[TMIC] SSDI - Doc
Year's ago an attorney from Texas wrote a message on how to qualify for SSDI. He gave the section of the SSDI rules that would allow many of us to qualify first time. Does anyone remember the message and how I can find it again. Thanks, Cindy McLeroy
Re: [TMIC] Honey to Treat Infections
I've used Medihoney with good success. - Original Message - From: heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Monday, August 12, 2013 8:41 AM Subject: Fwd: [TMIC] Honey to Treat Infections Hi, This was sent to me by my friends on the Quad list, in case there are any people out there with pressure sores. Jude From: donpric...@yahoo.com To: quad-l...@eskimo.com Sent: 8/12/2013 11:26:11 A.M. Eastern Daylight Time Subj: [QUAD-L] Honey to Treat Infections By VALERIE ELLIOTT PUBLISHED: 17:43 EST, 10 August 2013 | UPDATED: 18:16 EST, 10 August 2013 'Super honey': A new type of honey has produced amazing results treating wounds and infections A new honey has been produced that has had ‘amazing’ results treating wounds and infections. The bio-engineered product Surgihoney was tested on babies, new mothers, cancer patients and the elderly for over a year in Hampshire hospitals. Wounds and ulcers, including those infected with the superbug MRSA, healed within days, while the number of women who suffered infections after giving birth by caesarean section has halved. It has also healed the wounds of soldiers returning from Afghanistan, and been used to treat acne and to protect the skin of cancer patients fitted with a catheter for chemotherapy. Read more: http://www.dailymail.co.uk/health/article-2389121/Doctors-discover-super-honey-amazing-power-treat-soldiers-wounds-kill-superbug-infections.html
Re: [TMIC] Re: Our Buddy Lists
I'm confused too. Is a buddy list something that AOL uses? We never had one with the TMIC group. More info please. Thanks, Cindy - Original Message - From: Janice Nichols To: heyjude48...@aol.com ; tmic-list@eskimo.com Sent: Wednesday, May 08, 2013 5:55 PM Subject: Re: [TMIC] Re: Our Buddy Lists I’m confused, I don’t have a buddy list. Janice From: heyjude48...@aol.com Sent: Monday, May 06, 2013 9:30 PM To: tmic-list@eskimo.com Subject: [TMIC] Re: Our Buddy Lists Hi Everyone! I just want to ask all of you who still keep email addresses if you would please add me to your Buddy Lists. I used to see so many people on my Buddy List, but now it's dwindled to two people. We need to be better hooked up to each other and instead of having to look everyone up in my address book, it would be nice to only have to click on a name to chat or send and IM. I think it would be fun! If you decide to add my name or the name of anyone else, we have to notify the other person, that way we will all be on the same page, so to speak. Let me know how you feel about doing this. I've been thinking about it for a few days and think it's a good idea. Guys included too. Love and hugs, Jude tiad
Re: [TMIC] RE: TMIC Membership Directory
Dalton, there is no TMIC membership directory. There was a TMA membership directory. The last one was published in 2011. As I understand it, future ones will not be published. - Original Message - From: Dalton Garis To: rn11...@yahoo.com ; heyjude48...@aol.com Cc: tmic Sent: Wednesday, March 06, 2013 9:01 AM Subject: Re: [TMIC] RE: TMIC Membership Directory I didn't know such a thing exists; I would appreciate having one, also. Sorry to butt in, Dalton Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: rn11...@yahoo.com rn11...@yahoo.com Reply-To: rn11...@yahoo.com rn11...@yahoo.com Date: Wednesday, 6 January 2013 7:53 AM To: Judy heyjude48...@aol.com Cc: tmic tmic-list@eskimo.com Subject: Re: [TMIC] RE: TMIC Membership Directory Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 6 Mar 2013 04:53:59 -0800 Jude, You can have mine from 2011. Just let me know your address and I'll send it. Cheryl -- From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 5, 2013 11:09 PM Subject: [TMIC] RE: TMIC Membership Directory Hi Gang, If there is anyone out there who happens to have an extra TMIC Directory may I please have it? I don't care if it's a few years old. If you could see it in your heart to send it to me I will surely appreciate it. I called sandy Siegel and asked him to send me one but he said that the board asked him not to send them out anymore so I am left without one. I can't seem to access the TMA site. So if you would help me I will be a happy camper. Thank you, Jude Michigan
Re: [TMIC]
Hi everyone. I bet if you check with the Transverse Myelitis Assocation they will have the data you want, at least for all the people that are members of the TMA. That's your best way to get this information. - Original Message - From: bob To: Janice Nichols ; lynne myers ; tmic Sent: Wednesday, February 27, 2013 5:08 PM Subject: Re: [TMIC] got tm 4/1/2004 male 73 at that time am 80 now use a cane live in penna. - Original Message - From: Janice Nichols To: lynne myers ; tmic Sent: Wednesday, February 27, 2013 7:39 PM Subject: Re: [TMIC] And I don’t want to either. As I said before, I was after the age and location TM struck and that doesn’t have that info. Janice From: lynne myers Sent: Wednesday, February 27, 2013 10:09 AM To: Janice Nichols ; tmic Subject: Re: [TMIC] If you look at the membership directory there are probably at least 100 people in most states. No one seems to have more than the others at a glance, but have to admit I didn't take the time to sit and count them all. From: Janice Nichols jan...@centurytel.net To: I.WHIDDETT i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Tuesday, February 26, 2013 6:07 PM Subject: Re: [TMIC] I couldn’t really tell a leaning toward either sex.I guess TM isn’t particular. Janice From: I.WHIDDETT Sent: Tuesday, February 26, 2013 12:31 PM To: Janice Nichols Cc: mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Thanks for that Janice. Was there a fairly even male/female divide? Iris UK Sent from my iPad On 26 Feb 2013, at 18:05, Janice Nichols jan...@centurytel.net wrote: Okay, fellow TM’ers, here is what I got from new responses. I was really hoping for something to jump out at me as far as same locations and a similar age for being attacked by TM.No such luck. For what it is worth, here it is: LOCATION AGE Washington – 7 12/13/19-5 people New York - 3 20’s - 2 people Michigan - 3 California - 3 30’s - 2 people Texas - 3 40’s - 10 people Missouri - 2 Virginia - 2 50’s - 10 people UK -- 2 60’s - 7 people The rest of the states responding were only “1” each 70’s - 2 people Obviously the older we get, the more susceptible we are to TM. Thanks to all of you for responding. Janice – Missouri
Re: [TMIC] Re: Medtronic Webinar for Spastisity
Jude, I'm copying the list on this because I think they need to know that you provided information for Medtronic. I don't think you have the right to give our information to outside vendors. I know for one, I don't want my information given out. Even if you thought you were replying to Janice LOL. Please remove my name from any future lists you provide to other businesses or people. Thanks, Cindy - Original Message - From: heyjude48...@aol.com To: cindymcle...@socal.rr.com Sent: Tuesday, January 29, 2013 7:14 AM Subject: Re: [TMIC] Re: Medtronic Webinar for Spastisity Janice, I gave them everything. Why? In a message dated 1/28/2013 9:59:44 P.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: Jude, please tell me you didn't give our email addresses to Medtronic. I don't need to be on anyone else's mailing list. When do you see the doctor next for your leg? Cindy - Original Message - From: heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Monday, January 28, 2013 3:28 PM Subject: [TMIC] Re: Medtronic Webinar for Spastisity Hello All, Please watch your mailbox for a letter from Medtronic. They are having a Webinar for spasticity on Feb. 12th. If you want the information let me know and I will send it to you. This will be great for anyone with problems with spasms. Take Care, Jude Michigan
Re: [TMIC] Re: Medtronic Webinar for Spastisity
I am copying the list on my email to you. I know you have said all information people send you will be private. When I asked you in private about supplying our email addresses you responded Janice, I gave them everything. Why? I didn't think you would give out info but your reply definately says you gave them everything. I must have misunderstood your response. To everyone on the list and to Jude specifically I am sorry I caused her to be upset. I didn't think she would give out our info, but I guess I didn't understand her reply to a private note I sent her. Peace!!! Cindy - Original Message - From: heyjude48...@aol.com To: cindymcle...@socal.rr.com Sent: Tuesday, January 29, 2013 8:22 PM Subject: Re: [TMIC] Re: Medtronic Webinar for Spastisity Cindy, I did not provide Anyone with information. Never, never, never!!! All I did was forward the information to any people who were interested. The letter from Medtronic showed up in my mail, so I asked people to watch their mail for a letter too. Please copy the list with your answer to this mess JUDE In a message dated 1/29/2013 10:04:17 P.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: Jude, I'm copying the list on this because I think they need to know that you provided information for Medtronic. I don't think you have the right to give our information to outside vendors. I know for one, I don't want my information given out. Even if you thought you were replying to Janice LOL. Please remove my name from any future lists you provide to other businesses or people. Thanks, Cindy - Original Message - From: heyjude48...@aol.com To: cindymcle...@socal.rr.com Sent: Tuesday, January 29, 2013 7:14 AM Subject: Re: [TMIC] Re: Medtronic Webinar for Spastisity Janice, I gave them everything. Why? In a message dated 1/28/2013 9:59:44 P.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: Jude, please tell me you didn't give our email addresses to Medtronic. I don't need to be on anyone else's mailing list. When do you see the doctor next for your leg? Cindy - Original Message - From: heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Monday, January 28, 2013 3:28 PM Subject: [TMIC] Re: Medtronic Webinar for Spastisity Hello All, Please watch your mailbox for a letter from Medtronic. They are having a Webinar for spasticity on Feb. 12th. If you want the information let me know and I will send it to you. This will be great for anyone with problems with spasms. Take Care, Jude Michigan
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
Jeff, I recall seeing some articles in New Mobility Magazine on this. Dr. Kim Anderson did a study some years back on things that were most important to para's and to quad's. Surprisingly for para's, walking was listed below sexual function. Not that it helps you with your question. One of the books Gary Karp has written is called Disability and the Art of Kissing. It is well written and might answer some of your questions. I think you can get Gary's book on Amazon. Cindy McLeroy - Original Message - From: jeff bernier To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:09 PM Subject: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] Re: Subscribe
If you had chicken pox as a child you should get the shingles vac. - Original Message - From: Pat Cooley To: heyjude48...@aol.com Cc: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 7:20 AM Subject: Re: [TMIC] Re: Subscribe Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I checked on WEBMD and found the following: June 5, 2012 -- A new study offers encouraging news for people who have recently experienced a painful bout of shingles. For most people, the risk of having shingles recur after the initial occurrence is fairly low. The study appears online in the Journal of Infectious Diseases. There was a lot of info on shingles at their website. I did find some articles in other websites that indicated there was a small change of having a reoccurrence. I do trust WEBMD though. Cindy - Original Message - From: Pat Cooley To: Cindy McLeroy Cc: heyjude48...@aol.com ; jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 5:28 PM Subject: Re: [TMIC] Re: Subscribe Cindy I have often wondered that since I had singles, does that mean I can't get it again? I am afraid to get any shots. I have been advised not to Patti - Wisconsin On Fri, Jan 25, 2013 at 2:51 PM, Cindy McLeroy cindymcle...@socal.rr.com wrote: If you had chicken pox as a child you should get the shingles vac. - Original Message - From: Pat Cooley To: heyjude48...@aol.com Cc: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Friday, January 25, 2013 7:20 AM Subject: Re: [TMIC] Re: Subscribe Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, heyjude48...@aol.com wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: Robert Pall Sent: Wednesday, January 23, 2013 12:56 PM To: heyjude48...@aol.com ; i.whidd...@sky.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you
Re: [TMIC] Facebook
I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: heyjude48...@aol.com To: patticoole...@gmail.com ; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Stress
Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: heyjude48...@aol.com To: dnca...@gmail.com Cc: tmic-list@eskimo.com Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, dnca...@gmail.com writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, heyjude48...@aol.com wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 6:56 pm Subject: [TMIC] Stress Hello Guys Gals, How is everyone tonight? I honestly hope you are well and in good spirits. How does stress affect your life with TM? What do you do to alleviate it? How do you fight it? We just found out that my husband (Dave) has cancer of the blood with lesions on his liver. He got a call from his Dr. just a few minutes ago. He has to go in to
Re: [TMIC] NSCIA Webinars/Choosing Wheelchair
Jim, check out Cody Unser's First Step Foundation website. http://www.cufsf.org/ . Cody has had TM since she was 12 and has accomplished many amazing things. You might be interested in the Scuba Diving she does and is working with returning vets on how to scuba diving. Cindy - Original Message - From: James Berg To: a...@artfarm.com Cc: tmic-l...@eskimo.net Sent: Wednesday, August 08, 2012 4:22 PM Subject: Re: [TMIC] NSCIA Webinars/Choosing Wheelchair Akua--Thank you for the web sites. I had never thought about doing Wheelies and how learning the balance of it would help me daily with visiting friends who have no ramps for getting over thresholds. Now I am trying to learn how to do it. freedom, that is what it is all about. I am going diving for the first time since I lost the use of my legs. I have not even been in the water since the 'event'. I have been a swimmer all my life including waterpolo and pre-olympic tryouts. I didn't qualify but it was fun trying. I have also been a free diver for nearly 30 years and really miss the ocean and all it's wonders. How do I keep my legs from dragging on the bottom? I'm sure I can swim and maneuver while I hunt fish if I can control my legs. How do I get into the water and worse, how do I get out? I am a big man. We think (my family) we have figured it all out and I will soon make the attempt. Hopefully the next blog will be a tale of my success in entering Jules Verne's undersea kingdom. Jim On Thu, Aug 9, 2012 at 4:12 AM, a...@artfarm.com wrote: http://www.spinalcord.org/resource-center/askus/index.php?pg=kb.pageid=1412 http://www.spinalcord.org/resource-center/askus/index.php?pg=kb.pageid=1728 Akua
Re: [TMIC] Re: wheel Chairs
Akua is right. It's important to be fitted for a wheelchair. There are a lot of measurements like how long from your back when you sit to where your legs bend. How high the foot plate should be, the width you need, etc. A good physical rehab should be able to recommend some one who can help you choose what wheelchair is appropriate for you and to fit you for the chair. - Original Message - From: a...@artfarm.com To: tmic-list@eskimo.com Sent: Monday, August 06, 2012 12:58 PM Subject: [TMIC] Re: wheel Chairs I love my Quickie 2. foam insert tires so i don't have to worry about inflation I use a Jay ez -- gel/foam cushion in it. I remember trying a heavy medium and light chairs and being told the differences when i was in the hospital…. the hospital chairs were just awful….. It was fitted for me --- important part of getting the right chair -- i remember all sorts of measurements and observations of how i sat etc. Although my physiatrist says there are better options. I had shared the free online webinar on chairs -- it was very good. perhaps the transcript is available online if you google it.
Re: [TMIC] Fwd: Boy Scouts OT
I thought you might find the following article from snopes.com interesting: http://www.snopes.com/politics/obama/eaglescouts.asp It explains the truth about the unsigned certificates. Hope this helps clear this up as the Eagle Scout programs are so wonderful and produces such wonderful young men. I hate it when something puts both the President in a bad light and brings some attention to the Eagle Scout program that is negative - Original Message - From: Susan Kleinz To: celr...@aol.com Cc: tmic-l...@eskimo.net Sent: Monday, July 16, 2012 6:41 PM Subject: Re: [TMIC] Fwd: Boy Scouts OT Thank you! This kind of stuff scares me! Susan Kleinz Phx, AZ On Jul 12, 2012, at 5:45 AM, celr...@aol.com wrote: -- From: sonny...@hotmail.com Sent: 7/12/2012 12:59:46 A.M. Central Daylight Time Subj: Boy Scouts BOY SCOUTS Every President since 1912 has been the honorary President of the Boy Scouts of America. President Obama refused that honor. Did you hear anything about the Boy Scouts 100th Anniversary? Why did the press ignore it? Let's see, because they promote honor, integrity, putting others first, love of country and of course, they believe in God. Not much press coverage on this story either, the first president in 100 years to insult his finest citizens, Eagle Scouts. John Beauregard, CEO of the South Texas Council of the Boy Scouts of America joins us just after 7AM. David Haynie has two sons who have achieved the rank of Eagle Scout. Dave Hiser's son is working on his Eagle Scout award now. This is the E-mail Linda Thacker sent to Glenn Beck and I forwarded to Glenn's producer Adam. Dear Mr. Beck, On March 24, 2009 I had the honor of attending my Grandson, David Osborne's Eagle Scout Court of Honor. I imagine you have attended one of these wonderful ceremonies. I also feel confident that you are very knowledgeable of what it means to have earned the status of Eagle Scout. Our entire family is so very excited and at the Court of Honor we were all just beaming as our wonderful young man was honored for his achievements. After the Court was closed David's leaders pulled him aside and explained to him that they regretted to have to explain to him, as sad as it is, that his certificate was different from others they had presented because his certificate did not have the signature of the President of the United States .. They explained that Obama does not support the Boy Scouts of America and therefore does not sign the Eagle Certificates. To date I believe there may be as many as 10,000 of this countries finest young men who do not have the signature of the president of the country they have taken an oath to respect and serve on their Eagle Certificate. To my knowledge Congress chartered BSA in 1916 part of which the President of the United States is the Honorary President of The Boy Scouts of America and Obama is the first sitting president to personally REFUSE to sign these certificates. I believe if the country were to be educated on national television of what the Boy Scouts of America stands for they would join those of us who already know, and would be as outraged as we are! Also, your good friend Jim Lago was also in attendance at this Eagle Court of Honor. I had the privilege of speaking with him this morning on his radio talk show here in Corpus Christi and shared with him this same information. He was egually alarmed. to say the least. This information should ignite in every parent the urgency to instill the great values held by the Boy Scouts of America in their young men for the cause of maintaining this great nation. We must stand united. With appreciation, Linda Thacker, grandmother to eleven of Americas finest future citizens, David, Erikka, Adam, Ryan, Hailey, Tygh, Mana, Gerritt, Maya, Ezra and Lynden Osborne. So, that's the story thus far, calls have been made, citizens are angry, especially the parents of Eagle Scouts. Wouldn't it be wonderful if ex-president Bush announced, he would be willing to sign all Eagle Scout Certificates for as long as President Obama is in office? We have a very small man in a very big office ... THAT DOES NOT KNOW THE MEANING OF HONOR! Don't you think it's time to get rid of this Un-American Muslim Traitor and get a real American back to running our country, like what we grew up with? Because I have had enough. If you feel like I do, please pass this on. =
[TMIC] test
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[TMIC] TM Support Group Meeting - January 22
The Southern California TM Support will be having it's next meeting at the Dayle McIntosh Center in Garden Grove, CA. I'm including the TMIC group in this notice in case anyone lives in the area and would like to join us. As usual we will meet from 12 noon to 4 PM and please bring a potluck dish. If you have any questions, give me a call at 714-638-5493. Happy Holidays to all of you. Cindy
Re: [TMIC] OT:Asking My Politician for Help
OT:Asking My Politician for HelpAkua, I want to share some of the situations I have run into that are similar to yours and many others I know. I do know there are ways to adjust to some of them. Please don't get ticked and delete my message. I am involved in some ad hoc committees relative to transportation, low/med cost housing, universal design etc. I am a T-10 complete para who is unable to stand, walk, or do anything besides sit in my wheelchair, drive, my many non profit activities, etc. 1. and 2. $460,000 does not even begin to cover the items you said. There is something terrifically wrong with that amount to cover the items you listed. It is way, way too low! I'm not sure, not knowing the demographic of your area that the additional monies is even close to what is needed. 3, If the regular transit buses have lifts, etc for wheelchairs, is the state or federal law that depends on the route to the regular bus route inaccessible? If not, then, as here in CA we have to get to the bus route on our own. No door to door pick up if we are close to the regular bus line. Buses are accessible. 4. When you hit item #4 you are skipping off of transportation and looking at looking at housekeeping etc. We have to be realistic and remember that just because we are disabled we are not entitled to all the rights that other groups of people would also benefit from #7 Be specific when making an appt for whatever reason that there is either a table that adjust higher or lower to allow you to transfer. Or make very, very sure the person you are making the appt with knows you are in a wheelchair and standing is not an option. This has been a great problem for me, but I insist they bring in a crew to transfer me to the exam table. 8. Here is CA it is our responsibility that we have the blue markings for handicap parking. However, I don't think it requires the cut outs to adjust to our specific needs...we all are different. The local police are not always responsive, but where I live, a $400 ticket, plus the loss of the handicap placard is pretty expensive. #9. Keep bugging these folks of what needs to be done. One or two phone calls don't do it. Plug their numbers where you can easily call at least once a week and make sure they know your know. Always be pleasant. KEEP PLUGGING ALONG AND DON'T GIVE UP. I HAVE SEEN SOME REMARKABLE CHANGES WHERE I LIVE BECAUSE WE KEEP ON WORKING. Also see if you can get involved with an indepentent living center. They work on all these issues. And Akua, try and keep a positive attitude. It works almost more than anything. Cindy - Original Message - From: Akua To: tmic-list@eskimo.com Sent: Saturday, October 23, 2010 7:14 PM Subject: [TMIC] OT:Asking My Politician for Help Asked my politician for help. I put together, from conversations I've had here a great list that summarizes and concretizes some of my thoughts on my situation: Here's what I think about: In March Chemung County was awarded $460,000 to Purchase 1 40ft. Bus and Scheduling Software from funding for 191 new Recovery Act transit projects in 42 states and Puerto Rico that will help transform the nation's infrastructure and support thousands of jobs across the country. WETM-TV announced that Chemung was just awarded another million dollars for transportation.Elmira, N.Y. - Chemung County was has been notified by the Federal Transit Administration (FTA) that they will receive up to $ 1.1 million in FTA funding to rehabilitate the bus garage, purchase fare collection equipment and replace buses for the Chemung County Transit System. The County will utilize $500,000 of the funds to rehabilitate parts of its maintenance facility and to replace its fare collection system. Many components of the facility, such as bus lifts, electrical wiring and lighting, and overhead doors, will be replaced. The County is also proposing to replace its fare collection equipment. The current equipment dates back to 1998 and does not have the ability to sell tickets or count fares. The system will be upgraded to a read/write swipe card system. In a second project, the County use $600,000 to replace old buses and a supervisory vehicle. Chemung County Executive Tom Santulli stated, In a recent survey, four out of every ten bus passengers said they use our system to get to and from work. They rely on the bus system to keep their jobs. Our grant application spoke to our residents' needs. Chemung County was one out of only six systems statewide to receive this discretionary funding. Yet we have no transportation of our own in Corning and no paratransit. Why doesn't Steuben County have anyone of vision like Tom Santulli? Why are we so bereft? Chemung County has been contracted to provide transportation for Steuben County and Corning
Re: [TMIC] OT:Asking My Politician for Help
Re: [TMIC] OT:Asking My Politician for HelpAkua, I sent my note to you personally...not to the list. Be as upset with me as you want, but there is no need to share what I said with everyone. Cindy
Re: [TMIC] OT:Asking My Politician for Help
Re: [TMIC] OT:Asking My Politician for HelpAkua, I apologize, you are correct. To everyone on the list, I incorrectly accussed Akua of including the list on my note to her. Cindy - Original Message - From: Akua To: Cindy McLeroy ; tmic-list@eskimo.com Sent: Sunday, October 24, 2010 5:02 PM Subject: Re: [TMIC] OT:Asking My Politician for Help Akua, I sent my note to you personally...not to the list. Be as upset with me as you want, but there is no need to share what I said with everyone. Cindy Cindy--- your email went to both me and the list, that's why i replied to both that may not have been your intention --- but the header I read had both addresses. I try to be rigorous about my communication. When people write me only, I answer them only. Akua --
[TMIC] 18 year Anniversary
I woke up this morning knowing there was something I should remember about the day. Didn't remember what until I looked at the TMIC emails about 6 yr anniversary. It was 18 years today that TM entered my life, but like so many, I was out of town on a business trip to New Orleans. I live in So. Calif. I have been in a wheelchair ever since with no sign of recovery. Lucky for me it hasn't defined my life but has really presented a lot of new opportunities and new friends-expectially those who also have TM. This isn't to say there aren't days when the pain overwhelms me or the fatigue takes over - well actually this is most days. But even tho I don't like having TM, it has brought more positives to my life than I could ever expected. Everyone enjoy my special day. Cindy McLeroy
Re: [TMIC] Breaking point
Akua, try calling the local Senior Center. Many times they provide rides for people unable to get there on their own. They also can usually locate a wheelchair accessible van. Also, there are some non profits that will assist you. I know we have discussed things you could do before, but these are two new ideas that just came to mind. Where do you live again? Someone in your area might know of some option that would help you. Take care, I know this is very frustrating. Cindy - Original Message - From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Wednesday, September 01, 2010 2:17 PM Subject: [TMIC] Breaking point I have exhausted civic, legislative and human resources pleas. I am anxious and upset. I want to avoid calling an ambulance and going to emergency just because i can't get to the doctor. I have said all this to my physicians who don't make house calls, won't renew my script and don't care. My neurologist won't renew my scrip because i haven't been to see her in a year. My GP said she won't authorize the med. Where everyone else takes 4 or 5 meds i take this one that is cheap and has no side effects and helps me manage pain. My next appointment with the neuro is the 21st. I had one with her last month, but couldn't get transport for the appointment. The office offered me an appointment for 10 am on Thursday but that was undoable-- the only possible times are from 10 to 2 for transport so there's no way i could be at the office at 10 and the offfice offered me no leeway -- like a 10:30. Can i live for a month without it? Hoping that when the time comes, that i can indeed get a ride to see the neuro on September 21st. The system has changed so while you dare not ask the same week or next day, knowing a month a head of time doesn't gurrantee that when the time comes, you will be given a ride perhaps i should call the hospital and say i' a nonemergency contemplating coming to emergency because my doctor won't give me the care i require. My pain and anxiety are great. This is all so frustrating, money wastingly ridiculous. --
Re: [TMIC] ot: medicare question
Kevin, I totally agree with Cheryl. I am on long term disability and had insurance through my company. They were primary and since I already had good coverage I didn't sign up for Part B when it was offered. Turned out the people at my company (it is a large well known one), didn't know that Medicare was supposed to be the primary coverage, not the one the company offered. At one point the company thought they might even charge the LTD folks for the $$ they had paid for our coverage. The kicker was I had to pay a 10% penality every year - I am up to over $140.00 a month where most people are paying about $93 or something close. Like Cheryl said, work with Medicare and get everything in writing. Even the people that should be able to give you correct answers a lot of times really don't know. Cindy McLeroy - Original Message - From: rn11...@yahoo.com To: Kevin Wolfthal Cc: tmic-list@eskimo.com Sent: Friday, August 27, 2010 8:45 AM Subject: Re: [TMIC] ot: medicare question Hi Kevin, I have had medicare part A B since I got tm in August 1995.I have a medicare HMO through Health New England.That costs me $123 a month in addition to what medicare part A B cost. Do you have medicare part B? I do know if you do not get part B when it is offered,you pay higher premiums for it later.So if you do have it,you might have to pay more later if you cancel it now. I'd talk to medicare about what exactly happens if you cancel ,and get any advice in writing.It amazes me how people get conflicting info about the consequences of cancelling things. Make sure you are fully informed before cancelling medicare.You don't want problems later Cheryl in Easthampton,MA. --- On Fri, 8/27/10, Kevin Wolfthal wolft...@optonline.net wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] ot: medicare question To: tmic-list@eskimo.com Date: Friday, August 27, 2010, 11:27 AM Dear Friends, I am looking for ways to cut my expenses so I can continue to live where I am. I have never used Medicare, but have been paying about $100 a month for it for about 10 years out of my SSDI. Blue Cross is my primary insurance. I am thinking of dropping Medicare for now to save money. I was told I could always reapply for it later, that it takes about 3 months to get it back. I would like opinions on whether there could be negative repercussions to dropping it for now. As I mentioned, I've never used it in 10 years. Kevin
Re: [TMIC] Gunny
Hi Craig, try the link below to go to the TMA site for the laser cartridges. http://recycle.myelitis.org/ It explains all you need to know to recycle and benifit the TMA. Cindy McLeroy - Original Message - From: Rev. Craig Crossman To: tmic-list@eskimo.com Sent: Wednesday, August 11, 2010 8:32 AM Subject: [TMIC] Gunny Gunny, I misplaced the address for the laser cartridges. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Fw: [TMIC] Gunny
- Original Message - From: Cindy McLeroy To: Rev. Craig Crossman ; tmic-list@eskimo.com Sent: Wednesday, August 11, 2010 12:54 PM Subject: Re: [TMIC] Gunny Hi Craig, try the link below to go to the TMA site for the laser cartridges. http://recycle.myelitis.org/ It explains all you need to know to recycle and benifit the TMA. Cindy McLeroy - Original Message - From: Rev. Craig Crossman To: tmic-list@eskimo.com Sent: Wednesday, August 11, 2010 8:32 AM Subject: [TMIC] Gunny Gunny, I misplaced the address for the laser cartridges. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] I am fine
Saroj, I echo Barbara's remarks. I'm so glad you have been lurking recently and saw our notes. I remember you were having a rough go of a lot of things other than the legal battles with the tenants and am so happy to hear you are doing well and than your health is improving. Please keep in touch with the group and let us know how you are. I know many of us have thought of you often. Cindy McLeroy - Original Message - From: Barbara Alma To: sarojkumar...@gmail.com ; tmic-list@eskimo.com Sent: Monday, August 02, 2010 4:34 PM Subject: Re: [TMIC] I am fine First, I'd like to say that I am elated with Saroj's response! And this is far quicker than I had ever expected a response to be from her. Thank you so much Saroj! I was so worried. It is great news that your legal issues with your tenants are over. It is great to hear that your diabetes and hypertension are well controlled now though, the stress reduction will most likely be a good advantage. I can relate very easily to walking with a stick as I do the same also, using the canadian crutches, or armband crutches. Take good care of yourself and keep in touch. Hugs, Barbara A in Auburn CA -Original Message- From: Saroj Kumari sarojkumar...@gmail.com To: tmic-list@eskimo.com Sent: Mon, Aug 2, 2010 12:40 pm Subject: [TMIC] I am fine Hello friends, I have just survived a 6 years long drawn legal battle with our tenant .Finally won the case only a couple of weeks ago.I was very depressed during this period.As regards my transverse myelitis,I have increasing walking disability can't do without my walking stick when I go out to do my outdoor tasks.I have well controlled diabetes and hypertension.I am very sorry for I have not been able to write to the very dear members of the list. Saroj
Re: [TMIC] Has anyone heard from Saroj?
Barbara, I saw her name also and wondered if anyone has kept in contact with her. I was concerned because of all the problems she was having in India. If anyone knows please update the whole list. She was a great asset with all her knowledge and kindness. I believe she was a Doctor and had practiced in New Zealand or some place like that. Cindy in SoCal - Original Message - From: Barbara Alma To: tmic-list@eskimo.com Sent: Sunday, August 01, 2010 10:39 PM Subject: [TMIC] Has anyone heard from Saroj? I have often thought of our dear friend Saroj and haven't seen anything on list from her or regarding her in a really long time. Perhaps I missed something during an absence. If anyone knows anything, can you please let me know. I saw her name on the birthday list and thought of her once again. For those who don't know Saroj, she was a very knowledgeable and gracious lady from India who was a big part of the TMIC a few years back. Hugs, Barbara A in Auburn CA
Fw: [TMIC] short story
Anyone who has been to the Abilities Expo knows why it is not called the Disabilities Expo. It's to encourage us to view what we can do, and not the limitations of what we as persons with disabilities are unable to do. Lots of encouragement in that name. - I was thinking the same thing - and we all need to look at our accomplishments, big or small, and rejoice for those we have. Prayers and thoughts for you and yours, Candy K. - Original Message - From: pjv1...@chartermi.net To: bgunny7...@aol.com, Tmic-list@eskimo.com Sent: Saturday, July 24, 2010 6:36:42 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] short story Ok Gunny, now I have goose bumps from reading your story. Thank you for your service to our country. Your DI gave you a great piece of advice. We should dwell on our abilities an use them for the good of others. Thanks for sharing. Patti - Michigan bgunny7...@aol.com wrote: I was just sttin here the other day lookin at something I got from another Marine. I had a though about lookin up my old DI's. I typed in thier names in my search engine, and came up with only one, Sgt. Levesque. It was a story about what happened to him in Viet Nam. I called John Brown who is the commander of the VA, who also worked with me at the Sheriff's dept. yes, he's from Youngstown. It seems Sgt. Levesque works with the blind veterans, as he lost his eye sight in Viet Nam. John told me how to get in touch with him, so I called. He answered, Don Levesque, how can I help you? Here's a man I haven't seen or talked to in forty eight years, and I got the feeling of needing to snap to, but I didn't . I said, Platton 289, F Co. Parris Island. He said, yeah, my platoon. I said Pvt. Boyle, Platoon Guide. He said, son of a bitch, how the hell are ya. I said, the question is, how are you, I read a story about you and losing your eye sight. He said, ya know Boyle, I remember you, you had your head and ass wired together..After exchanging pleasantries, we discussed disabilities, and I told him my story. He said, remember one thing Boyle, it's ability, not disability, if I taught you anything, remember that. We talked a couple more minutes then agreed to stay in contact. It got to me people, ability not disablilty. I had to hear that from an old DI of mine, so, I'm just passin it on. Semper Fi.
Re: [TMIC] Amytretaline (sp)
I also had horrible blurred vision. I went off of it because of that, but my vision had changed so much my eye doctor couldn't believe it. And the dry mouth was miserable. Rather deal with the bladder problems than Ditropan. - Original Message - From: Laura Beaudin laura.beau...@gmail.com To: Laurie Zissimos lziss...@aol.com Cc: pieterheat...@shaw.ca; regina...@sbcglobal.net; tmic-list@eskimo.com Sent: Monday, April 26, 2010 10:45 AM Subject: Re: [TMIC] Amytretaline (sp) Tried Ditropan and failed miserably with it...it works well, but boy, talk about a dry mouth!! Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 11:40 AM, Laurie Zissimos wrote: I take Elavil 25 mgs each night and I take Lyrica 150mgs 3x daily. The Elavil was prescribed for me for bladder control. I also take Ditropan XL 20mgs at night. The Ditropan and the Elavil keep me dry all night. Laurie in Baltimore -Original Message- From: Pieter and Heather pieterheat...@shaw.ca To: Regina Rummel regina...@sbcglobal.net; tmic-list@eskimo.com Sent: Mon, Apr 26, 2010 1:35 pm Subject: Re: [TMIC] Amytretaline (sp) Regina, OMG.I didn't realize that Amytriptilene was actually Elavil. I too was put on that for a short while back in the 70's for depression. I too felt 'right out of it' or 'stoned'. I couldn't take it then and guess I will just stick with the Neurontin. Heather in Calgary - Original Message - *From:* Regina Rummel mailto:regina...@sbcglobal.net *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Monday, April 26, 2010 10:34 AM *Subject:* [TMIC] Amytretaline (sp) Hi Jill, I took it years ago for depression and OMG, it was awful! The best way I can describe it is that I felt stoned. It was called Elavil then. In those days, they gave it to people in nursing homes to keep them quiet. But everyone reacts differently, so try it and let us know what happens, something good I hope. I take Neurontin but decided on my own to gradually decrease the dose, and eventually stop taking a medication that I believe bogus. So far, I see no difference in the pain and the darned TM symptoms. Good luck with the Elavil. R
[TMIC] Paralysed girl needs $1.9m for surgery
Here is a link to the little girl all the emails called hope were refering to: http://www.trinidadexpress.com/index.pl/article?id=161604912
Re: [TMIC] TM and Pilates
Hi Randy, we all know those neuro's are wrong a lot and I bet you have some residual TM left. There foreStay with the group. We value your input and I bet you still learn from other TMIC folks. Cindy McLeroy - Original Message - From: rj_ran...@yahoo.com To: Janice Nichols jan...@centurytel.net; I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Sent: Saturday, February 13, 2010 11:19 AM Subject: Re: [TMIC] TM and Pilates I went back to the neuro a few weeks back for the most recent check ups. I joined this websight after I was diagnosed in 05. Spent 3 years trying to get walking back. I still can stand up quickly and I can't run. I guess I should just leave the site now that my neuro says I'm fine. --Original Message-- From: Janice Nichols To: rj_ran...@yahoo.com To: I Whiddett To: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:14 PM Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry Sent from my Verizon Wireless BlackBerry
Re: [TMIC] Correction!! Forget all other emails but this one!!!! MOST EFFECTIVE
I just need to throw my two cents in herewhen you want to write something to one specific person, please stop copying the whole list or in some cases multiple groups. Just write to that person! I don't need to know what so and so said to another person when it should be private. Yes, I can hit the delete button, but in situations like this, why should I have too? Cindy McLeroy - Original Message - From: jrushton jrush...@columbiaenergyllc.com To: transversemyelitissupp...@yahoogroups.com; tmic tmic-list@eskimo.com Sent: Tuesday, January 26, 2010 10:31 AM Subject: [TMIC] Correction!! Forget all other emails but this one MOST EFFECTIVE I guess this should have been addressed to Lori. Sorry, Janice!! Jeanne in Dayton, WA - Original Message - From: jrushton jrush...@columbiaenergyllc.com To: transversemyelitissupp...@yahoogroups.com; tmic tmic-list@eskimo.com Sent: Tuesday, January 26, 2010 12:24 PM Subject: Re: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE This is not a political site! I am highly offended that this was posted on this site OT or not and has been going around for years. The dates have all been changed. I thought this site was for TM, OT in itself is bogus, but this is over the line. -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, January 24, 2010 11:06 PM To: Ed; tmic-list@eskimo.com; Janice Rehmer Subject: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE In response to the above: Actually Jan, we have had issues such as this one and religious issues also and I think a lot of us have come to the same conclusion that no one truly means to offend anyone at all. We also agreed to try to 'alert' us that it does not have anything to do with TM in order that we might delete it right away. We are human. We make mistakes. Most of us try to be kind, considerate, and compassionate people but sometimes we trip up and fail. Our site is not black and white and sometimes we find something that we feel strongly about to the point we want to share with our TM 'friends' and sometimes it is not the right choice but again, we are only human. That is where the 'delete' button comes inplease use it. I have and I'm sure some have very quietly used it when I've sent something they thought inappropriate. Thank you to those that did because I certainly did not mean to hurt or offend anyone at the time... Jeanne Rushton, Dayton, WA
Re: [TMIC] OT- I sing
Mindy, that was beautiful. A memorial service is being held this week end for Rick Steele and I am suppose to say something. This has helped inspire me. Cindy McLeroy - Original Message - From: Lawrence King To: tmic-list@eskimo.com Cc: Lawrence King Sent: Monday, October 12, 2009 11:34 AM Subject: [TMIC] OT- I sing Hi Guys, I wondered If I should send you this since it has nothing to do with TM but I figured since we have lost a lot of tmic-list saints recently I figured you could remember them while watching it. thats me singing at my debut concert, the traditional hymn for all the saints http://www.youtube.com/watch?v=4Gx2CJuGY18 Mindy the Artisan
[TMIC] Rick Steele
A website has been set up for Ricky Steele, the Southern CA TM support group member who passed away on September 3rd. Rick was an incredible man who truely did wake up every morning whistling like Jiminy Cricket. Please read his biography at the website to understand what a great person we lost. Also, if you can, please make a donation to the Transverse Myelitis Association in Rick's name. I know he would have like that. Here is the website: http://memorialwebsites.legacy.com/ricksteele/Homepage.aspx Cindy McLeroy
[TMIC] Support groups
Cindy McLeroy Support group leader for Southern CA Reply direcly to me if you are interested in joining our group. We've been going strong for almost 7 years.
[TMIC] Reminder: Southern Ca Support Group Meeting - July 18th
Just a reminder to everyone, we will be having a Southern CA support group meeting on Saturday, July 18th. It will be at the Dayle McIntosh Center in Garden Grove. If anyone needs directions, please send me an email and I'll get them off to you. The hours are 12 noon till 4PM. Bring pot luck items and I'll supply the plates, water, etc. See you all then. Cindy
Re: [TMIC] Facebook Page
Now when folks wonder why the list is slow, they should go to facebook and check out Farm Town. That must be where everyone disappears sometimes. - Original Message - From: bradebi To: Akua ; tmic-list@eskimo.com ; Jim Lubin Sent: Friday, June 26, 2009 3:29 PM Subject: Re: [TMIC] Facebook Page I am too!!!...I love Farm Town!.I am taking a break... .I am into building my Zoo right now..it is addicting too!. Debi ---Original Message--- From: Jim Lubin Date: 6/25/2009 7:37:10 PM To: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page there are several TM-ADEM-NMO groups on Facebook, most are linked here http://www.myelitis.org/support.htm Jim (who has become addicted to the Farm Town game on Facebook) At 06:43 PM 6/24/2009, Akua wrote: I'm digging Facebook--- what about creating a fan page. -- Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org Spiral_notebook.jpg
Re: [TMIC] Accessibility Relationships
And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things. Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. Version Amphitheater in Irvine has done an amazing job of raising a portion of the seating above the orchestra section so folks in wheelchairs can see the stage when the rest of the people below are standing. Love it there. One of the ADA limits has to do with cost. If the modification is too costly and the building can show that, then they don't have to modify. Also, if the building is historic, they don't have to modify. Cindy (sitting home waiting for an otho doctor to get me in with a very severe broken leg...been to emergency already and had a splint) - Original Message - From: parkersw...@aol.com To: a...@artfarm.com ; tmic-list@eskimo.com Sent: Monday, June 15, 2009 2:44 PM Subject: Re: [TMIC] Accessibility Relationships Add to the list of complaints: Have you noticed that at many hotels, the ADA rooms are furthest from the elevators? And yes, you are lucky if they have ADA rooms on the first floor. Also, the rooms often face the parking lot and seldom the garden, pool or view? Is this discrimination? I feel it is. At some commercial stores or restaurants we have had to get Terry through the kitchen or the back door to get to the bathroom. In one instance, we had to go two buildings down! In passing, I mentioned this to a Civil Rights attorney I know and he said, lawsuit. We haven't pursued that, of course. This friend has filed many suits against large hotel chains, music festivals, etc., as they are hardly ADA compliant. He himself is disabled and knows first hand the discrimination. I am not saying whatsoever that every place discriminates, not by a long shot. But many business owners are not very aware of the disadvantages that people in wheelchairs are faced with. That's my tangent for the day. As a wife of a TM'er, if I have time tomorrow, I will try to address the relationship issue. -- Download the AOL Classifieds Toolbar for local deals at your fingertips.
[TMIC] Re: WHAT DID YOU DO???
You'll be sorry you asked, it's kind of a long story. I had time to kill on Sat before I went to a party, all dressed and ready to go. I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with one hand on the toilet. cleaning with the other. Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around. When I went to bed that night my leg was doing a snap, crackle and pop noise. Went to the ER the next day and the doctor said, Oh, your leg is broken. Duh. Anyhow, my frustration is dealing with the ER folks, my doctor and an Ortho. Seems all the Ortho's are booked. I can't wait because I have (lucky for me) no sensation and the splint that is on my leg is moving around and I'm sure digging. I want to avoid pressure sores. Always something interesting with TM. I think this is the fourth or fifth time I have broken one or the other of my legs. Once I simply rolled over in bed and heard the crunch. Cindy - Original Message - From: Jan Hargrove To: Cindy McLeroy ; Sent: Tuesday, June 16, 2009 11:51 AM Subject: Re: WHAT DID YOU DO??? Cindy, What in the world did you do to break your leg??? jan --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things. Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. Version Amphitheater in Irvine has done an amazing job of raising a portion of the seating above the orchestra section so folks in wheelchairs can see the stage when the rest of the people below are standing. Love it there. One of the ADA limits has to do with cost. If the modification is too costly and the building can show that, then they don't have to modify. Also, if the building is historic, they don't have to modify. Cindy (sitting home waiting for an otho doctor to get me in with a very severe broken leg...been to emergency already and had a splint) - Original Message - From: parkersw...@aol.com To: a...@artfarm.com ; tmic-list@eskimo.com Sent: Monday, June 15, 2009 2:44 PM Subject: Re: [TMIC] Accessibility Relationships Add to the list of complaints: Have you noticed that at many hotels, the ADA rooms are furthest from the elevators? And yes, you are lucky if they have ADA rooms on the first floor. Also, the rooms often face the parking lot and seldom the garden, pool or view? Is this discrimination? I feel it is. At some commercial stores or restaurants we have had to get Terry through the kitchen or the back door to get to the bathroom. In one instance, we had to go two buildings down! In passing, I mentioned this to a Civil Rights attorney I know and he said, lawsuit. We haven't pursued that, of course. This friend has filed many suits against large hotel chains, music festivals, etc., as they are hardly ADA compliant. He himself is disabled and knows first hand the discrimination. I am not saying whatsoever that every place discriminates, not by a long shot. But many business owners are not very aware of the disadvantages that people in wheelchairs are faced with. That's my tangent for the day. As a wife of a TM'er, if I have time tomorrow, I will try to address the relationship issue. Download the AOL Classifieds Toolbar for local deals at your fingertips.
Re: [TMIC] Re: WHAT DID YOU DO???
Janice, Before I had TM (age 47 in 1992) I had severe Osteoporis so I already had thin bones. Not being weight bearing for all these years doesn't help which is why I have to be (no should be) so careful. I take all the appropriate meds, but when I do something stupid, I go all the way. Cindy - Original Message - From: Janice To: Cindy McLeroy ; tmic-list@eskimo.com ; jmh1...@sbcglobal.net Sent: Tuesday, June 16, 2009 8:56 PM Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Cindy, Did you break your legs that many times since TM or during your lifetime? Sure sorry it happened and hope it heals quickly. Word of advice - Leave The Cleaning To The Cleaning Ladies Although I admit I would have tried to clean it too. Heal quickly, Janice - Original Message - From: Cindy McLeroy To: tmic-list@eskimo.com ; jmh1...@sbcglobal.net Sent: Tuesday, June 16, 2009 6:09 PM Subject: [TMIC] Re: WHAT DID YOU DO??? You'll be sorry you asked, it's kind of a long story. I had time to kill on Sat before I went to a party, all dressed and ready to go. I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with one hand on the toilet. cleaning with the other. Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around. When I went to bed that night my leg was doing a snap, crackle and pop noise. Went to the ER the next day and the doctor said, Oh, your leg is broken. Duh. Anyhow, my frustration is dealing with the ER folks, my doctor and an Ortho. Seems all the Ortho's are booked. I can't wait because I have (lucky for me) no sensation and the splint that is on my leg is moving around and I'm sure digging. I want to avoid pressure sores. Always something interesting with TM. I think this is the fourth or fifth time I have broken one or the other of my legs. Once I simply rolled over in bed and heard the crunch. Cindy - Original Message - From: Jan Hargrove To: Cindy McLeroy ; Sent: Tuesday, June 16, 2009 11:51 AM Subject: Re: WHAT DID YOU DO??? Cindy, What in the world did you do to break your leg??? jan --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things. Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. Version Amphitheater in Irvine has done an amazing job of raising a portion of the seating above the orchestra section so folks in wheelchairs can see the stage when the rest of the people below are standing. Love it there. One of the ADA limits has to do with cost. If the modification is too costly and the building can show that, then they don't have to modify. Also, if the building is historic, they don't have to modify. Cindy (sitting home waiting for an otho doctor to get me in with a very severe broken leg...been to emergency already and had a splint) - Original Message - From: parkersw...@aol.com To: a...@artfarm.com ; tmic-list@eskimo.com Sent: Monday, June 15, 2009 2:44 PM Subject: Re: [TMIC] Accessibility Relationships Add to the list of complaints: Have you noticed that at many hotels, the ADA rooms are furthest from the elevators? And yes, you are lucky if they have ADA rooms on the first floor. Also, the rooms often face the parking lot and seldom the garden, pool or view? Is this discrimination? I feel it is. At some commercial stores or restaurants we have had to get Terry through the kitchen or the back door to get to the bathroom. In one instance, we had to go two buildings down! In passing, I mentioned this to a Civil Rights attorney I know and he said, lawsuit. We haven't pursued that, of course. This friend has filed many suits against large hotel chains, music festivals, etc., as they are hardly ADA compliant. He himself is disabled and knows first hand the discrimination. I am not saying whatsoever that every place discriminates, not by a long shot. But many business owners are not very aware of the disadvantages that people in wheelchairs are faced with. That's my tangent for the day. As a wife of a TM'er, if I have time tomorrow, I will try to address the relationship issue
[TMIC] Jasc Paint Shop Photo Album 5 images
I hope this comes through to everyone. This is the people article on the lady with TM that was mentioned by Cheryl.. - These photos were sent using Jasc Paint Shop Photo Album 5 software. Visit http://www.jasc.com for details. attachment: TM, people mag, may 30, 2009.jpg
Re: [TMIC] Fw: Must do before the end of the month......
Please check the following link. This rumor has been around for a few years and isn't true. http://urbanlegends.about.com/od/business/a/cell_directory.htm - Original Message - From: Janice To: transverse myelitis Sent: Thursday, May 28, 2009 7:38 PM Subject: [TMIC] Fw: Must do before the end of the month.. Thought those of you with cell phones would like this information. Janice - Original Message - -- From: -- Have U done this already? REMEMBER: Cell Phone Numbers Go Public this month. REMINDER all cell phone numbers are being released to telemarketing companies and you will start to receive sale calls.. . YOU WILL BE CHARGED FOR THESE CALLS To prevent this, call the following number from your cell phone: 888-382-1222. It is the National DO NOT CALL list. It will only take a minute of your time. It blocks your number for five (5) years. You must call from the cell phone number you want to have blocked. You cannot call from a different phone number. HELP OTHERS BY PASSING THIS ON TO ALL YOUR FRIENDS.. It takes about 20 seconds.
[TMIC] Cody Unser
I tried to send a copy of a newspaper article about Cody Unser graduating from the U of Redlands. I don't think it went through. Here is a link to read the article. She is receiving her degree in biopolitics. For those of you who don't know, Cody came down with TM at 12 y/o. She has worked very hard to help make a difference for folks with TM. http://www.redlandsdailyfacts.com/news/ci_12375826 Cindy McLeroy
Re: [TMIC] RE: wow, you work too hard Trudy
I used oxybutinin for many years. I got tired of the dry mouth, blurry vision, etc. I decided I wasn't getting any bang for my buck and stopped taking it. My next visit to the eye doctor showed a great change in my prescription for new glasses. When I told him I had stopped the oxybutinin he suspected that was the reason for the drastic change. Cindy McLeroy - Original Message - From: Patricia Cooley patticoo...@wi.rr.com To: 'Akua' a...@artfarm.com; tmic-list@eskimo.com Sent: Saturday, May 02, 2009 1:15 PM Subject: RE: [TMIC] RE: wow, you work too hard Trudy I WAS ON OXYBUTININ FOR SOME MONTHS AND IT DID ABSOLUTELY NOTHING FOR ME. SINCE I HAVE NO FEELING THAT I HAVE TO GO MY UROLUGIST SAID I COULD STOP AND I DON'T NOTICE ANY CHANGE EXCEPT THAT THE HORRIBLE TASTE IN MY MOUTH HAS GONE AWAY. PATTI - WI -Original Message- From: Akua [mailto:a...@artfarm.com] Sent: Saturday, May 02, 2009 1:59 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] RE: wow, you work too hard Trudy Tho I think there was article that some incontinence drugs cause memory loss. Yes! I stopped taking oxybutinin and do more laundry g. I now save the oxyb for special events, or visits, when i know i won't get to cath as frequently and don't want to be a wet mess. --
Re: [TMIC] stem cell (OT?)
Several weeks ago I went to a Meet the Scientist meeting for the Reeve Irvine Research Center held at the University of CA, Irvine. Both Dr. Oz Steward and Dr. Hans Keirstead of RIRC agree with Dr Kerr. The stem cells are blastocysts not embros. They are not aborted embros. That would have required the embros to be attached to the mothers womb. Not maintained in a dish, frozen. As far as going out of the country for care, both of these doctors also agree with Dr. Kerr. They highly advise against doing it. There are some pretty ugly things that have happened to people that did go out the country. These occurances also have a negative impact on how people view the research that is being done. Original Message - From: Deborah Nord Capen To: gbthomas8...@sbcglobal.net ; Westgold ; Amanda Diskey ; tmic-list@eskimo.com Sent: Wednesday, March 25, 2009 9:10 AM Subject: Re: [TMIC] stem cell (OT?) I will make just a short statement regarding this, as I do not wish to become involved in a debate. Dr. Kerr has stated in all of his talks that the BIGGEST mistake in the very beginning was to even give it the name embryonic stem cells. They are NOT embryos. They are NOT aborted fetuses. They are blastocysts - only two cells that could not ever survive outside of a petri dish on their own. Because the scientists made this mistake in the beginning of giving it the name embryonic stem cell, all of the right-to-life people came out and attacked this research from the git-go. If you view the talks from all of our symposia at http://www.myelitis.org/events.htm and listen carefully to Dr. Kerr's talks on stem cell research, you will have better knowledge of this. Regarding the idea of going out of the country to receive treatments, Dr. Kerr has also discussed this. The research is there, but the follow-up on the patients is lacking, so they have no record of how the patients did AFTER they left the country to go back home. Take care, Debbie - Original Message - From: gbthomas8...@sbcglobal.net To: Westgold ; Amanda Diskey ; tmic-list@eskimo.com Sent: Wednesday, March 25, 2009 8:05 AM Subject: Re: [TMIC] stem cell (OT?) Our former president, George W. Bush, so direspectfully referred to on this list as dumdum, was simply against the use of our tax money for embryonic stem cell research in consideration for those opposed, on moral grounds, to the use of aborted fetuses. Stem cell research was not stopped. It has widely been proclaimed (even on this list) that adult stem cell research has actually been more successful than embryonic cell research. http://www.stemcellresearchfacts.com/ What should be of concern is the attitude, manifest in the new presidential administration, of disregard for sanctity of life. Surely such thinking in our governmental leadership would tend to provoke questioning as to compassion for TM'ers, especially those in adult years. Rather an irony-- a claim to compassion to help the suffering yet being quick to reinstate tax money for research which gives a boost to the abortion industry! I am not, by far, as learned as I would like to be on this subject, but just wish to include the opposite side to those who seem to hear that fetal embryonic research is the only answer to finding relief for those suffering from conditions such as ours (and, of course, worse). Gary in Michigan - Original Message - From: Westgold To: Amanda Diskey ; tmic-list@eskimo.com Sent: Tuesday, March 24, 2009 2:25 PM Subject: Re: [TMIC] stem cell Hi -- there have been many success stories all over the world with stem cells, I am so glad our new president decided to let the researchers get back to it in a big way. You can google stem calls + various diseases, or stem cells + success, etc, and you'll get a lot of stuff. There were twin girls who went to China for stem cells a couple years ago, and they were helped tremendously. You used to be able to find their stories by googling stem cells + twins + Toronto -- try that. I personally believe that now that the research is back under way full steam, we will be seeing amazing things happening in just a year or two. Too bad those 8 years of research were lost because of dumdum. - Original Message - From: Amanda Diskey To: tmic-list@eskimo.com Sent: Tuesday, March 24, 2009 2:12 PM Subject: [TMIC] stem cell I found a hospital in Panama City, Panama affiliated with Johns Hopkins, and they say they can treat me with stem cells. The lady I spoke with says they have treated one person with TM and got good results. The cost is $30,000. What do you all think? No virus found in this incoming message. Checked by AVG -
Re: [TMIC] California Fires
We actually have a large group of us in Southern CA. In the last fires about 2 mo ago one of our members, Rick Steele, in Porter Ranch had to evacuate and almost lost his home. The flames came right up to his property line. Another one of our members is in an area where all the freeways are closed and for her the smoke it making it terrible hard to breathe as she also had COPD. I haven't check on all the members of our SoCal Support group yet, but I think most of us are okay, just dealing with ashes and smoke. Yesterday I went to visit my Mom's house in Fullerton and could see the flames on the Ridgeway, so of them spread a mile or so apart. The flames were probably about 5 miles from her house. We had to exit the freeway because just up the way they were afraid the fires were going to just the freeway. Scary!! All of us know so many folks in the fire areas and are wishing the best for them. Today, in my area at least the temp has cooled down to the mid 80ies and the wind has calmed down This is a great help in controlling the fires. The fire personnel we have in So. Cal are absolutely the best. Cindy McLeroy - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, November 16, 2008 12:54 PM Subject: [TMIC] California Fires I don't remember who all is in CA besides Barbara Alma and Deb Capen, but how is everyone doing out there? Anyone in danger of the fires there? Barbara H. http://barbarah.wordpress.com/ -- Get the Moviefone Toolbar. Showtimes, theaters, movie news more!
[TMIC] Allen Rucker - National Spinal Cord Injury Association - Entertainment nomine
Hi everyone, Allen Rucker, author of The Best Seat in the House, how I woke up one Tuesday and was paralyzed for life has been nominated in the Entertainment category for the National Spinal Cord Injury Association. Member voting for the 4th Annual Spinal Cord Injury (SCI) Hall of Fame is set to close at 9 pm ET, Friday, September 5. NSCIA members can vote to choose the 2008 Hall of Fame Inductees in each of 17 categories through an online member-only voting process. Formed by NSCIA in 2005, the SCI Hall of Fame was created to celebrate and honor individuals and organizations that have made significant contributions to quality of life and advancements toward a better future for all individuals with spinal cord injury. To vote, visit I'm writing to ask you to to vote for Allen in the Entertainment category. All you have to do is register at this website: http://www.spinalcord.org/ , if you are not already registered. I found that after registering it's best to log off and then click on the link again. The top of the page will show top stories. The first story provides the link to vote for the nominees. Allen is under #7, Entertainment. I would really appreciate it if everyone in the group votes for Allen. He has done a lot to help with SCI and Transverse Myelitis. I feel he really deserves this award. Thanks, Cindy McLeroy
Re: [TMIC] Neurontin Pain-Buzzy
Barbara, sometimes I describe one of the MANY feelings as the old sparklers for fireworks going off constantly in my legs. Buzzy is a great work for the same thing. Come soon to So Cal...Club 33 awaits at Disneyland, but I need a few weeks notice. Cindy --- Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, May 17, 2008 10:18 PM Subject: Re: [TMIC] Neurontin Pain-Buzzy Hi Heather, I really hadn't ever been able to put the buzzy word to those feelings before, but it fits so well. I would use irritable, cranky, very touchy, and angry, but never buzzy! Sometimes it does feel like electrical shocks are happening, so buzzy is perfect. It's nice to be able to have another word to explain how my legs feel to somebody when they ask. Hugs to all, Barbara A -- Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: [TMIC] 19 year TM Anniversary
Jim, Debbie couldn't have said it any better. It was such a priviledge to meet you in Seattle those few years back. And to share (even over the internet) your excitement to going to North Carolina last year was great. Thanks for all you have done for us and all you will continue to do. If you were donw here in So Cal today you would not have needed to try and stay warn. In my neck of the woods - there are a couple of trees - it was triple digits, as I'm sure it was at Debbies. I can't believe it's 19 years of TM for you. Isn't it amazing when you think about it how it get's harder to remember life without TM? So Happy Anniversary! Love, Cindy - Original Message - From: Deborah Nord Capen To: tmic-list@eskimo.com ; Jim Lubin Sent: Saturday, May 17, 2008 5:21 PM Subject: Re: [TMIC] 19 year TM Anniversary Hello, For all of you who have recently joined the list, you need to know what a huge asset that Jim Lubin is to the TM community. Without Jim, none of us would have met each other, as he started this list. If you have a few days to spare, please check out this website http://www.makoa.org/jim This site lists Jim's accomplishments and publications where he has been featured. He is an inspiration to us all, that you can take whatever life throws at you. Jim is the ultimate example of somebody being thrown a huge lemon tree and making lemonade for the entire world. Jim is the only officer of the TMA that works at this job full time. He spends his days at the computer, looking up links to share with us for improving our lives. He is constantly updating the TMA website (www.myelitis.org) with the latest articles that Dr. Kerr and his entire staff are publishing. He has even made the website easy for anybody in the world to read, as it is translated into many languages. If you are curious about the flags across the top of the main page, click on one of them. The page will be translated into the language of that country. Jim is probably one of the best website builders in the world, and I think he would blow Bill Gates out of the water:-) And to know that he does all of this just using his sip-and-puff straws to maneuver around the screens is truly unbelievable until you have seen him in action. Thank you Jim for your years of service to all of us with TM, and we hope that you will be serving us for many, many more years! Love, Debbie - Original Message - From: Jim Lubin To: tmic-list@eskimo.com Sent: Saturday, May 17, 2008 2:15 PM Subject: [TMIC] 19 year TM Anniversary On May 17, 1989, I became paralyzed from the neck down and dependent on a ventilator to breathe due to Transverse Myelitis. I was 21. I woke up with a pain in my shoulder. Went to work and about 30 mins later the pain got very intense. I suddenly could not stand then stopped breathing. I later found out that my heart stopped and it took awhile for them to stabilize me to even transport me to the hospital a few blocks away. The doctors had no idea what had happened to me. initial thought were possibly a stroke, lyme disease, or Guillain-Barre Syndrome. I was in and out during that time, could not talk, only remember bits. After about 2 weeks I had a MRI and was given the diagnoses of Acute Transverse Myelitis. I was in ICU until July 31 then transfered to rehab. In rehab I was treated as a person with a spinal cord injury. I had physical therapy which consisted of giving me range of motion and practice driving my sip and puff operated wheelchair. In speech therapy and occupational therapy I learned morse code to access the computer. I practiced typing and played tetris and chess. In October, I was able to leave the hospital for the first time and went to see the Batman movie. I started going to movies about once a week. The nurses always tried to get the other patients to go out when I went because I was the only vent dependent high level quadriplegic and enjoyed going out. Others were paraplegics, having problems dealing with their condition. I was in rehab until January 31st. I've been paralyzed most of my life. Wow how time flies. Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org
[TMIC] Fatigue
I just read several notes discussing the fatigue some folks have and how using the walkers, canes and such still makes it difficult to get around. I realize that to a lot a people walking is very important, BUT...have any of you thought of getting the small 4 wheeled scooters? They are light, very maneuverable, easy to take apart and get you around so much easier, preserving some of that energy. I've mentioned this because a friend of mine with TM recently bought a little scooter and loves it. She can now make it the distance from the parking lot to the stadium for Angel baseball games. Couldn't have done that before, even with a walker. It has really allowed her to do so much more than 3 months ago. All this is just a thought. BTW, I can still beat her the distance with my wheelchair! Cindy McLeroy
Re: [TMIC] Traveling with TM
This is great, but for those of us who can only make it to the bathroom by crawling on the floor, here's what I do. I try to travel early, don't drink anything except maybe sips of water, use lots of salt, depends and double pad. If you get a bulkhead seat and have lots of room, you can sometimes get a blanket to cover up and cath in the seat. I also always take my wheelchair cushion with me and sit on it in the plane. Sometimes if there is room the airlines will put manual chairs on the plane instead of in the luggage hold. Always be sure your chair is labeled and don't feel bad about pressuring the airline staff to make sure your chair in on the plane. If you are changing flights, make sure your wheelchair is also changing flights with you. You can request that the chair is brought up to you before the next flight instead of using one of the airline provided chairs. - Original Message - From: jrushton To: Regina Rummel ; tmic-list@eskimo.com Sent: Thursday, March 27, 2008 12:19 PM Subject: Re: [TMIC] Traveling with TM Hi, Regina! I don't know about the others but we've traveled quite a bit and that is one of the biggest problems. (Pardon us, men, but) I do wear extra pads, always go to the bathroom before boarding and am always able to use the closest bathroom even if it is in first class. They are so small and I'm not too big and they are even cramped for me but when you have to go, you have to go. I've had to try to hold it almost holding my breath until landing so it is a big important issue with traveling. I do my travel arrangements on-line and it would be a good idea to get into the habit of making sure we get a seat near the bathrooms. I just don't think about it then regret it later. You can usually do that. Hope some part of this helps! Jeanne ---Original Message--- From: Regina Rummel Date: 3/27/2008 4:09:58 PM To: tmic-list@eskimo.com Subject: [TMIC] Traveling with TM What's kept me from traveling since TM is having to go to the bathrom. How do you manage it? I don't think I would drink all day which is a bad idea, but then. R
[TMIC] Member's stories
For those of you who are interested the following link will give you the stories of over 400 TMA members. http://myelitis.org./tmic/archive/index.html
Re: [TMIC] TMA So. California Symposium
Rick, Pam, the So. California Symposium is being held in Anaheim, CA. Not Seattle. There will be a Symposium in Seattle, but it will be this summer. This might give you more time to save $$ or your plans may allow you to go to Seattle. The Anaheim meeting is in February, the Seattle is in July, I think. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, January 14, 2008 3:56 AM Subject: Re: [TMIC] TMA So. California Symposium YES RICK, YOU NEVER KNOW. YOU MIGHT GET THERE. GOD IS POWERFUL. I WILL PRAY THAT THINGS WORK OUT SO YOU CAN GO. GOD BLESS TIAD PAM In a message dated 1/13/2008 11:01:15 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Its a crying shame that I,m not going to financially be able to get to the symposium in Seattle this year there will be for me. There are many things that I need to know, from some of the members its a shame.Oh well if there is a way then God will find me a way. I believe it is so. Rick -- GOD BLESS US ALL -- Original message -- From: [EMAIL PROTECTED] I WISH I COULD GO BUT I AM GOING TO SEE DR. KERR 2 MONTHS LATER THEN TO MY SONS IN WV. I WOULD LOVE TO MEET SO MANY OF YOU. HAVE A GREAT TIME LIKE JENNA SAID!!! PAM In a message dated 1/13/2008 9:22:14 A.M. Central Standard Time, [EMAIL PROTECTED] writes: I am so happy for those of you that live closes enough to go to this. I'm sure you will learn so much! Have fun and let us know how it goes. Jenna - Original Message From: Deborah Nord Capen [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, January 13, 2008 12:06:35 AM Subject: [TMIC] TMA So. California Symposium The arrangements have been finalized, the contracts have been signed. We are going to have a one-day symposium in Southern California! Chitra Krishnan, Dr. Kerr, Dr. Kaplin, Dr. Pidcock, and Dr. Levy will all be at the Paradise Pier hotel, next door to the Disneyland Hotel in Anaheim, California on Saturday, February 23 for one day only! We have reserved a block of rooms for those of you who want to travel in and spend the night to see our wonderful doctors and hear them speak. The rooms are available on Friday and Saturday nights for $165.00 a night plus taxes. The registration fee for the Saturday conference is only $50.00, which will cover the cost of the continental breakfast, the lunch and the meeting room. We had to do a lot of negotiating to get this super price. The details will be up on the website at _www.myelitis.org_ (http://www.myelitis.org/) by Wednesday, but if you can't wait, please email me and I can give you the details sooner. Please, if you live near Southern California, seriously consider coming and meeting our doctors who have been working so hard for all of us to make our lives so much easier for all of us. Take care, Debbie Capen [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) (mailto:[EMAIL PROTECTED]) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. _Try it now._ (http://us.rd.yahoo.com/evt=51733/*http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtD ypao8Wcj9tAcJ) **Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489 -- Start the year off right. Easy ways to stay in shape in the new year.
