Re: [TMIC] OK, another *graphic * question/foods
ok, along with this have you discovered that foods effect you differently now too? LIke if I eat too many carbs in the afternoon I get very sleepy. Or the pasta sauces/mexican foods are giving me more gas that before too etc [EMAIL PROTECTED] wrote: Krissy: get set for mortification! If death came by emarrassment fromfarting in public, we'd ALL be DEAD. I, too, have the same problem: andif people are polite, they won't mention it. Or...you could explain,quickly, as if it weren't important-which it isn't--that sometimes thathappens, and you can no longer control that. Do it with a smile!Cora OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified! Krissy Zodda Tri State Support Group Leader http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~ - Get amazing travel prices for air and hotel in one click on Yahoo! FareChaseKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
Re: [TMIC] Mr. Graves info?
Cora, I would say you are definatley a much needed and loved part of the group that has a demyelinating problem just like the rest of us no matter what the cause. Alan - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Sunday, May 07, 2006 9:00 AM Subject: Re: [TMIC] Mr. Graves info? Rosalie: The neurologist gave me a tm diagnosis, but also noted that I had a B-12 deficiency. When I went to the 2004 Symposium, Dr Kerr noted that a differential diagnosis (some other ailment that might look like tm that might be present, and if found to be true, would supercede the tm diagnosis) is B-12 deficiency. When I heard that, I asked him specifically about it--subsequently became his patient, went to him, and he confirmed that B-12 deficiency caused my spinal cord demyelination, at L5/S1. A classic case, he said. Doesn't change the fact that the damage I have causes the exact same symptoms, so I live with it like the rest of you- and I hang around this bunch because you all are the best thing since sliced bread! I love you all! Cora Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
Re: [SPAM] [TMIC] More questions
Nima, I am just staring out on Lyrica and it seems to be helping better than the Neurontin. I will know more in 2 or 3 weeks when I am totally off of Neurontin and on the therapeutic dose of Lyrica. I also take Carisoprodol, but I am hoping that the Lyrica works well enough to stop taking this. I tried Baclofen and it didn't work for me, but everyone's body chemistry is different. Some of the things your husband is experiencing may be associated with age and the TM just makes them worse. Alan - Original Message - From: Poonam Mahadev Thapa To: TM List Sent: Sunday, May 07, 2006 8:36 AM Subject: [SPAM] [TMIC] More questions Hi Everybody A lot has been said about Lyrica and before that about Baclofen. I would like to clarify these points. Those who are taking Lyrica are you on any other medication like Baclofen or Tizanidine or Zanaflex? My husband Dev was put on Baclofen and Tizanidine. He started getting very tired. His left leg is very weak he cannot use it. He does regular physiotherapy but now he feels his right leg is getting weak. Is it fatigue? He is using a walker at the moment and all the weight is borne by his arms so his arms get tired and at times he gets blisters on his palms. Will it be harmful or dangerous to his upper body if this goes on? His back jams up at night. He is feeling a lot of pain lately. So he was put on Lyrica. Is this usual with TM? These symptoms are coming now. Initially there was no pain (only burning), no spasms, his legs were almost ok and his balance had come back 70% but now after 1 1/2 year it is getting worse. Yet all the tests, MRI and scans prove there is no further demyelination of the nerves and his VEP and BERM (sight and hearing evoked potential tests) are normal so MS is ruled out. I was under the impression that TM is one time attatck it doesn't get worse, there is only residual effect of TM. So is his condition getting worse because of TM getting worse or due to taking Baclofen or overstraining of muscles or what??? Hope someone has some answers for me Dev's love of life Nima from Kenyan coast
Re: [TMIC] OK, another *graphic * question/foods
Dear Fellow Farting TM'ers, I feel (and smell) your pain. I am a Mexican food fanatic and I will not give it up. I also take Gas-X andhave addedBeano to aid in quieting this gastric symphony. Just thought I would "run" that by everyone!!! Alan - Original Message - From: Krissy Z To: tmic-list@eskimo.com Sent: Monday, May 08, 2006 7:19 AM Subject: Re: [TMIC] OK, another *graphic * question/foods ok, along with this have you discovered that foods effect you differently now too? LIke if I eat too many carbs in the afternoon I get very sleepy. Or the pasta sauces/mexican foods are giving me more gas that before too etc [EMAIL PROTECTED] wrote: Krissy: get set for mortification! If death came by emarrassment fromfarting in public, we'd ALL be DEAD. I, too, have the same problem: andif people are polite, they won't mention it. Or...you could explain,quickly, as if it weren't important-which it isn't--that sometimes thathappens, and you can no longer control that. Do it with a smile!Cora OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified! Krissy Zodda Tri State Support Group Leader http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~ - Get amazing travel prices for air and hotel in one click on Yahoo! FareChaseKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
FW: [TMIC] OK, another *graphic * question
From: Trudy [mailto:[EMAIL PROTECTED] Sent: Monday, May 08, 2006 10:15 AM To: [EMAIL PROTECTED] Subject: RE: [TMIC] OK, another *graphic * question I always carry Gax-X with me! I work in a school and at times sit at the computers working with elementary students.. as soon as I get up, I know Im in trouble. and believe me, I have never met a kid whos eyes didnt become the size of saucers with giggles galore to add to my embarrassment. Isnt humility grand? Trudy Clothes make the man! Naked people have little or no influence on society. Mark Twain From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, May 05, 2006 2:01 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [TMIC] OK, another *graphic * question I have problems with that, too. I take Gas-X (or the store brand) when I need to be out and about, and it helps, but it's still a problem. Especially when trying to teach three boys not to do it in public. :-) Barbara H. In a message dated 5/5/2006 1:42:35 PM Eastern Standard Time, [EMAIL PROTECTED] writes: OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified! Krissy Zodda Tri State Support Group Leader http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~
[TMIC] this might help your head ache, worth trying
Hello everyone I thought I would pas this along to you. My best friend uses this stick and she has a lot of stress in her job lately and it has been helping her and I will post again once she has been on this for a few more weeks. I have seen this on tv and wondered if it worked. I pray this might help EVEN one of you, may be it will be Lyrica!! It was bought at Rite Aid. I call CVS and they have it for $7.99. Remember you have to use it before you get a head ache, if not it doesn't work, good luck. Love you all Sally It's Head On..and I have 2 sticks. I don't know if it works or not..because I don't know if I would have gotten a headache if I hadn't used it!!! If I just think I might get a headache, I use it..and so far..no major headaches..ask me in a month because I usually get at least one good one a month!
[TMIC] LYRICA and Fibro interesting
Hi Everybody I thought I would tell you about my nephew,he has Fibro, it been 13 years. He has started taking Lyrica, 75 mgs, just 3 days ago and after his first dose, at night, the next day his dull headache was gone. The second day he had a little bit of the headache but today he doesn't, he has these every day. He told me today that he thinks it has also helped with his joint and muscle pain too, some days are better then others.I will keep you up dated as he uses it longer and maybe this will help other with Fibro, he also has CFS. I hope his energy level will get better too, he said he seems more alert mentally, thinks that is cuz ofhis of headaches. He seems to feel better energy wise BUT will see if he feels better in a few more days. I hope this might give some of you a chance to think about asking to try Lyrica. I will let you all know in another 3-4 days how he feels.You all take care and hope you pain is just a little bit better. Love you all Sally NC
Re: [TMIC] this might help your head ache, worth trying
"My best friend uses this stick" So just what is it that you DO with this stick? You didn't explain. Stick it in your ear, hit yourself over the head, or what??? I can't quite picture it - Please clarify. Thanks, Sally PS: Does anyone find they get more sinus type headaches after taking tranquilizing-type meds, like Xanax, Paxil, butalbital, etc?
Re: [TMIC] OK, another *graphic * question/foods (Quite graphic, but not lewd)
In a message dated 5/8/2006 7:20:32 AM Central Standard Time, [EMAIL PROTECTED] writes: ok, along with this have you discovered that foods effect you differently now too? LIke if I eat too many carbs in the afternoon I get very sleepy. Or the pasta sauces/mexican foods are giving me more gas that before too etc [EMAIL PROTECTED] wrote: Krissy: get set for mortification! If death came by emarrassment fromfarting in public, we'd ALL be DEAD. I, too, have the same problem: andif people are polite, they won't mention it. Or...you could explain,quickly, as if it weren't important-which it isn't--that sometimes thathappens, and you can no longer control that. Do it with a smile!Cora OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified! Krissy Zodda Tri State Support Group Leader http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~ - Get amazing travel prices for air and hotel in one click on Yahoo! FareChaseKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. OK! OK! I'll admit to it too! Every time I move I fart...I change positions in bed, I fart. I transfer, I fart. I move in my chair, I fart. My husband picks me up to shower, to get in and out of the truck, to get in and out of the hairdresser's chair, I fart, fart, fart!!! In the dentist's chair, when the dentist asks me to open wider...I fart! The more I use my digital bowel program, the more often I pass gas. For some reason a lot of air must go in as my bowel program progresses. To be quite "graphic", I need to do a fair amount of digital stimulation to get things really moving. I cannot sit on a commode or anything; I have to lie on my side with one leg up and bent so that I can reach behind me. I use "chucks" to prevent soiling my bedding, and use lots of gloves, etc. Umm, lost my track of mind... Oh, anyway, I think that with all of the stimulation things open up pretty wide and that's when the air gets in. I wondered if GasX or something of the equivalent would help, but wasn't sure because it isn't regular "gas" caused by food. There is a big difference between the two "gasses". One has no odor, and the other does...big time with some of us! Certain foods Definitely do cause gas. Well, for what it's worth, that's my nickel's worth today. I hope I didn't gross anyone out too much. We are all adults here and I tried to be considerate of others as I wrote. Bless Us All, Jude
Re: [TMIC] OK, another *graphic * question/foods (Quite graphic, but not lewd)
EXACTLY! Mine is odor free, and I also have to manually stimulate to poop...so is that why? Because I have opened up inside? yes there are certain foods now that do make me gas up more than they used tobut these odor free ones just sneak up on me! I would like to hope that gas x or mylanta gas would help that some..ESPECIALLY when I go away...[EMAIL PROTECTED] wrote: Oh, anyway, I think that with all of the stimulation things open up pretty wide and that's when the air gets in. I wondered if GasX or something of the equivalent would help, but wasn't sure because it isn't regular "gas" caused by food. There is a big difference between the two "gasses". One has no odor, and the other does...big time with some of us! Certain foods Definitely do cause gas. Well, for what it's worth, that's my nickel's worth today. I hope I didn't gross anyone out too much. We are all adults here and I tried to be considerate of others as I wrote. Bless Us All, JudeKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.
Re: [TMIC] Hello from Oklahoma
It is definitely your business, as a part of my support group! Yes, I saw a podiatrist today, got put on antibiotics, --again, and feel pretty good about the decision to go to someone who could help with the feet. He picked up on the extent of the problems, and the causes, quicker than any doc I have seen up to now (except Dr. Kerr, of course), and he also said classic case when I ran down the exact extent of my symptoms. He will put me in diabetic shoes, after the infection is cleared up and he has shaped up my feet. Thanks, Jude for your concern and for your prayers! We're all in this together. Cora. Hi Cora, Maybe it's none of my business, but I am writing concerning the problems you are having with your mostly numb feet. As you know, I have been dealing with broken leg bones for almost 5 months, and have recently been having numb feelings accompanied by pins and needles like they are falling asleep. I am wondering if you have seen a doctor yet and if so, what did he/she have to say about it? Could it be related to deadened nerves caused by not moving enough, kind of like one would get from a pressure sore? I'm so sorry to hear about the challenges you and your husband have gone through as of late. You are in my Prayers and if there is ever any way I can help, please let me know. Peace, Jude
Re: [TMIC] OK, another *graphic * question
Linda: And I am 61. And when I was a newby on this list, I asked about what muscles controlled peeing, pooping, etc. and was told that the same muscles control both! That's why we toot while we pee, and if one comes, the other might also: particularly if you have nerve damage, etc. This stuff is of such interest--it is how we deal with everyday things. It is called functioning. I just find it easier to know why! Thanks for the questions/comments: everyone's say helps someone else who is afraid to ask. Cora Oh my..I have been dealing with this issue for some time. I can't figure out what the problem is, age, TM, or both? I remember, when I was young, walking with older people, and they would toot as they walked along..I couldn't understand why they didn't at least try to control that!!! Now, I find myself in the same situation, and I can noit control it! I was in this duscussion at work the other day, talking to younger ones, telling them I can't figure this out, and for then to just wait!!! And of course, after sitting for a while, I get up and away I went, toot, toot, tootfor once, my face did not turn red! I decided it is just laughter from my back side.by the way I am 59 Linda Garrett in Ohio - New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.
Re: [TMIC] More questions
Hello Nima: I am on Tizanidine and Lyrica. Both seem to work ok. Remember, I am not a doctor, so cannot give medical advice. I see several factors at work here: All medicines have side effects. One of Tizanidine's is drowsiness. So is Lyrica. I take naps after medication time so I can function. As we deal with our cluster of symptoms, we have to compensate for our deficiencies by overworking other parts, thus causing more problems. I see others on the list who regularly see a physiatrist to evaluate their functioning and suggest exercises and ways to strengthen and improve physical functioning. Be sure to let the doctor know about these problems! Be an advocate for him! Don't take no for an answer. And with everything else that is going on--is he being treated for depression? TM has the highest coincidence of depression of any disease, including MS. Hooray for you looking for answers! Hi Everybody A lot has been said about Lyrica and before that about Baclofen. I would like to clarify these points. a.. Those who are taking Lyrica are you on any other medication like Baclofen or Tizanidine or Zanaflex? b.. My husband Dev was put on Baclofen and Tizanidine. He started getting very tired. His left leg is very weak he cannot use it. He does regular physiotherapy but now he feels his right leg is getting weak. Is it fatigue? c.. He is using a walker at the moment and all the weight is borne by his arms so his arms get tired and at times he gets blisters on his palms. Will it be harmful or dangerous to his upper body if this goes on? d.. His back jams up at night. He is feeling a lot of pain lately. So he was put on Lyrica. Is this usual with TM? These symptoms are coming now. Initially there was no pain (only burning), no spasms, his legs were almost ok and his balance had come back 70% but now after 1 1/2 year it is getting worse. Yet all the tests, MRI and scans prove there is no further demyelination of the nerves and his VEP and BERM (sight and hearing evoked potential tests) are normal so MS is ruled out. I was under the impression that TM is one time attatck it doesn't get worse, there is only residual effect of TM. So is his condition getting worse because of TM getting worse or due to taking Baclofen or overstraining of muscles or what??? Hope someone has some answers for me Dev's love of life Nima from Kenyan coast
