Re: [TMIC] weird sensations
Morning All: Well it is day three of this vibrating feeling. I did not take Lyrica yesterday morning or this morning but continue to take it at night or I will never sleep. I wake up during the night feeling like I am going to bounce right off the bed. The only good thing is that it does not last as long as it was. I can now add tired all the time to what I am feeling but I am sure that is just from the lack of a good nights' sleep. I am beginning to feel worse and worse as each day passes. This is really messing with my head. Frank the reason I cannot see is a doctor and am not eligible for any type of disability, or medical care is because I am a Canadian who married an American in 1999 and only have permanent residency in the USA. I am not in Canada for 153 days a year so I am unable to have Canadian health care or claim disability. My husband is a contract worker in the States (only type of employment available right now) and health care through the company is so expensive and we do not get much coverage. An example of this is my TM was acting up and I tripped and banged my toe into the wall, it became so swollen I could not walk, since we had health coverage at the time Hubby took me in to Urgent Care, the Doctor took a look, ordered a x ray, and sent me home with a boot. About 2 weeks later we get the bill, this service cost $260.00 and we had to pay $190.00. So for paying over $450.00 a month for 6 months we still had no real difference in heath care. I am sooo lucky to have a family doctor in Canada who lets me pay for a visit so I can keep my medications up. Also I am so lucky to live not far from Canada that we can afford to go up there a few times a year to get my medications. I am really frustrated with the American system of health care. Being born and raised in Canada and living in the USA for ten years has really made me realize I had it so lucky in Canada. I get very mad at the commercials putting the Canadian Health Care system down. Yes we did have to wait a little longer for some tests but whenever I HAD to have a test I had it within a week. An example of this was with my Breast Cancer. I found a lump, got in to see my doctor within 3 days, within a week was at specialist and had all the tests done within another week and started on Chemo within a month. I was not charged anything. I did not have to dip into my savings, retirement fund or be billed ANYTHING. Even most of my medications were covered. All this for an extra cost through work of $87.00 a month for extended Health Care. I had a semi private coverage meaning I was only in a room with one other person while hospitalized as well as so many more benefits as eye and dental care. I am terrified right now concerning my husbands' and my heath. My husband has not seen a doctor in about 8 years because my health has taken up all of our benefits. We have eaten up most of our retirement fund due to this economy and trying to survive. We just get ahead of the game and then something happens (Hubby gets laid off, I get sick, I need meds, dog gets sick or our 11 year old car needs fixing) to set us back into the hole again. I laugh when they tell people with TM to avoid stress as it just seems to live with me. Right now my husband is trying to get a job in Canada so that at least he knows if I get really sick I will be taken care of. I am hoping he gets one there so that he can re-coup his 401K so that he can have some type of life when he retires. Maybe he should just divorce me and me move back to Canada and go on Social Assistance so as not to be this burden on him any longer. I love him more than life itself but it seems like the only solution for me here. Anyway maybe all this stress is why I am vibrating, who knows but the only thing I do know is I am scared of what is going on with me and really wish I was living back in Canada and covered. I would not even mind a month wait to get into a doctor just because I know I would not have to live on the street to pay for the treatments needed. Kathy who is frustrated, hurting, depressed and scared.. - Original Message - From: Jill Z To: LadyOwl Sent: Tuesday, September 15, 2009 6:43 AM Subject: Re: [TMIC] weird sensations Kathy, How are you now? Jill in Chicago --- On Mon, 9/14/09, LadyOwl k...@frontiernet.net wrote: From: LadyOwl k...@frontiernet.net Subject: [TMIC] weird sensations To: tmic-list@eskimo.com Date: Monday, September 14, 2009, 8:53 AM Hi all.. Haven't written in much but as of yesterday I have been very scared and nervous because of a weird sensation I have been getting.. I was on Face Book (my usual haunt) between 2 and 3 pm when my body began to vibrate. I was shaking from head to toe. Not a big shake but a very small one that even my husband
Re: [TMIC] weird sensations
Kathy, Apply for PUBLIC AID All the illegals get it!!! And they get our MEDICARE TOO! Take it from me...I work in a hospital. I don't know how it's done, but it can be done somehow. You cannot be denied healthcare yet and you deserve it. Just don't give them your SS#. Jill's two cents in Chicago --- On Tue, 9/15/09, LadyOwl1961 k...@frontiernet.net wrote: From: LadyOwl1961 k...@frontiernet.net Subject: Re: [TMIC] weird sensations To: tmic-list@eskimo.com Date: Tuesday, September 15, 2009, 10:26 AM Morning All: Well it is day three of this vibrating feeling. I did not take Lyrica yesterday morning or this morning but continue to take it at night or I will never sleep. I wake up during the night feeling like I am going to bounce right off the bed. The only good thing is that it does not last as long as it was. I can now add tired all the time to what I am feeling but I am sure that is just from the lack of a good nights’ sleep. I am beginning to feel worse and worse as each day passes. This is really messing with my head. Frank the reason I cannot see is a doctor and am not eligible for any type of disability, or medical care is because I am a Canadian who married an American in 1999 and only have permanent residency in the USA. I am not in Canada for 153 days a year so I am unable to have Canadian health care or claim disability. My husband is a contract worker in the States (only type of employment available right now) and health care through the company is so expensive and we do not get much coverage. An example of this is my TM was acting up and I tripped and banged my toe into the wall, it became so swollen I could not walk, since we had health coverage at the time Hubby took me in to Urgent Care, the Doctor took a look, ordered a x ray, and sent me home with a boot. About 2 weeks later we get the bill, this service cost $260.00 and we had to pay $190.00. So for paying over $450.00 a month for 6 months we still had no real difference in heath care. I am sooo lucky to have a family doctor in Canada who lets me pay for a visit so I can keep my medications up. Also I am so lucky to live not far from Canada that we can afford to go up there a few times a year to get my medications. I am really frustrated with the American system of health care. Being born and raised in Canada and living in the USA for ten years has really made me realize I had it so lucky in Canada. I get very mad at the commercials putting the Canadian Health Care system down. Yes we did have to wait a little longer for some tests but whenever I HAD to have a test I had it within a week. An example of this was with my Breast Cancer. I found a lump, got in to see my doctor within 3 days, within a week was at specialist and had all the tests done within another week and started on Chemo within a month. I was not charged anything. I did not have to dip into my savings, retirement fund or be billed ANYTHING. Even most of my medications were covered. All this for an extra cost through work of $87.00 a month for extended Health Care. I had a semi private coverage meaning I was only in a room with one other person while hospitalized as well as so many more benefits as eye and dental care. I am terrified right now concerning my husbands’ and my heath. My husband has not seen a doctor in about 8 years because my health has taken up all of our benefits. We have eaten up most of our retirement fund due to this economy and trying to survive. We just get ahead of the game and then something happens (Hubby gets laid off, I get sick, I need meds, dog gets sick or our 11 year old car needs fixing) to set us back into the hole again. I laugh when they tell people with TM to avoid stress as it just seems to live with me. Right now my husband is trying to get a job in Canada so that at least he knows if I get really sick I will be taken care of. I am hoping he gets one there so that he can re-coup his 401K so that he can have some type of life when he retires. Maybe he should just divorce me and me move back to Canada and go on Social Assistance so as not to be this burden on him any longer. I love him more than life itself but it seems like the only solution for me here. Anyway maybe all this stress is why I am vibrating, who knows but the only thing I do know is I am scared of what is going on with me and really wish I was living back in Canada and covered. I would not even mind a month wait to get into a doctor just because I know I would not have to live on the street to pay for the treatments needed. Kathy who is frustrated, hurting, depressed and scared.. - Original Message - From: Jill Z To: LadyOwl Sent: Tuesday, September 15, 2009 6:43 AM Subject: Re: [TMIC] weird sensations Kathy, How are you now? Jill in Chicago --- On Mon, 9/14/09, LadyOwl k...@frontiernet.net wrote: From: LadyOwl k...@frontiernet.net Subject
[TMIC] weird sensations
Hi all.. Haven't written in much but as of yesterday I have been very scared and nervous because of a weird sensation I have been getting.. I was on Face Book (my usual haunt) between 2 and 3 pm when my body began to vibrate. I was shaking from head to toe. Not a big shake but a very small one that even my husband could see from a few feet away. It felt almost like I had too much caffeine or something. I could hardly get out of my chair. My legs felt very heavy and I had this vibration going up and down them. Even my hands, arms and trunk had it. I made it to the couch with hubby right by my side because I was not able to control my legs as much as I usually am. They felt so heavy and thick like I was walking through water waist high and someone was giving me electrical shocks. I was hoping after walking a little bit the feeling would subside but it didn't. I went on the deck for a smoke ( okay I know I should not smoke but it is my only vice besides Face Book ) and had to step over the patio door bottom (can't think of the proper name right now) and had a very hard time lifting my feet over it and it is only a 1/4 to a 1/2 inch high. After about another 15 minutes we finally decided I should go lay down in bed. I stayed there till 7 pm until the vibrating settled down enough that I felt save enough and strong enough to walk to the living room. I kept getting this vibrating feeling come back strong for about 30 to 40 minutes then weaken off slowly the rest of the evening and now it seems to be starting up again today. Hubby is laid off right now and we have no health so no getting to a doctor for me. I am wondering if any of you have had this feeling and what you did about it? I am on 2 lyrica a day and my medication has not changed in well over a year (except when I had to take more Lyrica earlier this year). I am really hoping this feeling just resolves itself but am very interested if any of have had this feeling. Thanks Kathleen Moorhead Blaschko (as I am known on Face Book)
Re: [TMIC] weird sensations
Yes please.. this is really starting to bug me.. can't even trust myself to get into the shower even though I have a shower seat.. Thanks - Original Message - From: bgunny7...@aol.com To: k...@frontiernet.net Sent: Monday, September 14, 2009 8:58 AM Subject: Re: [TMIC] weird sensations I had the same reaction when I was on Lyrica. It may be that your body isn't used to the increase, or, it may be that your body has become accustomed to the dosage, and needs more. Want me to ask Doug?
RE: [TMIC] weird sensations
Kathy - It might take several days or longer for the Lyrica to get out of your body, since you have been taking it for awhile. I know I was taking a supplement I found on the internet for people with TM and it did a number on my liver. My doctor agreed I should stop and it may take several months for my body to rid itself of it. Once I stopped taking it, my liver finally went back to normal but it took awhile. Patti - S.E. Wisconsin From: LadyOwl [mailto:k...@frontiernet.net] Sent: Monday, September 14, 2009 10:55 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] weird sensations I did not take my lyrica this morning and body has already started reacting ... I really hate this.. feels like I am going to bounce right out of my chair.. Kathy - Original Message - From: roseofr...@aol.com To: k...@frontiernet.net ; tmic-list@eskimo.com Sent: Monday, September 14, 2009 10:38 AM Subject: Re: [TMIC] weird sensations Kathleen ~ I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window. :-) I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ~ Lynn
Re: [TMIC] weird sensations
I did not take my lyrica this morning and body has already started reacting ... I really hate this.. feels like I am going to bounce right out of my chair.. Kathy - Original Message - From: roseofr...@aol.com To: k...@frontiernet.net ; tmic-list@eskimo.com Sent: Monday, September 14, 2009 10:38 AM Subject: Re: [TMIC] weird sensations Kathleen ~ I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window. :-) I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ~ Lynn
Re: [TMIC] weird sensations
Kathleen ~ I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window. :-) I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ~ Lynn
Re: [TMIC] weird sensations
I've experienced the vibrating as well when I have too much Lyrica.? In fact, I can't even talk right as my bottom lip shakes and my tongue doesn't work right.? It's almost like drinking too much caffien.? Very weird feeling.? Perhaps its the combo of Lyrica and caffien.? Only time and patience clears it up. Laurie from Baltimore -Original Message- From: roseofr...@aol.com To: k...@frontiernet.net; tmic-list@eskimo.com Sent: Mon, Sep 14, 2009 11:38 am Subject: Re: [TMIC] weird sensations Kathleen ~ ?? I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window.? :-)? I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. ?? Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ?? ~ Lynn
Re: [TMIC] weird sensations
Kathy...do you take anything else other than the Lyrica...? Such as over-the-counter meds of any kind...? I'm just wondering if maybe the Lyrica could be reacting with something else you are taking. Apparently, since many of us have experienced this and are on different meds, it must have something to do with our compromised central nervous system. We must be on overdrive or something. ~ Lynn In a message dated 9/14/2009 8:55:15 A.M. Pacific Daylight Time, k...@frontiernet.net writes: I did not take my lyrica this morning and body has already started reacting ... I really hate this.. feels like I am going to bounce right out of my chair.. Kathy - Original Message - From: _roseofr...@aol.com_ (mailto:roseofr...@aol.com) To: _k...@frontiernet.net_ (mailto:k...@frontiernet.net) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Monday, September 14, 2009 10:38 AM Subject: Re: [TMIC] weird sensations Kathleen ~ I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window. :-) I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ~ Lynn
Re: [TMIC] weird sensations
Kathy, Do you think your pharmacist might be able to answer a few of your questions. I know that mine is very helpful. Catherine From: Patricia Cooley patticoo...@wi.rr.com To: LadyOwl k...@frontiernet.net; tmic-list@eskimo.com Sent: Monday, September 14, 2009 12:37:23 PM Subject: RE: [TMIC] weird sensations Kathy - It might take several days or longer for the Lyrica to get out of your body, since you have been taking it for awhile. I know I was taking a supplement I found on the internet for people with TM and it did a number on my liver. My doctor agreed I should stop and it may take several months for my body to rid itself of it. Once I stopped taking it, my liver finally went back to normal but it took awhile. Patti – S.E. Wisconsin From:LadyOwl [mailto:k...@frontiernet.net] Sent: Monday, September 14, 2009 10:55 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] weird sensations I did not take my lyrica this morning and body has already started reacting ... I really hate this.. feels like I am going to bounce right out of my chair.. Kathy - Original Message - From:roseofr...@aol.com To:k...@frontiernet.net ; tmic-list@eskimo.com Sent:Monday, September 14, 2009 10:38 AM Subject:Re: [TMIC] weird sensations Kathleen ~ I had the same reaction when I was taking Topamax. Felt like I was going to vibrate right off my bed and out the window. :-) I would just stay in bed until it passed. When I stopped taking the Topamax the vibrating stopped also. Gunny is probably right...it's probably your Lyrica. I would decrease my dosage and see what happens. ~ Lynn
