Re: RE: RE: [TMIC] lidocain infusions
Marijuana Policy Project: www.mpp.org Todd in CC, TX L T CHERPESKI [EMAIL PROTECTED] wrote: Hi Trudy, I so totally agree with you! You would think that someone could come up with something for all this pain. I've had terrible joint pain from Sjogrens Syndrome since 1988, then TM came to live with me in April 2002. Believe me, I'll take the joint pain over this neuropathic pain any day. Almost all of us TMers seem to take Neurontin. I was up to 3200 mgs a day - totally ridiculous because it did very little, if anything for my pain. So I don't take it. I am right behind you, 56, and I am ready to try the big M too! AND I am also tired of putting on the I feel fine face - this list is a blessing - so many really great people who do truly understand what we all go through. I probably missed it somewhere, but can you tell me where your lesion or lesions are and how long you have had TM? And be careful, Frank will probably take you up on that offer for the drink - he may not even wait til his birthday Take care Linda (Eagle, ID /prev Bothell, WA) - Original Message - From: Trudy OGILVIE To: [EMAIL PROTECTED] ; TMIC-LIST@eskimo.com Sent: Tuesday, January 16, 2007 7:28 PM Subject: Re: RE: RE: [TMIC] lidocain infusions Frank, So do you live here in the states? or Montreal?? I am thinking about trying a pain management group. My neuro could really care less about the pain. Is cannabinoid the same as marijuana??? If I found out that marijuana helped neuropathic pain I would definitely try it??? I'm 60 and my group just missed the revolution so I have never tried it. I swore I would give a try on my 60th birthday but never did Sometimes it is hard for me to believe that in this day and age they can't come up with something to help this pain!!! How do we want to live our lives??? I am so tired of putting on the I'm doing just fine face truly after awhile no-one wants to hear about your problems anyway. So that's another good reason to be on this list you can vent, cry whatever at least we understand... Well, Frank, let me know when your birthday is I'll buy you a drink :) What's your favorite poison??? I do hope the lidocain infusions work for you... let us know!! Sorry if I sound like the twenty questions' lady... I know you have been on this list a long time and so I was just wondering about your TM life, etc... Trudy - From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Trudy [EMAIL PROTECTED], tmic-list@eskimo.com Subject: Re: RE: RE: [TMIC] lidocain infusions Date: Tue, 16 Jan 2007 11:45:02 -0500 May I ask how do you function? Are you able to get around at all??? Did all this begin with TM??? Trudy, this all began with TM- C5 right spinal cord 6 mm lesion. It came on slowly over a week. Went to my PCP (primary doctor), he had no idea, as did the neuro who sent me for MRIs. MRI showed lesion and normal brain. My weakness and pain slowed me down. I kept eating. Prednisone helped my abdominal fat to start growing. slowly over the years my weight increased causing hypertension, hyperlipidemia, insulin resistance and obesity. my pain increased. I finally got to Dr. Kerr, put on meds to decrease pain, lower my lipids. Wound up at the pain center at Montreal General Hosp. where I was put on SATIVEX a cannabinoid under tongue spray. I function poorly, but I betcha their are many on the list who would trade with me. Take care F gifExPQKjb8ck.gif Description: GIF image
Re: RE: RE: [TMIC] lidocain infusions
Trudy, I live in Maine but stay in Montreal for long periods of time as I went to med school here, have lots of friends- in particular one special native-america princess. Belva is a full blooded Mohawk, and has more energy than three pale-face. She has worked since she was 18 yrs. old as a photographer for the papers and the largest hotel ( taking pictures of diners then turning out pictures for them to buy on their way out. She ajso owned and ran the parking lot next to The Forum where the hockey was played- she knows all the old player, and they know her. Half of Montreal knows her!! Cannabinoids are like Mariyuana, actually the active ingredient. I'm 60 y.o.and gave up smoking weed in 1973. Then in 2000, Dr. Kerr started me back on the stuff. I grew some, but I'm always moving so have problems. I have invented the multi- birthday. I have one on the 28th of each and every month. Hope this helps you understand where I'm at. F -5 degrees Celsius here in montreal
Re: RE: RE: [TMIC] lidocain infusions
May I ask how do you function? Are you able to get around at all??? Did all this begin with TM??? Trudy, this all began with TM- C5 right spinal cord 6 mm lesion. It came on slowly over a week. Went to my PCP (primary doctor), he had no idea, as did the neuro who sent me for MRIs. MRI showed lesion and normal brain. My weakness and pain slowed me down. I kept eating. Prednisone helped my abdominal fat to start growing. slowly over the years my weight increased causing hypertension, hyperlipidemia, insulin resistance and obesity. my pain increased. I finally got to Dr. Kerr, put on meds to decrease pain, lower my lipids. Wound up at the pain center at Montreal General Hosp. where I was put on SATIVEX a cannabinoid under tongue spray. I function poorly, but I betcha their are many on the list who would trade with me. Take care F
Re: RE: RE: [TMIC] lidocain infusions
Frank, So do you live here in the states? or Montreal?? I am thinking about trying a pain management group. My neuro could reallycare less about the pain. Is cannabinoid the same as marijuana??? If I found out that marijuana helped neuropathic pain I would definitely try it??? I'm 60 and my group just missed the "revolution" so I have never tried it. I swore I would give a try on my 60th birthday but never did Sometimes it is hard for me to believe that in this day and age they can't come up with something to help this pain!!! How do we want to live our lives??? I am so tired of putting on the "I'm doing just fine" face truly after awhile no-one wants to hear about your problems anyway. So that's another good reason to be on this list you can vent, cry whatever at least we understand... Well, Frank, let me know when your birthday is I'll buy you a drink :) What's your favorite poison??? I do hope the lidocain infusions work for you... let us know!! Sorryif I sound like the "twenty questions' lady... I know you have been on this list a long time and so I was just wondering about your TM life, etc... Trudy From:"[EMAIL PROTECTED]" [EMAIL PROTECTED]To:Trudy [EMAIL PROTECTED], tmic-list@eskimo.comSubject:Re: RE: RE: [TMIC] lidocain infusionsDate:Tue, 16 Jan 2007 11:45:02 -0500 May I ask how do you function? Are you able to get around at all??? Did all this begin with TM???Trudy,this all began with TM- C5 right spinal cord 6 mm lesion.It came on slowly over a week. Went to my PCP (primary doctor), he had no idea, as did the neuro who sent me for MRIs. MRI showed lesion and normal brain.My weakness and pain slowed me down.I kept eating.Prednisone helped my abdominal fat to start growing.slowly over the years my weight increased causing hypertension, hyperlipidemia, insulin resistance and obesity.my pain increased. I finally got to Dr. Kerr, put on meds to decrease pain, lower my lipids.Wound up at the pain center at Montreal General Hosp. where I was put on SATIVEX a cannabinoid under tongue spray.I function poorly, but I betcha their are many on the list who would trade with me.Take careF
Re: RE: RE: [TMIC] lidocain infusions
Hi Trudy, I so totally agree with you! You would think that someone could come up with something for all this pain. I've had terrible joint pain from Sjogrens Syndrome since 1988, then TM came to live with me in April 2002. Believe me, I'll take the joint pain over this neuropathic pain any day. Almost all of us TMers seem to take Neurontin. I was up to 3200 mgs a day - totally ridiculous because it did very little, if anything for my pain. So I don't take it. I am right behind you, 56, and I am ready to try the big M too! AND I am also tired of putting on the I feel fine face - this list is a blessing - so many really great people who do truly understand what we all go through. I probably missed it somewhere, but can you tell me where your lesion or lesions are and how long you have had TM? And be careful, Frank will probably take you up on that offer for the drink - he may not even wait til his birthday Take care Linda (Eagle, ID /prev Bothell, WA) - Original Message - From: Trudy OGILVIEmailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Tuesday, January 16, 2007 7:28 PM Subject: Re: RE: RE: [TMIC] lidocain infusions Frank, So do you live here in the states? or Montreal?? I am thinking about trying a pain management group. My neuro could really care less about the pain. Is cannabinoid the same as marijuana??? If I found out that marijuana helped neuropathic pain I would definitely try it??? I'm 60 and my group just missed the revolution so I have never tried it. I swore I would give a try on my 60th birthday but never did Sometimes it is hard for me to believe that in this day and age they can't come up with something to help this pain!!! How do we want to live our lives??? I am so tired of putting on the I'm doing just fine face ... truly after awhile no-one wants to hear about your problems anyway. So that's another good reason to be on this list you can vent, cry whatever at least we understand... Well, Frank, let me know when your birthday is I'll buy you a drink :) What's your favorite poison??? I do hope the lidocain infusions work for you... let us know!! Sorry if I sound like the twenty questions' lady... I know you have been on this list a long time and so I was just wondering about your TM life, etc... Trudy From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Trudy [EMAIL PROTECTED], tmic-list@eskimo.com Subject: Re: RE: RE: [TMIC] lidocain infusions Date: Tue, 16 Jan 2007 11:45:02 -0500 May I ask how do you function? Are you able to get around at all??? Did all this begin with TM??? Trudy, this all began with TM- C5 right spinal cord 6 mm lesion. It came on slowly over a week. Went to my PCP (primary doctor), he had no idea, as did the neuro who sent me for MRIs. MRI showed lesion and normal brain. My weakness and pain slowed me down. I kept eating. Prednisone helped my abdominal fat to start growing. slowly over the years my weight increased causing hypertension, hyperlipidemia, insulin resistance and obesity. my pain increased. I finally got to Dr. Kerr, put on meds to decrease pain, lower my lipids. Wound up at the pain center at Montreal General Hosp. where I was put on SATIVEX a cannabinoid under tongue spray. I function poorly, but I betcha their are many on the list who would trade with me. Take care F Emoticon1.gif Description: GIF image
RE: [TMIC] lidocain infusions
Frank, Is this similar to a lidocain patch?? They used that on me when I was in the hospital? I forgot about that it was so long ago... How long have you had TM and what has happened to you as a result? Trudy -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, January 14, 2007 11:42 AM To: Westgold; tmic-list@eskimo.com Subject: [TMIC] lidocain infusions michelle, The infusions consist of infusing 4 mg. per Kg. of body weight mixed in normal saline, over 30 to 40 minutes. This is an out patient proceedure. My first was in Montreal. The first infusion took 24 hours to work. I didn't feel anything unusual, but felt that my usual meds worked better. This increased effectiveness lasted about three weeks. Then it took two to three weeks to get in for my second infusion, mainly because I was in Maine, switching primary care doctors- my old one had retired. This infusion seemed to last about six weeks, but ended in the holiday season (lots of stress). My last infusion seemed to last only a day or two, but I was under lots of stress. I hope to have a fourth this week. They definitely help. I'd recommend them for anyone who hasn't any CVS disease F
Re: RE: [TMIC] lidocain infusions
Is this similar to a lidocain patch?? trudy, No, this is far more lidocaine, given much more quickly, I.V.. I'm a walking wounded, afflicted aug 2000; now with Brown-Sequard synd., Severe central pain, weakness on my left side with foot drop, chronic pain syndr., chronic fatigue syndr., metabolic syndr., season affective disorder, hyperuricemia- i think that does it! F
[TMIC] lidocain infusions
michelle, The infusions consist of infusing 4 mg. per Kg. of body weight mixed in normal saline, over 30 to 40 minutes. This is an out patient proceedure. My first was in Montreal. The first infusion took 24 hours to work. I didn't feel anything unusual, but felt that my usual meds worked better. This increased effectiveness lasted about three weeks. Then it took two to three weeks to get in for my second infusion, mainly because I was in Maine, switching primary care doctors- my old one had retired. This infusion seemed to last about six weeks, but ended in the holiday season (lots of stress). My last infusion seemed to last only a day or two, but I was under lots of stress. I hope to have a fourth this week. They definitely help. I'd recommend them for anyone who hasn't any CVS disease F
