo for voice control of my home environmental
systems, of which one of them Is Anymote to control my TV and it is not
compatible with Samsung 7, I am not thinking of changing.  My daughter and
son in law both have Samsung 7 and do not like it as well as the 6.  One
since my son in law dropped his in the hot tub and could not revive it, they
got the two for one that was being offered.

As for me, I am quite conservative about upgrading and as long as my phone
is working I see no reason to upgrade.  If it ain't broke don't try and fix
it.

Have a great day, Joan

If it weren't for the last minute, nothing would get done - George Bernard
Shaw

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 10 November, 2016 6:53 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] please tell me what kind of cellular phone with you
are able to use! Samsung galaxy 4

 

Joan, I found this and thought you might find it interesting. Would it be an
improvement over the model you have now? 

I would certainly appreciate you giving me your opinion about this galaxy
seven model. So far, this has been the best phone I can find, and I would
not have known about it without your input. I certainly appreciate it!

 

Thank you so much for the information, it has certainly edified me.

 

http://www.bestproducts.com/tech/gadgets/news/a392/samsung-galaxy-note7-smar
tphone-phablet-review/


 
<http://www.bestproducts.com/tech/gadgets/news/a392/samsung-galaxy-note7-sma
rtphone-phablet-review/> 

 
<http://www.bestproducts.com/tech/gadgets/news/a392/samsung-galaxy-note7-sma
rtphone-phablet-review/> Samsung Galaxy Note7 Review - Latest Samsung Phone
with ...

www.bestproducts.com <http://www.bestproducts.com> 

The Samsung Galaxy Note7 arrives five years after the tech giant raised
eyebrows by launching a big Android phone with a built-in stylus. By now,
big phones have ...

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

 

  _  

From: DEBRA DEW mailto:n14...@hotmail.com> >
Sent: Wednesday, November 09, 2016 5:06 PM
To: DEBRA DEW; Ricardo Durand
Subject: Fw: [QUAD-L] please tell me what kind of cellular phone with you
are able to use! Samsung galaxy 4 

 

recardo do you think this would work for me?

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

 

  _  

From: Joan Anglin mailto:poaj...@sbcglobal.net> >
Sent: Wednesday, November 09, 2016 12:10 PM
To: 'DEBRA DEW'; quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: RE: [QUAD-L] please tell me what kind of cellular phone with you
are able to use! 

 

I am not able to push any type of buttons, use any kind of stylus unless it
is a mouthstick, or make any kind of swipe so it has been a great challenge
to find a cell phone that will work for me.  The Samsung galaxy 4 has worked
for me 95% of the time.  Mind is close to three years old and I have had to
factory reset it twice recently.  I can answer calls, make calls, use it the
entire day with the special extra capacity battery from Amazon, navigate,
ask for phone numbers from google, send and receive texts, but I cannot
scroll through information on the screen and there are times when it will
absolutely not understand who I want to call and I have to use their actual
phone number instead of their name.  I use it with a CS 50 bluetooth/hearing
amplifier.  When this one decides to give up the ghost I am going to buy
another galaxy S4.  Good luck with your search.  Just remember, voice
control is not and will probably not be as efficient as being able to use
your fingers.  Outside noise, televisions, other people talking all impact
voice recognition.  

Creativity is intelligence having fun.  Albert Einstein

 

 

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 08 November, 2016 8:54 AM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] please tell me what kind of cellular phone with you are
able to use!

 

I cannot figure out how a quadriplegic can utilize one without being able to
touch it to turn it on. I desperately need one and have the money available,
but cannot find one to buy.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] please tell me what kind of cellular phone with you are able to use!

[Joan Anglin]

I am not able to push any type of buttons, use any kind of stylus unless it
is a mouthstick, or make any kind of swipe so it has been a great challenge
to find a cell phone that will work for me.  The Samsung galaxy 4 has worked
for me 95% of the time.  Mind is close to three years old and I have had to
factory reset it twice recently.  I can answer calls, make calls, use it the
entire day with the special extra capacity battery from Amazon, navigate,
ask for phone numbers from google, send and receive texts, but I cannot
scroll through information on the screen and there are times when it will
absolutely not understand who I want to call and I have to use their actual
phone number instead of their name.  I use it with a CS 50 bluetooth/hearing
amplifier.  When this one decides to give up the ghost I am going to buy
another galaxy S4.  Good luck with your search.  Just remember, voice
control is not and will probably not be as efficient as being able to use
your fingers.  Outside noise, televisions, other people talking all impact
voice recognition.  

Creativity is intelligence having fun.  Albert Einstein

 

 

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: 08 November, 2016 8:54 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] please tell me what kind of cellular phone with you are
able to use!

 

I cannot figure out how a quadriplegic can utilize one without being able to
touch it to turn it on. I desperately need one and have the money available,
but cannot find one to buy.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: [QUAD-L] Nice and rude people

[Joan Anglin]

It's been 25 plus years for me and it never fails to amaze me how kind people 
are

To the point where they even get in the way.  However, I was with a friend and 
a young man up ahead of us in a wheelchair was approaching the same door.  My 
friend stepped ahead and opened the door for him.  The young man stated loudly" 
I can do it myself, I don't need your *** help!".  My friend quietly closed the 
door on him and then we sat and watched him struggle mightily to open a very 
heavy door.  He then opened the door for me and we went shopping!  A simple 
thank you would have sufficed I would think.

 

Creativity is intelligence having fun.  Albert Einstein

 

 

 

 

From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Tuesday, October 11, 2016 11:32 AM
To: Danny Hearn 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] Nice and rude people

 

I've never, in my 43 years, had anybody refuse to help me whenever I asked to 
open a door or pick up something I dropped.

The rudest person was a clothing retail store manager/owner stare me down and 
follow me as I weaved through her racks with my sister in the 1980s

Bobbie 

"You must fail in order to succeed"


On Oct 11, 2016, at 11:40 AM, Danny Hearn mailto:ddh...@sbcglobal.net> > wrote:

I was just up at the corner store and i asked a young black man probably in his 
mid-20's if he would mind holding the door so i could go into the store.He 
told me NO, I don't want to do that !Wow, in over 19 years post injury he 
is only about the 3rd person that was rude to memost people are so nice and 
go out of their way to help.  Do any of you guys have any nice or rude 
experiences?? I do remember Greg once said 2 guys would not help him when he 
got stuck in sand once at a golf course.  Dan H***

RE: [QUAD-L] How many pills?

[Joan Anglin]

 Depending upon my allergies I take four, none of them to do with SCI.

RE: [QUAD-L] Aaaaaaaaaaaaahhhhh

[Joan Anglin]

Ha ha ha

 

From: Robert Vogel [mailto:rhvsh...@me.com] 
Sent: Sunday, September 11, 2016 8:20 AM
To: Quadius 
Cc: greg ; quad-list 
Subject: Re: [QUAD-L] Ah

 

I see my dermatologist once a year to do a mole check.  The cost of living a 
life of skiing, sailing, and surfing—

as well as being fair skinned.

 

Last check up she saw a few brown spots on my back and said “you are getting 
some wisdom areas”.  I replied,

“umm, what is a wisdom area?”  She said “I used to call them age spots but it 
seemed to make my patients sad,

so I tell them the start to appear with age and wisdom.”   Works for me…

 

 

On Sep 10, 2016, at 9:12 PM, Quadius mailto:quad...@gmail.com> > wrote:

 

I've got a few on my chest which of just appeared over the last six months and 
they say their sunspots. Strange, my chest hasn't seen the sun in 21 years.

Maybe next time I'm at the dermatologists I can get them to burn them off with 
all of the other stuff :-)

 

On Sat, Sep 10, 2016 at 8:44 PM, greg mailto:g...@eskimo.com> 
> wrote:

I AM TURNING INTO MY GRAMPA...

I am getting big spots on my hands, he called them Gingersnaps, liver spots, 
and sun kisses.

Dime size dark red/brown. Had them checked to be safe, no problems.

I spend sooo much time in the sun, I worry a bit about skin cancer.

 

Greg

 

 

RE: [QUAD-L] QUAD-L] Camera?

[Joan Anglin]

Darn it!  Now you have me thinking that maybe I should get into photography and 
start taking pictures of gardens and flowers etc..  A few minutes googgleling 
images brought up a whole slew of ideas.  It would be very easy to rig a mouth 
trigger for a camera, but of course I would have to use a automatic zooming 
camera to get up close.  Thanks for the idea,

Greg, something to think about during these cold winter months coming.  LOL

Joan

http://www.instructables.com/id/Hands-free-Camera-Mount-for-wheelchairs-bikes-wr/

 

https://shop.gopro.com/mounts-accessories

 

https://www.bhphotovideo.com/c/product/1237147-REG/alzo_1145_wheelchair_camera_mount.html

 

http://meru.org.uk/product/flexzi-camera-mount/

 

 

 

 

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Thursday, September 01, 2016 2:04 PM
To: 'Lori Michaelson' 
Cc: 'Quad-list Post' 
Subject: RE: [QUAD-L] QUAD-L] Camera?

 

I was considering getting a camera once. I had a bracket on my prior wheelchair 
which was intended attach a tray. I figured I could rig up some sort of a way 
to attach a camera, which I could aim by steering the wheelchair and by leaning 
forward and backwards. And I found a device used trigger the shutter remotely, 
and it looked like something which I could attach to my wrist splints and bite 
on to take the picture. I never tried it. But maybe that, or something similar, 
could work. Good luck.

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Tuesday, August 30, 2016 9:14 PM
To: quad-list
Subject: [QUAD-L] QUAD-L] Camera?

 

That is one of the things I miss the most (photography). My husband was an avid 
photographer and three of the best of the best digital cameras (first a Kodak 
purchased in 1998, then an Olympus... both of which were big and bulky which 
were okay for him and I can't hold a camera anyway). I finally got after him to 
purchase a smaller sized digital camera and he finally purchased a Canon that 
he was able to keep in his T. shirt pocket. It took/takes great videos as well.

 

Anyway, my point is that I can't hold I camera at all so I always have to have 
someone take photos for me which doesn't happen anymore. My life has become one 
big medical problem. Further, after purchasing my first Smart Phone when living 
at my sister's... that takes just as good of pictures so family members took 
pictures for me using that.

 

I would love to know how people with only the use of one arm and one wrist take 
photos by themselves without some elaborate system. I need to be able to drive 
my chair and be able to turn it (my chair and the camera) every which way to 
take photos of anything when out and about by myself. 

 

~Lori

 

On Tue, Aug 30, 2016 at 8:59 PM, greg mailto:g...@eskimo.com> 
> wrote:

I had a really nice Canon EOS SLR film camera, but it got frustrating, too 
heavy, film got so costly to develop, etc. But now I thought of trying a nice 
digital. Not a point and shoot. I read some can be operated by Phone App. 
Anyone have a setup that a C5 could use. Any ideas?

 

I like the idea of a video screen back, so I don't have to hold up to my face.

Lighter than my big Canon A2, basically worthless now.

Instead of clamping to chair making it to aim. I thought monopod ballenced on 
my seat.

 

Thanks, Greg

 





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

RE: [QUAD-L] wondering

[Joan Anglin]

Yes but you need a Ooma to connect to your phone and then use the app with
echo to enable it.  Here's the link.
http://www.ooma.com/voipphone/v35.html?offer=TELO_BFDEAL&purchase_code=SBRD-
3FZP&gclid=CjwKEAjwxeq9BRDDh4_MheOnvAESJABZ4VTqPTUuHE3kZ7rzvSRO53KHeKsQPLN4U
cBZBs91AAIhpBoC83rw_wcB

 

From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] 
Sent: Sunday, August 21, 2016 9:19 PM
To: Blue 
Subject: [QUAD-L] wondering

 

Hello I was wondering if you guys know with that echo device if I'm able to
control my house phone thank you and God bless you

RE: [QUAD-L] Echo

[Joan Anglin]

Good morning

It normally only wakes up to the command Alexa, however it sometimes will
wake up and state "I do not understand the question" or something similar.
Dogs barking do not affect it, and it does respond to everyone's voices,
including my six year old granddaughter who loves to ask Alexis silly
questions.

It does not do facebook nor google.  

 

From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] 
Sent: Wednesday, August 03, 2016 9:28 PM
To: 'Joan Anglin' 
Subject: RE: [QUAD-L] Echo

 

Hello let me ask you a couple questions I would like to get the echo device
but it makes me wonder if it's going to only pick up my voice or somebody is
the other room and the person is talking are they going to pick up their
voice or only my voice and the other question also where sample a dog barks
that echo is going to pick up the sound is it very sensitive that is my main
question and the last question with the echo device can a person who did the
Facebook thank you and God bless you

 

 

From: Joan Anglin [mailto:poaj...@sbcglobal.net] 
Sent: Wednesday, August 03, 2016 10:45 PM
To: 'quad-list'
Subject: [QUAD-L] Echo

 

For those other echo owners, I would like to share a couple of things that
might be applicable.  I purchased an device called Anymote Home, and after
many trials and tribulations with lots of help from the company (a big part
of the problem was that I have a Samsung galaxy S4 which has an unusual IR
blaster) I can now operate my top box and my TV by voice.  Just in time for
the Olympics so I don't have to sit through all the commercials!!  

I also read about an app called Iris that will e-mail a contact for you in
case of emergency.  It is under the skills part of Alexa.

I wanted a holder for my Echo that would keep it away from the wall as is
recommended, and decided to go looking for a hurricane lamp type holder.  We
found a wrought iron hanging LED hurricane lamp for $7.00 at Big Lots.
Removed a couple of screws, broke that glass and Alexa fits perfectly, then
I got a decorative plant hanger for $3.00 and it now hangs above my head
when I'm in bed so I don't have to raise my voice during the night.

Now I'm on the hunt for more things that it can do for me, although I do
enjoy the music, using it as a whole house system is what appeals to me.

I also use Alexa to set appointment dates in my calendar.  It is very
convenient to be able to verbally put down my appointments and goings on.
However, she does not always understand me correctly.  The other day I told
her to add an event to calendar, Advanced Insect Identification for master
gardeners.  A couple of days later I am looking at my Google calendar and
see that she has written Advanced Anal Sex Identification For Master
Gardeners!!!  Whoops.  Hopefully no one else who shares my calendar is
wondering what I am getting up to in my old age.

Have a great day every one, I plan on it.  Joan

[QUAD-L] Echo

[Joan Anglin]

For those other echo owners, I would like to share a couple of things that
might be applicable.  I purchased an device called Anymote Home, and after
many trials and tribulations with lots of help from the company (a big part
of the problem was that I have a Samsung galaxy S4 which has an unusual IR
blaster) I can now operate my top box and my TV by voice.  Just in time for
the Olympics so I don't have to sit through all the commercials!!  

I also read about an app called Iris that will e-mail a contact for you in
case of emergency.  It is under the skills part of Alexa.

I wanted a holder for my Echo that would keep it away from the wall as is
recommended, and decided to go looking for a hurricane lamp type holder.  We
found a wrought iron hanging LED hurricane lamp for $7.00 at Big Lots.
Removed a couple of screws, broke that glass and Alexa fits perfectly, then
I got a decorative plant hanger for $3.00 and it now hangs above my head
when I'm in bed so I don't have to raise my voice during the night.

Now I'm on the hunt for more things that it can do for me, although I do
enjoy the music, using it as a whole house system is what appeals to me.

I also use Alexa to set appointment dates in my calendar.  It is very
convenient to be able to verbally put down my appointments and goings on.
However, she does not always understand me correctly.  The other day I told
her to add an event to calendar, Advanced Insect Identification for master
gardeners.  A couple of days later I am looking at my Google calendar and
see that she has written Advanced Anal Sex Identification For Master
Gardeners!!!  Whoops.  Hopefully no one else who shares my calendar is
wondering what I am getting up to in my old age.

Have a great day every one, I plan on it.  Joan

RE: [QUAD-L] Cushion question

[Joan Anglin]

I think it's very important to remember that each of us is very different.
We ask for opinions, and many times a solution or partial solution is found
in the answers.  However, because of our differences, sometimes it is not.

25 years ago I was bitten by a brown recluse spider.  This was back before
the destructiveness of their bite was widely known.  The poison spread and
tunneled throughout my right thigh and hip.  It required extensive surgery,
and took almost a year before we were done.  As a result I had to learn to
sit differently, which eventually led to a sore in my groin.

Over the years we tried everything, staying in bed, roho cushion, wound
vacuum, all ineffective in the long run.  During eight years of that time I
was unable to get insurance because I did not qualify for Social Security
disability.  After a particularly nasty flare up and six months in a sand
bed, a very kind and generous plastic surgeon who treated me for years and
charged me $25.00 a visit, said I had a couple of options.

Continue treating this and doing all the preventive staying in bed etc. etc.
which led to no life to speak of, or get up and start a life treating this
wound.  I made the decision to just deal with it.  17 years later I still
have the wound, it has only flared up a couple of times but considering
where it is located it is understandable.  I go to wound care once a month,
and we watch it like a hawk.

For me it was the right decision, at 77 I know that my skin is becoming more
fragile and I am glad for the years when I was able to fully live my life.
Luckily I have been fortunate in having no other pressure sores that have
ever developed into serious problems.

I am not advocating my solution for anyone else, but I'm just putting it
forth to point out that we are all different.  Have a great day everyone,
and enjoy the warm weather.

 

From: cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Saturday, July 30, 2016 7:03 PM
To: lwillis82...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Cushion question

 

With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I
have been there, done that. It took 6 months to clear.  I use a Roho and am
pressure sore free now.

Have someone check your bottom often. I used to have to go to the wound
center every week until it cleared.For 6 months the only time I was off my
butt was the day I went to the wound center. Never want to do that again.
Rose

 

In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time,
 lwillis82...@gmail.com writes:

I have had a pressure sore on my bottom for over ten years now. It refuses
to heal. I got it during a hospital stay for an infection. I got a roho
shortly thereafter. It healed other sores but not this one. I thought I
would give this one a try.

-- Forwarded message --
From: <  cviewe...@aol.com>
Date: Saturday, July 30, 2016
Subject: Re: [QUAD-L] Cushion question
To:   lwillis82...@gmail.com



Is your current Roho not working? I have used a Roho for more than 30 years
and would be afraid to go to something else and possibly get a pressure
sore. Rose

 

In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time,

lwillis82...@gmail.com writes:

Hey guys. I am trying to get a new chair and cushion. My advisor wants me to
get a new style cushion by Ride Designs. Any of you familiar with it? Take a
look at   ridedesigns.com and tell me what you
think. I value your opinion. I currently use a roho. Thanks, Larry WILLIS

Larry Willis 

Retired and proud of it

 


Begin forwarded message:

Resent-From:  
quad-list@eskimo.com
From: Bobbie Humphreys <

bobbiehumphre...@gmail.com>
Date: July 27, 2016 at 2:39:21 PM EDT
To:  
quad-list@eskimo.com
Subject: [QUAD-L] Pens?

I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any
pressure.
Bobbie

Smile Everyday

=

 

RE: [QUAD-L] New spinal cord injury movie

[Joan Anglin]

I feel rather differently about living life as a quadriplegic.  None of us is 
able to know what other people do behind closed doors, nor do we know what 
pain, suffering, and agony other people go through.

  I have a friend who I feel has it much more difficult than I do.  True, he 
has use of all of his limbs, and he can walk with the help of a walker.  
Because of an injury to his legs where they were totally crushed, he is in 
constant pain which has not responded to any of the treatments.  He is only 35, 
was an agriculture teacher who was chosen as one of the state’s outstanding 
teachers.  He is no longer able to work, has four children who can’t understand 
what happened to daddy.  He tries so hard to keep involved in his children’s 
lives, be a great husband to his wife, but in recent months has lost over 60 
pounds, cannot sleep more than an hour at a time.  He’s not a quadriplegic, but 
I will take my life over his.

Would I choose to be a quadriplegic!  Absolutely not.  But im one, I hate many 
aspects of this life, but I have chosen to make the best of it.  I look up to 
all of you who have been quad so many many years, Bobbie, Nan, Lori, and too 
many others to name.  My 25 years has also been a roller-coaster, but I will 
choose to ride it as hard as I can rest of my life.

Sorry, I’ll get off my soapbox now.  Joan

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Sunday, May 01, 2016 2:19 PM
To: HOSNI AL-KHATIB ; quad-list 

Subject: Re: [QUAD-L] New spinal cord injury movie

 

I feel the same way that you do Hosni ... I just did not want to come out and 
say/sound cynical. I was married and my life was like that but I lost it on 
June 11, 2012 when my husband passed away. Yes, it is fiction so for 
able-bodied people... it gives them the wrong impression as to the real life of 
a quadriplegic. Things like this can and do happen but, for the most part, our 
problems are too much for others to take on.

 

On Sun, May 1, 2016 at 4:47 AM, HOSNI AL-KHATIB mailto:hosnialkha...@hotmail.com> > wrote:

Hi My Friends

 

This Is Not The Real Life Of A Quadriplegic Person,It's All Fiction My 
Friends,Life Is So Hard For Us...What Can I Say,And I Don’t Want Fake Kindness 
And Sympathy Just Because I’m A Quadriplegic. GOD Bless You





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

[QUAD-L] Amazon Echo again

[Joan Anglin]

Just saw this and thought I would share it:
http://www.amazon.com/gp/product/B0178IC734/ref=ox_sc_mini_detail?tag=slickd
eals&ascsubtag=c5d5f1f60e4e11e684590a0d5ffcf2390INT&ie=UTF8&psc=1&smid=ATVPD
KIKX0DER

[QUAD-L] Amazon Echo

[Joan Anglin]

Got it, set it up, and it was a snap to do.  Started my shopping list, set
up traffic information so that my daughter can find out what's going on
before leaving to work, synced it with Google calendar, tried it out with a
few jokes, listened to some music, my oldest daughter who helped me set it
up by pushing the button on top of the Echo-and that was all she had to
do-already started me up a to do list of things she wants me to do tomorrow!
And all of that only took about 45 minutes, just WOW :) :)

Very anxious to see how it works with Home Automation, I will get a couple
of plugs tomorrow, and my son bought me a router that will allow me to
interact with my X-10 built in plugs and switches.  Maybe I can get open
sesame to work again, and be able to turn off my heater and fan when I want
to!

Very anxious to hear what others are doing,

Joan

RE: [QUAD-L] Donating to organizations

[Joan Anglin]

 Check consumer reports, they have an article on nonprofit organizations and
whom to contact to find out more.  It is wise to be safe

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, April 28, 2016 3:13 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Donating to organizations

Does anybody know of a reputable organization that I could donate to which
the proceed rations very high to the recipients?
Or a link that shows how it's broken down?
Bobbie 

Smile Everyday

RE: [QUAD-L] 911 Emergency app tells rescuers HOW to find and save you at the touch of a button | Daily Mail Online

[Joan Anglin]

Really good information, very glad you shared.  My ECHO is here :)

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, April 28, 2016 12:42 PM
To: RONALD L PRACHT 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] 911 Emergency app tells rescuers HOW to find and save you 
at the touch of a button | Daily Mail Online

 

I have. Also I have a van with a ezlock, I use to drive but not since I took 
myself off the road in 2010.

About 5 years ago I went to 2 fire & rescue houses and showed them how to 
manually release my ezlock system.

Actually, I called ahead and told them what I wanted to accomplish and they 
gathered as many volunteers as possible.

When I got there I stayed locked in and said;

"Ok, you just responded to a emergency call and found me just as I am, locked 
in and unresponsive."

"How are you going to get me out?"

 

They didn't know.

I showed them the manual release button on the ezlock.

 

Everyone who has a van and and ezlock system or another type of tie down system 
should visit there local fire and rescue house.

Bobbie 

Smile Everyday


On Apr 28, 2016, at 3:07 AM, RONALD L PRACHT mailto:r.pra...@sbcglobal.net> > wrote:

Have any quads on the list let the fire department know they use a wheelchair 
and what bedroom they are in?

 

Ron

 

On Wednesday, April 27, 2016 10:45 PM, Jim Lubin mailto:jlu...@eskimo.com> > wrote:

 

http://www.dailymail.co.uk/sciencetech/article-3023155/The-app-save-LIFE-Emergency-service-tells-rescuers-save-touch-button.html

 

 

https://www.rapidsos.com/

 

[QUAD-L] Amazon echo

[Joan Anglin]

Just got notified that my echo will be here on Thursday.  I also ordered two
TP-link plugs for $30.00 each that work directly with echo without a hub
required.

Also, going through that enormously long list I noticed that OverSeer now
works with echo.  I have contacted them to see what we can do with what I
have and see how much home automation I can get.  I have built in X-10 plugs
and switches in my home and I am hoping that I will be able to utilize them.
I’ll let you guys know what happens.

Joan

 

Spring in Reno-last week’s 70°, Monday 44° and snow, this coming Saturday
and Sunday 74°.  Nothing like a roller coaster.  :)

RE: [QUAD-L] just another day in quadadise

[Joan Anglin]

It is frustrating to make plans on and then waits and nothing happens, but 
people’s lives are busy too and I’m always grateful when someone does take the 
time to help me, even if it’s their time frame and not mine.

Ron, I hope you have a good time with the Rio, I will be jealous but hope that 
you can enjoy it soon.  Joan 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Friday, April 22, 2016 9:37 AM
To: RONALD L PRACHT ; Quad-list Post 

Subject: Re: [QUAD-L] just another day in quadadise

 

Glad you got it Ron, you are right about trying to not get mad or hold 
resentments towards people because all that does it harms the one holding that 
stuff inside...On other hand though if a person tells you they will come in one 
of the next 3 days it is a shame they can't at least call and let you know 
about it, could be he just forgot or had other things of life come up on him. 
hope  you get it going soon, let us know. Dan H**

 

On Thursday, April 21, 2016 10:49 PM, RONALD L PRACHT mailto:r.pra...@sbcglobal.net> > wrote:

 

Well peeps,

I get my rio dragonfly( attachable powered handcycle) from ebay last week 
and I was happy about potential fun I would have with it this spring/summer. 
This guy I know told me he would come and help me get it fitted either tues, 
wed or thurs of this week. in preparation I read the manual , put some of it 
together, charge battery and get it set up to make it easy as possible for when 
he comes. I wait all week and the guy never shows up or even calls me. I told 
myself that I wasn't going to get mad so I rigged the legs of the cycle on jack 
stands in my room and was able to adjust them to the right length by myself. 
Its all together now and adjusted as well as charged. If my mom will just hold 
the front of the bike, Im going to try to attach it tomorrow for the first 
time. I would have tried that myself but the front end has a spring that brings 
the wheel back to center when you turn and that needs adjustment I think. 
Somehow..someway Im going to get this thing going by hook or by crook. 
I guess anything you want bad enough you can figure out, but it sure is a big 
deal to do the simplest things as a quad.

 

Ron

 

[QUAD-L] Amazon Echo

[Joan Anglin]

Here's some good information on Home Automation.
http://forum.universal-devices.com/forum/115-amazon-echo/

RE: [QUAD-L] Amazon Echo anybody

[Joan Anglin]

I am so used to speech recognition for using everything, computer, cell phone, 
that I am aware that is not a perfect technology.  Because I have no movement 
below my shoulders I am grateful for every little thing that makes it easier 
for me to continue to live in my own home.  I have a Si-Care pilot which is 
about 14 years old, and it is quickly breaking down with age (sort of like me) 
and it uses X-10, which is obsolete but by using an application it seems to be 
possible to use my X-10 which is built in and could perhaps save me quite a bit 
of money in adaptive switches etc..  But thank you for the warning, and I will 
probably not use it very much for music as I usually have my computer on which 
uses speech recognition and does not like to share!  :) I’m very excited.

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Tuesday, April 19, 2016 2:41 PM
To: Joan Anglin ; quad-list 
Subject: Re: [QUAD-L] Amazon Echo anybody

 

Yes it was a long list but you have to d/l each & every app or purchase ECU - 
type items and my Echo doesn't always listen to me which gets frustrating. It's 
still a newer device but buyer beware.  :o)

 

On Tue, Apr 19, 2016 at 12:08 PM, Joan Anglin mailto:poaj...@sbcglobal.net> > wrote:

Holy Cow.  That is the most comprehensive list I’ve ever seen on the echo.  I’m 
going to have to look into Homeseer and another one I can’t remember the name 
of for Home Automation and control of TV.  Thanks so much for posting

 

From: jlu...@makoa.org <mailto:jlu...@makoa.org>  [mailto:jlu...@makoa.org 
<mailto:jlu...@makoa.org> ] On Behalf Of Jim Lubin
Sent: Sunday, April 17, 2016 10:51 PM
To: Joan Anglin mailto:poaj...@sbcglobal.net> >
Cc: Gmail mailto:bobbiehumphre...@gmail.com> >; 
quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: Re: [QUAD-L] Amazon Echo anybody

 

I've been researching the Echo deciding about getting one. Sure looks neat. 

 

This is something I found 
http://lovemyecho.com/2016/03/04/complete-listing-of-alexa-skills-as-of-3416/

 

On Sun, Apr 10, 2016 at 6:04 PM, Joan Anglin mailto:poaj...@sbcglobal.net> > wrote:

I'm jealous!  :-) I want one so bad I can taste it.  However I am going to
use D-link switches and plugs as I like the price so much better.  If you're
going to use it on a table lamp you can use any light bulb you want to use,
same thing for overhead lights that are controlled by a switch.  Good luck,
but us know how it goes.  Joan


-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com 
<mailto:bobbiehumphre...@gmail.com> ]
Sent: Sunday, April 10, 2016 12:42 PM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] Amazon Echo anybody

Someone on the list said they have a Amazon Echo.
I'm getting one but have a question.
I'm getting a WeMo hub, what light bulb should I get?
FYI ~ It is not a 3 way bulb.
Bobbie

Smile Everyday

 





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

[QUAD-L] FW: Deal Alert: Amazon Echo on sale for one day only!

[Joan Anglin]

 

 

From: Android Central [mailto:newslett...@androidcentral.com] 
Sent: Tuesday, April 19, 2016 9:48 AM
To: poaj...@sbcglobal.net
Subject: Deal Alert: Amazon Echo on sale for one day only!

 










  

 









 



Deal Alert: Amazon Echo is on sale for $153 for one day only!


Amazon's Deal of the Day includes a 15% discount on the Echo, which is now 
available for $153. The Amazon Tap is also on sale for $111. The deal is valid 
for one day only, so if you're interested, head to Amazon now to get your hands 
on the Echo for $153.


See it on Amazon!




 





Share Android Central with friends:






 




Click here to unsubscribe.



  

 

RE: [QUAD-L] Amazon Echo anybody

[Joan Anglin]

Holy Cow.  That is the most comprehensive list I’ve ever seen on the echo.  I’m 
going to have to look into Homeseer and another one I can’t remember the name 
of for Home Automation and control of TV.  Thanks so much for posting

 

From: jlu...@makoa.org [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin
Sent: Sunday, April 17, 2016 10:51 PM
To: Joan Anglin 
Cc: Gmail ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Amazon Echo anybody

 

I've been researching the Echo deciding about getting one. Sure looks neat. 

 

This is something I found 
http://lovemyecho.com/2016/03/04/complete-listing-of-alexa-skills-as-of-3416/

 

On Sun, Apr 10, 2016 at 6:04 PM, Joan Anglin mailto:poaj...@sbcglobal.net> > wrote:

I'm jealous!  :-) I want one so bad I can taste it.  However I am going to
use D-link switches and plugs as I like the price so much better.  If you're
going to use it on a table lamp you can use any light bulb you want to use,
same thing for overhead lights that are controlled by a switch.  Good luck,
but us know how it goes.  Joan


-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com 
<mailto:bobbiehumphre...@gmail.com> ]
Sent: Sunday, April 10, 2016 12:42 PM
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: [QUAD-L] Amazon Echo anybody

Someone on the list said they have a Amazon Echo.
I'm getting one but have a question.
I'm getting a WeMo hub, what light bulb should I get?
FYI ~ It is not a 3 way bulb.
Bobbie

Smile Everyday

 

RE: [QUAD-L] Amazon Echo anybody

[Joan Anglin]

I'm jealous!  :-) I want one so bad I can taste it.  However I am going to
use D-link switches and plugs as I like the price so much better.  If you're
going to use it on a table lamp you can use any light bulb you want to use,
same thing for overhead lights that are controlled by a switch.  Good luck,
but us know how it goes.  Joan

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Sunday, April 10, 2016 12:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Amazon Echo anybody

Someone on the list said they have a Amazon Echo.
I'm getting one but have a question.
I'm getting a WeMo hub, what light bulb should I get?
FYI ~ It is not a 3 way bulb.
Bobbie 

Smile Everyday

RE: [QUAD-L] Squish

[Joan Anglin]

I have the same problem with frogs in my green house!  I don't want to
squish them, they eat insects so I sometimes sit very quietly while hoping
they move!  Joan

 

From: greg [mailto:g...@eskimo.com] 
Sent: Tuesday, April 05, 2016 9:53 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Squish

 

I just committed Reptile-icide. I went outside over a rug in front of the
door and squish. A lizard was under the rug. They are very common,
everywhere round here. But I still feel kind of bad. I like them. I run over
scorpions often on purpose when I see them inside the house, but they can
hurt the pets.

 

Greg

RE: [QUAD-L] One More ?

[Joan Anglin]

Holy cow!  I am lucky to get 18 months before they will not last a day.  I’m in 
my chair usually 13-14 hours, and only 1/3 of that is usually what I call, go 
mode where I am running around outside or out shopping.  The rest of the time 
I’m usually just moving around in the house etc..  I wish they would last that 
long.  Joan 

 

From: Bryce Willis [mailto:lwillis82...@msn.com] 
Sent: Thursday, March 24, 2016 5:50 PM
To: quad-list@eskimo.com
Subject: Fw: [QUAD-L] One More ?

 

Lol…. you are right, pretty amazing. Unfortunately, that is pretty much it when 
it comes to my good luck

 

Sent from Windows Mail

 

From: wheelch...@aol.com
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎8‎:‎29‎ ‎PM
To: Larry Willis  , quad-list@eskimo.com

 

Original Batteries since 2008 ?  That is unheard of.  Go out and purchase a 
lotto ticket. You are definitely LUCKY!

Happy Easter!

 

Best Wishes

 

In a message dated 3/24/2016 6:29:56 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:

I also have an Arrow. Got it new in 2008. I charge it once or twice a week. It 
still has the original batteries and they show no sign of weakening. I charge 
it when the meter shows about half a tank. 

 

Sent from Windows Mail

 

From: nichole rohling  
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎6‎:‎55‎ ‎PM
To: wheelch...@aol.com, quad-list@eskimo.com

 

Excellent advice! Lesson learned the hard way!

Happy Easter!

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Thursday, March 24, 2016 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] One More ?

 

This is an after thought.   There are 4 major holidays each year.  
ThanksGiving, Christmas, Easter and 4th of July.  When you have issues, have 
your evaluations and repairs scheduled in between any holiday. CMS doesn't pay 
for emergency and overtime to perform repairs.

Hope this helps.

Happy Easter.

Best Wishes

 

In a message dated 3/24/2016 4:37:15 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

I have an Invacare Action Arrow Storm and only 1 port which is on the joystick. 
We never knew my charger shows empty battery, half charged and charged until 
last night (pathetic really, after almost 18 yrs you’d think I would know). 

Learned something new and think I will start charging every other day. Thank 
you!

 

 

 

From: Quadius [mailto:quad...@gmail.com] 
Sent: Thursday, March 24, 2016 4:19 PM
To: Danny Hearn
Cc: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] One More ?

 

I have heard all kinds of different answers. Me personally I charge my cheer 
every other day. Do you had another charge port?  What type of chair do you 
have? One thing I do is check to see if the chair is charging by turning my 
display on.

On Thursday, March 24, 2016, Danny Hearn  wrote:

They tell me to try and never let it get low and to charge every nightthey 
said waiting to charge it would weaken the batteries.  Dan H***

 

On Thursday, March 24, 2016 3:50 PM, nichole rohling  
wrote:

 

If you have Group 24 Gel Cell batteries do you charge your chair every night 
even if you barely use it or charge it once it gets low?

I’ve been told both ways so I’m asking the experts J

 

Thank you

Nicki

 

RE: [QUAD-L] cell phone

[Joan Anglin]

A Bluetooth headset to connect to the phone, because I cannot touch any buttons 
unless I can reach them with my shoulders or head.  :-) so I can do many things 
hands free.  So very cool.

-Original Message-
From: Eric Olson [mailto:whee...@wi.rr.] 
Sent: Sunday, March 20, 2016 1:48 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] cell phone

What are you connecting to by bluetooth?

On 3/20/2016 1:58 PM, Joan Anglin wrote:
> Without a doubt the Samsung galaxy works best for me, but disable S voice and 
> use OK google.  With the blue tooth it is totally hands free to make a call, 
> receive a call, navigate, message someone, raise and lower volume, ring tone, 
> set alarms etc. etc. and so forth.  :-)
>
> -Original Message-
> From: Eric Olson [mailto:whee...@wi.rr.com]
> Sent: Sunday, March 20, 2016 11:14 AM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] cell phone
>
> Thinking about getting a cell phone.  Which is better for doing things by 
> voice: iOS or Android?
>
> ---
> This email has been checked for viruses by Avast antivirus software.
> https://www.avast.com/antivirus
>
>


---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

RE: [QUAD-L] cell phone

[Joan Anglin]

Without a doubt the Samsung galaxy works best for me, but disable S voice and 
use OK google.  With the blue tooth it is totally hands free to make a call, 
receive a call, navigate, message someone, raise and lower volume, ring tone, 
set alarms etc. etc. and so forth.  :-) 

-Original Message-
From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Sunday, March 20, 2016 11:14 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] cell phone

Thinking about getting a cell phone.  Which is better for doing things by 
voice: iOS or Android?

---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

RE: [QUAD-L] New wheelchair is needed now fast.

[Joan Anglin]

I wish it were that easy for me, I cannot try out a new chair unless it’s 
equipped with chin control or sip and puff and nobody in this area has such an 
animal!  But to be truthful, I really like my Omega Trac and am willing to pay 
for the repairs to it if we cannot repair ourselves.  I bought it over 10 years 
ago from Ebay and it was in Hong Kong.  I had it shipped to Texas and 
electronics installed.  Because I was not approved for disability and had to 
wait until I turned 65 to get insurance I always bought my own chairs and had 
to buy them used because I could not afford a new one.  We bought two other 
omega tracs for parts, and have managed to keep this going.  Before the hour 
meter broke I had 900 hours on the meter and that was four years ago.  I have 
looked at other wheelchairs, primarily Permobile but they do not allow me the 
versatility and safety aspects of the omega trac.  That’s saying that I will 
probably stay with this chair until I die.  J J I should probably get a chair 
in case this one dies permanently, but me thinks I’ll cross that bridge when I 
get to it.  Good luck in finding a chair, and be sure to listen to all the 
excellent advice the others on this forum have.

Joan in Reno and where it is beautiful and 64 today, when snow predicted on 
Sunday and a high of 40.  Wait 5 minutes and the weather will change.

 

From: Danny Espinoza [mailto:da...@immortaldesigns.co] 
Sent: Wednesday, March 02, 2016 10:31 AM
To: 'DAVID LEWIS'; 'Quad-list Post'
Subject: RE: [QUAD-L] New wheelchair is needed now fast.

 

1>You need a prescription from a physical therapist that generally needs 
specific wording that your local chair company will help guide you with 
generally on their first visit.
2>Then your local chair company should come with different types, brands, arm 
rests, seats, seat backs and leg systems for you to try and see which you like. 
My chair company lent me two different chairs for a week to decide between them.
3>After you’ve decided they will give you a quote and work on getting approval 
through your insurance.

4>Once approved the then order, build and deliver it.

 

The chair I got 4 months ago was the Permobil m300 
  in which is a mid-wheel chair that I’ve 
been very happy with. The one thing that my insurance didn’t cover that I had 
to pay out of pocket for was the seat elevator.
I hope this helps!

-Danny

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Wednesday, March 2, 2016 9:31 AM
To: Quad-list Post 
Subject: [QUAD-L] New wheelchair is needed now fast.

 

My old wheelchair has had it. The battery and parts are not working.

Im due for a new one its been a long time.

 

Please tell me the proper steps to get one again. Its been a long time.

Im a quad for over 30 years. I dont need nothing fancy. I just have a quickie 
now.

I cant use those hover rounds i need arm railings.

 Pretty sure i need the Dr ok first. I did that last year from my old dr.

 and got a form saying i got approved ''But '' i have to submitt a complete 
claim

  anyone know what that about? thanks. 

RE: [QUAD-L] re: Shoulders

[Joan Anglin]

LOL

 

From: Carolyn Boyles [mailto:cboy...@swbell.net] 
Sent: Friday, February 19, 2016 5:38 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] re: Shoulders

 

Not growing old as a Quad is an even great b**tch.

I need to have an arthritic shoulder replaced someday. Someday.

Carolyn

RE: [QUAD-L] Temp

[Joan Anglin]

JAbsolutely made my dayJ

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Tuesday, February 16, 2016 1:04 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Temp

 

Must be pretty warm cause people are always saying, "Larry, man you are hot!" 
Yep, makes sense! LOL

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Gmail 
Date: February 16, 2016 at 2:30:29 PM EST
To: greg 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Temp

98.5

Smile Everyday


On Feb 16, 2016, at 12:10 PM, greg  wrote:

What's your averge body temp?

Mine ranges between 95.7 and 96.5

On good days.

Greg

RE: [QUAD-L] AZ Weather

[Joan Anglin]

Well, we had a month of not getting over 30°, and now we are basking in quite 
warm weather for us-low to mid fifties and I was able to sit outside for about 
2 hours reading.  Up against the house that was about 65°and somewhat sunny.  
Warmer would’ve been nice, but I will take it all as I know that we’re going to 
get lows down into the teens again.  I’m looking forward to March 13 when we 
will get more daylight hours in the evening.  Right now the sun is going down 
at 4:00 PM.  Enjoy the weekend everyone.

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Friday, February 12, 2016 5:51 PM
To: greg
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] AZ Weather

 

In New Jersey tomorrow's high will be 18° and a low of -5° without the the wind 
that will be 15-20mph

Burr.Bobbie 

Smile Everyday


On Feb 12, 2016, at 6:29 PM, greg  wrote:

Poor us in Arizona, Phoenix is between 85-90 all week long. Then drops all the 
was to the looow 80s.

RE: [QUAD-L] Imitations

[Joan Anglin]

No, but there's not much to imitate when you don't move below the shoulders
of!  :-) however, my daughter will mimic my facial expressions, no matter
how hard I try to conceal what I'm thinking she will zero in on that and
make my facial expression before I even do!  It's pretty funny, and now the
six year old granddaughter is learning from her Mom.  I think I'm in
trouble.  Joan

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, February 11, 2016 8:17 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Imitations

Has anybody ever had someone imitate you as a quad?
Like, I wave to my brother and he waves back with his hand in a fist.
Pete inmates how I hold a mug and drink or working a remote for TV.
I always end up laughing so hard I cry.
Bobbie 


Smile Everyday

RE: [QUAD-L] Wheelchair designs

[Joan Anglin]

I absolutely love the snow.  Especially today, the sun was out all day and I 
was able to sit out by the house and watch the dogs play.  It was 37°officially 
but next to the house it was 60°which was great for a short while.  But it is 
so pretty, and the mountain behind us just sparkled with diamonds.  Even though 
I love hot weather, I wouldn’t want to give the season’s up.  Joan

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Monday, February 01, 2016 11:27 AM
To: Joan Anglin
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair designs

 

Lucky you with all the snow.Bobbie 

Smile Everyday


On Jan 31, 2016, at 4:58 PM, Joan Anglin  wrote:

We were supposed to get 4-6 inches of snow, surprise 14 inches and counting.  
It is suppose to snow until 9:00 PM, maybe another 4 inches.  Needless to say 
I’m on the inside, so while surfing the Internet found this link.  Pretty 
interesting stuff.

http://www.designboom.com/design/wheelchair-design/

Have a great day every one, stay warm Joan

RE: [QUAD-L] Copy Paste

[Joan Anglin]

Many good ideas.  Thanks for sharing.  Joan

 

From: Quad Dude [mailto:thequadd...@gmail.com] 
Sent: Monday, February 01, 2016 10:36 AM
To: greg
Cc: Quad-list@eskimo.com
Subject: Re: [QUAD-L] Copy Paste

 

Greg,

 

The following website suggests 10 different options from simple to more complex:

 

https://www.raymond.cc/blog/make-your-computer-automatically-perform-tasks-for-you/2/

 

Hope this helps!

 

Steve - C4, 27 years

 

On Mon, Feb 1, 2016 at 12:25 PM, greg  wrote:

Anyone know of a progrm for a Windows, PC, Laptop, that will stay in the front, 
that you can set f-keys or some key combo to paste preset text?

 

That could be useful for me. Thanks,

Greg

 

[QUAD-L] Wheelchair designs

[Joan Anglin]

We were supposed to get 4-6 inches of snow, surprise 14 inches and counting.
It is suppose to snow until 9:00 PM, maybe another 4 inches.  Needless to
say I'm on the inside, so while surfing the Internet found this link.
Pretty interesting stuff.

http://www.designboom.com/design/wheelchair-design/

Have a great day every one, stay warm Joan

RE: [QUAD-L] Insurance question

[Joan Anglin]

I would suggest that you take the time to call Social security and talk to any 
disability specialist.  Or you have a local office talk to them, just be 
prepared to take a long time.  Good luck

 

 

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Tuesday, January 12, 2016 6:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Insurance question

 

I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Jim Lubin 
Date: January 12, 2016 at 8:13:16 PM EST
To: quad-list@eskimo.com
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop

https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

RE: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - Disability Scoop

[Joan Anglin]

That’s great news for people who are disabled before they were 26, but does not 
help the rest of us.  Joan

 

From: jlu...@makoa.org [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin
Sent: Tuesday, January 12, 2016 5:13 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop

 

https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

RE: [QUAD-L] Too much

[Joan Anglin]

Larry, you are an amazingly strong person.  Sometimes life just doesn’t seem 
fair, and you are getting a triple dose.  You have an amazing family and I can 
relate to having a 15 year old be your caregiver as my daughter was 15 when I 
broke my neck and she stepped right up and learned how to take care of me.  
Prayers coming your way, those in the closet and out.  Joan

 

From: Quad Dude [mailto:thequadd...@gmail.com] 
Sent: Sunday, January 10, 2016 6:58 AM
To: Larry Willis
Cc: Quad-list@eskimo.com
Subject: Re: [QUAD-L] Too much

 

Good thoughts and prayers coming your way. Wishing you peace and comfort, Larry…

 

Steve - C4, 27 years

 

On Sat, Jan 9, 2016 at 7:30 PM, Larry Willis  wrote:

Well, we buried my sister-in-law and mother-in-law on Thursday. My wife MELISSA 
barely made it through the day. Then last night about midnight she took an 
ambulance ride to the hospital. Heart failure causing water retention. Since 
Monday she had gained 25 pounds of fluid. They are removing that, putting her 
on oxygen and blood thinners. Her BP was 175/125, dangerous territory. She 
still can barely breathe. My son Bryce is taking care of me. He is only 15 and 
a great kid. These are rough times on the WILLIS plantation, peeps. If you have 
any extra prayers stashed away in the closet, cash a few of them in for us. 
Thanks.

Larry Willis
Retired and proud of it

 

RE: [QUAD-L] New wound

[Joan Anglin]

Steve

I have been battling a wound in the groin area for nine years now, and have 
just decided to live with it.  Surgery was an option several years ago, but 
because it is in an area that has so many nerves I could not find a surgeon 
that wanted to take the risk.  It will almost close up but then it opens up 
again.  I did do all of the proper things like six months in bed, LOL-that 
wasn’t fun.  The wound vacuum would not adher, so we finally just gave up and I 
go into the wound clinic once a month just to be monitored and get supplies.  
The older I get the more fragile my skin becomes.  So I figure I will take it 
to my grave.  (not my grave as I donated my body to the university medical 
school, so they will get to check it out) my wound does not get any better if I 
stay of my chair, so I am fortunate that I can still stay in the chair for the 
15 hours IM up.  I’m much more comfortable in my chair than in bed.

Joan

 

From: Quad Dude [mailto:thequadd...@gmail.com] 
Sent: Friday, January 08, 2016 9:11 AM
To: diannal...@aol.com
Cc: Quad-list@eskimo.com
Subject: Re: [QUAD-L] New wound

 

My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.

 

It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.

 

Steve - C4, 27 years

 

On Fri, Jan 8, 2016 at 11:55 AM,  wrote:

try a wound vac yet?





-Original Message-
From: Quad Dude 
To: Gmail 
Cc: Quad-list@eskimo.com 
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound

Bobbie, 

 

My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…

 

Steve - C4, 27 years

 

On Thu, Jan 7, 2016 at 10:19 PM, Gmail  wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

 

 

RE: [QUAD-L] New wound

[Joan Anglin]

We have used Aquacel AG for years and it is fantastic.  Good luck with your
wound, that is so frustrating.  Our skin just keeps getting more fragile as
we get older.  I ended up buying a miracle foam mattress four years ago from
Amazon, and no new breakdowns since.  I do not get turned at night, so I am
in the same position for 9 hours, so yes I am very happy with the mattress.
Joan

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, January 07, 2016 7:20 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New wound

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want
4" or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie 

Smile Everyday

[QUAD-L] A good classified

[Joan Anglin]

This seems to be a good classified page, some of the things are very pricey
but others seem to be quite reasonable.
http://www.sportsabilities.com/#!sa-classified/c1amu

RE: [QUAD-L] Newspaper Article

[Joan Anglin]

Good luck with your endeavor.  I’m in a similar situation, my van is in 1990 
and is really getting beat up.  Happy new year.  Joan

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Tuesday, December 29, 2015 7:23 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Newspaper Article

 

A great article, Greg! I hope you raise a couple million (and remember your bud 
in Ky). I can sympathize, though. My first van was a money pit, a lemon, and a 
constant pain in the anus. It was a NEW '79 E150 and I drove it till 2002 when 
I bought a '96. Anyway, hope you have great success my friend. God bless.

-- Forwarded message --
From: greg 
Date: Tuesday, December 29, 2015
Subject: [QUAD-L] Newspaper Article
To: quad-list@eskimo.com


http://www.eastvalleytribune.com/arizona/article_2940e4e4-ae50-11e5-ae0d-1fcdac21f3ee.html


Check me out, man he is good looking!
Greg

RE: [QUAD-L] Falling Forward

[Joan Anglin]

Awesome Greg!

I have faced planted on my computer keyboard several times, not much fun but 
not near as exciting as what you did?  Merry Christmas

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Thursday, December 24, 2015 8:42 AM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Falling Forward

 

Now that would make a great video, Greg! Glad you weren't hurt.

-- Forwarded message --
From: greg 
Date: Thursday, December 24, 2015
Subject: [QUAD-L] Falling Forward
To: quad-list@eskimo.com


I hate wearing my chest strap, so I rarely do unless going out by myself. I do 
sometimes fall forward and get stuck, have to call for help so someone can come 
and sit me back up. This morning I did it big tine.

I keep a small pillow on my lap, to set the phone, book, Kindle, snacks, on. Or 
my dog to lay on. This morning I had a cinnamon roll on a paper towel on my 
pillow. If messy, I often just lift the whole small pillow up. I just tried and 
the pillow fell, hitting my joystick. It spun me around, hitting the recliner 
chair, making me fall forward, smashing the joystick forward all the way. I 
pushed the chair into the side table, knocking the table over, everything 
crashing to the ground. Breaking Christmas ornaments. Pushing the sofa half way 
across the room. Almost running over my dog. Luckily, I had just set my hot 
chocolate down.

I fall forward now and then, but never crashing into everything that bad.

Greg

RE: [QUAD-L] enough with the bowels

[Joan Anglin]

This just goes to show how different we all are, and not just injury level.  I 
do program every morning about 6:30 AM, and it usually takes 10 to 20 minutes.  
Every evening I take Metamucil, Benefiber and Align pro biotic.  I've been on 
this regime for five years after consulting with a gastroenterologist and it 
definitely works for me.  He was absolutely awesome and worked with me very 
closely until I got regulated quite well.  You might want to see a 
gastroenterologist and get some ideas from him or her.  Good luck, my life is 
so much easier than it was for the 20 years before.  Joan

RE: [QUAD-L] Itchig Head

[Joan Anglin]

I have been using Olive Leaf for itching for a couple of years.  I ran out last 
month, and could not wait until I got my refill from Amazon.  I do have 
allergies and I’ve always used Benadryl, but because of recent studies about 
Benadryl and Alzheimer’s my Dr. Suggested I not use it.It takes about three 
weeks to get relief from the itching but it sure works well for me.  Joan  

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Monday, December 21, 2015 3:08 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Itchig Head

 

Sounds very much like allergy. Try some Benadryl. If that doesn't help, try 
Claritin, etc. Do you take Percocet? It sometimes causes itching. Good luck, my 
friend. Larry

-- Forwarded message --
From: greg 
Date: Monday, December 21, 2015
Subject: [QUAD-L] Itchig Head
To: quad-list@eskimo.com


My head use to itch so bad, lots of flakes. I used Crisco or Coconut oil, and 
it helped lots. But lately my head itches so bad, no flakes, and nothing helps. 
I'm up all night trying to scratch my scalp. Like bugs, but nothings there. 
Dermatologist gave me samples of itch free shampoos, but said everything looks 
fine. I do not think the cold weather is causing it. Never has before. My face 
too, it's like I have loose hairs tickling my face.

Can allergies cause that? My left eye is watering bad for 3 days now. I flushed 
it with Visine, and a saline wash, and nothing. The outside edge gets crusty, 
goopy, and feels like I may have scratched it rubbing it so much.

Sounds like another doc check up, Greg

RE: [QUAD-L] Cold Out

[Joan Anglin]

The high is supposed to be 30° today, 7° tonight and then start warming up to 
the forties by Thursday.  Most importantly we are supposed to get some sunshine 
so all is well.  J Joan

 

From: Paul Jacobson [mailto:pjacob...@san.rr.com] 
Sent: Monday, December 14, 2015 10:22 AM
To: Gmail; greg
Cc: alcibiat...@yahoo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Cold Out

 

It was 27 degrees last night..in San Diego!!

 

 

From: Gmail   

Sent: Sunday, December 13, 2015 5:11 PM

To: greg   

Cc: alcibiat...@yahoo.com ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Cold Out

 

If anybody sits in the sun or fireplace for a long time, as soon as they move 
away or out of the heat source ... they are going to be very cold. Or 
noticeably cold.

Bobbie

Smile Everyday


On Dec 13, 2015, at 7:03 PM, greg  wrote:

Hi, thanks.

 

I've been cold since 1982, unless I'm in the sun. I moved to Phoenix for that 
reason. Though after hurting my hip about 15 years ago, I've been on strong 
pain meds. Lyrica, 150mg 3x. 60mg MS-Contin, 3 times a day. 30mg instant 
MS-Contin, as needed. My average body temp now is 96.5.

 

Though my body is falling apart now. I am just getting over UTI, Yeast, 
Shingles, Infected Shingles, all at the same time. Still getting AD headaches 
so next week I do a kidney and bladder CT scan, bladder scope, prostrate check. 
Then in Jan I go to a rehab specialist, experienced with quads. I've been a bad 
boy, It's been years since I've seen one and had any tests.

 

I've always had cold issues. I sit outside for hours when it's 110. Over that 
and it gets to hot. The last few years if I sleep with my head lower than like 
25 degrees, I shake uncontrollably cold. I would swear I'm freezing. But once I 
put my head up, I feel better. No idea what's going on. I can get overheated 
and still shake feeling cold, but put my head up and I warm up. 

 

I also have a nerve issue in my left shoulder blade area. Thought is was a 
sensitive mole, they cut it off. But it came back worse. Some days it's fine, 
then for a week it feels like a knife is in my shoulder. Like stabbing pain, 
yet a dead nerve going down my arm though my fingers. I've tried more pain 
meds, lidocaine cream, patches, nothing helps. It hurts just resting there, but 
lots worse when resting on the back of my chair or on my bed. I have to put egg 
crate foam under part of my shoulder to keep it off the bed.

 

I'm hoping the rehab doc can find and fix something. Though I'm 51 (Wow, I 
can't believe that) I feel I'm a 25 year old in a 100 year old body.

 

Old man Greg

 

> Greg if you're freezing and chilling in Arizona at this time of the

> year I really think you should see a specialist. It sounds to me

> like you're in pain and you don't know where it's coming from. It

> is important to find out where it is coming from. Best wishes

> John s. 

> 

> 

>  Original message 

> From: greg 

> Date: 12/13/2015  11:56 AM  (GMT-05:00)

> To: quad-list@eskimo.com

> Subject: [QUAD-L] Cold Out

> 

> I just can't imagine still living in Seattle, I'm in the Phoenix

> area now. The highs this next week are 54-66, the lows are 29-38.

> Yesterday I wore heavy sweats, a shirt, heavy  hoodie, and wrapped

> in a blanket, fleece hat, and drank hot drinks all day, heat set at

> 80. And still froze all day. Must be low pressure or something

> aches my bones. Just shaking cold. I can't imagine you east coast

> guys. At least here it's only a few months a year. It's not too bad

> during the day if it's at least sunny out. I hate getting washed up

> when it's so cold out, no mater what the heats on. I don't know how

> you guys leave the house.

> Greg

RE: [QUAD-L] Any menu ideas? here's mine.

[Joan Anglin]

We do a lot of cooking on the weekends.  At least twice a month we will cook
bone in chicken and then strip the meat and freeze it in smaller packages.
We can quickly make chicken burritos, chicken sandwiches, chicken and
veggies stir fry when we don't have so much time.  One of our favorite meals
for winter is baked potatoes with meat gravy.  The baked potato can cook
while we are doing something else and we just thaw the hamburger gravy and
add cheese.  We also cook a pound of bacon at a time, and will use that with
sour cream, cheese and mushrooms on a baked potato.  Scrambled eggs, bacon
bits, leftover potato make a good quick breakfast burrito.

However, I must add that we cook for 3 to 4 people, not just me.  For years
we had 8 to 10 people for dinner every night, so cooking for just a few is
much easier.  I make a biweekly menu, which gives us some idea of what to
make even though we don't follow it day by day all the time.  I also find
that soup starters make a very quick dinner.  Tortilla soup starter, add
frozen meatballs, some noodles, and cheese with tortilla chips make a quick
satisfying soup meal.

Received 6 inches of snow overnight, it's absolutely beautiful.  Looking
forward to a nice fire in a little bit, and a lazy day during some computer
work and then rewarding myself with some Kindle time.  Hope everyone has a
great day.  Joan 

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Thursday, December 10, 2015 7:04 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Any menu ideas? here's mine.

 

Frozen meatballs. I have found these to be a great addition to my freezer.
It is easy for aides to microwave them for a meatball sandwich or sub. You
can add them to spaghetti and other easy meals. I highly recommend that you
try a bag.

 

Do you have any easy and quick suggestions which can be easily prepared by
aides and caregivers?

RE: [QUAD-L] Prayers etc

[Joan Anglin]

So sorry to hear about this.  For sure many prayers for both of you.  Hopefully 
the defibrillator will help.  My mother had one for years and it was fantastic 
the difference it made.  I know that feeling of guilty as my oldest daughter 
wants to help take care of me but she has serious COPD and struggles to 
breathe.  My thoughts and prayers.  Joan

 

From: lwillis82...@gmail.com [mailto:lwillis82...@gmail.com] 
Sent: Friday, December 04, 2015 5:07 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Prayers etc

 

Guys, my beloved wife Melissa is having some serious health problems. She is in 
heart failure; her left ventricle has an ejection factor of 15%. Anything below 
40 is considered very serious. She struggles to breathe because of fluid around 
her heart. The doc wants to give her a defibrillator to regulate her heartbeat. 
It beats extremely fast and won't slow down like it should. It about kills her 
taking care of me. I feel so guilty and useless because I know I'm making it 
worse. She is only 45. If anything happens to her, I pray that I follow. I have 
reached my limit guys. Would you please send up a prayer or just a good thought 
for us. God bless each of you for your support and friendship.

 

Sent from Surface

 

RE: [QUAD-L] Update

[Joan Anglin]

What a snafu!  He said, she said, they said, and nobody talked to each
other.  At least you are feeling better, and you were listening to your own
body.  Hopefully they will get the right med's and you will be on your way
to recovery.  Joan

 

From: greg [mailto:g...@eskimo.com] 
Sent: Friday, December 04, 2015 2:47 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Update

 

I wasn't feeling great so I wanted IV fluids. At first my doc said yes, but
changed his mind. The hospital records said my urologist ordered the home IV
antibiotics, so my primary said he wouldn't, that the urologist needs to.
But I hadn't seen the urologist. Only made an appointment. He wouldn't
because he hadn't seen me. The hospital said they wont. They will set up
home IV meds, but not just fluids. So I ended up back in ER just for fluids.
Now the ER just called to see how I was doing.  I say I feel about 80%
better, but still body very sore, spasms, etc. They say the cultures came
back and the IV meds are the wrong kind. They wanted me to get admitted
until home nursing got everything changed. I said no, I feel good enough to
wait until tomorrow. If not set up by then, I'll go in for an IV, but not
admitted.

 

All I know is next time I go in, I'm bringing a bunch of those heating pads
and an electric blanket. I was just freezing.

 

At least I feel lots better even if wron meds, Greg

RE: [QUAD-L] Not Again

[Joan Anglin]

So sorry to hear about your problems.  Of course, whenever we say I never is 
when it comes back to bite us!  Keep warm, Earl Grey Tea with honey to warm you 
up?  Hopefully the antibiotics will work quickly.  Joan

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, December 02, 2015 8:53 AM
To: g...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Not Again

 

May this pass quickly and you can return to healthy status.  and yes, drink 
more.

Best Wishes

 

In a message dated 12/2/2015 10:39:12 A.M. Central Standard Time, 
g...@eskimo.com writes:

The worst 2 weeks ever. I've been in worse shape, pneumonia, etc, but never so 
much at one time. UTI , Yeast infection, Shingles, more Yeast, worse Shingles. 
The last 3 days AD very bad. I tough it was intestines cramping from very soft 
stool from all the meds. Terrible sweating nonstop, pounding headaches come and 
go. Finely decided to change cath again just to check if it was causing an 
issue. Huge blood clots come out and really felt sick… So the big red patty 
wagon came and got me. And just because a few days ago I said I never recall 
having sediment in my pee, of course it was full of it yesterday. It looks like 
all my AD issues were from a very bad UTI. So I had IV antibiotics, and a 
pix/pick line put in for home IV antibiotics. After the 1st dose, by last night 
I stopped sweating, but this morning it came back a bit with the headaches. But 
I should get the 2nd dose in a few hours. I'm just worn out. Not sleeping. 
Worse time of the year, to cold to sit in the sun. I know I have to drink more, 
but I just feel sick when I do.

Thanks for all the concern, Greg

 

[QUAD-L]

[Joan Anglin]

Here's a great article about ryzodomy (sp) for cerebral palsy and children,
but lots of facts.
http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticit
y/about-selective-dorsal-rhizotomy-sdr 

RE: [QUAD-L] Look out! An idea!

[Joan Anglin]

Good idea.  Joan Anglin Reno, Nevada I also have a website for anyone who
cares LOL!  Tomato lady Reno.com no spaces.

-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Saturday, November 14, 2015 12:52 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Look out! An idea!

Who on the ol' list has a Facebook page? How about we share addresses etc so
we can share pics etc. I assume name and address are all that is needed.
Here is mine. William Larry Willis, Campbellsville, KY. If this is a bogus
idea, say forget it Willis.

Larry Willis
Retired and proud of it

RE: [QUAD-L] The old days

[Joan Anglin]

I still do this quite often.  Usually in the middle of the night when I'm
either cold or hot I will wake myself up pulling up the covers!  I am still
trying to figure a way to rig up a pulley system to raise and lower my
blanket using my mouth.

RE: [QUAD-L] Quad Gut?

[Joan Anglin]

As I have mentioned before, I have used a Slimwear woman’s body suit for 24 
years.  I have virtually no quad gut at the present time.  It helps me to 
breathe and a C4 quad I need all the help I can get.  J When I was confined to 
bed for five months I developed quite the quad gut and it took me several 
months to work it down again.  The body suit also helps me to sit upright which 
takes an enormous strain off of my shoulders and neck.  It works for me and for 
$30.00 every couple of months it is well worth it.  Try it, you might like it.  
LOL

Needless to say I have no experience with a man’s needs.  I did however do some 
research (I love rabbits trails) and found some interesting information.

http://www.leonisa.com/en/products/leo-crew-neck-seamless-control-tank/?_All=y&ColorSelectionId=5452

 

  
http://www.underworks.com/men/compression-shirts-29

 

RE: [QUAD-L] Wet back

[Joan Anglin]

Outside Reno Nevada elevation 5400 feet.  We have had a great Indian summer, 
record highs and no serious freezes, 29°was our lowest.  It is about to change!

Joan

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Sunday, November 01, 2015 12:19 PM
To: Joan Anglin
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wet back

 

Where do you live? Bobbie

Smile Everyday


On Nov 1, 2015, at 1:38 PM, Joan Anglin  wrote:

I was injured in October 1990 and in June 1991 we went to Turlock California 
for a horse show, my 16 year old daughter and my eight year old grandson were 
both showing separate horses.  About 2 hours into the show I had a bowel 
accident.  We were at a fairgrounds so no special facilities.  So I just 
figured I would have to tough it out until the lunch break.  So I carefully 
stayed away from groups of people, finding a nice warm spot to watch the show 
from.  I suddenly realized I had attracted a nice swarm of flies which followed 
me everywhere.

Hm, so found another spot a little further away really nicely protected 
from the stiff breeze and waited for lunch hour.  During lunch hour we got me 
cleaned up, clean shorts on, and lost the flies.  The rest of the day were 
quite well and I was able to visit and enjoy all my friends.  We traveled back 
to Reno, and I woke up very sick the next morning.  Fever, nausea, chills you 
name it I had it.  It was so bad the next day I went to my Dr., Who found a 
large spider bite on the underside of my leg at my shorts level.  They finally 
determined that I had been bitten by a brown recluse spider after the necrosis 
started tunneling around my leg.  I was lucky that we caught it quite early and 
only minor problems that damage in later years.

Everyone still laughs about moms swarm of flies.  And flies seem to love dive 
bombing my face.  And that’s another story.

Have a great day, we are waiting on the first serious storm of the year, winds 
are at 60 miles an hour now, and rain and snow with wind gusts to 100 miles per 
hour are projected.  Nice warm fire in my future.  Joan

From: Ed Tessier [mailto:e...@teamjeved.com] 
Sent: Sunday, November 01, 2015 1:26 AM
To: nichole rohling
Cc: Danny Hearn; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Wet back

 








pee sucks… But most embarrassment ever? Cross-country flight and I crap my 
pants. I was so nervous about the damage flights do to me – – skin damage, 
dysreflexia, being banged up by luggage handlers transferring me to the seat, 
etc. – – that my body just said, shit happens. Spent hours like that, everybody 
on the flight slowly scrolling what happened. aarg, 20 years later and I still 
can't joke about it.  😑💩




Ed Tessier 
Mobile: (909) 994-5900



Jeved Management, Inc. 



On Sat, Oct 31, 2015 at 4:36 PM, nichole rohling http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnpvb2NyZXcxQHdpbmRzdHJlYW0ubmV0DQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 > wrote:

I have an indwelling cath but occasionally it gets kinked off or something and 
then it leaks.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net 
<http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOmRkaDI0N0BzYmNnbG9iYWwubmV0DQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 ] 
Sent: Saturday, October 31, 2015 3:44 PM
To: Bryce Willis; hey-guys
Subject: Re: Fwd: [QUAD-L] Wet back

 

I have a supra-pubic indwelling catheter, it has never leaked unless it was 
blocked, are you guy's having accidents or leakage not wearing indwelling 
catheters or ? Dan H**

 

On Saturday, October 31, 2015 3:31 PM, Bryce Willis http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOmx3aWxsaXM4MjE1M0Btc24uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 > wrote:

 

Same here. Hate it, especially when the odor is strong. Embarrassing.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com 
<http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnF1YWQtbGlzdEBlc2tpbW8uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 
From: "nichole rohling" http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnpvb2NyZXcxQHdpbmRzdHJlYW0ubmV0DQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >
Date: October 31, 2015 at 4:21:48 PM EDT
To: "'Gmail'" http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOmJvYmJpZWh1bXBocmV5czdAZ21haWwuY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >, http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnF1YWQtbGlzdEBlc2tpbW8uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >
Subject: RE: [QUAD-L] Wet back

I completely understand. I absolutely hate urine! Especially when my
catheter leaks when I'm in my chair and I have to sit in it until my
caregiver comes to put me in bed. 

Nicki

-Origina

RE: Fwd: [QUAD-L] Wet back

[Joan Anglin]

I was injured in October 1990 and in June 1991 we went to Turlock California 
for a horse show, my 16 year old daughter and my eight year old grandson were 
both showing separate horses.  About 2 hours into the show I had a bowel 
accident.  We were at a fairgrounds so no special facilities.  So I just 
figured I would have to tough it out until the lunch break.  So I carefully 
stayed away from groups of people, finding a nice warm spot to watch the show 
from.  I suddenly realized I had attracted a nice swarm of flies which followed 
me everywhere.

Hm, so found another spot a little further away really nicely protected 
from the stiff breeze and waited for lunch hour.  During lunch hour we got me 
cleaned up, clean shorts on, and lost the flies.  The rest of the day were 
quite well and I was able to visit and enjoy all my friends.  We traveled back 
to Reno, and I woke up very sick the next morning.  Fever, nausea, chills you 
name it I had it.  It was so bad the next day I went to my Dr., Who found a 
large spider bite on the underside of my leg at my shorts level.  They finally 
determined that I had been bitten by a brown recluse spider after the necrosis 
started tunneling around my leg.  I was lucky that we caught it quite early and 
only minor problems that damage in later years.

Everyone still laughs about moms swarm of flies.  And flies seem to love dive 
bombing my face.  And that’s another story.

Have a great day, we are waiting on the first serious storm of the year, winds 
are at 60 miles an hour now, and rain and snow with wind gusts to 100 miles per 
hour are projected.  Nice warm fire in my future.  Joan

From: Ed Tessier [mailto:e...@teamjeved.com] 
Sent: Sunday, November 01, 2015 1:26 AM
To: nichole rohling
Cc: Danny Hearn; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Wet back

 








pee sucks… But most embarrassment ever? Cross-country flight and I crap my 
pants. I was so nervous about the damage flights do to me – – skin damage, 
dysreflexia, being banged up by luggage handlers transferring me to the seat, 
etc. – – that my body just said, shit happens. Spent hours like that, everybody 
on the flight slowly scrolling what happened. aarg, 20 years later and I still 
can't joke about it.  😑💩




Ed Tessier 
Mobile: (909) 994-5900



Jeved Management, Inc. 



On Sat, Oct 31, 2015 at 4:36 PM, nichole rohling http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnpvb2NyZXcxQHdpbmRzdHJlYW0ubmV0DQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 > wrote:

I have an indwelling cath but occasionally it gets kinked off or something and 
then it leaks.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net 

 ] 
Sent: Saturday, October 31, 2015 3:44 PM
To: Bryce Willis; hey-guys
Subject: Re: Fwd: [QUAD-L] Wet back

 

I have a supra-pubic indwelling catheter, it has never leaked unless it was 
blocked, are you guy's having accidents or leakage not wearing indwelling 
catheters or ? Dan H**

 

On Saturday, October 31, 2015 3:31 PM, Bryce Willis http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOmx3aWxsaXM4MjE1M0Btc24uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 > wrote:

 

Same here. Hate it, especially when the odor is strong. Embarrassing.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com 

 
From: "nichole rohling" http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnpvb2NyZXcxQHdpbmRzdHJlYW0ubmV0DQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >
Date: October 31, 2015 at 4:21:48 PM EDT
To: "'Gmail'" http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOmJvYmJpZWh1bXBocmV5czdAZ21haWwuY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >, http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDA5YTAyMA0KbWFpbHRvOnF1YWQtbGlzdEBlc2tpbW8uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNraW1vLmNvbQ%3d%3d>
 >
Subject: RE: [QUAD-L] Wet back

I completely understand. I absolutely hate urine! Especially when my
catheter leaks when I'm in my chair and I have to sit in it until my
caregiver comes to put me in bed. 

Nicki

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com 

 ] 
Sent: Friday, October 30, 2015 2:17 PM
To: quad-list@eskimo.com 

 
Subject: [QUAD-L] Wet back

I woke up this morning soaking wet from guess what? Yep, urine!
To me it is the most degrading thing to wake up to.
Bobbie

Smile Everyday

RE: [QUAD-L] Lift repair

[Joan Anglin]

Larry

Thank you for the kind words.  But I am afraid that my wings are continuously 
fighting against my horns.  J I have come to a good place in my life.  I feel 
that I have been allowed so many extra years from what they told me in rehab, 
that I had better take advantage of each and every day.  That’s not to say that 
I don’t have my times of utter frustration and wishing maybe I would not like 
to wake up.  The nights are the worst, and my mind seems to seize upon every 
trial and magnify it way out of proportion.  But common sense seems to take 
over and reminds me I still have things I want to accomplish.

I love gardening, and although I cannot physically to garden myself, I loved 
the planning and execution and the satisfaction of seeing a finished product.  
I’ve been involved in a school project where we are teaching children how to 
garden and take care of living things.  This helps me keep my mind active and 
hopefully still working properly for the next few years.  The idea of being an 
Alzheimer person scares me to death, but of course I would be a good one 
because I can’t run away if they turn off my chair.  LOL

And thank God for technology, I am able to communicate by texting, calling, and 
of course on my computer which helps keeps my sanity.  Have a great day every 
one, this is the calm before the storm here in Reno.  >From Sunday night on is 
predicted 60 mile an hour winds and up to 8 inches of snow.  Goodbye Indian 
summer.  Joan 

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Friday, October 30, 2015 8:58 AM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Lift repair

 


Joan, I don't know how you do it, but your words always convey a sense of 
serenity and assurance. How you manage that IN PRINT I don't know. Something 
tells me that if we peeked under your collar we would finda pair of wings! 
I would say God bless you, but I think He already has.

 


-- Forwarded message --
From: Joan Anglin 
Date: Friday, October 30, 2015
Subject: [QUAD-L] Lift repair
To: quad-list@eskimo.com



Stories such as these make me so grateful for my friends and family.  I try to 
be as independent as possible, but things like transportation even though we 
have a great access bus system usually fall upon the shoulders of my friends 
and family.  I have had to learn that when someone says I’m going to the store 
would you like to come along that I had better take them up on it right then 
rather than wait for when I want to go to the store!

No matter how hard it is for each and every one of us, there’s always someone 
who has a much rougher time.  Prayers for Dawn.

 

From: Larry Willis [mailto:lwillis82...@gmail.com 
 ] 
Sent: Thursday, October 29, 2015 7:03 PM
To: quad-list@eskimo.com  
Subject: Fwd: [QUAD-L] Lift repair

 

Sad. Will her family help if she is near them?

Larry Willis

Retired and proud of it

 


Begin forwarded message:

From: Gmail  >
Date: October 29, 2015 at 9:49:57 PM EDT
To: Larry Willis  >
Cc: "quad-list@eskimo.com 
 "  >
Subject: Re: [QUAD-L] Lift repair

Dawn has her name in for an HUD apartment very close to her family. NOBODY EVER 
visits her here and she's been here since 1995

Bobbie

Smile Everyday


On Oct 29, 2015, at 9:12 PM, Larry Willis  > wrote:

Dawn sounds like she has given up and is seeking a way out. From what you have 
told us over the years, she has sought release for some time. About all we can 
do is pray for her and hope for the best.

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com 
 
From: Gmail  >
Date: October 29, 2015 at 8:45:26 PM EDT
To: Don Smith  >, quad-list@eskimo.com 
 
Subject: Re: [QUAD-L] Lift repair

My neighbor, Dawn, had 3 or 4 toes amputated because she has never worn shoes 
in 20+ years and she'd smash them, get infected.

 

She frequents the ER. Just 3 days ago she was there because she was backed up.

Her diet consists of pizza and hot dogs.

I've suggested to her yogurt and boost but she will not listen to anybody 

 

She also has 2 open wounds on her legs. One under her thigh because the cushion 
is to firm but she dose absolutely nothing to help herself. The other open 
wound is on the side of her calf because her leg is pressing against the leg 
rest. So she just put some combined on the foot rest but will not change her 
body position. 

She is hanging on by a thread. 

And now her nursing agency cut her hours from 5 to 2 because of how she treats 
her home health aids.

Bobbie


Smile Everyday


On Oct 29, 2015, at 5:56 PM, Don Smith  > wrote:

Ya it's crazy what they charge for labor rates, it's like they think we have a 
gold mine or something  The place I take mine charges $100.00 1 hour minimum, 
he's the only place in an 80 mile radius.

Don in Cal.

p.s. I haven't heard about your neighbor in awhile

 

 

On Thu, Oct 29, 2015 at 2:17 PM, Gma

RE: [QUAD-L] Lift repair

[Joan Anglin]

Stories such as these make me so grateful for my friends and family.  I try to 
be as independent as possible, but things like transportation even though we 
have a great access bus system usually fall upon the shoulders of my friends 
and family.  I have had to learn that when someone says I’m going to the store 
would you like to come along that I had better take them up on it right then 
rather than wait for when I want to go to the store!

No matter how hard it is for each and every one of us, there’s always someone 
who has a much rougher time.  Prayers for Dawn.

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Thursday, October 29, 2015 7:03 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Lift repair

 

Sad. Will her family help if she is near them?

Larry Willis

Retired and proud of it

 


Begin forwarded message:

From: Gmail 
Date: October 29, 2015 at 9:49:57 PM EDT
To: Larry Willis 
Cc: "quad-list@eskimo.com" 
Subject: Re: [QUAD-L] Lift repair

Dawn has her name in for an HUD apartment very close to her family. NOBODY EVER 
visits her here and she's been here since 1995

Bobbie

Smile Everyday


On Oct 29, 2015, at 9:12 PM, Larry Willis  wrote:

Dawn sounds like she has given up and is seeking a way out. From what you have 
told us over the years, she has sought release for some time. About all we can 
do is pray for her and hope for the best.

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Gmail 
Date: October 29, 2015 at 8:45:26 PM EDT
To: Don Smith , quad-list@eskimo.com
Subject: Re: [QUAD-L] Lift repair

My neighbor, Dawn, had 3 or 4 toes amputated because she has never worn shoes 
in 20+ years and she'd smash them, get infected.

 

She frequents the ER. Just 3 days ago she was there because she was backed up.

Her diet consists of pizza and hot dogs.

I've suggested to her yogurt and boost but she will not listen to anybody 

 

She also has 2 open wounds on her legs. One under her thigh because the cushion 
is to firm but she dose absolutely nothing to help herself. The other open 
wound is on the side of her calf because her leg is pressing against the leg 
rest. So she just put some combined on the foot rest but will not change her 
body position. 

She is hanging on by a thread. 

And now her nursing agency cut her hours from 5 to 2 because of how she treats 
her home health aids.

Bobbie


Smile Everyday


On Oct 29, 2015, at 5:56 PM, Don Smith  wrote:

Ya it's crazy what they charge for labor rates, it's like they think we have a 
gold mine or something  The place I take mine charges $100.00 1 hour minimum, 
he's the only place in an 80 mile radius.

Don in Cal.

p.s. I haven't heard about your neighbor in awhile

 

 

On Thu, Oct 29, 2015 at 2:17 PM, Gmail  wrote:

Today I had my 2001 ford E-150 van dual doors checked out because the first one 
that opens started opening more slowly than usual and slower that the other.
Labor at my conversion company is $110 per hour
On the bill was written;

2.25. Labor. $220
1 shop supplies.  $10

  "Check power - "working slowly" . Open door & disconnect operator 
arms-found hinges of right door had been "drilled" previously for applying 
lube. (Could not swing door easily)
Apply penetrating lube (PB Blaster) to hinges . Lube lift at all moving 
location-platform pivots, hinges, pins, connecting joints, etc.
Observed lift oil leaking from rubber plug a of side access plate.
Remove rubber plug and tap & install threaded  plug.
Check oil level and add 1 pint of gear oil. Check EZ locks-lube jaws & check 
operation.
Glue & ty-wrap passenger EZ-lock dash switch (hanging off bracket) Chech hand 
control & hard wear -ok
Check power park break-ok
Check back-up steering operation, lines hoses, fittings & liquid level
Advise customer of maintenance required on power door hinge-monthly.

Total.$247.50

It took them 2 1/2 hours to do the work and 1/2 hour to type up bill

To me it seamed like it took a LOT longer then need be. But am greatfull to 
have a van to repair.
Bobbie

Smile Everyday

 

RE: [QUAD-L] Wife recent SCI

[Joan Anglin]

Completely agree with you Bobbie.  If you get more fine, but might as well 
start your mind to working on alternatives.

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Wednesday, October 21, 2015 11:46 AM
To: Dr.Ron and Sharion Austin
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wife recent SCI

 

Ron,

 It's never to early to start looking into anything that will help Sharon.

If I may suggest that you get in touch with her occupational therapist she had 
in rehab, she will be a great source of everything that can help her.

Bobbie C-4,5,6,7 1973. Motorcycle accident 

Smile Everyday


On Oct 21, 2015, at 9:37 AM, Dr.Ron and Sharion Austin  
wrote:




​My wife is a recent SCI C5 (may 31). While we are dealing with a lot now (as 
most of you know better than I) we will get through this leaning on our faith, 
family and friends. Bruce had mentioned voice activated software to be able to 
use her I-pad and computer.  What are most of you using?  How about being able 
to control the TV?

Also have any of you used or have an opinion of the MOTO med movement therapy 
(an exerciser for legs and/or arms).

Thanks for any info

Ron Austin​


-- 

Living in God's Grace

Ron

RE: [QUAD-L] Wife recent SCI

[Joan Anglin]

Welcome Ron and Sharon

Great that you are already looking forward to conquering bumps in the road and. 
 Your I-pad has Seri installed and Sharon should be able to use that.  
Depending on your computer, Seri is also installed on the Macintosh, and 
Windows Speech Recognition is installed on android.  There’s also Dragon that 
you can purchase and run computers.

There are several environmental control units that work with speech 
recognition, Si-care is the one that I use, Broadened Horizons is a good place 
to start, Christopher Reeve foundation has many suggestions and some excellent 
information.

I cannot help you out with exercise equipment as I am a C4 complete and I do 
not have any movement below a shoulder shrug.  What level is Sharon?  Just ask 
away and several on this quad list could possibly have answers.

Best of luck to you.

Joan C4 complete 1990

 

From: Dr.Ron and Sharion Austin [mailto:ronausti...@gmail.com] 
Sent: Wednesday, October 21, 2015 6:38 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Wife recent SCI

 




​My wife is a recent SCI C5 (may 31). While we are dealing with a lot now (as 
most of you know better than I) we will get through this leaning on our faith, 
family and friends. Bruce had mentioned voice activated software to be able to 
use her I-pad and computer.  What are most of you using?  How about being able 
to control the TV?

Also have any of you used or have an opinion of the MOTO med movement therapy 
(an exerciser for legs and/or arms).

Thanks for any info

Ron Austin​


-- 

Living in God's Grace

Ron

[QUAD-L]

[Joan Anglin]

Thanks for the nice replies.  I just felt that I had to do something
positive for this day.  I have been so blessed in so many ways that I wrote
this in just a couple of minutes just to share with some of the best people
in the world, my fellow wheelers.

[QUAD-L] 25 years October 15

[Joan Anglin]

25 years, a quarter of the century, almost one third of my life.  Where did
the time go from that moment when I fell off the scaffolding and tried to
move my arm and realized it did not respond?  That was the start of my new
life, and although it is not always a home run, it certainly is not a
strikeout either.

So many people who have helped me, encouraged me, devised a little something
that made my life better, cuddled me when I needed it, scolded me when I
needed it, and just simply told me to buckle down and get on with life.
Thanks to each and every one and you know who you are.  Family, friends,
therapists, doctors, and yes many strangers.

To every little kid (some of them not so little but just as curious) who
asked me why I was in a wheelchair, how did I drive my chair without my
hands or arms, who offered to help me, I say thank you and bless you that
you accepted me for the person I am, especially the young one who wanted to
race me and when I won told me to get out of my chair and he would drive it
and win!  I love you all.

I appreciate all of the strangers who are so helpful and kind and open doors
for me without my asking, offer to carry my packages out to my car, ask me
if I would like a drink from my cup on my wheelchair, or would I like
something to eat while I am waiting for someone at the food court to pick up
our orders.  I don't believe for a minute that the majority of people do not
want to help or look down upon me in the wheelchair.  Conversely, I love the
smiles, the how are you doings, and the people who say- isn't it a great day
to be outdoors or shopping or whatever.

To the very few and far between people who say or imply something such as "
my you really know how to use the wheelchair" I try to smile and reply " you
do really well on your feet also" and make them laugh.  They probably will
think twice the next time.

Being a total C4 quadriplegic was definitely not my game plan for my life,
but honestly things could have been worse and I am looking forward to what
the future holds.  I have already outlived by 10 years what they told me at
rehab in 1990, so hopefully the rest will be a piece of cake!  Thanks for
letting me celebrate 25 years.

RE: [QUAD-L] Back on list

[Joan Anglin]

Yep!  Glad you’re back.

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: Sunday, October 11, 2015 1:56 PM
To: quad-list
Subject: [QUAD-L] Back on list

 

Hi all,

How have you all been?

I was unable to receive mail from this list for awhile. Now I am just sending a 
test to see if I can receive posts again.

 

Meredith

RE: [QUAD-L] Heat Lamp?

[Joan Anglin]

I use a radiant space heater from Harbor Freight.  It has heat settings of
400 W and 800 watts, and cost $30.00.  I have had this one for three years
and it really helps with the visual feeling of warmth.  Have a great day.

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Wednesday, October 07, 2015 8:08 PM
To: greg
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Heat Lamp?

The SAD lamps are great for depression or just giving your brain and eyes
much needed light during the winter. My Mom uses one and it helps her out a
lot.
But there is no heat. You'll Ned a small space heater. Bobbie

Smile Everyday

> On Oct 7, 2015, at 9:51 PM, greg  wrote:
> 
> Anyone use any kind of heat lamp?
> When I get so shakey, the sun helps so much. I thought I might try some
kind of heat / sun lamp for when in bed.
> I heard the lights for that seasonal disorder don't put out heat? Anyone
try one?
> 
> Thanks
> 

RE: [QUAD-L] Getting Old, Panic

[Joan Anglin]

That’s an awesome offer Bobbie thank you for that.

 

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Tuesday, September 29, 2015 6:05 PM
To: Bryce Willis
Cc: quad-list@eskimo.com; donpric...@yahoo.com
Subject: Re: [QUAD-L] Getting Old, Panic

 

If anybody on this list is having difficulties with panic attacks, I'd like to 
offer my services. 

I'm a meditation instructor. I could teach you techniques over the phone to 
help you calm down, relax and mellow out whenever you feel an attack coming on.

Bobbie

Smile Everyday


On Sep 29, 2015, at 8:30 PM, Bryce Willis  wrote:

Don, that is one of the best posts I have read in a long time! Intelligent, 
passionate, informative, and captivating. I agree that panic is entirely 
mental, but oh what power it has! Your third paragraph really hits home because 
I've experienced the same thing. It is the helplessness, the anger, the fear, 
the heart and blood pounding irrationally in the ears, and the exploding head 
that set things off. Thanks for sharing, Don. Embrace the night and all that it 
brings, Calm my soul as the night bird sings.
Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Danny Hearn 
Date: September 29, 2015 at 7:09:15 PM EDT
To: Don Price , Larry Willis ,  
"quad-list@eskimo.com" 
Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
Reply-To: Danny Hearn 

Well said Don, I think you are right , I used to get panic attacks and many 
times it can be related to the fear of dying or loss of control, like you said 
try to find a way to control as much as possible then try to learn ways to calm 
the mindlike you said Tv or etc., Myself I  think praying helps me plus 
trying to stay positive as much as one can.  Dan H**

 

 

On Tuesday, September 29, 2015 3:34 PM, Don Price  wrote:

 

 

I think a large factor in panic attacks is related to loss of control (e.g. 
inability to get up, turn, etc.) I've learned that if you can find ways of 
controlling as many things in your environment -- especially while in bed -- it 
greatly helps reduce panic/anxiety attacks. Examples: raising and lowering your 
bed independently, ability to control room temperature or a fan, ability to 
control tv/radio/lights and especially the ability to use the phone and 
computer. All of these things are possible using today's technology. If you are 
able to control things around you I believe you will feel less anxious. 
However, I'm not a doctor and I don't even play one on TV.

 

I remember my first anxiety attack; it occurred one night while I was in the 
acute care hospital after my diving accident. I was still in a halo-like device 
and completely immobile. I began to feel the walls closing in on me and the 
panic set in. Somehow, I managed to flip through the TV channels and, 
mercifully, I found a movie that held my attention and calmed me down. To this 
day that miracle film is still one of my all-time favorite movies -- it's not 
that it's all that special cinematically, but it holds a special place in my 
heart for calming my soul that dark night in 1982. The movie is: Jeremiah 
Johnson.

 

The only other times I get these anxiety attacks is when I roll myself too far 
at night and end up face-down in my bed, unable to roll back over. For one 
thing it's hard to breathe, but secondly it puts me back in the memory of 
floating face-down in the water when I had my diving accident. I was fully 
conscious and floated face down, unable to move for what seemed like minutes, 
although it may have been seconds. Very scary stuff, and I wouldn't wish that 
kind of panic on anyone. Sometimes, when I hear news stories about an 
earthquake where people are buried alive, I think about the people under that 
rubble and how they must have that same feeling of horror being unable to move 
and breathe. Nightmare inducing.

 

OK, now let's think of something more positive: if we still have trouble with 
panic attacks, instead of relying on drugs we might want to check into hypnosis 
or meditation techniques. I've thought about doing this many times, but 
haven't. The power of the mind is amazing; if we can learn techniques to shut 
off the negative thoughts we will be better able to avoid the worry, panic, 
anxiety.

 

This morning I was driving to pick up a friend. As I pulled my Honda into her 
parking lot the sun was just rising and I was driving east, looking straight 
into the orange-yellow glow. My windshield was dusty so I hit the fluid button 
and the wiper solvent sprayed onto my window. For a brief moment I witnessed a 
tiny rainbow prism in the mist, against the morning sky, and then, as if by 
magic, a hummingbird flew in view and hovered, for a second, right in front of 
me. The beauty of that moment was so moving that I literally said thanks to 
God. If I saw that scene in a movie I would say it was over-the-top hokey, but 
it actually happened. The next time I'm panicking I'll try to recall that image 
of the hummingbird in t