Re: [TMIC] RE Pins and Needles
most of the time i cant stand to have anything at all on my legs good to see that some get relief From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] New Year Prayer for all of us
thanks Dalton From: Dalton Garis malugss...@gmail.com To: TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:10 AM Subject: Re: [TMIC] New Year Prayer for all of us Fellow sufferers; I offer this prayer, called the Remover of Difficulties prayer, which I have recited for decades, sometimes 400-500 times/day in times of great pain or stress, for inner calm and the expectation of better things to come from sources and directions I did not imagine. Is there any Remover of Difficulties save God? Say: Praised be God. He is God. All are His servants, and all abide by His bidding. Love, Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] New Year Prayer for all of us
Thanks Dalton. On Mon, Jan 2, 2012 at 11:12 AM, john snodgrass jcs...@yahoo.com wrote: thanks Dalton -- *From:* Dalton Garis malugss...@gmail.com *To:* TM list tmic-list@eskimo.com *Sent:* Sunday, January 1, 2012 11:10 AM *Subject:* Re: [TMIC] New Year Prayer for all of us Fellow sufferers; I offer this prayer, called the *Remover of Difficulties* prayer, which I have recited for decades, sometimes 400-500 times/day in times of great pain or stress, for inner calm and the expectation of better things to come from sources and directions I did not imagine. *Is there any Remover of Difficulties save God? * *Say: Praised be God. He is God.* *All are His servants, and all abide by His bidding.* Love, Dalton * * From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - *From: **john snodgrass* *To: **James Berg*; *pjv1...@chartermi.net* *Cc: **tmic* *Sent: *Saturday, December 31, 2011 7:47AM *Subject: *Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratchthat off my to do list. ___ *From: *James Bergmolokai...@gmail.com *To: *pjv1...@chartermi.net *Cc: *tmic tmic-list@eskimo.com *Sent: *Friday, December 30,2011 4:05 PM *Subject: *Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, *pjv1...@chartermi.net* wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of
Re: [TMIC] New Year Prayer for all of us
Thanks Dalton ~ we appreciate you very much! Linda (Eagle, ID) - Original Message - From: pat cooleymailto:patticoole...@gmail.com To: john snodgrassmailto:jcs...@yahoo.com Cc: Dalton Garismailto:malugss...@gmail.com ; TM listmailto:tmic-list@eskimo.com Sent: Monday, January 02, 2012 11:37 AM Subject: Re: [TMIC] New Year Prayer for all of us Thanks Dalton. On Mon, Jan 2, 2012 at 11:12 AM, john snodgrass jcs...@yahoo.commailto:jcs...@yahoo.com wrote: thanks Dalton From: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com To: TM list tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:10 AM Subject: Re: [TMIC] New Year Prayer for all of us Fellow sufferers; I offer this prayer, called the Remover of Difficulties prayer, which I have recited for decades, sometimes 400-500 times/day in times of great pain or stress, for inner calm and the expectation of better things to come from sources and directions I did not imagine. Is there any Remover of Difficulties save God? Say: Praised be God. He is God. All are His servants, and all abide by His bidding. Love, Dalton From: pat cooley patticoole...@gmail.commailto:patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.netmailto:pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.aumailto:mingalett...@activ8.net.au, TM list tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.netmailto:pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratchthat off my to do list. ___ From: James Bergmolokai...@gmail.commailto:molokai...@gmail.com To:
Re: [TMIC] RE Pins and Needles
Have y'all tried silk long johns...???Very smooth to the skin. And they make great sleepware. BobbyJim in Elvisland - Original Message - From: john snodgrass To: transverse myelitis Sent: Monday, January 02, 2012 11:08 AM Subject: Re: [TMIC] RE Pins and Needles most of the time i cant stand to have anything at all on my legs good to see that some get relief -- From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Bergmolokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30,2011 4:05 PM Subject: Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know
RE: [TMIC] RE Pins and Needles
Hi,
I loved your sentence on shoes. I have done the same thing, able to return a
lot, thank god. It’s even worse with socks, I think I tried every kind of
sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a
pair of good silk socks, depending on the day I can handle them for an hour or
so.
The shoes I found best for me are the Easy Spirit Travel time line. I must
have 12-15 pairs in different colors and materials (on top outside of shoe), at
least it gives some variety. They are also slip-ons (clogs) so I can take them
off as soon as I sit.
I can only wear one kind of pants, all cotton knit, so of course I have many
colors of same pants. I feel kind of funny wearing the same pants to work all
the time. The winters are hell as these pants are not thick or warm. At least
I have free rein when it comes to tops. So not all is bad, got to keep this
positive attitude otherwise don’t know what would happen.
I started taking Ampyra and it really has improved the speed of my walking. At
first it killed me because it seemed to increase my needles, burning, etc.
Since its purpose is to increase nerve conductivity it kind of made sense. It
hurt too much so I cut the dose in half as my neurologist said he would like me
to stick it out if I could. After a month or so, I went back to full dosage
because my walking seemed to be improving. The pain slightly more than normal
but that has reversed and I believe the pain is slightly less. My New Year’s
resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am
also trying to eat healthy. I feel better when I do.
This video from a doctor who got TM really inspired me. I had already seen a
nutritionist and started to lose some weight and this video is similar to what
I’ve already started. It is amazing how this woman healed with mostly diet
changes that effect mitochondria.
Minding Your Mitochondria is the link below to this Doctors amazing journey
with MS.
http://youtu.be/KLjgBLwH3Wc
Make it a great day,
Deb
Long Island, NY
From: Gillian Clark [mailto:mingalett...@activ8.net.au]
Sent: Sunday, January 01, 2012 7:31 PM
To: TM list
Subject: Re: [TMIC] RE Pins and Needles
Thanks for you endorsement Patti, I think that mostly the new tmers are not
understanding how important it is to pay attention to these things. My
wardrobe is now limited to clothes made from materials that hurt the least,
shoes, same quality. I just gave up trying to dress the way I used to, the
elevation in the pain level was just not worth it.
I swear I have more shoes than Imelda Millipede in my wardrobe as I try and
find that perfect pair :).
Wrinkles, heat, cold, so many things that you learn to look out for. Things
that you would never have paid any attention to in your previous life, BTM.
Gilly
- Original Message -
From: mailto:pjv1...@chartermi.net pjv1...@chartermi.net
To: mailto:mingalett...@activ8.net.au Gillian Clark
Cc: mailto:tmic-list@eskimo.com TM list
Sent: Sunday, January 01, 2012 1:52 PM
Subject: Re: [TMIC] RE Pins and Needles
Gilly
You are right to remide us about cothes, shoes and sock contributing to our TM
pain. I think I've posted for eight straight winters that wearing blue jeans
in cold weather puts me right to bed due the the intense pain the cold material
causes. New TMers beware! It isn't just the heat that causes additional painful
sensations. The cold weather causes its own set of problems.
Patti - Michigan
On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote:
John, the sad fact is that nothing really takes it away, I have so far racked
up a bit over 10 years of it.
I must say though that I do believe it has decreased somewhat. Either that or
I'm just used to it.
I don't do meds as all they did was make me completely spaced out or zombie
like and the pain was still there. Strangely enough, just the everyday little
old aspro or Panadol help. Maybe because they concentrate on any other
unrelated pain that then lessons the tm residuals. I have no idea why, I just
know that's what happens for me.
There are other external causes. The shoes you wear, your socks (always wear
them inside out), the clothes you wear, particularly the type of material. I
found that by paying attention to these things, I can lesson (not by a whole
lot) these annoying freeze/burn feelings.
Gilly
- Original Message -
From: javascript:parent.wgMail.openComposeWindow('jcs...@yahoo.com') john
snodgrass
To: javascript:parent.wgMail.openComposeWindow('molokai...@gmail.com') James
Berg; javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
pjv1...@chartermi.net
Cc: javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com') tmic
Sent: Saturday, December 31, 2011 7:47AM
Subject: Re: [TMIC] RE Pins andNeedles
was
Re: [TMIC] RE Pins and Needles
have not tried that. will consider. thanks From: bobberino elbobber...@earthlink.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Cc: Dalton Garis malugss...@gmail.com; Gillian Clark mingalett...@activ8.net.au Sent: Monday, January 2, 2012 4:58 PM Subject: Re: [TMIC] RE Pins and Needles Have y'all tried silk long johns...??? Very smooth to the skin. And they make great sleepware. BobbyJim in Elvisland - Original Message - From: john snodgrass To: transverse myelitis Sent: Monday, January 02, 2012 11:08 AM Subject: Re: [TMIC] RE Pins and Needles most of the time i cant stand to have anything at all on my legs good to see that some get relief From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the
[TMIC] River Pharmacy
Hello Hey Jim I want to know more about this Pharmacy. Share your knowledge, PLEASE. My pins and needles and burning and neuropathy has magnified 300 percent since I have this hemangioma growing from T4-T11. Makes me go totally INSANE with pain. Lyrica does help a bit, or else it is the rest of the combo. But if this pharmacy is much cheaper, that is great. Thanks Janet Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim
RE: [TMIC] RE Pins and Needles
Hi I finally understand the increase in intenseness with the wrong material. Since this hemangioma – man oh man. I wear sweatpants to work, heavy flannel at home, and last night I put on a pair of light flannel. OMG – I just about hit the roof! Shoes – yes sirree. I am going to look at the Easy Spirit Travel line. Right now I am in clogs. Croc clogs. And mostly bare feet. And sometimes just to cool the burning, I stand barefoot on the floor at work. And it is January in Northern Canada. Ha. Janet From: Deb Monteleone [mailto:aiki...@optonline.net] Sent: January 2, 2012 5:08 PM To: 'Gillian Clark'; 'TM list' Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY
Fw: [TMIC] January Birthdays
Have a wonderful birthday! Priscilla - Forwarded Message - From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Sunday, January 1, 2012 12:50 AM Subject: [TMIC] January Birthdays Happy Birthday to the New Year's kids from January! Please send any additions or corrections to tmic-list@eskimo.com. 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1-17 Ginna Hamilton (ginnahamil...@yahoo.com) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
Re: [TMIC] RE Pins and Needles
I buy my shoes mostly online from Rivers. I've found they are the best for me, mule type of course and I have to make sure to check they have no fancy shmancy stitching around the innersole, that plays havoc. In winter for my good pants, I have Ponte pants from Damart, of course they might still be too thin for your climate. For the farm I have the trackies with no cuff around the bottom, they look ok for going out in too. In summer at home and with family and close friends, I wear leggings, like the gym or yoga pants made from interlock cotton. Good pants are a bit harder to come by. Silk is not a goer for me because of the swishing if it moves on me I'm almost instantly a cripple. Same with the wrong shoes or wrong material. I used to live in jeans, took me quite a while to realise they were at least doubling my pain level. Love and light, Gilly - Original Message - From: Deb Monteleone To: 'Gillian Clark' ; 'TM list' Sent: Tuesday, January 03, 2012 10:37 AM Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY
