Re: [TMIC] February birthdays
HAPPY BIRTHDAY to all TM'ers born in February!!!
[TMIC] January birthdays
HAPPY NEW YEAR and HAPPY BIRTHDAY to everyone both in the month of January!
Re: [TMIC] November birthdays
In a message dated 11/1/2012 8:56:41 A.M. Eastern Standard Time, patticoole...@gmail.com writes: P.S. I MISS HEARING FROM ALL OF YOU ON TMIC. IT SEEMS NO ONE USES THAT WAY TO COMMUNICATE WITH EACH OTHER. I USUALLY READ EVERYTHING ON THE VARIOUS FB GROUPS, BUT MISS ALL THE REGULARS. Thank you and this is so true
Re: [TMIC] My son Chris OFF TOPIC
My condolences to you and your family. God will make a way somehow just keep the faith. Ella
Re: [TMIC] My anniversary
Thanks all and Cheryl I hope we never find out what would happen without TMIC. At the end of the day I looked back and saw it was a very good day.Ella
[TMIC] My anniversary
It's true when life gives us a hundred reasons to cry, we have to show life that we have a thousand reasons to smile. Sometimes God pushes us to our limits (and I am feeling stretched), HE tests us beyond our endurance because HE has greater faith in us than we have in ourselves so I am going to continue to trust. Today marks 11 years since I slipped into a coma and awoke to a life forever changed but I am not bitter. I've met so many wonderful friends here on TMIC and thanks for always being here to answer a question or give a pick-me up.
Re: [TMIC] gone to facebook
Hello still here in Ohio where it's still 80. Oddly, I can't feel it's hot until the temp is 70 and I am burning up and yes I too have FB but staying here as well. Ella
Re: [TMIC] Re: [TMIC] August Birthdays
In a message dated 8/1/2011 4:10:02 P.M. Eastern Daylight Time, rumc...@hotmail.com writes: It's a special time to be alive. TM is just a small part of our lives, but it brought us together and no one and nothing can stop us from being happy on our special day. So happy birthday my friends! I love you all... I agree!!! Happy Birthday to everyone born this month and hope you have a good time celebrating.
Re: [TMIC] HELP- I don't know how to get off this website
Go on here and click on the unsubscribe link _Transverse Myelitis Internet Club_ (http://www.myelitis.org/tmic/)
Re: [TMIC] OT - Need Brain Help
Who were the characters. the Robinson's? They were humans on Lost In Space
Re: [TMIC] Re: tmic-digest Digest V2011 #164
It's Good Friday here and I hope things have gone okay and come together nicely for you Dalton. Hopefully the creepy feeling is from stress and a signal to clear you mind a little especially since the steroids seemed to stabilize things a bit. Be well and pound those keys when you need to as we are here for you LOL...Ella
Re: [TMIC] Re: getting better now!
That is great news Dalton! Glad you feel better after treatments, maybe next year you can be considered for Dancing With The Stars...you'd have my vote. Keeping you in my prayers.Ella
Re:[TMIC] its cold and im annoyed
You still have snow up there? I'm not far from you (in Northern Ohio) and we are having rain but it's a shame there are no young kids wanting to make a little money by shoveling snow. Whatever happened to 'the good old days'?
Re: [TMIC] Stim/TENS
I have one but it didn't seem to do anything as far as pain relief for me but so glad it is helping you Akua and so so happy PT is still working with you..Ella
Re:[TMIC] OT - need help in remembering book title
Could it be Texas Chainsaw Murders or Massacare?
Re: [TMIC] Returns
Akua count me in too, I will be a sideline cheerleader from my chair. Goo Akua... concentrate...push her hand Very happy you finally got a PT to come work with you. The squeaky wheel is finally getting some oil, have a good oneElla
Re: [TMIC] grandson
Congrats Wim, they're both adorable. Ella in Ohio
Re: [TMIC] Remember Me? What's going on?
Dalton are you sure you want to come back to the snowy states and leave sunny warm Abu Dhabi? Hope you're feeling well and have TM symptoms under controlElla
Re: [TMIC] OT-Memorial Service
My prayers are with you Jane and your family...Ella
Re: [TMIC] It's my birthday
Thank you everyone and though still cloudy out, I am feeling much better today. I guess I just had to get 'my pity party' out but getting the cake done for my grandmother, encouraging words from you and a good night's sleep (and prayer) I'm back in for this fight called life..Ella
[TMIC] It's my birthday
Hello everyone, Today I am TM 10 and not sure of how I feel. The fact that it is cloudy out doesn't help either. Ten years ago I went into a coma and awoke weeks later not able to move anything, not even my head. Eventually I got everything back but my legs and what happened in the 90's. Am I depressed? I say I am but doctors don't think so, just a bit of sadness. I think I live 80% in my head so I don't dwell on the pain below and everything else that goes along with TM. Am I scared? Sometimes when I think yes this is my new life knowing how bad I want the old. You guys are a God-send and the support we give each other is beyond words. Thanks, I thought I was feeling sorry for myself but writing this made me feel better, have a great dayElla
Re: [TMIC] Medications
In a message dated 9/14/2010 12:02:22 P.M. Eastern Daylight Time, malugss...@gmail.com writes: Thanks; But I am not hopeful. I seem to be like this washing machine model that none of the repairmen has ever seen before. Dalton Dalton you have to keep the hope and we'll be here with you, as for the washing machine...somebody built it so there is somebody who can fix it.Ella
RE: [TMIC] September Birthdays
HAPPY BIRTHDAY to all born this month (and Pam Montz on the 9th)
RE: [TMIC] update on Mike
Jill and the Hammond Team, My deepest condolences to all of you. You will always be a part of TMIC and we'll always be here to listen and support. R.I.P MikeElla
Re: [TMIC] I am fine
YEAH SAROJ IS OKAY It was so good to see you had written in to us. Glad you finally won the battle against your tenants but sorry to hear you're having more problems with your walking but know that when you feel depressed you don't have to go it alone, that's what we are here for. Ella
[TMIC] Dan Montz
I received a note from him last night. He read our posts and wants to heartfully that everyone for the kind words and remembering him and Pam. Ella
Re: [TMIC] How to deal with isolation
I am 9+ years into my TM (paraplegic) and so miss my old self. I loved anything outdoors and my jobs let me do that also but that stopped after TM. Now thankfully I have great family and friends and I have to put them out just to get some quiet to do things I like like cooking, housework and reading. I choose to stay in most of the time now and during school I will tutor students but mainly it seems I am entertaining. And speaking of isolation, I speak with Dan (Montz) via computer and I feel he thinks we have forgotten Pam especially today being it is now 1 year since her passing and he occasionally reads our mail so if you could send him some encouragement I know he would appreciate it. Have a great day everyone.Ella
[TMIC] Re: new member
Hi Kelly Jean, Welcome to our world at TMIC. I can only answer a few of your questions. I've had TM for 9 years now but have not done acupuncture, reflexology or homeopathic meds. I had the solumedrol when I first got TM but don't remember as I was in a coma at my onset but I have not had any steroids since my release. If you look in the TMIC archives you will find a lot of answers there as well. My lesion is T-6 to T-10 and I am a paraplegic and yes, therapy and stretching does help. For me the tight banding has not eased at all nor has the stingy/buzzing feeling. I know what you meant when you talked about the water splashing on you, horrible but the meds my neurologist has me on is Neurontin, Ultram and Zanaflex. I am not thinking too clearly at the moment (sorry) but wanted to welcome you to our family, you are not alone.Ella
Re: [TMIC] happy birthday June
Happy birthday to all born this month and we have a somber anniversary on the 6th, the one year passing of Pam Montz so I ask that you please say a prayer for her family...Ella
Re: [TMIC] Shoes
A few years ago I had a terrible pressure sore on my foot so I know what you're going through looking for shoes. If alternate between (high top) tennis shoes and earth shoes and by them being wider at the toe I can take an insole and put it sideways for extra cushion on the side. Ella
Re: [TMIC] re OT my Mom..update
In a message dated 3/6/2010 4:48:36 A.M. Eastern Standard Time, wolft...@optonline.net writes: My Mom is in a deep depression..refusing food and hydration..barely communicative. The doctors are trying different medications. I'm scared. Please keep your prayers and good thoughts coming. Bless you all.. Kevin Hello Kevin, Of course I will keep your mother (and you) in prayer. I had guardianship of an elderly cousin (I was 35 and she 83) who was in the same state of mind as your mom yet when the doctors could not think of what to do, I had them to place a feeding tube so she would have nourishment and liquids. Have they suggested this for you? Another thing to think about doing is to have them play some music that she loved or maybe read a book, look at pictures...anything but leave her alone in her head. Be blessed and take careElla
[TMIC] Did you see Sunday's Parade magazine?
They had a thingy/apparatus called ReWalk where this paralyzed man put it on his back along with some braces and got up and walked about 100'. It said even for people who have been paralyzed for years, would be good to go along (to aid in walking) and with repairing our myelin sheath that Dr Kerr and his team are working on no? Today I would trade a leg and walk like Captain Ahab to go play in the snow with my great nieces and nephews. LOL Have a good day all..Ella
[TMIC] Shampoo shower caps
Hello everyone (and happy new year). I was talking with Dan Montz (Pam's husband) and he wanted if I used them and asked if I'd pass the info to you. It does seem like a good thing. Have a good one...Ella In a message dated 1/7/2010 8:28:52 P.M. Eastern Standard Time, MontzMagic writes: TMIC GROUP ABOUT THEM--OK -HERE IS THE INFO ---SAGE PRODUCTS INC--1-800-323-2220---3909 THREE OAKS ROAD--CARY OL. 60013---REORDER IS NUMBER IS #7909 COMFORT SHAMPOO CAP--ALL-IN-ONE--RINSE FREE SHAMPOO ANS CONDITIONER -1 CAP PER BAG --- I THINK PAM WOULD LIKE FOR THEM TO KNOW ABOUT HIS IF THEY DO NOT ALREADY??
Re: [TMIC] asking for prayers
Barbara, I just read your message and hope by now you son is doing better still. Yes my prayers have gone up for you and the family...Ella
RE: [TMIC] Hey Jude...it's me! (ATT. PATTI)
Dan read your post and asked that I send this. Hope everyone is having a nice day.Ella In a message dated 12/20/2009 3:52:18 P.M. Eastern Standard Time, MontzMagic writes: IT-SO NICE TI SEE SOMEONE REMEMBERED HER IN THERE- THANKS PATRICIA-TELL HER- I GRIEVE ALSO VERY VERY MUCH-DO THAT FOR ME
Re: [TMIC] Age
I was 2 months shy of my 41st birthday in Sept. 2000 Ella Elyria, Oh
Re: [TMIC] December birthdays!
Happy Birthday Jan and all the rest who will celebrate this month. I hope you have a good one! Ella
Re: [TMIC] Question
In a message dated 11/28/2009 7:04:39 P.M. Eastern Standard Time, wolft...@optonline.net writes: I'm mainly wondering about the APLS/APS as I've never heard of them, and the Tramadol. Make sense to anyone? I don't know Kevin but before you do anything, I would ask my doctor and I would not order the drugs from overseas..Ella
[TMIC] pics
Does anyone know how to reset your password to post a picture? I want to update mine and the link said it would send me the ne I had but has not. Thank you..Ella
[TMIC] November birthdays
Thank you for the birthday wish. Mine was on the 1st AND I got an extra hour! YeahElla
Re: [TMIC] My wonderful husband Jim
Your worst days are never so bad that you are beyond the reach of God's hands, I'm sending prayers up for you, Jim and family..Ella
Re: [TMIC] September birthdays
Pam Montz' birthday would have been on the 9th and I know her husband (Dan) is still having a hard time dealing with his loss and would always welcome a hello. He still has the address _montzma...@aol.com_ (mailto:montzma...@aol.com) Ella
Re: [TMIC] able to move slightly
Jim I cannot think of a word great enough to express my joy seeing your hand move. I am so happy for you, congratulations..Ella
Re: [TMIC] Update on Jim
Carol you keep your hopes and prayers upward and we are behind you and Jim with our prayers that it will be alright. Sending my prayers and positive thoughts your way.Ella
Re: [TMIC] OT:My Pattern published!
Well congratulations to you Akua! I googled the calendar and found it (they're cute) and I included the link if anyone else wants to see.Ella _Zen Crochet by Akua_ (http://www.zencrochet.blogspot.com/)
Re: [TMIC] An unpleasant subject.
Mike, I know well how it is to always get something. When I was young I got bit by a snake and got mercury poisoning which never really leaves your system so when got bit by the mosquito and got encephalitis, I woke from the coma paralyzed from the jaw down with TM BUTwe must always pray for the best and I will surely keep you and the rest of our TM family in my prayers. I pray for a complete and speedy recovery for you. Ella
Re: [TMIC] Wheelchair questions
No I cannot walk (paraplegic). The arms go up and I can use a sliding board with a little help to get in it because sometimes my legs have a lot of tone and refuse to work with me. In a message dated 8/12/2009 9:58:30 P.M. Eastern Daylight Time, a...@artfarm.com writes: I have a Quantum 610 and love it. From the joystick I can elevate my legs and recline flat. Can you walk? I am paralyzed and unable to use my motorized chair because i can't get in it. I *just* learned that the design is *not* for the paralyzed, that there is another design better for the paralyzed/easier to transfer into. --
Re: [TMIC] Wheelchair questions
I have a Quantum 610 and love it. From the joystick I can elevate my legs and recline flat. What I have not tried though is having the base facing forward and pivoting the chair to the side (like sitting at a table to eat). They even had a color chart like a car lot. There are also 4 speeds so you can slow it downcan you tell I like my chair? Ella
Re: [TMIC] August Birthdays
May everyone have a joyous birthday...Ella **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =JulystepsfooterNO115)
[TMIC] to stretch your calves(?)
Hope everyone is having a nice weekend. I got a book in the mail and seen this and was wondering if anyone uses something like this for a tight muscle in your leg (like a charley horse) and if it helps. Ella _Relief and Remedies - 24/7 Plantar Fasciitis System by Dream Products_ (http://www.reliefandremedies.net/details.cfm?item=10335) **A bad credit score is 600 below. Checking won't affect your score. See now! (http://pr.atwola.com/promoclk/100126575x1222585106x1201462830/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgI D=62bcd=JulyBadfooterNO62)
Re: [TMIC] Medications
Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe a new med for the banding (don't ask me the name…I promise to let you know)…he also said he could prescribe a new med to help with my constant fatigue (again don't ask me the name). I will be waiting for this one, anything that can help with the banding. Glad you are doing okay having cut down on the other meds..Ella **Snoop, Lil Wayne, Lady GaGa -- land the tix you need for this summer's biggest tours. Tourtracker.com (http://www.tourtracker.com/?ncid=emlcntusmusi0007)
Re: [TMIC] pam
Hi Dan! Nice to hear from you and no you don't interfere. Do not worry about your grammar we all err but we know what the person is trying to say. That is odd about the dates and the numbers look alike just inverted (also like the 1969 on the license plate huh?). It sounds like a good time planned for when the family gets there. Be rested when you go to Chuck E Cheese, those children bounce around like they are in the pinball machine,so much energy. I know you will have a good time and enjoy your vacation. Don't be a stranger...Ella **Summer concert season is here! Find your favorite artists on tour at TourTracker.com. (http://www.tourtracker.com/?ncid=emlcntusmusi0006)
Re: [TMIC] Update on Jim
Very good news Carol! May Jim's health continue going forward. I can feel you elation in your letter, bless you both. I'll be waiting for the next update and I hope he will be able to go to Marlette.Ella **It's raining cats and dogs -- Come to PawNation, a place where pets rule! (http://www.pawnation.com/?ncid=emlcntnew0008)
Re: [TMIC] arts page
Oh Wim your paintings are beautiful and you only took a few years of lessons? I think in that time I would still be painting a stick figure but with clothesElla **It's raining cats and dogs -- Come to PawNation, a place where pets rule! (http://www.pawnation.com/?ncid=emlcntnew0008)
Re: [TMIC] Checking In
Hey Larry, Nice to hear from you. We'll be here when you get back, take care ..Ella **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221323000x1201367220/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd= JunestepsfooterNO62)
Re: [TMIC] read receipts?
I have never noticed it, where is it located? Ella **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1221322979x1201367215/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [TMIC] Update on Jim
I'm sending my best to you and Jim that all goes well...Ella In a message dated 6/11/2009 7:00:21 A.M. Eastern Daylight Time, cjb...@aol.com writes: It is morn June 11th and I will be leaving soon for the hospital. Jim had a very bad day yesterday. They will be inserting a feeding tube tomorrow as he can't swallow and the temporary system they tried yesterday is not working and he has to have nourishment.His mind did not seem to be affected at first and we are hoping that the what he is going thru now is causing the confusion and agitation he is having now. Please continue to pray for him as he has for any and all of you our friends. I will try to keep the updates coming. Love carol and jim _Dell Deals: Don't miss huge summer savings on popular laptops starting at $449._ (http://pr.atwola.com/promoclk/100126575x1221770187x1201425153/aol?redir=http://ad.doubleclick.net/clk;215566131;37864407;i) **Dell Deals: Don’t miss huge summer savings on popular laptops starting at $449. (http://pr.atwola.com/promoclk/100126575x1221770187x1201425153/aol?redir=http:%2F%2Fad.doubleclick.net%2Fclk%3B215566131%3B37864407%3B i)
[TMIC] I looked up Pam's obit for us
_E-mail_ (http://obits.nola.com/obituaries/nola/obituary-email.aspx?n=pamela-montzpid=128218443) _Pamela Montz_ (http://obits.nola.com/obituaries/nola/obituary.aspx?n=pamela-montzpid=128218443) MONTZ Pamela Montz at New Orleans, LA on Saturday, June 6, 2009. Beloved wife of Daniel P. Montz, Jr. Mother of Sean P. Montz. Mother-in-law of Bonnie Meyers Montz. Daughter of Richard W. Rholdon, Sr. and the late Janis Rholdon. Also survived by seven brothers and sisters, 4 grandchildren, 5 nieces and nephews and 1 great niece. Relatives and friends of the family are invited to attend the Funeral Service at Tharp-Sontheimer-Tharp, 1600 N. Causeway Blvd. at 43rd St., on Wednesday, June 10, 2009 at 12:00 noon. Interment in Greenwood Cemetery. Visitation on Wednesday, June 10, 2009 from 9:00 a.m. until 12:00 noon. For information, call 835-2341. Published in The Times-Picayune on 6/9/2009_Continue to death notice_ (http://obits.nola.com/obituaries/nola/obituary.aspx?n=pamela-montzpid=128218443 ) Ways to help * _View/Sign Guest Book_ (http://www.legacy.com/gb2/default.aspx?bookid=8718153035cid=full) * _Create Memorial Website_ (https://memorialwebsites.legacy.com/creatememorial.aspx?referrer=2linktype=8cid=no) * _Send Flowers_ (http://obits.nola.com/nola/deathnotices.asp?page=flowersandgiftspersonid=128218443) * _Donate to Charity_ (http://obits.nola.com/nola/deathnotices.asp?page=charitiespersonid=128218443) * _Funeral Home Details_ (http://obits.nola.com/obituaries/nola/obituary-funeralhome.aspx?fh=tharpsontheimertharp-funeral-homefhid=2616pid=1282 18443) hosted by Legacy.com **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221322977x1201367197/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd= JunestepsfooterNO62)
Re: [TMIC] Occupations
I have had TM 8+ years (9 in Sept) and cannot go back to either of my jobs. AT first I was paralyzed from the jaw down but got the upper 1/2 back. They say you get most of your recovery back in the first 3 months but I spent the first 6 weeks in a coma so I am very thankful to get what I have. I worked at Continental Airlines ground support and the coroners office. I had hoped and prayed to be walking and go back to my old life but I did have enough time in to retire early which I did 5 years ago. When school is in I tutor children but I don't think I could stay awake or alert to go back to an everyday jobElla **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377042x1201454362/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
[TMIC] Pam. Montz
I have some sad news. I had written to Pam Thurs (I think) and received this reply today. I don't know anything other than this but let's keep her family in prayer..Ella -Original Message- From: montzma...@aol.com To: elbanks...@aol.com Sent: Sun, 7 Jun 2009 10:56 am Subject: Re: Hi Pam pam passed away sat. night at touro hospital **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377042x1201454362/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [TMIC] Lonely need someone to talk to
Hello Peggy, You are not alone and since we are in many geographical area someone is bound to be online to talk with you so don't be lonely. I don't have the stiffness in my hands but at one time I did because I was paralyzed from the jaw down but using one of those rubber/sand squeeze balls helped a lot. Maybe to help with your pills, you could drop them in a spoon of applesauce so you don't have to grasp if that would be easier. Ella in Ohio **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221322936x1201367173/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =Mayfooter51209NO115)
Re: [TMIC] SURG ON FRIDAY
In a message dated 4/29/2009 2:41:41 P.M. Eastern Daylight Time, jeffsmokeea...@yahoo.com writes: I HAVE SURG ON FRIDAY Hi Jeff, You will be in my thoughts and prayers on Friday and I too hope you have a speedy recovery. We'll be here when you get back. Ella in Ohio **Big savings on Dell XPS Laptops and Desktops!(http://pr.atwola.com/promoclk/100126575x1220631276x1201390200/aol?redir=http:%2F%2Fad.double click.net%2Fclk%3B214101948%3B35952020%3Bv)
Re: [TMIC] TEST
yes you are getting through **The Average US Credit Score is 692. See Yours in Just 2 Easy Steps!(http://pr.atwola.com/promoclk/100126575x1221421330x1201417418/aol?redi r=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Ap rilAvgfooter424NO62)
Re: [TMIC] testing
In a message dated 4/21/2009 3:56:56 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: Just checking to see if I'm still 'alive' on tmic??? yes you are **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221621490x1201450102/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter421NO62)
Re: [TMIC] BLESSED TO BE A MEMBER
In a message dated 4/20/2009 1:59:34 P.M. Eastern Daylight Time, pjv1...@chartermi.net writes: someone has the pain,know one understands how it hangs on like a mad pitt bull. oh my gosh Patti, that is a good way to put it. The pain grabs you and locks in. We do have a nice 'club' don't we? Ella in Ohio **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd= Aprilfooter420NO62)
Re: [TMIC] transverse myelitis
Welcome Betty, One symptom I'd say we all have is definitely the banding yet other symptoms do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have the numbness but a buzzing feeling that is uncomfortable without meds. Ask us anything you wish and you will get an answer. Have you talked with anyone since 2004 with TM? You have a group of friends here. Ella in Ohio **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220814852x1201410738/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter419NO62)
Re: [TMIC] Where is everyone
In a message dated 4/7/2009 9:18:22 A.M. Eastern Daylight Time, rn11...@yahoo.com writes: Is it just really quiet? I am here and can't believe it is snowing! Ella in Ohio **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
[TMIC] FROM JUDE
She can't post for some reason and asked that I send this for her: Hello there...anybody out there? Boy, I go into the hospital for a couple of weeks and this is what I come home to. I've heard about two sites where y'all might be hanging out, One is Yahoo and the other is a different type of site that I know nothing about, not even the name. Are there any new people with TM waiting around for some activity? My name is Jude; I am a T3 paraplegic, totally paralyzed from the nipple-line on down to my toes. I don't begin to say that I know everything, in fact, I know next to nothing...just like the doctors. If you have any questions or simply need someone to talk to send me an email and we will work it out. Try to keep it Positive! Jude **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
[TMIC] Jude mail
I just asked if she can read our mail and she said yes, she was answering some but needs to get off of her butt for now...Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
Re: [TMIC] TALKING WITH JUDE NOW
In a message dated 3/31/2009 5:57:25 A.M. Eastern Daylight Time, snow121...@hotmail.com writes: Hi Ella, Is Jude home from the hospital? I didn't mean to confuse anyone with my post but I was typing as I was talking to Jude, but she is at home...Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
[TMIC] TALKING WITH JUDE NOW
She is fine, has to stay in bed for 4 weeks and then z-o-o-m she's out of here! She had written a long letter and will post it soon. She tanks us for the calls, cards and prayers. She said when she gets a chance she is going to get her picture taken and post it on our site. Talk to you soon.Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
Re: [TMIC] Hi Everyone
Hello Janice. Welcome, I just read your post. I am Ella in Ohio, I'm 49 and got TM in 2000. Have any questions just ask. Have a nice day.Ella **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] Yes- News on Jude
Thanks Patti, I tried calling yesterday and got no answer from Pam or Dave and was praying all went well. Drink something warm for your throat and take care. Ella in Ohio In a message dated 3/21/2009 3:27:09 P.M. Eastern Daylight Time, pieterheat...@shaw.ca writes: [TMIC] Yes- News on Jude **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
[TMIC] Jude
I just talked with her husband, no new news but wanted to see how he was. He's tired and will be going to see her soon but she too is sleeping but comfortable. I told Dave I will call him tomorrow and like Patti said, it looks like Jude will be home late next week. Ella in Ohio **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] need help with rehab center recommendations in US
I am in the midwest (Ohio) and here we have The Cleveland Clinic. Ella **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
[TMIC] Judes Update
Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] Levothyroxine Sodium 50mg
Wow you have had excitement. I'm glad you broke nothing when you fell but I know that was a time you really wished for that warm bath. I know we take lots of meds with TM but what I would do if I was borderline about taking a new med, I'd ask the doctor if he had any samples of it to see if it did anything. Take care...Ella **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] Mottos
At times when I am feeling 'defeated' my family always tell me to keep trying because I have TM, TM doesn't have me. Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
Re: [TMIC] Implantable pumps
I don't have a pump but are you asking about a Baclofen pump? In a message dated 3/12/2009 12:49:47 P.M. Eastern Daylight Time, gor...@earthlink.net writes: I want to get some feedback on the implantable pump (intrathecal) that provides meds directly into the spine. Any problems with infection? Cost on Medicare - 80/20 or 100% ? Convenient to have, or a pain with upkeep, maintenance, whatever problems you may have had? Did it work (regardless of the med, but it would be nice to know)? I am looking at pain relief, and probably anti-spasmodic being delivered via this device. Thanks for your input. mt **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
[TMIC] I just talked to Jude
She is doing pretty good and says hello to all. I'd say she is doing 'fine' (told me to hold on while you hear all this kissy kissy noise), she was telling her husband goodbye. LOL Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
Re: [TMIC] Jude is back in the hospital
I did and she thanks you ..Ella In a message dated 3/13/2009 8:45:15 A.M. Eastern Daylight Time, jillybean60...@yahoo.com writes: When you talk to her please tell her I said Hi and that I will be praying for her! **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
[TMIC] Jude is back in the hospital
It sure is quiet here but I talked to Pam and she said Jude is back in the hospital with another UTI that could not be treated at home. She will be in for 4 - 5 days and if you'd like, here is here information. MeClearon (?) Hospital 1-810-342-3181 (direct to her room) Room 916/ bed 1 Pam said you may have to give her a few minutes because she is very drousy. Have a good day all..Ella **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
Re: [TMIC] Is anybody there??
I'm here also **You're invited to Hollywood's biggest party: Get Oscars updates, red carpet pics and more at Moviefone. (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi0001)
Re: [TMIC] Fwd: JUDE!!
I don't have any new news but talked to Jude and Dave a short time ago. Dave was on his way back to the facility and Jude said she should transfer later today to the hospital within a hospital this afternoon. They do give you good care and I was in one the second month after I got TM when I was coming out of the coma and Jude says hello. Ella **Who's never won? Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?ncid=emlcntusmusi0001)
Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
just got off the phone with Pam (who talked to Jude) and they ask that you not call the hospital admin. and if you want to call Jude to please call Pam first at (985) 661 8415. Ella **Who's never won? Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?ncid=emlcntusmusi0001)
Re: [TMIC] TV program extra
I had it done 2 months ago and after the deep burning pain went away, the spasms were gone for about a week but started back a little stronger but I only get about 2 a day now. I doubt if I'll do it again. Ella **Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall0002)
Re: [TMIC] Any news on Jude?
Sorry guys but I am glad she wrote. Yesterday I (thought) I had updated you but now that I look, I had mistakenly sent it to the request site. Ella **Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall0002)
Re: [TMIC] JUDE
I have tried calling Dave (the last time at 5:00 Ohio time) but still no answer and no answering maching but when I do get him I will let yoou know. Take care everyone.Ella **Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall0002)
Re: [TMIC] Steffie And Shelby My grandaughters
STATE OF TENNESSEE DEPARTMENT OF COMMERCE AND INSURANCE BOARD OF FUNERAL DIRECTORS AND EMBALMERS 500 JAMES ROBERTSON PARKWAY, SECOND FLOOR NASHVILLE, TENNESSEE 372431144 PHONE (615) 7415062 FAX (615) 5321903 _www.state.tn.us/commerce/boards/funeral_ (http://www.state.tn.us/commerce/boards/funeral) I have to jump in here about Frank's comment though. A city can pay one's expences but you must realize (not getting too technical) that they will be buried in a nice 'looking'coffin but not hermetically sealed, which you do not want, and basically put in paupers field. Also if you have a mortuary science school in your town, the students will do the embalming for the experience and you just pay for the services. Ella **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom0026)
Re: [TMIC] Steffie And Shelby My grandaughters
I don't know if they still do it but the Nat'l Funeral Directors Assoc had a fund to help families (usually 25%) to help a family if the request was made within 90 days of death. Ella **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom0026)
Re: [TMIC] Re: tmic-digest Digest V2009 #3
I offer my prayers to those lost and the ones they left behind. Take comfort in one another and the man above. Ella **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom0026)
Re: [TMIC] (no subject)
it came through fine in Ohio **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
Re: [TMIC] test
got it **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
Re: [TMIC] Test
you're good **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Anybody else been there?
I had to look to see if I started this message. LOL My sister broke her toe 3 weeks ago and said she had to stay in bed for 2 days because it hurt. It was a bad day for pain for me when she told me and I had to apologize the next day because I told her...excuse my for being indifferrent but I have hurt from my chest down the last 8 years and you are whinning about a toe! I wanted to run over the other nine with my wheelchair and had to laugh to myself about it later. Ella in Ohio **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] GOOD NEWS!
That is great news! Congrats Terry, I am very happy for you. Ella in Ohio **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Re: [TMIC] check
yes **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
[TMIC] Pam is home
she is doing fine and thanks Todd and the rest of you for everything. For the time being she is busy doing lots of therapy (different people in and out of her home) and will sign back on to the TMIC in a couple of weeks..Ella **Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/10075x1212416248x1200771803/aol?redir=http://travel.aol.com/discount-travel?ncid=emlcntustrav0001)
Re: [TMIC] Test - can't seem to get on
I got it okay here Ella in Ohio **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
[TMIC] I just talked to Pm
She is doing fine (and thanks you for your calls) but this Friday she will be having surgery on the her left (?) leg for a heel/chord stretch. I just talked to her and forgot already but something about her toes are turning under. Her therapist had come in so I will call her laterElla **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
