Re: [TMIC] Sweating
I'm so glad someone started this conversation. Nobody (doctors) has explained to me why these symptoms appear except to say that no, I don't have Lupus etc. I get a fever before the sweating and the only place I sweat is the back of my head. It just pours and I have to put a towel around my neck. The only place I have the freeze burning is a patch between my shoulder blades. I don't post very often so I should tell you I'm 9 yrs into TM and 'possible' MS. I can walk unassisted about 30 ft. I have a cane and have been using a walker more and more in the last 2 yrs. Saw my neuro last week & he's not happy with the downhill status so he's sending me for some rehab work. The backsliding has been gradual so he doesn't think we're looking at MS. My last MRI showed no change. Diane in Canada - Original Message - From: Jan Hargrove To: [EMAIL PROTECTED] ; tmic-list Sent: Thursday, March 20, 2008 10:58 PM Subject: Re: [TMIC] Sweating Cheryl, My neurogolist told me that the only thing that wouldn't return is my temperature con- trol He was correct..I sweat from my breasts up.I was paralyzed at the t-8, I was a completeI freeze in the winter, cause I also have the freeze burning in my legs, 24/7and in the summer, I have to watch and not stay out in the heat very long cause I could have a heat stroke...I "sweat" profusely!!. Maybe this help with your question..janh "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: Hi, I am affected a the T4-T5 level also,but I don't sweat on one side of my face since getting tm. I also only blush on one side. No one has ever been able to explain it. Cheryl in cold,cloudy Easthampton,Mass. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] Sweating
Cheryl, My neurogolist told me that the only thing that wouldn't return is my temperature con- trol He was correct..I sweat from my breasts up.I was paralyzed at the t-8, I was a completeI freeze in the winter, cause I also have the freeze burning in my legs, 24/7and in the summer, I have to watch and not stay out in the heat very long cause I could have a heat stroke...I "sweat" profusely!!. Maybe this help with your question..janh "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: Hi, I am affected a the T4-T5 level also,but I don't sweat on one side of my face since getting tm. I also only blush on one side. No one has ever been able to explain it. Cheryl in cold,cloudy Easthampton,Mass. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
[TMIC] RE: tmic-digest Digest V2008 #89
Hi all, Yup Heather is right! In spinal cord lesions, it is "normal" to not sweat below the level of injury. Also, your body has a hard time adjusting to temp changes and where the nerve damage is you can get blotchy skin when it gets too hot... Take a look at this site, very good info to be found! http://www.apparelyzed.com/temperature.html Marieke (TM @T1, March 2004) http://nurse-to-be08.blogspot.com Date: Thu, 20 Mar 2008 18:39:11 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #89 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 89 Today's Topics: Re: [TMIC] (no subject) [ Heather & Pieter <[EMAIL PROTECTED] ] [TMIC] Fwd: TODAY SHOW scheduled for [ CANDIS KALLEY <[EMAIL PROTECTED] ] Re: [TMIC] (no subject) [ [EMAIL PROTECTED] ] [TMIC] Sweating [ "[EMAIL PROTECTED]" <[EMAIL PROTECTED] ] [TMIC] Fwd: Sweating [ [EMAIL PROTECTED] ] --Forwarded Message Attachment-- Date: Thu, 20 Mar 2008 12:04:59 -0600 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED] CC: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) Hi Linda, I don't seem to sweat below my lesion at T8 - T10. I think that was mentioned on the TM Forum at one point and Marieke said that with spinal chord injuries a person doesn't sweat below the lesion. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Thursday, March 20, 2008 6:37 AM Subject: Re: [TMIC] (no subject) Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1336 - Release Date: 3/20/2008 9:48 AM --Forwarded Message Attachment-- Date: Thu, 20 Mar 2008 17:44:12 -0400 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com; [EMAIL PROTECTED] Subject: [TMIC] Fwd: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC I received the following from Devis's group. Thought maybe some of you would be interested. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Monday, March 17, 2008 3:09 PM Subject: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC Hello All, THE TODAY SHOW's segment on THE AUTOIMMUNE EPIDEMIC is now scheduled to air next Tuesday morning, March 25th. Thanks for your patience. All the best, Donna www.donnajacksonnakazawa.com THE AUTOIMMUNE EPIDEMIC: Bodies Gone Haywire in a World out of Balance "In this important book, Donna Jackson Nakazawa sounds the alarm about the rise of autoimmune disorders... I encourage every American to read this book and learn about the choices you can make to reduce the spread and impact of this growing epidemic." U.S. Senator John F. Kerry ** It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301) --~--~-~--~~~---~--~~ You received this message because you are subscribed to the Google Groups "Devic's support" group. To post to this group, send email to [EMAIL PROTECTED] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/Devics-support?hl=en -~--~~~~--~~--~--~--- --Forwarded Message Attachment-- Date: Thu, 20 Mar 2008 18:22:16 -0400 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] CC: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) Thanks for the response. My feet are hot all the time!!! It is hard in the winter when I have to wear shoes. I could not wear a pair of heels to save my life. I have tried in the shoe store and have to hold on or I will fall over! I am so glad for the response, at least there is one other person who has the grease line, whatever it is. Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home. --Forwarded Message Attachment-- Date: Thu,
Re: [TMIC] Fwd: Sweating
I was effected ( or is it affected?) from T10 - T12 with my first episode with TM and then C4 - T1 on the second episode. I"ve made good recovery from being a quad. I have full use of my R arm/hand and most of my L arm/hand, however, my strength has deminished terribly - a gallon of milk feels like I'm lifting 50 lbs. I do not have any feeling in my L leg but it is the strongest of the two. My R leg has spotty feeling, but it is the one that is undependable and will spasm or give out whenever. My feet always feel cold but they do sweat - if I wear soxes they are damp when I take them off. I sweat like I've ran a marathon from the shoulders up - sometimes just sitting in my recliner I will break out sweating! Then the next moment I will be so very cold. It's worse than when I went thru premature change of life! My bottom, feet and legs always feel cold to the touch. If I sit on something cold, it feels like it is heated - when I went in the hospital the first time, I thought that were heating the bed pans and it was really nice - but when I had to removed my own bed pan is when I discovered that they were still the same old cold bed pans! Boy what a let down after 3 days of thinking that the hospitals were finally concerned about a patients comfort. Both of my legs are extremely sensitive to cold. If cold water hits either leg, it feels as it nails are hitting them. My R leg will spasm violently if my R foot is in cold water. I have to make sure that the water is warm and I'm sitting on my bath stool before I can put my R foot down and turn the shower on. I have the red spotches mainly on my L arm but have seen them in various places on my body. I also get a rash on my L arm, always in the same place, which seems to occur after I've been stressed. The rash will itch like crazy several times a day while the rest of the time it just looks terrible. I drink at least 8 to 10 glasses of water daily plus 2+ cups of coffee, a glass of juice, and a 20 oz bottle of energy drink daily - no wonder I have to empty my bladder hourly. I don't really have control of my bladder - when I get the urge to go, I may have 1 - 2 minutes to make it to the bathroom otherwise the pad I wear needs to be changed. I use to have really good control of my bladder. Luckily, I have an ileostomy so I don't have BM problems which is great cause I don't have control of my muscles to push to empty my bladder or have a BM. I'm always with a terrible back pain. Cymbalta helps. TENS helps. A back brace helps. Pain pills help. Soaking in very warm water helps. BUT, nothing takes away the pain - all of the above dulls the pain but there are days that nothing helps, especially when the barometer is changing or I've over done the day (sometimes week) before. Other than TM and TM's residual effects listed above, I'm in good health and feel good. - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Thursday, March 20, 2008 5:43:04 PM (GMT-0600) America/Chicago Subject: [TMIC] Fwd: Sweating Create a Home Theater Like the Pros. Watch the video on AOL Home .
[TMIC] (no subject)
Hi, Linda! This is what makes this site such a wonder! I, too, have the greasy line' around the band but had never attributed it to anything! I have a real problem with full blown sweating above the T4 level right up to the top of my head which I had never had problems with before! Plus!! I have to lather lotions and creams on my legs and feet. Strange, huh? My left side is the very worse when it comes to spasms, coldness, and pain but it is by far the strongest. It was the first side to become paralyzed. The right side had hypersensitivity from the start and still has touch sensations but feels dead inside as the left side also does. The right side is also the one that drags. But when I drive it does come to the rescue as it controls the gas and brake. I rarely use the hand control. I did this for a year as I tried to return to work 40 miles away. Isn't that just amazing? I still feel like I am full of wet sand from the chest down even tho I can move around pretty well. I walk like a drunk so it's a good thing to carry a cane when we go somewhere otherwise I get funny looks and chuckles behind hands (that's true!)!!! It's too bad there aren't neurologists and providers reading all of our info They could sure benefit from it! Jeanne in Dayton where it is a beautiful Spring-like morning in the Blue Mountains! ---Original Message--- From: [EMAIL PROTECTED] Date: 3/20/2008 7:38:35 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things Anybody have a problem with not sweating in affected areas? Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home.
[TMIC] Re: Sweating
I agree, Linda! That is why I said that I wished some neuro's and providers would learn from everything we write about and maybe some one person that comes into their office with similar symptoms then they can wisely help them instead of just shrugging their shoulders and saying, "Ahhh, right...you have Transverse Myelitis." and yes, that is exactly what happened to me, not once but twice by two different neurologists! I, too, have red splotches on my skin mostly on the right side and right foot. The skin also gets flaky around the splotchy area. I use Neosporin which helps. Both of my legs feel like they are in ice water but when you touch the right one which is the strongest but worst when it comes to pain and spasms, it is warm. The right one always feels much cooler. All of these strange things, right?? When I was still nursing one of the Internists I worked with was going to help me get a series of questions together for patients with TM to see what we all have in common both before and after the onset. Since I was unable to continue working because of the loss of stamina so we didn't get it done. We still can do that. I think it would be very interesting. I wouldn't mind starting it if we could get enough interest?? Think about it. It would probably be a big help for people to use in going to their own providers. Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 3/20/2008 5:39:18 PM To: [EMAIL PROTECTED] Subject: Re: Sweating I think we all need to put our heads together and figure some of this stuff out. I am very aware of every little difference in my body. Some one said they don"t sweat in certain areas, same is true for me. Someone else said their skin is very dry in affected areas, so is mine. My legs are affected even though I can walk. May sound little gross, but I don't grow much hair on my legs either. SORRY ALL YOU GENTLEMEN OUT THERE IF THAT'S A LITTLE GRAPHIC!! I just am trying to see what things we have in common. Anybody have any weird things they have noticed. One more thing, I notice subtle red blotches under my skin. Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home. <<10_footer.gif>>
[TMIC] Fwd: Sweating
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- Begin Message --- I think we all need to put our heads together and figure some of this stuff out. I am very aware of every little difference in my body. Some one said they don"t sweat in certain areas, same is true for me. Someone else said their skin is very dry in affected areas, so is mine. My legs are affected even though I can walk. May sound little gross, but I don't grow much hair on my legs either. SORRY ALL YOU GENTLEMEN OUT THERE IF THAT'S A LITTLE GRAPHIC!! I just am trying to see what things we have in common. Anybody have any weird things they have noticed. One more thing, I notice subtle red blotches under my skin. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- End Message ---
[TMIC] Sweating
Hi, I am affected a the T4-T5 level also,but I don't sweat on one side of my face since getting tm. I also only blush on one side. No one has ever been able to explain it. Cheryl in cold,cloudy Easthampton,Mass. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] (no subject)
Thanks for the response. My feet are hot all the time!!! It is hard in the winter when I have to wear shoes. I could not wear a pair of heels to save my life. I have tried in the shoe store and have to hold on or I will fall over! I am so glad for the response, at least there is one other person who has the grease line, whatever it is. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
[TMIC] Fwd: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC
I received the following from Devis's group. Thought maybe some of you would be interested. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Monday, March 17, 2008 3:09 PM Subject: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC Hello All, THE TODAY SHOW's segment on THE AUTOIMMUNE EPIDEMIC is now scheduled to air next Tuesday morning, March 25th. Thanks for your patience. All the best, Donna www.donnajacksonnakazawa.com THE AUTOIMMUNE EPIDEMIC: Bodies Gone Haywire in a World out of Balance "In this important book , Donna Jackson Nakazawa sounds the alarm about the rise of autoimmune disorders... I encourage every American to read this book and learn about the choices you can make to reduce the spread and impact of this growing epidemic." U.S. Senator John F. Kerry ** It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301) --~--~-~--~~~---~--~~ You received this message because you are subscribed to the Google Groups "Devic's support" group. To post to this group, send email to [EMAIL PROTECTED] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/Devics-support?hl=en -~--~~~~--~~--~--~---
[TMIC] Fw: To the citizens of the United States of America:
- Original Message - From: Carolee Strahl To: Paul Charles Anderson Sent: Thursday, March 20, 2008 7:20 AM Subject: Fw: To the citizens of the United States of America: - Original Message - From: Don Miller To: Ann Brunelle ; Bob & Agnes Cameron ; Carolee Strahl ; Goauctions jane ; jan correia ; Jill Gassett ; mildred piontek ; sue warninghoff Sent: Thursday, March 20, 2008 12:30 AM Subject: Fw: To the citizens of the United States of America: - Original Message - From: Noel To: Noel Lutsey lll Sent: Sunday, March 16, 2008 11:07 PM Subject: To the citizens of the United States of America: Saw this on a political board, and thought it was funny. I think our recent influx of British members will appreciate it To the citizens of the United States of America: In light of your failure to nominate competent candidates for President of the USA and thus to govern yourselves, we hereby give notice of the revocation of your independence, effective immediately. Her Sovereign Majesty Queen Elizabeth II will resume monarchical duties over all states, commonwealths, and territories (except Kansas, which she does not fancy). Your new prime minister, Gordon Brown, will appoint a governor for America without the need for further elections. Congress and the Senate will be disbanded. A questionnaire may be circulated next year to determine whether any of you noticed. To aid in the transition to a British Crown Colony, the following rules are introduced with immediate effect: You should look up "revocation" in the Oxford English Dictionary. 1. Then look up aluminium, and check the pronunciation guide. You will be amazed at just how wrongly you have been pronouncing it. 2. The letter 'U' will be reinstated in words such as 'favour' and 'neighbour.' Likewise, you will learn to spell 'doughnut' without skipping half the letters, and the suffix -ize will be replaced by the suffix -ise. Generally, you will be expected to raise your vocabulary to acceptable levels. (look up 'vocabulary'). 3. Using the same twenty-seven words interspersed with filler noises such as "like" and "you know" is an unacceptable and inefficient form of communication. There is no such thing as US English. We will let Microsoft know on your behalf. The Microsoft spell- checker will be adjusted to take account of the reinstated letter 'u' and the elimination of -ize. You will relearn your original national anthem, God Save The Queen. 4. July 4th will no longer be celebrated as a holiday. 5. You will learn to resolve personal issues without using guns, lawyers, or therapists. The fact that you need so many lawyers and therapists shows that you're not adult enough to be independent. Guns should only be handled by adults. If you're not adult enough to sort things out without suing someone or speaking to a therapist then you're not grown up enough to handle a gun. 6. Therefore, you will no longer be allowed to own or carry anything more dangerous than a vegetable peeler. A permit will be required if you wish to carry a vegetable peeler in public. 7. All American cars are hereby banned. They are crap and this is for your own good. When we show you German cars, you will understand what we mean. 8. All intersections will be replaced with roundabouts, and you will start driving on the left with immediate effect. At the same time, you will go metric with immediate effect and without the benefit of conversion tables. Both roundabouts and metrication will help you understand the British sense of humour. 9. The Former USA will adopt UK prices on petrol (which you have been calling gasoline)-roughly $10 per US gallon. Get used to it. 10. You will learn to make real chips. Those things you call French fries are not real chips, and those things you insist on calling potato chips are properly called crisps. Real chips are thick cut, fried in animal fat, and dressed not with catsup but with vinegar. 11. The cold tasteless stuff you insist on calling beer is not actually beer at all. Henceforth, only proper British Bitter will be referred to as beer, and European brews of known and accepted provenance will be referred to as Lager. South African beer is also acceptable as they are pound for pound the greatest sporting nation on earth and it can only be due to the beer. They are also part of British Commonwealth - see what it did for them. 12. Hollywood will be required occasionally to cast English actors as good guys. Hollywood will also be required to cast English actors to play English characters. Watching Andie McDowell attempt English dialogue in Four Weddings and a Funeral was an experience akin to having one's ears removed with a cheese grater. 13. You will cease playing American football. There is only one kind of proper football; you call it soccer. Those of you brave enough will, in time, be allowed to play rugby (which has some similarities to A
Re: [TMIC] (no subject)
Hi Linda, I don't seem to sweat below my lesion at T8 - T10. I think that was mentioned on the TM Forum at one point and Marieke said that with spinal chord injuries a person doesn't sweat below the lesion. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Thursday, March 20, 2008 6:37 AM Subject: Re: [TMIC] (no subject) Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa -- Create a Home Theater Like the Pros. Watch the video on AOL Home. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1336 - Release Date: 3/20/2008 9:48 AM
RE: [TMIC] (no subject)
Linda, I don't have the banding all the time. Mostly it is when I am tired, stressed, or not feeling well. Some times it is just there for no apparent reason but during those times it seems more tolerable than when I am tired, stressed, or not feeling well. I am T-4/ T-9 and early on, I didn't sweat in that range or below. That's pretty normal for paralysis. That is why it is so dangerous for para's and quad's to be out in the heat. We can't turn on the bodies air conditioner.(Sweat) That might explain the (greasy sensation) around the affected areas. I don't remember ever having that sensation. I do remember as my feeling was coming back I itched horribly. A nurse pored corn flower on me and that seemed to help? Anyhow, that's my two cents. Hope everyone has a beautiful day! Happy Spring! Larry in Oklahoma where it is busting out in green today after 4.5 inches of rain the other day. From: [EMAIL PROTECTED]: Thu, 20 Mar 2008 08:37:54 -0400Subject: Re: [TMIC] (no subject)To: [EMAIL PROTECTED]: tmic-list@eskimo.com Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home.
Re: [TMIC] (no subject)
Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
