Re: [TMIC] Re: Subscribe
I have the burning and/or freezing problem so sometimes I play mind games. When my feet burn so bad I want to cry, die, say good-bye to them, I try to convince myself they're freezing . When they are freezing, I ask myself if they are really burning. Either way they hurt, but it gives me a feeling of being in control. Patti - Michigan On Jan 24, 2013, at 10:14 PM, Kim Harrison kimharrison7...@att.net wrote: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: ** *I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. * ** *Jude,* *Michigan* In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice *From:* Robert Pall robthe...@aol.com *Sent:* Wednesday, January 23, 2013 12:56 PM *To:* heyjude48...@aol.com ; i.whidd...@sky.com *Cc:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe *Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM?* ** *Love you,* *Jude* In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Thanks Pattie, That was good advise. In a message dated 1/25/2013 10:20:07 A.M. Eastern Standard Time, patticoole...@gmail.com writes: Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, _jannic@centurytel.net_ (mailto:jan...@centurytel.net) writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either. I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: _Robert Pall_ (mailto:robthe...@aol.com) Sent: Wednesday, January 23, 2013 12:56 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: i.whiddett _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) Cc: tmic-list _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Broken Bones
Wow, that's a lot of breaks. Do you also have brittle bone disease like I do? What did you do for the 5 months with a walking boot on it. I have one for my broken leg, but it leaves me with sores on my leg where it rubs on it. Hugs, Jude In a message dated 1/25/2013 12:55:50 A.M. Eastern Standard Time, kimharrison7...@att.net writes: I fell last year and broke my leg, ankle, heel and foot. because I can't take anything on my feet lucky for me orthor knew about TM and in place of surgery he put a walking boot on it) funny still could not walk LOL had to wear it for 5 months but when the TM burning started up I could take it off for a little while From: heyjude48...@aol.com heyjude48...@aol.com To: kimharrison7...@att.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 10:19:14 PM Subject: Re: [TMIC] Re: Subscribe Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always
[TMIC] Re: TM Group
Betty, I know I asked everyone for their ideas, but since they are yours, will you please ask them, maybe one per day or when you see that the mails are dwindling? I have a few ideas of my own and will ask them occasionally. I don't want to become the moderator for the group. My initial intention was to get the group started emailing again. Love you, Jude In a message dated 1/25/2013 12:32:12 A.M. Eastern Standard Time, xbeecla...@gmail.com writes: Hi Jude, Because of my compulsion to make lists, quite a while back I began keeping information folks shared in their posts so I could look back if I had questions - or just plain couldn't remember. I've attached my spreadsheet because I thought it might help you in starting some topics of conversation or passing on helpful info/lists/charts for new TM'ers. The first page is a list of TM'ers - their email address, name, spouse (or parent of child with TM), age (if given - but I haven't updated them as each year has passed), blood type (there was a series of posts at one time about whether certain blood types were more prone to TM, but not a lot of responses), birthday, city/state/country, date diagnosed, which area of spine affected, medications used and dosage, and occupation and/or website address. You'll notice it's alphabetic by the person's e-mail address and there is some color-coding... pink background = those now deceased (the ones at the bottom of the page - I never knew their e-mail address, only their names); grey background = those who've unsubscribed or been removed. The second page is a list of doctors TM'ers have received care from or recommended, which hospitals they work out of who recommended them. There are also links to the Johns Hopkins Neurology Neurosurgery website, Dr. Greenberg's website a website to locate a neurosurgeon in your state and see their ratings contact information. The third page is a list of medications TM'ers have indicated they have taken, what dosage (if given), what procedure they had that it was indicated for and what additional diagnosis they were given. The fourth page is a list of supplements TM'ers take besides their pain and/or nerve medication. The last page is a chart of blood types, including the percentage of the population that has that blood type. As for topics for discussion... I was thinking you might consider some of the following: * Exercises - what do TM'ers do for exercise? Go to a gym? YMCA? Therapy? At-home program? And what specific exercises help specific areas of the body affected by TM. * Massage - does it help? Can your body handle it? (personally, I don't like anyone rubbing my body 'cause it sends weird sensations through me). * Utensils / Tools / Gadgets found to be helpful - and where to get them. * Traveling. What hotels cater well to the disabled, tips for flying and/or driving, etc. * Clothing - what works best for you? Cotton / Polyester / Wool / Silk? Can you still wear the same clothing you wore before TM? Do synthetics make your skin crawl? Do you have to wear diabetic socks because regular ones are too tight? * Shoes - what have you found that works best for your balance issues? I hope some of this information helps. It's great to see so many coming back to this group. Hugs to you, my friend! Betty Clark P.S. - my address is: 2642 Wild Bill Way Santa Rosa, CA 95407 phone: 707-575-9501
Re: [TMIC] Fight Cold and the Flu
Glendon, I'm sorry, your name is familiar, but I don't remember who you are. Will you please send me your full name, address and telephone number for my files. I promise that I won't share them with anyone. I only want them in case I want to send you a card or call you sometime. It's really good to hear from you, please write more. Why don't you refresh our memories and tell us your story again. I'd like to hear it. Are you a walker? Thank you my friend, Judy, Michigan In a message dated 1/24/2013 11:32:15 P.M. Eastern Standard Time, goatdodd...@gmail.com writes: Don't get a flu-shot !!! That's how I got TM... Glendon.. On Friday, 25 January 2013, wrote: What are some of the tips you all have to combat the cold and flu this year? I have come up with a few: First and foremost...we ought to launder our gloves and mittens once a week if we have been out anywhere where we might pick up germs. Places like door handles, railings and ATM's are known to be covered with them. Laundering them each week or running an antibacterial wipe over them daily will help us overcome the flu and cold season. Second...Use Essential oils, Aromatherapy helps to calm the immune system and invigorates or helps you sleep, depending upon the scent. Third...eat well, even when you don't feel like it. Eat foods that are good for you like : Salmon with omega 3 fatty acids Yogurt, with calcium for bone growth Oatmeal, for fiber Chicken Breasts, for protein Fourth, For chest congestion, sinuses, and indigestion add: Thyme to your food. Add 1 T. to hot tea, Boil 2-3 T. to create an antimicrobiotic steam to inhale, Sprinkle on food to suppress chest congestion, sinuses and indegestion. Love you all, Jude -- respectfully, Glendon R. - (a.k.a Goat Dodders) ...Living with Transverse-Myelitis since 2007, in Brisbane, Queensland, Australia... email: _goatdodders@gmail.com_ (mailto:goatdodd...@gmail.com) web-blog: _www.bloodywishfulthinking.blogspot.com_ (http://www.bloodywishfulthinking.blogspot.com/) twitter: _www.twitter.com/@GoatDodders_ (http://www.twitter. com/@GoatDodders) facebook: _www.facebook.com/bloody.wishful.thinking_ (http://www.facebook.com/bloody.wishful.thinking)
[TMIC] Internal Thermometer
Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
i know the feeling..pun intended From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:30 PM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
This was more of a problem when I first was attacked by TM, but I still have decreased sense of hot and cold on my right side. One thing that has been a mystery to me is that I now seem to sweat a lot with any increase in activity. Why this is strange is because when I first got TM I didn't sweat any below where my TM hit (C2 - C4 in my neck). Then I started sweating a lot just on my head and then it progressed slowly down over the next 10 to 15 years. Weird, huh? - Roger in Kennewick, WA From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:30 AM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
John, I love your sense of humor! - Roger in Kennewick, WA From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:32 AM Subject: Re: [TMIC] Internal Thermometer i know the feeling..pun intended From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:30 PM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
i think that is one of the things that is hard to deal with,although we all have a lot of the same going on we each have our own differences that are unique to us that cannot be matched in great numbers. just more broken glass to walk on From: Roger Terese Pratt r.c.pr...@frontier.com To: heyjude48...@aol.com heyjude48...@aol.com; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:42 PM Subject: Re: [TMIC] Internal Thermometer This was more of a problem when I first was attacked by TM, but I still have decreased sense of hot and cold on my right side. One thing that has been a mystery to me is that I now seem to sweat a lot with any increase in activity. Why this is strange is because when I first got TM I didn't sweat any below where my TM hit (C2 - C4 in my neck). Then I started sweating a lot just on my head and then it progressed slowly down over the next 10 to 15 years. Weird, huh? - Roger in Kennewick, WA From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:30 AM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
im thankful for the ability to sometimes,,most times look at things and find some humor in it. if nothing is wrong it is rather humorous,if something is wrong it seams to make it less painful. funny how laughter can change things a little and sometimes a little is a lot. From: Roger Terese Pratt r.c.pr...@frontier.com To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:43 PM Subject: Re: [TMIC] Internal Thermometer John, I love your sense of humor! - Roger in Kennewick, WA From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:32 AM Subject: Re: [TMIC] Internal Thermometer i know the feeling..pun intended From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:30 PM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Re: Broken Bones
I am responding to Janice's question about cold feet. Yes since TM my feet feel as though they are encased in ice. Sometime the cold goes up my leg to my knees. They feel so cold they burn. Patti in Wisconsin On Fri, Jan 25, 2013 at 10:59 AM, heyjude48...@aol.com wrote: ** *Wow, that's a lot of breaks. Do you also have brittle bone disease like I do? What did you do for the 5 months with a walking boot on it. I have one for my broken leg, but it leaves me with sores on my leg where it rubs on it.* ** *Hugs,* *Jude* In a message dated 1/25/2013 12:55:50 A.M. Eastern Standard Time, kimharrison7...@att.net writes: I fell last year and broke my leg, ankle, heel and foot. because I can't take anything on my feet lucky for me orthor knew about TM and in place of surgery he put a walking boot on it) funny still could not walk LOL had to wear it for 5 months but when the TM burning started up I could take it off for a little while -- *From:* heyjude48...@aol.com heyjude48...@aol.com *To:* kimharrison7...@att.net *Cc:* tmic-list@eskimo.com *Sent:* Thu, January 24, 2013 10:19:14 PM *Subject:* Re: [TMIC] Re: Subscribe *Kim,* *I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers.* ** *Jude,* *Michigan.* In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My *wish* is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. -- *From:* heyjude48...@aol.com heyjude48...@aol.com *To:* jan...@centurytel.net *Cc:* tmic-list@eskimo.com *Sent:* Thu, January 24, 2013 9:08:56 PM *Subject:* Re: [TMIC] Re: Subscribe *I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed.* ** *Jude* *Michigan* In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice *From:* Kim Harrison kimharrison7...@att.net *Sent:* Wednesday, January 23, 2013 6:29 PM *To:* heyjude48...@aol.com ; jcs...@yahoo.com *Cc:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? -- *From:* heyjude48...@aol.com heyjude48...@aol.com *To:* jcs...@yahoo.com *Cc:* tmic-list@eskimo.com *Sent:* Wed, January 23, 2013 7:24:07 PM *Subject:* Re: [TMIC] Re: Subscribe *I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help!* ** *Jude* In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. -- *From:* Robert Pall robthe...@aol.com *To:* heyjude48...@aol.com; i.whidd...@sky.com *Cc:* tmic-list@eskimo.com *Sent:* Wednesday, January 23, 2013 1:56 PM *Subject:* Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe *Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is
Re: [TMIC] Internal Thermometer
Sounds like you and I have very similar issues... the cold weather makes my nerves feel like they're seizing up. And when my feet (especially the left which is my bad leg) feel like they're freezing, it radiates up my shins to my knees. I do much better during the warmer weather. I think I need to move to Hawaii, Arizona or Florida... maybe even Death Valley! Betty (in Northern California) On 1/25/2013 10:30 AM, Pat Cooley wrote: Jude I was told when I first got TM that it affects our internal thermostate. Our bodies can't adjust to changes of temperature. For me, it is the cold. This tiime of the year I cuddle under my electric throw most of the day. The only time I am really warm is at night when I get under all my blankets. The heat doesn't bother me very much in the summer. I bet you will find that many of us have the same problem - some have a hard time with the cold - and some with the heat. Patti in Wisconsin On Fri, Jan 25, 2013 at 11:30 AM, heyjude48...@aol.com mailto:heyjude48...@aol.com wrote: *Hello All,* ** *My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem?* ** *I can't stand it...it has the potential to cause problems in our marriage.* ** *Love you,* *Judy* *Michigan* *Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown*
[TMIC] request
Re: [TMIC] request
Rick-back on list From: Richard Ashford el...@att.net To: tmic-list@eskimo.com tmic-list@eskimo.com Sent: Friday, January 25, 2013 1:51 PM Subject: [TMIC] request
Re: [TMIC] Re: Subscribe
If you had chicken pox as a child you should get the shingles vac. - Original Message - From: Pat Cooley To: heyjude48...@aol.com Cc: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 7:20 AM Subject: Re: [TMIC] Re: Subscribe Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: reviving the list
Hi Rick, I too was too late to file for Social Security Disability. I hadn't worked for two years when I was hurt, and it wasn't an accident that caused it, so I had no recourse. I just recently talked to an attorney again and she said the same thing. I wish Jimmy Carter was still the President. At least he was taking care of our welfare. Your friend, Jude In a message dated 1/25/2013 5:00:04 P.M. Eastern Standard Time, el...@att.net writes: One neurologist suggested that maybe the tm was before that injury to the cord. Dr. Kerr wouldn't go along with that diaganosis and kept his first diagnosis that the injury developed into transvere myelitis. I reserched the tm archives to find many cases of spinal cord injuries that turned into tm. So its not exclusivly the imutm.ned system that helps tm develope. So research your drs. findings because there may be other reasons that you developed tm. Those findings gave me what I needed to claim Workers Comp. benefits which before that I had no claim to Workers Comp. Insurance. Wc fianally settled with me out of court. In retrospect I could have claimed Socil Security Dis. Ins. I found this out later after 11 years passed my hospitazation insurance canceded on me. Now here I set with no insurance what so ever. These may be things that newbies need to know when trying to understand SS laws. SS only goes back on your work history for 10 years. I didn't know this until it was 11 years later then I was to late. So be careful in your financial interest and planning your future. Your Tn buddy Rick From: heyjude48...@aol.com heyjude48...@aol.com To: el...@att.net Cc: tmic-list@eskimo.com Sent: Friday, January 25, 2013 3:32 PM Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in
Re: [TMIC] Stress
Oh Jan, I'm so sorry to hear about your situation. It must be hard to have to spend so much of your life in the hospital and then in therapy. I'm also sorry to hear about the death of your loved one. Is it your husband that you are talking about or someone else? It certainly doesn't matter to anyone here, I'm sure. It looks as though it is difficult for you to type and maybe you don't have the strength. We understand if you don't answer right away. Just remember that you are in our prayers. Your old friend, Jude, Michigan, where it's blowing snow. We have almost 8 today. 8 sounds funny doesn't it? In a message dated 1/25/2013 1:45:25 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: Hargrove PO Box 1239 Stillwater,OK 74074 The loss of my soul mate a year ago in February has left me usless to me and my family plus I've spent multiple stays at the hospitals here in hospitals and in OKC both heart hospital for surgery and then in Long Term Care Center...I.ve been taking intravenios antibiotics hoping to keep my leg at the LTAC Excuse my spelling..I must stop for now a I'm worn out. There's more to come but not today. With love, jh writing...there's more to tell, but not now. From: heyjude48...@aol.com heyjude48...@aol.com To: jmh1...@sbcglobal.net Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 1:53:05 PM Subject: Re: [TMIC] Stress Jan, I had Janice send you a note from me. I hope you got it. If not, let me know. I need your spelling of your last name, address and phone number for my address book. I promise not to share it with anyone. I may want to send you a card or call you sometime. I love you. Jude, Michigan In a message dated 1/22/2013 11:15:31 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682 _Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) ; r.c.pratt
[TMIC] Re: Rick
Rick, You may need to join the list again. To do that go to: _www.tmic-list-request@eskimo.com_ (http://www.tmic-list-requ...@eskimo.com) and then, wait for a confirmation letter and then write your letter, send it to _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) . and then on the subject line put Submit. You should be ok with those directions. I can't call you 'cause we can't afford it. Write back if you need further help. Your good friend, Jude In a message dated 1/25/2013 1:37:00 P.M. Eastern Standard Time, el...@att.net writes: Jude my mail is not getting out to the list. Rick
Re: [TMIC] Internal Thermometer
I like walking on broken glass, that is a good analogy of what TM feels like to a lot of people. Jude, Michigan, in the snow fall. In a message dated 1/25/2013 1:10:10 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i think that is one of the things that is hard to deal with,although we all have a lot of the same going on we each have our own differences that are unique to us that cannot be matched in great numbers. just more broken glass to walk on From: Roger Terese Pratt r.c.pr...@frontier.com To: heyjude48...@aol.com heyjude48...@aol.com; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Friday, January 25, 2013 12:42 PM Subject: Re: [TMIC] Internal Thermometer This was more of a problem when I first was attacked by TM, but I still have decreased sense of hot and cold on my right side. One thing that has been a mystery to me is that I now seem to sweat a lot with any increase in activity. Why this is strange is because when I first got TM I didn't sweat any below where my TM hit (C2 - C4 in my neck). Then I started sweating a lot just on my head and then it progressed slowly down over the next 10 to 15 years. Weird, huh? - Roger in Kennewick, WA From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:30 AM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Re: reviving the list
Regina, Would you mind sending us the link? Is _www.Foix-Alajounine.com_ (http://www.Foix-Alajounine.com) correct? In a message dated 1/25/2013 5:50:07 P.M. Eastern Standard Time, regina...@sbcglobal.net writes: Okay Rick, TM can be caused by a spinal cord problem. Google Foix-Alajounine for details. Foix-Alajounine or AVM in the spinal cord will cause TM if not fixed. Mine was not fixed, I didn't even know that this congestion was happening in my spinal cord until after I was diagnosed with TM and treated for it. Much later, when I felt that I was getting worse, I insisted on an MRI until I got one and sure enough, it showed an AVM in the spinal cord. I was told to have surgery ASAP to avoid a spinal stroke. I was operated for it in 2007. This young neurologist I saw a year ago explained it all to me after checking my hospital records. The problem is that you can have this AVM for many years and not know it. It hurt me to think that if I had had it taken care of earlier, TM would be something I'd never heard of. Luckily (if you can call it lucky) I was already on social security when all this was going on, had just retired. Putting up with this disease and having to struggle with insurance and finances shouldn't happen to any of us. I wish you well. --- On Fri, 1/25/13, heyjude48...@aol.com heyjude48...@aol.com wrote: From: heyjude48...@aol.com heyjude48...@aol.com Subject: Re: [TMIC] Re: reviving the list To: el...@att.net Cc: tmic-list@eskimo.com Date: Friday, January 25, 2013, 2:05 PM Hi Rick, I too was too late to file for Social Security Disability. I hadn't worked for two years when I was hurt, and it wasn't an accident that caused it, so I had no recourse. I just recently talked to an attorney again and she said the same thing. I wish Jimmy Carter was still the President. At least he was taking care of our welfare. Your friend, Jude In a message dated 1/25/2013 5:00:04 P.M. Eastern Standard Time, el...@att.net writes: One neurologist suggested that maybe the tm was before that injury to the cord. Dr. Kerr wouldn't go along with that diaganosis and kept his first diagnosis that the injury developed into transvere myelitis. I reserched the tm archives to find many cases of spinal cord injuries that turned into tm. So its not exclusivly the imutm.ned system that helps tm develope. So research your drs. findings because there may be other reasons that you developed tm. Those findings gave me what I needed to claim Workers Comp. benefits which before that I had no claim to Workers Comp. Insurance. Wc fianally settled with me out of court. In retrospect I could have claimed Socil Security Dis. Ins. I found this out later after 11 years passed my hospitazation insurance canceded on me. Now here I set with no insurance what so ever. These may be things that newbies need to know when trying to understand SS laws. SS only goes back on your work history for 10 years. I didn't know this until it was 11 years later then I was to late. So be careful in your financial interest and planning your future. Your Tn buddy Rick From: heyjude48...@aol.com heyjude48...@aol.com To: el...@att.net Cc: tmic-list@eskimo.com Sent: Friday, January 25, 2013 3:32 PM Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but
[TMIC] question about sexual function
serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
Fwd: [TMIC] question about sexual function
This question is for the guys... From: jeffsmokeea...@yahoo.com To: tmic-list@eskimo.com, msersl...@yahoogroups.com Sent: 1/25/2013 5:59:56 P.M. Eastern Standard Time Subj: [TMIC] question about sexual function serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
Re: [TMIC] Facebook
Ahhh Dalton, now I feel young as I like FB. Although, it's the pictures of my grandchildren and all the positive comments that I like the most! Not too old for FB. Patti -Michigan On Jan 23, 2013, at 11:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Facebook
It could be the medications. I blamed mine on the steroids. I thought they fried my brain. Although I was an avid reader before TM, it was four months before I could pick up a book. Like Cindy I had to reread over and over to comprehend the story. Reading TM Forum, writing to tmic, working puzzles and reading my Bible have brought me a long way. However, I'm slow and I blame it on meds. Patti V. - Michigan. (Br) On Jan 24, 2013, at 4:30 PM, Tracey L. Black tracey.bl...@hnoins.com wrote: I wonder if it has anything to do with the type of meds that are being taken? Ashlee is a straight A student and has been since before TM. She only takes Oxybutnin XL 15 mg once a day. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. image005.jpg image006.jpg P Please consider the environment before printing Insurance coverage cannot be bound or altered without confirmation from a licensed agent. If you do not hear from us within 1 business day, please re-contact us in case your information has not be retained. This message contains confidential information for use only by its intended recipients and may contain information that is proprietary, privileged, and protected under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the named addressee, you are hereby notified that any use of, distribution of, copying, or reliance upon the contents of this e-mail is strictly prohibited and may result in criminal or civil penalties. Please notify the sender immediately by e-mail if you have received this by mistake and delete this e-mail from your system. Thank you. From: Dalton Garis [mailto:malugss...@me.com] Sent: Thursday, January 24, 2013 4:27 PM To: Cindy McLeroy Cc: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy cindymcle...@socal.rr.com wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Internal Thermometer
I am still at the point where the sweating is only on my head/face – really hate that. Hoping this summer won’t be so bad. Janice From: Roger Terese Pratt Sent: Friday, January 25, 2013 11:42 AM To: heyjude48...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Internal Thermometer This was more of a problem when I first was attacked by TM, but I still have decreased sense of hot and cold on my right side. One thing that has been a mystery to me is that I now seem to sweat a lot with any increase in activity. Why this is strange is because when I first got TM I didn't sweat any below where my TM hit (C2 - C4 in my neck). Then I started sweating a lot just on my head and then it progressed slowly down over the next 10 to 15 years. Weird, huh? - Roger in Kennewick, WA From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:30 AM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Internal Thermometer
I am sweating just reading about you two!!! Janice From: Betty Clark Sent: Friday, January 25, 2013 12:46 PM To: Pat Cooley Cc: heyjude48...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Internal Thermometer Sounds like you and I have very similar issues... the cold weather makes my nerves feel like they're seizing up. And when my feet (especially the left which is my bad leg) feel like they're freezing, it radiates up my shins to my knees. I do much better during the warmer weather. I think I need to move to Hawaii, Arizona or Florida... maybe even Death Valley! Betty (in Northern California) On 1/25/2013 10:30 AM, Pat Cooley wrote: Jude I was told when I first got TM that it affects our internal thermostate. Our bodies can't adjust to changes of temperature. For me, it is the cold. This tiime of the year I cuddle under my electric throw most of the day. The only time I am really warm is at night when I get under all my blankets. The heat doesn't bother me very much in the summer. I bet you will find that many of us have the same problem - some have a hard time with the cold - and some with the heat. Patti in Wisconsin On Fri, Jan 25, 2013 at 11:30 AM, heyjude48...@aol.com wrote: Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown
Re: [TMIC] Re: Subscribe
I just cannot imagine that kind of sensitivity on your feet.Good thing you live in Georgia! My sister lives in Savannah, where do you live? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 11:52 PM To: Janice Nichols ; heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe I live in Georgia and cold enough for me shoeless... and then have to worry about burning them in the summer transfering to the car, guess I can thank TM for the $$ I save on shoes and socks... I can not even take the bed sheets touching them, I sleep with my feet outside the bed From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 11:02:19 PM Subject: Re: [TMIC] Re: Subscribe Kim, I can not imagine that kind of a problem. Do you live in a warm state? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 9:14 PM To: heyjude48...@aol.com ; jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? -- From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago
Re: [TMIC] Re: Subscribe
I get more spasms than pain on my feet.I don’t want to ever apply pressure to my feet or legs - especially my knees!HURTS!! I am Catholic and I know I will never kneel again. Janice From: Pat Voorheis Sent: Friday, January 25, 2013 8:32 AM To: Kim Harrison Cc: heyjude48...@aol.com ; jan...@centurytel.net ; tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe I have the burning and/or freezing problem so sometimes I play mind games. When my feet burn so bad I want to cry, die, say good-bye to them, I try to convince myself they're freezing . When they are freezing, I ask myself if they are really burning. Either way they hurt, but it gives me a feeling of being in control. Patti - Michigan On Jan 24, 2013, at 10:14 PM, Kim Harrison kimharrison7...@att.net wrote: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. -- From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. -- From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had
Re: [TMIC] Re: Broken Bones
My feet are cold a lot, but putting on slippers helps a lot. Janice From: Pat Cooley Sent: Friday, January 25, 2013 12:37 PM To: Janice Nichols Cc: kimharrison7...@att.net ; tmic-list@eskimo.com Subject: Re: [TMIC] Re: Broken Bones I am responding to Janice's question about cold feet. Yes since TM my feet feel as though they are encased in ice. Sometime the cold goes up my leg to my knees. They feel so cold they burn. Patti in Wisconsin On Fri, Jan 25, 2013 at 10:59 AM, heyjude48...@aol.com wrote: Wow, that's a lot of breaks. Do you also have brittle bone disease like I do? What did you do for the 5 months with a walking boot on it. I have one for my broken leg, but it leaves me with sores on my leg where it rubs on it. Hugs, Jude In a message dated 1/25/2013 12:55:50 A.M. Eastern Standard Time, kimharrison7...@att.net writes: I fell last year and broke my leg, ankle, heel and foot. because I can't take anything on my feet lucky for me orthor knew about TM and in place of surgery he put a walking boot on it) funny still could not walk LOL had to wear it for 5 months but when the TM burning started up I could take it off for a little while From: heyjude48...@aol.com heyjude48...@aol.com To: kimharrison7...@att.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 10:19:14 PM Subject: Re: [TMIC] Re: Subscribe Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. -- From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. -- From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have
Re: [TMIC] Re: reviving the list
Rick, your story is the first one I have seen that sounds like there was a definite reason for TM to strike. What a way to find out though! Janice From: heyjude48...@aol.com Sent: Friday, January 25, 2013 3:32 PM To: el...@att.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in
[TMIC] SHINGLES
FOR ANY OF YOU THAT HAVE NOT GOTTEN A ‘ SHINGLES’ SHOT, YOU NEED TO GET ONE.I AM SURE YOUR DOCTORS WILL WANT YOU TO. There is an age thing that you have to be at least 60 or a little older. But, check it out with your doc and get the shot if he/she agrees. SHINGLES hurts and it hits our age group!! Your friend, Janice
Re: [TMIC] request
There you go!!! Janice From: Richard Ashford Sent: Friday, January 25, 2013 2:05 PM To: Richard Ashford ; tmic-list@eskimo.com Subject: Re: [TMIC] request Rick-back on list From: Richard Ashford el...@att.net To: tmic-list@eskimo.com tmic-list@eskimo.com Sent: Friday, January 25, 2013 1:51 PM Subject: [TMIC] request
Re: [TMIC] Stress
Jan, I also am so sorry to hear about your difficulties.Stay tough, you can get through this. Jude - send some of that snow to Missouri. We need it. Janice From: heyjude48...@aol.com Sent: Friday, January 25, 2013 4:17 PM To: jmh1...@sbcglobal.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Stress Oh Jan, I'm so sorry to hear about your situation. It must be hard to have to spend so much of your life in the hospital and then in therapy. I'm also sorry to hear about the death of your loved one. Is it your husband that you are talking about or someone else? It certainly doesn't matter to anyone here, I'm sure. It looks as though it is difficult for you to type and maybe you don't have the strength. We understand if you don't answer right away. Just remember that you are in our prayers. Your old friend, Jude, Michigan, where it's blowing snow. We have almost 8 today. 8 sounds funny doesn't it? In a message dated 1/25/2013 1:45:25 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: Hargrove PO Box 1239 Stillwater,OK 74074 The loss of my soul mate a year ago in February has left me usless to me and my family plus I've spent multiple stays at the hospitals here in hospitals and in OKC both heart hospital for surgery and then in Long Term Care Center...I.ve been taking intravenios antibiotics hoping to keep my leg at the LTAC Excuse my spelling..I must stop for now a I'm worn out. There's more to come but not today. With love, jh writing...there's more to tell, but not now. -- From: heyjude48...@aol.com heyjude48...@aol.com To: jmh1...@sbcglobal.net Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 1:53:05 PM Subject: Re: [TMIC] Stress Jan, I had Janice send you a note from me. I hope you got it. If not, let me know. I need your spelling of your last name, address and phone number for my address book. I promise not to share it with anyone. I may want to send you a card or call you sometime. I love you. Jude, Michigan In a message dated 1/22/2013 11:15:31 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38
[TMIC] Fw: What to take to bed with you...Not a Joke!
THOUGHT THIS MIGHT BE A GOOD IDEA FOR ALL OF US. JANICE What to take to bed with you - not a joke. Put your car keys beside your bed at night. Tell your spouse, your children, your neighbors, your parents, your Dr's office, the check-out girl at the market, everyone you run across. Put your car keys beside your bed at night. If you hear a noise outside your home or someone trying to get in your house, just press the panic button for your car. The alarm will be set off, and the horn will continue to sound until either you turn it off or the car battery dies. This tip came from a neighborhood watch coordinator. Next time you come home for the night and you start to put your keys away, think of this: It's a security alarm system that you probably already have and requires no installation. Test it. It will go off from most everywhere inside your house and will keep honking until your battery runs down or until you reset it with the button on the key fob chain. It works if you park in your driveway or garage. If your car alarm goes off when someone is trying to break into your house, odds are the burglar/rapist won't stick around. After a few seconds, all the neighbors will be looking out their windows to see who is out there and sure enough the criminal won't want that. And remember to carry your keys while walking to your car in a parking lot. The alarm can work the same way there. This is something that should really be shared with everyone. Maybe it could save a life or a sexual abuse crime. P.S. I am sending this to everyone I know because I think it is fantastic. Would also be useful for any emergency, such as a heart attack, where you can't reach a phone. My Mom has suggested to my Dad that he carry his car keys with him in case he falls outside and she doesn't hear him. He can activate the car alarm and then she'll know there's a problem. image001.jpg
Re: [TMIC] Re: Subscribe
Cindy I have often wondered that since I had singles, does that mean I can't get it again? I am afraid to get any shots. I have been advised not to Patti - Wisconsin On Fri, Jan 25, 2013 at 2:51 PM, Cindy McLeroy cindymcle...@socal.rr.comwrote: ** If you had chicken pox as a child you should get the shingles vac. - Original Message - *From:* Pat Cooley patticoole...@gmail.com *To:* heyjude48...@aol.com *Cc:* jan...@centurytel.net ; tmic-list@eskimo.com *Sent:* Friday, January 25, 2013 7:20 AM *Subject:* Re: [TMIC] Re: Subscribe Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: ** *I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. * ** *Jude,* *Michigan* In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice *From:* Robert Pall robthe...@aol.com *Sent:* Wednesday, January 23, 2013 12:56 PM *To:* heyjude48...@aol.com ; i.whidd...@sky.com *Cc:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe *Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM?* ** *Love you,* *Jude* In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] request
Welcome back Rick. Patti - Wisconsn On Fri, Jan 25, 2013 at 2:05 PM, Richard Ashford el...@att.net wrote: Rick-back on list *From:* Richard Ashford el...@att.net *To:* tmic-list@eskimo.com tmic-list@eskimo.com *Sent:* Friday, January 25, 2013 1:51 PM *Subject:* [TMIC] request
Re: [TMIC] Fw: What to take to bed with you...Not a Joke!
Janice I read this before somewhere. I can't remember where or when. Thanks for the reminder. Patti - Wisconsin On Fri, Jan 25, 2013 at 7:24 PM, Janice Nichols jan...@centurytel.netwrote: THOUGHT THIS MIGHT BE A GOOD IDEA FOR ALL OF US. JANICE *What to take to bed with you - not a joke.* * * *[image: keys.jpg]* * ** **Put your car keys beside your bed at night.** Tell your spouse, your children, your neighbors, your parents, your Dr's office, the check-out girl at the market, everyone you run across. Put your car keys beside your bed at night. If you hear a noise outside your home or someone trying to get in your house, just press the panic button for your car. The alarm will be set off, and the horn will continue to sound until either you turn it off or the car battery dies. This tip came from a neighborhood watch coordinator. Next time you come home for the night and you start to put your keys away, think of this: It's a security alarm system that you probably already have and requires no installation. Test it. It will go off from most everywhere inside your house and will keep honking until your battery runs down or until you reset it with the button on the key fob chain. It works if you park in your driveway or garage. If your car alarm goes off when someone is trying to break into your house, odds are the burglar/rapist won't stick around. After a few seconds, all the neighbors will be looking out their windows to see who is out there and sure enough the criminal won't want that. And remember to carry your keys while walking to your car in a parking lot. The alarm can work the same way there. This is something that should really be shared with everyone. Maybe it could save a life or a sexual abuse crime. P.S. I am sending this to everyone I know because I think it is fantastic. Would also be useful for any emergency, such as a heart attack, where you can't reach a phone. My Mom has suggested to my Dad that he carry his car keys with him in case he falls outside and she doesn't hear him. He can activate the car alarm and then she'll know there's a problem.* image001.jpg
Re: [TMIC] SHINGLES
Janice - the shingles vaccine was originally recommended for those 60 and over, but in March of 2011, the FDA approved it for individuals 50-59. My sister was 50 when she had her bout of shingles. She, my mother and I have all experienced some form of auto-immune issue - but each one has been completely different... my mom has had Temporal Arteritis, Rheumatoid Arthritis and Alopecia. My sister has had shingles and now has Celiac (gluten-intolerance... so severe her husband has to use a separate cutting board in their home), and I have TM. I also have Scoliosis, but it's never been defined as an auto-immune issue, however, it has been speculated to be. Betty (in Northern California) On 1/25/2013 5:15 PM, Janice Nichols wrote: FOR ANY OF YOU THAT HAVE NOT GOTTEN A ‘ SHINGLES’ SHOT, YOU NEED TO GET ONE.I AM SURE YOUR DOCTORS WILL WANT YOU TO. There is an age thing that you have to be at least 60 or a little older. But, check it out with your doc and get the shot if he/she agrees. SHINGLES hurts and it hits our age group!! Your friend, Janice
Re: [TMIC] question about sexual function
This one is for the guys... In a message dated 1/25/2013 5:59:56 P.M. Eastern Standard Time, jeffsmokeea...@yahoo.com writes: serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
Re: [TMIC] Unidentified subject!
Hi Deb, I had no idea you were involved with TMIC in that capacity. I never knew that about you. Surprise, surprise! I am trying to get people involved with us and am struggling to come up with things to discuss. You say that you try to make sure that topics are not talked about over and over, but it's hard to come up with things that are new. What am I supposed to do. At least there are a few more people writing in now. Or is it only that I have just come back? Have people been writing back and forth that you know of? Please let me know. I appreciate your attention. Thank you, Jude, Midhigan In a message dated 1/25/2013 8:00:48 P.M. Eastern Standard Time, dnca...@gmail.com writes: Hi Jude, No, it has nothing to do with getting spammed. I live on the computer. I do all my work on the computer, I build computers, create the websites, proofread all the TMA articles, etc. I know how to get rid of spam. It is just a matter of hitting the delete button. I have been part of the original tmic list almost since the first emails started going back and forth, back in January, 1997. I have watched people sign up with the list, I have watched people die on the list, I have to talk to people with TM on the phone and internet every single day. That is part of my job. I also have met my closest and dearest friends because of the tmic list. I have monitored the list for 16 years. When there is objectionable material, I notify the proper people, and those emails are deleted so that others who may search the archives for information will not read the objectionable material. I also know that every time an infected email enters my computer (one that has a virus), it has come from somebody on the list who has had their address book hacked. So, when these emails come in to the list, we simply unsubscribe them from the list, so that they are unable to send any more emails to the list until they get their computers fixed. Once they realize that they have not received tmic list emails, it has probably been after they have removed their viruses, and they resubscribe. So, notifying everybody on the list is really just not necessary. I just know when to sit back and not get involved and have learned from my own personal bad experiences when to back off so as not to get insulted by people who think I am “butting in” too much. I also know that some of the same problems and issues that people are experiencing have been discussed and discussed over and over, and people neglect to take advantage of all the wealth of information that has been stored in the archives from all the previous email conversations over the past 16 years, and if they are not going to read all the valuable information, rather ask the same questions over and over on the list, why bother trying to explain again? Anyway, I am sorry that I have created such a long email, but I just wanted you to understand where I am coming from, and it has nothing to do with you, just “experience” has taught me to stay in the background. Take care, Debbie From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Friday, January 25, 2013 4:05 PM To: dnca...@gmail.com Subject: Re: [TMIC] Unidentified subject! Ok, Deb, I do not understand what you're saying. Are you not going to send messages to the group anymore? Is it because you are worried about getting spammed? I have only been spammed a handful, if that, many times over all the years I've been on the computer. We really need your input on TMIC. You're a valuable person with a lot of good information to share. I will understand if you don't want to continue with us, but each person makes a difference and your words count. Your friend, Jude Here's to the nights that turned into mornings, with the friends that turned into family. (unknown) In a message dated 1/25/2013 12:33:41 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Hello Jude, First, thank you for not copying the list with my email and private concerns. Some people on the list do not have their computers properly protected with anti-virus software, thus their computers are repeatedly hacked. Also, some people have the option marked “automatically add all people to address book”, so my email address gets entered into all these anonymous computers, and when they get a virus, I (and hundreds of other people) receive an infected email. If people wish to be on the internet, they should be responsible for protecting their own computers from these infections, and when one person sends an infected email to the list, suddenly about 20 people will send an email to the list that they need to ignore all messages sent by that one person because it is infected. So, I figure that eventually people will “get it” and I don’t
Re: [TMIC] Re: Subscribe
Janice I live in Douglasvile about 20 miles west of Atlanta, and in the process of tyring to get the Georgia TMA Walk and Roll event up planned, up and running From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Fri, January 25, 2013 7:55:00 PM Subject: Re: [TMIC] Re: Subscribe I just cannot imagine that kind of sensitivity on your feet. Good thing you live in Georgia! My sister lives in Savannah, where do you live? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 11:52 PM To: Janice Nichols ; heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe I live in Georgia and cold enough for me shoeless... and then have to worry about burning them in the summer transfering to the car, guess I can thank TM for the $$ I save on shoes and socks... I can not even take the bed sheets touching them, I sleep with my feet outside the bed From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 11:02:19 PM Subject: Re: [TMIC] Re: Subscribe Kim, I can not imagine that kind of a problem. Do you live in a warm state? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 9:14 PM To: heyjude48...@aol.com ; jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've
Re: [TMIC] question about sexual function
Jeff, I have had TM for 18+ years and yes I have this problem (and I am not paraplegic, just have nerve damage). When I have asked doctors about it they look give me a blank look, suggest Viagra and then talk about something else. I have never heard of something that will resolve it. Maybe someone else has better input (although this seems to be a sensitive subject that people tend to avoid). Roger in Kennewick, WA From: jeff bernier jeffsmokeea...@yahoo.com To: tmic-list@eskimo.com; msersl...@yahoogroups.com Sent: Friday, January 25, 2013 2:59 PM Subject: [TMIC] question about sexual function serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
[TMIC] Tonight, Today, Tomorrow
Hi everybody, Tonight, sitting here doing nothing, I'm wondering how Transverse Myelitis has affected your life. What has it stolen from you. Maybe everything, maybe nothing. I'm sure it is a personal thing. Some people choose to focus on life and believe that everything in life happens for a reason. I love life and refuse to let TM steal one minute. Life is made up of many joyous moments and I choose to focus on those moments, not TM. Because of my love for life, I refuse to feel sorry for myself. I've learned to be outspoken about my TM and I've become a demanding person because of TM. I hate that I've had to give up driving and remember how it used to feel heading down the highway with my arm resting on the window turned all the way down. Always remember that today could be potentially the best day of your life. Never take today for granted. When you wake up each morning remember to thank God for giving you another day. Always end the day with a positive thought. No matter how hard thing were, Tomorrow is a fresh opportunity to make it better. (unknown)
[TMIC] Our Memories
How is your memory these days? Have you experienced memory loss? If so, how does it affect your life? Does your faulty memory affect your life with your loved ones? Memory loss has to do with the myelin sheath. The myelin sheath coats the neurons in the spinal column to cement memories. TM destroys the myelin sheath, so that our memories become clouded or we have no memories at all. The more we repeat things we need to remember, the thicker the layer of myelin forms around the neurons. Brain games such as Scrabble, Seduki, Boggle, Crossword Puzzles,and other games help us to reform the myelin sheath... Any thoughts on this? Many hugs, Jude
Re: [TMIC] Re: Subscribe
I checked on WEBMD and found the following: June 5, 2012 -- A new study offers encouraging news for people who have recently experienced a painful bout of shingles. For most people, the risk of having shingles recur after the initial occurrence is fairly low. The study appears online in the Journal of Infectious Diseases. There was a lot of info on shingles at their website. I did find some articles in other websites that indicated there was a small change of having a reoccurrence. I do trust WEBMD though. Cindy - Original Message - From: Pat Cooley To: Cindy McLeroy Cc: heyjude48...@aol.com ; jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 5:28 PM Subject: Re: [TMIC] Re: Subscribe Cindy I have often wondered that since I had singles, does that mean I can't get it again? I am afraid to get any shots. I have been advised not to Patti - Wisconsin On Fri, Jan 25, 2013 at 2:51 PM, Cindy McLeroy cindymcle...@socal.rr.com wrote: If you had chicken pox as a child you should get the shingles vac. - Original Message - From: Pat Cooley To: heyjude48...@aol.com Cc: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 7:20 AM Subject: Re: [TMIC] Re: Subscribe Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are
Re: [TMIC] Our Memories
Jane, Will you remind me please who you are? What is your last name so I can make an address book addition for you. Thank you, Jude In a message dated 1/25/2013 11:42:15 P.M. Eastern Standard Time, celr...@aol.com writes: My memory is shot. Jane/Splendora Tx In a message dated 1/25/2013 9:55:34 P.M. Central Standard Time, heyjude48...@aol.com writes: How is your memory these days? Have you experienced memory loss? If so, how does it affect your life? Does your faulty memory affect your life with your loved ones? Memory loss has to do with the myelin sheath. The myelin sheath coats the neurons in the spinal column to cement memories. TM destroys the myelin sheath, so that our memories become clouded or we have no memories at all. The more we repeat things we need to remember, the thicker the layer of myelin forms around the neurons. Brain games such as Scrabble, Seduki, Boggle, Crossword Puzzles,and other games help us to reform the myelin sheath... Any thoughts on this? Many hugs, Jude
Re: [TMIC] Re: Subscribe
Good for you - that is great!! Janice From: Kim Harrison Sent: Friday, January 25, 2013 9:10 PM To: Janice Nichols ; heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Janice I live in Douglasvile about 20 miles west of Atlanta, and in the process of tyring to get the Georgia TMA Walk and Roll event up planned, up and running From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Fri, January 25, 2013 7:55:00 PM Subject: Re: [TMIC] Re: Subscribe I just cannot imagine that kind of sensitivity on your feet.Good thing you live in Georgia! My sister lives in Savannah, where do you live? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 11:52 PM To: Janice Nichols ; heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe I live in Georgia and cold enough for me shoeless... and then have to worry about burning them in the summer transfering to the car, guess I can thank TM for the $$ I save on shoes and socks... I can not even take the bed sheets touching them, I sleep with my feet outside the bed From: Janice Nichols jan...@centurytel.net To: Kim Harrison kimharrison7...@att.net; heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 11:02:19 PM Subject: Re: [TMIC] Re: Subscribe Kim, I can not imagine that kind of a problem. Do you live in a warm state? Janice From: Kim Harrison Sent: Thursday, January 24, 2013 9:14 PM To: heyjude48...@aol.com ; jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: heyjude48...@aol.com heyjude48...@aol.com To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: Kim Harrison Sent: Wednesday, January 23, 2013 6:29 PM To: heyjude48...@aol.com ; jcs...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? -- From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in
[TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
Jeff, Please don’t think this is too personal a topic for this site - it isn’t. It has been brought up before with more responses from men, but that was quite a while ago. You have offended no one and please keep asking whatever is on your mind. Janice From: jeff bernier Sent: Friday, January 25, 2013 11:09 PM To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Subject: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
I agree with Janice, Jeff when it comes to TM nothing is off limits, it just might me a slow night, hand in there friend From: Janice Nichols jan...@centurytel.net To: jeff bernier jeffsmokeea...@yahoo.com; msersl...@yahoogroups.com; tmic-list@eskimo.com Sent: Sat, January 26, 2013 12:21:29 AM Subject: Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU Jeff, Please don’t think this is too personal a topic for this site - it isn’t. It has been brought up before with more responses from men, but that was quite a while ago. You have offended no one and please keep asking whatever is on your mind. Janice From: jeff bernier Sent: Friday, January 25, 2013 11:09 PM To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Subject: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
