Thanks, Gracie;
I feel as if in some kind of mixer with all these you-don't-have-you-did-have's going back in forth. Your statement takes some of the pressure off somehow. Here is what has happened since 9 January of this year: The first attack was left side weakness, girdling, etc, only involving the left side-left eye pain, a headache on the left side of the head right up to the center of the skull, of a different quality from the ordinary migraines I was used to, etc, etc, just like MS. Then symptoms lessened in about a week. The second attack was 6 weeks later, like the first in every way only stronger. Again, symptoms lessened in about a week. Something completely different began two months later, with a severe and unique backache one night followed the next day with twitching, spasticity, difficulty swallowing, difficulty with urinating, and weakness on both sides of the body. It also included aches in the forelimbs of arms and legs which haven't gone away and extend to just above both knees and elbows. There was also worsening of balance control, etc. Also, all types of headaches completely disappeared and I have gotten only one headache since 23 April, when I went down with convulsions after getting that backache the night before. Very strange. The first set of symptoms read like the typical MS attack; and the latter set sounds like typical TM. I still get these convulsions that last from ten minutes to six hours. They come in waves, tightening, then easing off, first the back of the body, then the front side. So it looked to me and to all the world like MS to begin with, then TM later on. As I said earlier to someone else, I really don't care what they call it since I can't see that it would make any difference to me in any way, in treatment regimes or anything. I have good days and bad days, one-cane days and two-cane days and stay-at home days. The real thing is these convulsion attacks. They are really upsetting and keep me inside, for instance, not being able to see the Yankees-Mets game for fear I begin convulsing in the stands and there is a big, expensive fuss. Thanks, again for your input. Dalton Dalton Garis Office: +971-2-607-5070/-5297 Fax: +971-2-607-2500 Mobile: +971-50-668-5760 In New York: 718-271-2738 _____ From: Grace M. [mailto:grace...@gmail.com] Sent: Friday, June 18, 2010 1:58 PM To: Deborah Nord Capen Cc: Dalton Garis; Gerry Surette; tmic-list@eskimo.com Subject: Re: [TMIC] Hello Dalton, I have many MS friends and among them are those who have experienced TM. Some prior to their MS diagnosis, and some after. I myself experience episodes of relapsing LETM (Longitudinally Extensive Transverse Myelitis) but as a result of having NMO. Gracie
