Fwd: [QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time

[Jim Lubin]

-- Forwarded message -
From: Jim Lubin 
Date: Mon, Feb 14, 2022 at 4:38 PM
Subject: Re: [QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time
To: Edward Tessier 
Cc: Don Price , Quad-list Post 


I was just checking the time.
Is 3 pm AZ Time = 2 pm Pacific Time = 5 pm Eastern Time?


On Tue, Feb 8, 2022 at 6:16 PM Edward Tessier  wrote:

> Thanks Don!
>
>  Can't wait to finally see everybody
>
>  Ed Tessier
> --
> *From:* Don Price 
> *Sent:* Tuesday, February 8, 2022 1:29 PM
> *To:* Quad-list Post ; Edward Tessier <
> e...@artecopartners.com>
> *Subject:* Quadlist Zoom Meetup, 2/15, 3pm AZ Time
>
> I've set up this Zoom meeting. Join if you can. It would be fun to connect
> faces with names!
>
> Don Price is inviting you to a scheduled Zoom meeting.
>
> Topic: Quadlist Meetup Zoom
> Time: Feb 15, 2022 03:00 PM Arizona
>
> Join Zoom Meeting
> https://us02web.zoom.us/j/81350063298
>
> Meeting ID: 813 5006 3298
> One tap mobile
> +12532158782, ,81350063298#
> US (Tacoma)
> +13462487799, ,81350063298#
> US (Houston)
>
> Dial by your location
> +1 253 215 8782
> US (Tacoma)
> +1 346 248 7799
> US (Houston)
> +1 669 900 6833
> US (San Jose)
> +1 301 715 8592
> US (Washington DC)
> +1 312 626 6799
> US (Chicago)
> +1 929 205 6099
> US (New York)
> Meeting ID: 813 5006 3298
> Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma
>
>
>

Fwd: [QUAD-L] cell phone holder

[Dana Wray]

I need something with A long Gooseneck I can reach with my stylus.I don’t
have a lot of dexterity to reach the one you were talking about. I asked
the dealer about it already. We all have such different levels.C4-5. Has
anyone ever used the program Dragon anywhere they have a monthly charge.
Thank you
Dana

I enjoyed the article that  Ishmael shared.
Has anyone heard of the oracle by Jonathan Cahn. It is a fascinating book.
My caregiver ordered through Sid Roth.com
It was $49 and included six CDs. Information that were not fit in the book.
You can listen to a lot of YouTube Videos that Jonathan Cahn is in.  It’s
hard for me to read a book so I enjoy the CDs and YouTube videos.
Thank you
-- Forwarded message -
From: Noel 
Date: Fri, Nov 29, 2019 at 8:28 AM
Subject: Re: [QUAD-L] cell phone holder
To: Dana Wray 


Dana, this may be the one you have tried already, but I got an adapter
from Permobil that works with Ram X-grip. I can use it for a cell
phone, as well as a tablet. You can get the X-grip in several places,
but I believe the part that mounts to the wheelchair is only available
from Permobil.
http://permobilus.com/product/ram-x-gripphone-holder/

On Fri, Nov 29, 2019 at 3:36 AM Dana Wray  wrote:
>
> I keep looking for one I can fit on my permobil, That I can reach there
used to be a company that made devices, but I don’t remember the name. I
think the owner was a quadriplegic. Does anyone remember the name? I have
searched on Google and Amazon.? Thank you so much.The one I am using clamps
to my side pad I would appreciate any suggestions. by one side of it just
broke.  The one I am using clamps to the side pad by one side of it just
broke. I ordered the One that I thought what work with my iPhone, But it’s
not sturdy I would appreciate any suggestions. Please forgive my errors
it’s hard to correct my iPad.
> Dana C4-five Quadriplegic, 45 years
>
> On Wed, Nov 20, 2019 at 9:26 PM Lori Michaelson 
wrote:
>>
>> That one is very similar to mine but I only used my cell phone in that
manner to watch a movie or a TV series on my bowel regimen nights. I don't
watch TV so I keep my cell phone in a little pouch on my chair and operated
through a Bluetooth to make phone calls. I use my Desktop PC for everything
else.
>>
>> On Wed, Nov 20, 2019 at 7:18 PM Jim Lubin  wrote:
>>>
>>> I got a new cell phone holder that claps to my over-the-bed table. This
one is for phones 4in to 6.3in.
>>> https://smile.amazon.com/dp/B07P2VK93P/
>>>
>>> The old holder turned out was too tight a grip on my phone that it
actually split the back right off my phone!
>>
>>
>>
>> --
>> “Petting, scratching, and cuddling a dog could be as soothing to the
mind and heart as deep meditation and almost as good for the soul as
prayer.” ― Dean Koontz

Fwd: [QUAD-L] DNR. DNI

[Dana Wray]

-- Forwarded message -
From: Dana Wray 
Date: Thu, Feb 7, 2019 at 3:27 AM
Subject: Re: [QUAD-L] DNR. DNI
To: Bobbie Humphreys 


I have in the past but I don't know what they get updated. I need to see if
it is in my medical partners. Thanks for talking about that so I can work
on trying to get mine done. That's always the first question they ask you
when you going to the hospital. They have asked me to do the shock several
times and I always said no. I don't think there is a guarantee that you
would come back the same. What is your opinion. I think I forgot to put
reply all. Would you forward for me if I did not. We never know when were
going to be septic. I've had that happen quite a number of times and been
delirious. I wasn't, twice during the same hospitalization. Dana thank you
Bobbie

On Mon, Feb 4, 2019 at 7:01 PM Bobbie Humphreys 
wrote:

> I'm having a will, advanced directive and DNR/DNI written up by my
> attorney. He said a DNR/DNI needs to be signed off by my GP But my GP said
> he does not need to be signed off by him to be legal in .New Jersey.
>
> Has anybody had the above done?
> Am I missing anything?
> Bobbie
>

Fwd: [QUAD-L] Illness

[Larry Willis]

I can’t breathe when I lie down.

Sent from my iPad

Begin forwarded message:

> From: "Nichole Rohling" 
> Date: February 7, 2018 at 2:47:37 PM EST
> To: "'Larry Willis'" , 
> Subject: RE: [QUAD-L] Illness
> 
> I am in Oklahoma and it is terrible here! I have only left my house 4 times
> since Dec 23 and 2 of those times I didn't get out of my vehicle.
> Not worth the risk!
> Why are you sleeping in your chair?
> 
> Nicki
> 
> -Original Message-
> From: Larry Willis [mailto:lwillis82...@gmail.com] 
> Sent: Wednesday, February 7, 2018 1:35 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Illness
> 
> Guys, how is the sickness in your neighborhood? It is simply awful here. I
> think everyone I know is or has been sick. I have slept in my chair since
> Christmas. It is like a plague.
> 
> Sent from my iPad
> 
> 

Re: Fwd: [QUAD-L] Rested

[Jeffrey Gaede]

Autonomic-dysreflexia? Something else?

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Saturday, February 3, 2018 6:00 PM
 Subject: Fwd: [QUAD-L] Rested
   
 The very worst part of my day is waking up in the morning. I’m always soaked 
in cold sweat and hurt all over.I dread going to bed just thinking about waking 
up in the morning. Quad life is such a joy...not.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Jeffrey Gaede 
Date: February 3, 2018 at 8:15:50 PM EST
To: Quad-list Post 
Subject: [QUAD-L] Rested
Reply-To: Jeffrey Gaede 



Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff



   

Re: Fwd: [QUAD-L] Rested

[Greg]

I hate the act of getting up, I get so cold. I shake for about 30 
minutes after.
But if you are that sweaty, somethings got to be causing it. I assume 
you tried different positions.

When I start sweating, I have to call my helper to move my legs around.
I sleep with either a hat, earmuffs, headband, etc. Something over my 
ears, and the blankets over my face. If I start sweating it gets way too 
uncomfortable.


Greg

On 2/3/2018 7:00 PM, Bryce Willis wrote:
The very worst part of my day is waking up in the morning. I’m always 
soaked in cold sweat and hurt all over.I dread going to bed just 
thinking about waking up in the morning. Quad life is such a joy...not.

Fwd: [QUAD-L] Rested

[Larry Willis]

Sent from my iPad

Begin forwarded message:

> Resent-From: 
> From: Bryce Willis 
> Date: February 3, 2018 at 9:00:09 PM EST
> To: "quad-list@eskimo.com" 
> Subject: Fwd: [QUAD-L] Rested
> 
> The very worst part of my day is waking up in the morning. I’m always soaked 
> in cold sweat and hurt all over.I dread going to bed just thinking about 
> waking up in the morning. Quad life is such a joy...not.
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
>> Resent-From: 
>> From: Jeffrey Gaede 
>> Date: February 3, 2018 at 8:15:50 PM EST
>> To: Quad-list Post 
>> Subject: [QUAD-L] Rested
>> Reply-To: Jeffrey Gaede 
>> 
>> Anybody have answers to trouble sleeping or at least feeling rested when 
>> first awake, besides medication of any kind? Jeff

Fwd: [QUAD-L] Rested

[Bryce Willis]

The very worst part of my day is waking up in the morning. I’m always soaked in 
cold sweat and hurt all over.I dread going to bed just thinking about waking up 
in the morning. Quad life is such a joy...not.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Date: February 3, 2018 at 8:15:50 PM EST
To: Quad-list Post mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Rested
Reply-To: Jeffrey Gaede mailto:jsga...@yahoo.com>>

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

Fwd: [QUAD-L] Rested

[Bryce Willis]

The very worst part of my day is waking up in the morning. I’m always soaked in 
cold sweat and hurt all over.I dread going to bed just thinking about waking up 
in the morning. Quad life is such a joy...not.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Date: February 3, 2018 at 8:15:50 PM EST
To: Quad-list Post mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Rested
Reply-To: Jeffrey Gaede mailto:jsga...@yahoo.com>>

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

Fwd: [QUAD-L] So Cold

[Larry Willis]

I understand. It is supposed to be in the mid-thirties for highs the next two 
weeks here in old Kaintuck. I hug a heater all day. Yep, the sun shines bright 
— somewhere!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Lissette Whitehead 
> Date: December 6, 2017 at 8:48:41 PM EST
> To: Greg , "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] So Cold
> 
> Tell me about it! I live in Rosarito Beach, Mexico, I went out today for a 
> little while and I could barely handle it, I was having trouble driving my 
> power chair cause I was shaking so bad, my boyfriend had to drive me. My neck 
> and shoulders are so sore, I have trouble falling asleep at night. Wine is 
> the only thing that helps but I can't be drinking wine every day. Ginger with 
> cinnamon tea helps a bit too. Seriously, I feel for those living in colder 
> regions.
> 
> Stay warm guys!
> 
> 
> Lissette Whitehead
> 
> 416 W. San Ysidro Blvd.
> 
> San Ysidro, CA 92173
> 
> www.lwgripgloves.com
> 
>
> 
> 
> 
> From: Greg 
> Sent: Wednesday, December 6, 2017 5:37 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] So Cold
>  
> We finely started getting some cooler weather. I’m miserable. Just shaking 
> cold. Hats, hoodie, blanket, coffee, etc. I’m shaking so bad I can hardly 
> type. I don’t know how you guys can take it in colder areas.
> 
> 
> Greg

Fwd: [QUAD-L] I hate this most about being a quad

[Larry Willis]

I think we all have a fear of the future. Our lives are so uncertain, having to 
depend on others for every little thing. Sometimes I think it would be so much 
easier just to end it. At age 65 and 46 years post I keep thinking I can’t last 
much longer. But I keep on going. It gets harder everyday though, 
pain,weakness, depression, loss of purpose. Add to that arthritis, mouth and 
teeth problems, and stomach and bowel problems. The ones that have ripped me in 
the last few years though — wife has developed heart failure, had to quit work. 
This put our income in the poverty level just as medical bills have 
skyrocketed. Most difficult to face — watching so many family and friends pass 
away. At my age those people who have been my rock through the years are 
passing away. Dad is gone and mom is 84. Countless others are gone as well. 
I’ll stop here and wipe the tears. God bless you, my quad peeps.
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: October 23, 2017 at 10:27:32 AM EDT
> To: 
> Subject: Re: [QUAD-L] I hate this most about being a quad
> 
> This is a big one for me.
> Bowel stuff use to be, it ran my life. I finely got a colostomy. My only 
> complaint is I didn't do it sooner. Such a stress release. Gone from hours to 
> a minute. I recommend any quad to talk to your doc about it.
> Greg
>  
> > 6)Afraid of the future and how Im going to survive.
>  

Fwd: [QUAD-L] I hate this most about being a quad

[Larry Willis]

Mine are about the same as Ron’s with one of Greg’s included: to know how to do 
something but can’t. That makes me want to scream! The biggest is having to 
depend on someone for every little thing, even ass wiping!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Jeffrey Gaede 
> Date: October 22, 2017 at 3:24:52 PM EDT
> To: Ron M Pracht , Quad-list Post 
> Subject: Re: [QUAD-L] I hate this most about being a quad
> Reply-To: Jeffrey Gaede 
> 
> You are ALIVE!  As it's been said, it's a luxury not afforded everyone…
> 
> 
> From: Ron M Pracht 
> To: Quad-list Post  
> Sent: Sunday, October 22, 2017 11:49 AM
> Subject: Re: [QUAD-L] I hate this most about being a quad
> 
> I hate..
> 
> 1)Sitting on a bowell chair for 2 hours thirsty unable to get up.
> 2)Peeing on myself and trying to get a cathe tube in for 30 minutes.
> 3)Being on pain pills and dealing with side affects while family says "just 
> quit you can feel your body anyway"
> 4)Wearing clothes that just slip on instead of blue jeans or boots.
> 5)Tired of getting judged by people b4they know anything about me.
> 6)Afraid of the future and how Im going to survive.
> 
> Ron c7 Wheelchairs nemesis
> 
> 
> On Sunday, October 22, 2017 10:22 AM, greg  wrote:
> 
> 
> I have about 10 things in my Top 3 depending on the day. Pain, Cold, 
> Dependent on others, Cold, Pain, Knowing I could fix something but cant, 
> Dependent on a chair, Pain, Cold, etc.
>  
> Greg
> 
> 
> 
> 

Fwd: [QUAD-L] Sleep During Day

[Bryce Willis]

I take three oxy 40s per day6am, 2pm, 11pm. I do have days that I cannot 
stay awake...like the last three days. I also take Paxil and ditropan. I assume 
these meds are the cause of my drowsiness but I don’t really know.
Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Bobbie Humphreys 
mailto:bobbiehumphre...@gmail.com>>
Date: October 12, 2017 at 8:55:44 PM EDT
To: greg mailto:g...@eskimo.com>>
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sleep During Day

I take 10mgs of morphine per day but am prescribed to take as much as 30mgs per 
day

I don't OD, but would like to, but sleep a lot!

I find it difficult to concentrate or have energy

I talked to my pain guy about getting off the morphine but he said "You didn't 
want to do that, believe me."

Bobbie

"Be the change you want to see in the world". Gandhi

On Oct 12, 2017, at 7:22 PM, greg mailto:g...@eskimo.com>> 
wrote:

I think its been a couple years now when I O.D. I was taking my pain meds and 
then started Baclofen. After a few days and the Baclofen built up in my system, 
no one could wake me up. I finely wake-up and the Fire Department and Aide Guys 
are there. Gave me Narcan. It basically is a narcotic antidote. That's how they 
know it's the meds.

Anyway, about 4 days a week, about 1 pm, I can not stay awake. At least people 
can wake me up. But I try and stay awake but I feel like I'm doped up. After an 
hour, I'm fine again. I would think its my pain meds, but I take then in the 
morning then at 2. So they are just about warn off by then.

I've stayed up all night, been super tired, but it still just seems different 
than normal tired. I don't think its meds. I would think it would be closer to 
when you took them.

Anyone else have this issue?

Greg

Fwd: [QUAD-L] Pillow talk

[Larry Willis]

Absolutely. I also hate listening to my heartbeat against the pillow.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Bobbie Humphreys 
> Date: October 6, 2017 at 3:50:01 PM EDT
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Pillow talk
> 
> When laying on your side, dose it bother anybody else to talk when one ear is 
> resting on a pillow?
> It drives me nuts 🥜 to hear my voice "echoed" back at me.
> Bobbie 
> 
> "Be the change you want to see in the world". Gandhi

Fwd: [QUAD-L] What do you wear in rainy weather?

[Larry Willis]

I throw a towel over my head to protect my luscious gray hair and my desk/table 
protects my lap. Then I go like hell for the porch.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Jeffrey Gaede 
> Date: October 2, 2017 at 5:12:58 PM EDT
> To: Bobbie Humphreys , Dave Krehbiel 
> 
> Cc: "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] What do you wear in rainy weather?
> Reply-To: Jeffrey Gaede 
> 
> I just get wet
> 
> 
> From: Bobbie Humphreys 
> To: Dave Krehbiel  
> Cc: quad-list@eskimo.com
> Sent: Monday, October 2, 2017 2:06 PM
> Subject: Re: [QUAD-L] What do you wear in rainy weather?
> 
> I've always used a poncho with a hood and I also carry a small towel in my 
> van so if it's raining ☔️ hard, I'll just lay the towel on my feet.
> I find an umbrella 🌂 to be difficult to open, hold and close.
> Stay dry, Bobbie 
> 
> "Be the change you want to see in the world". Gandhi
> 
>> On Oct 2, 2017, at 4:32 PM, Dave Krehbiel  wrote:
>> 
> 
> On a couple of occasions, I've needed to go out in a bit of rain or drizzle. 
> I'm thinking about buying some rubber boots, and maybe a poncho or a number 
> of disposable ponchos. Made in the lecture piece of plastic or something to 
> cover my legs and keep them dry.
>  
> How do you guys stay warm and dry?
>  
> Thanks, and take care,
>  
> Dave Krehbiel
> Olney, MD
> 
>   Virus-free. www.avast.com
> 
> 

Fwd: [QUAD-L] Broken leg..

[Larry Willis]

Whew! These are some sad-ass stories. I'm just glad I am not a quad! I don't 
know how you guys do it! Oh...wait

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Nichole Rohling" 
> Date: September 22, 2017 at 5:01:50 PM EDT
> To: "'BeeJ'" , 
> Subject: RE: [QUAD-L] Broken leg..
> 
> More than once. We used a boot and even then had to be sure and check for 
> pressure sores. My dr absolutely would not do a hard cast.
>  
> Nicki
>  
> From: BeeJ [mailto:mrbeej...@gmail.com] 
> Sent: Thursday, September 21, 2017 7:04 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Broken leg..
>  
> So I broke my leg Last Friday Night turning around in the dark with my power 
> chair. The toe of my boot caught on my bed and I twisted it and heard a pop. 
> So now I have a cast up to my knee that I can't feel. Anyone on here have any 
> experience dealing with a broken bone below your level of injury? I'm a 
> little worried about what's going on inside that cast.
>  
> -Bj

Fwd: [QUAD-L] Broken leg..

[Bryce Willis]

Well BJ, back in 93 I drove headlong into a tree in my van and shattered both 
legs. Both had to be in casts for several months. My knees were shattered all 
to pieces. A very ugly situation. I developed pressure sores everywhere the 
cast touched me. Heels, ankles, sides of knees. It took many months to 
recuperate. Make sure you cut a hole in the cast wherever it touches you.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: BeeJ mailto:mrbeej...@gmail.com>>
Date: September 21, 2017 at 8:03:47 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Broken leg..

So I broke my leg Last Friday Night turning around in the dark with my power 
chair. The toe of my boot caught on my bed and I twisted it and heard a pop. So 
now I have a cast up to my knee that I can't feel. Anyone on here have any 
experience dealing with a broken bone below your level of injury? I'm a little 
worried about what's going on inside that cast.

-Bj

Re: Fwd: [QUAD-L] Hello my friends I have a question

[Jeffrey Gaede]

I can understand being uncomfortable with the headphones on your head, but has 
he tried laying the headphones beside him, beside his years, to see if that 
works.

  From: Larry Willis 
 To: quad-list@eskimo.com 
 Sent: Sunday, September 3, 2017 4:48 PM
 Subject: Fwd: [QUAD-L] Hello my friends I have a question
   
Sounds like he just needs a remote speaker to put beside him. Anyone tech savvy 
could do it, I think.

Sent from my iPad
Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: "Ismael Cavazos" 
Date: September 3, 2017 at 12:34:42 PM EDT
To: "Blue" 
Subject: [QUAD-L] Hello my friends I have a question




#yiv6763471739 #yiv6763471739 -- _filtered #yiv6763471739 
{font-family:Calibri;panose-1:2 15 5 2 2 2 4 3 2 4;}#yiv6763471739 
#yiv6763471739 p.yiv6763471739MsoNormal, #yiv6763471739 
li.yiv6763471739MsoNormal, #yiv6763471739 div.yiv6763471739MsoNormal 
{margin:0in;margin-bottom:.0001pt;font-size:11.0pt;}#yiv6763471739 a:link, 
#yiv6763471739 span.yiv6763471739MsoHyperlink 
{color:blue;text-decoration:underline;}#yiv6763471739 a:visited, #yiv6763471739 
span.yiv6763471739MsoHyperlinkFollowed 
{color:purple;text-decoration:underline;}#yiv6763471739 
span.yiv6763471739EmailStyle17 {color:windowtext;}#yiv6763471739 
.yiv6763471739MsoChpDefault {} _filtered #yiv6763471739 {margin:1.0in 1.0in 
1.0in 1.0in;}#yiv6763471739 div.yiv6763471739WordSection1 {}#yiv6763471739 
Hello guys I have a friend of my that he is a quadriplegic he doesn't have any 
movement of his arms since he is accident happened is not able to hear Barry 
well I am trying to help him not able to hear the television barrel well I know 
they are special devices they put on their years but he doesn't like to wear 
them when he is at home he have to put the television buried out so he could 
hear it they were another idea I told him about headphones but he doesn't feel 
comfortable with their on but when he is in the hospital I don't know what you 
call that device but anyway he able to hear the television very well bed side 
call light when they put it on his side of his bed he's able to hear the 
television very well I ask different questions to a different hospital quarried 
to them they told be that device comes with the hospital bed where you could 
hear the television on the side of the band I went to Google to look for it I 
was not successful any ideas will be appreciated thank you and God bless you 
have a nice day  

   

Fwd: [QUAD-L] Hello my friends I have a question

[Larry Willis]

Sounds like he just needs a remote speaker to put beside him. Anyone tech savvy 
could do it, I think.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Ismael Cavazos" 
> Date: September 3, 2017 at 12:34:42 PM EDT
> To: "Blue" 
> Subject: [QUAD-L] Hello my friends I have a question
> 
> Hello guys I have a friend of my that he is a quadriplegic he doesn't have 
> any movement of his arms since he is accident happened is not able to hear 
> Barry well I am trying to help him not able to hear the television barrel 
> well I know they are special devices they put on their years but he doesn't 
> like to wear them when he is at home he have to put the television buried out 
> so he could hear it they were another idea I told him about headphones but he 
> doesn't feel comfortable with their on but when he is in the hospital I don't 
> know what you call that device but anyway he able to hear the television very 
> well bed side call light when they put it on his side of his bed he's able to 
> hear the television very well I ask different questions to a different 
> hospital quarried to them they told be that device comes with the hospital 
> bed where you could hear the television on the side of the band I went to 
> Google to look for it I was not successful any ideas will be appreciated 
> thank you and God bless you have a nice day
>  

Re: Fwd: [QUAD-L] Myrbetriq for bladder spasms

[greg]

i tried Ditropan for bladder spasms. It caused very strange panic dreams.
I would wake-up startled
Greg
> I have always used ditropan, but the side effects are awful. I also
> use Azo sometimes.

Fwd: [QUAD-L] Myrbetriq for bladder spasms

[Bryce Willis]

I have always used ditropan, but the side effects are awful. I also use Azo 
sometimes.


Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: mailto:bmatt...@earthlink.net>>
Date: August 31, 2017 at 6:48:15 PM EDT
To: 'Paul Jacobson' mailto:pjacob...@san.rr.com>>, 
'quad-list' mailto:quad-list@eskimo.com>>
Subject: RE: [QUAD-L] Myrbetriq for bladder spasms

I use it and like it.  I think it can raise blood pressure, though.

From: Paul Jacobson [mailto:pjacob...@san.rr.com]
Sent: Thursday, August 31, 2017 3:36 PM
To: quad-list mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Myrbetriq for bladder spasms

Has anyone ever used this for bladder spasms?  If so, thoughts?

  Myrbetriq is a once daily pill that mellows bladder spasms but 
doesn’t
  affect acetylcholine; instead it quiets the bladder by 
stimulating Beta 3
  receptors in the bladders muscle cells and doesn’t cause 
cognitive or
  other severe side effects that often accompany anticholinergics. 
It
  received approval by the FDA for treating overactive bladder.

Thanks!
Paul

Fwd: [QUAD-L] Food

[Larry Willis]

My wife Mellissa has gall bladder surgery on Wed or Thur. She has mapping done 
tomorrow to mark where her defibrillator wires are.She has been suffering 
unbelievably. She will have a cardiac team on standby. Wish us luck peeps.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Danny Hearn 
> Date: August 28, 2017 at 9:23:27 PM EDT
> To: Bryce Willis , "quad-list@eskimo.com" 
> 
> Subject: Re: [QUAD-L] Food
> Reply-To: Danny Hearn 
> 
> When I'm eating that seems to happen to me at times, then I take a few big 
> gulps of water or something and it gets better. Same here with the quad 
> problems , seems there is always problems, pain and issues...but I have 
> family also and hope to hang around for a couple more years if possible.  Dan 
> H.**
> 
> 
> On Monday, August 28, 2017 7:38 PM, Bryce Willis  wrote:
> 
> 
> You guys ever feel like your food just stops at the top of your stomach ? 
> Then it hurts and wants to come backup. I know my quadgut is probably the 
> problem. So tiring. If I could in good conscience end thisquad life I would 
> do it in a heartbeat. But got family and kids to consider. Larry Willis
> 
> Sent from my iPad
> 
> 

Fwd: [QUAD-L] New Chair

[Bryce Willis]

How about this. I got my new Invacare storm last November. About a month ago it 
started messing up. When you turn the power off it won't come back on. You have 
to disconnect the batteries. I think I described this earlier. Well the repair 
guy came by a couple of weeks ago and determined that the problem was in the 
joystick/control. I called them yesterday and they said they will not recognize 
the warranty because the unit had apparently been wet. This thing has never 
felt even a sprinkle! I have a strong desire to strike somebody with great 
force. What a bunch of crooks and liars! Any suggestions? Invacare wants my 
insurance to pay for it. Well of course they do. Bunch of greedy $);&:@! 
Any words of wisdom out there?

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: August 15, 2017 at 8:48:51 PM EDT
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] New Chair

Been trying 6 months to get a new chair. First few months was mis 
communication. I was waiting for them to send me info, the rep thought he had 
and was waiting for me. Then arguing over what type of chair they could order. 
Now I get prescription to fix my old chair. They called and said they no longer 
work with my insurance group. I asked about the new chair we were working on. 
They said, Sorry, we didn't realize it was a different group name. So its 
starting all over.

The name of the chair place I get from my insurance.1 star rated, very bad BBB 
rating, 4 brands of chairs I've never heard of. I'm appealing to see if I can 
buy out of network. Can take another 15 days. What hassles.

Greg

Fwd: [QUAD-L] New Chair Prob

[Bryce Willis]

I have never had one but I have read several good reviews of them over the 
years.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Fragile mailto:swl...@gmail.com>>
Date: August 9, 2017 at 8:03:58 PM EDT
To: quad-list mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] New Chair Prob

What is the quality like on bounder (21st-century) power wheelchairs? Has 
anybody had any luck getting coverage for one through Medicaid?

On Thu, Aug 3, 2017 at 1:38 PM, Jeffrey Gaede 
mailto:jsga...@yahoo.com>> wrote:
BOUNDER POWER SEATING SYSTEMS



BOUNDER POWER SEATING SYSTEMS






From: greg mailto:g...@eskimo.com>>
To: quad-list@eskimo.com
Sent: Thursday, August 3, 2017 12:22 PM
Subject: [QUAD-L] New Chair Prob

Just heard from my chair rep.
They said you can not get seat raiser, legrest raiser, tilt, recline, and speed 
package all together.
They said speed package or seat raiser, not both.
Quantum Edge Z

Anyone know of a chair that goes 7.5+, and seat raiser?


Thx
Greg

Re: Fwd: [QUAD-L] Movie

[Jeffrey Gaede]

Excellent movie! In my opinion

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Tuesday, August 8, 2017 6:54 PM
 Subject: Fwd: [QUAD-L] Movie
   
Rory O'Shea Was Here!  It's on Netflix!

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Larry Willis 
Date: August 8, 2017 at 9:48:04 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Movie



What is the movie about the young Irish lad who can only move one finger? He 
lives with a roommate that only he can understand. They have all kinds of crazy 
adventures together. It's a good one.

Sent from my iPad



   

Re: Fwd: [QUAD-L] Movie

[Danny Hearn]

My son bought us an amazon firestick for my fathers day gift...we watch all 
kinds of movie's--don't need to rent from redbox anymore. It is really cool and 
he said if we pay 99 for a year of amazon prime, you get even more movies and 
tons of music, plus free shipping year round from amazon just for having prime. 
we really like it so far. Dan H*** 

On Tuesday, August 8, 2017 8:54 PM, Bryce Willis  
wrote:
 

 Rory O'Shea Was Here!  It's on Netflix!

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Larry Willis 
Date: August 8, 2017 at 9:48:04 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Movie



What is the movie about the young Irish lad who can only move one finger? He 
lives with a roommate that only he can understand. They have all kinds of crazy 
adventures together. It's a good one.

Sent from my iPad



   

Fwd: [QUAD-L] Movie

[Bryce Willis]

Rory O'Shea Was Here!  It's on Netflix!

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Larry Willis mailto:lwillis82...@gmail.com>>
Date: August 8, 2017 at 9:48:04 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Movie

What is the movie about the young Irish lad who can only move one finger? He 
lives with a roommate that only he can understand. They have all kinds of crazy 
adventures together. It's a good one.

Sent from my iPad

Re: Fwd: [QUAD-L] Battery

[Danny Hearn]

Your chair is still under warranty.I would call your dealer or invacare and 
 tell them what it is doingsounds like a  Tech problem that they could fix 
easily. Dan H*** 

On Monday, July 31, 2017 8:06 PM, Bryce Willis  wrote:
 

 

Sent from my iPad
Begin forwarded message:


From: lwillis82...@msn.com
Date: July 31, 2017 at 9:04:23 PM EDT
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Battery



Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: glenn henry 
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com
Cc: greg , quad-list@eskimo.com
Subject: Re: [QUAD-L] Battery



If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds likeone may be burnt through.  If you need more info send email to 
ghen...@aol.com.
On Wed, Jul 19, 2017 at 6:48 AM,  wrote:

If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick. I hope this helps.Best Wishes 
In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com writes:
My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair. I found a joystick on Ebay. It seemed to 
fix it. But after a few weeks, its weird again. My charger works, tried 2 to be 
sure. But some days it charges full, some days none. Charged 2 nights not going 
anywhere, still only shows 1 bar. Now when I drive, it will just jerk, stop 
cold, joystick flash “Recharge”. I drive a bit more, same thing. Does it when 
it says full or empty. Its like a loose wire, but if loose, it would die, go 
black. Sometimes it feels like the electric breaks are one while driving. I put 
in mode 2, slow speed and it didn't seem to jerk stop as much. Any ideas?Hoping 
to gwt new chair soon, Greg






   

Fwd: [QUAD-L] Battery

[Bryce Willis]

Sent from my iPad

Begin forwarded message:

From: lwillis82...@msn.com<mailto:lwillis82...@msn.com>
Date: July 31, 2017 at 9:04:23 PM EDT
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: Fwd: [QUAD-L] Battery

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: glenn henry mailto:gah17...@gmail.com>>
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com<mailto:wheelch...@aol.com>
Cc: greg mailto:g...@eskimo.com>>, 
quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: Re: [QUAD-L] Battery

If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds like
one may be burnt through.  If you need more info send email to 
ghen...@aol.com<mailto:ghen...@aol.com>.

On Wed, Jul 19, 2017 at 6:48 AM, 
mailto:wheelch...@aol.com>> wrote:
If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick.

I hope this helps.
Best Wishes

In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com<mailto:g...@eskimo.com> writes:
My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair.

I found a joystick on Ebay. It seemed to fix it. But after a few weeks, its 
weird again. My charger works, tried 2 to be sure. But some days it charges 
full, some days none. Charged 2 nights not going anywhere, still only shows 1 
bar. Now when I drive, it will just jerk, stop cold, joystick flash “Recharge”. 
I drive a bit more, same thing. Does it when it says full or empty.

Its like a loose wire, but if loose, it would die, go black. Sometimes it feels 
like the electric breaks are one while driving. I put in mode 2, slow speed and 
it didn't seem to jerk stop as much.

Any ideas?
Hoping to gwt new chair soon, Greg

Fwd: [QUAD-L] Battery

[Bryce Willis]

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: glenn henry mailto:gah17...@gmail.com>>
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com
Cc: greg mailto:g...@eskimo.com>>, 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Battery

If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds like
one may be burnt through.  If you need more info send email to 
ghen...@aol.com.

On Wed, Jul 19, 2017 at 6:48 AM, 
mailto:wheelch...@aol.com>> wrote:
If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick.

I hope this helps.
Best Wishes

In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com writes:
My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair.

I found a joystick on Ebay. It seemed to fix it. But after a few weeks, its 
weird again. My charger works, tried 2 to be sure. But some days it charges 
full, some days none. Charged 2 nights not going anywhere, still only shows 1 
bar. Now when I drive, it will just jerk, stop cold, joystick flash “Recharge”. 
I drive a bit more, same thing. Does it when it says full or empty.

Its like a loose wire, but if loose, it would die, go black. Sometimes it feels 
like the electric breaks are one while driving. I put in mode 2, slow speed and 
it didn't seem to jerk stop as much.

Any ideas?
Hoping to gwt new chair soon, Greg

RE: Fwd: [QUAD-L] Fell Forward, bad time

[greg]

I'd be calling 911 on that one.
> Mine was somewhat different-I tipped over backwards, legs flew over
> my head, nothing I could do.
>
> About an hour later one of my Foster guys came home and found me
> and wanted to know if this was the new game-he's a little slow.  LOL
>
> He brought me a phone and I called my son and asked him where he
> was, of course it was 25 miles away.  He said OK, I will be there
> in a while.  I then told him I was upside down, and luckily he made
> it a very short while.
>
>
> From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
> Sent: Friday, July 21, 2017 2:02 PM
> To: Bryce Willis  quad-list@eskimo.com
> Subject: Re: Fwd: [QUAD-L] Fell Forward, bad time
>
>
> I'm guessing we all have similar, multiple stories. I keep telling
> myself that this time will be the last time, whether because I'll
> be more careful or the results won't be positive, but, like you
> said, it's part of quadlife...
>
>
> From: Bryce Willis 
> To: "quad-list@eskimo.com"  Sent: Friday,
> July 21, 2017 1:36 PM Subject: Fwd: [QUAD-L] Fell Forward, bad time
>
>
> When my son was two, he and I were out tooling around in the
> neighbors backyard. It was about 90°. We were going at a pretty
> good clip when all of a sudden my front wheel found a pothole
> hiding beneath the grass. Like you my head was thrown between my
> knees. I could not get up nor yell. It scared my little son to
> death. It was a heck of a situation. Finally, he ran to the back
> door crying. My wife finally heard him and came looking for me. I
> was rescued at the last second. To be that hot, breathless, and
> helpless is something I never want to repeat again. Just another
> one of the hellish attributes of quadom. Thank God for my young son.
> Sent from my iPad
>
>
> Begin forwarded message:
>
>>
>> Resent-From: 
>> From: Larry Willis 
>> Date: July 21, 2017 at 09:27:25 EDT
>> To: quad-list@eskimo.com
>> Subject: Fwd: [QUAD-L] Fell Forward, bad time
>>
>>
>> Whew, that was a close one, Greg!  Let's not do that again, ok?
>> The heat and AD together could have made for a very bad outcome.
>>
>> Sent from my iPad
>>
>>
>> Begin forwarded message:
>>
>>>
>>> Resent-From: quad-list@eskimo.com
>>> From: greg 
>>> Date: July 20, 2017 at 21:55:19 EDT
>>> To: 
>>> Subject: [QUAD-L] Fell Forward, bad time
>
>
> I was going out the back door and fell forward. Into my lap.
> Joystick jammed my shoulder, but kept me from going further
> forward. Outside, 100 degrees, record humidity. Hard to breath,
> overheated, etc. Pouring sweat from A.D. It was bad. I thought it
> was hours, but it was just over 1 hour. I had to dump cold water on
> my head, put ice packs on. No one could hear me. It was no fun. The
> thoughts that go though your head. Between the pain, overheating,
> breathing, etc. No more going without chest strap. Greg

RE: Fwd: [QUAD-L] Fell Forward, bad time

[Joan Anglin]

Mine was somewhat different-I tipped over backwards, legs flew over my head, 
nothing I could do.

About an hour later one of my Foster guys came home and found me and wanted to 
know if this was the new game-he's a little slow.  LOL

He brought me a phone and I called my son and asked him where he was, of course 
it was 25 miles away.  He said OK, I will be there in a while.  I then told him 
I was upside down, and luckily he made it a very short while.

 

 

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Friday, July 21, 2017 2:02 PM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Fell Forward, bad time

 

I'm guessing we all have similar, multiple stories. I keep telling myself that 
this time will be the last time, whether because I'll be more careful or the 
results won't be positive, but, like you said, it's part of quadlife…

 

  _  

From: Bryce Willis mailto:lwillis82...@msn.com> >
To: "quad-list@eskimo.com <mailto:quad-list@eskimo.com> " mailto:quad-list@eskimo.com> > 
Sent: Friday, July 21, 2017 1:36 PM
Subject: Fwd: [QUAD-L] Fell Forward, bad time

 

When my son was two, he and I were out tooling around in the neighbors 
backyard. It was about 90°. We were going at a pretty good clip when all of a 
sudden my front wheel found a pothole hiding beneath the grass. Like you my 
head was thrown between my knees. I could not get up nor yell. It scared my 
little son to death. It was a heck of a situation. Finally, he ran to the back 
door crying. My wife finally heard him and came looking for me. I was rescued 
at the last second. To be that hot, breathless, and helpless is something I 
never want to repeat again. Just another one of the hellish attributes of 
quadom. Thank God for my young son.
Sent from my iPad


Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com> >
From: Larry Willis mailto:lwillis82...@gmail.com> >
Date: July 21, 2017 at 09:27:25 EDT
To: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Subject: Fwd: [QUAD-L] Fell Forward, bad time

Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
From: greg mailto:g...@eskimo.com> >
Date: July 20, 2017 at 21:55:19 EDT
To: mailto:quad-list@eskimo.com> >
Subject: [QUAD-L] Fell Forward, bad time

I was going out the back door and fell forward. Into my lap. Joystick jammed my 
shoulder, but kept me from going further forward. Outside, 100 degrees, record 
humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. 
I thought it was hours, but it was just over 1 hour. I had to dump cold water 
on my head, put ice packs on. No one could hear me. It was no fun. The thoughts 
that go though your head. Between the pain, overheating, breathing, etc. No 
more going without chest strap. Greg

 

 

Re: Fwd: [QUAD-L] Fell Forward, bad time

[Jeffrey Gaede]

Gravity is our friend, concrete sucks…

  From: Carolyn Boyles 
 To: quad-list@eskimo.com 
 Sent: Friday, July 21, 2017 2:59 PM
 Subject: Re: Fwd: [QUAD-L] Fell Forward, bad time
   
Gravity hates me.

Carolyn



   

Re: Fwd: [QUAD-L] Fell Forward, bad time

[Carolyn Boyles]

Gravity hates me.

Carolyn

Re: Fwd: [QUAD-L] Fell Forward, bad time

[greg]

I kept changing my mind. Thought the heat was the worst, then the joystick jabbing my soulder, then the hard to breat thing. But I'd yell and it would change again. The shoulder is lasting the longest, still hurts. But the heat was the thing I thought was going to do me in.
> When my son was two, he and I were out tooling around in the
> neighbors backyard. It was about 90°. We were going at a pretty
> good clip when all of a sudden my front wheel found a pothole
> hiding beneath the grass. Like you my head was thrown between my
> knees. I could not get up nor yell. It scared my little son to
> death. It was a heck of a situation. Finally, he ran to the back
> door crying. My wife finally heard him and came looking for me. I
> was rescued at the last second. To be that hot, breathless, and
> helpless is something I never want to repeat again. Just another
> one of the hellish attributes of quadom. Thank God for my young son.
> Sent from my iPad
>
> Begin forwarded message:
>
>
>> Resent-From: 
> From: Larry Willis 
> Date: July 21, 2017 at 09:27:25 EDT
> To: quad-list@eskimo.com
> Subject: Fwd: [QUAD-L] Fell Forward, bad time
>
>
>> Whew, that was a close one, Greg!  Let's not do that again, ok?
>> The heat and AD together could have made for a very bad outcome.
>>
> Sent from my iPad
>
> Begin forwarded message:
>
>
>>> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: July 20, 2017 at 21:55:19 EDT
> To: 
> Subject: [QUAD-L] Fell Forward, bad time
>>
>>
>>> I was going out the back door and fell forward. Into my lap.
>>> Joystick jammed my shoulder, but kept me from going further
>>> forward. Outside, 100 degrees, record humidity. Hard to breath,
>>> overheated,
>>> etc. Pouring sweat from A.D. It was bad. I thought it was
>>> hours, but it was just over 1 hour. I had to dump cold water on
>>> my head, put ice packs on. No one could hear me. It was no fun.
>>> The thoughts that go though your head. Between the pain,
>>> overheating,
>>> breathing, etc. No more going without chest strap. Greg

Re: Fwd: [QUAD-L] Fell Forward, bad time

[Jeffrey Gaede]

I'm guessing we all have similar, multiple stories. I keep telling myself that 
this time will be the last time, whether because I'll be more careful or the 
results won't be positive, but, like you said, it's part of quadlife…

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Friday, July 21, 2017 1:36 PM
 Subject: Fwd: [QUAD-L] Fell Forward, bad time
   
When my son was two, he and I were out tooling around in the neighbors 
backyard. It was about 90°. We were going at a pretty good clip when all of a 
sudden my front wheel found a pothole hiding beneath the grass. Like you my 
head was thrown between my knees. I could not get up nor yell. It scared my 
little son to death. It was a heck of a situation. Finally, he ran to the back 
door crying. My wife finally heard him and came looking for me. I was rescued 
at the last second. To be that hot, breathless, and helpless is something I 
never want to repeat again. Just another one of the hellish attributes of 
quadom. Thank God for my young son.
Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Larry Willis 
Date: July 21, 2017 at 09:27:25 EDT
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Fell Forward, bad time



Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad
Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: greg 
Date: July 20, 2017 at 21:55:19 EDT
To: 
Subject: [QUAD-L] Fell Forward, bad time





I was going out the back door and fell forward. Into my lap. Joystick jammed my 
shoulder, but kept me from going further forward. Outside, 100 degrees, record 
humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. 
I thought it was hours, but it was just over 1 hour. I had to dump cold water 
on my head, put ice packs on. No one could hear me. It was no fun. The thoughts 
that go though your head. Between the pain, overheating, breathing, etc. No 
more going without chest strap. Greg 

   

Fwd: [QUAD-L] Fell Forward, bad time

[Bryce Willis]

When my son was two, he and I were out tooling around in the neighbors 
backyard. It was about 90°. We were going at a pretty good clip when all of a 
sudden my front wheel found a pothole hiding beneath the grass. Like you my 
head was thrown between my knees. I could not get up nor yell. It scared my 
little son to death. It was a heck of a situation. Finally, he ran to the back 
door crying. My wife finally heard him and came looking for me. I was rescued 
at the last second. To be that hot, breathless, and helpless is something I 
never want to repeat again. Just another one of the hellish attributes of 
quadom. Thank God for my young son.
Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Larry Willis mailto:lwillis82...@gmail.com>>
Date: July 21, 2017 at 09:27:25 EDT
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: Fwd: [QUAD-L] Fell Forward, bad time

Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad

Begin forwarded message:

Resent-From: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
From: greg mailto:g...@eskimo.com>>
Date: July 20, 2017 at 21:55:19 EDT
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Fell Forward, bad time

I was going out the back door and fell forward. Into my lap. Joystick jammed my 
shoulder, but kept me from going further forward. Outside, 100 degrees, record 
humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. 
I thought it was hours, but it was just over 1 hour. I had to dump cold water 
on my head, put ice packs on. No one could hear me. It was no fun. The thoughts 
that go though your head. Between the pain, overheating, breathing, etc. No 
more going without chest strap. Greg

Re: Fwd: [QUAD-L] Fell Forward, bad time

[greg]

You get some bad thoughts while sitting, face down. I was assuming I was going to wake up in the ER.
I was sweating so bad. Then every time I yelled for help, I was out of breath, etc.
No fun... Thx
> Whew, that was a close one, Greg!  Let's not do that again, ok? The
> heat and AD together could have made for a very bad outcome.
>
> Sent from my iPad
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: greg 
>> Date: July 20, 2017 at 21:55:19 EDT
>> To: 
>> Subject: [QUAD-L] Fell Forward, bad time
>>
>>
>> I was going out the back door and fell forward. Into my lap.
>> Joystick jammed my shoulder, but kept me from going further
>> forward. Outside, 100 degrees, record humidity. Hard to breath,
>> overheated, etc. Pouring sweat from A.D. It was bad. I thought it
>> was hours, but it was just over 1 hour. I had to dump cold water
>> on my head, put ice packs on. No one could hear me. It was no
>> fun. The thoughts that go though your head. Between the pain,
>> overheating, breathing, etc. No more going without chest strap.
>> Greg

Fwd: [QUAD-L] Fell Forward, bad time

[Larry Willis]

Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: July 20, 2017 at 21:55:19 EDT
> To: 
> Subject: [QUAD-L] Fell Forward, bad time
> 
> I was going out the back door and fell forward. Into my lap. Joystick jammed 
> my shoulder, but kept me from going further forward. Outside, 100 degrees, 
> record humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It 
> was bad. I thought it was hours, but it was just over 1 hour. I had to dump 
> cold water on my head, put ice packs on. No one could hear me. It was no fun. 
> The thoughts that go though your head. Between the pain, overheating, 
> breathing, etc. No more going without chest strap. Greg
>  

Fwd: [QUAD-L] I would like to share this article with you guys

[Bryce Willis]

Wow, now that is pretty amazing!

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: "Ismael Cavazos" 
mailto:ismaelcavaz...@gmail.com>>
Date: July 9, 2017 at 9:17:03 PM EDT
To: "Blue" mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] I would like to share this article with you guys

http://www.guinnessworldrecords.com/world-records/longest-living-quadriplegic-(incomplete)

Fwd: [QUAD-L] 51 years post SCI

[Bryce Willis]

Glenn, what a wonderful post! So much of it applies to me and my years of 
Quadom. I am 65 and am on year 46 of quad life. I never dreamed of being a 
teacher, nor getting married, having children, or even living this long. My 
health is declining now at a pretty fast rate, but both of us have exceeded 
expectation by a good number. And I too have many times visualized the big 
truck encounter. I do believe now, Glenn, that we have reached the point of 
adieu. We have lived the good life, and if the Lord is ready, so am I. But who 
knows? We may have a long stretch remaining! Whatever the future holds, God 
bless you my friend! We have both fought the good fight. We shall both rest 
when the race is run. Larry Willis

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: glenn henry mailto:gah17...@gmail.com>>
Date: July 9, 2017 at 3:52:30 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] 51 years post SCI

 I sold the posting last week for 31 years, mine is 51 on July 10.

A lot of water has gone over the dam sinc the day, I married and remain so 
today, three  stepchildren, nine grandchildren and one dog.

When one door was slammed shut, it seemed that God would open another. I 
operated a successful electronics business for 30 years, acquired some rental 
properties, built a second home in the mountains and life was good.

It was good. I crossed the threshold about two years  ago and now I believe I 
have traded quality for quantity. I probably will be facing surgery in the 
future and I don't believe I could expect a good outcome.

I sometimes sit at a local Riverpark and think how easy it would be to roll 
down the windows of the van and drive into the drink. No, that won't happen. 
I've seen firsthand what suicide does to those left behind. My brother was a 
police officer and on his first solo patrol watched his best friend's father 
step out in front of the car an committed suicide. He could only watch it 
happen and couldn't do anything about it. The thinking back then from the 
police department, keep your mouth shut don't talk about it and it wil go away. 
It went away, or  more so  he did.

I've had a good life and don't regret much. I used to always make the statement 
if God would have only given me one good hand, how much farther I could've 
gone.   well, then I went to an  event, sat with a fellow quad and his wife 
needed to feed him. I promise God right there and then I would never make that 
statement again.

 Will I be here for 52, only God knows that. I do know that I made an influence 
on many people's lives and God used me in ways I could never have dreamed.

Take care and hang in there, let's see about 52.

Glenn Henry

Re: Fwd: [QUAD-L] Molded backs

[Jeffrey Gaede]

I have a molded back seating system. I'm paralyzed from the shoulders down so 
it doesn't affect any intended movement and it's nice to not have separate 
lateral supports that you have to swing in and out.

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Saturday, July 8, 2017 6:04 PM
 Subject: Fwd: [QUAD-L] Molded backs
   
The invacare chair I got last year has molded sides. These are lateral supports 
that keep me from falling sideways. They have made driving my van much easier. 
However, they are in the way for other things such as transferring, leaning 
over to pick something up, etc.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Bobbie Humphreys 
Date: July 8, 2017 at 4:16:49 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Molded backs



Has anybody ever gotten a molded back on their chair? Did it help you?
I have an appointment to get one August 23rd because of my scoliosis.
Bobbie 

"Be the change you want to see in the world". Gandhi




   

Fwd: [QUAD-L] Molded backs

[Bryce Willis]

The invacare chair I got last year has molded sides. These are lateral supports 
that keep me from falling sideways. They have made driving my van much easier. 
However, they are in the way for other things such as transferring, leaning 
over to pick something up, etc.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Bobbie Humphreys 
mailto:bobbiehumphre...@gmail.com>>
Date: July 8, 2017 at 4:16:49 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Molded backs

Has anybody ever gotten a molded back on their chair? Did it help you?
I have an appointment to get one August 23rd because of my scoliosis.
Bobbie

"Be the change you want to see in the world". Gandhi

Fwd: [QUAD-L] I would like to share this article

[Bryce Willis]

Crock crock crock! I was bit by a recluse about ten years ago. Put me in the 
hospital and left a big hole in my side. Didn't do a $&)/$ thing for my legs. 
They are some bad critters.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: "Ismael Cavazos" 
mailto:ismaelcavaz...@gmail.com>>
Date: July 4, 2017 at 7:23:34 PM EDT
To: "Blue" mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] I would like to share this article

http://geekologie.com/2009/03/real-life-spiderman-paralyzed.php

Re: Fwd: [QUAD-L] Scoliosis

[Jeffrey Gaede]

I'm kinda with Larry: deny it's happening, just like so many other things in my 
life. At least don't dwell on the issues…
Jeff  From: Larry Willis 
 To: quad-list@eskimo.com 
 Sent: Sunday, June 18, 2017 1:22 PM
 Subject: Fwd: [QUAD-L] Scoliosis
   
Avoid mirrors and curse my fate. 

Larry WillisRetired and proud of it

Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys 
Date: June 17, 2017 at 3:12:48 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Scoliosis



When I'm sitting in my chair, I can fit a baseball ⚾️ between my body and the 
armrest, on my left side.
On my right side I couldn't even fit a piece of paper 📝.
Of course, as the day progresses, so dose the pain in my back ... after only 
5-7 hours.

I went to brace clinic about 8 years ago, at Kessler, and the Doctor 👨‍⚕️ just 
took one ☝️ look 👀 at me and said "What are you doing here"?
I told her about my my scoliosis.
"I can see that, I'm not blind." She says 
I told her that my goal was to try to prevent the scoliosis from getting worse.
"It's not that bad." And that was it

What do you guys do about your scoliosis besides braces on your body or chair?
Bobbie 

"Be the change you want to see in the world". Gandhi



   

Fwd: [QUAD-L] Why do Quads get light headed after eating? Do you?

[Larry Willis]

Same thing happens to me, plus I get cold. It is caused by blood rushing to the 
digestive tract leaving the brain etc a couple of quarts low. Eat slowly and 
stay hydrated.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Raymond Kelly" 
> Date: June 14, 2017 at 5:07:37 PM EDT
> To: "x quad-list" 
> Subject: FW: [QUAD-L] Why do Quads get light headed after eating?  Do you?
> 
> I don't know how common it is for quads to get lightheaded while eating, but 
> I do have the problem occasionally. Usually when I'm eating something that is 
> really chewy. I find if I recline in the wheelchair for a couple minutes my 
> blood pressure goes back up and I can resume eating. That probably isn't of 
> any help to you but that is the only thing I have found helps.
>  
> Raymond
> C3/4 complete
>  
> From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
> Sent: Wednesday, June 14, 2017 4:20 PM
> To: Quad-list Post
> Subject: [QUAD-L] Why do Quads get light headed after eating? Do you?
>  
> I have been getting real light headed after eating . I mean after a few bites.
> It  goes away after i digest a little but its darn bothersome.
> Do you guys have have any stories or remedies? 
> Thanks

Fwd: [QUAD-L] Scoliosis

[Larry Willis]

Avoid mirrors and curse my fate. 

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Bobbie Humphreys 
> Date: June 17, 2017 at 3:12:48 PM EDT
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Scoliosis
> 
> When I'm sitting in my chair, I can fit a baseball ⚾️ between my body and the 
> armrest, on my left side.
> On my right side I couldn't even fit a piece of paper 📝.
> Of course, as the day progresses, so dose the pain in my back ... after only 
> 5-7 hours.
> 
> I went to brace clinic about 8 years ago, at Kessler, and the Doctor 👨‍⚕️ 
> just took one ☝️ look 👀 at me and said "What are you doing here"?
> I told her about my my scoliosis.
> "I can see that, I'm not blind." She says 
> I told her that my goal was to try to prevent the scoliosis from getting 
> worse.
> "It's not that bad." And that was it
> 
> What do you guys do about your scoliosis besides braces on your body or chair?
> Bobbie 
> 
> "Be the change you want to see in the world". Gandhi

Fwd: [QUAD-L] Abdomen Pain

[Lori Michaelson]

A kidney stone would show up on a CT scan. In fact, bladder stones and
kidney stones can ONLY be found by performing a CT scan. Not even a KUB
(x-ray) will show bladder stones unfortunately.

I wrote to Greg privately I told him that I went for 4 1/2 years with
extreme abdominal pain and cramping and had every test under the sun only
to end up finding out that it was Posttraumatic Syringomyelia! The spine
can do so many things.

I just read Greg's post and he is having all the tests done accordingly
(applause applause) but we are also different and can have that ugly
"referred" pain that it could be absolutely anything.

My new urologist is not fond of using a prophylactic antibiotic after I
have my surgery (bladder neck closure) and then an SP catheter for obvious
reasons. I used to take, shortly after my injury in 1979/1980 by the time I
got home a daily Bactrim and took it for years. I can remember now how
long. Now I can only remember that I relied upon Cipro whenever I had a
bladder infection (not to be confused with a kidney infection) which always
worked for the first 20 years post injury.

After 2003, I began to have back to back UTIs that would cause fevers and
therefore they had gone systemic. So, for the first time in my life I went
to a urologist. First time I really needed to. Good thing I did. However,
she had had to have emergency surgery before I saw her so I really didn't
see her formally until 2005/2006 (25 years post injury). She found that I
had a pathogenic bacteria and she did a cystoscopy. I had a bladder full of
stones. She told me they were the biggest stones she ever saw (even though
she wasn't in practice many many years) yet, ironically, I wasn't having
pain for them. I would not have known about them if she had not done a
cystoscopy I remove them easily with a laser.

Since then, I have seen her twice and both times because of bladder stones.
For a female, bladder infections are easy to get because the vaginal area
is right there along with the rectum. So I was terribly lucky to only have
5 bladder infections the first 20 years post injury. Guess I got paid back.
But I didn't plan on getting my urethra damaged by a so-called medical
professional so I have to have surgery above and beyond getting an SP
catheter.  I hope everything gets resolved after that which is just over a
little week away.

As Jeff and so many others have said however... beware of a lot of medical
professionals now or before now. There are plenty of good ones but there
are so very many now that want to take on more patients than they can
handle so you don't get the "one-on-one" patient care that you used to get.
It is better in small towns I have found but Caveat Emptor. :-)

​PS -- I find a big difference between "abdominal pain" and, what I call
"bladder pain."  Since I know now the difference between bladder pain and
abdominal pain/cramping I make sure that my urologist's staff understands
the difference. Bladder pain in is most definitely in the pelvic area where
the bladder sits and has been the only indicative sign ahead of a bladder
infection starting in 2001 if it is only symptomatic (has not gotten into
the bloodstream yet to cause a fever).​


​​"
Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Fwd: [QUAD-L] Sweating on right side

[Larry Willis]

I have stomach pain just about every night. Then I wake up with cold sweats. I 
can only sleep on my left side. I have suspected pain medicine for a long time. 
Antacids seem to help. I think my biggest problem is bloating and constipation. 
We just can't win, can we?

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: jume9...@comcast.net
> Date: May 30, 2017 at 7:19:44 PM EDT
> To: quad-list 
> Subject: Re: [QUAD-L] Sweating on right side
> 
> I have been getting the sweats and my doc thinks i have a kidney stone, that 
> could possibly be your issue Greg but as far as the stomach thing it could be 
> an ulcer if you are taking anti-inflammatory meds?
> 
> Meredith
> 
> From: "greg" 
> To: "quad-list" 
> Sent: Tuesday, May 30, 2017 1:07:55 PM
> Subject: Re: [QUAD-L] Sweating on right side
> 
> I am right now. I thought a UTI but meds didn't help. Now I'm off for an 
> x-ray to try and find the cause. I asume its that.
> Sweats and stomach pain.
> Greg
> 
> > Ive been sweating on my right side pretty bad. I believe its from
> > taking pain meds because when I pop the antacids it gets better.
> > Anybody deal with mild ulcer/stomach irritation due to meds?
> >
> >
> > Quad 98
> 

Fwd: [QUAD-L] Fun Story, My Photos

[Bryce Willis]

Greg"that is a damn fine article. Proud of you, man! Larry Willis
Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: May 29, 2017 at 12:02:56 PM EDT
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Fun Story, My Photos

I mentioned the other day I won a local photo contest. The local news came out 
to do a story. They did not know I was a quad when they came out, but they 
mentioned my Gofundme, how cool. A bit embarassed. They played the award up, 
made it sound bigger than it was. But thats the news. But fun...

http://www.azfamily.com/story/35537018/paralyzed-photographer-from-chandler-wins-awards


Greg

Fwd: [QUAD-L] Who cares for the family caregivers?

[Bryce Willis]

I'm pretty sure there is a Facebook group for caregivers.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: "Dave Krehbiel" 
mailto:davekrehb...@earthlink.net>>
Date: May 19, 2017 at 8:51:02 AM EDT
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Who cares for the family caregivers?

I have been a quadriplegic for nearly 10 years now, and as a consequence, my 
wife has taken on the role of being a family caregiver for almost 10 years.

She needs help. I have some ideas about setting up an organization to help 
support family caregivers, and right now I am doing some research.

Are you aware of any helpful programs or resources or information or 
organization supporting family caregivers?

Thanks so much, and take care,

Dave Krehbiel
Olney, MD

[https://ipmcdn.avast.com/images/icons/icon-envelope-tick-round-orange-animated-no-repeat-v1.gif]
Virus-free. 
www.avast.com

Fwd: [QUAD-L] Pressure wound advice

[Larry Willis]

I sleep on my left side..it is my only option. Of course, I am constantly 
fighting sores on my hip bone. I fight it by using a lightly inflated donut. 
Too much air is painful and too little makes it useless. I know it is probably 
wrecking my spine, but I have no other solution.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Don Smith 
> Date: May 18, 2017 at 3:56:31 AM EDT
> To: bmatt...@earthlink.net
> Cc: quad-list@eskimo.com
> Subject: Re: [QUAD-L] Pressure wound advice
> 
> I agree 150% with what at Wheelchair  said, wound vacs are great at healing, 
> just make sure your wife and caregivers learn how to trouble shot it and keep 
> any extra clear adhesive drape in case a leak occurs.  Also  the KCI Wound 
> vacs are much better then any others.
> 
>> On Wed, May 17, 2017 at 6:29 PM,  wrote:
>> Hiya Ben! An open wound should be treated with the utmost respect, and 
>> never... ever be taken lightly. I hope you are being service by a certified 
>> Wound Care Clinic/Specialist. Make sure your Nurse is a Certified Wound 
>> Nurse and knows how to use a smart phone to take pictures every day or every 
>> other day and send them to your Medical Wound Doctor.  I'm sure by now, your 
>> wound has been de-breeded and measured before the wound vac was applied.  
>> Wound Vacs can be a pain in your butt, but you know that already.  If you 
>> have an aid, have them watch what is done, so they can know what to do if 
>> tubes to the vac become tangled or your alarm goes off.  How many pounds of 
>> Vac, are you using?  An air mattress is most important and laying on your 
>> side at night time. I truly hope you don't smoke, as that will delay the 
>> healing process.
>> Do well my friend.
>> Best Wishes
>>  
>> In a message dated 5/17/2017 7:41:41 P.M. Central Daylight Time, 
>> bmatt...@earthlink.net writes:
>> I have a Stage 4 pressure wound on my tailbone –  my first ever!  Doc is 
>> recommending a Wound Vac and perhaps a "low air loss" bed mattress.  Anybody 
>> have any experience with either? How am I going to function witha Wound 
>> Vac attached to my butt? Do they work quickly?   Also,I don't have a 
>> hospital bed –  I share a regular queen-size mattress with my wife – so I'm 
>> not eager to make my bedroom into a hospital room. What sort of beds do you 
>> all use? Maybe a Roho overlay would be good enough?
>> Thanks for your thoughts.
>> Best,
>> Ben  (SMA quad, 54 years old)
> 

Fwd: [QUAD-L] Re: Pressure wound advice

[Larry Willis]

Pressure sores on my butt have been an issue for years. I have used the wound 
VAC more than once. The most difficult part for me was maintaining a tight 
seal. The contours of the butt and the tailbone are not conducive to a tight 
seal. The wound vac is very effective, though. So is good nutrition and heavy 
doses of protein as someone has already said. God bless and good luck.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Kay at Amplified Agility" 
> Date: May 18, 2017 at 7:13:00 PM EDT
> To: "'Ben Mattlin'" , 
> Subject: RE: [QUAD-L] Re: Pressure wound advice
> 
> Hi Ben –
>  
> I have seen the replies and just want to chime in with a “remember that 
> wounds are an inside out and outside in” issue…meaning gut health, presence 
> or not of “opportunistic critters” in the gut, nutritional status etc. are 
> really important.  Also, when you have a wound as you are describing you need 
> considerably more protein and other micronutrients to facilitate healing as 
> well….I hope you have a knowledgeable nutritionist on your team.
>  
> We deal with this a lot…
>  
>  
>  
> 
> Kay Lathrop
> Program Director, Amplified Agility, LLC
> 1-619-501-3752 | www.amplifiedagility.com |
> 4275 Executive Square, Suite 200 La Jolla, CA 92037 
>   
>  
>  
> From: Ben Mattlin [mailto:bmatt...@earthlink.net] 
> Sent: Thursday, May 18, 2017 4:04 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Re: Pressure wound advice
>  
> Thanks, everyone, for your comments and feedback.  It's interesting how 
> different people have very different experiences.  I don't yet have the Wound 
> VAC but should have it soon.  Oddly, sitting in my chair does not seem to be 
> the cause of the pressure wound.  So maybe it's my bed.  I find it hard to 
> breathe when I lie on my side very long, hope a different mattress will help. 
>  Frustrating, not knowing the cause or the best solution.  But you all give 
> me hope that there WILL BE a solution, eventually.  Peace!

Fwd: [QUAD-L] Muscle

[Larry Willis]

I live in the great state of Kentucky. As of now I am still in the process of 
transitioning from teachers retirement insurance to Medicare (because I turn 65 
this month). It is more confusing than the matrix.  I think there is a part for 
each letter of the alphabet and  a rider and a supplement for each letter. Now 
add different levels to each rider and those in network and those out of 
network. Figure the different levels of copay,  check line 37 for your agi, and 
call the assistance hotline. Scream loudly, hang up, and realize that there is 
no way in hell that you can understand this, much less afford it. The words 
GIVE UP are ringing in the background. Double the Paxil, doc. No wait...can't 
afford it.
Sent from my iPad

Begin forwarded message:

> From: greg 
> Date: May 10, 2017 at 9:13:19 PM EDT
> To: Larry Willis 
> Subject: Re: [QUAD-L] Muscle
> 
> Where do you live?
> Do they have Medicare Replacement Insurence?
> Greg
> 
> > As I grow older, my arms have become skinner and weaker. Doc says
> > it is a loss of muscle mass due to aging. I'm almost 65. Anyone
> > else experiencing this? I am losing confidence in doing things that
> > used to be easysuch as driving. My shoulder seems to lock when
> > I turn the steering wheel too far. I think I am over the hill.  
> > Btw, I switched over to Medicare this month. Aa prescription that
> > cost me 45$ last month cost me $300 today. Made me nauseous. Can't
> > do it. Larry Willis
> > Sent from my iPad
> >
> > Begin forwarded message:
> >
> >
> >> Resent-From: quad-list@eskimo.com
> >> From: greg 
> >> Date: May 9, 2017 at 10:12:10 PM EDT
> >> To: 
> >> Subject: [QUAD-L] Waxed Ams
> >>
> >>
> >> I waxed my arms last week. Got a few replies asking if it worked.
> >>
> > I think it actually helped.  The hair on my arms is always standing
> > up. Makes my arms tingle. Especially in bed with the blankets
> > rubbing on them. Its not perfect, but its better I think.
> > Only cost $40
> > Greg

Fwd: [QUAD-L] Purple or black colored toes and feet

[Larry Willis]

That happens to me occasionally. Feet swell pretty bad too. We wrap lower leg 
in ace bandage and that helps quite a bit.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Carolyn Boyles 
> Date: April 29, 2017 at 7:02:15 PM EDT
> To: quad-list@eskimo.com
> Subject: Re: [QUAD-L] Purple or black colored toes and feet
> 
> It sounds like a very dangerous situation to me, one requiring a doctor's 
> advice ASAP so as not to lose the toes to gangrene.
> 
> Carolyn
> 

Fwd: [QUAD-L] Exercise

[Larry Willis]

Have you tried a bungee cord? They come in all shapes and sizes.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: April 27, 2017 at 10:46:59 PM EDT
> To: 
> Subject: [QUAD-L] Exercise
> 
> Any tips on ways to exercise by yourself? As a C5 I can't do a lot. I have a 
> hand cycle, but need to get strapped on.
>  
> Mostly I stretch, and use an elastic band. Hook in on my armrest and around 
> my hand. My legbags come with elastic straps. I save a lot of them. Loop them 
> together to make it as long as I want. I hook it on door handles, or drop one 
> end and run over it to hold in place. You can double them to make it harder. 
> They work great and last awhile.
>  
> I also save the green caps to use on my typing stick. Erasers just ware down 
> leaving a mess.
>  
> Greg

Fwd: [QUAD-L] Check out this article my friends

[Larry Willis]

What a great story!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Ismael Cavazos" 
> Date: April 11, 2017 at 9:46:14 PM EDT
> To: "Blue" 
> Subject: [QUAD-L] Check out this article my friends
> 
> http://www.generationterrorists.com/articles/30_years_later.html

Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[Bryce Willis]

You are right Greg. Since the advent of chain stores, the wonderful old Main 
Street shops have disappeared. The old country stores that used to dot the 
landscape are also gone.I have such beautiful memories of those places. 
Walmart, Target et.al. are just community killers. Now add Amazon to that list. 
I must say, though, they saved our little community. We had a huge Fruit of the 
Loom plant here that closed shop and moved to Central America in the late 
'90's. They put over 4,000people out of work. Amazon stepped in and used their 
old facilities to open a huge distribution center. They are still growing. Sure 
wish I could have bought stock then. It was about $12 a share. Now it is in the 
hundreds. Wow!

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: April 9, 2017 at 7:01:36 PM EDT
To: mailto:quad-list@eskimo.com>>
Subject: Re: Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service 
workers | Jesse Jones  - KIRO TV

Amazon is great for us, but it put a lot of little guys out who can't compete 
with prices. But I use them a lot. And with prime, free shipping on most thing. 
Same day shipping on a lot. Just last week I needed a cord for something, had 
it free shipping by dinner time. And free returns, pick at house. Great place 
to do business with.
Greg


> Amazon is the most amazing outfit I have ever seen. They have
> everything and do everything.Bezos is a genius. If only I had
> invested a few bucks in it about 12 years ago. WaitI've never
> had a few bucks! Lol A fellow can always dream.

Re: Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[greg]

Amazon is great for us, but it put a lot of little guys out who can't compete with prices. But I use them a lot. And with prime, free shipping on most thing. Same day shipping on a lot. Just last week I needed a cord for something, had it free shipping by dinner time. And free returns, pick at house. Great place to do business with.
Greg

> Amazon is the most amazing outfit I have ever seen. They have
> everything and do everything.Bezos is a genius. If only I had
> invested a few bucks in it about 12 years ago. WaitI've never
> had a few bucks! Lol A fellow can always dream.

Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[Larry Willis]

Amazon is the most amazing outfit I have ever seen. They have everything and do 
everything.Bezos is a genius. If only I had invested a few bucks in it about 12 
years ago. WaitI've never had a few bucks! Lol A fellow can always dream.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: jume9...@comcast.net 
> Date: April 7, 2017 at 1:21:05 PM EDT
> To: quad-list@eskimo.com 
> Subject: Re: [QUAD-L] Amazon to hire 30,000 virtual customer service workers 
> | Jesse Jones  - KIRO TV
> 
> These jobs are not work from home are they?
> Meredith
> 
> Sent from my LG Mobile
> 
> -- Original message--
> From: Jim Lubin
> Date: Thu, Apr 6, 2017 11:50 PM
> To: quad-list@eskimo.com;
> Subject:[QUAD-L] Amazon to hire 30,000 virtual customer service workers | 
> Jesse Jones - KIRO TV
> 
> http://jessejones.com/story/amazon-to-hire-3-virtual-customer-service-workers/

Re: Fwd: [QUAD-L] Getting Old

[jume9999]

Greg, I was diagnosed with HO when I was first injured 36 yrs ago. It 
caused me to be lopsided and over the yrs made my other hip and leg to become 
jacked up causing me major pain in the last few years.  Didn't know back then 
that it could be helped with radiation.Meredith 
Sent from my LG Mobile



-- Original message--From: greg Date: Thu, Apr 6, 2017 2:09 PMTo: 
quad-list@eskimo.com;Subject:RE: Fwd: [QUAD-L] Getting Old
I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing. Without pain meds, my leg will not go 
straight. Spasms are so bad, I grunt, almost pull myself out of my chair, and 
the worst thing is my chest gets so heavy it's hard to breath. Like someone is 
sitting on my chest. If I miss my meds, within hours my body is like 1 solid 
muscle clinch. They almost OD me trying to raise Baclofen high enough to ease 
my spasms. Many tests to find the cause. Finely took pain meds for my shoulder 
and it was like life changing difference. Docs said no way would pain meds stop 
spasms, I need more Baclofen. I went in and showed them, I'm not spasming. Then 
finely they agreed it was pain causing the spasms. And they found the cause. 
Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse. Greg

RE: Fwd: [QUAD-L] Getting Old

[Joan Anglin]

So very true, we are the same but totally different.  Have a great day everyone.

 

From: greg [mailto:g...@eskimo.com] 
Sent: 06 April, 2017 2:10 PM
To: quad-list@eskimo.com
Subject: RE: Fwd: [QUAD-L] Getting Old

 

I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing.

 

Without pain meds, my leg will not go straight. Spasms are so bad, I grunt, 
almost pull myself out of my chair, and the worst thing is my chest gets so 
heavy it's hard to breath. Like someone is sitting on my chest. If I miss my 
meds, within hours my body is like 1 solid muscle clinch.

 

They almost OD me trying to raise Baclofen high enough to ease my spasms. Many 
tests to find the cause. Finely took pain meds for my shoulder and it was like 
life changing difference. Docs said no way would pain meds stop spasms, I need 
more Baclofen. I went in and showed them, I'm not spasming. Then finely they 
agreed it was pain causing the spasms. And they found the cause.

 

Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse.

 

Greg

RE: Fwd: [QUAD-L] Getting Old

[greg]

I was fine for 20+ years after my injury, no meds, pain was not great, but could deal with it. But after a hip injury, I developed Heterotopic Ossification (HO). When your  bones try and heal they start growing calcium, but when you have HO, the calcium does not stop growing. It grows like tree branches into your muscles. Have to take meds and use radiation to stop the growing. They will only cut it out if it grows so much you loose range of motion. Because it grows into the muscle, it's a very bloody surgery, and that is a main cause to restart the growing.
 
Without pain meds, my leg will not go straight. Spasms are so bad, I grunt, almost pull myself out of my chair, and the worst thing is my chest gets so heavy it's hard to breath. Like someone is sitting on my chest. If I miss my meds, within hours my body is like 1 solid muscle clinch.
 
They almost OD me trying to raise Baclofen high enough to ease my spasms. Many tests to find the cause. Finely took pain meds for my shoulder and it was like life changing difference. Docs said no way would pain meds stop spasms, I need more Baclofen. I went in and showed them, I'm not spasming. Then finely they agreed it was pain causing the spasms. And they found the cause.
 
Everyone feels pain differently, has different causes. Both can have pain for same issue, but one be in more pain. Not just let it get to them more. Just can't quantify pain in different people. 5 quads can each have shoulder pain, different causes, different location, different nerves. I would be hard pressed to call a pain a 9 out of 10, because I can always think of something that could hurt more. My shoulder makes me want to rock, but a hot needle in my eye would be worse.
 
Greg

RE: Fwd: [QUAD-L] Getting Old

[Joan Anglin]

Since I haven’t gotten older without being a quad I have nothing to judge this 
by.  It’s been 26 ½ years for me, and I turned 78 on Tuesday.  I have to agree 
with you Jeffrey that I don’t know if what I am feeling is what everyone else 
feels but I have learned to live with it.  My head inching, sciatica burn, nose 
running and no way to wipe it, cold at night-hot at night-cold at night!  
Because I’m in a wheelchair I can still go as fast as I want to and not worry 
about stumbling and breaking a hip.  On the other hand I can’t really wear 
hearing aids which I need, because I’m unable to adjust them even if I could 
afford them.  I have learned to say pardon me, I didn’t hear what you said in 
many ways.

I was recently hospitalized for four days with blood clots and now I am on a 
blood thinner as well as a new filter.  I had had an embolism two weeks after 
breaking my neck and they put a filter in, but I was never on blood thinners.  
But evidently the filter finally clogged so hence the emergency room for the 
first time in several years.

I am so thankful for modern technology, even though I curse it so often when it 
does not do what I want it to do.  I recently liberated myself from having to 
depend on someone else to restart my computer when it decides to go on strike 
by buying a large trackball that I can operate with my reading mouth stick.  
Yeah for small things that make me more independent.  Now if I can just design 
something to push my pillow down to fluff it up at night!

But as we do choose to live so we learn to live with each of our burdens.  I’ve 
tried to remain positive, because there is no other way I can be a part of my 
children and grandchildren and great grandchildren lives if I am not here.  
Great discussion guys.  Made me put on my thinking cap and be glad for what I 
have.  

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 06 April, 2017 6:59 AM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Getting Old

 

I feel like I've been pretty blessed when I hear what you guys have been 
through; what you are currently going through.  I used to wonder a lot about 
phantom pain.  I didn't know if I was actually feeling what you're feeling and 
I have learned long ago to somehow just ignore what was taking place or that 
maybe I'm just not feeling what you are feeling.  I am 38 years post injury and 
I can stop at any moment in the day and think about what I'm feeling throughout 
the paralyzed portion of my body.  I can feel, at this moment, an intense 
tingling in my left calf, it feels like bumblebees living throughout my left 
leg, I've got this weird numb kind of hurt in my right leg, my gut and/or 
abdomen is just uncomfortable, both my feet and toes feel weird at the moment, 
with a somewhat intense tingling feeling.  I could go on and on but I have no 
idea if I learned long ago to just ignore this for the most part and deal with 
life or if you guys are feeling something completely different.  I've started 
having this "restless legs" situation just over the past couple months.  I 
think it's actually been going on longer but it's gotten to the point where it 
causes dysreflexia, so that's not good.  But I've been having one of my 
attendants exercise them some before she leaves and it helps.  It didn't help 
much last night but it's been helping.  I've got the same itchy scalp problem.  
In fact I've even got a couple small scabs on the back of my head where I 
rubbed it raw at times  I really try to resist but obviously I haven't tried 
hard enough.  I don't know, Dudes.  Obviously, getting older affects everyone, 
paralyzed or not.  And I agree that those first number of years were much 
easier in some ways and yet I went through a whole lot of learning the hard way 
about some things that I know to avoid now.  No one said it was going to be 
easy, but you would think being paralyzed was enough and from there you could 
at least not be in pain, deal with sores, just be relaxed instead of stressed 
and not knowing which way to turn with what's going on with your body.  Nope.  
Just doesn't work that way.  For those of us who choose to live after becoming 
paralyzed, it's a hard road.  But we must be getting something out of it to put 
up with all this crap!  Jeff

 

  _  

From: Bryce Willis mailto:lwillis82...@msn.com> >
To: "quad-list@eskimo.com <mailto:quad-list@eskimo.com> " mailto:quad-list@eskimo.com> > 
Sent: Thursday, April 6, 2017 6:42 AM
Subject: Fwd: [QUAD-L] Getting Old

 

Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sore

Re: Fwd: [QUAD-L] Getting Old

[RONALD L PRACHT]

Pain is something personal. No one knows how bad another persons pain is unless 
they have dealt with pain themselves and even still we all handle it different. 
The true judge of pain is..can you sleep, do tasks without 
stopping..basically real life changing pain stops normal daily living. 
Every day at least a handful of times under my breath Im praying "god help me 
deal with this", when it get really bad its "god take me out of here". I never 
cried at all the first half of my injury, but there are times now that when Im 
alone I break down for a couple minutes. That's real pain, when it stops you 
like a brick. To do my handcycle now it takes multiple pain pills and I pay for 
it for days. I could talk to a person 5 minutes and know if they have life 
altering pain by these questions. Doctors use the same technique.
Ron  

On Thursday, April 6, 2017 9:05 AM, Jeffrey Gaede  wrote:
 

 I feel like I've been pretty blessed when I hear what you guys have been 
through; what you are currently going through.  I used to wonder a lot about 
phantom pain.  I didn't know if I was actually feeling what you're feeling and 
I have learned long ago to somehow just ignore what was taking place or that 
maybe I'm just not feeling what you are feeling.  I am 38 years post injury and 
I can stop at any moment in the day and think about what I'm feeling throughout 
the paralyzed portion of my body.  I can feel, at this moment, an intense 
tingling in my left calf, it feels like bumblebees living throughout my left 
leg, I've got this weird numb kind of hurt in my right leg, my gut and/or 
abdomen is just uncomfortable, both my feet and toes feel weird at the moment, 
with a somewhat intense tingling feeling.  I could go on and on but I have no 
idea if I learned long ago to just ignore this for the most part and deal with 
life or if you guys are feeling something completely different.  I've started 
having this "restless legs" situation just over the past couple months.  I 
think it's actually been going on longer but it's gotten to the point where it 
causes dysreflexia, so that's not good.  But I've been having one of my 
attendants exercise them some before she leaves and it helps.  It didn't help 
much last night but it's been helping.  I've got the same itchy scalp problem.  
In fact I've even got a couple small scabs on the back of my head where I 
rubbed it raw at times.  I really try to resist but obviously I haven't tried 
hard enough.  I don't know, Dudes.  Obviously, getting older affects everyone, 
paralyzed or not.  And I agree that those first number of years were much 
easier in some ways and yet I went through a whole lot of learning the hard way 
about some things that I know to avoid now.  No one said it was going to be 
easy, but you would think being paralyzed was enough and from there you could 
at least not be in pain, deal with sores, just be relaxed instead of stressed 
and not knowing which way to turn with what's going on with your body.  Nope.  
Just doesn't work that way.  For those of us who choose to live after becoming 
paralyzed, it's a hard road.  But we must be getting something out of it to put 
up with all this crap!  Jeff

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Thursday, April 6, 2017 6:42 AM
 Subject: Fwd: [QUAD-L] Getting Old
  
Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sores on my 
hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: greg 
Date: April 5, 2017 at 11:50:58 PM EDT
To: 
Subject: [QUAD-L] Getting Old




Yeah, I'm going on 35 years as a quad. The last 10 have gotten worse with pain, 
tightness, etc. And sometimes it's the stupid little things that make life 
harder. My head itching for one. I just got a pet glove brush, I'm cutting it 
out and Velcro on my headrest. Can't get the top of my head which is the worst, 
but the sides itch too. My “Phantom” pains on my butt are driving me nutz. My 
shoulder is my #1 pain now. After every test possible, still can't find the 
knife I know is stuck in there somewhere. I think I have a Gremlin playing 
games with a knife. He comes and goes, leaving no evidence. Xray, MRI, 
CAT-Scan, Nerve Test, Gallstones, Thyroid. Some days I just hold my arm and 
rock. Other days you can poke and prod and its perfect. Moving to AZ and 
“Bagging” my bowel routine are the 2 best things I ever did to help issues. 
Greg ---Yep, Greg all this weird stuff is part of a quads life I thinkI

Re: Fwd: [QUAD-L] Getting Old

[Jeffrey Gaede]

I feel like I've been pretty blessed when I hear what you guys have been 
through; what you are currently going through.  I used to wonder a lot about 
phantom pain.  I didn't know if I was actually feeling what you're feeling and 
I have learned long ago to somehow just ignore what was taking place or that 
maybe I'm just not feeling what you are feeling.  I am 38 years post injury and 
I can stop at any moment in the day and think about what I'm feeling throughout 
the paralyzed portion of my body.  I can feel, at this moment, an intense 
tingling in my left calf, it feels like bumblebees living throughout my left 
leg, I've got this weird numb kind of hurt in my right leg, my gut and/or 
abdomen is just uncomfortable, both my feet and toes feel weird at the moment, 
with a somewhat intense tingling feeling.  I could go on and on but I have no 
idea if I learned long ago to just ignore this for the most part and deal with 
life or if you guys are feeling something completely different.  I've started 
having this "restless legs" situation just over the past couple months.  I 
think it's actually been going on longer but it's gotten to the point where it 
causes dysreflexia, so that's not good.  But I've been having one of my 
attendants exercise them some before she leaves and it helps.  It didn't help 
much last night but it's been helping.  I've got the same itchy scalp problem.  
In fact I've even got a couple small scabs on the back of my head where I 
rubbed it raw at times.  I really try to resist but obviously I haven't tried 
hard enough.  I don't know, Dudes.  Obviously, getting older affects everyone, 
paralyzed or not.  And I agree that those first number of years were much 
easier in some ways and yet I went through a whole lot of learning the hard way 
about some things that I know to avoid now.  No one said it was going to be 
easy, but you would think being paralyzed was enough and from there you could 
at least not be in pain, deal with sores, just be relaxed instead of stressed 
and not knowing which way to turn with what's going on with your body.  Nope.  
Just doesn't work that way.  For those of us who choose to live after becoming 
paralyzed, it's a hard road.  But we must be getting something out of it to put 
up with all this crap!  Jeff

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Thursday, April 6, 2017 6:42 AM
 Subject: Fwd: [QUAD-L] Getting Old
   
Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sores on my 
hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: greg 
Date: April 5, 2017 at 11:50:58 PM EDT
To: 
Subject: [QUAD-L] Getting Old




Yeah, I'm going on 35 years as a quad. The last 10 have gotten worse with pain, 
tightness, etc. And sometimes it's the stupid little things that make life 
harder. My head itching for one. I just got a pet glove brush, I'm cutting it 
out and Velcro on my headrest. Can't get the top of my head which is the worst, 
but the sides itch too. My “Phantom” pains on my butt are driving me nutz. My 
shoulder is my #1 pain now. After every test possible, still can't find the 
knife I know is stuck in there somewhere. I think I have a Gremlin playing 
games with a knife. He comes and goes, leaving no evidence. Xray, MRI, 
CAT-Scan, Nerve Test, Gallstones, Thyroid. Some days I just hold my arm and 
rock. Other days you can poke and prod and its perfect. Moving to AZ and 
“Bagging” my bowel routine are the 2 best things I ever did to help issues. 
Greg ---Yep, Greg all this weird stuff is part of a quads life I thinkI'm 
going on twenty years as a quad, the 1st 10 years were much better for me, as I 
age-i'm now 60 things have slowly seemed to get worse and this rainy up and 
down temperatures here in Missouri cause me even more pains. I have a Syrinx 
and diabetes also that only makes matters worseI usually do much better in 
Spring and Summer as long as i don't get too over-heated then. Dan H***

   

Fwd: [QUAD-L] Getting Old

[Bryce Willis]

Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sores on my 
hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: April 5, 2017 at 11:50:58 PM EDT
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Getting Old

Yeah, I'm going on 35 years as a quad. The last 10 have gotten worse with pain, 
tightness, etc. And sometimes it's the stupid little things that make life 
harder. My head itching for one. I just got a pet glove brush, I'm cutting it 
out and Velcro on my headrest. Can't get the top of my head which is the worst, 
but the sides itch too. My “Phantom” pains on my butt are driving me nutz. My 
shoulder is my #1 pain now. After every test possible, still can't find the 
knife I know is stuck in there somewhere. I think I have a Gremlin playing 
games with a knife. He comes and goes, leaving no evidence. Xray, MRI, 
CAT-Scan, Nerve Test, Gallstones, Thyroid. Some days I just hold my arm and 
rock. Other days you can poke and prod and its perfect.

Moving to AZ and “Bagging” my bowel routine are the 2 best things I ever did to 
help issues.

Greg

---
Yep, Greg all this weird stuff is part of a quads life I thinkI'm going on 
twenty years as a quad, the 1st 10 years were much better for me, as I age-i'm 
now 60 things have slowly seemed to get worse and this rainy up and down 
temperatures here in Missouri cause me even more pains. I have a Syrinx and 
diabetes also that only makes matters worseI usually do much better in 
Spring and Summer as long as i don't get too over-heated then. Dan H***

Re: Fwd: [QUAD-L] Sleepy

[Carolyn Boyles]

I take a lot of Melatonin on top of all of the medication and still 
don't sleep well.


C

RE: Fwd: [QUAD-L] Sleepy

[Kay at Amplified Agility]

Not only REM sleep but also the slow wave non-REM “deep sleep” we all need…it’s 
the slow wave deep sleep that allows the brain to recover from the day and all 
the activity…in addition to other things happening…

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Wednesday, March 29, 2017 6:15 PM
To: Bryce Willis; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] Sleepy

 

I take generic Valium for muscle spasms and was told years ago that it messes 
with  REM sleep.  Anyone else know about that?

 

  _  

From: Bryce Willis 
To: "quad-list@eskimo.com"  
Sent: Wednesday, March 29, 2017 6:09 PM
Subject: Fwd: [QUAD-L] Sleepy

 

Do drinks like Ensure help? What about Vitamins? I know I have a lousy diet, 
but if I eat very much my stomach hurts. I can eat a big hamburger and suffer 
for days.

Sent from my iPad


Begin forwarded message:

Resent-From: 
From: "Carrie Pinter" 
Date: March 29, 2017 at 8:21:04 PM EDT
To: "'Larry Willis'" , 
Subject: RE: [QUAD-L] Sleepy

Yeah, it’s probably safe to say that generally, quads do not get restful sleep 
at night, which affects everything else, physically, mentally, and ultimately, 
emotionally.

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, March 29, 2017 12:43 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Sleepy

 

Same here. I stay tired. Some days worse than others.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Jeffrey Gaede 
Date: March 28, 2017 at 10:34:50 PM EDT
To: greg , "quad-list@eskimo.com" 
Subject: Re: [QUAD-L] Sleepy
Reply-To: Jeffrey Gaede 

I rarely feel rested for any decent length of time. I think it' a quad thing

 


  _  


From: greg 
To: quad-list@eskimo.com 
Sent: Tuesday, March 28, 2017 7:30 PM
Subject: [QUAD-L] Sleepy

 

Ever have those days were no matter what you do you can not stay awake. It's 
like I took a box of sleeping pills. Fall asleep drinking coffee. Some days its 
so bad, I wonder if my time-release pain meds were cracked and it all came out 
at once.

 

Greg

 

 

Re: Fwd: [QUAD-L] Sleepy

[Jeffrey Gaede]

I take generic Valium for muscle spasms and was told years ago that it messes 
with  REM sleep.  Anyone else know about that?

  From: Bryce Willis 
 To: "quad-list@eskimo.com"  
 Sent: Wednesday, March 29, 2017 6:09 PM
 Subject: Fwd: [QUAD-L] Sleepy
   
Do drinks like Ensure help? What about Vitamins? I know I have a lousy diet, 
but if I eat very much my stomach hurts. I can eat a big hamburger and suffer 
for days.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: "Carrie Pinter" 
Date: March 29, 2017 at 8:21:04 PM EDT
To: "'Larry Willis'" , 
Subject: RE: [QUAD-L] Sleepy




#yiv1432934735 #yiv1432934735 -- _filtered #yiv1432934735 
{font-family:Helvetica;panose-1:2 11 6 4 2 2 2 2 2 4;} _filtered #yiv1432934735 
{panose-1:2 4 5 3 5 4 6 3 2 4;} _filtered #yiv1432934735 
{font-family:Calibri;panose-1:2 15 5 2 2 2 4 3 2 4;}#yiv1432934735 
#yiv1432934735 p.yiv1432934735MsoNormal, #yiv1432934735 
li.yiv1432934735MsoNormal, #yiv1432934735 div.yiv1432934735MsoNormal 
{margin:0in;margin-bottom:.0001pt;font-size:12.0pt;}#yiv1432934735 a:link, 
#yiv1432934735 span.yiv1432934735MsoHyperlink 
{color:blue;text-decoration:underline;}#yiv1432934735 a:visited, #yiv1432934735 
span.yiv1432934735MsoHyperlinkFollowed 
{color:purple;text-decoration:underline;}#yiv1432934735 
p.yiv1432934735msonormal0, #yiv1432934735 li.yiv1432934735msonormal0, 
#yiv1432934735 div.yiv1432934735msonormal0 
{margin-right:0in;margin-left:0in;font-size:12.0pt;}#yiv1432934735 
span.yiv1432934735EmailStyle18 {color:windowtext;}#yiv1432934735 
.yiv1432934735MsoChpDefault {font-size:10.0pt;} _filtered #yiv1432934735 
{margin:1.0in 1.0in 1.0in 1.0in;}#yiv1432934735 div.yiv1432934735WordSection1 
{}#yiv1432934735 Yeah, it’s probably safe to say that generally, quads do not 
get restful sleep at night, which affects everything else, physically, 
mentally, and ultimately, emotionally.    From: Larry Willis 
[mailto:lwillis82...@gmail.com]
Sent: Wednesday, March 29, 2017 12:43 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Sleepy    Same here. I stay tired. Some days worse than 
others.

Sent from my iPad 
Begin forwarded message: 
Resent-From: quad-list@eskimo.com
From: Jeffrey Gaede 
Date: March 28, 2017 at 10:34:50 PM EDT
To: greg , "quad-list@eskimo.com" 
Subject: Re: [QUAD-L] Sleepy
Reply-To: Jeffrey Gaede  

I rarely feel rested for any decent length of time. I think it' a quad thing    
From: greg 
To: quad-list@eskimo.com 
Sent: Tuesday, March 28, 2017 7:30 PM
Subject: [QUAD-L] Sleepy    Ever have those days were no matter what you do you 
can not stay awake. It's like I took a box of sleeping pills. Fall asleep 
drinking coffee. Some days its so bad, I wonder if my time-release pain meds 
were cracked and it all came out at once.   Greg    


   

Fwd: [QUAD-L] Sleepy

[Bryce Willis]

Do drinks like Ensure help? What about Vitamins? I know I have a lousy diet, 
but if I eat very much my stomach hurts. I can eat a big hamburger and suffer 
for days.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: "Carrie Pinter" mailto:cpinte...@comcast.net>>
Date: March 29, 2017 at 8:21:04 PM EDT
To: "'Larry Willis'" mailto:lwillis82...@gmail.com>>, 
mailto:quad-list@eskimo.com>>
Subject: RE: [QUAD-L] Sleepy

Yeah, it’s probably safe to say that generally, quads do not get restful sleep 
at night, which affects everything else, physically, mentally, and ultimately, 
emotionally.

From: Larry Willis [mailto:lwillis82...@gmail.com]
Sent: Wednesday, March 29, 2017 12:43 PM
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: Fwd: [QUAD-L] Sleepy

Same here. I stay tired. Some days worse than others.

Sent from my iPad

Begin forwarded message:
Resent-From: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Date: March 28, 2017 at 10:34:50 PM EDT
To: greg mailto:g...@eskimo.com>>, 
"quad-list@eskimo.com<mailto:quad-list@eskimo.com>" 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] Sleepy
Reply-To: Jeffrey Gaede mailto:jsga...@yahoo.com>>
I rarely feel rested for any decent length of time. I think it' a quad thing


From: greg mailto:g...@eskimo.com>>
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Sent: Tuesday, March 28, 2017 7:30 PM
Subject: [QUAD-L] Sleepy

Ever have those days were no matter what you do you can not stay awake. It's 
like I took a box of sleeping pills. Fall asleep drinking coffee. Some days its 
so bad, I wonder if my time-release pain meds were cracked and it all came out 
at once.

Greg

Fwd: [QUAD-L] Sleepy

[Larry Willis]

Same here. I stay tired. Some days worse than others.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Jeffrey Gaede 
> Date: March 28, 2017 at 10:34:50 PM EDT
> To: greg , "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] Sleepy
> Reply-To: Jeffrey Gaede 
> 
> I rarely feel rested for any decent length of time. I think it' a quad thing
> 
> 
> From: greg 
> To: quad-list@eskimo.com 
> Sent: Tuesday, March 28, 2017 7:30 PM
> Subject: [QUAD-L] Sleepy
> 
> Ever have those days were no matter what you do you can not stay awake. It's 
> like I took a box of sleeping pills. Fall asleep drinking coffee. Some days 
> its so bad, I wonder if my time-release pain meds were cracked and it all 
> came out at once.
>  
> Greg
> 
> 

Fwd: [QUAD-L] Power wheelchair getting stuck on oriental rug.

[Bryce Willis]

Try backing onto the rug and while you are on it. Works for me.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: March 10, 2017 at 12:35:26 PM EST
To: mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] Power wheelchair getting stuck on oriental rug.

Same issue..I have wood floors and it happens most on a rug by the front door, 
because I have to turn a bit to open it. I double back taped a rubber / 
plastic, chair mat for office rug / chairs. A lot have spikes to they don't 
move, but you can find big flat ones. If you don't mind a slight bump, a 1/8 
sheet of plywood works too. You don't see it much.



> We have hardwood floors, and in one room we have an oriental rug.
> At first I was able to drive my chair into the room without any
> problems. But lately, my wheelchair seems to be grabbing the
> Oriental rug, and the rug and up wrapped around my drive wheels.
>
> Maybe it is because the rug is getting older. Maybe it is because
> I'm driving a different wheelchair. But I'm wondering, has anyone
> else had this problem? I'm considering buying one of those clear
> plastic mats people buy to put under their desks in office spaces,
> and to use that as a sort of a pathway for bridge onto the rug.
>
> Does anyone have any experience or suggestions or ideas?
>
> Thanks so much, and take care,
>
> Dave Krehbiel

Fwd: [QUAD-L] Wall Damage From Chair

[Larry Willis]

Same here. Everything in my house has dents, holes, and scratches. Interior of 
my van is the same way. I tend to destroy my toes in the process. Can't wear 
shoes anymore.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Jeffrey Gaede 
> Date: March 7, 2017 at 11:17:48 AM EST
> To: greg , "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] Wall Damage From Chair
> Reply-To: Jeffrey Gaede 
> 
> Let's put it this way, serious construction work has and will take place in 
> my room, doorway and nearby hallway before selling my home :-)
> 
> Jeff
> From: greg 
> To: quad-list@eskimo.com 
> Sent: Tuesday, March 7, 2017 7:38 AM
> Subject: [QUAD-L] Wall Damage From Chair
> 
> After a few years in your house, how do you walls, doors, look from chair 
> damage? I've been so careful not to crash, scrape, bang, into things. After 
> 12 years here, things still look pretty good. I have a tight 2 turns to get 
> into my room, No issues there. Coming out of my room I have 1 big ding on a 
> counter corner, and1 big ding on corner of the frig. Both from backing up. My 
> living room has a step down, a friend built an oak ramp. I have some scrapes 
> on the ramp from when my footrest is down to low. That's it inside, but my 
> front door is trashed. I push it open with my footrest, often my joystick box 
> scrapes it as it closes. I put a brass plate on the bottom, but my footrest 
> often misses it. Oh, the biggest damage inside is the wall by my bed. I back 
> in and ding the wall a lot, plus when I to transfer they lift my armrest back 
> and it hits the wall. A few holes there now. I now have a piece of plywood 
> there.
> Greg
> 
> 

Fwd: [QUAD-L] My package was stolen!

[Larry Willis]

Well, that's a load of manure. Maybe you and neighbors could put up an 
apartment style box where each of you has a lock box. Mailman might be pissed, 
but hey, thievery is not acceptable. Good luck!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: jume9...@comcast.net 
> Date: November 30, 2016 at 1:39:23 PM EST
> To: quad-list@eskimo.com 
> Subject: Re: [QUAD-L] My package was stolen!
> 
> It helps to use Amazon lockers, there might be one near you. I live in a 
> fairly nice neighborhood but we have had similar problems.
> 
> Meredith
> 
> Sent from my LG Mobile
> 
> -- Original message--
> From: Johnny Cammon
> Date: Wed, Nov 30, 2016 5:17 AM
> To: quad-list@eskimo.com;
> Subject:[QUAD-L] My package was stolen!
> 
> Hello quadriplegics? Do I have some news for you guys, okay I ordered the 
> echo.and a Air mattress. They knocked but no one was able to get to the door 
> in time so tell me why Whoever left it on the porch. I had Ms. the first time 
> they  delivered. And email was sent to me and I follow the email to 
> reschedule the delivery they would not let me pick the next day so I peaked 
> November 30 to be delivered. So I wasn't expecting it to come anyway. Someone 
> came on the porch took the stuff out of the box and left the box on the 
> porch. So now I am contacting Amazon and see if I can get some help.. 
> Hopefully I heard they will replace it.

Fwd: [QUAD-L] Raining

[Larry Willis]

We keep our thermostat on 72 in the day and 67 at night. And I keep my butt 
parked by a heater and under the covers! My wife says I keep it burning up in 
here.   I fear it's another quad thing.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: February 19, 2017 at 7:44:27 PM EST
> To: Quad-list Post 
> Subject: Re: [QUAD-L] Raining
> Reply-To: RONALD L PRACHT 
> 
> Come on down to Missouri(Misery)where a quad has to hibernate between 
> Nov-April. Every year I think Im going to be tough, but cant fight below 30 
> in my old quad years.
> 
> Ron
> 
> 
> On Sunday, February 19, 2017 5:19 PM, greg  wrote:
> 
> 
> I hate these rainy days. I get so sore.
> Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
> rather 60 and sunny than 80 and clowdy.
> I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
> Hot Coco, Coffees, Cider.
> rain rain go away...
> Greg
> 
> 

Fwd: [QUAD-L] Raining

[Larry Willis]

It is in the sixties and sunny here in old Kaintuck. February has been 
unbelievably warm this yearno snow, no floods, no storms of any kind! A 
year ago we had over a foot of snow about now. Global warming or coincidence? 
Hm.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: February 19, 2017 at 7:44:27 PM EST
> To: Quad-list Post 
> Subject: Re: [QUAD-L] Raining
> Reply-To: RONALD L PRACHT 
> 
> Come on down to Missouri(Misery)where a quad has to hibernate between 
> Nov-April. Every year I think Im going to be tough, but cant fight below 30 
> in my old quad years.
> 
> Ron
> 
> 
> On Sunday, February 19, 2017 5:19 PM, greg  wrote:
> 
> 
> I hate these rainy days. I get so sore.
> Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
> rather 60 and sunny than 80 and clowdy.
> I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
> Hot Coco, Coffees, Cider.
> rain rain go away...
> Greg
> 
> 

Re: Fwd: [QUAD-L] Cipro Warning

[RONALD L PRACHT]

If that's the case then they need to offer an alternative b4 a person is peeing 
razorblades and bleeding . Ive never been told I had an option. 

On Friday, February 10, 2017 9:24 PM, greg  wrote:
 

 #yiv5660032499 #yiv5660032499 --body{font-size:14pt;}#yiv5660032499 
LI{display:list-item;margin:0.00in;}#yiv5660032499 
p{display:block;margin:0.00in;}#yiv5660032499 body{}#yiv5660032499 The problem 
with Cipro and Levaquin are not a super bug, but blowing up your heart. 
etc.Reading the numbers is scary. Joints, muscles, etc.Sounds like you can use 
it fine many times, then bam it happens.Greg

> I take cipro 1-2 times a year as a defense to a uti that presents> as at 
> least some blood in the urine. Once every few years the first> round of cipro 
> isn't enough and it gets stepped up to something> stronger. These doctors 
> have been giving people antibiotics every> time they have a discomfort, even 
> if its viral which anyone with> any sense knows a virus has to run its 
> course. The worry is a super> bug will come from to many antibiotics on the 
> average whiner. I> personally don't believe anyone is going to have a problem 
> taking> antibiotics in moderation. Sometimes doctors wont give them even> 
> when it makes sense to. In those cases just go to the ER or the> walk in 
> places if its during the week. In my opinion a quad that > cant weigh a 
> doctors advise probally wont live long.>>> Ron>>> On Friday, February 10, 
> 2017 4:47 PM, greg  wrote:>>> Me too, I took it anyway.> I'm 
> alergic to Macrobid, so not many option that work for me. Greg Well 
> that's wonderful. Cipro and levaquin have always been my go->> to drugs. 
> Larry WillisRetired and proud of it>> Begin forwarded message:>>> 
> Resent-From: quad-list@eskimo.com>>> From: greg >>> Date: 
> February 9, 2017 at 10:58:35 PM EST>>> To: >>> Subject: 
> [QUAD-L] Cipro Warning> Just got a UTI. I always used Cipro, but they 
> have a new danger>>> warning. So importent, its called a "Black Box" 
> waning>> FDA Says Risks May Outweigh Benefits for Antibiotics 
> Levaquin,>> Cipro Posted May 16th, 2016    by Michelle Llamas & filed under>> 
> FDA News & Recalls.  >> Did you experience aortic complications after 
> taking>> fluoroquinolones? On May 12, 2016, the U.S. Food and Drug 
> Administration announced>> it is requiring a stronger black box warning for 
> common, popular>> antibiotics called fluoroquinolones that include Levaquin>> 
> (levofloxacin), Cipro (ciprofloxacin) and Avelox (moxifloxacin) —>> 
> medications taken by more than 26 million Americans each year. "The U.S. 
> Food and Drug Administration is advising that the>> serious side effects 
> associated with fluoroquinolone>> antibacterial drugs generally outweigh the 
> benefits for patients>> with sinusitis, bronchitis, and uncomplicated urinary 
> tract>> infections who have other treatment options," the FDA said in a>> 
> Drug Safety Communication. "For patients with these conditions,>> 
> fluoroquinolones should be reserved for those who do not have>> alternative 
> treatment options." The agency's action comes after its FDA Advisory 
> Committee>> meeting in November 2015. This is not the first warning for 
> these>> drugs released by the FDA. It previously added boxed warnings in>> 
> 2008 for tendon rupture and tendinitis and again in 2013 for>> permanent 
> nerve damage called peripheral neuropathy. The new boxed warning advises 
> patients and doctors that these>> antibiotics may cause potentially permanent 
> damage to muscles,>> tendons, joints, nerves and the central nervous system. 
> In>> patients with minor infections such as sinusitis and bronchitis,>> the 
> risk outweighs the benefits, the FDA panel found. In these>> cases, other 
> treatments are often available and the agency>> strongly discourages doctors 
> from prescribing them.

   

Re: Fwd: [QUAD-L] Cipro Warning

[greg]

The problem with Cipro and Levaquin are not a super bug, but blowing up your heart. etc.
Reading the numbers is scary. Joints, muscles, etc.
Sounds like you can use it fine many times, then bam it happens.
Greg
> I take cipro 1-2 times a year as a defense to a uti that presents
> as at least some blood in the urine. Once every few years the first
> round of cipro isn't enough and it gets stepped up to something
> stronger. These doctors have been giving people antibiotics every
> time they have a discomfort, even if its viral which anyone with
> any sense knows a virus has to run its course. The worry is a super
> bug will come from to many antibiotics on the average whiner. I
> personally don't believe anyone is going to have a problem taking
> antibiotics in moderation. Sometimes doctors wont give them even
> when it makes sense to. In those cases just go to the ER or the
> walk in places if its during the week. In my opinion a quad that 
> cant weigh a doctors advise probally wont live long.
>
>
> Ron
>
>
> On Friday, February 10, 2017 4:47 PM, greg  wrote:
>
>
> Me too, I took it anyway.
> I'm alergic to Macrobid, so not many option that work for me. Greg
>
>
>> Well that's wonderful. Cipro and levaquin have always been my go-
>> to drugs.
>>
>> Larry WillisRetired and proud of it
>>
>>
>> Begin forwarded message:
>>
>>
>>> Resent-From: quad-list@eskimo.com
>>> From: greg 
>>> Date: February 9, 2017 at 10:58:35 PM EST
>>> To: 
>>> Subject: [QUAD-L] Cipro Warning
>>>
>>>
>>> Just got a UTI. I always used Cipro, but they have a new danger
>>> warning. So importent, its called a "Black Box" waning
>>
>>
>> FDA Says Risks May Outweigh Benefits for Antibiotics Levaquin,
>> Cipro Posted May 16th, 2016    by Michelle Llamas & filed under
>> FDA News & Recalls.  
>> Did you experience aortic complications after taking
>> fluoroquinolones?
>>
>> On May 12, 2016, the U.S. Food and Drug Administration announced
>> it is requiring a stronger black box warning for common, popular
>> antibiotics called fluoroquinolones that include Levaquin
>> (levofloxacin), Cipro (ciprofloxacin) and Avelox (moxifloxacin) —
>> medications taken by more than 26 million Americans each year.
>>
>> "The U.S. Food and Drug Administration is advising that the
>> serious side effects associated with fluoroquinolone
>> antibacterial drugs generally outweigh the benefits for patients
>> with sinusitis, bronchitis, and uncomplicated urinary tract
>> infections who have other treatment options," the FDA said in a
>> Drug Safety Communication. "For patients with these conditions,
>> fluoroquinolones should be reserved for those who do not have
>> alternative treatment options."
>>
>> The agency's action comes after its FDA Advisory Committee
>> meeting in November 2015. This is not the first warning for these
>> drugs released by the FDA. It previously added boxed warnings in
>> 2008 for tendon rupture and tendinitis and again in 2013 for
>> permanent nerve damage called peripheral neuropathy.
>>
>> The new boxed warning advises patients and doctors that these
>> antibiotics may cause potentially permanent damage to muscles,
>> tendons, joints, nerves and the central nervous system. In
>> patients with minor infections such as sinusitis and bronchitis,
>> the risk outweighs the benefits, the FDA panel found. In these
>> cases, other treatments are often available and the agency
>> strongly discourages doctors from prescribing them.

Re: Fwd: [QUAD-L] Cipro Warning

[RONALD L PRACHT]

I take cipro 1-2 times a year as a defense to a uti that presents as at least 
some blood in the urine. Once every few years the first round of cipro isn't 
enough and it gets stepped up to something stronger. These doctors have been 
giving people antibiotics every time they have a discomfort, even if its viral 
which anyone with any sense knows a virus has to run its course. The worry is a 
super bug will come from to many antibiotics on the average whiner. I 
personally don't believe anyone is going to have a problem taking antibiotics 
in moderation. Sometimes doctors wont give them even when it makes sense to. In 
those cases just go to the ER or the walk in places if its during the week. In 
my opinion a quad that cant weigh a doctors advise probally wont live long.
Ron 

On Friday, February 10, 2017 4:47 PM, greg  wrote:
 

 #yiv4794151013 #yiv4794151013 --body{font-size:14pt;}#yiv4794151013 
LI{display:list-item;margin:0.00in;}#yiv4794151013 
p{display:block;margin:0.00in;}#yiv4794151013 body{}#yiv4794151013 Me too, I 
took it anyway.I'm alergic to Macrobid, so not many option that work for me.Greg

> Well that's wonderful. Cipro and levaquin have always been my go-to> drugs.>> 
> Larry WillisRetired and proud of it>>> Begin forwarded message: 
> Resent-From: quad-list@eskimo.com>> From: greg >> Date: 
> February 9, 2017 at 10:58:35 PM EST>> To: >> Subject: 
> [QUAD-L] Cipro Warning>> Just got a UTI. I always used Cipro, but they 
> have a new danger>> warning. So importent, its called a "Black Box" 
> waning>>> FDA Says Risks May Outweigh Benefits for Antibiotics 
> Levaquin,> Cipro Posted May 16th, 2016    by Michelle Llamas & filed under 
> FDA> News & Recalls.  > Did you experience aortic complications after taking> 
> fluoroquinolones?>> On May 12, 2016, the U.S. Food and Drug Administration 
> announced it> is requiring a stronger black box warning for common, popular> 
> antibiotics called fluoroquinolones that include Levaquin> (levofloxacin), 
> Cipro (ciprofloxacin) and Avelox (moxifloxacin) —> medications taken by more 
> than 26 million Americans each year.>> "The U.S. Food and Drug Administration 
> is advising that the serious> side effects associated with fluoroquinolone 
> antibacterial drugs> generally outweigh the benefits for patients with 
> sinusitis,> bronchitis, and uncomplicated urinary tract infections who have> 
> other treatment options," the FDA said in a Drug Safety> Communication. "For 
> patients with these conditions,> fluoroquinolones should be reserved for 
> those who do not have> alternative treatment options.">> The agency's action 
> comes after its FDA Advisory Committee meeting> in November 2015. This is not 
> the first warning for these drugs> released by the FDA. It previously added 
> boxed warnings in 2008 for> tendon rupture and tendinitis and again in 2013 
> for permanent nerve> damage called peripheral neuropathy.>> The new boxed 
> warning advises patients and doctors that these> antibiotics may cause 
> potentially permanent damage to muscles,> tendons, joints, nerves and the 
> central nervous system. In patients> with minor infections such as sinusitis 
> and bronchitis, the risk> outweighs the benefits, the FDA panel found. In 
> these cases, other> treatments are often available and the agency strongly 
> discourages> doctors from prescribing them.

   

Re: Fwd: [QUAD-L] Cipro Warning

[greg]

Me too, I took it anyway.
I'm alergic to Macrobid, so not many option that work for me.
Greg
> Well that's wonderful. Cipro and levaquin have always been my go-to
> drugs.
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: greg 
>> Date: February 9, 2017 at 10:58:35 PM EST
>> To: 
>> Subject: [QUAD-L] Cipro Warning
>>
>>
>> Just got a UTI. I always used Cipro, but they have a new danger
>> warning. So importent, its called a "Black Box" waning
>
>
> FDA Says Risks May Outweigh Benefits for Antibiotics Levaquin,
> Cipro Posted May 16th, 2016    by Michelle Llamas & filed under FDA
> News & Recalls.  
> Did you experience aortic complications after taking
> fluoroquinolones?
>
> On May 12, 2016, the U.S. Food and Drug Administration announced it
> is requiring a stronger black box warning for common, popular
> antibiotics called fluoroquinolones that include Levaquin
> (levofloxacin), Cipro (ciprofloxacin) and Avelox (moxifloxacin) —
> medications taken by more than 26 million Americans each year.
>
> "The U.S. Food and Drug Administration is advising that the serious
> side effects associated with fluoroquinolone antibacterial drugs
> generally outweigh the benefits for patients with sinusitis,
> bronchitis, and uncomplicated urinary tract infections who have
> other treatment options," the FDA said in a Drug Safety
> Communication. "For patients with these conditions,
> fluoroquinolones should be reserved for those who do not have
> alternative treatment options."
>
> The agency's action comes after its FDA Advisory Committee meeting
> in November 2015. This is not the first warning for these drugs
> released by the FDA. It previously added boxed warnings in 2008 for
> tendon rupture and tendinitis and again in 2013 for permanent nerve
> damage called peripheral neuropathy.
>
> The new boxed warning advises patients and doctors that these
> antibiotics may cause potentially permanent damage to muscles,
> tendons, joints, nerves and the central nervous system. In patients
> with minor infections such as sinusitis and bronchitis, the risk
> outweighs the benefits, the FDA panel found. In these cases, other
> treatments are often available and the agency strongly discourages
> doctors from prescribing them.

Fwd: [QUAD-L] Cipro Warning

[Larry Willis]

Well that's wonderful. Cipro and levaquin have always been my go-to drugs.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: February 9, 2017 at 10:58:35 PM EST
> To: 
> Subject: [QUAD-L] Cipro Warning
> 
> Just got a UTI. I always used Cipro, but they have a new danger warning. So 
> importent, its called a "Black Box" waning
>  
>  
>  
> FDA Says Risks May Outweigh Benefits for Antibiotics Levaquin, Cipro
> Posted May 16th, 2016by Michelle Llamas & filed under FDA News & Recalls.
>  
> Did you experience aortic complications after taking fluoroquinolones?
>  
> On May 12, 2016, the U.S. Food and Drug Administration announced it is 
> requiring a stronger black box warning for common, popular antibiotics called 
> fluoroquinolones that include Levaquin (levofloxacin), Cipro (ciprofloxacin) 
> and Avelox (moxifloxacin) — medications taken by more than 26 million 
> Americans each year.
>  
> “The U.S. Food and Drug Administration is advising that the serious side 
> effects associated with fluoroquinolone antibacterial drugs generally 
> outweigh the benefits for patients with sinusitis, bronchitis, and 
> uncomplicated urinary tract infections who have other treatment options,” the 
> FDA said in a Drug Safety Communication. “For patients with these conditions, 
> fluoroquinolones should be reserved for those who do not have alternative 
> treatment options.”
>  
> The agency’s action comes after its FDA Advisory Committee meeting in 
> November 2015. This is not the first warning for these drugs released by the 
> FDA. It previously added boxed warnings in 2008 for tendon rupture and 
> tendinitis and again in 2013 for permanent nerve damage called peripheral 
> neuropathy.
>  
> The new boxed warning advises patients and doctors that these antibiotics may 
> cause potentially permanent damage to muscles, tendons, joints, nerves and 
> the central nervous system. In patients with minor infections such as 
> sinusitis and bronchitis, the risk outweighs the benefits, the FDA panel 
> found. In these cases, other treatments are often available and the agency 
> strongly discourages doctors from prescribing them.
>  
>  

Fwd: [QUAD-L] Rehab/housework

[Larry Willis]

None. I couldn't even feed myself.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Bobbie Humphreys 
> Date: January 28, 2017 at 5:09:05 PM EST
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Rehab/housework
> 
> When you al were in rehab, how much training did you get for doing housework, 
> like cooking 🍳 laundry, vacuuming, making a bed or grocery shopping 🛒?
> I had many classes, in OT, on how to do all of the above when I was at 
> Kessler Insitute.
> Bobbie 
> 
> "Be the change you want to see in the world". Gandhi

Fwd: [QUAD-L] Why keep pushing on

[Larry Willis]

Notice my m key went missing.
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: January 27, 2017 1:35:43 PM EST
> To: Quad-list Post 
> Subject: Re: [QUAD-L] Why keep pushing on
> Reply-To: RONALD L PRACHT 
> 
> What it comes down to is there is no option other than suicide to get out of 
> it. What has helped me is the realization that life is short for everybody 
> and in 50 years nobody will know the difference who was a quad or not. Life 
> is a gift, even as a quad and each of us have to find our own reasons. I dont 
> know if you have heard the song by garth brooks called the dance, but it 
> talks about lifes pain and gifts. In order to get out of the pain you would 
> of had to miss the dance. Think about all the special things you have done in 
> your life. We have to struggle harder to find purpose each day that the 
> average person thats for sure. I think a quad knows and appreciates the 
> little things life gives us more. Listen to the song and maybe that can help.
> 
> 
> On Friday, January 27, 2017 11:57 AM, Paul Jacobson  
> wrote:
> 
> 
> love
>  
> From: Jeffrey Gaede
> Sent: Thursday, January 26, 2017 6:34 PM
> To: Quad-list Post
> Subject: [QUAD-L] Why keep pushing on
>  
> Why do people keep pushing on? I mean it's bad enough to be substantially 
> disabled, but it doesn't stop there. People, in general, don't want to be 
> around you. It's difficult to go places and do things; average things that 
> most people do all the time. And you know from experience that illnesses and 
> such can pop up at any moment, much more easily than the average person. You 
> try like hell to avoid being dependent on the government but it's nearly 
> impossible, even if you work full-time. That means you constantly have 
> someone with which to answer. Someone with their own rules, who can't begin 
> to understand you and what you go through on a daily basis. I could see where 
> if you were recently disabled then maybe you haven't been through enough to 
> realize what life is going to throw your way, but what about those of us that 
> have been around a while? What keeps you pushing on… Jeff
> 
> 
> From: greg 
> To: quad-list@eskimo.com 
> Sent: Thursday, January 26, 2017 6:30 PM
> Subject: [QUAD-L] Bd
>  
> I hate going to bed. I freeze the first half hour no matter how warm I get my 
> room.
> Shake like I'm convulsing.
> I'd stay in my chair 24/7 if I could.
> Plus I just hate not being able to move around.
> Greg
> 
> 
> 
> 

Fwd: [QUAD-L] Why keep pushing on

[Larry Willis]

My  family is what keeps ne going. Without then I would be ready to go. 46 
years as a quad is enough.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: January 27, 2017 1:35:43 PM EST
> To: Quad-list Post 
> Subject: Re: [QUAD-L] Why keep pushing on
> Reply-To: RONALD L PRACHT 
> 
> What it comes down to is there is no option other than suicide to get out of 
> it. What has helped me is the realization that life is short for everybody 
> and in 50 years nobody will know the difference who was a quad or not. Life 
> is a gift, even as a quad and each of us have to find our own reasons. I dont 
> know if you have heard the song by garth brooks called the dance, but it 
> talks about lifes pain and gifts. In order to get out of the pain you would 
> of had to miss the dance. Think about all the special things you have done in 
> your life. We have to struggle harder to find purpose each day that the 
> average person thats for sure. I think a quad knows and appreciates the 
> little things life gives us more. Listen to the song and maybe that can help.
> 
> 
> On Friday, January 27, 2017 11:57 AM, Paul Jacobson  
> wrote:
> 
> 
> love
>  
> From: Jeffrey Gaede
> Sent: Thursday, January 26, 2017 6:34 PM
> To: Quad-list Post
> Subject: [QUAD-L] Why keep pushing on
>  
> Why do people keep pushing on? I mean it's bad enough to be substantially 
> disabled, but it doesn't stop there. People, in general, don't want to be 
> around you. It's difficult to go places and do things; average things that 
> most people do all the time. And you know from experience that illnesses and 
> such can pop up at any moment, much more easily than the average person. You 
> try like hell to avoid being dependent on the government but it's nearly 
> impossible, even if you work full-time. That means you constantly have 
> someone with which to answer. Someone with their own rules, who can't begin 
> to understand you and what you go through on a daily basis. I could see where 
> if you were recently disabled then maybe you haven't been through enough to 
> realize what life is going to throw your way, but what about those of us that 
> have been around a while? What keeps you pushing on… Jeff
> 
> 
> From: greg 
> To: quad-list@eskimo.com 
> Sent: Thursday, January 26, 2017 6:30 PM
> Subject: [QUAD-L] Bd
>  
> I hate going to bed. I freeze the first half hour no matter how warm I get my 
> room.
> Shake like I'm convulsing.
> I'd stay in my chair 24/7 if I could.
> Plus I just hate not being able to move around.
> Greg
> 
> 
> 
> 

Fwd: [QUAD-L] Bd

[Bryce Willis]

I hear you, guys. I shake and shiver and then wake up later burning up. Must be 
a common quad ailment. I wake up every morning in a miserable cold sweat. Fun 
times.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: greg mailto:g...@eskimo.com>>
Date: January 26, 2017 at 9:30:59 PM EST
To: mailto:quad-list@eskimo.com>>
Subject: [QUAD-L] Bd

I hate going to bed. I freeze the first half hour no matter how warm I get my 
room.
Shake like I'm convulsing.
I'd stay in my chair 24/7 if I could.
Plus I just hate not being able to move around.
Greg

Fwd: [QUAD-L] Electric toothbrush

[Larry Willis]

Same  as Derrick. Oral B.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Fragile 
> Date: January 12, 2017 at 11:47:04 AM EST
> To: Bobbie Humphreys , quad-list 
> 
> Subject: Re: [QUAD-L] Electric toothbrush
> 
> Bobbie, this is what I use to have a toothbrush:
> http://www.accesstr.com/Pool-Cue-Cuff-p/9462.htm
> 
>> On Tue, Jan 10, 2017 at 7:24 PM, Bobbie Humphreys 
>>  wrote:
>> Those of you who have an electric toothbrush, how do you hold it?
>> 
>> If you could please send me a link I would appreciate it a lot.
>> Bobbie
>> 
>> "You must fail in order to succeed"
>> 
> 

Fwd: [QUAD-L] Marie

[Larry Willis]

Guys,the Marie I am talking about started the SCIC Yahoo group years ago. It 
was obviously for caregivers. I dontknowif she was disabled or not.

Larry Willis
Retired and proud of it


Begin forwarded message:

> From: Lori Michaelson 
> Date: January 5, 2017 at 2:06:17 PM EST
> To: Larry Willis 
> Subject: Re: [QUAD-L] Fwd: 20% Off in Stores - New from Oprah Winfrey
> 
> Larry... I am writing off list but I do not remember any "Marie" from this 
> list. I only know the founder of the SCIC listserv [Spinal Cord Injury 
> Caregivers listserv] was a "Marie." Is that who passed away?
> 
>> On Tue, Jan 3, 2017 at 8:37 PM, Larry Willis  wrote:
>> Oh my, I never considered that she had passed away. She will be missed. If I 
>> am not being too personal,
>>  what are the details? How old was she? I do not mean to be unfeeling or 
>> callous. It is just many of us 
>> are in unexplored territory of aging with an SCI. My love and prayers to her 
>> family and friends.
>> 
>> Sent from my iPad
>> 
>> Begin forwarded message:
>> 
>>> From: "Barnes & Noble" 
>>> Date: January 3, 2017 at 3:04:26 PM EST
>>> To: lwillis82...@gmail.com
>>> Subject: 20% Off in Stores - New from Oprah Winfrey
>>> Reply-To: "barnesandno...@mail.barnesandnoble.com" 
>>> 
>>> 
>>> 
>>> Explore Top Books from Today's Most Exciting Writers.
>>> View In Browser
>>>  
>>>   Become a Member and Get 40% Off Hardcover Bestsellers in Stores – Every 
>>> Day!   Join Now >
>>> 
>>> 
>>> 
>>>  
>>>  
>>>  
>>>  
>>>  
>>>  
>>>  
>>> 
>>> 
>>>
>>> 
>>> Add us to your address book to ensure delivery to your inbox:
>>> barnesandno...@mail.barnesandnoble.com
>>> All offers are subject to availability, while supplies last. Prices are 
>>> subject to change.
>>> Unsubscribe | Privacy Policy
>>> © 2017 Barnes & Noble. All Rights Reserved.
>>> This email is an advertisement from Barnes & Noble, Inc.
>>> 122 Fifth Avenue New York, NY 10011
>>> Attn: Marketing Preferences
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Fwd: [QUAD-L] Happy new year

[Larry Willis]

If this guys story is true, he deserves some kind of prize. With that level of 
paralysis, I would wither up and blow away. How does he so nonchalantly do 
these incredible things? Move to Mexico and become a millionaire in a few 
weeks? I dunno. Pretty amazing.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Johnny Cammon 
> Date: January 1, 2017 at 5:20:28 PM EST
> To: Joan Anglin 
> Cc: quad-list 
> Subject: Re: [QUAD-L] Happy new year
> 
> Thanks Joan
> 
>> On Sun, Jan 1, 2017 at 2:57 PM, Joan Anglin  wrote:
>> HAPPY NEW YEAR May 2017 bring peace.
>> 
>> Reading the attached article reinforces my belief that we can push through 
>> almost anything if we want to.
>> 
>> https://unstoppable.me/life-lessons/?utm_source=facebook&utm_medium=Social&utm_campaign=SocialWarfare
>> 
>> Whether or not you believe in this person is immaterial, the message of 
>> never giving up is what's important.
>> 
>>  
>> 
>>  
>> 
>> Creativity is intelligence having fun.  Albert Einstein
>> 
>>  
>> 
>> Joan
>> 
> 

Fwd: [QUAD-L] New Chair

[Larry Willis]

I think the dealer settled with insurance for about $13,000 on my chair. 
Fortunately, I owe nothing on it. This is because I met my maximum out of 
pocket limit through a hospital stay back in September. I get so sick and tired 
of this I would like to drive off a cliff. It seems there is a new ailment, 
breakdown, ungodly expense, family issue, everyday. And the health issues are 
NEVER small. They always life-threatening for both my wife and me. I am having 
spasms in my legs and stomach right now so bad I struggle to write this. It 
seems so damn pointless. Suffer today, suffer tomorrow, next week, next 
month,next year, until theLordfinally has some mercy and releases me from this 
misery. Ok, I'm done. God bless you guys for listening..and for 
understanding. Larry
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Lori Michaelson 
> Date: December 27, 2016 at 10:35:14 PM EST
> To: da...@immortaldesigns.co, quad-list 
> Subject: Re: [QUAD-L] New Chair
> 
> Ditto as Danny as far as the reclining option on my Permobil M 300 in 
> September 2011 and the price of the entire chair was $32,000 I think. 
> Medicare covered that but I had to pay the 20% that Medicare did not pay and 
> had to pay the full $5000 for the recline option.
> 
>> On Tue, Dec 27, 2016 at 7:32 PM, Danny Espinoza  
>> wrote:
>> I had to pay out of pocket for mine on my Permobil m300.
>> -Danny
>> 
>>  
>> 
>> From: greg [mailto:g...@eskimo.com] 
>> Sent: Tuesday, December 27, 2016 4:51 PM
>> To: quad-list@eskimo.com
>> Subject: [QUAD-L] New Chair
>> 
>>  
>> 
>> I finely started the new chair process. I just kept putting it off. Cost to 
>> darn much, I owe 20%. They told me Medicare no longer pays for seat elevator 
>> or faster motors. So that's even more for me. I have AARP Medicare 
>> Replacement. Covers a bit more, but same rules for durable medical.
>> 
>>  
>> 
>> Was anyone able to get seat elevator or faster motors covered? If so, what 
>> need did you use?
>> 
>>  
>> 
>> I never tie down, I sit sideways behind the seat. Now my motors auto break 
>> is so warn out, I roll a lot. We had to hit the breaks hard coming home. I 
>> was too much at an angle and rolled into the back of the seat. Snapped my 
>> joystick right off. All the screws just snapped. Luckily I had 1 extra screw 
>> at home. Supposed to use 4.
>> 
>>  
>> 
>> The new chairs sound pretty good. Said it could have a USB, and the joystick 
>> can operate remote controls. Very cool.
>> 
>>  
>> 
>> Greg
>> 
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Re: Fwd: [QUAD-L] What did fellow quads get for christmas?

[Annette Storesund]

Earrings, a new remote control for tv, remote control to open and close the
binds, sweatshirts...I was spoiled by my husband, son and best friend

On Wed, Dec 28, 2016 at 2:39 AM, Carolyn Boyles  wrote:

> I got a Dragonfly Red DAC. It's a USB stick that plugs into your computer.
> You then plug your sound cable into it, and it makes the music playing on
> your computer sound incredibly better.
>
> Carolyn
>
>

Re: Fwd: [QUAD-L] What did fellow quads get for christmas?

[Carolyn Boyles]

I got a Dragonfly Red DAC. It's a USB stick that plugs into your 
computer. You then plug your sound cable into it, and it makes the music 
playing on your computer sound incredibly better.


Carolyn

Fwd: [QUAD-L] New Chair

[Larry Willis]

I got aa new Invacare storm this week. It doesn't have lift or speed either. 
$27,350.
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg 
> Date: December 27, 2016 at 7:50:57 PM EST
> To: 
> Subject: [QUAD-L] New Chair
> 
> I finely started the new chair process. I just kept putting it off. Cost to 
> darn much, I owe 20%. They told me Medicare no longer pays for seat elevator 
> or faster motors. So that's even more for me. I have AARP Medicare 
> Replacement. Covers a bit more, but same rules for durable medical.
>  
> Was anyone able to get seat elevator or faster motors covered? If so, what 
> need did you use?
>  
> I never tie down, I sit sideways behind the seat. Now my motors auto break is 
> so warn out, I roll a lot. We had to hit the breaks hard coming home. I was 
> too much at an angle and rolled into the back of the seat. Snapped my 
> joystick right off. All the screws just snapped. Luckily I had 1 extra screw 
> at home. Supposed to use 4.
>  
> The new chairs sound pretty good. Said it could have a USB, and the joystick 
> can operate remote controls. Very cool.
>  
> Greg

RE: Fwd: [QUAD-L] What did fellow quads get for christmas?

[Joan Anglin]

My five grandkids together with their mom for the first time in 18 months.  
Clothes, earrings, munchies and lots of love.  What more can we ask for.

 

 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: 27 December, 2016 1:02 PM
To: Bryce Willis ; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] What did fellow quads get for christmas?

 

I got a nice back and shoulder massager made by Homedics...it massages and has 
heat also, Also got a gift card for dinner with a movie included and a few cool 
snacks and etc.  Dan H**

 

On Tuesday, December 27, 2016 1:52 PM, Bryce Willis mailto:lwillis82...@msn.com> > wrote:

 

The new CDs by John prine and Rolling Stones, cheese box from Figis, and some 
much needed new clothes.

Sent from my iPad


Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com> >
From: Lori Michaelson mailto:lorilivin...@gmail.com> >
Date: December 27, 2016 at 2:40:08 PM EST
To: RONALD L PRACHT mailto:r.pra...@sbcglobal.net> >, 
quad-list mailto:quad-list@eskimo.com> >
Subject: Re: [QUAD-L] What did fellow quads get for christmas?

* Chocolate (I couldn't live without it... LOL).

 

* Omaha Steaks gift that included 2 filet mignon steaks, chicken, and other 
foods to make a meal with meat.

 

* Money.

 

* Gift cards.

 

* A super soft lap blanket or bed blanket very rich in colors with dogs all 
over it since I love dogs.

 

* A full life-sized stuffed Golden retriever that looks SO real that every time 
I go buy it and out of the corner of my eye and think it is my Golden 
(retriever) daughter!

 

* Christmas ornaments

 

That's all I needed.  Will pass along photos soon.

 

On Tue, Dec 27, 2016 at 9:17 AM, RONALD L PRACHT mailto:r.pra...@sbcglobal.net> > wrote:

I got a portable dvd player for my table by my bed. An Atari portable to relive 
my childhood games. A hobby mat to work on my r/c models. Other misc junk.

 

How about you?

 

Ron 





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

 

Re: Fwd: [QUAD-L] What did fellow quads get for christmas?

[Danny Hearn]

I got a nice back and shoulder massager made by Homedics...it massages and has 
heat also, Also got a gift card for dinner with a movie included and a few cool 
snacks and etc.  Dan H** 

On Tuesday, December 27, 2016 1:52 PM, Bryce Willis  
wrote:
 

 The new CDs by John prine and Rolling Stones, cheese box from Figis, and some 
much needed new clothes.

Sent from my iPad
Begin forwarded message:


Resent-From: 
From: Lori Michaelson 
Date: December 27, 2016 at 2:40:08 PM EST
To: RONALD L PRACHT , quad-list 
Subject: Re: [QUAD-L] What did fellow quads get for christmas?



* Chocolate (I couldn't live without it... LOL).
* Omaha Steaks gift that included 2 filet mignon steaks, chicken, and other 
foods to make a meal with meat.
* Money.
* Gift cards.
* A super soft lap blanket or bed blanket very rich in colors with dogs all 
over it since I love dogs.
* A full life-sized stuffed Golden retriever that looks SO real that every time 
I go buy it and out of the corner of my eye and think it is my Golden 
(retriever) daughter!
* Christmas ornaments
That's all I needed.  Will pass along photos soon.
On Tue, Dec 27, 2016 at 9:17 AM, RONALD L PRACHT  wrote:

I got a portable dvd player for my table by my bed. An Atari portable to relive 
my childhood games. A hobby mat to work on my r/c models. Other misc junk.
How about you?
Ron 



-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz



   

Fwd: [QUAD-L] What did fellow quads get for christmas?

[Bryce Willis]

The new CDs by John prine and Rolling Stones, cheese box from Figis, and some 
much needed new clothes.

Sent from my iPad

Begin forwarded message:

Resent-From: mailto:quad-list@eskimo.com>>
From: Lori Michaelson mailto:lorilivin...@gmail.com>>
Date: December 27, 2016 at 2:40:08 PM EST
To: RONALD L PRACHT mailto:r.pra...@sbcglobal.net>>, 
quad-list mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] What did fellow quads get for christmas?

* Chocolate (I couldn't live without it... LOL).

* Omaha Steaks gift that included 2 filet mignon steaks, chicken, and other 
foods to make a meal with meat.

* Money.

* Gift cards.

* A super soft lap blanket or bed blanket very rich in colors with dogs all 
over it since I love dogs.

* A full life-sized stuffed Golden retriever that looks SO real that every time 
I go buy it and out of the corner of my eye and think it is my Golden 
(retriever) daughter!

* Christmas ornaments

That's all I needed.  Will pass along photos soon.

On Tue, Dec 27, 2016 at 9:17 AM, RONALD L PRACHT 
mailto:r.pra...@sbcglobal.net>> wrote:
I got a portable dvd player for my table by my bed. An Atari portable to relive 
my childhood games. A hobby mat to work on my r/c models. Other misc junk.

How about you?

Ron



--
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Fwd: [QUAD-L] Syrinx

[Larry Willis]

Wow, Bobbie, all I can offer is love, prayer, and sympathy.and you 
certainly have those.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Robert Vogel 
> Date: December 26, 2016 11:35:58 PM EST
> To: Bobbie Humphreys 
> Cc: quad-list@eskimo.com
> Subject: Re: [QUAD-L] Syrinx
> 
> Hi Again Bobbie and All,
> 
> My previous email was sent via iPhone, now that I’m at my computer I can give 
> you all the details.
> 
> In my opinion, after doing a lot of research, the two places that know the 
> most about Syrinx—(Syringomyelia)
> are the University of Miami School of Medicine (Miami Project) and Craig 
> Hospital in Denver.
> 
> I would go right to the expert, right away!!!
> 
> I’ve had the good fortune to interview and ask questions of Craig Hospital’s 
> expert on Syrinx, Dr. Scott Falci.
> Dr. Falci is an expert on the subject and has done surgery on over 1000 
> people with SCI and Syrinx.  
> Dr. Falci and his team are fantastic at answering questions and can give you 
> a lot of information on treatment
> options based on your symptoms (information, not advice) over the phone.  
> They are quite quick to respond
> to phone calls, again, in my experience they return phone calls within a day 
> or two.  The main person that takes
> the phone calls is Charlotte.  Their direct number (for Rehabilitative 
> Neurosurgery) is (303)761-5281 or you can
> email them at:  cind...@craighospital.org
> 
> Their webpage is:  
> https://craighospital.org/programs/rehabilitative-neurosurgery
> 
> They treat based on symptoms—from the symptoms you describe, if it was me, 
> I’d be on the phone first thing
> tomorrow.  The sooner you get a handle on this the better.  From what I 
> understand *sometimes* you can regain
> what you have lost due to Syrinx, but the key is if you are loosing feeling 
> and/or movement, it is important to find
> out what to do and do it right away.
> 
> I have talked with quite a few people that have been treated by Dr. Falci and 
> they say he is fantastic, both as a surgeon
> and as a knowledgable, empathetic doctor.
> 
> Hope this helps.
> 
> Bob Vogel
> 
>> On Dec 26, 2016, at 6:09 PM, Bobbie Humphreys  
>> wrote:
>> 
>> I was diagnosed with a syrinx back in 1995 and, until now, have had no real 
>> problems.
>> 
>> Since the first Saturday of December I can not feel my right hand 🤚 and 
>> using it, like I've been able to, has become nearly impossible.
>> 
>> Picking up and holding a fork, tooth brush, spoon, pen, paint 🎨 brush, 
>> opening medications and even driving my chair has become an extreme 
>> challenge.
>> 
>> Does anybody know of any way to alleviate the pressure?
>> I don't want to get it drained because my Doctor said it can come back 
>> immediately. No way do I want a shunt.
>> Bobbie 
>> 
>> "You must fail in order to succeed"
> 

Fwd: [QUAD-L] Unidentified subject!

[Larry Willis]

I did not know this about wheelchair.  My deepest sympathy in this terrible 
loss!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Gail Holmes 
> Date: December 23, 2016 at 5:38:16 PM EST
> To: wheelch...@aol.com
> Cc: quad-list@eskimo.com
> Subject: [QUAD-L] Unidentified subject!
> 
> Im thinking of this time of year how with the joy and hope we there is often 
> increased sadness for those who have family and friends who have passed on to 
> the other side. 
> 
> There are probably others on this list who are mourning but I'm particularly 
> thinking of "Wheelchair" who had a recent and sudden loss of his son. 
> 
> Thank you Wheelchair for continuing to contribute to this list even as no 
> doubt the pain is still so fresh and raw.
> 
> May  God comfort you and bring you peace.
> 
> 
> 
> Sent from my iPhone
> 
>> On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote:
>> 
>> Oxy, is a very potent and dangerous drug.  Users, should not advertise its 
>> use. It can become habit forming is less than 90 days of use.  The FDA, is 
>> cracking down on pain doctors, on its use for pain meds.  Those seniors with 
>> shoulder, hips and knee replacements are becoming addicted to the drug, 
>> without knowing it, which only adds to the health care cost as they go into 
>> recovery clinic to kick the drug. The symptoms should be reported to the 
>> doctor that issued the RX.
>>  
>> Best Wishes
>>  
>> In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, 
>> r.pra...@sbcglobal.net writes:
>> It is a different shaped pill, usually I get round ones but this time they 
>> are elongated oval shape. Could be a little different causing the issue. I 
>> was concerned of my stomach lining maybe getting screwed up.
>> 
>> Ron 
>> 
>> 
>> On Friday, December 23, 2016 12:52 PM, Larry Willis  
>> wrote:
>> 
>> 
>> Ron, have you had a new prescription filled lately? Sometimes I'll get a 
>> batch that cause me to itch terribly. With the next bottle the itching goes 
>> away. Bad batch, I assume. Are you taking it in combo with anything else?
>> 
>> Larry Willis
>> Retired and proud of it
>> 
>> 
>>> On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT  wrote:
>>> 
>>> Why would taking oxycodone cause my head to sweat and go into mild 
>>> dysreflexia? Ive been on it for 4 years and it never did this to me. I hope 
>>> its not stomach lining damage or something??
>>> 
>>> Ron
>> 
>> 

Fwd: [QUAD-L] sex

[Larry Willis]

That would be me, Larry, and Nicki putting it on minor burns and scrapes.

-- Forwarded message --
From: *alcibiates2* 
Date: Sunday, December 18, 2016
Subject: [QUAD-L] sex
To: Larry Willis , quad-list@eskimo.com


I'm confused, who's putting antibiotic ointment and a bandaid on what?


 Original message 
From: Larry Willis >
Date: 12/18/2016 8:08 PM (GMT-05:00)
To: quad-list@eskimo.com

Subject: Fwd: [QUAD-L] sex

You are so right, Nicki. I have burn scars all over my hands. Immediately
apply neosporin and bandaid. If you don't, it will almost certainly become
infected and very ugly. At least that is my experience.Larry Willis
Retired and proud of it


Begin forwarded message:

*Resent-From:* quad-list@eskimo.com

*From:* "Joan Anglin" >
*Date:* December 18, 2016 at 7:39:04 PM EST
*To:* "'Ed Tessier'" >, "'Quad-list Post'" <
quad-list@eskimo.com >
*Subject:* *RE: [QUAD-L] sex*

That applies to so many things, not just sex.

shoulda had a V8



J



*From:* Ed Tessier [mailto:e...@teamjeved.com
]
*Sent:* 18 December, 2016 2:08 PM
*To:* Quad-list Post >
*Subject:* [QUAD-L] sex



Just had a lazy afternoon sex with my wife... all oral, since that's what
works dependably...



 so enjoy times like this… So why does it happen so infrequently, why do I
let my chronic aches and pains and hassles distract me from enjoying life?
I struggle so hard to get through the day sometimes, I don't leave any
energy for something that should be IMPORTANT



Anybody else in this boat?

RE: Fwd: [QUAD-L] sex

[alcibiates2]

I'm confused, who's putting antibiotic ointment and a bandaid on what?

 Original message 
From: Larry Willis  
Date: 12/18/2016  8:08 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Fwd: [QUAD-L] sex 

You are so right, Nicki. I have burn scars all over my hands. Immediately apply 
neosporin and bandaid. If you don't, it will almost certainly become infected 
and very ugly. At least that is my experience.Larry Willis
Retired and proud of it

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: "Joan Anglin" 
Date: December 18, 2016 at 7:39:04 PM EST
To: "'Ed Tessier'" , "'Quad-list Post'" 

Subject: RE: [QUAD-L] sex

That applies to so many things, not just sex.shoulda had a V8 J From: Ed 
Tessier [mailto:e...@teamjeved.com] 
Sent: 18 December, 2016 2:08 PM
To: Quad-list Post 
Subject: [QUAD-L] sex Just had a lazy afternoon sex with my wife... all oral, 
since that's what works dependably...  so enjoy times like this… So why does it 
happen so infrequently, why do I let my chronic aches and pains and hassles 
distract me from enjoying life?  I struggle so hard to get through the day 
sometimes, I don't leave any energy for something that should be IMPORTANT 
Anybody else in this boat?