Re: [TMIC] Re: (TMIC) Sex.
Gracie, No need for you to feel funny about posting re: sex. I feel the same way as you do. Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to. However, Something happened this week that surprised the heck out of me and Dave. We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him. We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time. It is really nice to feel pretty again for Dave and he says he feels the same way. It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. I love you, Jude In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222585065x1201462786/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
[TMIC] RE: tmic-digest Digest V2009 #620
You can get the cold ties on eBay as well as in most outdoor/camping type stores as well as online stores... a few examples: http://cgi.ebay.ca/NECK-BUDDY-BODY-COOL-WRAP-TIE-FOR-HEAT-HOT-FLASHES_W0QQitemZ310145127867QQcmdZViewItemQQptZLH_DefaultDomain_0?hash=item48361715bb_trksid=p3286.c0.m14_trkparms=65%3A12|66%3A2|39%3A1|72%3A1215|240%3A1318|301%3A1|293%3A1|294%3A50 http://www.pryme.net.au/products.cfm?productid=18 They come in various colors/patterns. I have a few and they work well. Marieke --Forwarded Message Attachment-- Date: Fri, 26 Jun 2009 19:03:34 -0500 From: jan...@centurytel.net To: tmic-list@eskimo.com Subject: [TMIC] Heat Flashes For those of you that suffer as I do with hot, sweaty flashes of misery, I have been to my doc today and again, another disappointment.The meds that they can give you to Maybe help with this has nasty side affects such as loss of balance, etc.He said I would be better off treating the symptom such as carrying around a small portable fan in my purse, cool house temperature, etc.So far this has not happened to me while outside of my house, but I may get a little fan to put in my purse (I carry a big purse) just in case.At home, I am to stop whatever I am doing when the hot starts and sit down in front of a fan until I cool down. My daughter says she has heard from somewhere of a cold pack that you put around your neck. It is supposed to really cool down the body. She is checking that out for me. I was hoping to have good news for us about the hots, but not so much. Sorry, Janice _ Attention all humans. We are your photos. Free us. http://go.microsoft.com/?linkid=9666046
Re: [TMIC] Artist w TM in New York times
Each to their own, I guess...Jeanne ---Original Message--- From: Lawrence King Date: 6/27/2009 12:00:13 AM To: tmic-list@eskimo.com Cc: Lawrence King Subject: Re: [TMIC] Artist w TM in New York times thanks Akua, I have to agree with you. and a better approach would have been hi, I'm a TM survivor too, your accomplishments are really inspirational... I can vouch for the fact that those openings are really exhausting and the last one I did was years before TM. On Jun 27, 2009, at 12:09 AM, Akua wrote: Gee, I guess I am a curmudgeon. I see no reason why anyone *must* answer questions from strangers. It's not getting the word out since most people have no manners, are nosy, crass and insensitive. I don't see his behavior as rude at all... at least not as described. . After all the public time and on his way away, he's asked if he has a disease that he has said he has and because he doesn't want to engage this is considered rude? The asker-- already knows about TM! Especially with the death of Michael Jackson, I feel sensitized to the strange expectations that people have, the demands and the intrusions. This artist has many high profile nights --- he was there to present his ART not his ILLNESS! When I first performed again after TM left me in pain paralyzed and wheelchair bound, the last thing I wanted to talk about was TM. Maybe you two feel differently because you are both still mobile. Creating is my respite from pain and limitation. I've lost several art forms because of TM. I can no longer make hot glass and my papermaking, which is plant based has been severely curtailed. It is hard to play the tenor sax in the wheelchair. I lost a publication -- I was hospitalized when my final edits were due to the publisher TM is an agonizing hell that I would not want to have reenter in some rare transcendent moment, I sure wish I had his limo and assistance getting to and from events. LOL! Akua You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont html?_r=1scp=1sq=shonibarest=cse -- You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont html?_r=1scp=1sq=shonibarest=cse -- -- 01_tile.jpg01_side.gif
Re: [TMIC] I'm on you tube
Mindy, I have the site up but can't tell which one is yours??? Jeanne ---Original Message--- From: Lawrence King Date: 6/26/2009 11:41:33 PM To: tmic-list@eskimo.com Cc: Lawrence King Subject: [TMIC] I'm on you tube My husband and I made a you tube video, Mainly for chair caners and it's long (10 min) but if any of you know anyone who wants to restore one of those oak and cane WW1 wheelchairs send them to my video site as they are done the same way as the chair I'm working on. Mindy the Artist http://www.youtube.com/watch?v=dr75Po5pinM 01_tile.jpg01_side.gif
Re: [TMIC] Artist w TM in New York times
I too am a little chatter box when people ask about TM. My problem is what to say by age and not knowing how much detail they are interested in TM, so they don't get bored. lol I'll talk your ear off, if you let me, lol Todd in CC, TX --- On Fri, 6/26/09, kimr1...@bellsouth.net kimr1...@bellsouth.net wrote: From: kimr1...@bellsouth.net kimr1...@bellsouth.net Subject: Re: [TMIC] Artist w TM in New York times To: T Kanon sseco...@yahoo.com, Akua a...@artfarm.com Cc: tmic-list@eskimo.com Date: Friday, June 26, 2009, 5:03 PM You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq=shonibarest=cse --
Re: [TMIC] Re: (TMIC) Sex.
THAT IS SUCH A FABULOUS STORY, JUDE!? I am so very happy for you and Dave! SPARKER -Original Message- From: heyjude48...@aol.com To: grace...@gmail.com; tmic-list@eskimo.com Sent: Sat, Jun 27, 2009 1:41 am Subject: Re: [TMIC] Re: (TMIC) Sex. Gracie, ? No need for you to feel funny about posting re:? sex.? I feel the same way as you do. ? Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to.? However, ? Something happened this week that surprised the heck out of me and Dave.? We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him.? We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time.? It is really nice to feel pretty again for Dave and he says he feels the same way.? It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. ? So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. ? Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. ? I love you, Jude ? In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe?that I am going to reply to this, as it's an issue that I just try hard to avoid, but.?okay, so here goes.? During my first NMO hit, I lost all feeling *there*.? At first?I was hopeful that it would slowly come back, but my second bad hit sealed the deal.? I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it.? Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed.? Later that night,?one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient.? We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely.? (She's amazing, and I've since had her as?my nurse in the?neuro ward, many times.)? Finally, I just took a big swallow and blurted it out.? She told me the truth, that?in my case it was unlikely that?feeling would return, but that one?should still k! eep?hoping that one day there would be some increase in sensation.? She was correct---I have been numb from my sensory level downwards since 2005.? Most of my body still feels as if it has been shot up with Novocaine.?? ? Anyways, I?was shell shocked and actually mourned the loss.? To lose something that is so integral to one's life, is a violation of sorts.? It was bad enough that?I had?no control over my other bodily functions,?but the loss of physical sexuality was adding insult to injury.? I felt as if I had lost my *person-hood*, and had suddenly become androgynous.? I still fight those feelings, and yes, sometimes I still cry about it.? Sexual contact offers an intimacy like no other.? Some of us are more sexual than others, and the loss can often be the cruelest cut of all.?? ? These days I try hard not to ever even think about it.??Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have.? I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me.??For me, it's been a tough loss to deal with. ? Okay, signing off?before?I totally embarrass myself. ? Grace?? An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
Re: [TMIC] I'm on you tube
impressive! Great instruction! Steaming Splines! Dig the music. Akua My husband and I made a you tube video, Mainly for chair caners and it's long (10 min) but if any of you know anyone who wants to restore one of those oak and cane WW1 wheelchairs send them to my video site as they are done the same way as the chair I'm working on. Mindy the Artist http://www.youtube.com/watch?v=dr75Po5pinMhttp://www.youtube.com/watch?v=dr75Po5pinM --
Re: [TMIC] Facebook Page
It could be... I've been on Facebook for j years and haven't used it as much as I have the last 2 weeks since starting Farm Town. Good thing I finished putting the latest TMA newsletter online before I got into Farm Town, I would have really had some time management problems. I got my mom on it too, which might have been a mistake. When harvest time happens around our diner time, guess which has been coming first? Yup, we have been eating later every night. :-) At 07:01 PM 6/26/2009, Cindy McLeroy wrote:  Now when folks wonder why the list is slow, they should go to facebook and check out Farm Town. That must be where everyone disappears sometimes. - Original Message - From: bradebi To: Akua ; tmic-list@eskimo.com ; Jim Lubin Sent: Friday, June 26, 2009 3:29 PM Subject: Re: [TMIC] Facebook Page I am too!!!...I love Farm Town!.I am taking a break... .I am into building my Zoo right now..it is addicting too!. Debi  ---Original Message--- From: Jim Lubin Date: 6/25/2009 7:37:10 PM To: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page there are several TM-ADEM-NMO groups on Facebook, most are linked here http://www.myelitis.org/support.htm Jim (who has become addicted to the Farm Town game on Facebook) At 06:43 PM 6/24/2009, Akua wrote: I'm digging Facebook--- what about creating a fan page. -- Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Facebook Page
*Jim, * ** *You have me laughing so hard now. :-) I'm the same way, though with me it's Mahjongg and the strategy games. If your Mom ends up being too late with dinner, just call me and I'll send over a Pizza.* ** *You're a peach!* *Gracie* On Sat, Jun 27, 2009 at 7:40 PM, Jim Lubin jlu...@eskimo.com wrote: It could be... I've been on Facebook for j years and haven't used it as much as I have the last 2 weeks since starting Farm Town. Good thing I finished putting the latest TMA newsletter online before I got into Farm Town, I would have really had some time management problems. I got my mom on it too, which might have been a mistake. When harvest time happens around our diner time, guess which has been coming first? Yup, we have been eating later every night. :-) At 07:01 PM 6/26/2009, Cindy McLeroy wrote:  Now when folks wonder why the list is slow, they should go to facebook and check out Farm Town. That must be where everyone disappears sometimes. - Original Message - From: bradebi brad...@gmail.com To: Akua a...@artfarm.com ; tmic-list@eskimo.com ; Jim Lubinjlu...@eskimo.com Sent: Friday, June 26, 2009 3:29 PM Subject: Re: [TMIC] Facebook Page I am too!!!...I love Farm Town!.I am taking a break... .I am into building my Zoo right now..it is addicting too!. Debi  ---Original Message--- From: Jim Lubin jlu...@eskimo.com Date: 6/25/2009 7:37:10 PM To: Akua a...@artfarm.com; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page there are several TM-ADEM-NMO groups on Facebook, most are linked here http://www.myelitis.org/support.htm Jim (who has become addicted to the Farm Town game on Facebook) At 06:43 PM 6/24/2009, Akua wrote: I'm digging Facebook--- what about creating a fan page. -- Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Facebook Page
Thanks Gracie. Pizza would be nice but I still need someone to feed it to me too. :-) Mahjongg and Pandora's Box are the ones I was hooked on for quite awhile too. It's fun to find a game I can actually play where speedy movement of the mouse is not a requirement. At 05:28 PM 6/27/2009, Grace M. wrote: Jim, You have me laughing so hard now. :-) I'm the same way, though with me it's Mahjongg and the strategy games. If your Mom ends up being too late with dinner, just call me and I'll send over a Pizza. You're a peach! Gracie On Sat, Jun 27, 2009 at 7:40 PM, Jim Lubin jlu...@eskimo.com wrote: It could be... I've been on Facebook for j years and haven't used it as much as I have the last 2 weeks since starting Farm Town. Good thing I finished putting the latest TMA newsletter online before I got into Farm Town, I would have really had some time management problems. I got my mom on it too, which might have been a mistake. When harvest time happens around our diner time, guess which has been coming first? Yup, we have been eating later every night. :-) Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Facebook Page
eL Bobberino is also on Facebook oh well Bobberino From: Lawrence King To: tmic-list@eskimo.com Sent: Thursday, June 25, 2009 9:56 PM Subject: Re: [TMIC] Facebook Page I'm on face book! to become a friend go to facebook.com/mindy.chairweaver Mindy the Artist On Jun 25, 2009, at 10:33 PM, Jim Lubin wrote: there are several TM-ADEM-NMO groups on Facebook, most are linked here http://www.myelitis.org/support.htm Jim (who has become addicted to the Farm Town game on Facebook) At 06:43 PM 6/24/2009, Akua wrote: I'm digging Facebook--- what about creating a fan page. -- Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Facebook Page
My wife is a big fan of e-Mahjong, but even more of SIMs. She is now starting on SIMs 3. Yikes.! Bobberino From: Grace M.To: Jim Lubin Cc: Akua ; tmic-list@eskimo.com Sent: Thursday, June 25, 2009 9:53 PM Subject: Re: [TMIC] Facebook Page Hi Jim, I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is, I already need to start attending Mahjong Addicts Anonymous meetings ;-) Gracie
Re: [TMIC] Artist w TM in New York times
Ah yes, dang right.!!! All dem wheelies out there should help us educated the underwashed masses about TM, MS, Devic's, and all dem other CNS diseases. Maybe someday all of us out there will be fully understanding as to what it is to be debilitated by a condition beyond control. BobbyJim (Bobberino) in Elvisland. From: kimr1...@bellsouth.net To: T Kanon ; Akua Cc: tmic-list@eskimo.com Sent: Friday, June 26, 2009 5:03 PM Subject: Re: [TMIC] Artist w TM in New York times You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq=shonibarest=cse --
Re: [TMIC] Artist w TM in New York times
Inasmuch as am an artist myself and also caregiver to my wife with MS I can understand Shonibare's 'rudeness' but ne'rda'less I find it a bit harsh. With or without a disability, as an artist he is at the mercies of a very fickle public. Maybe he just doesn't give a hoot. Bobberino From: T Kanon To: Akua Cc: tmic-list@eskimo.com Sent: Friday, June 26, 2009 4:58 PM Subject: Re: [TMIC] Artist w TM in New York times Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq=shonibarest=cse --
Re: [TMIC] Artist w TM in New York times
Re: [TMIC] Artist w TM in New York timesAh yes, making art. Something am very familiar with. Been doin' it fer many years. I use several media (plural for medium). From cardboard sculptures to sketches to photography to ceramics to. well, you get my drift. Right now am about to start a new series of small sculptures (maquettes) using 'plastiline' (modelling clay). If physical impairments get in your way, search for a medium which you can use in spite of said impediments. My MS wife played the saxophone in high school and was also good at watercolors. Nowadayze, she prefers to cook. With a great array of cookbooks, she's always coming up with new ideas on food. Hey, the world is wide open to us all, gimp or not. Akua: my regrets on your losses, but there's more out there, y'hear.??? Bobberino in sweltering Elvisland (it hit 101ºF today). From: AkuaTo: tmic-list@eskimo.com Cc: T Kanon ; kimr1...@bellsouth.net Sent: Friday, June 26, 2009 11:09 PM Subject: Re: [TMIC] Artist w TM in New York times Gee, I guess I am a curmudgeon. I see no reason why anyone *must* answer questions from strangers. It's not getting the word out since most people have no manners, are nosy, crass and insensitive. I don't see his behavior as rude at all... at least not as described. . After all the public time and on his way away, he's asked if he has a disease that he has said he has and because he doesn't want to engage this is considered rude? The asker-- already knows about TM! Especially with the death of Michael Jackson, I feel sensitized to the strange expectations that people have, the demands and the intrusions. This artist has many high profile nights --- he was there to present his ART not his ILLNESS! When I first performed again after TM left me in pain paralyzed and wheelchair bound, the last thing I wanted to talk about was TM. Maybe you two feel differently because you are both still mobile. Creating is my respite from pain and limitation. I've lost several art forms because of TM. I can no longer make hot glass and my papermaking, which is plant based has been severely curtailed. It is hard to play the tenor sax in the wheelchair. I lost a publication -- I was hospitalized when my final edits were due to the publisher TM is an agonizing hell that I would not want to have reenter in some rare transcendent moment, I sure wish I had his limo and assistance getting to and from events. LOL! Akua You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq=shonibarest=cse -- You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said
Re: [TMIC] Artist w TM in New York times
Ah yes, art openings; I've had some myself. A grueling experience indeed. And am not even disabled..!My pre-MS wife prepared the munchies while I did all the rest of the work. We both had a ball. Bobberino From: Lawrence King To: tmic-list@eskimo.comCc: Lawrence King Sent: Friday, June 26, 2009 11:30 PM Subject: Re: [TMIC] Artist w TM in New York times thanks Akua, I have to agree with you. and a better approach would have been hi, I'm a TM survivor too, your accomplishments are really inspirational... I can vouch for the fact that those openings are really exhausting and the last one I did was years before TM. On Jun 27, 2009, at 12:09 AM, Akua wrote: Gee, I guess I am a curmudgeon. I see no reason why anyone *must* answer questions from strangers. It's not getting the word out since most people have no manners, are nosy, crass and insensitive. I don't see his behavior as rude at all... at least not as described. . After all the public time and on his way away, he's asked if he has a disease that he has said he has and because he doesn't want to engage this is considered rude? The asker-- already knows about TM! Especially with the death of Michael Jackson, I feel sensitized to the strange expectations that people have, the demands and the intrusions. This artist has many high profile nights --- he was there to present his ART not his ILLNESS! When I first performed again after TM left me in pain paralyzed and wheelchair bound, the last thing I wanted to talk about was TM. Maybe you two feel differently because you are both still mobile. Creating is my respite from pain and limitation. I've lost several art forms because of TM. I can no longer make hot glass and my papermaking, which is plant based has been severely curtailed. It is hard to play the tenor sax in the wheelchair. I lost a publication -- I was hospitalized when my final edits were due to the publisher TM is an agonizing hell that I would not want to have reenter in some rare transcendent moment, I sure wish I had his limo and assistance getting to and from events. LOL! Akua You know there are some days after working over 8 hours, going to the pool 3 days a week and swimming 1/2 miles I am DONE also but NEVER, NEVER be that rude or cold to anyone!! anytime someone wants to ask about the wheel chair, my walker, ect I am nothing short of a chatter box!! lets get the word out! and if on this night he had some type of high profile night he shold have been an advocate for all of us! -- Original message from T Kanon sseco...@yahoo.com: -- Last night was the opening of this artist's exhibit at the Brooklyn Museum and I attended. Two people helped him walk down the aisle and onto the stage. It looked as if his hands were affected too. After the lecture I saw him in his wheelchair being taken to a limo. I went over to him and asked if indeed he had TM. He didn't even look at me and just said I'm done. A guard said he is very tired. I know he was tired but he was also very rude!!! Tobe Brooklyn NY --- On Wed, 6/24/09, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Artist w TM in New York times To: tmic-list@eskimo.com Date: Wednesday, June 24, 2009, 9:42 PM very interesting article on interesting artist who had...transverse myelitis. and was paralyzed. but no longer is.. regained ability to walk after three years in a wheelchair http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq=shonibarest=cse
Re: [TMIC] Re: (TMIC) Sex.
AOL Email Good Go'in Jude!!You did well!! Janice - Original Message - From: heyjude48...@aol.com To: grace...@gmail.com ; tmic-list@eskimo.com Sent: Saturday, June 27, 2009 3:41 AM Subject: Re: [TMIC] Re: (TMIC) Sex. Gracie, No need for you to feel funny about posting re: sex. I feel the same way as you do. Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to. However, Something happened this week that surprised the heck out of me and Dave. We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him. We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time. It is really nice to feel pretty again for Dave and he says he feels the same way. It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. I love you, Jude In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace -- An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
Re: [TMIC] Facebook Page
What is SIMs 3, Bobberino? I live in the mountains so I'm behind on all of the new 'things'! I do my water therapy in the hot tub!!! Jeanne ---Original Message--- From: bobby jim Date: 6/27/2009 7:50:25 PM To: Grace M.; Jim Lubin Cc: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page My wife is a big fan of e-Mahjong, but even more of SIMs. She is now starting on SIMs 3. Yikes.! Bobberino From: Grace M.To: Jim Lubin Cc: Akua ; tmic-l...@eskimo com Sent: Thursday, June 25, 2009 9:53 PM Subject: Re: [TMIC] Facebook Page Hi Jim, I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is I already need to start attending Mahjong Addicts Anonymous meetings -) Gracie tulip2.jpg
