Re: [TMIC] RE: tmic-digest Digest V2009 #237
I can not imagine how miserable that must have been. I have not had any esperience like that ever and cold does not bother me in that way. The only thing I could think of to do was inhale my bottle of baclofen. It helps with my leg spasms at nite. Hope that never happens to you again - you have suffered enough. Janice - Original Message - From: Kenneth Oliver To: tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 11:00 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #237 None of you have mentioned what cold does. This evening I was waiting for my son to fix my Hoveround wheel and I had a window open and the door, here in NM when the sun goes down it cools off fast. I was stuck to the recliner until I got the chair fixed. in the mean time it cooled of and I got a chill that had me in a spasm from my neck to my feet. This is after 28yrs of TM. Ken In NM -- Date: Wed, 8 Apr 2009 18:53:46 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #237 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 237 Today's Topics: Re: [TMIC] Re: over heating [ Janice jan...@centurytel.net ] --Forwarded Message Attachment-- Date: Wed, 8 Apr 2009 20:49:09 -0500 From: jan...@centurytel.net To: jrush...@columbiaenergyllc.com; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Re: over heating You all are describing more of a painful heat, but what I feel is more like a menopause heat flash - but it lasts longer, and it makes me very weak and light headed.Anyone else feel that way? Janice - Original Message - From: jrushton To: CANDIS KALLEY ; tmic Sent: Wednesday, April 08, 2009 8:57 AM Subject: Re: [TMIC] Re: over heating Your words, Candy, are an echo of mine!! You could not have said it better. I was going to send you a note, Lynne, but now there is no need!!Good to have us all start to come out of the woodwork, isn't it? :)) Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 4/8/2009 10:39:53 AM To: tmic-list Subject: Re: [TMIC] Re: over heating Oh the joys of TM - yes I also have the same problem - our internal thermostats are also affected. Once you go either direction, hot or cold, it seems like forever before it evens out. I don't know how many times I've woke up sweating like a race horse and then the next minute I'm freezing and it takes forever to get back to sleep. I know it's not menopause because that happened many a year ago and quit long before TM. My legs burn like they have 2nd degree sunburn while my feet feel as if they are in an ice bucket! The burning, itchy, stingy occurs all over the body for whatever reason. It seems as if everyday its the same but different in different ways. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Wednesday, April 8, 2009 8:45:37 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] Re: over heating I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne Verdana Font-Size: -- Quick access to your favorite MSN content and Windows Live with Internet Explorer 8. Download FREE now! 01_header2.gifTHUMBS~1.GIF
[TMIC] Thanks
I just want to thank everyone for answering my email about not having any letters in my inbox. I've been without email access for a couple of days (my password would not work!) . Cheryl in Easthampton,MA.
[TMIC] Digest not working?
I receive messages from the list by digest but that is suddenly not working correctly as I've had a half a dozen digests with one or two messages each. Is there a way to fix this, or someone to tell? Thanks, Akua -- http://www.akuadesigns.etsy.com http://www.artfarmpaperwworks.etsy.com
Re: [TMIC] RE: tmic-digest Digest V2009 #237
Ken, The cold air really bothers me too. That is why in the winter I stay pretty much inside. Just go from car to store to house. Cold causes spasms and the muscles just 'freeze' up. Hope you stay warm now. I guess that even in NM it gets cold. Heather in Calgary - Original Message - From: Kenneth Oliver To: tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 10:00 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #237 None of you have mentioned what cold does. This evening I was waiting for my son to fix my Hoveround wheel and I had a window open and the door, here in NM when the sun goes down it cools off fast. I was stuck to the recliner until I got the chair fixed. in the mean time it cooled of and I got a chill that had me in a spasm from my neck to my feet. This is after 28yrs of TM. Ken In NM -- Date: Wed, 8 Apr 2009 18:53:46 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #237 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 237 Today's Topics: Re: [TMIC] Re: over heating [ Janice jan...@centurytel.net ] --Forwarded Message Attachment-- Date: Wed, 8 Apr 2009 20:49:09 -0500 From: jan...@centurytel.net To: jrush...@columbiaenergyllc.com; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Re: over heating You all are describing more of a painful heat, but what I feel is more like a menopause heat flash - but it lasts longer, and it makes me very weak and light headed.Anyone else feel that way? Janice - Original Message - From: jrushton To: CANDIS KALLEY ; tmic Sent: Wednesday, April 08, 2009 8:57 AM Subject: Re: [TMIC] Re: over heating Your words, Candy, are an echo of mine!! You could not have said it better. I was going to send you a note, Lynne, but now there is no need!!Good to have us all start to come out of the woodwork, isn't it? :)) Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 4/8/2009 10:39:53 AM To: tmic-list Subject: Re: [TMIC] Re: over heating Oh the joys of TM - yes I also have the same problem - our internal thermostats are also affected. Once you go either direction, hot or cold, it seems like forever before it evens out. I don't know how many times I've woke up sweating like a race horse and then the next minute I'm freezing and it takes forever to get back to sleep. I know it's not menopause because that happened many a year ago and quit long before TM. My legs burn like they have 2nd degree sunburn while my feet feel as if they are in an ice bucket! The burning, itchy, stingy occurs all over the body for whatever reason. It seems as if everyday its the same but different in different ways. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Wednesday, April 8, 2009 8:45:37 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] Re: over heating I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne Verdana Font-Size: -- Quick access to your favorite MSN content and Windows Live with Internet Explorer 8. Download FREE now! 01_header2.gifTHUMBS~1.GIF
Re: [TMIC] Lack of Communication
Heather I have found that sometimes you just have to do what you have to do!! I flew alone to be with my mom when she was in her late 80's and I was so glad that I did. Everyone was so kind and helpful. I too use a walker and sometimes a cane! Long trips are awful but my son is getting married in Lima, Peru in November and I am definitely going to be there! I have hand controls on my car because I do not have any real control over my legs. All rental cars have handicapped equipped cars. And they are not allowed to charge extra for the device. There are different types but it's so easy, you catch on very quickly. Tho it sounds like you have lots of people to ferry you around. Have a wonderful time!! I love it when our family gets together! Cherish those moments!Again, ENJOY!!! Trudy On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.cawrote: Janice et al, I will be flying. I have done this before. I take my walker and my cane. I get a bulkhead seat. Hubby and I were back to Ontario last fall. However, he just doesn't feel like going this soon. However, my Mom is 85 so I feel I want to go. My daughter, 2 sisters and all their families are there as well as my husbands four sisters. So there will be lots of people to visit as well as my old friends. My only problem is that when I get there I have to rely on others to ferry me around. I can only drive with the left foot accelorator. It is a four hour flight which seems quite long. I also take my air/gel filled seat cushion from my wheelchair. It is 5 1/2 yrs old now and still going strong. (knock on wood). Without this cushion I would have a terrible time trying to sit for that length of time. I'm s ready to get off the plane when we land. I do not need to change planes or anything so that is another good thing. I have found that everyone involved with air travel has so far been really good. Oops. with one exception. Last fall I flew back east first and my husband followed a week later. Going through security here in Calgary my WalkAide set off the security and I had to take it off the leg, explain to them what it was etc etc. Wires, batteries etc. Almost missed my flight. This time I have located the booklet on it and will keep it handy. Last fall I misplaced it just prior to packing. I actually had it packed. Then decided to take a different carry-on piece of luggage and could not for the life of me figure out where the booklet went. I found it in January this year when I was moving some things around to do with our luggage. NOW I know where it is. Of course with the memory problems that we have (well some of us have) with TM I could forget where it is by that time. LOL Heather in Calgary - Original Message - *From:* Janice jan...@centurytel.net *To:* Pieter and Heather pieterheat...@shaw.ca ; jmh1...@sbcglobal.net ; tmic tmic-list@eskimo.com ; jrushton jrush...@columbiaenergyllc.com *Sent:* Wednesday, April 08, 2009 7:09 PM *Subject:* Re: [TMIC] Lack of Communication Heather, You are so brave to travel alone. I am trying to get the strength I need to travel, by car, with my husband, to Savannah, Ga. I am in therapy for my legs now and hopeful I can make a trip like that this fall. It would be to see my sister and her husband. I love Savannah deeply, but will not go during the hot months. We used to go every March - a perfect time to visit there. Sure hope I can make it this fall.I know you all will have a great time and it is justly deserved!Janice - Original Message - *From:* Pieter and Heather pieterheat...@shaw.ca *To:* jmh1...@sbcglobal.net ; Janice jan...@centurytel.net ; tmictmic-list@eskimo.com; jrushton jrush...@columbiaenergyllc.com *Sent:* Wednesday, April 08, 2009 2:08 PM *Subject:* Re: [TMIC] Lack of Communication Funny how this came up. I live in Calgary, 2000 miles from where I grew up in Hamilton Ontario. About a dozen or more of my high school friends get together every May now. Used to be at Xmas every year since 1964, but with age, road conditions they now meet in May. I don't often see these gals but am hoping to get there this year for the little reunion in mid-May. Really looking forward to it as it has been more than 40 years since I have seen some of them. TM or not I plan to get there this year. Hubby staying home so I'm flying solo this time. I have lots of family there too and miss them all terribly. Hugs, Heather in Calgary - Original Message - *From:* Jan Hargrove jmh1...@sbcglobal.net *To:* Janice jan...@centurytel.net ; tmic tmic-list@eskimo.com ; jrushton jrush...@columbiaenergyllc.com *Sent:* Wednesday, April 08, 2009 10:28 AM *Subject:* Re: [TMIC] Lack of Communication Jeanne, I understand how great keeping those contacts alive is!! I've become much more active with my class affairs since tm came to stay!! TM let's you know
[TMIC] RE: tmic-digest Digest V2009 #246
The cold makes me spastic as well. I hate living where I am, the winters are LONG and COLD! Winter starts in early November and ends in late April. Our Fall is wet and damp, another thing that makes me spastics and so is our Spring! You just can't win!! LOL Marieke RN, TM @T1 since March 18 2004... waiting for June/July/August! --Forwarded Message Attachment-- Date: Thu, 9 Apr 2009 12:10:22 -0600 From: pieterheat...@shaw.ca To: kenoliver...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #237 Ken, The cold air really bothers me too. That is why in the winter I stay pretty much inside. Just go from car to store to house. Cold causes spasms and the muscles just 'freeze' up. Hope you stay warm now. I guess that even in NM it gets cold. Heather in Calgary - Original Message - From: Kenneth Oliver To: tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 10:00 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #237 None of you have mentioned what cold does. This evening I was waiting for my son to fix my Hoveround wheel and I had a window open and the door, here in NM when the sun goes down it cools off fast. I was stuck to the recliner until I got the chair fixed. in the mean time it cooled of and I got a chill that had me in a spasm from my neck to my feet. This is after 28yrs of TM. Ken In NM _ Experience all of the new features, and Reconnect with your life. http://go.microsoft.com/?linkid=9650730attachment: 01_header2.gifattachment: THUMBS~1.GIF
[TMIC] RE: tmic-digest Digest V2009 #247
I have travelled by plane alone and with my boyfriend (now ex). Last time I went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and 2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back). The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO) and 30 min (SeaTac to Van). I travel with my wheelchair and bring my cane and wear my long leg brace. When I travel alone I usually get bumped to FIRST Class for FREE! I ask for seats close to the bathroom (and often they figure since I am alone I will need more help as I am in a chair, and they have more time to help when in 1st class). The first time I travelled alone I was nervous about going through security, the only time they ever gave me problems was going from Mtl to TO to Seattle. The Mtl security (US side) was ok really, but one lady there wanted me to take off my brace... um, I need to take off my shoes/pants.. I just looked at them and said, it's a brace that surrounds my leg, no hollow parts, I can't hide anything there. I was pissed, not b/c that they wanted to check it, that's fine, but it was her attitude that really got to me. She was rude and talked like I was mentally challenged. Um , hello, I may be in a wheelchair, but I am perfectly capable of making conversation! Grrr... Don't let the difficulties of travelling stop you! It sounds harder than it is, and I was plenty worried, but it turned out just fine and I had a great flight! (the attendents were so very nice and helpful and it doesn't hurt that I look under 18 sometimes!). Marieke 33yo, t...@t1 since March 18, 2004 Date: Thu, 9 Apr 2009 12:38:45 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #247 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 247 Today's Topics: Re: [TMIC] Lack of Communication [ Trudy Ogilvie mother...@gmail.com ] --Forwarded Message Attachment-- Date: Thu, 9 Apr 2009 14:44:48 -0400 From: mother...@gmail.com To: pieterheat...@shaw.ca CC: tmic-list@eskimo.com Subject: Re: [TMIC] Lack of Communication Heather I have found that sometimes you just have to do what you have to do!! I flew alone to be with my mom when she was in her late 80's and I was so glad that I did. Everyone was so kind and helpful. I too use a walker and sometimes a cane! Long trips are awful but my son is getting married in Lima, Peru in November and I am definitely going to be there! I have hand controls on my car because I do not have any real control over my legs. All rental cars have handicapped equipped cars. And they are not allowed to charge extra for the device. There are different types but it's so easy, you catch on very quickly. Tho it sounds like you have lots of people to ferry you around. Have a wonderful time!! I love it when our family gets together! Cherish those moments! Again, ENJOY!!!Trudy On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.ca wrote: Janice et al, I will be flying. I have done this before. I take my walker and my cane. I get a bulkhead seat. Hubby and I were back to Ontario last fall. However, he just doesn't feel like going this soon. However, my Mom is 85 so I feel I want to go. My daughter, 2 sisters and all their families are there as well as my husbands four sisters. So there will be lots of people to visit as well as my old friends. My only problem is that when I get there I have to rely on others to ferry me around. I can only drive with the left foot accelorator. It is a four hour flight which seems quite long. I also take my air/gel filled seat cushion from my wheelchair. It is 5 1/2 yrs old now and still going strong. (knock on wood). Without this cushion I would have a terrible time trying to sit for that length of time. I'm s ready to get off the plane when we land. I do not need to change planes or anything so that is another good thing. I have found that everyone involved with air travel has so far been really good. Oops. with one exception. Last fall I flew back east first and my husband followed a week later. Going through security here in Calgary my WalkAide set off the security and I had to take it off the leg, explain to them what it was etc etc. Wires, batteries etc. Almost missed my flight. This time I have located the booklet on it and will keep it handy. Last fall I misplaced it just prior to packing. I actually had it packed. Then decided to take a different carry-on piece of luggage and could not for the life of me figure out where the booklet went. I found it in January this year when I was moving some things around to do with our luggage. NOW I know where it is. Of course with the memory problems that we have (well some of us have) with TM I could forget where it is by that time. LOL Heather in Calgary - Original Message -
[TMIC] Cody Unser Oscar Qualifing Runs
NEWS RELEASE For Immediate Release: April 7, 2009 Cody Unser Documentary Oscar Qualifying Runs Scheduled in NYC and LA (Albuquerque, NM) Christopher Productions and The Cody Unser First Step Foundation are proud to announce that the theatrical release of the documentary entitled, CODY; The First Step begins Oscar Qualifying runs in LA County April 17th April 23rd, 2009 and in New York City from May 1-May 7th, 2009. CODY is a powerful documentary that charts the extraordinary story of Cody Unser who was tragically struck with Transverse Myelitis at the age of 12. The disease left her paralyzed from the chest down. However, she refused to let that diagnosis define her and instead at age 13 founded the Cody Unser First Step Foundation to ensure that money would be raised to find a cure. For the last five years Cody has lobbied state legislatures and Congress to push for stem-cell research which offers the key to her own recovery. During the film, Cody shares with the viewers her determination to walk again. The film takes the viewers on an intimate journey with Cody detailing her daily emotional and physical struggles. The film also charts where science and politics intersect. Visit http://www.cufsf.org/www.cufsf.org to see the trailer. Cody Unser said, I hope my story will shed some light on what it is really like to live with paralysis. I also hope that the film will lead to more research dollars so that paralysisnot just for me, but for all people, will become a treatable and reversible diagnosis. I want to thank all the people who have made these Oscar Qualifying Runs possibleespecially Don Chalmers Ford, the Off Shore Super Series Powerboat Racing Association, Johns Hopkins Project Restore, and the Al Unser Jr. Children's Charities. Chris Schueler, Director/Producer of CODY said, Cody Unser has become an inspiration to everyone associated with the production. Despite her paralysis, Cody has not only remained remarkably independent but has made some amazing accomplishments. I am honored that Cody was willing to let our film crew into her life and I am confident the documentary will forever change how the public views people who are not disabled but rather differently abled. Friday April 17- Thursday April 23, 2009 Laemmle's Town Center 5 17200 Ventura Blvd, Encino, CA 91316 818-981-9811 Friday May 1- Thursday May 7th, 2009 IFC Center in New York 323 Avenue of the Americas New York, NY 10014 (212) 924-7771
Re: [TMIC] Re: over heating
Gosh, I have no idea. I wonder how many people are still dealing with this on their own - not connected by a website to others like we are. This just helps so much. I don't feel so isolated with this disease anymore. Janice - Original Message - From: Pieter and Heather To: Janice ; jmh1...@sbcglobal.net ; lynnemye...@yahoo.com ; tmic-list Sent: Thursday, April 09, 2009 12:26 AM Subject: Re: [TMIC] Re: over heating Janh, I like that. We are a living puzzle. Good thinking. I'm sure there are other ailments in this world that people with them feel the same way. I guess a lot of conditions, especially ones that are not so common resemble puzzles. Also by looking at some of the different websites that are up and running, I wonder if there are more people now with TM or are we just finding each other because of the internet?? Heather - Original Message - From: Janice To: jmh1...@sbcglobal.net ; lynnemye...@yahoo.com ; tmic-list Sent: Wednesday, April 08, 2009 7:53 PM Subject: Re: [TMIC] Re: over heating Jan, I did not know, but it makes sense, that you only sweat above the point of paralysis.Do you get to feeling weak when you get too hot?And, does it come over you all of a sudden, sometimes for no reason? Janice - Original Message - From: Jan Hargrove To: lynnemye...@yahoo.com ; tmic-list Sent: Wednesday, April 08, 2009 10:28 AM Subject: Re: [TMIC] Re: over heating The only thing I was told that I would not regain, is my temperature!! My legs which were paralyzed, feel hot on the inside and freezing on the outsidethus phrase freeze/burning...I cannot stay out in heat too long because I can sweat only above my point of paralysis (t8) and heat stroke is possible sooner than normal folks would be affected..I can't complain tho', cause as the saying goes, just look around and you'll see someone worse off..at one time there was a fellow in group who sweat only on one side of his face and his max time sitting under tree in Arizona was 5 minutes!! TM has given so many varieties of ailments that no two of us suffer alikeit's like living the life of a puzzle!!! My 2¢ worth janh Stillwater, OK --- On Wed, 4/8/09, lynne myers lynnemye...@yahoo.com wrote: I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne
Re: [TMIC] Lack of Communication
Trudy, I really have to give you credit too. You and Heather are independent ladies!!! Janice - Original Message - From: Trudy Ogilvie To: Pieter and Heather Cc: tmic Sent: Thursday, April 09, 2009 1:44 PM Subject: Re: [TMIC] Lack of Communication Heather I have found that sometimes you just have to do what you have to do!! I flew alone to be with my mom when she was in her late 80's and I was so glad that I did. Everyone was so kind and helpful. I too use a walker and sometimes a cane! Long trips are awful but my son is getting married in Lima, Peru in November and I am definitely going to be there! I have hand controls on my car because I do not have any real control over my legs. All rental cars have handicapped equipped cars. And they are not allowed to charge extra for the device. There are different types but it's so easy, you catch on very quickly. Tho it sounds like you have lots of people to ferry you around. Have a wonderful time!! I love it when our family gets together! Cherish those moments! Again, ENJOY!!! Trudy On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.ca wrote: Janice et al, I will be flying. I have done this before. I take my walker and my cane. I get a bulkhead seat. Hubby and I were back to Ontario last fall. However, he just doesn't feel like going this soon. However, my Mom is 85 so I feel I want to go. My daughter, 2 sisters and all their families are there as well as my husbands four sisters. So there will be lots of people to visit as well as my old friends. My only problem is that when I get there I have to rely on others to ferry me around. I can only drive with the left foot accelorator. It is a four hour flight which seems quite long. I also take my air/gel filled seat cushion from my wheelchair. It is 5 1/2 yrs old now and still going strong. (knock on wood). Without this cushion I would have a terrible time trying to sit for that length of time. I'm s ready to get off the plane when we land. I do not need to change planes or anything so that is another good thing. I have found that everyone involved with air travel has so far been really good. Oops. with one exception. Last fall I flew back east first and my husband followed a week later. Going through security here in Calgary my WalkAide set off the security and I had to take it off the leg, explain to them what it was etc etc. Wires, batteries etc. Almost missed my flight. This time I have located the booklet on it and will keep it handy. Last fall I misplaced it just prior to packing. I actually had it packed. Then decided to take a different carry-on piece of luggage and could not for the life of me figure out where the booklet went. I found it in January this year when I was moving some things around to do with our luggage. NOW I know where it is. Of course with the memory problems that we have (well some of us have) with TM I could forget where it is by that time. LOL Heather in Calgary - Original Message - From: Janice To: Pieter and Heather ; jmh1...@sbcglobal.net ; tmic ; jrushton Sent: Wednesday, April 08, 2009 7:09 PM Subject: Re: [TMIC] Lack of Communication Heather, You are so brave to travel alone. I am trying to get the strength I need to travel, by car, with my husband, to Savannah, Ga. I am in therapy for my legs now and hopeful I can make a trip like that this fall. It would be to see my sister and her husband. I love Savannah deeply, but will not go during the hot months. We used to go every March - a perfect time to visit there. Sure hope I can make it this fall.I know you all will have a great time and it is justly deserved! Janice - Original Message - From: Pieter and Heather To: jmh1...@sbcglobal.net ; Janice ; tmic ; jrushton Sent: Wednesday, April 08, 2009 2:08 PM Subject: Re: [TMIC] Lack of Communication Funny how this came up. I live in Calgary, 2000 miles from where I grew up in Hamilton Ontario. About a dozen or more of my high school friends get together every May now. Used to be at Xmas every year since 1964, but with age, road conditions they now meet in May. I don't often see these gals but am hoping to get there this year for the little reunion in mid-May. Really looking forward to it as it has been more than 40 years since I have seen some of them. TM or not I plan to get there this year. Hubby staying home so I'm flying solo this time. I have lots of family there too and miss them all terribly. Hugs, Heather in Calgary - Original Message - From: Jan Hargrove To: Janice ; tmic ; jrushton Sent: Wednesday, April 08, 2009 10:28 AM Subject: Re: [TMIC] Lack of Communication
Re: [TMIC] Re: over heating
Since I have been on this website, I have not seen your name/comments. Glad to hear from you and hope it continues. What is Lake Tahoe like - not familiar with that part of the country?What are summers like and how do they affect you? Janice - Original Message - From: bradebi To: lynnemye...@yahoo.com ; tmic-list ; jmh1...@sbcglobal.net Sent: Thursday, April 09, 2009 1:08 PM Subject: Re: [TMIC] Re: over heating I too have this problem..I only sweat under my breasts and on my neck..my paralysis is at T4..I cant take the heat ether..but I am enjoying the cold and snow up here in Lake Tahoe!..I cant sleep with covers on. Debi South Lake Tahoe California ---Original Message--- From: Jan Hargrove Date: 4/8/2009 8:29:34 AM To: lynnemye...@yahoo.com; tmic-list Subject: Re: [TMIC] Re: over heating The only thing I was told that I would not regain, is my temperature!! My legs which were paralyzed, feel hot on the inside and freezing on the outsidethus phrase freeze/burning...I cannot stay out in heat too long because I can sweat only above my point of paralysis (t8) and heat stroke is possible sooner than normal folks would be affected..I can't complain tho', cause as the saying goes, just look around and you'll see someone worse off..at one time there was a fellow in group who sweat only on one side of his face and his max time sitting under tree in Arizona was 5 minutes!! TM has given so many varieties of ailments that no two of us suffer alikeit's like living the life of a puzzle!!! My 2¢ worth janh Stillwater, OK --- On Wed, 4/8/09, lynne myers lynnemye...@yahoo.com wrote: I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne Spiral_notebook.jpg
Re: [TMIC] RE: tmic-digest Digest V2009 #237
I have never heard of anyone with TM for 28 years. Has anything in the area of medicine or treatment changed in that amount of time?Have you improved at all? Janice - Original Message - From: Kenneth Oliver To: tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 11:00 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #237 None of you have mentioned what cold does. This evening I was waiting for my son to fix my Hoveround wheel and I had a window open and the door, here in NM when the sun goes down it cools off fast. I was stuck to the recliner until I got the chair fixed. in the mean time it cooled of and I got a chill that had me in a spasm from my neck to my feet. This is after 28yrs of TM. Ken In NM -- Date: Wed, 8 Apr 2009 18:53:46 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #237 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 237 Today's Topics: Re: [TMIC] Re: over heating [ Janice jan...@centurytel.net ] --Forwarded Message Attachment-- Date: Wed, 8 Apr 2009 20:49:09 -0500 From: jan...@centurytel.net To: jrush...@columbiaenergyllc.com; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Re: over heating You all are describing more of a painful heat, but what I feel is more like a menopause heat flash - but it lasts longer, and it makes me very weak and light headed.Anyone else feel that way? Janice - Original Message - From: jrushton To: CANDIS KALLEY ; tmic Sent: Wednesday, April 08, 2009 8:57 AM Subject: Re: [TMIC] Re: over heating Your words, Candy, are an echo of mine!! You could not have said it better. I was going to send you a note, Lynne, but now there is no need!!Good to have us all start to come out of the woodwork, isn't it? :)) Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 4/8/2009 10:39:53 AM To: tmic-list Subject: Re: [TMIC] Re: over heating Oh the joys of TM - yes I also have the same problem - our internal thermostats are also affected. Once you go either direction, hot or cold, it seems like forever before it evens out. I don't know how many times I've woke up sweating like a race horse and then the next minute I'm freezing and it takes forever to get back to sleep. I know it's not menopause because that happened many a year ago and quit long before TM. My legs burn like they have 2nd degree sunburn while my feet feel as if they are in an ice bucket! The burning, itchy, stingy occurs all over the body for whatever reason. It seems as if everyday its the same but different in different ways. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Wednesday, April 8, 2009 8:45:37 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] Re: over heating I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne Verdana Font-Size: -- Quick access to your favorite MSN content and Windows Live with Internet Explorer 8. Download FREE now! 01_header2.gifTHUMBS~1.GIF
Re: [TMIC] Where is everyone
AOL EmailHi everybody, I'm here too, but have had a houseful of family staying this week. Very hectic so I haven't even turned my computer on until now. Jude, I'm sorry you're not doing well. What has happened since our last conversation? Do you have another infection? I knew Dave was going to have surgery at some point, but not sure when. Must be getting close. Patti is right. It would be so nice if we all lived closer so that we could help each other. Also Patti's idea about getting someone to stay with you is great. Most hospitals have Social Workers you can call and they will handle everything for you. Can you give that a try? Please write back so we know how you're doing. You're always in my thoughts and prayers. love, Linda - Original Message - From: Patricia Cooleymailto:patticoo...@wi.rr.com To: heyjude48...@aol.commailto:heyjude48...@aol.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 3:03 PM Subject: RE: [TMIC] Where is everyone HI JUDE: THE ONLY RESPONSE I RECEIVED IS THIS ONE. I AM SO SORRY YOU ARE NOT DOING SO WELL. I HAD THOUGHT YOU WERE DOING PRETTY GOOD SINCE YOU RETURNED FROM THE HOSPITAL. I WONDER IF THERE ISN’T ANY SOCIAL ORGANIZATION THAT CAN ARRANGE FOR SOMEONE TO BE WITH YOU WHILE DAVE IS HAVING HIS SURGERY. IF THERE IS, YOUR DOCTOR’S OFFICE OR THE HOSPITAL SHOULD BE ABLE TO PUT YOU IN TOUCH WITH THEM. I SURE WISHED WE ALL LIVED CLOSER SO WE COULD HELP EACH OTHER IN TIMES LIKE THIS. AT TIMES LIKE THIS WE SURE NEED FAMILY. I AM SO FORTUNATE THAT MY DAUGHTER AND HER FAMILY LIVE JUST UP THE STREET. I DO HAVE MY HUSBAND WHICH I AM SO GRATEFUL FOR, BUT HE CAN’T DO EVERYTHING. HE DOES SO MUCH AS IT IS. PLEASE KEEP US INFORMED AND KNOW WE ARE PRAYING FOR YOU BOTH. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, April 08, 2009 3:38 AM To: patticoo...@wi.rr.com Subject: Re: [TMIC] Where is everyone Did you get my response Patti? I did get your note and sent you a short answer. I am not well at all and am concerned about Dave having surgery and have no place to go. One of my so called friends offered me to stay at her house but yesterday she called and told me I could not stay there now. I am not well and we are both worried about the other. You take care now. I love you, Jude In a message dated 4/7/2009 10:40:33 A.M. Eastern Daylight Time, patticoo...@wi.rr.com writes: THINGS HAVE BEEN QUIET, BUT I DID SEND YOU A SHORT MESSAGE YESTERDAY A.M. I HOPE YOU GOT IT. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Tuesday, April 07, 2009 8:57 AM To: rn11...@yahoo.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Where is everyone I am still here, but there has been little or no activity for a long time. I came home from the hospital and there was no one on the List. Love you, Jude In a message dated 4/7/2009 9:18:22 A.M. Eastern Daylight Time, rn11...@yahoo.com writes: Hi I haven't had any messages in 2 days.Is it just really quiet? Cheryl in rainy Easthampton,Mass. -- A Good Credit Score is 700 or Above. See yours in just 2 easy steps!http://pr.atwola.com/promoclk/100126575x1221421323x1201417385/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID%3D62%26bcd%3DAprilfooterNO62 -- New Deals on Dell Netbooks - Now starting at $299http://pr.atwola.com/promoclk/100126575x1219939010x1201342897/aol?redir=http:%2F%2Fad.doubleclick.net%2Fclk%3B213771626%3B35379597%3Bw
Re: [TMIC] RE: tmic-digest Digest V2009 #247
Okay, you all are making me feel braver about traveling. Also, I have a great husband to help me. Marieke, you surprised me when you said you wear a brace. How did that come about and how does it help you? Janice - Original Message - From: marieke dufresne To: tmic-list@eskimo.com Sent: Thursday, April 09, 2009 3:45 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #247 I have travelled by plane alone and with my boyfriend (now ex). Last time I went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and 2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back). The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO) and 30 min (SeaTac to Van). I travel with my wheelchair and bring my cane and wear my long leg brace. When I travel alone I usually get bumped to FIRST Class for FREE! I ask for seats close to the bathroom (and often they figure since I am alone I will need more help as I am in a chair, and they have more time to help when in 1st class). The first time I travelled alone I was nervous about going through security, the only time they ever gave me problems was going from Mtl to TO to Seattle. The Mtl security (US side) was ok really, but one lady there wanted me to take off my brace... um, I need to take off my shoes/pants.. I just looked at them and said, it's a brace that surrounds my leg, no hollow parts, I can't hide anything there. I was pissed, not b/c that they wanted to check it, that's fine, but it was her attitude that really got to me. She was rude and talked like I was mentally challenged. Um , hello, I may be in a wheelchair, but I am perfectly capable of making conversation! Grrr... Don't let the difficulties of travelling stop you! It sounds harder than it is, and I was plenty worried, but it turned out just fine and I had a great flight! (the attendents were so very nice and helpful and it doesn't hurt that I look under 18 sometimes!). Marieke 33yo, t...@t1 since March 18, 2004 -- Date: Thu, 9 Apr 2009 12:38:45 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #247 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 247 Today's Topics: Re: [TMIC] Lack of Communication [ Trudy Ogilvie mother...@gmail.com ] --Forwarded Message Attachment-- Date: Thu, 9 Apr 2009 14:44:48 -0400 From: mother...@gmail.com To: pieterheat...@shaw.ca CC: tmic-list@eskimo.com Subject: Re: [TMIC] Lack of Communication Heather I have found that sometimes you just have to do what you have to do!! I flew alone to be with my mom when she was in her late 80's and I was so glad that I did. Everyone was so kind and helpful. I too use a walker and sometimes a cane! Long trips are awful but my son is getting married in Lima, Peru in November and I am definitely going to be there! I have hand controls on my car because I do not have any real control over my legs. All rental cars have handicapped equipped cars. And they are not allowed to charge extra for the device. There are different types but it's so easy, you catch on very quickly. Tho it sounds like you have lots of people to ferry you around. Have a wonderful time!! I love it when our family gets together! Cherish those moments! Again, ENJOY!!! Trudy On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.ca wrote: Janice et al, I will be flying. I have done this before. I take my walker and my cane. I get a bulkhead seat. Hubby and I were back to Ontario last fall. However, he just doesn't feel like going this soon. However, my Mom is 85 so I feel I want to go. My daughter, 2 sisters and all their families are there as well as my husbands four sisters. So there will be lots of people to visit as well as my old friends. My only problem is that when I get there I have to rely on others to ferry me around. I can only drive with the left foot accelorator. It is a four hour flight which seems quite long. I also take my air/gel filled seat cushion from my wheelchair. It is 5 1/2 yrs old now and still going strong. (knock on wood). Without this cushion I would have a terrible time trying to sit for that length of time. I'm s ready to get off the plane when we land. I do not need to change planes or anything so that is another good thing. I have found that everyone involved with air travel has so far been really good. Oops. with one exception. Last fall I flew back east first and my husband followed a week later. Going through security here in Calgary my WalkAide set off the security and I had to take it off the leg, explain to them what it was etc etc. Wires, batteries etc. Almost missed my flight. This time I have located the booklet on it and
Re: [TMIC] Lack of Communication
I am exactly the same! So what do you do about shoes? I arrived at my Rheumatologists office in flat open sandals in 8 inches of snow this winter. He looked down at my feet and said I don't even need to ask Also it hurts to have my very soft sheets touch me. I know there are a lot of us who have this challenge. Suggestions anyone? Thanks Linda (Idaho) - Original Message - From: kimr1...@bellsouth.netmailto:kimr1...@bellsouth.net To: Janicemailto:jan...@centurytel.net ; Patricia Cooleymailto:patticoo...@wi.rr.com ; 'jrushton'mailto:jrush...@columbiaenergyllc.com ; 'tmic'mailto:tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 7:24 PM Subject: Re: [TMIC] Lack of Communication Same here! my feet burn 24/7, they fell like there in grease frying all the time. I can not take socks or shoes on my feet, even the blankets oin the bed hurt them. -- Original message from Janice jan...@centurytel.netmailto:jan...@centurytel.net: -- Can we switch problems?!I also love St. Crois Falls, Wis. I have relatives there and it is beautiful! - Original Message - From: Patricia Cooleymailto:patticoo...@wi.rr.com To: 'jrushton'mailto:jrush...@columbiaenergyllc.com ; 'Janice'mailto:jan...@centurytel.net ; 'tmic'mailto:tmic-list@eskimo.com Sent: Wednesday, April 08, 2009 3:50 PM Subject: RE: [TMIC] Lack of Communication HI JANICE: I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT DID GET JEANNE’S ANSWER TO YOU. I HAVE THE COMPLETE OPPOSITE PROBLEM. I AM COLD B! ALL THE TIME. THE WORST ARE MY FEET. THEY FEEL LIKE A BLOCK OF ICE MOST OF THE TIME. THIS WINTER I HAVE BEEN MEISERABLE. I HAVE HAD TO HUDDLE UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE. EVEN LAST SUMMER WHEN WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER. I HAVE BEEN TOLD TM SCREWS UP YOUR INTERNAL THEMOSTATE. I DON’T WANT TO TAKE ANY MORE MEDS SO WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON THIS SUMMER. TAKE CARE, JANICE. PATTI IN WISCONSIN From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Wednesday, April 08, 2009 9:08 AM To: Janice; tmic Subject: Re: [TMIC] Lack of Communication Hi, Jan, It looks like we TMer's are back in business with all of the notes going back and forth and your temp. problem is one of the main subjects right now! I'm so glad we're back in business as I miss you all when we take our 'naps' as we do off and on. I'm off to stay with my little Sis for a couple nights so we can meet up with my big Sis and go to our monthly '60's Chicks' luncheon in Grandview which is where we graduated from. All Grandview 'chicks' no matter what year they graduated try to meet and we have lunch, chat for a couple hours and off we go. It is really a special time as we have all learned how special life is and is not to be taken for granted. Some we haven't seen since graduation or longer. Take care, all! Jeanne in Dayton ---Original Message--- From: Janicemailto:jan...@centurytel.net Date: 4/7/2009 9:52:58 PM To: transverse myelitismailto:tmic-list@eskimo.com Subject: [TMIC] Lack of Communication Hey Guys!!! Sounds like everyone is really ready for SPRING! I am really ready to dig my hands into the dirt and get my flower pots ready for summer.I can't plant in the ground anymore, but I sure go nuts with my pots!We have already planted pansies and they are looking great. Won't be long for spring. Got another question for you all. Do you have a problem with all of a sudden getting too hot - and no one else is? It isn't hot flashes, had a complete hysterectomy over 20 years ago. This just started since TM (2007). My doc has given me patches of clonidine. You change it every week and it does help - doesn't cure it, but it helps. I am dreading warm, humid weather because that is when it is the worst. We live in Missouri and the summers get pretty warm and humid.But we keep our house pretty cool in the winter too.I really notice it when I am more active. What about you all? I have only been on the site a couple of months, but I really miss your chatting when it is quiet.I know every one of us has a lot to deal with, some more than others. But, when we are emailing, we are all on level ground and getting to know the real person, not just the TM person. I have many friends, but I count myself very fortunate to have found you all.
Re: [TMIC] Lack of Communication
Sorry, no suggestions.Again, it is such a good feeling to know that many of my problems are similar to you all. I used to think it was all in my head. I would pull my gown or a blanket up my body and it would send spasms, especially in my torso, for a few minutes and then it would settle down. Wonder if eventually it will go away. Sure hope so for all of us. I have no problem wearing shoes as far as pain goes, but it feels good to get them off. I am going to have to give away a lot of my shoes because I can't wear heels anymore. I do not want to wear tennis shoes in the summer - too hot. So, I will have to get sandles that have no heel and give some support. I intend to start clearing out my closet of shoes next week.Oh well, at least I have 2 feet - even if I can't dress them up anymore.Janice - Original Message - From: L T CHERPESKI To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic' ; kimr1...@bellsouth.net Sent: Thursday, April 09, 2009 8:55 PM Subject: Re: [TMIC] Lack of Communication I am exactly the same! So what do you do about shoes? I arrived at my Rheumatologists office in flat open sandals in 8 inches of snow this winter. He looked down at my feet and said I don't even need to ask Also it hurts to have my very soft sheets touch me. I know there are a lot of us who have this challenge. Suggestions anyone? Thanks Linda (Idaho) - Original Message - From: kimr1...@bellsouth.net To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic' Sent: Wednesday, April 08, 2009 7:24 PM Subject: Re: [TMIC] Lack of Communication Same here! my feet burn 24/7, they fell like there in grease frying all the time. I can not take socks or shoes on my feet, even the blankets oin the bed hurt them. -- Original message from Janice jan...@centurytel.net: -- Can we switch problems?!I also love St. Crois Falls, Wis. I have relatives there and it is beautiful! - Original Message - From: Patricia Cooley To: 'jrushton' ; 'Janice' ; 'tmic' Sent: Wednesday, April 08, 2009 3:50 PM Subject: RE: [TMIC] Lack of Communication HI JANICE: I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT DID GET JEANNE’S ANSWER TO YOU. I HAVE THE COMPLETE OPPOSITE PROBLEM. I AM COLD B! ALL THE TIME. THE WORST ARE MY FEET. THEY FEEL LIKE A BLOCK OF ICE MOST OF THE TIME. THIS WINTER I HAVE BEEN MEISERABLE. I HAVE HAD TO HUDDLE UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE. EVEN LAST SUMMER WHEN WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER. I HAVE BEEN TOLD TM SCREWS UP YOUR INTERNAL THEMOSTATE. I DON’T WANT TO TAKE ANY MORE MEDS SO WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON THIS SUMMER. TAKE CARE, JANICE. PATTI IN WISCONSIN From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Wednesday, April 08, 2009 9:08 AM To: Janice; tmic Subject: Re: [TMIC] Lack of Communication Hi, Jan, It looks like we TMer's are back in business with all of the notes going back and forth and your temp. problem is one of the main subjects right now! I'm so glad we're back in business as I miss you all when we take our 'naps' as we do off and on. I'm off to stay with my little Sis for a couple nights so we can meet up with my big Sis and go to our monthly '60's Chicks' luncheon in Grandview which is where we graduated from. All Grandview 'chicks' no matter what year they graduated try to meet and we have lunch, chat for a couple hours and off we go. It is really a special time as we have all learned how special life is and is not to be taken for granted. Some we haven't seen since graduation or longer. Take care, all! Jeanne in Dayton ---Original Message--- From: Janice Date: 4/7/2009 9:52:58 PM To: transverse myelitis Subject: [TMIC] Lack of Communication Hey Guys!!! Sounds like everyone is really ready for SPRING! I am really ready to dig my hands into the dirt and get my flower pots ready for summer.I can't plant in the ground anymore, but I sure go nuts with my pots!We have already planted pansies and they are looking great. Won't be long for spring. Got another question for you all. Do you have a problem with all of a sudden getting too hot - and no one else is? It isn't hot flashes, had a complete hysterectomy over 20 years ago. This just started since TM (2007).
Re: [TMIC] Lack of Communication
I also can not wear shoes or socks. Not even the ‘softest socks” out there, I can’t tale anything touching my feet. I have to sleep with my feet outside of the covers because I can’t take the sheets touching my feet. The skin on my feet feels tight and they burn like they are frying in grease. Winter is hard as when I am in public without shoes or socks on so many people stop me to tell me its cold and why don’t I have anything on my feet. I get tired of telling the long story so just tell them due to nerve damage I can’t wear them. Then people start telling me “wear soft socks” I tell them sock and shoes burn m feet. But its amazing how people do not listen and keep telling me which socks to buy that will help…I understand people mean well but it’s hard to explain that even my feet toughing the foot pegs on my wheel chair is very painful. So far I have learned to try to put them up when I can, and I keep mint type foot lotion with me all the time and it is a short time relief. So when it’s snowing or freezing out here I am rolling around bare foot. But funny thing is I love foot massages. When someone rubs my feet it feels so good and I don’t want them to stop. Have tried Neuratin, did not work, how I am on 60mg Cymbalta and it seems to help the nerve damage in my legs but no change in my feet. -- Original message from "L T CHERPESKI" cherp...@msn.com: -- I am exactly the same! So what do you do about shoes? I arrived at my Rheumatologists office in flat open sandals in 8 inches of snow this winter. He looked down at my feet and said "I don't even need to ask" Also it hurts to have my very soft sheets touch me.I know there are a lot of us who have this challenge. Suggestions anyone? Thanks Linda (Idaho) - Original Message - From: kimr1...@bellsouth.net To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic' Sent: Wednesday, April 08, 2009 7:24 PM Subject: Re: [TMIC] Lack of Communication Same here! my feet burn 24/7, they fell like there in grease frying all the time. I can not take socks or shoes on my feet, even the blankets oin the bed hurt them. -- Original message from "Janice" jan...@centurytel.net: -- Can we switch problems?! I also love St. Crois Falls, Wis. I have relatives there and it is beautiful! - Original Message - From: Patricia Cooley To: 'jrushton' ; 'Janice' ; 'tmic' Sent: Wednesday, April 08, 2009 3:50 PM Subject: RE: [TMIC] Lack of Communication HI JANICE: I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT DID GET JEANNE’S ANSWER TO YOU. I HAVE THE COMPLETE OPPOSITE PROBLEM. I AM COLD B! ALL THE TIME. THE WORST ARE MY FEET. THEY FEEL LIKE A BLOCK OF ICE MOST OF THE TIME. THIS WINTER I HAVE BEEN MEISERABLE. I HAVE HAD TO HUDDLE UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE. EVEN LAST SUMMER WHEN WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER. I HAVE BEEN TOLD TM SCREWS UP YOUR INTERNAL THEMOSTATE. I DON’T WANT TO TAKE ANY MORE MEDS SO WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON THIS SUMMER. TAKE CARE, JANICE. PATTI IN WISCONSIN From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Wednesday, April 08, 2009 9:08 AMTo: Janice; tmicSubject: Re: [TMIC] Lack of Communication Hi, Jan, It looks like we TMer's are back in business with all of the notes going back and forth and your temp. problem is one of the main subjects right now! I'm so glad we're back in business as I miss you all when we take our 'naps' as we do off and on. I'm off to stay with my little Sis for a couple nights so we can meet up with my big Sis and go to our monthly '60's Chicks' luncheon in Grandview which is where we graduated from. All Grandview 'chicks' no matter what year they graduated try to meet and we have lunch, chat for a couple hours and off we go. It is really a special time as we have all learned how special life is and is not to be taken for granted. Some we haven't seen since graduation or longer. Take care, all! Jeanne in Dayton ---Original Message--- From: Janice Date: 4/7/2009 9:52:58 PM To: transverse myelitis Subject: [TMIC] Lack of Communication Hey Guys!!! Sounds like everyone is really ready for SPRING! I am really ready to dig my hands into the dirt and get my flower pots ready for summer. I can't plant in the ground anymore, but I sure go nuts with my pots! We have already planted pansies and they are looking great. Won't be long for spring. Got another question for you all. Do you have a problem with all of a sudden getting too hot - and no one else is? It isn't hot flashes, had a complete hysterectomyover 20 years ago. This just started since TM (2007). My doc has given me patches of clonidine. You change it every week and it does help - doesn't cure it, but it helps. I am dreading warm, humid weather because that is when it is the worst. We live in Missouri and the summers get pretty warm
