RE: [TMIC] Reviving the List
There is also a TM page for mom's and dad's of kids with TM and I believe there may be one for Teen Kids with TM. I think I belong to all of the groups, except the Teen's one, b/c it seems that there can be some helpful information on each one of them. Being a mom of a daughter who became afflicted with TM at the age of 11, I wanted to learn as much as I could not only for her immediate future but for her adulthood, etc. She is 19 now, a full time student in a local college (with a 4.0 GPA) and works with me 2 days a week now scanning old documents into a computer program. She is one of the walking wounded. She had been wheelchair bound for the first 2 years but has been walking, with forearm crutches, since she participated in an inpatient 8 week treatment plan at KKI in Baltimore, Md. I am glad to see more chatter on here now. I read most of the posts on FB but really get tired of all of the jokes being posted, etc because I have enough other FB friends that do that on a daily basis. I joined the group for information, like all of you out there. Glad to see some of the old names pop up in my email inbox again!! Take care all! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. Please consider the environment before printing Insurance coverage cannot be bound or altered without confirmation from a licensed agent. If you do not hear from us within 1 business day, please re-contact us in case your information has not be retained. This message contains confidential information for use only by its intended recipients and may contain information that is proprietary, privileged, and protected under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the named addressee, you are hereby notified that any use of, distribution of, copying, or reliance upon the contents of this e-mail is strictly prohibited and may result in criminal or civil penalties. Please notify the sender immediately by e-mail if you have received this by mistake and delete this e-mail from your system. Thank you. -Original Message- From: Shirley Gurnell [mailto:s.gurn...@xtra.co.nz] Sent: Wednesday, January 23, 2013 11:37 PM To: tmic-list@eskimo.com Subject: [TMIC] Reviving the List Hi Jude, There is one page on FB called Living with Transverse Myelitis, this is for TM sufferers. The second is, Transverse Myelitis Folks which is for caregivers and TM sufferers, the third is TM-HA, for ladies only. Delicate questions can be asked and answered amongst us, who have been there and done that. A lot of people probably don't know how to find this site, I had to google it, and I'm a regular on the TMA site. I have seen you on one of the FB sites, Jude, don't ask me which one tho. Cheers Shirley (NZ) Sent from my iPad
[TMIC] Re: Rick(el...@att.net)
To subscribe: _tmic-list-request@eskimo.com_ (mailto:tmic-list-requ...@eskimo.com)and in the main line, put Subscribe, and you can also include it in the body of the letter if you want. To write to the list, send it to: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) . That ought to do it. We have been talking about this winter and having the flu and bad colds. Next, I am going to discuss what roll does Stress have in your life. Love you, Jude In a message dated 1/24/2013 12:24:21 P.M. Eastern Standard Time, el...@att.net writes: Jude I'm hving hell trying to post to the list. Explain again how to do it. I guess I have to resubscribe or some thing.Rick
[TMIC] Re: reviving the list
Catch us up, Rick...what happened, how did you progress and what can you do now? It's been so long, I'm going to ask everyone for their stories. Love you, Jude In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in TN.
Re: [TMIC] reviving the list
You are in, my friend. Jude. In a message dated 1/24/2013 12:02:18 P.M. Eastern Standard Time, el...@att.net writes: Hi TMIC LIST. I've tried to post and am having a little trouble. I need to test this mail to see if I'm getting in. Okay am I getting in on all the conversation? Rick From: heyjude48...@aol.com heyjude48...@aol.com To: kandyd...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:12 PM Subject: Re: [TMIC] reviving the list Hi Candy, It's good to hear from you again. It's been years. I guess there must be room for 3 groups. I don't know. Maybe it's the fact that on Facebook one can see what the other person looks like. That aspect was fun for me at first...seeing everyone for the first time. Incredible, almost like meeting a long lost friend. But, then, lately, I have kind of been appalled by the fact that instead of truly voicing their opinions about a given subject all people do is make one line comments about nothing. I can't explain it. People are wonderful and very supportive and I love them all so, but TMIC just seems better to me. It's getting late, I'll talk to you soon. Send me your full name, address and phone number for my address book. I may want to send you a card or call you some time. I will never give out your info to anyone. Love and Hugs, Jude, Michigan In a message dated 1/23/2013 11:03:32 P.M. Eastern Standard Time, kandyd...@yahoo.com writes: What are the 3 groups? I also started here and since no one was talking, I moved to FB (which I don't really like). Why are there so many groups? Seems there should only be one. Thanks Candy From: heyjude48...@aol.com heyjude48...@aol.com To: s.gurn...@xtra.co.nz Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 PM Subject: Re: [TMIC] reviving the list Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
Re: [TMIC] Facebook
I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Facebook
I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy cindymcle...@socal.rr.com wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
RE: [TMIC] Facebook
I wonder if it has anything to do with the type of meds that are being taken? Ashlee is a straight A student and has been since before TM. She only takes Oxybutnin XL 15 mg once a day. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. [http://www.scic.com/files/CISRlogo_LoRes.jpg] [HODonFB] http://on.fb.me/hnofb P Please consider the environment before printing Insurance coverage cannot be bound or altered without confirmation from a licensed agent. If you do not hear from us within 1 business day, please re-contact us in case your information has not be retained. This message contains confidential information for use only by its intended recipients and may contain information that is proprietary, privileged, and protected under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the named addressee, you are hereby notified that any use of, distribution of, copying, or reliance upon the contents of this e-mail is strictly prohibited and may result in criminal or civil penalties. Please notify the sender immediately by e-mail if you have received this by mistake and delete this e-mail from your system. Thank you. From: Dalton Garis [mailto:malugss...@me.com] Sent: Thursday, January 24, 2013 4:27 PM To: Cindy McLeroy Cc: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy cindymcle...@socal.rr.commailto:cindymcle...@socal.rr.com wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.commailto:heyjude48...@aol.com To: patticoole...@gmail.commailto:patticoole...@gmail.com ; malugss...@gmail.commailto:malugss...@gmail.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.commailto:patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.commailto:malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437tel:%28718%29%20838-0437 inline: image005.jpginline: image006.jpg
Re: [TMIC] Facebook
I do have some of that too. Don’t know if it is age (66) or meds I am taking. Hope it is meds! Janice From: Cindy McLeroy Sent: Thursday, January 24, 2013 3:20 PM To: heyjude48...@aol.com ; patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Facebook I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Re: Need your input
Regina, you would not bore us. Most of us probably would like to talk about the same things anyway. If anyone is bored, they can delete. I am afraid it is this shyness that has been one of the problems with our site.Please feel free - everyone! Janice From: heyjude48...@aol.com Sent: Wednesday, January 23, 2013 1:28 PM To: regina...@sbcglobal.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Need your input So Regina...what are the issues you want to discuss? Jude In a message dated 1/23/2013 12:29:34 A.M. Eastern Standard Time, regina...@sbcglobal.net writes: I can think of a lot of issues to talk about. What holds me back is that I don't want to bore anyone. I'm sitting at my computer, a bit dazed because I've taken a small doze of a sleeting pill as I was shall I say the word --- On Tue, 1/22/13, heyjude48...@aol.com heyjude48...@aol.com wrote: From: heyjude48...@aol.com heyjude48...@aol.com Subject: Re: [TMIC] Re: Need your input To: jan...@centurytel.net Cc: tmic-list@eskimo.com Date: Tuesday, January 22, 2013, 6:45 PM We really do have a good group. I'm busting my butt to come up with topics to discuss. Anything that you think of will be appreciated. Jude In a message dated 1/22/2013 9:23:26 P.M. Eastern Standard Time, jan...@centurytel.net writes: You know, it sounds like everyone wants to come back to our site here. Let’s get back to sharing and responding again. Also, those questions that pop up over time too. I doubt that anyone can go for long without questions about something! What a great bunch we have! Janice From: rn11...@yahoo.com Sent: Monday, January 21, 2013 6:43 PM To: tmic Subject: Fw: [TMIC] Re: Need your input I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl - Forwarded Message - From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; snow121...@hotmail.com Cc: tmic-list@eskimo.com Sent: Monday, January 21, 2013 6:52 PM Subject: Re: [TMIC] Re: Need your input I have taken the flu shot for the past 15+ yearsnever got the flu.and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see this list get busy again.I hate going on facebook! Rob in New Jersey.. -Original Message- From: Heyjude48458 heyjude48...@aol.com To: snow121100 snow121...@hotmail.com Cc: tmic-list tmic-list@eskimo.com Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input Hi Carol, Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time. Love you, Jude Michigan Learn from yesterday, Live for today, Hope for tomorrow. Albert Einstein In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, snow121...@hotmail.com writes: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots annually and pneumonia vaccine every 5-7 years as recommended. When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at Northwestern where she was also an
Re: [TMIC] Re: Subscribe
For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. -- From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] reviving the list
Shirley, So glad to hear from you! What are Board Index sites? Just curious. Janice From: Shirley Gurnell Sent: Wednesday, January 23, 2013 8:48 PM To: tmic-list@eskimo.com Subject: [TMIC] reviving the list Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ)
Re: [TMIC] Stress
Cindy, you have clearly been through a very hellish time. When the time comes, there are special places in heaven for people like you. So glad you have such support from family and friends. I did too – nearly dying twice in the hospital I was in for over 9 weeks. My floor social worker sent in a woman to massage my neck and back and she truly relaxed me. When she left, she shut the door and the nurses did not let anyone in my room until dinner. It was truly a relaxing experience – at least for a while.I don’t plan on getting sick again! Janice From: Cindy McLeroy Sent: Tuesday, January 22, 2013 11:42 PM To: heyjude48...@aol.com ; dnca...@gmail.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Stress Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: heyjude48...@aol.com To: dnca...@gmail.com Cc: tmic-list@eskimo.com Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, dnca...@gmail.com writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, heyjude48...@aol.com wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100
Re: [TMIC] Facebook
I too have trouble reading. I find that I tend to speed read (skim). I used to love to read, but now I get audio books so I can slow down. - Roger in Kennewick, WA From: Cindy McLeroy cindymcle...@socal.rr.com To: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Thursday, January 24, 2013 1:20 PM Subject: Re: [TMIC] Facebook I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
RE: [TMIC] neurologist
I see my neurologist every 3 -4 months, as that is a requirement when receiving Tysabri infusions for MS. Blood work is done every 3 months and Brain MRI every 6 months, all these are requirements for Tysabri. It is a monthly infusion that can possibly cause a deadly brain infection, hence all the follow-up. It is the only MS medication that truly works the best and after doing shots every day for a year with Copaxone I take the chance that all the tests would catch the virus before it did damage. I do have TM for 4.5 years now, they diagnosed it as being caused by MS. My lesion is at T8-10, I believe. Had to learn to stand, walk, so steps again. Ended up with a cane and walking slower and more unsteady than before TM. I would watch how people walked and especially how they went up and down stairs. My symptoms and pain are pretty much the same as most in this group. It definitely makes a difference who your Neurologist is. Mine diagnosed TM about 5-10 minutes after I first walked through his door. I had 3 days of steroid infusions, starting that day (had them stay late for me), then oral steroids. It was a few weeks after that when I lost control of my leg muscles. This time went into his office in a wheelchair and he put me in hospital for 5 days of intravenous steroids 3x day, then off to Re-hab for few weeks. Finally home, where I never stopped trying to improve and I still concentrate on walking better, etc. If only the pain would stop I could deal with the rest; fatigue, cognitive, unable to do all I did before TM. I am still improving minutely but I can't stop believing and trying to walk normal again and praying that pain reduction would go along with that. For me, my Neurologist is like my PCP; I see him, email him when things change and he gives me all my meds (which is a lot). I have constant very painful nerve pain in both legs, feet being the worst. He is a MS specialist and the office is a MS Center. I also get tested for my optical nerve, cognitive abilities and my gait once a year. I feel blessed to have my doctor. He is available by email anytime, including nights, weekends and of course by phone during the day and an emergency number. He listens to my symptoms, adjusts meds when necessary and marks any differences in my sensations and movements. Seeing my Neurologist on a regular basis also makes me feel secure that someone who is very competent and understanding of my condition is watching over me and knows my history if God forbid something happens again. Wow, didn't realize all this would come out. That is what's great about this group; it's a safe comfortable place to say what you need to because you all understand. It's so nice to have emails from this group again. Make it a great day, Deb From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, January 17, 2013 11:33 AM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] neurologist I think it depends on one's needs. I've had TM for 17 years and haven't seen a neurologist in about 14 years. I got to an acceptable plateau (can walk and pretty well function as a homemaker and volunteer, have some issues with fatigue, balance, and muscle spasms. I don't think I could hold down a job for various reasons, but I've been able to raise my children, keep my home, and help out in various areas at church and my kids' schools). I am not on any TM-related medications, so when we moved to another state, I didn't seek out a new neuro. It helped that my PCP was knowledgeable about TM and willing to refer me to anyone I wanted to see -- it was through him I was referred to a urologist for problems in that realm. If I had problems that only a neuro could help with or was on certain medications that it would be best for him to monitor, I'd see one, and I'd encourage anyone with any of those needs to keep seeing one, but otherwise there is no need to see him every year just to hear that everything is the same, which is about where we were when I last saw him. Of course, if new problems or questions crop up, I wouldn't hesitate to seek one out. Barbara H. http://barbarah.wordpress.com On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall robthe...@aol.com wrote: I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for the first 10 years after coming down with TM. I go to my neurologist at least once per year to insure that my meds are the best they can be. New Medications and procedures happen all of the timeby seeing a neuro I assure myself that I am getting the best treatment possible. Just last week I changed to a new neurologist, Douglas Holland in West Long Branch NJ. Not only did he prescribe medical marijuana for me he also set up a test to inject baclofin directly into my spine and see over a period of 4 hours if it makes a noticeable improvement. If it does we may
Re: [TMIC] neurologist
Deb, May I ask who you are? What's your full name. address and phone number? I am updating my TMIC address book and promise to never share your information with anybody. I may want to send you a card or call you sometime. Thank you for posting. It really means a lot. Love you, Jude Michigan In a message dated 1/24/2013 6:45:45 P.M. Eastern Standard Time, aiki...@optonline.net writes: I see my neurologist every 3 -4 months, as that is a requirement when receiving Tysabri infusions for MS. Blood work is done every 3 months and Brain MRI every 6 months, all these are requirements for Tysabri. It is a monthly infusion that can possibly cause a deadly brain infection, hence all the follow-up. It is the only MS medication that truly works the best and after doing shots every day for a year with Copaxone I take the chance that all the tests would catch the virus before it did damage. I do have TM for 4.5 years now, they diagnosed it as being caused by MS. My lesion is at T8-10, I believe. Had to learn to stand, walk, so steps again. Ended up with a cane and walking slower and more unsteady than before TM. I would watch how people walked and especially how they went up and down stairs. My symptoms and pain are pretty much the same as most in this group. It definitely makes a difference who your Neurologist is. Mine diagnosed TM about 5-10 minutes after I first walked through his door. I had 3 days of steroid infusions, starting that day (had them stay late for me), then oral steroids. It was a few weeks after that when I lost control of my leg muscles. This time went into his office in a wheelchair and he put me in hospital for 5 days of intravenous steroids 3x day, then off to Re-hab for few weeks. Finally home, where I never stopped trying to improve and I still concentrate on walking better, etc. If only the pain would stop I could deal with the rest; fatigue, cognitive, unable to do all I did before TM. I am still improving minutely but I can’t stop believing and trying to walk normal again and praying that pain reduction would go along with that. For me, my Neurologist is like my PCP; I see him, email him when things change and he gives me all my meds (which is a lot). I have constant very painful nerve pain in both legs, feet being the worst. He is a MS specialist and the office is a MS Center. I also get tested for my optical nerve, cognitive abilities and my gait once a year. I feel blessed to have my doctor. He is available by email anytime, including nights, weekends and of course by phone during the day and an emergency number. He listens to my symptoms, adjusts meds when necessary and marks any differences in my sensations and movements. Seeing my Neurologist on a regular basis also makes me feel secure that someone who is very competent and understanding of my condition is watching over me and knows my history if God forbid something happens again. Wow, didn’t realize all this would come out. That is what’s great about this group; it’s a safe comfortable place to say what you need to because you all understand. It’s so nice to have emails from this group again. Make it a great day, Deb From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, January 17, 2013 11:33 AM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] neurologist I think it depends on one's needs. I've had TM for 17 years and haven't seen a neurologist in about 14 years. I got to an acceptable plateau (can walk and pretty well function as a homemaker and volunteer, have some issues with fatigue, balance, and muscle spasms. I don't think I could hold down a job for various reasons, but I've been able to raise my children, keep my home, and help out in various areas at church and my kids' schools). I am not on any TM-related medications, so when we moved to another state, I didn't seek out a new neuro. It helped that my PCP was knowledgeable about TM and willing to refer me to anyone I wanted to see -- it was through him I was referred to a urologist for problems in that realm. If I had problems that only a neuro could help with or was on certain medications that it would be best for him to monitor, I'd see one, and I'd encourage anyone with any of those needs to keep seeing one, but otherwise there is no need to see him every year just to hear that everything is the same, which is about where we were when I last saw him. Of course, if new problems or questions crop up, I wouldn't hesitate to seek one out. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com/) On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall _robthecfo@aol.com_ (mailto:robthe...@aol.com) wrote: I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for
Re: [TMIC] Re: Need your input
Hey there is no way any of us can or will be bored. We are here for each other. If you want to rant and rave - go ahead. We all have those days - more than we care to admit. If all you want is to know someone is other there to talk to - we are here. Please feel free to say what you want. We have to keep the lines of communication open. Patti in Wisconsin On Thu, Jan 24, 2013 at 3:36 PM, Janice Nichols jan...@centurytel.netwrote: Regina, you would not bore us. Most of us probably would like to talk about the same things anyway. If anyone is bored, they can delete. I am afraid it is this shyness that has been one of the problems with our site.Please feel free - everyone! Janice *From:* heyjude48...@aol.com *Sent:* Wednesday, January 23, 2013 1:28 PM *To:* regina...@sbcglobal.net *Cc:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Re: Need your input *So Regina...what are the issues you want to discuss?* ** *Jude* In a message dated 1/23/2013 12:29:34 A.M. Eastern Standard Time, regina...@sbcglobal.net writes: I can think of a lot of issues to talk about. What holds me back is that I don't want to bore anyone. I'm sitting at my computer, a bit dazed because I've taken a small doze of a sleeting pill as I was shall I say the word --- On *Tue, 1/22/13, heyjude48...@aol.com heyjude48...@aol.com* wrote: From: heyjude48...@aol.com heyjude48...@aol.com Subject: Re: [TMIC] Re: Need your input To: jan...@centurytel.net Cc: tmic-list@eskimo.com Date: Tuesday, January 22, 2013, 6:45 PM *We really do have a good group. I'm busting my butt to come up with topics to discuss. Anything that you think of will be appreciated.* ** *Jude* In a message dated 1/22/2013 9:23:26 P.M. Eastern Standard Time, jan...@centurytel.net writes: You know, it sounds like everyone wants to come back to our site here. Let’s get back to sharing and responding again. Also, those questions that pop up over time too. I doubt that anyone can go for long without questions about something! What a great bunch we have! Janice *From:* rn11...@yahoo.comhttp://us.mc1813.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com *Sent:* Monday, January 21, 2013 6:43 PM *To:* tmichttp://us.mc1813.mail.yahoo.com/mc/compose?to=tmic-list@eskimo.com *Subject:* Fw: [TMIC] Re: Need your input I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl - Forwarded Message - *From:* Robert Pall robthe...@aol.com *To:* heyjude48...@aol.com; snow121...@hotmail.com *Cc:* tmic-list@eskimo.com *Sent:* Monday, January 21, 2013 6:52 PM *Subject:* Re: [TMIC] Re: Need your input I have taken the flu shot for the past 15+ yearsnever got the flu.and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see this list get busy again.I hate going on facebook! Rob in New Jersey.. -Original Message- From: Heyjude48458 heyjude48...@aol.com To: snow121100 snow121...@hotmail.com Cc: tmic-list tmic-list@eskimo.com Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input *Hi Carol,* ** *Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time.* ** *Love you,* *Jude* *Michigan* ** *Learn from yesterday, Live for today, Hope for tomorrow.* * Albert Einstein* In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, snow121...@hotmail.comhttp://us.mc1813.mail.yahoo.com/mc/compose?to=snow121...@hotmail.comwrites: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots
Re: [TMIC] neurologist
Deb you have certainly been through hell. I am almost embarrassed to respond to you as I have complaints like so many of us TMers, but nothing compared to what you have been through. I just wanted to say how wonderful that you have such a caring and responsive doctor. I wish more of us could say that. I am so glad that Jude has given the TMICd a new life. I am on FB, but sure missed this group. Hope to see more posts here in the coming days. Patti in Wisconsin On Thu, Jan 24, 2013 at 5:45 PM, Deb Monteleone aiki...@optonline.netwrote: I see my neurologist every 3 -4 months, as that is a requirement when receiving Tysabri infusions for MS. Blood work is done every 3 months and Brain MRI every 6 months, all these are requirements for Tysabri. It is a monthly infusion that can possibly cause a deadly brain infection, hence all the follow-up. It is the only MS medication that truly works the best and after doing shots every day for a year with Copaxone I take the chance that all the tests would catch the virus before it did damage. ** ** I do have TM for 4.5 years now, they diagnosed it as being caused by MS. My lesion is at T8-10, I believe. Had to learn to stand, walk, so steps again. Ended up with a cane and walking slower and more unsteady than before TM. I would watch how people walked and especially how they went up and down stairs. My symptoms and pain are pretty much the same as most in this group. ** ** It definitely makes a difference who your Neurologist is. Mine diagnosed TM about 5-10 minutes after I first walked through his door. I had 3 days of steroid infusions, starting that day (had them stay late for me), then oral steroids. It was a few weeks after that when I lost control of my leg muscles. This time went into his office in a wheelchair and he put me in hospital for 5 days of intravenous steroids 3x day, then off to Re-hab for few weeks. Finally home, where I never stopped trying to improve and I still concentrate on walking better, etc. If only the pain would stop I could deal with the rest; fatigue, cognitive, unable to do all I did before TM. I am still improving minutely but I can’t stop believing and trying to walk normal again and praying that pain reduction would go along with that. ** ** For me, my Neurologist is like my PCP; I see him, email him when things change and he gives me all my meds (which is a lot). I have constant very painful nerve pain in both legs, feet being the worst. He is a MS specialist and the office is a MS Center. I also get tested for my optical nerve, cognitive abilities and my gait once a year. I feel blessed to have my doctor. He is available by email anytime, including nights, weekends and of course by phone during the day and an emergency number. He listens to my symptoms, adjusts meds when necessary and marks any differences in my sensations and movements. ** ** Seeing my Neurologist on a regular basis also makes me feel secure that someone who is very competent and understanding of my condition is watching over me and knows my history if God forbid something happens again. ** ** Wow, didn’t realize all this would come out. That is what’s great about this group; it’s a safe comfortable place to say what you need to because you all understand. ** ** It’s so nice to have emails from this group again. ** ** Make it a great day, Deb ** ** *From:* Barbara H. [mailto:barbara...@gmail.com] *Sent:* Thursday, January 17, 2013 11:33 AM *To:* Robert Pall *Cc:* tmic-list@eskimo.com *Subject:* Re: [TMIC] neurologist ** ** I think it depends on one's needs. I've had TM for 17 years and haven't seen a neurologist in about 14 years. I got to an acceptable plateau (can walk and pretty well function as a homemaker and volunteer, have some issues with fatigue, balance, and muscle spasms. I don't think I could hold down a job for various reasons, but I've been able to raise my children, keep my home, and help out in various areas at church and my kids' schools). I am not on any TM-related medications, so when we moved to another state, I didn't seek out a new neuro. It helped that my PCP was knowledgeable about TM and willing to refer me to anyone I wanted to see -- it was through him I was referred to a urologist for problems in that realm. If I had problems that only a neuro could help with or was on certain medications that it would be best for him to monitor, I'd see one, and I'd encourage anyone with any of those needs to keep seeing one, but otherwise there is no need to see him every year just to hear that everything is the same, which is about where we were when I last saw him. Of course, if new problems or questions crop up, I wouldn't hesitate to seek one out. Barbara H. http://barbarah.wordpress.com On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall robthe...@aol.com wrote:** ** I
Re: [TMIC] Facebook
Cindy, I haven't been able to read for a very long time. At first, I thought it was my glasses, but after getting new ones, the problems still exist. I have the same difficulties that Cindy does. Seems like I read paragraphs 2 or 3 times before I get it. I used to have 3 books going at a time, but not now. There is a book on the table beside me collecting dust. It's all I can do to work a puzzle in my puzzle books. Jude, Michigan In a message dated 1/24/2013 4:21:26 P.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis _malugssuak@me.com_ (mailto:malugss...@me.com) wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437)
[TMIC] Reading
I had a terrible time reading before I got on oxygen, seems my diaphram muscles don't move my lungs enough to take in enough oxygen. Post oxygen I had gotten most of my brain back and 12 years later I am enjoying reading againSue
Re: [TMIC] Facebook
Yet you have such a command of the English language. Beautiful... Jude In a message dated 1/24/2013 4:27:00 P.M. Eastern Standard Time, malugss...@me.com writes: I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy _cindymcle...@socal.rr.com_ (mailto:cindymcle...@socal.rr.com) wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis _malugssuak@me.com_ (mailto:malugss...@me.com) wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437) =
Re: [TMIC] Facebook
Dalton, You have more email addresses than Carter has liver pills. I don't know how to keep up with your emails. What the heck are you up to? Big bear hug, Jude In a message dated 1/24/2013 4:27:00 P.M. Eastern Standard Time, malugss...@me.com writes: I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy _cindymcle...@socal.rr.com_ (mailto:cindymcle...@socal.rr.com) wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis _malugssuak@me.com_ (mailto:malugss...@me.com) wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437) =
Re: [TMIC] Re: Subscribe
I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot.No problems. Janice From: _Robert Pall_ (mailto:robthe...@aol.com) Sent: Wednesday, January 23, 2013 12:56 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Stress
Janice, I remember the massages the nurses gave me when I was in the hospital. They were the best, and the warm blankets were heaven. I keep forgetting to have Dave warm mine up. I'm afraid to sleep with an electric blanket, but I recall them as being wonderful. Jude, Michigan In a message dated 1/24/2013 5:01:24 P.M. Eastern Standard Time, jan...@centurytel.net writes: Cindy, you have clearly been through a very hellish time. When the time comes, there are special places in heaven for people like you. So glad you have such support from family and friends. I did too – nearly dying twice in the hospital I was in for over 9 weeks. My floor social worker sent in a woman to massage my neck and back and she truly relaxed me. When she left, she shut the door and the nurses did not let anyone in my room until dinner. It was truly a relaxing experience – at least for a while.I don’t plan on getting sick again! Janice From: _Cindy McLeroy_ (mailto:cindymcle...@socal.rr.com) Sent: Tuesday, January 22, 2013 11:42 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _dncapen@gmail.com_ (mailto:dnca...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Stress Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _dncapen@gmail.com_ (mailto:dnca...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, _robthecfo@aol.com_ (mailto:robthe...@aol.com) writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall _robthecfo@aol.com_ (mailto:robthe...@aol.com) To: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682
Re: [TMIC] Facebook
Roger, I find that audio books put me to sleep in no time, and that's unusual because I used to love it when I was read to. I miss the whole experience so much. Jude, Michigan In a message dated 1/24/2013 5:02:18 P.M. Eastern Standard Time, r.c.pr...@frontier.com writes: I too have trouble reading. I find that I tend to speed read (skim). I used to love to read, but now I get audio books so I can slow down. - Roger in Kennewick, WA From: Cindy McLeroy cindymcle...@socal.rr.com To: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Thursday, January 24, 2013 1:20 PM Subject: Re: [TMIC] Facebook I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis _malugssuak@me.com_ (mailto:malugss...@me.com) wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ ()
Re: [TMIC] Re: Subscribe
My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Unidentified subject!
Who are you and what is this email address for? I know you mentioned your email address, but not everyone knows who you are without your name. I think you are Cheryl, but I'm not sure. Jude In a message dated 1/24/2013 10:20:49 P.M. Eastern Standard Time, rn11...@yahoo.com writes: _http://www.polideportivoberja.es/components/com_content/wmnw.html_ (http://www.polideportivoberja.es/components/com_content/wmnw.html) rn11...@yahoo.com
Re: [TMIC] Re: Subscribe
It is extremely painful. It goes down to the nerve and can stay quite a while. Talk to your doc about getting one! Janice From: heyjude48...@aol.com Sent: Thursday, January 24, 2013 8:04 PM To: jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Kim, I can not imagine that kind of a problem. Do you live in a warm state? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 9:14 PM To: heyjude48...@aol.com ; jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? -- From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Reading
Have not heard of that problem with TM.Glad you had the improvement! Janice From: zri...@charter.net Sent: Thursday, January 24, 2013 7:52 PM To: tmic-list@eskimo.com Subject: [TMIC] Reading I had a terrible time reading before I got on oxygen, seems my diaphram muscles don't move my lungs enough to take in enough oxygen. Post oxygen I had gotten most of my brain back and 12 years later I am enjoying reading againSue
Re: [TMIC] Stress
I remember the warm blankets from the hospital - loved them. Janice From: heyjude48...@aol.com Sent: Thursday, January 24, 2013 8:16 PM To: jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Stress Janice, I remember the massages the nurses gave me when I was in the hospital. They were the best, and the warm blankets were heaven. I keep forgetting to have Dave warm mine up. I'm afraid to sleep with an electric blanket, but I recall them as being wonderful. Jude, Michigan In a message dated 1/24/2013 5:01:24 P.M. Eastern Standard Time, jan...@centurytel.net writes: Cindy, you have clearly been through a very hellish time. When the time comes, there are special places in heaven for people like you. So glad you have such support from family and friends. I did too – nearly dying twice in the hospital I was in for over 9 weeks. My floor social worker sent in a woman to massage my neck and back and she truly relaxed me. When she left, she shut the door and the nurses did not let anyone in my room until dinner. It was truly a relaxing experience – at least for a while.I don’t plan on getting sick again! Janice From: Cindy McLeroy Sent: Tuesday, January 22, 2013 11:42 PM To: heyjude48...@aol.com ; dnca...@gmail.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Stress Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: heyjude48...@aol.com To: dnca...@gmail.com Cc: tmic-list@eskimo.com Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, dnca...@gmail.com writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, heyjude48...@aol.com wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60
[TMIC] Fight Cold and the Flu
What are some of the tips you all have to combat the cold and flu this year? I have come up with a few: First and foremost...we ought to launder our gloves and mittens once a week if we have been out anywhere where we might pick up germs. Places like door handles, railings and ATM's are known to be covered with them. Laundering them each week or running an antibacterial wipe over them daily will help us overcome the flu and cold season. Second...Use Essential oils, Aromatherapy helps to calm the immune system and invigorates or helps you sleep, depending upon the scent. Third...eat well, even when you don't feel like it. Eat foods that are good for you like : Salmon with omega 3 fatty acids Yogurt, with calcium for bone growth Oatmeal, for fiber Chicken Breasts, for protein Fourth, For chest congestion, sinuses, and indigestion add: Thyme to your food. Add 1 T. to hot tea, Boil 2-3 T. to create an antimicrobiotic steam to inhale, Sprinkle on food to suppress chest congestion, sinuses and indegestion. Love you all, Jude
Re: [TMIC] Fight Cold and the Flu
Don't get a flu-shot !!! That's how I got TM... Glendon.. On Friday, 25 January 2013, wrote: ** *What are some of the tips you all have to combat the cold and flu this year?* ** *I have come up with a few:* ** *First and foremost...we ought to launder our gloves and mittens once a week if we have been out anywhere where we might pick up germs. Places like door handles, railings and ATM's are known to be covered with them. Laundering them each week or running an antibacterial wipe over them daily will help us overcome the flu and cold season.* ** *Second...Use Essential oils, Aromatherapy helps to calm the immune system and invigorates or helps you sleep, depending upon the scent.* ** *Third...eat well, even when you don't feel like it. Eat foods that are good for you like :* *Salmon with omega 3 fatty acids* *Yogurt, with calcium for bone growth* *Oatmeal, for fiber* *Chicken Breasts, for protein* ** *Fourth, For chest congestion, sinuses, and indigestion add: Thyme to your food.* * Add 1 T. to hot tea, * * Boil 2-3 T. to create an * * antimicrobiotic steam to inhale,* * Sprinkle on food to suppress * *chest congestion, sinuses and indegestion.* ** *Love you all,* *Jude* ** -- respectfully, *Glendon R. - (a.k.a Goat Dodders) * *...Living with Transverse-Myelitis **since 2007,* *in Brisbane, **Queensland, **Australia... * *email: **goatdodd...@gmail.com* goatdodd...@gmail.com *web-blog: www.bloodywishfulthinking.blogspot.com * *twitter: www.twitter.com/@GoatDodders * *facebook: www.facebook.com/bloody.wishful.thinking *
Re: [TMIC] Re: Subscribe
I live in Georgia and cold enough for me shoeless... and then have to worry about burning them in the summer transfering to the car, guess I can thank TM for the $$ I save on shoes and socks... I can not even take the bed sheets touching them, I sleep with my feet outside the bed From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 11:02:19 PM Subject: Re: [TMIC] Re: Subscribe Kim, I can not imagine that kind of a problem. Do you live in a warm state? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 9:14 PM To: heyjude48...@aol.com ; jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I fell last year and broke my leg, ankle, heel and foot. because I can't take anything on my feet lucky for me orthor knew about TM and in place of surgery he put a walking boot on it) funny still could not walk LOL had to wear it for 5 months but when the TM burning started up I could take it off for a little while From: heyjude48...@aol.com heyjude48...@aol.com To: kimharrison7...@att.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 10:19:14 PM Subject: Re: [TMIC] Re: Subscribe Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England
