Hi,
I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY From: Gillian Clark [mailto:mingalett...@activ8.net.au] Sent: Sunday, January 01, 2012 7:31 PM To: TM list Subject: Re: [TMIC] RE Pins and Needles Thanks for you endorsement Patti, I think that mostly the "new" tmers are not understanding how important it is to pay attention to these things. My wardrobe is now limited to clothes made from materials that hurt the least, shoes, same quality. I just gave up trying to dress the way I used to, the elevation in the pain level was just not worth it. I swear I have more shoes than Imelda Millipede in my wardrobe as I try and find that perfect pair :). Wrinkles, heat, cold, so many things that you learn to look out for. Things that you would never have paid any attention to in your previous life, BTM. Gilly ----- Original Message ----- From: <mailto:pjv1...@chartermi.net> pjv1...@chartermi.net To: <mailto:mingalett...@activ8.net.au> Gillian Clark Cc: <mailto:tmic-list@eskimo.com> TM list Sent: Sunday, January 01, 2012 1:52 PM Subject: Re: [TMIC] RE Pins and Needles Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly ----- Original Message ----- From: <javascript:parent.wgMail.openComposeWindow('jcs...@yahoo.com')> john snodgrass To: <javascript:parent.wgMail.openComposeWindow('molokai...@gmail.com')> James Berg; <javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')> pjv1...@chartermi.net Cc: <javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')> tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feet,,,,when its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___________________________________ From: James Berg < <mailto:molokai...@gmail.com> molokai...@gmail.com> To: <mailto:pjv1...@chartermi.net> pjv1...@chartermi.net Cc: tmic < <mailto:tmic-list@eskimo.com> tmic-list@eskimo.com> Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, < <javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')> pjv1...@chartermi.net> wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
