RE: [TMIC] The Sweats
Personally, I am not bothered by the sweats, a good thing since I live and work in Abu Dhabi, where it is now above 100 every day and the humidity is so high you mop your glasses whenever you leave the air conditioned confines of a building or car. I know that MS-ers are supposed to be universally done in by heat, but not me. Since I got Transverse Myelitis a lot has changed in the situation and symptoms. Dalton Garis _ From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Friday, June 18, 2010 12:33 AM To: tmic-list@eskimo.com Subject: [TMIC] The Sweats Would like a count of those bothered with the sweats - the really hot drippy sweats, even when in a relatively cool atmosphere. My doc calls it disautonomia. It is the pits.Have it some in the winter, but it is really a problem in the summer. Anyone else, male or female, have this problem? Janice
[TMIC]
hi there; while I had chronic myletopy; I received many good wishes. thank you again for your caring and support. I have a question is the chat line still in operation if so what is the link to it. thanks Gerry in montreal
RE: [TMIC]
Garry; I utilize the MS World chatroom because it is frequented a lot by demyelinating disease sufferers; and some even have TM themselves. I found several who had MS after getting TM, but so far, I am the only one getting TM after getting MS (things happen!). Good luck, Dalton Garis PS: Are there many persons named Garis or De Garis up there? _ From: Gerry Surette [mailto:suret...@sympatico.ca] Sent: Friday, June 18, 2010 6:40 AM To: tmic-list@eskimo.com Subject: [TMIC] hi there; while I had chronic myletopy; I received many good wishes. thank you again for your caring and support. I have a question is the chat line still in operation if so what is the link to it. thanks Gerry in montreal
Re: [TMIC] The Sweats
Janet, My neuro told me that my temp control would never come back, and that I would only sweat above where I was attacked, t8. And, he was correct!! That was the only thing he told wouldn't be repaired and after 14½ years I'm a believer!!I was warned not to stay out in heat for long periods as heat stroke is possible when your whole body can't sweator as a lady, perspire!! janhFrom: Janet Dunn j.d...@shaw.caTo: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.comSent: Fri, June 18, 2010 12:56:45 AMSubject: RE: [TMIC] The "Sweats"Hi JaniceAbout the sweats: I had them so bad that they would make me sick to my stomach, ready to pass out. I found that the heat could not go down, it could only go up – I mean from the waist up. I thought it was medication reactions, I thought maybe my kidneys were acting up. Then I realized that at 47 it could be “hot flashes”. I started taking Maca and low and behold, most of the problem has disappeared. However, whenever I get hot, or am too active, or in an uncomfortable situation, and sometimes for no reason at all, I will drip sweat – it runs down my back, my front, my face – yuck. But, like I said, for the most part the Maca takes care of the temperature issue. Don’t know where you are on the grand calendar of life, but I found that it sure helps for me. Whenever I feel the body heat begin to climb, I take some. Don’t know if it is related to my age, but it sure helps the temperature and the sweating.P.S. Ladies don’t sweat, they perspire! Ha Ha Ha!JanetFrom:Janice Nichols [mailto:jan...@centurytel.net] Sent: June 17, 2010 9:33 PMTo: tmic-list@eskimo.comSubject: [TMIC] The "Sweats"Would like a count of those bothered with "the sweats" - the really hot drippy sweats, even when in a relatively cool atmosphere. My doc calls it"disautonomia". It is the pits. Have it some in the winter, but it is really a problem in the summer. Anyone else, male or female, have thisproblem?Janice
RE: [TMIC] The Sweats
Hi Jan Thanks for that info. I have been in a far infra red sauna and I definitely can “sweat” below my injury. When in the sauna even the calves of my legs can sweat and I didn’t even know that was possible. That is an induced sweat. When my body overheats naturally, it is only from the injury up, now that I think about it. That is very interesting – I never thought to pay attention before, but that explains why the heat feels like it is only in the top half of my body – I know that at work I sit with heavy socks on, two pairs of woolen slippers and a blanket on my legs, but the window wide open for a breeze as I am hot hot hot from the injury up. Thanks for bringing that to my attention. Funny how sometimes we never stop to think about the whole picture! Janet From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: June 18, 2010 8:01 AM To: Janet Dunn; tmic-l...@eskimo.net; Janice Nichols Subject: Re: [TMIC] The Sweats Janet, My neuro told me that my temp control would never come back, and that I would only sweat above where I was attacked, t8. And, he was correct!! That was the only thing he told wouldn't be repaired and after 14½ years I'm a believer!! I was warned not to stay out in heat for long periods as heat stroke is possible when your whole body can't sweator as a lady, perspire!! janh From: Janet Dunn j.d...@shaw.ca To: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com Sent: Fri, June 18, 2010 12:56:45 AM Subject: RE: [TMIC] The Sweats image001.gifimage002.gif
RE: [TMIC]
Is it actually that you had MS and now you have TM, or just that the doctors speculated that you might have MS, and then after a while determined that your actual diagnosis is TM due to the results of your testing? Some doctors are very conservative in their diagnoses while others jump the gun and diagnose too quickly before completing all testing. That did happen to me while I was in the hospital in Minnesota. I had one doctor tell me that I quite possibly had MS and that they wouldn't make an official DX until further attacks, and then another doctor came into my room and told me that the first doctor spoke out of school and I should ignore what he said to me. Just because a doctor says you have something does NOT necessarily make it so. They are not always God, just trying to act like it. Take care, Debbie From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Friday, June 18, 2010 3:44 AM To: 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Garry; I utilize the MS World chatroom because it is frequented a lot by demyelinating disease sufferers; and some even have TM themselves. I found several who had MS after getting TM, but so far, I am the only one getting TM after getting MS (things happen!). Good luck, Dalton Garis PS: Are there many persons named Garis or De Garis up there? _ From: Gerry Surette [mailto:suret...@sympatico.ca] Sent: Friday, June 18, 2010 6:40 AM To: tmic-list@eskimo.com Subject: [TMIC] hi there; while I had chronic myletopy; I received many good wishes. thank you again for your caring and support. I have a question is the chat line still in operation if so what is the link to it. thanks Gerry in montreal
RE: [TMIC]
Deborah; Actually, I'm not concerned what the drs call it; it doesn't change how I live if they end up calling it TM or MS or whatever. The name of the thing is their business. It's done its thing if TM and if MS. I just live with it. I don't see any difference, actually. It's not as if we have cancer or something else here. Done is done; so, how would it change anything? Dalton In New York: 718-271-2738 _ From: Deborah Nord Capen [mailto:dca...@earthlink.net] Sent: Friday, June 18, 2010 11:49 AM To: 'Dalton Garis'; 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Is it actually that you had MS and now you have TM, or just that the doctors speculated that you might have MS, and then after a while determined that your actual diagnosis is TM due to the results of your testing? Some doctors are very conservative in their diagnoses while others jump the gun and diagnose too quickly before completing all testing. That did happen to me while I was in the hospital in Minnesota. I had one doctor tell me that I quite possibly had MS and that they wouldn't make an official DX until further attacks, and then another doctor came into my room and told me that the first doctor spoke out of school and I should ignore what he said to me. Just because a doctor says you have something does NOT necessarily make it so. They are not always God, just trying to act like it. Take care, Debbie From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Friday, June 18, 2010 3:44 AM To: 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Garry; I utilize the MS World chatroom because it is frequented a lot by demyelinating disease sufferers; and some even have TM themselves. I found several who had MS after getting TM, but so far, I am the only one getting TM after getting MS (things happen!). Good luck, Dalton Garis PS: Are there many persons named Garis or De Garis up there? _ From: Gerry Surette [mailto:suret...@sympatico.ca] Sent: Friday, June 18, 2010 6:40 AM To: tmic-list@eskimo.com Subject: [TMIC] hi there; while I had chronic myletopy; I received many good wishes. thank you again for your caring and support. I have a question is the chat line still in operation if so what is the link to it. thanks Gerry in montreal
Re: [TMIC]
Hello Dalton, I have many MS friends and among them are those who have experienced TM. Some prior to their MS diagnosis, and some after. I myself experience episodes of relapsing LETM (Longitudinally Extensive Transverse Myelitis) but as a result of having NMO. Gracie
RE: [TMIC]
Thanks, Gracie; I feel as if in some kind of mixer with all these you-don't-have-you-did-have's going back in forth. Your statement takes some of the pressure off somehow. Here is what has happened since 9 January of this year: The first attack was left side weakness, girdling, etc, only involving the left side-left eye pain, a headache on the left side of the head right up to the center of the skull, of a different quality from the ordinary migraines I was used to, etc, etc, just like MS. Then symptoms lessened in about a week. The second attack was 6 weeks later, like the first in every way only stronger. Again, symptoms lessened in about a week. Something completely different began two months later, with a severe and unique backache one night followed the next day with twitching, spasticity, difficulty swallowing, difficulty with urinating, and weakness on both sides of the body. It also included aches in the forelimbs of arms and legs which haven't gone away and extend to just above both knees and elbows. There was also worsening of balance control, etc. Also, all types of headaches completely disappeared and I have gotten only one headache since 23 April, when I went down with convulsions after getting that backache the night before. Very strange. The first set of symptoms read like the typical MS attack; and the latter set sounds like typical TM. I still get these convulsions that last from ten minutes to six hours. They come in waves, tightening, then easing off, first the back of the body, then the front side. So it looked to me and to all the world like MS to begin with, then TM later on. As I said earlier to someone else, I really don't care what they call it since I can't see that it would make any difference to me in any way, in treatment regimes or anything. I have good days and bad days, one-cane days and two-cane days and stay-at home days. The real thing is these convulsion attacks. They are really upsetting and keep me inside, for instance, not being able to see the Yankees-Mets game for fear I begin convulsing in the stands and there is a big, expensive fuss. Thanks, again for your input. Dalton Dalton Garis Office: +971-2-607-5070/-5297 Fax: +971-2-607-2500 Mobile: +971-50-668-5760 In New York: 718-271-2738 _ From: Grace M. [mailto:grace...@gmail.com] Sent: Friday, June 18, 2010 1:58 PM To: Deborah Nord Capen Cc: Dalton Garis; Gerry Surette; tmic-list@eskimo.com Subject: Re: [TMIC] Hello Dalton, I have many MS friends and among them are those who have experienced TM. Some prior to their MS diagnosis, and some after. I myself experience episodes of relapsing LETM (Longitudinally Extensive Transverse Myelitis) but as a result of having NMO. Gracie
Re: [TMIC] The Sweats
Hi Janice, Since tm,especially in summer,I sweat only on the right side of my face,and that side gets red when it's hot.The left side stays pale and dry. No one knows why since my lesion was T4-T5 ; as one doc said,it doesn't make any sense at all. But then,not much about tm makes sense to me. Cheryl in hot,sunny Easthampton,MA. (yes,my face is red and wet on the right side) --- On Fri, 6/18/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: [TMIC] The Sweats To: tmic-list@eskimo.com Date: Friday, June 18, 2010, 12:33 AM Would like a count of those bothered with the sweats - the really hot drippy sweats, even when in a relatively cool atmosphere. My doc calls it disautonomia. It is the pits. Have it some in the winter, but it is really a problem in the summer. Anyone else, male or female, have this problem? Janice
Re: [TMIC] The Sweats
Glad I could helpit's amazing, this human body, and what it does or doesn't do!!Prior to tm I never thought what 'made' me do one thing or anotherbut since tm I've learned that I now have to make demands that I used to do without thinkinglearning to walk again was probably my first surprise-- that I had to tell my self to put one foot down and then the other, etc "Ain't life great?" one reason why laughter is best medicine..for if we don't laugh, we'll be crying! jan From: Janet Dunn j.d...@shaw.caTo: Jan Hargrove jmh1...@sbcglobal.net; tmic-l...@eskimo.net; Janice Nichols jan...@centurytel.netSent: Fri, June 18, 2010 10:11:04 AMSubject: RE: [TMIC] The "Sweats" Hi Jan Thanks for that info. I have been in a far infra red sauna and I definitely can “sweat” below my injury. When in the sauna even the calves of my legs can sweat and I didn’t even know that was possible. That is an induced sweat. When my body overheats naturally, it is only from the injury up, now that I think about it. That is very interesting – I never thought to pay attention before, but that explains why the heat feels like it is only in the top half of my body – I know that at work I sit with heavy socks on, two pairs of woolen slippers and a blanket on my legs, but the window wide open for a breeze as I am hot hot hot from the injury up. Thanks for bringing that to my attention. Funny how sometimes we never stop to think about the whole picture! Janet From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: June 18, 2010 8:01 AMTo: Janet Dunn; tmic-l...@eskimo.net; Janice NicholsSubject: Re: [TMIC] The "Sweats" Janet, My neuro told me that my temp control would never come back, and that I would only sweat above where I was attacked, t8. And, he was correct!! That was the only thing he told wouldn't be repaired and after 14½ years I'm a believer!!I was warned not to stay out in heat for long periods as heat stroke is possible when your whole body can't sweator as a lady, perspire!! janhFrom: Janet Dunn j.d...@shaw.caTo: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.comSent: Fri, June 18, 2010 12:56:45 AMSubject: RE: [TMIC] The "Sweats"
RE: [TMIC]
Hi Dalton, I don't disagree with what you are saying, however it depends upon how far down the line you are. I think we all need that diagnosis, we need to know what has gone wrong, we need a label. It takes a long time to accept what's done is done...when we have got there you're right, the label/diagnosis becomes irrelevant. Until we get there , well there's some comfort in a label . After all, without that label /diagnosis none of us would be here sharing our experiences on the web. Steve (one of 300 of the population of the uk diagnosed in a year, we are a rare breed my gp has never seen a tm before) _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: 18 June 2010 17:38 To: 'Deborah Nord Capen'; 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Deborah; Actually, I'm not concerned what the drs call it; it doesn't change how I live if they end up calling it TM or MS or whatever. The name of the thing is their business. It's done its thing if TM and if MS. I just live with it. I don't see any difference, actually. It's not as if we have cancer or something else here. Done is done; so, how would it change anything? Dalton In New York: 718-271-2738 _ From: Deborah Nord Capen [mailto:dca...@earthlink.net] Sent: Friday, June 18, 2010 11:49 AM To: 'Dalton Garis'; 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Is it actually that you had MS and now you have TM, or just that the doctors speculated that you might have MS, and then after a while determined that your actual diagnosis is TM due to the results of your testing? Some doctors are very conservative in their diagnoses while others jump the gun and diagnose too quickly before completing all testing. That did happen to me while I was in the hospital in Minnesota. I had one doctor tell me that I quite possibly had MS and that they wouldn't make an official DX until further attacks, and then another doctor came into my room and told me that the first doctor spoke out of school and I should ignore what he said to me. Just because a doctor says you have something does NOT necessarily make it so. They are not always God, just trying to act like it. Take care, Debbie From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Friday, June 18, 2010 3:44 AM To: 'Gerry Surette'; tmic-list@eskimo.com Subject: RE: [TMIC] Garry; I utilize the MS World chatroom because it is frequented a lot by demyelinating disease sufferers; and some even have TM themselves. I found several who had MS after getting TM, but so far, I am the only one getting TM after getting MS (things happen!). Good luck, Dalton Garis PS: Are there many persons named Garis or De Garis up there? _ From: Gerry Surette [mailto:suret...@sympatico.ca] Sent: Friday, June 18, 2010 6:40 AM To: tmic-list@eskimo.com Subject: [TMIC] hi there; while I had chronic myletopy; I received many good wishes. thank you again for your caring and support. I have a question is the chat line still in operation if so what is the link to it. thanks Gerry in montreal
Re: [TMIC] The Sweats
I can't even go to the grocery store or Wal-Mart without coming back drippy, sweaty, hot and tired. Of course, I live in a very hot and humid climate in SC, but I see hardly anyone else at the store as red-faced and sweaty as I am. My family thinks I keep the house as cold as a meat locker. I tell them they can always put on more clothes. :-) I am thankful we have a ceiling fan in our bedroom in addition to the AC Barbara H. http://barbarah.wordpress.com On Fri, Jun 18, 2010 at 12:33 AM, Janice Nichols jan...@centurytel.netwrote: Would like a count of those bothered with the sweats - the really hot drippy sweats, even when in a relatively cool atmosphere. My doc calls it disautonomia. It is the pits.Have it some in the winter, but it is really a problem in the summer. Anyone else, male or female, have this problem? Janice
