[TMIC] QUESTION ON LARNETON
Hello all I've had a contact from another PA Tm'er who has asked me to look into a medication called LARNETON. (www.larneton.com http://www.larneton.com/ ). I'm not certain where he first heard about it, but he has asked me to inquire to our list if anyone else has heard of it. I have checked out the website, and as a lot of things go, it appears to be one of those too good to be true herbal medications that promise a cure. From what I can gather from the website, it must be from the New Zealand area. Has anyone heard of this before? I'm thinking if it's more localized to New Zealand or Australia and perhaps Errol White might have some insight. I'll be awaiting your replies. Thanks! Sue
[TMIC] Walker etiquette
Hi all, I just wrote a little piece about things to consider when around people who use walkers, especially not jerking or pulling on them while trying to help the person: http://barbarah.wordpress.com/2010/04/17/a-public-service-announcement-concerning-walkers/ I'd appreciate hearing what you think and if there is anything else I forgot. Please do keep it positive, though -- I don't want to make people feel I am griping at them, but rather just bringing things up for their consideration that they've probably not thought of before unless they've had to use a walker. Thanks, Barbara H. http://barbarah.wordpress.com/
[TMIC] LARNETON - PART 2
Hello all.again. I've done a little more research on Larneton that I asked about in my other e-mail. Seems this Gordon's Herbal Research Center thing is a hoax. Apparently they also have other sites where they promise that the same formula that cures everything from Guillian-Barre to Polymyalgia Rheumatica, to Burning Mouth Disease (what ever THAT is!)and on...and onand on.. Something should be done to stop scammers from doing this crap. Sue
Re: [TMIC] LARNETON - PART 2
Hi Sue and everyone... I had this same question asked of me on my TM Network siteit had to do with Larneton and another herbal product (I don't recall) but I had found this webpage referencing this from the Ministry of Health in New Zealand. Here is a link for you to read... http://www.moh.govt.nz/moh.nsf/0/22459AF3D41CA288CC257676007E651F Beware of these knuckleheads... Kevin Weilacher N.E. Ohio (Canton) From: Bob and Sue Mattis bobsue6...@adelphia.net To: tmic-list@eskimo.com Sent: Sat, April 17, 2010 11:51:23 AM Subject: [TMIC] LARNETON - PART 2 Hello all.again. I’ve done a little more research on Larneton that I asked about in my other e-mail. Seems this Gordon’s HerbalResearchCenterthing is a hoax. Apparently they also have other sites where they promise that the same formula that cures everything from Guillian-Barre to Polymyalgia Rheumatica, to Burning Mouth Disease (what ever THAT is!)and on...and onand on.. Something should be done to stop scammers from doing this crap. Sue
RE: [TMIC] QUESTION ON LARNETON
Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a drug or herb that was guaranteed to treat myelitis and resolve symptoms, the medical community would have jumped on it. Respectfully, Grace
Re: [TMIC] QUESTION ON LARNETON
Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a hyperbaric chamber. There was a big study done in Quebec, but because no meds were needed, just oxygen, they pulled the plug on it. While it was a double-blind study, it wasn't hard to figure out who was getting O2 vs. air...kids who were completely immobile were walking and talking. My roomate was a student shadow and her student was in this trial, but on the placebo. Parents had to pay through the nose to go have it done in another province privately. So yes, there are sometimes cures that people don't know about because the pharma companies go out of their way to discredit and bash them so that people mistrust. My first question to myself is usually, can it hurt to try? If there's riskm, then yes, I'd be weary, but if it's something that wouldn't harm me regardless, bring it on. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 17/04/2010 11:53 AM, Grace M. wrote: Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a drug or herb that was guaranteed to treat myelitis and resolve symptoms, the medical community would have jumped on it. Respectfully, Grace
RE: [TMIC] QUESTION ON LARNETON
I agree Laura, but you do have to be very careful. Right after I got TM, I saw an ad for a herbal supplement for TM that came from Hong Kong through a company in London. I sent for it and took it for several months. I did not noticed any problems or benefits, but then one of my doctors had me do a a liver test. They found my liver enzymes were in terrible shape. As soon as I stopped the drug, my enzymes went back to normal. I am so glad the doctor did a routine check, or who knows how much damage I might have done. The one good thing is that the company did refund all the money I had spent on the drug. Be wise and be careful. Patti - Wisconsin -Original Message- From: Laura Beaudin [mailto:laura.beau...@gmail.com] Sent: Saturday, April 17, 2010 1:02 PM To: Grace M. Cc: tmic-list@eskimo.com Subject: Re: [TMIC] QUESTION ON LARNETON Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a hyperbaric chamber. There was a big study done in Quebec, but because no meds were needed, just oxygen, they pulled the plug on it. While it was a double-blind study, it wasn't hard to figure out who was getting O2 vs. air...kids who were completely immobile were walking and talking. My roomate was a student shadow and her student was in this trial, but on the placebo. Parents had to pay through the nose to go have it done in another province privately. So yes, there are sometimes cures that people don't know about because the pharma companies go out of their way to discredit and bash them so that people mistrust. My first question to myself is usually, can it hurt to try? If there's riskm, then yes, I'd be weary, but if it's something that wouldn't harm me regardless, bring it on. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 17/04/2010 11:53 AM, Grace M. wrote: Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a drug or herb that was guaranteed to treat myelitis and resolve symptoms, the medical community would have jumped on it. Respectfully, Grace
Re: [TMIC] QUESTION ON LARNETON
This is a good point...and I have heard of situations where the oxygen fed hyperbaric chamber has been an effective treatment for quite a few diseases and disorders to include Multiple Sclerosis. Case in point, Ronnie Lane who was one of the founding members of the 60's band, The Small Faces developed MS and tried every treatment he could find and it was only when he found the chamber did he get any relief and actually started to get better. Here is an excerpt of an interview with Ronnie Lane that raises some very interesting information regarding the MS Society and other info. I will also provide a link to the entire interview, it is worth the read BOO: Well, no, it’s notall going to Florida. It’s all going to ARMS, to set up ARMS (In America). And Florida... Professor Neubauer is the doctor in Florida that has an HBO center. And, in fact, he’s the leading man on hyperbaric oxygen. LANE: He started it. DAVE: How long ago did this treatment come about, then? BOO: A long time ago! DAVE: It just hasn’t gotten that much attention... BOO: Well, what happened was there was a report made by a Dr. Fischer that was, I think, in 1978. That report came about (because) the MS Society hired Fischer to disprove Neubauer, and he couldn’t disprove Neubauer! I’ll show you a video in a minute. He couldn’t disprove him, and his report was completed in 1980, and it’s only just come out this year!I mean, what is it all about?! So, this whole concert is also a little bit of the rebel coming out of rock and roll!It’s not quite as straightforward! They know... LANE: One thing is for sure: there’s a bit more to this Multiple Sclerosis Society than meets the eye! Without a doubt! BOO: In thiscountry. LANE: Because they blocked going ahead for hyperbaric oxygen, and they’ve really got no right to because... BOO: They like the double –blind trial. Okay, they’re playing it super-safe. But, when ARMS was formed about six years ago... this is an English group of everybody who is fed upwith going to MS Society meetings, and they’re told you’ve got a disease... LANE: ...accept it!... DAVE: Leave it at that... BOO: You’re slowly going to become disabled. So, be a good boy now and go into your wheelchair, and make it easy on the people who have to look after you.That sort of whole mentality: There’s nothing we can do for you. And that, to me, is killing somebody before they’ve even started. The whole Action Research is Up you, MS Society! And it’s all people and friends and relatives of people who have MS that started it. The person that’s going around now about hyperbaric oxygen, his wife died! Not from MS, but from septicemia, from bedsores. It’s disgusting, isn’t it? But, HBO helps the bedsores! It helps the skin heal. And, in fact, in Whipp's Cross Hospital and in Ascot, another hospital, they have HBO units where they put people who have bedsores into their HBO chamber, completely... Link to the entire interview http://www.the-faces.com/lane/1lane2.htm Now, as far as the Larneton goes...that stuff is bunk...too many discredits that I have found and read... Kevin Weilacher N.E. Ohio (Canton) From: Laura Beaudin laura.beau...@gmail.com To: Grace M. grace...@gmail.com Cc: tmic-list@eskimo.com Sent: Sat, April 17, 2010 2:01:50 PM Subject: Re: [TMIC] QUESTION ON LARNETON Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a hyperbaric chamber. There was a big study done in Quebec, but because no meds were needed, just oxygen, they pulled the plug on it. While it was a double-blind study, it wasn't hard to figure out who was getting O2 vs. air...kids who were completely immobile were walking and talking. My roomate was a student shadow and her student was in this trial, but on the placebo. Parents had to pay through the nose to go have it done in another province privately. So yes, there are sometimes cures that people don't know about because the pharma companies go out of their way to discredit and bash them so that people mistrust. My first question to myself is usually, can it hurt to try? If there's riskm, then yes, I'd be weary, but if it's something that wouldn't harm me regardless, bring it on. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 17/04/2010 11:53 AM, Grace M. wrote: Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a
Re: [TMIC] QUESTION ON LARNETON
My first question to myself is usually, can it hurt to try? If there's risk, then yes, I'd be wary, but if it's something that wouldn't harm me regardless, bring it on. What's most interesting about this is that every pharma I've been prescribed has risks () The last one i got rid of, Oxy-B, was found to affect short term memory. --
Re: [TMIC] Hi, just checking in from our eating vacation
Hi Alton, Replying about Lamberts Cafe: The roll throwing is just one of the things that they are famous for. When you order your meal it comes with sides, like vegies, etc. You pick those and then they come around with large bowls of fried okra, fried potatoes, black-eyed peas, macaroni and tomatoes, maybe something else that I've forgotten. Also, they don't bring bread to the table, they have another person with a cart full of muffin tins that walks around the restaurant throwing rolls to anyone who wants them. People say over here and the person throws them a roll, it's a fun place. It's a sit down restaurant, but it's also an all you can eat place, where people can consume huge amounts of food. If you didn't get enough of your entree' they will bring you more, which is so hard to believe because the portions are large. My husband saw it on TV, thinks most likely on Man vs. Food, or the Favorite Places to Pigout or something like that. We both ordered fried chicken, you can have which ever pieces you want, we took the breasts and got 2 huge ones and a baked potato and another side. Well, by the time I had mine all mixed in with the fixings they came around with the pan fried potatoes and my baked potato came home with me, as well as a chicken breast and a half. Most of my dinner consisted of the pass arounds, but I was very proud of myself - I only ate one roll, and it was fantastic. Hugs, Barbara A in Auburn CA -Original Message- From: Alton Ryder a-ry...@comcast.net To: Barbara Alma balmat...@aol.com Sent: Sat, Apr 17, 2010 4:35 am Subject: Re: [TMIC] Hi, just checking in from our eating vacation Surely you will tell people what this roll throwing is all about. Is it related to how they make rolls, e.g., beaten biscuits. Alton On Apr 17, 2010, at 12:49 AM, Barbara Alma wrote Lamberts Cafe, where they throw the rolls. Lots of fun
[TMIC] TMIC Neurontin--does it exhaust you?
I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Jill, That is what Lyrica did to me too - bloat, swell, bloat.Hated it. I take Neurontin with no side affects, but I only take 1500 mg's.Hope you find something that works better for you. Janice From: Jill Posner Sent: Saturday, April 17, 2010 5:23 PM To: Janice Nichols ; Neil McNeil ; we4king...@verizon.net ; tmic-list@eskimo.com Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
[TMIC] TMIC Neurontin--does it exhaust you?
Different for everyone I see. Neurontin made me swell up. I am on Lyrica. 75mg a.m. 150 mg p.m. Sure has helped the banding and burning. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: April 17, 2010 8:25 PM To: Jill Posner; Neil McNeil; we4king...@verizon.net; tmic-list@eskimo.com Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? Jill, That is what Lyrica did to me too - bloat, swell, bloat.Hated it. I take Neurontin with no side affects, but I only take 1500 mg's.Hope you find something that works better for you. Janice From: Jill Posner mailto:posnerj...@yahoo.com Sent: Saturday, April 17, 2010 5:23 PM To: Janice mailto:jan...@centurytel.net Nichols ; Neil McNeil mailto:n_...@hotmail.com ; we4king...@verizon.net ; tmic-list@eskimo.com Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
I used 2400 mgs for two years. In the beginning it zombified me and made me bloat a little, but with time those effects wore off. It helped me a lot. Grace
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Hi Jill, I've had TM now since Sept 6, 2003. I was on 3200 mg of Neurontin (900 mg 4 times a day) for about the first 2 years. It, along with all the other meds wiped me out but my body learned to tolerate it after a some months. I then went down to 2400 mg a day -- 600 mg 4 times a day now for the past 4 1/2 years. Never eliminates the pain but makes it tolerable. I tried Lyrica but after the first 10 days my feet, ankles and calves were badly swollen and I felt like I was walking on rockers and could not get my shoes tied tightly. So the neuro put me back on Neurontin (actually Gabapentin for me). I found that the Lyrica made a difference in the pain but the side effects were not good for me. He told me that about 7% of patients have swelling side effects to the Lyrica. I also take 40 mg Baclofen/day (10 mg with each dose of Gabapentin) for the spasms. Then 4 mg of Zanaflex before bed. Heather in Calgary - Original Message - From: Jill Posner To: Janice Nichols ; Neil McNeil ; we4king...@verizon.net ; tmic-list@eskimo.com Sent: Saturday, April 17, 2010 4:23 PM Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
