have not tried that. will consider. thanks
________________________________ From: bobberino <elbobber...@earthlink.net> To: john snodgrass <jcs...@yahoo.com>; transverse myelitis <tmic-list@eskimo.com> Cc: Dalton Garis <malugss...@gmail.com>; Gillian Clark <mingalett...@activ8.net.au> Sent: Monday, January 2, 2012 4:58 PM Subject: Re: [TMIC] RE Pins and Needles Have y'all tried silk long johns.......??? Very smooth to the skin. And they make great sleepware. BobbyJim in Elvisland ----- Original Message ----- >From: john snodgrass >To: transverse myelitis >Sent: Monday, January 02, 2012 11:08 AM >Subject: Re: [TMIC] RE Pins and Needles > > >most of the time i cant stand to have anything at all on my legs > > >good to see that some get relief > > > >________________________________ > From: Dalton Garis <malugss...@gmail.com> >To: pat cooley <patticoole...@gmail.com>; pjv1...@chartermi.net >Cc: Gillian Clark <mingalett...@activ8.net.au>; TM list ><tmic-list@eskimo.com> >Sent: Sunday, January 1, 2012 11:13 AM >Subject: Re: [TMIC] RE Pins and Needles > > >The best way to keep warm without getting that pins and needles feeling for >me; > > >Is to just wear my flannel pajamas under my pants. They are loose, soft and >smooth, and don't trigger those fiery attacks that send me into seizures. > > >Dalton > >From: pat cooley <patticoole...@gmail.com> >Date: Sun, 1 Jan 2012 09:45:47 -0600 >To: <pjv1...@chartermi.net> >Cc: Gillian Clark <mingalett...@activ8.net.au>, TM list <tmic-list@eskimo.com> >Subject: Re: [TMIC] RE Pins and Needles >Resent-From: <tmic-list@eskimo.com> >Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 > > > >Patti I have found that the cold is much worse for me. I have found that if >I wear soft long underwear under my jeans it doesn't bother me and helps to >keep me warmer. I too always have the pins & needles plus the >burning/freezing all the time, but it is so much worse in the evening.. I >believe that I have learned to live with it since I am able to fall asleep >and stay asleep all night except to go potty at least once maybe twice. I >have also been told by doctors that the pins & needles in the feet is called >neuropathy, which is the same nerve pain that people with diabetes suffer >from. I have a good friend with diabetes and has suffered with it for years. >> >>Patti in Wisconsin >> >> >>On Sat, Dec 31, 2011 at 9:22 PM, <pjv1...@chartermi.net> wrote: >> >>Gilly >>>You are right to remide us about cothes, shoes and sock contributing to our >>>TM pain. I think I've posted for eight straight winters that wearing blue >>>jeans in cold weather puts me right to bed due the the intense pain the >>>cold material causes. New TMers beware! It isn't just the heat that causes >>>additional painful sensations. The cold weather causes its own set of >>>problems. >>> >>>Patti - Michigan >>> >>> >>>On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: >>> >>> John, the sad fact is that nothing really takes it away, I have so far >>>racked up a bit over 10 years of it. >>> >>>I must say though that I do believe it has decreased somewhat. Either >>>that or I'm just used to it. >>> >>>I don't do meds as all they did was make me completely spaced out or >>>zombie like and the pain was still there. Strangely enough, just the >>>everyday little old aspro or Panadol help. Maybe because they concentrate >>>on any other unrelated pain that then lessons the tm residuals. I have no >>>idea why, I just know that's what happens for me. >>> >>>There are other external causes. The shoes you wear, your socks (always >>>wear them inside out), the clothes you wear, particularly the type of >>>material. I found that by paying attention to these things, I can lesson >>>(not by a whole lot) these annoying freeze/burn feelings. >>> >>>Gilly >>>----- Original Message ----- >>>From: john snodgrass >>>To: James Berg; pjv1...@chartermi.net >>>Cc: tmic >>>Sent: Saturday, December 31, 2011 7:47 AM >>>Subject: Re: [TMIC] RE Pins and Needles >>> >>>was talking with the neurologist yesterday about the buzzing,vibrating >>>feeling that sometimes go all the way into my chest but stays mainly in >>>my legs and feet,,,,when its not buzzing it is burning. he called it >>>something but i failed to write it down. >>> >>>I tried MJ but for me,,,it made it intensify! >>> >>>nothing i have taken to date has had any positive effect on that >>>symptom. >>> >>>creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica >>>alcohol,MJ. scratch that off my to do list. >>>___________________________________ >>> >>>From: James Berg <molokai...@gmail.com> >>>To: pjv1...@chartermi.net >>>Cc: tmic <tmic-list@eskimo.com> >>>Sent: Friday, December 30, 2011 4:05 PM >>>Subject: Re: [TMIC] RE Pins and Needles >>> >>>Gerry and Pati--you can control the cost by buying your meds a River >>>Pharmacy--out of India--they are honest and the drug is quality >>> >>>Jim >>> >>> >>>On Wed, Dec 28, 2011 at 6:01 PM, < pjv1...@chartermi.net> wrote: >>>Gerry, >>>Many of us faced the same thing. Movement and feeling also brought >>>the feeling of pins and needles. >>> >>>I've taken Lyrica for about three years - it helps a lot. I don't >>>know about side effects except the cost can empty your wallet. I >>>would have stuck with gabapentin, but it was unpredictable. Lyrica >>>starts working witin 15 minutes. Gabapenten took an hour or two to >>>work. >>> >>>The best pan reliever is laughter and the posts I read tonight relieved my >>>pain for a while. >>> >>>The antidepressant, Cymbalta, might help with the pins and needles. Of >>>course, it's another drug with a lot of side effects. >>> >>>Pati - Michigan >>> >>> >>> >>> >>> >> > >
