Fwd: [QUAD-L] Illness
I can’t breathe when I lie down. Sent from my iPad Begin forwarded message: > From: "Nichole Rohling" > Date: February 7, 2018 at 2:47:37 PM EST > To: "'Larry Willis'" , > Subject: RE: [QUAD-L] Illness > > I am in Oklahoma and it is terrible here! I have only left my house 4 times > since Dec 23 and 2 of those times I didn't get out of my vehicle. > Not worth the risk! > Why are you sleeping in your chair? > > Nicki > > -Original Message- > From: Larry Willis [mailto:lwillis82...@gmail.com] > Sent: Wednesday, February 7, 2018 1:35 PM > To: quad-list@eskimo.com > Subject: [QUAD-L] Illness > > Guys, how is the sickness in your neighborhood? It is simply awful here. I > think everyone I know is or has been sick. I have slept in my chair since > Christmas. It is like a plague. > > Sent from my iPad > >
[QUAD-L] Illness
Guys, how is the sickness in your neighborhood? It is simply awful here. I think everyone I know is or has been sick. I have slept in my chair since Christmas. It is like a plague. Sent from my iPad
Fwd: [QUAD-L] Rested
Sent from my iPad Begin forwarded message: > Resent-From: > From: Bryce Willis > Date: February 3, 2018 at 9:00:09 PM EST > To: "quad-list@eskimo.com" > Subject: Fwd: [QUAD-L] Rested > > The very worst part of my day is waking up in the morning. I’m always soaked > in cold sweat and hurt all over.I dread going to bed just thinking about > waking up in the morning. Quad life is such a joy...not. > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: >> From: Jeffrey Gaede >> Date: February 3, 2018 at 8:15:50 PM EST >> To: Quad-list Post >> Subject: [QUAD-L] Rested >> Reply-To: Jeffrey Gaede >> >> Anybody have answers to trouble sleeping or at least feeling rested when >> first awake, besides medication of any kind? Jeff
Fwd: [QUAD-L] So Cold
I understand. It is supposed to be in the mid-thirties for highs the next two weeks here in old Kaintuck. I hug a heater all day. Yep, the sun shines bright — somewhere! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Lissette Whitehead > Date: December 6, 2017 at 8:48:41 PM EST > To: Greg , "quad-list@eskimo.com" > Subject: Re: [QUAD-L] So Cold > > Tell me about it! I live in Rosarito Beach, Mexico, I went out today for a > little while and I could barely handle it, I was having trouble driving my > power chair cause I was shaking so bad, my boyfriend had to drive me. My neck > and shoulders are so sore, I have trouble falling asleep at night. Wine is > the only thing that helps but I can't be drinking wine every day. Ginger with > cinnamon tea helps a bit too. Seriously, I feel for those living in colder > regions. > > Stay warm guys! > > > Lissette Whitehead > > 416 W. San Ysidro Blvd. > > San Ysidro, CA 92173 > > www.lwgripgloves.com > > > > > > From: Greg > Sent: Wednesday, December 6, 2017 5:37 PM > To: quad-list@eskimo.com > Subject: [QUAD-L] So Cold > > We finely started getting some cooler weather. I’m miserable. Just shaking > cold. Hats, hoodie, blanket, coffee, etc. I’m shaking so bad I can hardly > type. I don’t know how you guys can take it in colder areas. > > > Greg
Re: [QUAD-L] Tilt button
Thanks Bobbie. I would love to see that video. Larry Sent from my iPad > On Nov 11, 2017, at 2:28 PM, Bobbie Humphreys > wrote: > > Hi Larry, >My tilt is within my joy stick. So is the activation for my power > headrest. This chair is only 4 years old. > If you want to see a short video of my power headrest I'll send it to you. > Bobbie > > "Be the change you want to see in the world". Gandhi > >> On Nov 10, 2017, at 10:28 PM, Larry Willis wrote: >> >> To those of you with Invacare tilt chairs. Does your tilt function reside in >> your joystick or does it have an auxiliary button? Mine is an extra button >> Velcroed to the side of the control box . It plugs in the tiny port on the >> back of the box. I don’t much care for it at all. It is very much in the >> way. >> >> Sent from my iPad
[QUAD-L] Tilt button
To those of you with Invacare tilt chairs. Does your tilt function reside in your joystick or does it have an auxiliary button? Mine is an extra button Velcroed to the side of the control box . It plugs in the tiny port on the back of the box. I don’t much care for it at all. It is very much in the way. Sent from my iPad
[QUAD-L] Favorite things
I hear you, Bobbie! I love the food channels, you tube, and Pinterest recipes and pics. If I could, I would be cooking something everyday! Yeah, sorta strange, I know. But I learned to bake southern cornbread when I was 12, then replaced hot bread with hot girls until I crashed at age 19. Now I find the recipes and try to talk others into the cooking part! Sent from my iPad
[QUAD-L] Quad woes
I think we all have a fear of the future. Our lives are so uncertain, having to depend on others for every little thing. Sometimes I think it would be so much easier just to end it. At age 65 and 46 years post I keep thinking I can’t last much longer. But I keep on going. It gets harder everyday though, pain,weakness, depression, loss of purpose. Add to that arthritis, mouth and teeth problems, and stomach and bowel problems. The ones that have ripped me in the last few years though — wife has developed heart failure, had to quit work. This put our income in the poverty level just as medical bills have skyrocketed. Most difficult to face — watching so many family and friends pass away. At my age those people who have been my rock through the years are passing away. Dad is gone and mom is 84. Countless others are gone as well. I’ll stop here and wipe the tears. God bless you, my quad peeps. Sent from my iPad Sent from my iPad
Fwd: [QUAD-L] I hate this most about being a quad
I think we all have a fear of the future. Our lives are so uncertain, having to depend on others for every little thing. Sometimes I think it would be so much easier just to end it. At age 65 and 46 years post I keep thinking I can’t last much longer. But I keep on going. It gets harder everyday though, pain,weakness, depression, loss of purpose. Add to that arthritis, mouth and teeth problems, and stomach and bowel problems. The ones that have ripped me in the last few years though — wife has developed heart failure, had to quit work. This put our income in the poverty level just as medical bills have skyrocketed. Most difficult to face — watching so many family and friends pass away. At my age those people who have been my rock through the years are passing away. Dad is gone and mom is 84. Countless others are gone as well. I’ll stop here and wipe the tears. God bless you, my quad peeps. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: October 23, 2017 at 10:27:32 AM EDT > To: > Subject: Re: [QUAD-L] I hate this most about being a quad > > This is a big one for me. > Bowel stuff use to be, it ran my life. I finely got a colostomy. My only > complaint is I didn't do it sooner. Such a stress release. Gone from hours to > a minute. I recommend any quad to talk to your doc about it. > Greg > > > 6)Afraid of the future and how Im going to survive. >
Fwd: [QUAD-L] I hate this most about being a quad
Mine are about the same as Ron’s with one of Greg’s included: to know how to do something but can’t. That makes me want to scream! The biggest is having to depend on someone for every little thing, even ass wiping! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jeffrey Gaede > Date: October 22, 2017 at 3:24:52 PM EDT > To: Ron M Pracht , Quad-list Post > Subject: Re: [QUAD-L] I hate this most about being a quad > Reply-To: Jeffrey Gaede > > You are ALIVE! As it's been said, it's a luxury not afforded everyone… > > > From: Ron M Pracht > To: Quad-list Post > Sent: Sunday, October 22, 2017 11:49 AM > Subject: Re: [QUAD-L] I hate this most about being a quad > > I hate.. > > 1)Sitting on a bowell chair for 2 hours thirsty unable to get up. > 2)Peeing on myself and trying to get a cathe tube in for 30 minutes. > 3)Being on pain pills and dealing with side affects while family says "just > quit you can feel your body anyway" > 4)Wearing clothes that just slip on instead of blue jeans or boots. > 5)Tired of getting judged by people b4they know anything about me. > 6)Afraid of the future and how Im going to survive. > > Ron c7 Wheelchairs nemesis > > > On Sunday, October 22, 2017 10:22 AM, greg wrote: > > > I have about 10 things in my Top 3 depending on the day. Pain, Cold, > Dependent on others, Cold, Pain, Knowing I could fix something but cant, > Dependent on a chair, Pain, Cold, etc. > > Greg > > > >
Fwd: [QUAD-L] Pillow talk
Absolutely. I also hate listening to my heartbeat against the pillow. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bobbie Humphreys > Date: October 6, 2017 at 3:50:01 PM EDT > To: quad-list@eskimo.com > Subject: [QUAD-L] Pillow talk > > When laying on your side, dose it bother anybody else to talk when one ear is > resting on a pillow? > It drives me nuts 🥜 to hear my voice "echoed" back at me. > Bobbie > > "Be the change you want to see in the world". Gandhi
Fwd: [QUAD-L] What do you wear in rainy weather?
I throw a towel over my head to protect my luscious gray hair and my desk/table protects my lap. Then I go like hell for the porch. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jeffrey Gaede > Date: October 2, 2017 at 5:12:58 PM EDT > To: Bobbie Humphreys , Dave Krehbiel > > Cc: "quad-list@eskimo.com" > Subject: Re: [QUAD-L] What do you wear in rainy weather? > Reply-To: Jeffrey Gaede > > I just get wet > > > From: Bobbie Humphreys > To: Dave Krehbiel > Cc: quad-list@eskimo.com > Sent: Monday, October 2, 2017 2:06 PM > Subject: Re: [QUAD-L] What do you wear in rainy weather? > > I've always used a poncho with a hood and I also carry a small towel in my > van so if it's raining ☔️ hard, I'll just lay the towel on my feet. > I find an umbrella 🌂 to be difficult to open, hold and close. > Stay dry, Bobbie > > "Be the change you want to see in the world". Gandhi > >> On Oct 2, 2017, at 4:32 PM, Dave Krehbiel wrote: >> > > On a couple of occasions, I've needed to go out in a bit of rain or drizzle. > I'm thinking about buying some rubber boots, and maybe a poncho or a number > of disposable ponchos. Made in the lecture piece of plastic or something to > cover my legs and keep them dry. > > How do you guys stay warm and dry? > > Thanks, and take care, > > Dave Krehbiel > Olney, MD > > Virus-free. www.avast.com > >
Fwd: [QUAD-L] Broken leg..
Whew! These are some sad-ass stories. I'm just glad I am not a quad! I don't know how you guys do it! Oh...wait Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Nichole Rohling" > Date: September 22, 2017 at 5:01:50 PM EDT > To: "'BeeJ'" , > Subject: RE: [QUAD-L] Broken leg.. > > More than once. We used a boot and even then had to be sure and check for > pressure sores. My dr absolutely would not do a hard cast. > > Nicki > > From: BeeJ [mailto:mrbeej...@gmail.com] > Sent: Thursday, September 21, 2017 7:04 PM > To: quad-list@eskimo.com > Subject: [QUAD-L] Broken leg.. > > So I broke my leg Last Friday Night turning around in the dark with my power > chair. The toe of my boot caught on my bed and I twisted it and heard a pop. > So now I have a cast up to my knee that I can't feel. Anyone on here have any > experience dealing with a broken bone below your level of injury? I'm a > little worried about what's going on inside that cast. > > -Bj
[QUAD-L] Despair
Guys, I am dealing with something that makes me want to close my eyes and not wake up. My dear wife Melissa is in the throes of serious heart failure. She is retaining so much fluid she can't breathe. She is in constant pain and has had to quit her job. The medical bills are ungodly and have forced us to file bankruptcy. If you have any prayers to spare, throw them my way. Lori, I keep thinking of you. I am at a loss. Sent from my iPad
Fwd: [QUAD-L] Hello my friends I have a question
Sounds like he just needs a remote speaker to put beside him. Anyone tech savvy could do it, I think. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Ismael Cavazos" > Date: September 3, 2017 at 12:34:42 PM EDT > To: "Blue" > Subject: [QUAD-L] Hello my friends I have a question > > Hello guys I have a friend of my that he is a quadriplegic he doesn't have > any movement of his arms since he is accident happened is not able to hear > Barry well I am trying to help him not able to hear the television barrel > well I know they are special devices they put on their years but he doesn't > like to wear them when he is at home he have to put the television buried out > so he could hear it they were another idea I told him about headphones but he > doesn't feel comfortable with their on but when he is in the hospital I don't > know what you call that device but anyway he able to hear the television very > well bed side call light when they put it on his side of his bed he's able to > hear the television very well I ask different questions to a different > hospital quarried to them they told be that device comes with the hospital > bed where you could hear the television on the side of the band I went to > Google to look for it I was not successful any ideas will be appreciated > thank you and God bless you have a nice day >
Fwd: [QUAD-L] Food
My wife Mellissa has gall bladder surgery on Wed or Thur. She has mapping done tomorrow to mark where her defibrillator wires are.She has been suffering unbelievably. She will have a cardiac team on standby. Wish us luck peeps. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Danny Hearn > Date: August 28, 2017 at 9:23:27 PM EDT > To: Bryce Willis , "quad-list@eskimo.com" > > Subject: Re: [QUAD-L] Food > Reply-To: Danny Hearn > > When I'm eating that seems to happen to me at times, then I take a few big > gulps of water or something and it gets better. Same here with the quad > problems , seems there is always problems, pain and issues...but I have > family also and hope to hang around for a couple more years if possible. Dan > H.** > > > On Monday, August 28, 2017 7:38 PM, Bryce Willis wrote: > > > You guys ever feel like your food just stops at the top of your stomach ? > Then it hurts and wants to come backup. I know my quadgut is probably the > problem. So tiring. If I could in good conscience end thisquad life I would > do it in a heartbeat. But got family and kids to consider. Larry Willis > > Sent from my iPad > >
[QUAD-L] Movie
What is the movie about the young Irish lad who can only move one finger? He lives with a roommate that only he can understand. They have all kinds of crazy adventures together. It's a good one. Sent from my iPad
Fwd: [QUAD-L] Fell Forward, bad time
Whew, that was a close one, Greg! Let's not do that again, ok? The heat and AD together could have made for a very bad outcome. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: July 20, 2017 at 21:55:19 EDT > To: > Subject: [QUAD-L] Fell Forward, bad time > > I was going out the back door and fell forward. Into my lap. Joystick jammed > my shoulder, but kept me from going further forward. Outside, 100 degrees, > record humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It > was bad. I thought it was hours, but it was just over 1 hour. I had to dump > cold water on my head, put ice packs on. No one could hear me. It was no fun. > The thoughts that go though your head. Between the pain, overheating, > breathing, etc. No more going without chest strap. Greg >
[QUAD-L] Lockdown!
Ok guys, new ailment. When I try to use my arms, hands for a task that requires raising them (such as brushing teeth or hair, driving) my bicep and wrist extensor want to lock up. It hurts and I have to push against something to make it release. Why is this happening? Am I short some vitamin or mineral? Anybody else experience this? Larry Willis. In the words of Roseanne Roseanna Danna..."Its aalways something!" Anybody remember her? Hint: Gilda Sent from my iPad
Fwd: [QUAD-L] Why do Quads get light headed after eating? Do you?
Same thing happens to me, plus I get cold. It is caused by blood rushing to the digestive tract leaving the brain etc a couple of quarts low. Eat slowly and stay hydrated. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Raymond Kelly" > Date: June 14, 2017 at 5:07:37 PM EDT > To: "x quad-list" > Subject: FW: [QUAD-L] Why do Quads get light headed after eating? Do you? > > I don't know how common it is for quads to get lightheaded while eating, but > I do have the problem occasionally. Usually when I'm eating something that is > really chewy. I find if I recline in the wheelchair for a couple minutes my > blood pressure goes back up and I can resume eating. That probably isn't of > any help to you but that is the only thing I have found helps. > > Raymond > C3/4 complete > > From: DAVID LEWIS [mailto:curlyle...@verizon.net] > Sent: Wednesday, June 14, 2017 4:20 PM > To: Quad-list Post > Subject: [QUAD-L] Why do Quads get light headed after eating? Do you? > > I have been getting real light headed after eating . I mean after a few bites. > It goes away after i digest a little but its darn bothersome. > Do you guys have have any stories or remedies? > Thanks
Fwd: [QUAD-L] Scoliosis
Avoid mirrors and curse my fate. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bobbie Humphreys > Date: June 17, 2017 at 3:12:48 PM EDT > To: quad-list@eskimo.com > Subject: [QUAD-L] Scoliosis > > When I'm sitting in my chair, I can fit a baseball ⚾️ between my body and the > armrest, on my left side. > On my right side I couldn't even fit a piece of paper 📝. > Of course, as the day progresses, so dose the pain in my back ... after only > 5-7 hours. > > I went to brace clinic about 8 years ago, at Kessler, and the Doctor 👨⚕️ > just took one ☝️ look 👀 at me and said "What are you doing here"? > I told her about my my scoliosis. > "I can see that, I'm not blind." She says > I told her that my goal was to try to prevent the scoliosis from getting > worse. > "It's not that bad." And that was it > > What do you guys do about your scoliosis besides braces on your body or chair? > Bobbie > > "Be the change you want to see in the world". Gandhi
[QUAD-L] Sad
Guys, my best pal, my chunky dog, got run over yesterday. He was chihuahua/bulldog mix. He was a chunk of love. I haven't hurt this bad since my dad died. Larry Willis Retired and proud of it
Fwd: [QUAD-L] Sweating on right side
I have stomach pain just about every night. Then I wake up with cold sweats. I can only sleep on my left side. I have suspected pain medicine for a long time. Antacids seem to help. I think my biggest problem is bloating and constipation. We just can't win, can we? Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: jume9...@comcast.net > Date: May 30, 2017 at 7:19:44 PM EDT > To: quad-list > Subject: Re: [QUAD-L] Sweating on right side > > I have been getting the sweats and my doc thinks i have a kidney stone, that > could possibly be your issue Greg but as far as the stomach thing it could be > an ulcer if you are taking anti-inflammatory meds? > > Meredith > > From: "greg" > To: "quad-list" > Sent: Tuesday, May 30, 2017 1:07:55 PM > Subject: Re: [QUAD-L] Sweating on right side > > I am right now. I thought a UTI but meds didn't help. Now I'm off for an > x-ray to try and find the cause. I asume its that. > Sweats and stomach pain. > Greg > > > Ive been sweating on my right side pretty bad. I believe its from > > taking pain meds because when I pop the antacids it gets better. > > Anybody deal with mild ulcer/stomach irritation due to meds? > > > > > > Quad 98 >
Fwd: [QUAD-L] Pressure wound advice
I sleep on my left side..it is my only option. Of course, I am constantly fighting sores on my hip bone. I fight it by using a lightly inflated donut. Too much air is painful and too little makes it useless. I know it is probably wrecking my spine, but I have no other solution. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Don Smith > Date: May 18, 2017 at 3:56:31 AM EDT > To: bmatt...@earthlink.net > Cc: quad-list@eskimo.com > Subject: Re: [QUAD-L] Pressure wound advice > > I agree 150% with what at Wheelchair said, wound vacs are great at healing, > just make sure your wife and caregivers learn how to trouble shot it and keep > any extra clear adhesive drape in case a leak occurs. Also the KCI Wound > vacs are much better then any others. > >> On Wed, May 17, 2017 at 6:29 PM, wrote: >> Hiya Ben! An open wound should be treated with the utmost respect, and >> never... ever be taken lightly. I hope you are being service by a certified >> Wound Care Clinic/Specialist. Make sure your Nurse is a Certified Wound >> Nurse and knows how to use a smart phone to take pictures every day or every >> other day and send them to your Medical Wound Doctor. I'm sure by now, your >> wound has been de-breeded and measured before the wound vac was applied. >> Wound Vacs can be a pain in your butt, but you know that already. If you >> have an aid, have them watch what is done, so they can know what to do if >> tubes to the vac become tangled or your alarm goes off. How many pounds of >> Vac, are you using? An air mattress is most important and laying on your >> side at night time. I truly hope you don't smoke, as that will delay the >> healing process. >> Do well my friend. >> Best Wishes >> >> In a message dated 5/17/2017 7:41:41 P.M. Central Daylight Time, >> bmatt...@earthlink.net writes: >> I have a Stage 4 pressure wound on my tailbone – my first ever! Doc is >> recommending a Wound Vac and perhaps a "low air loss" bed mattress. Anybody >> have any experience with either? How am I going to function witha Wound >> Vac attached to my butt? Do they work quickly? Also,I don't have a >> hospital bed – I share a regular queen-size mattress with my wife – so I'm >> not eager to make my bedroom into a hospital room. What sort of beds do you >> all use? Maybe a Roho overlay would be good enough? >> Thanks for your thoughts. >> Best, >> Ben (SMA quad, 54 years old) >
Fwd: [QUAD-L] Re: Pressure wound advice
Pressure sores on my butt have been an issue for years. I have used the wound VAC more than once. The most difficult part for me was maintaining a tight seal. The contours of the butt and the tailbone are not conducive to a tight seal. The wound vac is very effective, though. So is good nutrition and heavy doses of protein as someone has already said. God bless and good luck. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Kay at Amplified Agility" > Date: May 18, 2017 at 7:13:00 PM EDT > To: "'Ben Mattlin'" , > Subject: RE: [QUAD-L] Re: Pressure wound advice > > Hi Ben – > > I have seen the replies and just want to chime in with a “remember that > wounds are an inside out and outside in” issue…meaning gut health, presence > or not of “opportunistic critters” in the gut, nutritional status etc. are > really important. Also, when you have a wound as you are describing you need > considerably more protein and other micronutrients to facilitate healing as > well….I hope you have a knowledgeable nutritionist on your team. > > We deal with this a lot… > > > > > Kay Lathrop > Program Director, Amplified Agility, LLC > 1-619-501-3752 | www.amplifiedagility.com | > 4275 Executive Square, Suite 200 La Jolla, CA 92037 > > > > From: Ben Mattlin [mailto:bmatt...@earthlink.net] > Sent: Thursday, May 18, 2017 4:04 PM > To: quad-list@eskimo.com > Subject: [QUAD-L] Re: Pressure wound advice > > Thanks, everyone, for your comments and feedback. It's interesting how > different people have very different experiences. I don't yet have the Wound > VAC but should have it soon. Oddly, sitting in my chair does not seem to be > the cause of the pressure wound. So maybe it's my bed. I find it hard to > breathe when I lie on my side very long, hope a different mattress will help. > Frustrating, not knowing the cause or the best solution. But you all give > me hope that there WILL BE a solution, eventually. Peace!
Fwd: [QUAD-L] Muscle
I live in the great state of Kentucky. As of now I am still in the process of transitioning from teachers retirement insurance to Medicare (because I turn 65 this month). It is more confusing than the matrix. I think there is a part for each letter of the alphabet and a rider and a supplement for each letter. Now add different levels to each rider and those in network and those out of network. Figure the different levels of copay, check line 37 for your agi, and call the assistance hotline. Scream loudly, hang up, and realize that there is no way in hell that you can understand this, much less afford it. The words GIVE UP are ringing in the background. Double the Paxil, doc. No wait...can't afford it. Sent from my iPad Begin forwarded message: > From: greg > Date: May 10, 2017 at 9:13:19 PM EDT > To: Larry Willis > Subject: Re: [QUAD-L] Muscle > > Where do you live? > Do they have Medicare Replacement Insurence? > Greg > > > As I grow older, my arms have become skinner and weaker. Doc says > > it is a loss of muscle mass due to aging. I'm almost 65. Anyone > > else experiencing this? I am losing confidence in doing things that > > used to be easysuch as driving. My shoulder seems to lock when > > I turn the steering wheel too far. I think I am over the hill. > > Btw, I switched over to Medicare this month. Aa prescription that > > cost me 45$ last month cost me $300 today. Made me nauseous. Can't > > do it. Larry Willis > > Sent from my iPad > > > > Begin forwarded message: > > > > > >> Resent-From: quad-list@eskimo.com > >> From: greg > >> Date: May 9, 2017 at 10:12:10 PM EDT > >> To: > >> Subject: [QUAD-L] Waxed Ams > >> > >> > >> I waxed my arms last week. Got a few replies asking if it worked. > >> > > I think it actually helped. The hair on my arms is always standing > > up. Makes my arms tingle. Especially in bed with the blankets > > rubbing on them. Its not perfect, but its better I think. > > Only cost $40 > > Greg
[QUAD-L] Muscle
As I grow older, my arms have become skinner and weaker. Doc says it is a loss of muscle mass due to aging. I'm almost 65. Anyone else experiencing this? I am losing confidence in doing things that used to be easysuch as driving. My shoulder seems to lock when I turn the steering wheel too far. I think I am over the hill. Btw, I switched over to Medicare this month. Aa prescription that cost me 45$ last month cost me $300 today. Made me nauseous. Can't do it. Larry Willis Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: May 9, 2017 at 10:12:10 PM EDT > To: > Subject: [QUAD-L] Waxed Ams > > I waxed my arms last week. Got a few replies asking if it worked. > > I think it actually helped. The hair on my arms is always standing up. Makes > my arms tingle. Especially in bed with the blankets rubbing on them. Its not > perfect, but its better I think. > Only cost $40 > Greg
Fwd: [QUAD-L] Purple or black colored toes and feet
That happens to me occasionally. Feet swell pretty bad too. We wrap lower leg in ace bandage and that helps quite a bit. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Carolyn Boyles > Date: April 29, 2017 at 7:02:15 PM EDT > To: quad-list@eskimo.com > Subject: Re: [QUAD-L] Purple or black colored toes and feet > > It sounds like a very dangerous situation to me, one requiring a doctor's > advice ASAP so as not to lose the toes to gangrene. > > Carolyn >
Fwd: [QUAD-L] Exercise
Have you tried a bungee cord? They come in all shapes and sizes. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: April 27, 2017 at 10:46:59 PM EDT > To: > Subject: [QUAD-L] Exercise > > Any tips on ways to exercise by yourself? As a C5 I can't do a lot. I have a > hand cycle, but need to get strapped on. > > Mostly I stretch, and use an elastic band. Hook in on my armrest and around > my hand. My legbags come with elastic straps. I save a lot of them. Loop them > together to make it as long as I want. I hook it on door handles, or drop one > end and run over it to hold in place. You can double them to make it harder. > They work great and last awhile. > > I also save the green caps to use on my typing stick. Erasers just ware down > leaving a mess. > > Greg
[QUAD-L] Hey Greg
My pain is mostly in the front part of my shoulder. My arm becomes very weak. It hurts so bad at night I can't sleep. Just miserable. Have you tried any of the joint supplements like Move Free? Sent from my iPad Begin forwarded message: > From: greg > Date: April 18, 2017 at 11:40:55 PM EDT > To: Larry Willis > Subject: Re: [QUAD-L] Life etc. > > I feel that way when my shoulder acts up, and its more and more often. Still > can't find the cause. CAT-Scan, MRI, Xray, Nerve test for pinched nerve. > Nothing. > > My next tests will be Thyroid. Doesn't sound logical, but I read a Thyroid > issue caj cause severe, stabbing, shoulder pain. > > It's either fine, or unbearable stabbing under my shoulder blade. I swear > there is a knife stuck in me. > > Know the cause of your shoulder pain? > Meds help my hip H.O., but doesn't dent my shoulder. > > Greg > > > > > My greatest issues at this time are stabbing shoulder pain and > > killer depression. Sometimes I want to crawl in a box and close the > > lid. 46 years of this agony is more than any human should have to > > endure. Feeling blue and useless. Larry W. > > Sent from my iPad
[QUAD-L] Life etc.
My greatest issues at this time are stabbing shoulder pain and killer depression. Sometimes I want to crawl in a box and close the lid. 46 years of this agony is more than any human should have to endure. Feeling blue and useless. Larry W. Sent from my iPad
Fwd: [QUAD-L] Check out this article my friends
What a great story! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Ismael Cavazos" > Date: April 11, 2017 at 9:46:14 PM EDT > To: "Blue" > Subject: [QUAD-L] Check out this article my friends > > http://www.generationterrorists.com/articles/30_years_later.html
Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV
Amazon is the most amazing outfit I have ever seen. They have everything and do everything.Bezos is a genius. If only I had invested a few bucks in it about 12 years ago. WaitI've never had a few bucks! Lol A fellow can always dream. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: jume9...@comcast.net > Date: April 7, 2017 at 1:21:05 PM EDT > To: quad-list@eskimo.com > Subject: Re: [QUAD-L] Amazon to hire 30,000 virtual customer service workers > | Jesse Jones - KIRO TV > > These jobs are not work from home are they? > Meredith > > Sent from my LG Mobile > > -- Original message-- > From: Jim Lubin > Date: Thu, Apr 6, 2017 11:50 PM > To: quad-list@eskimo.com; > Subject:[QUAD-L] Amazon to hire 30,000 virtual customer service workers | > Jesse Jones - KIRO TV > > http://jessejones.com/story/amazon-to-hire-3-virtual-customer-service-workers/
[QUAD-L] Billy
Do any of you guys know what Billy's cause of death was? It breaks my heart when one of our quad peeps passes away. I suppose it is a reminder of how fragile quad life really is. Larry Willis Retired and proud of it
Fwd: [QUAD-L] Sleepy
Same here. I stay tired. Some days worse than others. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jeffrey Gaede > Date: March 28, 2017 at 10:34:50 PM EDT > To: greg , "quad-list@eskimo.com" > Subject: Re: [QUAD-L] Sleepy > Reply-To: Jeffrey Gaede > > I rarely feel rested for any decent length of time. I think it' a quad thing > > > From: greg > To: quad-list@eskimo.com > Sent: Tuesday, March 28, 2017 7:30 PM > Subject: [QUAD-L] Sleepy > > Ever have those days were no matter what you do you can not stay awake. It's > like I took a box of sleeping pills. Fall asleep drinking coffee. Some days > its so bad, I wonder if my time-release pain meds were cracked and it all > came out at once. > > Greg > >
Fwd: [QUAD-L] Wall Damage From Chair
Same here. Everything in my house has dents, holes, and scratches. Interior of my van is the same way. I tend to destroy my toes in the process. Can't wear shoes anymore. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jeffrey Gaede > Date: March 7, 2017 at 11:17:48 AM EST > To: greg , "quad-list@eskimo.com" > Subject: Re: [QUAD-L] Wall Damage From Chair > Reply-To: Jeffrey Gaede > > Let's put it this way, serious construction work has and will take place in > my room, doorway and nearby hallway before selling my home :-) > > Jeff > From: greg > To: quad-list@eskimo.com > Sent: Tuesday, March 7, 2017 7:38 AM > Subject: [QUAD-L] Wall Damage From Chair > > After a few years in your house, how do you walls, doors, look from chair > damage? I've been so careful not to crash, scrape, bang, into things. After > 12 years here, things still look pretty good. I have a tight 2 turns to get > into my room, No issues there. Coming out of my room I have 1 big ding on a > counter corner, and1 big ding on corner of the frig. Both from backing up. My > living room has a step down, a friend built an oak ramp. I have some scrapes > on the ramp from when my footrest is down to low. That's it inside, but my > front door is trashed. I push it open with my footrest, often my joystick box > scrapes it as it closes. I put a brass plate on the bottom, but my footrest > often misses it. Oh, the biggest damage inside is the wall by my bed. I back > in and ding the wall a lot, plus when I to transfer they lift my armrest back > and it hits the wall. A few holes there now. I now have a piece of plywood > there. > Greg > >
Fwd: [QUAD-L] My package was stolen!
Well, that's a load of manure. Maybe you and neighbors could put up an apartment style box where each of you has a lock box. Mailman might be pissed, but hey, thievery is not acceptable. Good luck! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: jume9...@comcast.net > Date: November 30, 2016 at 1:39:23 PM EST > To: quad-list@eskimo.com > Subject: Re: [QUAD-L] My package was stolen! > > It helps to use Amazon lockers, there might be one near you. I live in a > fairly nice neighborhood but we have had similar problems. > > Meredith > > Sent from my LG Mobile > > -- Original message-- > From: Johnny Cammon > Date: Wed, Nov 30, 2016 5:17 AM > To: quad-list@eskimo.com; > Subject:[QUAD-L] My package was stolen! > > Hello quadriplegics? Do I have some news for you guys, okay I ordered the > echo.and a Air mattress. They knocked but no one was able to get to the door > in time so tell me why Whoever left it on the porch. I had Ms. the first time > they delivered. And email was sent to me and I follow the email to > reschedule the delivery they would not let me pick the next day so I peaked > November 30 to be delivered. So I wasn't expecting it to come anyway. Someone > came on the porch took the stuff out of the box and left the box on the > porch. So now I am contacting Amazon and see if I can get some help.. > Hopefully I heard they will replace it.
Fwd: [QUAD-L] Raining
We keep our thermostat on 72 in the day and 67 at night. And I keep my butt parked by a heater and under the covers! My wife says I keep it burning up in here. I fear it's another quad thing. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: RONALD L PRACHT > Date: February 19, 2017 at 7:44:27 PM EST > To: Quad-list Post > Subject: Re: [QUAD-L] Raining > Reply-To: RONALD L PRACHT > > Come on down to Missouri(Misery)where a quad has to hibernate between > Nov-April. Every year I think Im going to be tough, but cant fight below 30 > in my old quad years. > > Ron > > > On Sunday, February 19, 2017 5:19 PM, greg wrote: > > > I hate these rainy days. I get so sore. > Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd > rather 60 and sunny than 80 and clowdy. > I drink hot stuff all day, then feel blah from dinking too much sweet stuff. > Hot Coco, Coffees, Cider. > rain rain go away... > Greg > >
Fwd: [QUAD-L] Raining
It is in the sixties and sunny here in old Kaintuck. February has been unbelievably warm this yearno snow, no floods, no storms of any kind! A year ago we had over a foot of snow about now. Global warming or coincidence? Hm. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: RONALD L PRACHT > Date: February 19, 2017 at 7:44:27 PM EST > To: Quad-list Post > Subject: Re: [QUAD-L] Raining > Reply-To: RONALD L PRACHT > > Come on down to Missouri(Misery)where a quad has to hibernate between > Nov-April. Every year I think Im going to be tough, but cant fight below 30 > in my old quad years. > > Ron > > > On Sunday, February 19, 2017 5:19 PM, greg wrote: > > > I hate these rainy days. I get so sore. > Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd > rather 60 and sunny than 80 and clowdy. > I drink hot stuff all day, then feel blah from dinking too much sweet stuff. > Hot Coco, Coffees, Cider. > rain rain go away... > Greg > >
[QUAD-L] Pain
To those of you with joint pain-- have you tried MoveFree? I bought a bottle yesterday and will know in a couple of weeks or so. I hope. Larry Willis Retired and proud of it
Fwd: [QUAD-L] Cipro Warning
Well that's wonderful. Cipro and levaquin have always been my go-to drugs. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: February 9, 2017 at 10:58:35 PM EST > To: > Subject: [QUAD-L] Cipro Warning > > Just got a UTI. I always used Cipro, but they have a new danger warning. So > importent, its called a "Black Box" waning > > > > FDA Says Risks May Outweigh Benefits for Antibiotics Levaquin, Cipro > Posted May 16th, 2016by Michelle Llamas & filed under FDA News & Recalls. > > Did you experience aortic complications after taking fluoroquinolones? > > On May 12, 2016, the U.S. Food and Drug Administration announced it is > requiring a stronger black box warning for common, popular antibiotics called > fluoroquinolones that include Levaquin (levofloxacin), Cipro (ciprofloxacin) > and Avelox (moxifloxacin) — medications taken by more than 26 million > Americans each year. > > “The U.S. Food and Drug Administration is advising that the serious side > effects associated with fluoroquinolone antibacterial drugs generally > outweigh the benefits for patients with sinusitis, bronchitis, and > uncomplicated urinary tract infections who have other treatment options,” the > FDA said in a Drug Safety Communication. “For patients with these conditions, > fluoroquinolones should be reserved for those who do not have alternative > treatment options.” > > The agency’s action comes after its FDA Advisory Committee meeting in > November 2015. This is not the first warning for these drugs released by the > FDA. It previously added boxed warnings in 2008 for tendon rupture and > tendinitis and again in 2013 for permanent nerve damage called peripheral > neuropathy. > > The new boxed warning advises patients and doctors that these antibiotics may > cause potentially permanent damage to muscles, tendons, joints, nerves and > the central nervous system. In patients with minor infections such as > sinusitis and bronchitis, the risk outweighs the benefits, the FDA panel > found. In these cases, other treatments are often available and the agency > strongly discourages doctors from prescribing them. > >
[QUAD-L] .??
Hey guys. Is Bobbie OK? Don't want to be nosey, but I worry. Sent from my iPad
Fwd: [QUAD-L] Rehab/housework
None. I couldn't even feed myself. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bobbie Humphreys > Date: January 28, 2017 at 5:09:05 PM EST > To: quad-list@eskimo.com > Subject: [QUAD-L] Rehab/housework > > When you al were in rehab, how much training did you get for doing housework, > like cooking 🍳 laundry, vacuuming, making a bed or grocery shopping 🛒? > I had many classes, in OT, on how to do all of the above when I was at > Kessler Insitute. > Bobbie > > "Be the change you want to see in the world". Gandhi
Fwd: [QUAD-L] Why keep pushing on
Notice my m key went missing. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: RONALD L PRACHT > Date: January 27, 2017 1:35:43 PM EST > To: Quad-list Post > Subject: Re: [QUAD-L] Why keep pushing on > Reply-To: RONALD L PRACHT > > What it comes down to is there is no option other than suicide to get out of > it. What has helped me is the realization that life is short for everybody > and in 50 years nobody will know the difference who was a quad or not. Life > is a gift, even as a quad and each of us have to find our own reasons. I dont > know if you have heard the song by garth brooks called the dance, but it > talks about lifes pain and gifts. In order to get out of the pain you would > of had to miss the dance. Think about all the special things you have done in > your life. We have to struggle harder to find purpose each day that the > average person thats for sure. I think a quad knows and appreciates the > little things life gives us more. Listen to the song and maybe that can help. > > > On Friday, January 27, 2017 11:57 AM, Paul Jacobson > wrote: > > > love > > From: Jeffrey Gaede > Sent: Thursday, January 26, 2017 6:34 PM > To: Quad-list Post > Subject: [QUAD-L] Why keep pushing on > > Why do people keep pushing on? I mean it's bad enough to be substantially > disabled, but it doesn't stop there. People, in general, don't want to be > around you. It's difficult to go places and do things; average things that > most people do all the time. And you know from experience that illnesses and > such can pop up at any moment, much more easily than the average person. You > try like hell to avoid being dependent on the government but it's nearly > impossible, even if you work full-time. That means you constantly have > someone with which to answer. Someone with their own rules, who can't begin > to understand you and what you go through on a daily basis. I could see where > if you were recently disabled then maybe you haven't been through enough to > realize what life is going to throw your way, but what about those of us that > have been around a while? What keeps you pushing on… Jeff > > > From: greg > To: quad-list@eskimo.com > Sent: Thursday, January 26, 2017 6:30 PM > Subject: [QUAD-L] Bd > > I hate going to bed. I freeze the first half hour no matter how warm I get my > room. > Shake like I'm convulsing. > I'd stay in my chair 24/7 if I could. > Plus I just hate not being able to move around. > Greg > > > >
Fwd: [QUAD-L] Why keep pushing on
My family is what keeps ne going. Without then I would be ready to go. 46 years as a quad is enough. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: RONALD L PRACHT > Date: January 27, 2017 1:35:43 PM EST > To: Quad-list Post > Subject: Re: [QUAD-L] Why keep pushing on > Reply-To: RONALD L PRACHT > > What it comes down to is there is no option other than suicide to get out of > it. What has helped me is the realization that life is short for everybody > and in 50 years nobody will know the difference who was a quad or not. Life > is a gift, even as a quad and each of us have to find our own reasons. I dont > know if you have heard the song by garth brooks called the dance, but it > talks about lifes pain and gifts. In order to get out of the pain you would > of had to miss the dance. Think about all the special things you have done in > your life. We have to struggle harder to find purpose each day that the > average person thats for sure. I think a quad knows and appreciates the > little things life gives us more. Listen to the song and maybe that can help. > > > On Friday, January 27, 2017 11:57 AM, Paul Jacobson > wrote: > > > love > > From: Jeffrey Gaede > Sent: Thursday, January 26, 2017 6:34 PM > To: Quad-list Post > Subject: [QUAD-L] Why keep pushing on > > Why do people keep pushing on? I mean it's bad enough to be substantially > disabled, but it doesn't stop there. People, in general, don't want to be > around you. It's difficult to go places and do things; average things that > most people do all the time. And you know from experience that illnesses and > such can pop up at any moment, much more easily than the average person. You > try like hell to avoid being dependent on the government but it's nearly > impossible, even if you work full-time. That means you constantly have > someone with which to answer. Someone with their own rules, who can't begin > to understand you and what you go through on a daily basis. I could see where > if you were recently disabled then maybe you haven't been through enough to > realize what life is going to throw your way, but what about those of us that > have been around a while? What keeps you pushing on… Jeff > > > From: greg > To: quad-list@eskimo.com > Sent: Thursday, January 26, 2017 6:30 PM > Subject: [QUAD-L] Bd > > I hate going to bed. I freeze the first half hour no matter how warm I get my > room. > Shake like I'm convulsing. > I'd stay in my chair 24/7 if I could. > Plus I just hate not being able to move around. > Greg > > > >
[QUAD-L] Back, pain, back!!!
Ok guys, things are getting serious. My neck and right shoulder hurt so bad I want to cry. It seems to start in the back of my neck and radiate into my right shoulder joint. The only thing that helps is to stack some thick towels in front of me and lay my arm on top of them. Does anyone have a better solution? I've tried salves and lotions, Percocet and ibuprofen. Nothing. Btw,one year ago this week, my wife MELISSA, had her harrowing experience with a pacemaker. Prayers for her and a few miracles for all of us! Night peeps. Larry Willis Retired and proud of it
[QUAD-L] Obamacare? Yuck said the fools.
Obamacare saved my life. What now? http://www.cnn.com/2017/01/16/opinions/obamacare-life-or-death-jardin-opinion/index.html Sent from my iPad
[QUAD-L] Trump and Sessions
The new attorney general seems to have a beef against every minority. Wonder what that bodes for the quad world? Read this from CNN. Heed Coretta Scott King's warning on Sessions http://www.cnn.com/2017/01/13/opinions/coretta-scott-king-warning-on-sessions-ifill-opinion/index.html Sent from my iPad
[QUAD-L] Brushl
Obviously,find one that fits your hand. I get the soft bristle kind because my gums stay sore. I use the oral-b variety that goes in a circle. Easier to use. God bless you, my friend. Larry Willis Retired and proud of it
Fwd: [QUAD-L] Electric toothbrush
Same as Derrick. Oral B. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Fragile > Date: January 12, 2017 at 11:47:04 AM EST > To: Bobbie Humphreys , quad-list > > Subject: Re: [QUAD-L] Electric toothbrush > > Bobbie, this is what I use to have a toothbrush: > http://www.accesstr.com/Pool-Cue-Cuff-p/9462.htm > >> On Tue, Jan 10, 2017 at 7:24 PM, Bobbie Humphreys >> wrote: >> Those of you who have an electric toothbrush, how do you hold it? >> >> If you could please send me a link I would appreciate it a lot. >> Bobbie >> >> "You must fail in order to succeed" >> >
Fwd: [QUAD-L] Marie
Guys,the Marie I am talking about started the SCIC Yahoo group years ago. It was obviously for caregivers. I dontknowif she was disabled or not. Larry Willis Retired and proud of it Begin forwarded message: > From: Lori Michaelson > Date: January 5, 2017 at 2:06:17 PM EST > To: Larry Willis > Subject: Re: [QUAD-L] Fwd: 20% Off in Stores - New from Oprah Winfrey > > Larry... I am writing off list but I do not remember any "Marie" from this > list. I only know the founder of the SCIC listserv [Spinal Cord Injury > Caregivers listserv] was a "Marie." Is that who passed away? > >> On Tue, Jan 3, 2017 at 8:37 PM, Larry Willis wrote: >> Oh my, I never considered that she had passed away. She will be missed. If I >> am not being too personal, >> what are the details? How old was she? I do not mean to be unfeeling or >> callous. It is just many of us >> are in unexplored territory of aging with an SCI. My love and prayers to her >> family and friends. >> >> Sent from my iPad >> >> Begin forwarded message: >> >>> From: "Barnes & Noble" >>> Date: January 3, 2017 at 3:04:26 PM EST >>> To: lwillis82...@gmail.com >>> Subject: 20% Off in Stores - New from Oprah Winfrey >>> Reply-To: "barnesandno...@mail.barnesandnoble.com" >>> >>> >>> >>> Explore Top Books from Today's Most Exciting Writers. >>> View In Browser >>> >>> Become a Member and Get 40% Off Hardcover Bestsellers in Stores – Every >>> Day! Join Now > >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> Add us to your address book to ensure delivery to your inbox: >>> barnesandno...@mail.barnesandnoble.com >>> All offers are subject to availability, while supplies last. Prices are >>> subject to change. >>> Unsubscribe | Privacy Policy >>> © 2017 Barnes & Noble. All Rights Reserved. >>> This email is an advertisement from Barnes & Noble, Inc. >>> 122 Fifth Avenue New York, NY 10011 >>> Attn: Marketing Preferences > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz
Re: [QUAD-L] Fwd: 20% Off in Stores - New from Oprah Winfrey
Hi Bobbie. One of our members reported that Marie, one of the group founders, died back in March. Larry Willis Retired and proud of it > On Jan 4, 2017, at 2:48 PM, Bobbie Humphreys > wrote: > > ~~~writing off list~<< > > Larry, > Who passed away? > Tell me, how is your wife? > Bobbie > > "You must fail in order to succeed" > >> On Jan 3, 2017, at 10:37 PM, Larry Willis wrote: >> >> Oh my, I never considered that she had passed away. She will be missed. If I >> am not being too personal, >> what are the details? How old was she? I do not mean to be unfeeling or >> callous. It is just many of us >> are in unexplored territory of aging with an SCI. My love and prayers to her >> family and friends. >> >> Sent from my iPad >> >> Begin forwarded message: >> >>> From: "Barnes & Noble" >>> Date: January 3, 2017 at 3:04:26 PM EST >>> To: lwillis82...@gmail.com >>> Subject: 20% Off in Stores - New from Oprah Winfrey >>> Reply-To: "barnesandno...@mail.barnesandnoble.com" >>> >>> >>> >>> Explore Top Books from Today's Most Exciting Writers. >>> View In Browser >>> >>> Become a Member and Get 40% Off Hardcover Bestsellers in Stores – Every >>> Day! Join Now > >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> Add us to your address book to ensure delivery to your inbox: >>> barnesandno...@mail.barnesandnoble.com >>> All offers are subject to availability, while supplies last. Prices are >>> subject to change. >>> Unsubscribe | Privacy Policy >>> © 2017 Barnes & Noble. All Rights Reserved. >>> This email is an advertisement from Barnes & Noble, Inc. >>> 122 Fifth Avenue New York, NY 10011 >>> Attn: Marketing Preferences
[QUAD-L] Fwd: 20% Off in Stores - New from Oprah Winfrey
Oh my, I never considered that she had passed away. She will be missed. If I am not being too personal, what are the details? How old was she? I do not mean to be unfeeling or callous. It is just many of us are in unexplored territory of aging with an SCI. My love and prayers to her family and friends. Sent from my iPad Begin forwarded message: > From: "Barnes & Noble" > Date: January 3, 2017 at 3:04:26 PM EST > To: lwillis82...@gmail.com > Subject: 20% Off in Stores - New from Oprah Winfrey > Reply-To: "barnesandno...@mail.barnesandnoble.com" > > > > Explore Top Books from Today's Most Exciting Writers. > View In Browser > > Become a Member and Get 40% Off Hardcover Bestsellers in Stores – Every > Day! Join Now > > > > > > > > > > > > > > > > Add us to your address book to ensure delivery to your inbox: > barnesandno...@mail.barnesandnoble.com > All offers are subject to availability, while supplies last. Prices are > subject to change. > Unsubscribe | Privacy Policy > © 2017 Barnes & Noble. All Rights Reserved. > This email is an advertisement from Barnes & Noble, Inc. > 122 Fifth Avenue New York, NY 10011 > Attn: Marketing Preferences
[QUAD-L] Fwd: Well, hello there. :-)
Some more stuff fromJon Morrow,superquad extraordinaire. Sent from my iPad Begin forwarded message: > From: "Jon Morrow" > Date: January 2, 2017 at 2:52:29 PM EST > To: > Subject: Well, hello there. :-) > > > So, you're ready to become Unstoppable, eh? > > Certainly hope so. Hang around me, and that's exactly what I'm gonna make > you, like it or not. ;-) > > You see, this isn't just a "blog" to me. It's my way of giving back. > > Being born with muscular dystrophy, it probably doesn't surprise you that > I've needed a lot of help throughout my life. > > And I've been lucky. Incredibly lucky. > > Lots of people with severe disabilities never get the help they need, but I > have. Over and over again. > > I was blessed with a mother who has taken care of me day and night for > decades. > > I was blessed with a father who spent a small fortune to give me the best > healthcare the world has to offer. > > I was blessed with teachers who encouraged me to study and think, slowly but > surely harnessing the power of my mind. > > It's stunning, really. Throughout my life, there have been dozens, maybe even > hundreds of people who have bent over backwards to help me. > > And so now, I'm returning the favor. > > Over the coming months and years, the things I'm going to teach you are going > to change your life. Might sound cocky, saying that, but I believe it's true. > > I'm not just talking about inspiration, either. Sure, I'll tell you an > inspiring story or two, and I might even give you the occasional pep talk, > but this site is more than that. > > We're going to dive deep into how to improve every aspect of your life. Your > finances, your relationships, your health – we'll cover everything. > > Sound okay to you? :-) > > All I ask in return is you give serious thought to what I have to say. It'll > be worth it, I promise. > > Talk soon, > > Jon > > PS: If you need anything, just reply to this email. Can't guarantee I'll > respond to you personally, because I get a TON of email from readers, but a > member of my team will get back to you, lickety-split. > > > Sent to: lwillis82...@gmail.com > > Unsubscribe > > Unstoppable, P.O. Box 2034, Cedar Park, Texas 78630, United States
Fwd: [QUAD-L] Happy new year
If this guys story is true, he deserves some kind of prize. With that level of paralysis, I would wither up and blow away. How does he so nonchalantly do these incredible things? Move to Mexico and become a millionaire in a few weeks? I dunno. Pretty amazing. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Johnny Cammon > Date: January 1, 2017 at 5:20:28 PM EST > To: Joan Anglin > Cc: quad-list > Subject: Re: [QUAD-L] Happy new year > > Thanks Joan > >> On Sun, Jan 1, 2017 at 2:57 PM, Joan Anglin wrote: >> HAPPY NEW YEAR May 2017 bring peace. >> >> Reading the attached article reinforces my belief that we can push through >> almost anything if we want to. >> >> https://unstoppable.me/life-lessons/?utm_source=facebook&utm_medium=Social&utm_campaign=SocialWarfare >> >> Whether or not you believe in this person is immaterial, the message of >> never giving up is what's important. >> >> >> >> >> >> Creativity is intelligence having fun. Albert Einstein >> >> >> >> Joan >> >
[QUAD-L] Thieves
Guys, my paypal account was just scammed, three transactions for almost $3600. Thank goodness my bank caught all but $75. Change your passwords often, guys, and make them cryptic. Larry Sent from my iPad
Fwd: [QUAD-L] New Chair
I think the dealer settled with insurance for about $13,000 on my chair. Fortunately, I owe nothing on it. This is because I met my maximum out of pocket limit through a hospital stay back in September. I get so sick and tired of this I would like to drive off a cliff. It seems there is a new ailment, breakdown, ungodly expense, family issue, everyday. And the health issues are NEVER small. They always life-threatening for both my wife and me. I am having spasms in my legs and stomach right now so bad I struggle to write this. It seems so damn pointless. Suffer today, suffer tomorrow, next week, next month,next year, until theLordfinally has some mercy and releases me from this misery. Ok, I'm done. God bless you guys for listening..and for understanding. Larry Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Lori Michaelson > Date: December 27, 2016 at 10:35:14 PM EST > To: da...@immortaldesigns.co, quad-list > Subject: Re: [QUAD-L] New Chair > > Ditto as Danny as far as the reclining option on my Permobil M 300 in > September 2011 and the price of the entire chair was $32,000 I think. > Medicare covered that but I had to pay the 20% that Medicare did not pay and > had to pay the full $5000 for the recline option. > >> On Tue, Dec 27, 2016 at 7:32 PM, Danny Espinoza >> wrote: >> I had to pay out of pocket for mine on my Permobil m300. >> -Danny >> >> >> >> From: greg [mailto:g...@eskimo.com] >> Sent: Tuesday, December 27, 2016 4:51 PM >> To: quad-list@eskimo.com >> Subject: [QUAD-L] New Chair >> >> >> >> I finely started the new chair process. I just kept putting it off. Cost to >> darn much, I owe 20%. They told me Medicare no longer pays for seat elevator >> or faster motors. So that's even more for me. I have AARP Medicare >> Replacement. Covers a bit more, but same rules for durable medical. >> >> >> >> Was anyone able to get seat elevator or faster motors covered? If so, what >> need did you use? >> >> >> >> I never tie down, I sit sideways behind the seat. Now my motors auto break >> is so warn out, I roll a lot. We had to hit the breaks hard coming home. I >> was too much at an angle and rolled into the back of the seat. Snapped my >> joystick right off. All the screws just snapped. Luckily I had 1 extra screw >> at home. Supposed to use 4. >> >> >> >> The new chairs sound pretty good. Said it could have a USB, and the joystick >> can operate remote controls. Very cool. >> >> >> >> Greg >> > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz
Fwd: [QUAD-L] New Chair
I got aa new Invacare storm this week. It doesn't have lift or speed either. $27,350. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: December 27, 2016 at 7:50:57 PM EST > To: > Subject: [QUAD-L] New Chair > > I finely started the new chair process. I just kept putting it off. Cost to > darn much, I owe 20%. They told me Medicare no longer pays for seat elevator > or faster motors. So that's even more for me. I have AARP Medicare > Replacement. Covers a bit more, but same rules for durable medical. > > Was anyone able to get seat elevator or faster motors covered? If so, what > need did you use? > > I never tie down, I sit sideways behind the seat. Now my motors auto break is > so warn out, I roll a lot. We had to hit the breaks hard coming home. I was > too much at an angle and rolled into the back of the seat. Snapped my > joystick right off. All the screws just snapped. Luckily I had 1 extra screw > at home. Supposed to use 4. > > The new chairs sound pretty good. Said it could have a USB, and the joystick > can operate remote controls. Very cool. > > Greg
Fwd: [QUAD-L] Syrinx
Wow, Bobbie, all I can offer is love, prayer, and sympathy.and you certainly have those. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Robert Vogel > Date: December 26, 2016 11:35:58 PM EST > To: Bobbie Humphreys > Cc: quad-list@eskimo.com > Subject: Re: [QUAD-L] Syrinx > > Hi Again Bobbie and All, > > My previous email was sent via iPhone, now that I’m at my computer I can give > you all the details. > > In my opinion, after doing a lot of research, the two places that know the > most about Syrinx—(Syringomyelia) > are the University of Miami School of Medicine (Miami Project) and Craig > Hospital in Denver. > > I would go right to the expert, right away!!! > > I’ve had the good fortune to interview and ask questions of Craig Hospital’s > expert on Syrinx, Dr. Scott Falci. > Dr. Falci is an expert on the subject and has done surgery on over 1000 > people with SCI and Syrinx. > Dr. Falci and his team are fantastic at answering questions and can give you > a lot of information on treatment > options based on your symptoms (information, not advice) over the phone. > They are quite quick to respond > to phone calls, again, in my experience they return phone calls within a day > or two. The main person that takes > the phone calls is Charlotte. Their direct number (for Rehabilitative > Neurosurgery) is (303)761-5281 or you can > email them at: cind...@craighospital.org > > Their webpage is: > https://craighospital.org/programs/rehabilitative-neurosurgery > > They treat based on symptoms—from the symptoms you describe, if it was me, > I’d be on the phone first thing > tomorrow. The sooner you get a handle on this the better. From what I > understand *sometimes* you can regain > what you have lost due to Syrinx, but the key is if you are loosing feeling > and/or movement, it is important to find > out what to do and do it right away. > > I have talked with quite a few people that have been treated by Dr. Falci and > they say he is fantastic, both as a surgeon > and as a knowledgable, empathetic doctor. > > Hope this helps. > > Bob Vogel > >> On Dec 26, 2016, at 6:09 PM, Bobbie Humphreys >> wrote: >> >> I was diagnosed with a syrinx back in 1995 and, until now, have had no real >> problems. >> >> Since the first Saturday of December I can not feel my right hand 🤚 and >> using it, like I've been able to, has become nearly impossible. >> >> Picking up and holding a fork, tooth brush, spoon, pen, paint 🎨 brush, >> opening medications and even driving my chair has become an extreme >> challenge. >> >> Does anybody know of any way to alleviate the pressure? >> I don't want to get it drained because my Doctor said it can come back >> immediately. No way do I want a shunt. >> Bobbie >> >> "You must fail in order to succeed" >
[QUAD-L] Burning question
Question- Can extended use of ditropan (oxybutynin) lead to burning mouth syndrome? Anyone else here experienced such a thing? It is a miserable curse. Any food with even the slightest spice feels like a marriage of cayenne and habanero. Sprite and Crest toothpaste both make my eyes water. It will go away for a week or two then come roaring back. Anybody got a clue? Sent from my iPad
Fwd: [QUAD-L] Unidentified subject!
I did not know this about wheelchair. My deepest sympathy in this terrible loss! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Gail Holmes > Date: December 23, 2016 at 5:38:16 PM EST > To: wheelch...@aol.com > Cc: quad-list@eskimo.com > Subject: [QUAD-L] Unidentified subject! > > Im thinking of this time of year how with the joy and hope we there is often > increased sadness for those who have family and friends who have passed on to > the other side. > > There are probably others on this list who are mourning but I'm particularly > thinking of "Wheelchair" who had a recent and sudden loss of his son. > > Thank you Wheelchair for continuing to contribute to this list even as no > doubt the pain is still so fresh and raw. > > May God comfort you and bring you peace. > > > > Sent from my iPhone > >> On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote: >> >> Oxy, is a very potent and dangerous drug. Users, should not advertise its >> use. It can become habit forming is less than 90 days of use. The FDA, is >> cracking down on pain doctors, on its use for pain meds. Those seniors with >> shoulder, hips and knee replacements are becoming addicted to the drug, >> without knowing it, which only adds to the health care cost as they go into >> recovery clinic to kick the drug. The symptoms should be reported to the >> doctor that issued the RX. >> >> Best Wishes >> >> In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, >> r.pra...@sbcglobal.net writes: >> It is a different shaped pill, usually I get round ones but this time they >> are elongated oval shape. Could be a little different causing the issue. I >> was concerned of my stomach lining maybe getting screwed up. >> >> Ron >> >> >> On Friday, December 23, 2016 12:52 PM, Larry Willis >> wrote: >> >> >> Ron, have you had a new prescription filled lately? Sometimes I'll get a >> batch that cause me to itch terribly. With the next bottle the itching goes >> away. Bad batch, I assume. Are you taking it in combo with anything else? >> >> Larry Willis >> Retired and proud of it >> >> >>> On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT wrote: >>> >>> Why would taking oxycodone cause my head to sweat and go into mild >>> dysreflexia? Ive been on it for 4 years and it never did this to me. I hope >>> its not stomach lining damage or something?? >>> >>> Ron >> >>
[QUAD-L] Tooth arm
A million thanks to all of you for sharing your thoughts on my teeth and shoulders. Lots of good ideas. I learned that at $5000 per tooth, implants are out. Think I am going to take out one tooth at a time as necessary and try to avoid infections. Thanks to all. Larry Willis Retired and proud of it
[QUAD-L] Tissues and issues
I have a couple of serious issues that cry for quad wisdom. First, I went to the dentist yesterday to have a crown replaced. Instead, he tells me that I have three teeth (including the crown tooth) that need to be pulled. That will be a total of nine teeth, none of them visible, that I have had removed. Chewing anything crunchy, like baby carrots, is already a task. He wants to put in implants, something that will cost a small fortune. Now, I am almost 65, 45 years post. Common sense says I am nearing the end of my rope. I am leaning toward doing nothing and removing each tooth as it becomes a problem. The implants would also require repeated trips to Louisville, a 200 mile round trip. Secondly, my neck and shoulders have become unbearably painful. Have any of you tried glucosamine chondroiten or anything similiar like CQ3? I surely would appreciate some input on these things. I feel like I am sinking in quicksand with no rope. Larry WILLIS Larry Willis Retired and proud of it
Fwd: [QUAD-L] sex
That would be me, Larry, and Nicki putting it on minor burns and scrapes. -- Forwarded message -- From: *alcibiates2* Date: Sunday, December 18, 2016 Subject: [QUAD-L] sex To: Larry Willis , quad-list@eskimo.com I'm confused, who's putting antibiotic ointment and a bandaid on what? Original message ---- From: Larry Willis > Date: 12/18/2016 8:08 PM (GMT-05:00) To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] sex You are so right, Nicki. I have burn scars all over my hands. Immediately apply neosporin and bandaid. If you don't, it will almost certainly become infected and very ugly. At least that is my experience.Larry Willis Retired and proud of it Begin forwarded message: *Resent-From:* quad-list@eskimo.com *From:* "Joan Anglin" > *Date:* December 18, 2016 at 7:39:04 PM EST *To:* "'Ed Tessier'" >, "'Quad-list Post'" < quad-list@eskimo.com > *Subject:* *RE: [QUAD-L] sex* That applies to so many things, not just sex. shoulda had a V8 J *From:* Ed Tessier [mailto:e...@teamjeved.com ] *Sent:* 18 December, 2016 2:08 PM *To:* Quad-list Post > *Subject:* [QUAD-L] sex Just had a lazy afternoon sex with my wife... all oral, since that's what works dependably... so enjoy times like this… So why does it happen so infrequently, why do I let my chronic aches and pains and hassles distract me from enjoying life? I struggle so hard to get through the day sometimes, I don't leave any energy for something that should be IMPORTANT Anybody else in this boat?
Fwd: [QUAD-L] sex
You are so right, Nicki. I have burn scars all over my hands. Immediately apply neosporin and bandaid. If you don't, it will almost certainly become infected and very ugly. At least that is my experience.Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Joan Anglin" > Date: December 18, 2016 at 7:39:04 PM EST > To: "'Ed Tessier'" , "'Quad-list Post'" > > Subject: RE: [QUAD-L] sex > > That applies to so many things, not just sex. > shoulda had a V8 > > J > > From: Ed Tessier [mailto:e...@teamjeved.com] > Sent: 18 December, 2016 2:08 PM > To: Quad-list Post > Subject: [QUAD-L] sex > > Just had a lazy afternoon sex with my wife... all oral, since that's what > works dependably... > > so enjoy times like this… So why does it happen so infrequently, why do I > let my chronic aches and pains and hassles distract me from enjoying life? I > struggle so hard to get through the day sometimes, I don't leave any energy > for something that should be IMPORTANT > > Anybody else in this boat?
Re: [QUAD-L] sex
Ha, Joan, you crack me up! V8 and 7UP together should get a rise from anyone! Larry Willis Retired and proud of it > On Dec 18, 2016, at 7:39 PM, Joan Anglin wrote: > > That applies to so many things, not just sex. > shoulda had a V8 > > J > > From: Ed Tessier [mailto:e...@teamjeved.com] > Sent: 18 December, 2016 2:08 PM > To: Quad-list Post > Subject: [QUAD-L] sex > > Just had a lazy afternoon sex with my wife... all oral, since that's what > works dependably... > > so enjoy times like this… So why does it happen so infrequently, why do I > let my chronic aches and pains and hassles distract me from enjoying life? I > struggle so hard to get through the day sometimes, I don't leave any energy > for something that should be IMPORTANT > > Anybody else in this boat?
Fwd: [QUAD-L] Burns
You are so right, Nicki. I have burn scars all over my hands. Immediately apply neosporin and bandaid. If you don't, it will almost certainly become infected and very ugly. At least that is my experience. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Nichole Rohling" > Date: December 18, 2016 at 5:46:23 PM EST > To: "'greg'" , > Subject: RE: [QUAD-L] Burns > > Looks just like mine when I burn mine. I pop it and pull the skin off (I know > you’re not supposed to but the 1st time I left it alone it got infected, > apply triple antibiotic and a bandaid and they heal pretty quick. > > Nicki > > From: greg [mailto:g...@eskimo.com] > Sent: Sunday, December 18, 2016 8:56 AM > To: quad-list@eskimo.com > Subject: [QUAD-L] Burns > > I burned my finger AGAIN. > I often put my hand of top on my coffee cup, If I move my chair. Though its > insolated and has a cap, I sometimes move my hand and dont know it. Right > over the steam hole. > https://www.facebook.com/greg.wickenburg Photo > > Ouch, > > Greg
[QUAD-L] Med
In September I was in the hospital for ten days with cellulitis and pneumonia. Got the hospital bill today. This doesn't count the doctors etc. $39,000. Criminal. More than most people around here make in a year. Larry Willis Retired and proud of it
Fwd: [QUAD-L] Chair
No, Jeff, it is not sip and puff. The red tape has been terrible though. I'll cont on next email. Sent from my iPad Begin forwarded message: > From: Bobbie Humphreys > Date: November 29, 2016 at 2:59:21 PM EST > To: Larry Willis > Subject: Re: [QUAD-L] Chair > > It's on the frame of the chair > Bobbie > > "You must fail in order to succeed" > >> On Nov 29, 2016, at 11:10 AM, Larry Willis wrote: >> >> I have an Invacare storm power chair. Invacare says they must have its >> serial number before they can ship my new one. >> Anyone know where I could find that? >> Sent from my iPad
Fwd: [QUAD-L] laptop hit the floor.
I have two iPads that I have dropped countless times.both are still going strong . Last fall I was given a surface pro 2, a very impressive machine. My wife used it during a short hospital stay. Unfortunately, the pro took a slide off the bed and went boom on the floor. SCORE iPad 2, Surface pro 0. Yes, the pro shattered. iPads are still going strong. Sent from my iPad" My, Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Gail Holmes > Date: November 29, 2016 at 1:37:18 PM EST > To: DEBRA DEW > Cc: quad-list@eskimo.com > Subject: Re: [QUAD-L] laptop hit the floor. > > So is that laptop still hanging in there? > > That's just short of a small miracle I would say! > > > > Sent from my iPhone > >> On Nov 28, 2016, at 7:17 PM, DEBRA DEW wrote: >> >> for the first time in 15 years of being institutionalized, the CNA knocked >> over my bed table and everything flew off onto the floor, INCLUDING MY >> LAPTOP! It is still running fine. I believe. These things must take a >> licking and keep on ticking. I can't believe everything seems to be >> operational. >> >> Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9 >> Formerly: Homeschooling mom of 9 and pvt. pilot >> Currently: Quadrapeligic due to advanced MS and living in a nursing home >> Phone: 561-743-5093 Room 227B >> SC student 20yrs >> ROMANS 8:28 >> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
[QUAD-L] Chair
I have an Invacare storm power chair. Invacare says they must have its serial number before they can ship my new one. Anyone know where I could find that? Sent from my iPad
Fwd: [QUAD-L] Everyone that you
Love and blessings to all my fellow quads. In our situation, it is often hard to give thanks. We in the US are still blessed beyond belief. Just watch the evening news. So much suffering, pain, and hopelessness in this world. God bless you, my peeps. Let us give thanks for life and for each other on this day of Thanksgiving. Larry Willis Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: wheelch...@aol.com > Date: November 23, 2016 at 8:51:09 AM EST > To: ismaelcavaz...@gmail.com, quad-list@eskimo.com > Subject: Re: [QUAD-L] Everyone that you > > Thank You! and May You Have Just Enough. > Best Wishes > > In a message dated 11/23/2016 2:59:24 A.M. Central Standard Time, > ismaelcavaz...@gmail.com writes: > Hello quadriplegic friends I want to wish you every one that you and happy > Thanksgiving beside we don't know each other and have a safe one you and your > family are main problem as a quadriplegic we get constipated very often but > Thanksgiving is one time out of the year and make it worth it and God bless > you to you and your family my friends
Fwd: [QUAD-L] Need a toe truck!
LOL. My problem is I can't wear shoes at all. They cause sores on my feet. I wear footies and keep my legs wrapped from knee to toe. Disgusting and frustrating? Yes indeed. Just like everything else in quad life.. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bryce Willis > Date: November 7, 2016 at 4:15:18 PM EST > To: "quad-list@eskimo.com" > Subject: [QUAD-L] Need a toe truck! > > Hey guys. I need your knowledge and guidance. I have an Invacare power chair. > The footrests are typical Invacare -- too small. My feet stick out several > inches beyond the pedal. I keep ramming my toes into things. I have destroyed > my big toe and the two adjacent toes. I need bigger pads like the ones E & J > used to make so my toes won't be floating in air. Any suggestions? > > Sent from my iPad
Fwd: [QUAD-L] Brace?
Do you have any old chair arms? Ive used those several times. Just use a hacksaw. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: November 5, 2016 at 4:19:59 PM EDT > To: > Subject: [QUAD-L] Brace? > > I'm trying to attach a bracket to my chair. It's made to clamp onto a round > tube bar. But I have none in a good area. A long time go I had on a very old > chair a tube bar that was like 3 inches long, that had a flat peice on it > that screwed onto the chair. That would be perfect. I just need a 2 or 3 inch > round tube bar, that has a hole in it to screw on the chair. > > Anyone know a site that sells brackets, clamps, etc. for chairs? > Also what might help are those rectangle shape nuts that can slide in a > groove, then turn so thy can't pull out. > > Thanks
Fwd: [QUAD-L] Disease hunting
I had some more good fortune yesterday. I crashed my toes into a concrete flower pot. Tore the nails off two toes next to big toe. They squirted blood for a solid hour. Called a toe truck. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jim Lubin > Date: September 17, 2016 at 2:40:54 PM EDT > To: quad-list@eskimo.com > Cc: quad-list > Subject: Re: [QUAD-L] Disease hunting > > I only get annual blood test nothing else. > >> On Mon, Sep 12, 2016 at 2:38 PM, Lori Michaelson >> wrote: >> Ditto. I am not an experiment but the stress is getting to me and causing >> other problems so I don't have time for all of those "screenings." >> >> ~Lori >> >>> On Sun, Sep 11, 2016 at 3:26 PM, Bobbie Humphreys >>> wrote: >>> I never go for ANY kind of screenings. >>> No colonoscopys >>> No Pap smear >>> No mammogram >>> No mole check >>> >>> Anybody else opt out like me? >>> Bobbie >>> >>> Smile Everyday >> >> >> >> -- >> "Petting, scratching and cuddling a dog could be soothing to the mind and >> heart and deep meditation and almost as good for the soul as prayer." ~Dean >> Koontz >
Fwd: [QUAD-L] QUAD-L] Camera?
Some things irritate the heck out of me for their simple inanity.For example, last night I had a craving for WalMarts deli for supper. Chicken, okra, corn, potato salad, rollsall that good stuff! When I got there, I saw the whole area was dark and the deli trays empty. One lonely lady was slicing cheese and Bologna. She said the manager had made a mistake in scheduling! Yes, I was highly irritated, but I strolled by the counter that held packaged meat and cheese. The place looked like a bargain day table on Black Friday. And the produce section looked even worse. I went to check out. There were five counters open. People were at least six deep on each one. The customer service section was overwhelmed. I know this is a silly waste of words. But the incompetence was disgusting. Think I will shop Krogér next time. Good night, Pards. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Joan Anglin" > Date: September 1, 2016 at 7:21:03 PM EDT > To: "'Dave Krehbiel'" , "'Lori Michaelson'" > > Cc: "'Quad-list Post'" > Subject: RE: [QUAD-L] QUAD-L] Camera? > > Darn it! Now you have me thinking that maybe I should get into photography > and start taking pictures of gardens and flowers etc.. A few minutes > googgleling images brought up a whole slew of ideas. It would be very easy > to rig a mouth trigger for a camera, but of course I would have to use a > automatic zooming camera to get up close. Thanks for the idea, > Greg, something to think about during these cold winter months coming. LOL > Joan > http://www.instructables.com/id/Hands-free-Camera-Mount-for-wheelchairs-bikes-wr/ > > https://shop.gopro.com/mounts-accessories > > https://www.bhphotovideo.com/c/product/1237147-REG/alzo_1145_wheelchair_camera_mount.html > > http://meru.org.uk/product/flexzi-camera-mount/ > > > > > > From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] > Sent: Thursday, September 01, 2016 2:04 PM > To: 'Lori Michaelson' > Cc: 'Quad-list Post' > Subject: RE: [QUAD-L] QUAD-L] Camera? > > I was considering getting a camera once. I had a bracket on my prior > wheelchair which was intended attach a tray. I figured I could rig up some > sort of a way to attach a camera, which I could aim by steering the > wheelchair and by leaning forward and backwards. And I found a device used > trigger the shutter remotely, and it looked like something which I could > attach to my wrist splints and bite on to take the picture. I never tried it. > But maybe that, or something similar, could work. Good luck. > > From: Lori Michaelson [mailto:lorilivin...@gmail.com] > Sent: Tuesday, August 30, 2016 9:14 PM > To: quad-list > Subject: [QUAD-L] QUAD-L] Camera? > > That is one of the things I miss the most (photography). My husband was an > avid photographer and three of the best of the best digital cameras (first a > Kodak purchased in 1998, then an Olympus... both of which were big and bulky > which were okay for him and I can't hold a camera anyway). I finally got > after him to purchase a smaller sized digital camera and he finally purchased > a Canon that he was able to keep in his T. shirt pocket. It took/takes great > videos as well. > > Anyway, my point is that I can't hold I camera at all so I always have to > have someone take photos for me which doesn't happen anymore. My life has > become one big medical problem. Further, after purchasing my first Smart > Phone when living at my sister's... that takes just as good of pictures so > family members took pictures for me using that. > > I would love to know how people with only the use of one arm and one wrist > take photos by themselves without some elaborate system. I need to be able to > drive my chair and be able to turn it (my chair and the camera) every which > way to take photos of anything when out and about by myself. > > ~Lori > > On Tue, Aug 30, 2016 at 8:59 PM, greg wrote: > I had a really nice Canon EOS SLR film camera, but it got frustrating, too > heavy, film got so costly to develop, etc. But now I thought of trying a nice > digital. Not a point and shoot. I read some can be operated by Phone App. > Anyone have a setup that a C5 could use. Any ideas? > > I like the idea of a video screen back, so I don't have to hold up to my face. > Lighter than my big Canon A2, basically worthless now. > Instead of clamping to chair making it to aim. I thought monopod ballenced on > my seat. > > Thanks, Greg > > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz
Fwd: [QUAD-L] QUAD-L] Camera?
Way to go, Joan. Send me samples ASAP! Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Joan Anglin" > Date: September 1, 2016 at 7:21:03 PM EDT > To: "'Dave Krehbiel'" , "'Lori Michaelson'" > > Cc: "'Quad-list Post'" > Subject: RE: [QUAD-L] QUAD-L] Camera? > > Darn it! Now you have me thinking that maybe I should get into photography > and start taking pictures of gardens and flowers etc.. A few minutes > googgleling images brought up a whole slew of ideas. It would be very easy > to rig a mouth trigger for a camera, but of course I would have to use a > automatic zooming camera to get up close. Thanks for the idea, > Greg, something to think about during these cold winter months coming. LOL > Joan > http://www.instructables.com/id/Hands-free-Camera-Mount-for-wheelchairs-bikes-wr/ > > https://shop.gopro.com/mounts-accessories > > https://www.bhphotovideo.com/c/product/1237147-REG/alzo_1145_wheelchair_camera_mount.html > > http://meru.org.uk/product/flexzi-camera-mount/ > > > > > > From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] > Sent: Thursday, September 01, 2016 2:04 PM > To: 'Lori Michaelson' > Cc: 'Quad-list Post' > Subject: RE: [QUAD-L] QUAD-L] Camera? > > I was considering getting a camera once. I had a bracket on my prior > wheelchair which was intended attach a tray. I figured I could rig up some > sort of a way to attach a camera, which I could aim by steering the > wheelchair and by leaning forward and backwards. And I found a device used > trigger the shutter remotely, and it looked like something which I could > attach to my wrist splints and bite on to take the picture. I never tried it. > But maybe that, or something similar, could work. Good luck. > > From: Lori Michaelson [mailto:lorilivin...@gmail.com] > Sent: Tuesday, August 30, 2016 9:14 PM > To: quad-list > Subject: [QUAD-L] QUAD-L] Camera? > > That is one of the things I miss the most (photography). My husband was an > avid photographer and three of the best of the best digital cameras (first a > Kodak purchased in 1998, then an Olympus... both of which were big and bulky > which were okay for him and I can't hold a camera anyway). I finally got > after him to purchase a smaller sized digital camera and he finally purchased > a Canon that he was able to keep in his T. shirt pocket. It took/takes great > videos as well. > > Anyway, my point is that I can't hold I camera at all so I always have to > have someone take photos for me which doesn't happen anymore. My life has > become one big medical problem. Further, after purchasing my first Smart > Phone when living at my sister's... that takes just as good of pictures so > family members took pictures for me using that. > > I would love to know how people with only the use of one arm and one wrist > take photos by themselves without some elaborate system. I need to be able to > drive my chair and be able to turn it (my chair and the camera) every which > way to take photos of anything when out and about by myself. > > ~Lori > > On Tue, Aug 30, 2016 at 8:59 PM, greg wrote: > I had a really nice Canon EOS SLR film camera, but it got frustrating, too > heavy, film got so costly to develop, etc. But now I thought of trying a nice > digital. Not a point and shoot. I read some can be operated by Phone App. > Anyone have a setup that a C5 could use. Any ideas? > > I like the idea of a video screen back, so I don't have to hold up to my face. > Lighter than my big Canon A2, basically worthless now. > Instead of clamping to chair making it to aim. I thought monopod ballenced on > my seat. > > Thanks, Greg > > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz
Fwd: [QUAD-L] Disease hunting
Same here, Bobbie. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bobbie Humphreys > Date: September 11, 2016 at 3:26:34 PM EDT > To: quad-list@eskimo.com > Subject: [QUAD-L] Disease hunting > > I never go for ANY kind of screenings. > No colonoscopys > No Pap smear > No mammogram > No mole check > > Anybody else opt out like me? > Bobbie > > Smile Everyday >
Fwd: [QUAD-L] V-Reality
There is a classic novel by Aldous Huxley called Brave New World that predicted this years ago. The movies were called feelies. You put your hands on the sensors and put on your Vr specks and you became the character on screen feeling and experiencing everything he did. A bit like The Matrix. Yes, the possibilities were endless! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: September 9, 2016 at 9:05:45 PM EDT > To: > Subject: [QUAD-L] V-Reality > > I tried on some VR goggles today, very cool. > Real life didn't look great, but animation was fantastic. I was on top of a > building and actually got that "Too High" feeling. A T-Rex screemed in my > face and I jerked to miss the slobber. Wait until the porn shows up > > Greg
[QUAD-L] Lori, Life, and Love
Some of the strongest people I have ever known are on this list. And LORI, you are one of them. I get a lump in my throat every time I read about your experiences. God bless you my friend. Life is so unfair it makes me want to scream. I have to tell myself there is some purpose to all of this. Maybe someday, when we meet on the other side, we can STAND UP and talk about what it all meant. Love to all my peeps, but especially you, Lori. Larry Willis Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Lori Michaelson > Date: August 5, 2016 at 5:02:14 PM EDT > To: William Lang , quad-list > Subject: Re: [QUAD-L] Wound FYI > > Hey William, > > I am sorry to hear about your ongoing problems, but this type of thing seems > to be running rampant this past year, with many of us on this list no matter > how hard we try for the breakdowns not to happen! > > I have never had a Roho cushion as I have always used a rotating air > mattress. but I posted a couple of weeks ago or a little bit longer what is > going on with me as a result of a careless nurse ruining my urethra. By > stretching it. This leads to urine draining around the catheter, which I have > never had in my life, which gives a Domino effect of skin breakdown -- most > of which was causing my old battle wounds that I had between 2009 and 2012, > whereby that very fragile skin will never get back to as strong as it was. > > To add insult to injury, and for the first time in my life a wound opened > deep in the crease of my groin and for my safety [so any wrong movement or > urinary bacteria by getting up in my chair] I have been staying in bed. It > has been a little over 3 weeks now. They are both now closed but fragile, so > I will wait a few more days to give it a chance to seal a little longer for > lack of better words. > > I DID get up on Tuesday of this week to go see my urologist about the > strategy of what to do about this urinary leaking and I was going over very > smooth roads and did not go over any extraordinary bumps or anything. And it > is only 10 minutes away. But in that time I got an abrasion over my right is > she'll tuberousity, which is caused by shearing. My Roho Cushion has served > me well for shearing and that is why I started using one beginning in > 2010/2011 timeframe. So I could get up after my old battle wounds were mostly > closed and then closed. > > What I have noticed a great correlation to happen is between all the stress I > have been through over the last six months (because of what happened to me > around February 1, of having my urethra stretched terribly, but of which I > did not report at the time, because I did not think it would hurt long-term. > And there was really no way I could "prove" that one particular nurse did it > under the circumstances). > > Being without any family is what hurts the most and none of this would have > happened had my sister and brother-in-law been able to keep me living with > them and they very well could have because they took me in for 3 1/2 years > after my husband's passing for what I thought would be much longer than that > . And they had nowhere for me to go because there was no accessible houses or > apartments in their town or around it. They did not even think twice about > the consideration of putting me in a nursing home I have always been an > active person and I was getting great care by hiring morning and evening > caregivers 7 days a week and I had a great home health agency providing me > with all nursing needs and 3 morning home health aide visits, which Medicare > Certified Home Health Agencies started to cut way back on, starting in 1999 > thanks to the Clinton administration. > > Their reasons for not being able to keep me on more selfish ones in my humble > opinion. Besides, the three or four other family members lived in the same > area and they could have kept "sharing the care" outside of my morning and > evening caregivers. For example, I can feed myself and I was eating with them > or if they went on vacation and my other sister would come down to help me > during the day and overnight if I needed anything. My sister had to take me > to doctors appointments, but they were only a few times a year. > > Everything was going great when living with my sister and brother-in-law and > having other family around, but after they were forcing me to "move on" I had > to decide what I had to do and do it quickly. Since my husband and I had been > living in Arizona for 11 years, and whereby it is 100% accessible, with great > weather I moved back to Arizona to find out that no home health agency wanted
Fwd: [QUAD-L] Chair, USB ports
I do believe I must acquire one of those! Thanks! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: August 4, 2016 at 12:27:21 PM EDT > To: > Subject: [QUAD-L] Chair, USB ports > > Cool, a USB port thatplugs into your charger port > https://www.wheelchair88.com/product/usb-power-adapter/
Fwd: [QUAD-L] everything is possible
Ismael, you make me ashamed of my puny complaining. You and Jim Lubin are two of the most remarkable men I have ever met. I wish I had half your strength and courage. You deserve a special place in heaven, my friend. God bless the both of you. Larry Willis Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Ismael Cavazos" > Date: July 31, 2016 at 2:59:36 PM EDT > To: "Blue" > Subject: [QUAD-L] everything is possible > > Hello my friends today is 15 years that I've been out of the nursing home I > don't know if you guys ever been in a nursing home but a nursing home is not > a good place for nobody most of my life I was in the nursing home I was 18 > years old when I went to a nursing home 36 years that I've been a > quadriplegic and all my life I've been legally blind it was scary when I got > out because I was in a nursing home for so many years I was scared to get out > I thought I was not going to be able to make it outside the nursing home > because I am connected to a respirator when my accident happened by Dr. only > gave me 72 hours to live that bad thing about it I'm not getting any younger > I guess everything is possible with GodHelp thank you and God bless you
Fwd: [QUAD-L] Cushion question
I know relieving all pressure is absolutely essential to healing a pressure sore. But I simply refuse to stay in bed for six months. I know it sounds awful negative, but I refuse to waste six months of life on a miserable bed stay. I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I choose to roll the dice. Whatever the outcome, I'll live with it.or die with it. Regardless, I'll face this world with my ass in the saddle. Larry Willis Larry Willis Retired and proud of it Begin forwarded message: > From: Bobbie Humphreys > Date: July 31, 2016 at 3:56:55 PM EDT > To: cviewe...@aol.com > Cc: lwillis82...@gmail.com, quad-list@eskimo.com > Subject: Re: [QUAD-L] Cushion question > > I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating > pressure mattress, the VERY best they have just this year. > I've been having sores on my butt for 25 years or more. > I've been in bed since Christmas and my wound is healed ... almost. > But, I got 2 different sores since I've been in bed turning and on the supper > duper mattress. > I'm so ready to just get up and live. But I'm talking about getting up 3 > days a week for just 7-8 hours per day. > Bobbie > > Smile Everyday > >> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote: >> >> With pressure sores...you have to keep off it. Yes, stay in bed 24/7. I >> have been there, done that. It took 6 months to clear. I use a Roho and am >> pressure sore free now. >> Have someone check your bottom often. I used to have to go to the wound >> center every week until it cleared.For 6 months the only time I was off my >> butt was the day I went to the wound center. Never want to do that again. >> Rose >> >> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, >> lwillis82...@gmail.com writes: >> I have had a pressure sore on my bottom for over ten years now. It refuses >> to heal. I got it during a hospital stay for an infection. I got a roho >> shortly thereafter. It healed other sores but not this one. I thought I >> would give this one a try. >> >> -- Forwarded message -- >> From: >> Date: Saturday, July 30, 2016 >> Subject: Re: [QUAD-L] Cushion question >> To: lwillis82...@gmail.com >> >> >> Is your current Roho not working? I have used a Roho for more than 30 years >> and would be afraid to go to something else and possibly get a pressure >> sore. Rose >> >> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, >> lwillis82...@gmail.com writes: >> Hey guys. I am trying to get a new chair and cushion. My advisor wants me to >> get a new style cushion by Ride Designs. Any of you familiar with it? Take a >> look at ridedesigns.com and tell me what you think. I value your opinion. I >> currently use a roho. Thanks, Larry WILLIS >> >> Larry Willis >> Retired and proud of it >> >> >> Begin forwarded message: >> >>> Resent-From: quad-list@eskimo.com >>> From: Bobbie Humphreys >>> Date: July 27, 2016 at 2:39:21 PM EDT >>> To: quad-list@eskimo.com >>> Subject: [QUAD-L] Pens? >>> I wanted to ask what kind of pens dose everybody use to write with? >>> I'm looking for a retractable pen that I don't need to apply much or any >>> pressure. >>> Bobbie >>> >>> Smile Everyday >> = >>
Fwd: [QUAD-L] Cushion question
I have had a pressure sore on my bottom for over ten years now. It refuses to heal. I got it during a hospital stay for an infection. I got a roho shortly thereafter. It healed other sores but not this one. I thought I would give this one a try. -- Forwarded message -- From: Date: Saturday, July 30, 2016 Subject: Re: [QUAD-L] Cushion question To: lwillis82...@gmail.com Is your current Roho not working? I have used a Roho for more than 30 years and would be afraid to go to something else and possibly get a pressure sore. Rose In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, lwillis82...@gmail.com writes: Hey guys. I am trying to get a new chair and cushion. My advisor wants me to get a new style cushion by Ride Designs. Any of you familiar with it? Take a look at ridedesigns.com and tell me what you think. I value your opinion. I currently use a roho. Thanks, Larry WILLIS Larry Willis Retired and proud of it Begin forwarded message: *Resent-From:* quad-list@eskimo.com *From:* Bobbie Humphreys > *Date:* July 27, 2016 at 2:39:21 PM EDT *To:* quad-list@eskimo.com *Subject:* *[QUAD-L] Pens?* I wanted to ask what kind of pens dose everybody use to write with? I'm looking for a retractable pen that I don't need to apply much or any pressure. Bobbie Smile Everyday =
[QUAD-L] John splint
John' that sounds like a splint I used to have. It was called a Rancho los Amigos tendonesis (sp?) splint. I'll try to send a pic. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: alcibiates2 > Date: July 28, 2016 at 4:35:04 PM EDT > To: greg , quad-list@eskimo.com > Subject: Re: [QUAD-L] Pens? > > I use a split that is hinged at the rest and Knuckles and holds my thumb in > place while my index and middle fingers are moved up and down with the motion > of my wrist. This allows me a relatively natural way to pick up and hold pans > forks spoons papers books and food. > > It comes in a kit form and a brace maker must hit it to each individual > person. The hard thing about it is finding a brace maker that will do it. Or > should I say do it right. > > I wish you the best, > > John > > > Original message > From: greg > Date: 07/28/2016 4:13 PM (GMT-05:00) > To: quad-list@eskimo.com > Subject: Re: [QUAD-L] Pens? > > I found the Wanchik Writer to be the best way to write and eat. I tape a fork > and spoon on them. I tried forever to eat using a univarcal cuff, never got > it to work well. With a little bending, it hold a fork-spoon in a real > natural position. > > https://www.ncmedical.com/item_941.html > > Greg > > > Can you use pen again? http://www.penagain.com/ > > > > > > On 7/27/2016 1:39 PM, Bobbie Humphreys wrote: > >> I wanted to ask what kind of pens dose everybody use to write > >> with? I'm looking for a retractable pen that I don't need to > >> apply much or any pressure. Bobbie > >> > >> Smile Everyday > > > > > > --- > > This email has been checked for viruses by Avast antivirus > > software. https://www.avast.com/antivirus
[QUAD-L] Cushion question
Hey guys. I am trying to get a new chair and cushion. My advisor wants me to get a new style cushion by Ride Designs. Any of you familiar with it? Take a look at ridedesigns.com and tell me what you think. I value your opinion. I currently use a roho. Thanks, Larry WILLIS Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Bobbie Humphreys > Date: July 27, 2016 at 2:39:21 PM EDT > To: quad-list@eskimo.com > Subject: [QUAD-L] Pens? > > I wanted to ask what kind of pens dose everybody use to write with? > I'm looking for a retractable pen that I don't need to apply much or any > pressure. > Bobbie > > Smile Everyday
[QUAD-L] book holder for wheelchair - Google Search
I believe this is it. https://www.google.com/search?q=book+holder+for+wheelchair&client=safari&hl=en-us&prmd=sivn&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiiobDwqPHNAhWM6yYKHX34BmMQ_AUICCgC&biw=1024&bih=671#imgrc=qP0ExlhBiz5-RM%3A Larry Willis Retired and proud of it
[QUAD-L] Koolertron Universal Aluminum Portable Laptop Adjustable Projector/Book Holder & Writing/Laptop Stand With mouse Pad Desk Bed Sofa For 10-17 inch laptop /Tablet MID Apple Ipad Moto Xoom Samsu
Greg' try this. http://www.koolertron.com/koolertron-universal-aluminum-portable-laptop-adjustable-projectorbook-holder-writinglaptop-stand-with-mouse-pad-desk-bed-sofa-for-1017-inch-laptop-tablet-mid-apple-ipad-moto-xoom-samsung-tab-p-286.html Larry Willis Retired and proud of it
Fwd: [QUAD-L] Tabet holder?
Greg, check music stands. There are hundreds of designs, and I'd bet some are adaptable to your purpose. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: July 13, 2016 at 1:41:46 PM EDT > To: > Subject: [QUAD-L] Tabet holder? > > I just got a 10in tablet, works well for a low cost brand. I'm trying to find > a bracket to hold it to my arm rest. I use one of those sticky pads to hold > the house phone, remotes, on a table so they don't slide around. That works > great, but would they hold bouncing around driving chair outside? > > I've seen great brackets, but way too much money for what it is. I'd love a > swing down out of the way kind. But just an adjustible possiton tablet holder > would be great. Attached to my armrest. > > Thanks, Greg
Fwd: [QUAD-L] My Dog is a Star Now
Now that is a beautiful dog, Greg! Easy to love! Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: greg > Date: July 1, 2016 at 7:03:14 PM EDT > To: > Subject: [QUAD-L] My Dog is a Star Now > > Dog Today Magazine did web story on my dog... So Cool > http://dogstodaymagazine.co.uk/2016/06/22/meet-roo-the-cutest-service-dog-ever/ > > Greg
Fwd: [QUAD-L] Chris Karson Passes At 46 Years.
Wow..just, wow! I am speechless. All my love, sympathy, and prayers go out to you. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Lori Michaelson > Date: June 5, 2016 at 3:07:32 PM EDT > To: "wheelch...@aol.com" , quad-list > > Subject: Re: [QUAD-L] Chris Karson Passes At 46 Years. > > Oh W ... I never expected this to land in my inbox this morning and I am so > saddened by the news that I hardly know what to say to you. Except for one > very important thing... he left a wonderful legacy! Just looking at all he > has accomplished speaks volumes in itself and by knowing that he was raised > by you... I know that he was a wonderful young man to keep going and doing > all he could when he could. > > He passed away doing something he that he had a passion for and that he loved > and that is also important. If you set up an online obituary for people to > light candles or express their feelings... please let us know about that > also. http://www.legacy.com/obituaries/local is a good one. I can only speak > for myself but you can also put up at least one picture of Chris on this > website as well as the obituary. > > Huge hugs across the miles... > ~Lori > >> On Sun, Jun 5, 2016 at 9:59 AM, nichole rohling >> wrote: >> I am so very sorry for the extreme loss you have suffered. My utmost >> sympathy to you and your family. I pray that God holds you in his embrace >> and you are given peace that surpasses all understanding. Once again I am so >> sorry for your loiss. >> >> >> >> Nicki >> >> c5/6 >> >> >> >> From: wheelch...@aol.com [mailto:wheelch...@aol.com] >> Sent: Sunday, June 05, 2016 1:04 AM >> To: quad-list@eskimo.com >> Subject: [QUAD-L] Chris Karson Passes At 46 Years. >> >> >> >> My son Chris passed today. It wasn't his fault. Injured at 19 years with a >> C4/5 SCI injury from a vehicle crash, he went on to attend at graduated Ball >> State University with a degree is Family Science and Social Service. During >> his rehab period and while attending Ball State U, he designed, supervised >> the construction of North America Fastest Drag Van (10 Seconds @ 1/4 Mile). >> His travels in racing took him all over the Midwest. During the same >> period, Chris became friends with custom vans and custom vans in North >> America. He became a Vanner and partnered with the Midwest Vans Limited and >> celebrated with them at so many "truck ins" and Nationals (Nats) Chris, >> always found time to speak at prisons, to imates and juvenile centers with >> his special messages, several times a year. He inspired thousands of people >> over the years. >> >> >> >> Today, as he was returning from a car showing, sitting in the tow van, when >> his driver was towing his trailer and drag van, along with 4 other custom >> vanners in a convoy, his van was hit head on by a mini van driving at a >> high rate of speed the wrong way. The force of the crash caused the >> mini van to catch fire and the fire spread to Chris's tow van. His driver >> was able to escape thru the broken driver's window and was pull to safety >> while his van friend's tried to open the doors of the tow van and deploy the >> gate lift. The fire was intense. The impact forced Chris and his chair up >> against the lift ramp and he had a seat belt on. His friends burnt their >> hands and arms while trying to get Chris out of the van... to no avail and >> then the fire department and rescue arrived. Chris lost his life quickly, >> per the corners conversation to me. Its late this night and I am trying to >> reflex all that has happened today as well as Chris's sudden passing. >> >> >> >> You have to see his Facebook and the comments that continue to pour in from >> around the world as the people media reacts. You can visit his website: >> www.karsonracing.com and see for yourself how he inspired others. His >> facebook: Chris Karson. >> >> >> >> As most can tell, my heart is heavy with grief and the thousand of people he >> affected. >> >> Best Wishes >> > > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz
Fwd: [QUAD-L] 27 years ago...
Jim, you are my hero. Yes, you are. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Jim Lubin > Date: May 17, 2016 at 9:33:52 PM EDT > To: quad-list@eskimo.com > Subject: [QUAD-L] 27 years ago... > > 27 years ago today I woke up with a pain in my shoulder. Less than 2 hours > later I could not stand, stopped breathing and my heart stopped. Paramedics > revived me. I woke up in a hospital unable to move, unable to speak and in so > much pain I just wanted to die. Two weeks later I was given a diagnoses of > acute transverse myelitis. Today, still paralyzed from the neck down, > dependent on a ventilator to breathe, but otherwise good health and rarely > any pain.
Fwd: [QUAD-L] Lower extremity edema in feet and ankles
I have given up on shoes. Everything, even sandals, creates a sore. Now I wear socks and foam heel protectors and that's it. My feet swell terribly, especially the left one. I refuse to worry about it anymore. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: RONALD L PRACHT > Date: April 18, 2016 at 2:33:40 AM EDT > To: Quad-list Post > Subject: Re: [QUAD-L] Lower extremity edema in feet and ankles > Reply-To: RONALD L PRACHT > > I wish I could show you the exact style to get. Mine have stretched out and > formed to my swollen feet and they are fairly easy to get on. My feet look > good at the end of the day in them, no sores or problems and I trust them. I > bought three pairs one white, yellow and red. The tongue of the shoe is > factory sewn so you down have to pull the tongue out . the ones I have even > have little pull tabs that a finger can go through to pull them on. They are > made for triathletes, so they have a lot of breathing holes, which helps. I > could send you a pic of my feet in them or send you a link to the exact style > that works the best. > > Ron > > > On Sunday, April 17, 2016 7:04 PM, Lori Michaelson > wrote: > > > Ok, I found the nike kukini's but I was wondering what your feet are like at > the end of the day after being in them all day? > > ~Lori > > On Sun, Apr 17, 2016 at 5:33 PM, RONALD L PRACHT > wrote: > Well Lori, the reason is lack of movement. When I swam just twice a week my > feet were in decent shape. Four years later and Im barely able to cram a shoe > on. Im told the only way to fight it is with passive movement, like in some > sort of lower exercise for like 20 mins at a time. I found a stretchable shoe > called nike kukini that's very forgiving. Its upsetting to see yourself swell > . > > Ron > > > On Sunday, April 17, 2016 4:23 PM, Lori Michaelson > wrote: > > > Yes Dianna, > > I know exactly what you are talking about. Many people who are in the > hospital for a longer period of time often wear them. Just one more hassle > for me and then when I get up in my chair, because of gravity, it all starts > over again. I would not want to wear them while in my chair since they need > to be plugged in [if I remember right]. So why they are doing this [or have > been doing this for such a long long long time] I have no idea. > > Thank you anyway! > ~Lori > > On Sun, Apr 17, 2016 at 1:53 PM, wrote: > always, more so in the summer. I found some foot jewelry online that gives > the appearance of sandalsbetter than bare feet. now for the medical > advice. my wound doctor had me approved for special compression pumps. I will > have to research the name of these but an hour in the morning and night you > zip them on your legs. from ankle to above the knee. it reduces by pumping > air in and out. i'll get back with you. > dianna > > > -Original Message- > From: Lori Michaelson > To: quad-list > Sent: Sun, Apr 17, 2016 2:08 pm > Subject: [QUAD-L] Lower extremity edema in feet and ankles > > I was wondering if any of you have had to deal with lower extremity edema > whereby you can't even wear tennis shoes/sneakers or anything but sandals > that stay open and there is only a Velcro strap that allows the top of the > sandals to close or buckled straps to allow for the stretching/lower > extremity edema in my feet? > > This began with me probably 3-4 years after I began to work and was in the > chair by 8 AM and did not lay down until 8 PM or 9 PM on weekdays. > > But it has gotten much worse since then and then in 1998 I had to stop > wearing shoes or tennis shoes/sneakers and resort to what I spoke about above. > > The only thing that helps it is me laying flat with my feet straight up and > down against a pillow whereby my lower extremities are equal to my heart. In > other words, they go down overnight but not always. > > Yes, I will wear compression stockings and did so before moving to Arizona in > the summer of 2001. I wore Jobst stockings for the first couple of years > after moving away from the humidity of the Northeast but I eventually did not > need them. When I moved back to the Northeast to be with family after losing > my husband my lower extremities became worse so I thought when I moved back > here they would get better but nope! > > Yes, I tilt back my chair several times a day because that is all I have time > for and I am not up in my chair all that long anyway. > > Now, I do not have any heart problems or anything. It is all because of > gravity. > > I very much wish I could go back to wearing sneakers but even with my > compression stockings... my feet and ankles swell and I can't risk any skin > breakdown. > > Best, > > ~Lori > C4/5 complete quad, 36 1/2 years post > Tucson Arizona > > > -- > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the
Fwd: [QUAD-L] 43 years today
Congrats, Bobbie. Keep on keepin on! God bless. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Johnny Cammon > Date: April 17, 2016 at 3:21:29 PM EDT > To: Gmail , quad-list@eskimo.com > Subject: Re: [QUAD-L] 43 years today > > congratulations Bobby on your anniversary. Time does fly, doesn't it thank > God for family and friends, because in our situation or any situation that's > what count. God bless and may you have many more. > >> On Sun, Apr 17, 2016 at 2:09 PM, Gmail wrote: >> >> Today marks 43 years since I had my accident. >> Wow, dose time fly. >> I've been so lucky for family and friends support and am greatfull for the >> opportunity to experience the many events in the past 43 years that I almost >> didn't survive to experience. >> I forgive the person who helped me to learn how to ride the motorcycle and >> I'll never forget the friends that stood by my side through out the years. >> Bobbie >> Smile Everyday >
Fwd: [QUAD-L] Just a question and a statement
Lori, your post just leaves me speechless. My heart goes out to you. Sometimes life, especially quad life, seems more than the human spirit can handle. It may sound trite, but turn your heart toward God and hold fast to His promise. Above all, don't despair. Please don't dwell on all the negatives in your life. It will bring you down like a rock. Try to stay positive. You are in my thoughts and prayers. God bless. -- Forwarded message -- From: *Lori Michaelson* Date: Sunday, April 10, 2016 Subject: [QUAD-L] Just a question and a statement To: quad-list I have been lost without my beloved husband who was absolutely everything for me. My primary caregiver [while hiring morning caregivers and teenagers to clean for us], a computer software/hardware engineer who used to work for NASA, a photographer, a genealogist, a mathematician and statistician, pretty much my doctor without being able to write prescriptions for me because he went to medical school and worked in the medical field for several years before getting his degree in mathematics because of the time he was going to medical school there was reversed discrimination going at the time - colleges taking "persons of color" to meet their quota over white/Caucasian Americans. I had everything on June 10, 2012 and the next day, after a cardiac arrest and unable to revive, I lost all of that and more. We shared our love for Golden retrievers and we used to love to do things together both indoors and out. I was doing better when I was able to live with family until they wanted me to "move on" and I have fallen apart since. After moving back here is unaware my husband and I lived for 11 years and whereby the weather and the accessibility is awesome but I had no idea that, over the last couple years, primary care physicians are not taking patients who are on pain medications and Medicare certified home health agencies are being discriminatory when it comes to a quadriplegic if they're only insurance is Medicare. I began to have my symptoms of a UTI last Thursday and need to get a urine specimen to be set out for culture and sensitivity. My husband used to purchase the urinary test strips to, every once in a while, and just for the hell of it and for curiosity get the results for my urobilinogen, glucose, ketones, bilirubin, protein, nitrate, pH level, blood, specific gravity and leukocytes. He could read those test strips because he used to be a cheap slap technician and did not for a living so I knew how long to wait for each and every result for each of those things (less than 30 seconds however). He could not do a culture and sensitivity because, obviously, we did not have the laboratory with laboratory, the slides, the petri dishes and everything else required. After his passing, I began to have more non-systemic UTIs. This is probably because different people begin to do my bowel regimen and even though they were as clean as possible... I knew my husband would do a better job and making sure I was clean down there. That was clear since I did not have any non-systemic UTIs prior to his passing. I now feel so alone whereby I feel that my family could have "shared the care" but they wouldn't and I have so very little family left (2 much older sisters and 2 nieces). After moving to Arizona the first nurse who changed my catheter insulated the balloon inside my urethra and I discovered this after she left and it was left in my urethra for a good 45 minutes before she could get back and I am suffering from the consequences of that even now. I have had spontaneously urinary leaking around the catheter. My urologist (who is familiar with there are neurogenic bladders) is at a loss as to what to do except for to increase my oxybutynin (which she did do the maximum dose) but it has not solved the problem completely. She offered to increase the size of my catheter but there are pros and cons to that. A bigger size Foley catheter will stretch my urethra even further. Yeah, I know, I could go with a suprapubic catheter but I have never had any problems before that nurse did that to me and since my urologist has been in my bladder twice to remove stones (the last one was in late 2012) she says my bladder looks like a bladder that has never had a catheter in it - it looks like the bladder of an able-bodied person who has never had a catheter so why her fix what is broken. I will get rid of this nonsystemic UTI with whatever antibiotic she gives me after the results and go from there because things were getting better until my pain began. This is the second nonsystemic UTI have had since moving here in the middle of January. My nurse was scheduled this Tuesday for my catheter change and I had my urologist order taking a urine specimen for culture and sensitivity to treat whatever is causing me pain but now she wants to change that to Thursday because of a mandatory agency meeting and I was okay at the time she told me that on Friday but tha
Fwd: [QUAD-L] A free van
I had a second van for many years. It came in handy many times when I had a job and the main van broke down. I finally gave it away last year. You might say we both retired. It was a 1979 e150 that I bought new in 79. I had it completely restored in the 90's. It still ran smooth as a sewing machine. -- Forwarded message -- From: *RONALD L PRACHT* Date: Thursday, April 7, 2016 Subject: [QUAD-L] A free van To: Quad-list Post Simple. Either keep it, which is probally far fetched to keep 2 mobility vans going and parked or sell it to a person who needs it. I sold one on ebay and got good money or you can try your hand at craigslist, but without a title its not much good..you need that. Ron On Thursday, April 7, 2016 2:46 PM, Gmail > wrote: A man who lived in my apartment building passed away 4/1 Ken had MD he was 52 His family knew we were close and Pete helped him a lot. Today they offered to give his van to me for free! It's a full size 1999 Ford E 150 with very low mileage because he couldn't drive, only his AIDS or family drove his van. My question is what should and shouldn't I do in this situation? I do want to look into donating the van. The family can't find the title so their going to DMV to get the paper work. Right now my van is in the shop till mid May until a new custom gas tank is built in CA Bobbie Smile Everyday
Fwd: [QUAD-L] a question
Good question, Danny. Quad devotee? We are not talking fetish here, are we? Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Danny Espinoza" > Date: April 6, 2016 at 9:43:35 AM EDT > To: "'john owens'" , "'Quad-list Post'" > > Subject: RE: [QUAD-L] a question > Reply-To: > > Quadriplegic devotee? What’s that? > -Danny > > From: john owens [mailto:jrowen...@yahoo.com] > Sent: Wednesday, April 6, 2016 5:52 AM > To: Quad-list Post > Subject: [QUAD-L] a question > > > Are there any quadriplegic devotees on here?
Fwd: [QUAD-L] Squish
Remember the country song, Sometimes you're the windshield, sometimes you're the bug..... Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: wheelch...@aol.com > Date: April 5, 2016 at 11:03:39 PM EDT > To: g...@eskimo.com, quad-list@eskimo.com > Subject: Re: [QUAD-L] Squish > > Remember, in life, sometimes you are the early Robin and other times a late > worm Enjoy your position. > Best Wishes > > In a message dated 4/5/2016 11:52:51 A.M. Central Daylight Time, > g...@eskimo.com writes: > I just committed Reptile-icide… I went outside over a rug in front of the > door and squish. A lizard was under the rug. They are very common, everywhere > round here. But I still feel kind of bad. I like them. I run over scorpions > often on purpose when I see them inside the house, but they can hurt the pets. > > Greg
Fwd: [QUAD-L] Squish
I have a blue tail lizard that has lived on my front porch for two years. I worry about the little fellow. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "Joan Anglin" > Date: April 5, 2016 at 9:12:38 PM EDT > To: "'greg'" , > Subject: RE: [QUAD-L] Squish > > I have the same problem with frogs in my green house! I don’t want to squish > them, they eat insects so I sometimes sit very quietly while hoping they > move! Joan > > From: greg [mailto:g...@eskimo.com] > Sent: Tuesday, April 05, 2016 9:53 AM > To: quad-list@eskimo.com > Subject: [QUAD-L] Squish > > I just committed Reptile-icide… I went outside over a rug in front of the > door and squish. A lizard was under the rug. They are very common, everywhere > round here. But I still feel kind of bad. I like them. I run over scorpions > often on purpose when I see them inside the house, but they can hurt the pets. > > Greg
Fwd: [QUAD-L] One More ?
I usually charge when the meter is one-half or lower. Or when I have something planned for the next day. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "nichole rohling" > Date: March 24, 2016 at 4:49:55 PM EDT > To: > Subject: [QUAD-L] One More ? > > If you have Group 24 Gel Cell batteries do you charge your chair every night > even if you barely use it or charge it once it gets low? > I’ve been told both ways so I’m asking the experts J > > Thank you > Nicki
