RE: [TMIC] meds from Canada
Cheryl my husband always got his meds from Canada before we had prescription coverage with Medicare. We were always satisfied with the quality and speed of delivery. The price was about ½ of the cost here in the USA. I have recommended Canada drugs to anyone who hits the donut hole or is close to it. Patti From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Friday, January 07, 2011 10:48 AM To: tmic-list@eskimo.com Subject: [TMIC] meds from Canada I just got my first med from Canada. It's a generic form of Diovan called valsartan,for high blood pressure. It also helps protect the kidneys (important because I'm also diabetic). It costs $70+14 for shipping for a 3 month supply. The first order has a $10 off coupon. The best part is by not using my insurance,I will save and not hit the 'donut hole' this year.The co-pay is the same that my insurance charges for a tier 1 drug. The drug is made in India. I just read the info on 2 other meds I get and 1 is made in India,and 1 in Israel. All the other meds I take are generic,except insulin. Cheryl
Re: [TMIC] meds from Canada
I second your opinions-quality is the same, costis much less. On Fri, Jan 7, 2011 at 7:02 AM, Patricia Cooley patticoole...@gmail.comwrote: Cheryl my husband always got his meds from Canada before we had prescription coverage with Medicare. We were always satisfied with the quality and speed of delivery. The price was about ½ of the cost here in the USA. I have recommended Canada drugs to anyone who hits the donut hole or is close to it. Patti *From:* rn11...@yahoo.com [mailto:rn11...@yahoo.com] *Sent:* Friday, January 07, 2011 10:48 AM *To:* tmic-list@eskimo.com *Subject:* [TMIC] meds from Canada I just got my first med from Canada. It's a generic form of Diovan called valsartan,for high blood pressure. It also helps protect the kidneys (important because I'm also diabetic). It costs $70+14 for shipping for a 3 month supply. The first order has a $10 off coupon. The best part is by not using my insurance,I will save and not hit the 'donut hole' this year.The co-pay is the same that my insurance charges for a tier 1 drug. The drug is made in India. I just read the info on 2 other meds I get and 1 is made in India,and 1 in Israel. All the other meds I take are generic,except insulin. Cheryl
Re: [TMIC] Meds
I was told that fatigue and pain were the 2 basic problems with TM.I don’t think anyone has yet come up with a good med for fatigue – if it gives you more energy, you usually can’t sleep at nite. Sure would like to see more research done on this. Janice From: CANDIS KALLEY Sent: Tuesday, December 07, 2010 9:32 AM To: tmic-list Subject: Re: [TMIC] Meds I tried the Amantadine 100 mgm AM PM with not affect. I've given up on trying to fight the fatigue! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Linda Egli le...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 10:19:41 AM Subject: Re: [TMIC] Meds Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Meds
I think that is pretty accurate for all of us.By mid day, we poop out. I get my “have to” stuff done in the morning, then rest. Janice From: Butcher, Bernie (SFS) Sent: Tuesday, December 07, 2010 10:36 AM To: CANDIS KALLEY ; tmic-list Subject: RE: [TMIC] Meds My Neuro suggested I do anything to save strength. Take showers at night, get an electric wheelchair Which I did, and I feel OK until about 3 PM, then I fall apart, every day. I try to plan activities early in the day, but it’s hard, for example: If I’m gong to a wedding, it’s always late in the day. On weekends, it’s a nap at 3, Saturday and Sunday. BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Tuesday, December 07, 2010 10:32 AM To: tmic-list Subject: Re: [TMIC] Meds I tried the Amantadine 100 mgm AM PM with not affect. I've given up on trying to fight the fatigue! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Linda Egli le...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 10:19:41 AM Subject: Re: [TMIC] Meds Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Meds
I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Meds
Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Meds
I tried the Amantadine 100 mgm AM PM with not affect. I've given up on trying to fight the fatigue! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Linda Egli le...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 10:19:41 AM Subject: Re: [TMIC] Meds Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
RE: [TMIC] Meds
My Neuro suggested I do anything to save strength. Take showers at night, get an electric wheelchair Which I did, and I feel OK until about 3 PM, then I fall apart, every day. I try to plan activities early in the day, but it's hard, for example: If I'm gong to a wedding, it's always late in the day. On weekends, it's a nap at 3, Saturday and Sunday. BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Tuesday, December 07, 2010 10:32 AM To: tmic-list Subject: Re: [TMIC] Meds I tried the Amantadine 100 mgm AM PM with not affect. I've given up on trying to fight the fatigue! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Linda Egli le...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 10:19:41 AM Subject: Re: [TMIC] Meds Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Meds
Iam just the opposite. Mornings are the worst for me. I try to schedule anything likes appointments, shopping, etc. about 1 PM or later. I have also figured out that if I overdo, I will pay for it the next day with horrible fatigue Linda E. East Texas From: Butcher, Bernie (SFS) bernie.butc...@honeywell.com To: CANDIS KALLEY cakal...@embarqmail.com; tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 10:36:41 AM Subject: RE: [TMIC] Meds My Neuro suggested I do anything to save strength. Take showers at night, get an electric wheelchair Which I did, and I feel OK until about 3 PM, then I fall apart, every day. I try to plan activities early in the day, but it’s hard, for example: If I’m gong to a wedding, it’s always late in the day. On weekends, it’s a nap at 3, Saturday and Sunday. BERNARD BUTCHER Honeywell Engineering 516-577-5868
Re: [TMIC] Meds question
Craig, Most neuropathic pain responds poorly to opiod medication. The pain is decreased by using: Tricyclic Antidepressant- Amitriptyline or Nortriptyline which I use ( 50 mg in AM, 100 mg at bed) Antiepyleptic: I use Phenobarbital 15 mg in AM, and 45 mg at bed Dextromethorphan 60 mg twice a day Cannabinoids: Medical Marijuana or SATIVEX ( If you live in Canada or the U.K.) Vitamin D: 1000 units a day I hope this helps. My Pain Doctor is one of the top Pain MD's in the world. Dr. Mark Ware is associated with McGill Universities' Montreal General Hospital's Pain Clinic I hope this helps Frank
RE: [TMIC] Meds question
And; Don't forget Lyrica, which is pregabalin, is terrific on nerve pain. It used to feel as if my skin were being torn off before I used Lyrica. Some persons do not tolerate the side effects of poor balance and some drowsiness, but compared to the side effects of many of the other alternatives it's not bad. I am professor of economics and do a lot of sitting and working and I did not see an increase in sleepiness as compared to before taking Lyrica. But I admit to drinking a lot of coffee to stay alert. By the way, friends, I have had to give up driving because the bouts of spasms and mild seizures have made it impossible now. They are in the back, shoulders and diaphragm, and leave me momentarily dazed and confused, and are sometimes brought on by just trying to speak. (What about continuing teaching duties at the college? Good question. I don't know how this will end.) Dalton _ From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Wednesday, August 04, 2010 9:00 AM To: Rev. Craig Crossman; tmic-list@eskimo.com Subject: Re: [TMIC] Meds question Craig, Most neuropathic pain responds poorly to opiod medication. The pain is decreased by using: Tricyclic Antidepressant- Amitriptyline or Nortriptyline which I use ( 50 mg in AM, 100 mg at bed) Antiepyleptic: I use Phenobarbital 15 mg in AM, and 45 mg at bed Dextromethorphan 60 mg twice a day Cannabinoids: Medical Marijuana or SATIVEX ( If you live in Canada or the U.K.) Vitamin D: 1000 units a day I hope this helps. My Pain Doctor is one of the top Pain MD's in the world. Dr. Mark Ware is associated with McGill Universities' Montreal General Hospital's Pain Clinic I hope this helps Frank
Re: [TMIC] Meds question
Don?t forget Lyrica, which is pregabalin Lyrica is either an antibiotic or an antidepressant. It probably is considerably more expensive than Nortriptyline or Phenobarbital. F
Re: [TMIC] Meds question
Frank is right about the ineffectiveness of the pain meds they are giving you- like barking up the wrong tree. I asked the members of this group to tell me what their doctors prescribed (and in what dosages) and shared the list with my DR. She put me on 75 mg lyrica 2x a day and gave me 100 mg amantadine (morning and noon) to counteract the drowsiness side effect and it has really made life bearable. Lyrica took some getting used to: I had nausea for a week and didn't get full effectiveness for 2 weeks but it was worth it. Mindy King we4king...@verizon.net On Aug 4, 2010, at 1:51 AM, Rev. Craig Crossman wrote: Does anyone else have any experience with taking Tramadol (a type of morphine I think) and/or hydrocodone for pain relief with TM? Are there any options anyone could suggest? I have been taking both for over a year in increasing doses, and I am now averaging eight to twelve Tramadol (50 mg) and two hydrocodone (5/500) every day but they no longer seem as effective as they were. I am also having to work with a primary care physician and nurse practitioner, neither of whom has any experience with TM, but they are all that are available in our community. The nearest neurologist is over two hours away so I do not get to consult with her very often. It is a pain to have to “educate” my providers, but it seems to be the only choice at this time. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Meds question
Hi Akua, I live in an area without any transportation; no bus,taxi,nothing. I do have a sister and brother in law that take me to appts,and my youngest daughter usually does my grocery shopping. When I first got tm and was in rehab.it was hard for the staff to understand no buses or taxis. I feel especially bad for you because now that you cancelled the dr appt,she probably will not renew the script. You'll be lucky if you can even get a refill. Do you have a pcp that will order it for you? Mine orders all my meds,and I haven't seen a neuro in years. I take baclofen 30 mg 2x a day for spasms;no other meds for tm symptoms,just meds for high bp and diabetes. I wish you well. Cheryl in Easthampton,MA. --- On Wed, 8/4/10, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Meds question To: tmic-list@eskimo.com Date: Wednesday, August 4, 2010, 5:15 PM I take just one thing for nerve pain and well being and that's low dose naltrexone. I was without it for a week, because my neurologist refused to extend my prescription without seeing her. Last time I saw her in April of 09, she did nothing for me and she charged about $475. Her office is about a half a mile away and I live in a town with no paratransit -- there's no way fro me to get to the office. There was once an occasional schedule a ride to doctor service, but that has disappeared (another long sad story). Anyway I got a bit exercised with the staff and said if she made house calls, I was ready to see her, but until or unless they could arrange transportation--- after all she is the neurologist and should understand about being paralyzed and in a wheelchair-- couldn't they just call in my script. they did, finally and set up an appointment for tomorrrow which I've just had to cancell because there is no way for me to get there. All this by way of saying I wasn't sure what it did ( I had forgotten) until i was without it again. It's been hard to regulate body temperature, I felt stabbing pains in my behind and pressure in my legs, like tubes being squeezed and stomped on--- of course this is all from the inside out, as I cannot feel touch. The script arrived Monday, so I'm just getting back to equilibrium again. --
Re: [TMIC] Meds question
Craig, I have taken Gabapentin/Neurontin since Sept 03, when I got TM. I take 2400 mg in 4 divided doses at 7am, noon, 5pm, 10pm (or thereabouts). This helps with the pain of burning/pins/needles feelings. I did try to switch to the Lyrica as a replacement for the Gabapentin about 2 years ago however I was in the 7% (according to my neuro) that the swelling of the legs and feet was a problem. For the spasms I have taken Baclofen 40mg in 4 divided doses every day. I started out at 80mg back in 03 but have managed to reduce it. I know Frank doesn't care for these meds. However, we are each different in our chemical makeup and require different meds. I was told a long time ago through the TM Forum that these two meds were the first ones tried. Hope this info helps you. Heather in Calgary - Original Message - From: Rev. Craig Crossman To: tmic-list@eskimo.com Sent: Tuesday, August 03, 2010 11:51 PM Subject: [TMIC] Meds question Does anyone else have any experience with taking Tramadol (a type of morphine I think) and/or hydrocodone for pain relief with TM? Are there any options anyone could suggest? I have been taking both for over a year in increasing doses, and I am now averaging eight to twelve Tramadol (50 mg) and two hydrocodone (5/500) every day but they no longer seem as effective as they were. I am also having to work with a primary care physician and nurse practitioner, neither of whom has any experience with TM, but they are all that are available in our community. The nearest neurologist is over two hours away so I do not get to consult with her very often. It is a pain to have to educate my providers, but it seems to be the only choice at this time. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Meds question
Cheryl, does your amount of baclofen you take make you sleepy during the day? Janice From: rn11...@yahoo.com Sent: Wednesday, August 04, 2010 4:27 PM To: Akua Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Meds question Hi Akua, I live in an area without any transportation; no bus,taxi,nothing. I do have a sister and brother in law that take me to appts,and my youngest daughter usually does my grocery shopping. When I first got tm and was in rehab.it was hard for the staff to understand no buses or taxis. I feel especially bad for you because now that you cancelled the dr appt,she probably will not renew the script. You'll be lucky if you can even get a refill. Do you have a pcp that will order it for you? Mine orders all my meds,and I haven't seen a neuro in years. I take baclofen 30 mg 2x a day for spasms;no other meds for tm symptoms,just meds for high bp and diabetes. I wish you well. Cheryl in Easthampton,MA. --- On Wed, 8/4/10, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] Meds question To: tmic-list@eskimo.com Date: Wednesday, August 4, 2010, 5:15 PM I take just one thing for nerve pain and well being and that's low dose naltrexone. I was without it for a week, because my neurologist refused to extend my prescription without seeing her. Last time I saw her in April of 09, she did nothing for me and she charged about $475. Her office is about a half a mile away and I live in a town with no paratransit -- there's no way fro me to get to the office. There was once an occasional schedule a ride to doctor service, but that has disappeared (another long sad story). Anyway I got a bit exercised with the staff and said if she made house calls, I was ready to see her, but until or unless they could arrange transportation--- after all she is the neurologist and should understand about being paralyzed and in a wheelchair-- couldn't they just call in my script. they did, finally and set up an appointment for tomorrrow which I've just had to cancell because there is no way for me to get there. All this by way of saying I wasn't sure what it did ( I had forgotten) until i was without it again. It's been hard to regulate body temperature, I felt stabbing pains in my behind and pressure in my legs, like tubes being squeezed and stomped on--- of course this is all from the inside out, as I cannot feel touch. The script arrived Monday, so I'm just getting back to equilibrium again. --
RE: [TMIC] meds
Hi Tobe - I have been on Ampyra for 5 days. I saw improvement after 2 days (unless it's just wishful) I can walk faster (with walker, of course), and can lift my good leg higher. my neuro says it will take 2 weeks to kick in fully. BERNARD BUTCHER Long Island From: T Kanon [mailto:sseco...@yahoo.com] Sent: Tuesday, May 04, 2010 6:46 PM To: tmic-list@eskimo.com Subject: [TMIC] meds Hello Everyone, I went to see my neuro today and he suggested I take AMPYRA He said it helps with balance and walking speed. Has anyone taken it or heard of it? Also has anyone taken altitude medication for trips to very high places? How did you do on them? Thanks again as always Tobe Brooklyn NY
RE: [TMIC] meds
Hi Rob - yes - my voice has gotten raspy, like it did when I was taking IV steroids, some sleeplessness, some flushing So far, I'd say the benefits outweigh the side effects I'm ready to attempt climbing stairs BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Robert Pall [mailto:rp...@neillsupply.com] Sent: Wednesday, May 05, 2010 8:11 AM To: Butcher, Bernie (SFS); T Kanon; tmic-list@eskimo.com Subject: RE: [TMIC] meds Bernie: Have you noticed any side effects? Rob in New Jersey From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Wednesday, May 05, 2010 7:59 AM To: T Kanon; tmic-list@eskimo.com Subject: RE: [TMIC] meds Hi Tobe - I have been on Ampyra for 5 days. I saw improvement after 2 days (unless it's just wishful) I can walk faster (with walker, of course), and can lift my good leg higher. my neuro says it will take 2 weeks to kick in fully. BERNARD BUTCHER Long Island From: T Kanon [mailto:sseco...@yahoo.com] Sent: Tuesday, May 04, 2010 6:46 PM To: tmic-list@eskimo.com Subject: [TMIC] meds Hello Everyone, I went to see my neuro today and he suggested I take AMPYRA He said it helps with balance and walking speed. Has anyone taken it or heard of it? Also has anyone taken altitude medication for trips to very high places? How did you do on them? Thanks again as always Tobe Brooklyn NY
RE: [TMIC] Meds
Gunny, Isn't DeWitt's pills a Diuretic Stimulant for the Kidneys? I can see how that could help some pain but only if it is related to kidney problems or some type of UTI. Larry in Oklahoma who has had his share of UTI's From: [EMAIL PROTECTED]: Sat, 26 Jan 2008 16:44:14 -0500To: [EMAIL PROTECTED]: [TMIC] Meds Hoh; I was listening surreptitiously to a conversation my old girl was having with her granddaughter about back pain. Guess what, I have it big time around the prirformis muscles. Those are the ones that sit right above le butt, and start to run up the spine. Anyhoo, My wife said her Uncle Smiley swore by something called DeWitt's Pills. I went and got some at the drug store, $4.95 for 12. I took two as directed, and lo and behold, after 12 years the pain subsided.. Now, I'm not saying this is a cureall, but after many presccription drugs, ointments and the like, these pills finally did something. Ya might pee a little blue from time to time but I'll take that over the pain. Enjoy. Gunny Who's never won? Biggest Grammy Award surprises of all time on AOL Music.
Re: [TMIC] meds
I took Avinza a while back and had a terrible reaction. Actually, it scared the sh-t out of me. I think what happened was that I had been on those patches for pain and I didn't get all of that out of my system before starting the Avinza. I can't remember if I kept taking it or whether I flushed it. I take hydrocodone up to 4x a day and muscle relaxers as most of my pain is in my back. Hildred in NC TM since '76 ** See what's free at http://www.aol.com.
Re: [TMIC] meds
In a message dated 5/6/2007 6:22:00 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I took Avinza a while back and had a terrible reaction. Actually, it scared the sh-t out of me. I think what happened was that I had been on those patches for pain and I didn't get all of that out of my system before starting the Avinza. I believe that can happen with the patches. I was wearing them and was given a painkiller called Nubain or Nubane, and had the worst reaction imaginable. I could not wait until it was out of my system, kept screaming for the Dr.s to take it out of me, but there was nothing to be done. I was using extremely unladylike words and shouting at the top of my lungs. I truly thought I was going to die and now, after five years of TM...Whew! Peace and Prayers, Jude ** See what's free at http://www.aol.com.
Re: [TMIC] meds
Rick and Jenna I cringed when I read that Rick is experiencing more pain after eight years, then was relieved by Jenna's note that she isn't taking any pain meds after having bad pain in the past. Wow, defeat and hope in just a minute of reading. Rick, I'm sorry to read of your increased pain and hope you get the answers you are looking for. Patti - Michigan Jenna Stentz [EMAIL PROTECTED] wrote: = Hi Rick, I tried it years ago...my body craved it so bad I couldn't wait until the time I was supposed to take it next. I wanted more and more of it. So I stopped taking it. So if your arn't having that porblem, I am happy for you. I am thankful that I don't reqire any pain meds now because those were really hard years. I know it is hard to live with that much pain. Good luck... Jenna [EMAIL PROTECTED] wrote: Hello friends, I was wondering if anyones neuro has prescribed Avinza(morophine sulfate time released beads).I recently was given a prescription of this. Has anyone else ever tried them. I have always been affraid of the addictiveness of morohpine, but with the type of pain that I have my neuro suggested that I try them. I have been on them now for 2 months and have enjoyed having less pain. My neuro warned me of the side effects and made it very clear that if I stop taking them, without his knowledge that a morophine withdrawal can be risky. I don't know if anyone of you have the same type of pain I have because this type pain is so hard to describe.Has anyone of you had pain that required such a strong drug to have to go to this far. I have had this spinal cord afliction now for 8 years and It seems to get worse as time goes on. I have alot of faith in my neuro and I hate that this pain has gotten so uncontrolling. I do not recommend this drug for mild pain and I don't end! orce it either. I am merely wanting to get some feedback. Thanks Rick - Ahhh...imagining that irresistible new car smell? Check outnew cars at Yahoo! Autos.
Re: [TMIC] meds
Hi Rick, I tried it years ago...my body craved it so bad I couldn't wait until the time I was supposed to take it next. I wanted more and more of it. So I stopped taking it. So if your arn't having that porblem, I am happy for you. I am thankful that I don't reqire any pain meds now because those were really hard years. I know it is hard to live with that much pain. Good luck... Jenna [EMAIL PROTECTED] wrote: Hello friends, I was wondering if anyones neuro has prescribed Avinza(morophine sulfate time released beads).I recently was given a prescription of this. Has anyone else ever tried them. I have always been affraid of the addictiveness of morohpine, but with the type of pain that I have my neuro suggested that I try them. I have been on them now for 2 months and have enjoyed having less pain. My neuro warned me of the side effects and made it very clear that if I stop taking them, without his knowledge that a morophine withdrawal can be risky. I don't know if anyone of you have the same type of pain I have because this type pain is so hard to describe.Has anyone of you had pain that required such a strong drug to have to go to this far. I have had this spinal cord afliction now for 8 years and It seems to get worse as time goes on. I have alot of faith in my neuro and I hate that this pain has gotten so uncontrolling. I do not recommend this drug for mild pain and I don't end! orce it either. I am merely wanting to get some feedback. Thanks Rick - Ahhh...imagining that irresistible new car smell? Check outnew cars at Yahoo! Autos.
RE: [TMIC] Meds
Barney, Have never heard of it... but I would like to mention it my doctor... what other medications do you take?? Trudy -Original Message- From: Butcher, Bernie [SFS] [mailto:[EMAIL PROTECTED] Sent: Monday, April 23, 2007 7:46 AM To: Trudy ; Gunny; Tmic-list@eskimo.com Subject: RE: [TMIC] Meds Anyone ever get prescribed Amantadine? My Neuro prescribed it for me to help with my fatigue problems. I looked it up on line, it mentioned that it is a drug for Parkinson's disease. I am taking 100mg twice per day, Monday - Friday. It does seem to help with fatigue, and also makes my legs feel lighter(?). I have not seen any discussions of it here on this site. Anyone ever hear of it? BARNEY BUTCHER -Original Message- From: Trudy [mailto:[EMAIL PROTECTED] Sent: Sunday, April 22, 2007 9:29 AM To: 'Gunny'; Tmic-list@eskimo.com Subject: RE: [TMIC] Meds Gunny, I tried Lyrica about a year ago, did not like the side effects... then decided I probably did not give it a chance so tried it again. I have been on two 75mg. twice a day. I've decided I don't like it at all. It makes my legs so numb that I cannot feel them. My feet I think I've picked them up to walk but I haven't so I trip. The pain is definitely less but from my knees down I feel as tho I have two blocks of heavy cement. So, after 2 1/2 months I have decided to go back to Neurontin. I am also on Cymbalta. I started both meds at the same time so I don't know if the Cymbalta is helping or not. It has helped with my depression, not sure about pain? So I'm going to slowly go off the lyrica and stay on Cymbalta at least for awhile. Now I know others on the list really like lyrica... like any med it works for some and not for others. You have to give a try for yourself. Let us know how it goes... What were some of your side effects of Cymbalta?? Trudy -Original Message- From: Gunny [mailto:[EMAIL PROTECTED] Sent: Saturday, April 21, 2007 4:37 PM To: Tmic-list@eskimo.com Subject: [TMIC] Meds Hey people: I tried that Cymbalta for Neuropathic pain, it worked but has horendous side effects. With me anyway, gives me the GI's big time. What's the scoop on Lyrica? PeoplePC Online A better way to Internet http://www.peoplepc.com
RE: [TMIC] Meds
I know that I'm on a low dosage. One 75mg twice a day. I did good on Neurontin, but like the Lyrica better. Less times a day that you need to take it it's a smaller pill. Todd in CC, TX Trudy [EMAIL PROTECTED] wrote: Just wondering, for those of you who take Lyrica what dosage do you take each day? Thanks Trudy I am on two 75mg. twice a day...
RE: [TMIC] Meds
Gunny, I tried Lyrica about a year ago, did not like the side effects... then decided I probably did not give it a chance so tried it again. I have been on two 75mg. twice a day. I've decided I don't like it at all. It makes my legs so numb that I cannot feel them. My feet I think I've picked them up to walk but I haven't so I trip. The pain is definitely less but from my knees down I feel as tho I have two blocks of heavy cement. So, after 2 1/2 months I have decided to go back to Neurontin. I am also on Cymbalta. I started both meds at the same time so I don't know if the Cymbalta is helping or not. It has helped with my depression, not sure about pain? So I'm going to slowly go off the lyrica and stay on Cymbalta at least for awhile. Now I know others on the list really like lyrica... like any med it works for some and not for others. You have to give a try for yourself. Let us know how it goes... What were some of your side effects of Cymbalta?? Trudy -Original Message- From: Gunny [mailto:[EMAIL PROTECTED] Sent: Saturday, April 21, 2007 4:37 PM To: Tmic-list@eskimo.com Subject: [TMIC] Meds Hey people: I tried that Cymbalta for Neuropathic pain, it worked but has horendous side effects. With me anyway, gives me the GI's big time. What's the scoop on Lyrica? PeoplePC Online A better way to Internet http://www.peoplepc.com
RE: [TMIC] Meds
I am on Lyrica, 75mg 2 x a day. I am not so sure it helps, but I am not yet willing to do without it! Janet -Original Message- From: Trudy [mailto:[EMAIL PROTECTED] Sent: April 22, 2007 6:44 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Meds Just wondering, for those of you who take Lyrica what dosage do you take each day? Thanks Trudy I am on two 75mg. twice a day... __ NOD32 2210 (20070422) Information __ This message was checked by NOD32 antivirus system. http://www.eset.com
Re: [TMIC] Meds
Gunny, I tried Lyrica and it had bad side effects with me. I've been planning to ask my doctor for some Cymbalta. Maybe you'll have good luck with Lyrica. Kevin Gunny wrote: Hey people: I tried that Cymbalta for Neuropathic pain, it worked but has horendous side effects. With me anyway, gives me the GI's big time. What's the scoop on Lyrica? PeoplePC Online A better way to Internet http://www.peoplepc.com
Re: [TMIC] Meds
I tried it and it made my hands/feet swell and I had a nervous jumping in my arm. For me it also didn't do much for the pain so I went back to neurontin Ella ** See what's free at http://www.aol.com.
Re: [TMIC] meds for burning in the feet?/Banding too
http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.htmlhere is the list archives and the talks about lyrica and nuerontin are there The neurontin is supposedto help with that too, but like I have said I only take it at night and live with the sensations during the day so I can *listen* to my body, I don't want to mask it during the day. I don't have pain so, its prolly easier I guess...I do have stiffness and wobble some days more than others, and then the vibrations come and go and I just go with it. I stretch a little more or walk a little more. I also take microlatin for my joints 2x a day. Krissy who is copying Alton and letting everyone know she takes a *few* vitamins and supplem! ents during the day and always has...[EMAIL PROTECTED] wrote:Hi allI thought I had saved the post on the burning of the feet but I can't find it any where. I have a few on my other group that are having problems with it. If a few of you that have the burning problem in the feet could let me know what meds you take. Thanks a lot and hope you are all feeling better today. Love to all Sally NC Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze.
Re: [TMIC] meds for burning in the feet?
Claudia mentions, 'good luck with your chiropractor." I was told not to go to the chiro, although I normally did, and started feeling like I should again, just before this happened (TM). But I put it off, and couldn't help but wonder if it might not have been better if I had! But I'm afraid to go now, after the doctor saying not to. Anyone have any experience going to the chiro AFTER getting TM? Sally
