eat role model..hs lots of health stuff...older age mostly...but
> wants to walk and play and snooze every day..still eats well..and loves her
> treats.I love her so.
>
> love and prayers to all my colleagues and friends here...too many names to
> list by now
>
> Beth
>
-Original Message-
From: ICANDOALLTTC via CMLHope <_cmlhope@googlegroups.com_
(mailto:cmlhope@googlegroups.com) >
To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Thu, Oct 9, 2014 5:54 am
Subject: Re: [CMLHope] Re: Sprycel side effects Beth
Hi Be
e.
> I miss you all. Still navigating back issues so not on line much at all these
> days...but keep everyone in my thoughts and prayers. My CML is in good
> control and I count my blessingsincluding all of you...take good care.
> warm regards, a 18
> s.to all of you (
e
Sent: Fri, Oct 10, 2014 4:21 am
Subject: Re: [CMLHope] Re: Sprycel side effects Beth
Hi Beth.
I developed insomnia soon after I started Tasigna about two years ago.
For me the answer was 0.5mg Lorazepam (Ativan) before bed time.
If you haven't tried this already, it may be worth a shot.
Thank you Greenie and Susan for your thoughts...I will ask my doc. Love to all
out there. Beth
-Original Message-
From: 'Susan Zimmerman' via CMLHope
To: cmlhope
Sent: Fri, Oct 10, 2014 11:15 am
Subject: Re: [CMLHope] Re: Sprycel side effects Beth
Hi Beth,
Be care
..too many names to
> list by now!!!!
>
> Beth
>
>
> -Original Message-
> From: ICANDOALLTTC via CMLHope
> To: cmlhope
> Sent: Thu, Oct 9, 2014 5:54 am
> Subject: Re: [CMLHope] Re: Sprycel side effects Beth
>
> Hi Beth and so glad to hear from you and that
her so.
>
> love and prayers to all my colleagues and friends here...too many names to
> list by now
>
> Beth
>
>
> -Original Message-
> From: ICANDOALLTTC via CMLHope >
> To: cmlhope >
> Sent: Thu, Oct 9, 2014 5:54 am
> Subject: Re: [CMLHope] Re
TTC via CMLHope
To: cmlhope
Sent: Thu, Oct 9, 2014 5:54 am
Subject: Re: [CMLHope] Re: Sprycel side effects Beth
Hi Beth and so glad to hear from you and that you are doing well. It is good
to hear that you are still on Sprycel and doing good. I am on 100 mgs daily
and so far, no PE.
Ble
nd watch; be utterly astounded! For I will work
> a work in your days which you would not believe, though it were told you."
> Hab. 1:5
>
>
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> Sent: Thu, Oct 9, 2014 8:49 am
> Subject: Re: [CMLHope
your days which you would not believe, though it were told you." Hab.
1:5
-Original Message-
From: Marty Gartenberg
To: cmlhope
Sent: Thu, Oct 9, 2014 8:49 am
Subject: Re: [CMLHope] Re: Sprycel side effects marty
And a very good morning to you Jeannie,
I hope that your do
back issues so not on
> line
> >> much at all these days...but keep everyone in my thoughts and prayers.
> My
> >> CML is in good control and I count my blessingsincluding all of
> >> you...take good care. warm regards, a 18
> >> s.to all of you (
trol and I count my blessingsincluding all of
>> you...take good care. warm regards, a 18
>> s.to all of you ( marty still prayng for a transplant..for
you..)
>> Beth
>>
>>
>> -Original Message-
>> From: LearnToBallroomDanceOnline.
for you..)
Beth
-Original Message-
From: LearnToBallroomDanceOnline.com
To: cmlhope ; pkshaub
Sent: Fri, Sep 19, 2014 11:23 am
Subject: Re: [CMLHope] Re: Sprycel side effects
Hi Peter,
While it is true that many develop PE while on Sprycel; the upside is that
the PE of
5
-Original Message-
From: Myvety2k via CMLHope
To: cmlhope
Sent: Mon, Sep 22, 2014 8:19 am
Subject: Re: [CMLHope] Re: Sprycel side effects
Marty, I hoping all goes well for you on the second surgery I know this can't
be the must fun thing that you want to go through at this point.
t; with everyone. I miss you all. Still navigating back issues so not on line
>> much at all these days...but keep everyone in my thoughts and prayers. My
>> CML is in good control and I count my blessingsincluding all of
>> you...take good care. warm regards, a 18
>> s..
for a transplant..for you..)
> Beth
>
>
> -Original Message-
> From: LearnToBallroomDanceOnline.com
> To: cmlhope ; pkshaub
> Sent: Fri, Sep 19, 2014 11:23 am
> Subject: Re: [CMLHope] Re: Sprycel side effects
>
> Hi Peter,
>
> While it is true that many develop
count my blessingsincluding all of
> you...take good care. warm regards, a 18
> s.to all of you ( marty still prayng for a transplant..for you..)
> Beth
>
>
> -Original Message-
> From: LearnToBallroomDanceOnline.com
> To: cmlhope ; pkshaub
> Sent:
Message-
From: LearnToBallroomDanceOnline.com
To: cmlhope ; pkshaub
Sent: Fri, Sep 19, 2014 11:23 am
Subject: Re: [CMLHope] Re: Sprycel side effects
Hi Peter,
While it is true that many develop PE while on Sprycel; the upside is that the
PE often coincides with PCRU!
And unfortunately
Thanks Jeff and great news!
Jeanie<3
In a message dated 9/19/2014 3:19:21 P.M. Eastern Daylight Time,
jj.john...@sympatico.ca writes:
When I had PE several times I was on diuretics after they found it. Doctor
had me take diuretics for a some time when on sprycel. It does reduce the
flui
Hi there, Doctors all have different opinions. My onc told me the last
thing I needed to worry about was PE, so go figure! I do worry about it
though.
Wouldn't hurt to take it if you have the PE because I take it when I think
I am retaining water. I have an ongoing prescription for lasix
Hi all,
I have been on Sprycel for 5 years this month. I have never had PE and
it was the only drug that put me in remission. I went through Gleevec and
Tasigna for about 5 years.
I have had other issues though and sinus headaches with migraines is one of
the main ones. The jaw problem st
When I had PE several times I was on diuretics after they found it. Doctor had
me take diuretics for a some time when on sprycel. It does reduce the fluid.
It was just a prolonged problem and doctor did not like reducing or stopping
the sprycel that often. So now I am off it, and on Bosulif now
Interesting Jeanie, my oncologist says that while the diuretics help with
overall water retention, it does not remove the fluid in the pleura.
h...?
On Fri, Sep 19, 2014 at 9:06 AM, ICANDOALLTTC via CMLHope <
cmlhope@googlegroups.com> wrote:
> Yes they do treat it with diuretics. Here is an
Hi Peter,
While it is true that many develop PE while on Sprycel; the upside is that
the PE often coincides with PCRU!
And unfortunately diuretics do not reduce the fluid that actually is in the
sac that surrounds your lungs. For me it usually takes a break from
Sprycel; I know that many people a
Yes they do treat it with diuretics. Here is an article on it. Depends on
your health.
http://emedicine.medscape.com/article/299959-medication
Jeanie<3
In a message dated 9/19/2014 6:54:43 A.M. Eastern Daylight Time,
pksch...@gmail.com writes:
>From what I have read here and elsewhere, it
>From what I have read here and elsewhere, it seems to me that Sprycel will
definitely cause PE, it is only a question of WHEN, not IF.
For this reason, I have avoided this drug like the plague. Currently,
Tasigna is keeping at a 3.2 log reduction, which is a sub-optimal response.
My doctor keeps
Folks, just for clarification, the type of lung abnormalities seen in this
report, and what they think I have, are NOT plural effusion. Plural
effusion is fluid outside the lungs, and can be spotted on x-ray at all but
the earliest stages. The type of lung abnormalities referred to in the
rep
I am on Sprycel and had to have a pleural effusion. My onc said it was
related to the Sprycel. He cut the dosage and I haven't had anymore trouble
with it but he has me take an xray on my routine visits now.
On Wednesday, February 12, 2014 11:32:53 AM UTC-6, peg wrote:
>
> Hey Jeanie,
>
> I am t
o: cmlhope@googlegroups.com
Sent: Tuesday, December 17, 2013 10:24 AM
Subject: [CMLHope] Re: Sprycel and Musculoskeletal pain
Hi Michelle,
Sorry I didn't see this post until now, been down my own road for a while.
You are right...Sprycel can cause pain! This was my entire pro
Hi Michelle,
Sorry I didn't see this post until now, been down my own road for a while.
You are right...Sprycel can cause pain! This was my entire problem with
sprycel. They are absolutely clear that it triggered fibromyalgia in me.
I also believe that it targets weakened points, such as a
answer for me than meds. Praying for
your continued remission and all to go well for you.
Blessings,
Susan F. Zimmerman
-Original Message-
From: Richard H
To: cmlhope
Sent: Sun, Nov 24, 2013 11:41 pm
Subject: [CMLHope] Re: sprycel questions
Sorry to hear you are having problems
Sorry to hear you are having problems with the different TKIs. You have
mot mentioned if you where ever undetectable. I was on and off Gleevec for
6 months proving the Gleevec was the cause low hmg counts and having have
transfusions every 3 weeks. My ONC did his research and agreed I could g
Sent: Mon, Oct 14, 2013 7:43 am
Subject: [CMLHope] Re: Sprycel to Tasigna after three years
Hi All,
Thanks for the responsein TKI treatment change is always a scarey
thing...the devil we know vs the one we don't!But, the side effects during
three years on
Sprycel were gross for me
Hi Peg,
Tasiga didn't help me at all. I had to have transfusions whole on it, and
wish I had never even gone on it. After being put in the hospital for
blood cleansing,
I finally talked my onc of that time to put me on Sprycel. It worked for
me and I reached PCUR in 3-5 months.
I have the
Hi All,
Thanks for the responsein TKI treatment change is always a scarey
thing...the devil we know vs the one we don't!But, the side effects
during three years on
Sprycel were gross for me, and literally put me in bed for 20 hours after
each dose. It was for that reason that we star
Hi Peg.
I switched from Gleevec to Tasigna two years ago. My life has been a
rollercoaster ever since. In my case, the adverse reactions from Tasigna
are much more severe than from Gleevec. On Gleevec I only had the muscle
cramps, the chilly willies and some tiredness. Three months after switchi
Hi Kelly, glad to read about your good news.
greenie
In a message dated 10/4/2012 10:57:51 P.M. Eastern Daylight Time,
richard1huff...@comcast.net writes:
On Saturday, September 29, 2012 9:15:49 AM UTC-5, kellyelise wrote:
Hi folks!
It's been awhile since I last posted...but, I had s
Hi Kelly,
I'm so happy to hear that everything is going so well for you.
18's, (symbol for life)
Marty
On Thu, Oct 4, 2012 at 10:57 PM, Richard H wrote:
>
> On Saturday, September 29, 2012 9:15:49 AM UTC-5, kellyelise wrote:
>>
>> Hi folks!
>> It's been awhile since I last posted...but, I had
On Saturday, September 29, 2012 9:15:49 AM UTC-5, kellyelise wrote:
>
> Hi folks!
> It's been awhile since I last posted...but, I had such good news, I had to
> share! Some of you might remember that I developed a severe case of
> pulmonary hypertension. My docs were in disagreement as to the c
Thanks everyone for your good wishes!! It has been a long haul, that's for
sure. Patrick, I'm sorry, I screwed up - I am on 200 mg a day of Tasigna. 1
capsule once a day.
Kelly
On Saturday, September 29, 2012 10:15:49 AM UTC-4, kellyelise wrote:
>
> Hi folks!
> It's been awhile since I last pos
No, I live in the heartland (lol) - Ohio. So far, I don't have C-PAP
or require home oxygen. My resting pulse ox on room air at last visit
was 98% - so, that's fantastic compared to when I was first admitted.
Any information you can provide would be greatly appreciated!!
Thank you!!
Kelly
On Feb
Hi, I was told that my pressures are over 100I really don't know
what that means, but, my pulmonologist told me I am very, very sick.
My condition has improved dramatically with the onset of the Remodulin
pump. I don't like the pump, but, I don't have home oxygen, so, I
guess I should be gratef
Yes let's us all pray for a cure in the near future.
These drugs can get scary.
Blessings,
Jeanie<3
In a message dated 2/26/2011 12:21:20 P.M. Pacific Standard Time,
powellfamil...@yahoo.com writes:
Oh wow! My daughter has PAH and it is a very scary diagnosis. She
has PAH secondary to a
Hi Kelly, I know what you mean. I ask my onc about the PE and how I would
know I had it and he said I would know but he didn't explain it. He is one
of those doctors who doesn't think his patients want to know anything but
I want to know everything.
I take Lasix occasional but don't seem to
Kelly,
Do you live at high altitude? One thing that can help is lower
altitude. We live in a low altitude, but know someone whose child
needed continuous O2 in Colorado, but after moving to a lower
altitude, did not need that anymore and disease hasn't progressed.
Feel free to contact me if you h
Oh wow! My daughter has PAH and it is a very scary diagnosis. She
has PAH secondary to a congenital heart defect. She also has sleep
apnea, which has exaccerbated her pulmonary artery pressures. May I
ask what your pulmonary artery pressures are? My daughter's pulmonary
artery pressure is dou
Hi Jeanie:
My EKGs were okay, too. They only noticed a problem on an
echocardiogram. They put me on Demadex and Aldactone (diuretics) and I
lost 25 lbs. in 15 days! I felt great after that. I thought that cured
the problem, but I was wrong. Truthfully, this kind of snuck up on me.
I had no idea I w
Here is an interesting link relating TKIs to CML
http://www.asco.org/ascov2/Meetings/Abstracts?&vmview=abst_detail_view&confID=74&abstractID=48400
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subsc
Hi everyone-my onc told me tylenol was ok to take while on Sprycel.
If you take advil, make sure you take it with food.
It will burn your tummy just like aspirin.
Good luck and blessings to all.
Jeanie<3
In a message dated 12/14/2009 10:41:17 A.M. Pacific Standard Time,
tina...@gmail.com write
I was told not to take Tylenol with either the Gleevec or the Sprycel.
I was told I can take NSAIDs (ibuprofen, Advil, etc.). I rarely took
Tylenol before the CML because a friend went to Europe on vacation and
died unexpectedly. Autopsy showed liver failure due to daily use of
Tylenol. Ever since
Hello,
I was on gleevec 800mg and made the switch to sprycel 100mg. I have
always taken tylenol, and its not that you cant take it, its just
harder on the liver. I am no longer taking tylenol, but have threw out
my time on gleevec and some since on sprycel and it did nothing to
interfer with the m
Thanks for the update--Good luck on your continued use of Sprycell.
Blessings,
Jeanie<3
I liked your info at the end of your post
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Googl
I have been a Sprycel user for about 3 months and have had no problems with
running nose or cough. I sense that I have more numbness in my toes and
feet...but I had that before starting Sprycel. Good luck to you ...hope
things clear up!
I have borrowed a format that I have seen on the n
One of the side effects listed on Sprycel is URI. My dr, has me use
Claritan to help in the winter months with post nasal drip and
congestion. I think it's related to the Sprycel but have been on
Sprycel for years. It usually starts late November and goes on through
the Spring. Then, usually clears
I think your right. Greenie
-Original Message-
Date: Monday, November 23, 2009 12:49:44 pm
To: "CMLHope"
From: "Suzieq"
Subject: [CMLHope] Re: Sprycel back to Gleevec-don't think so
Greenie:
You are always having something happen to you, (smile). Good to h
Greenie:
You are always having something happen to you, (smile). Good to hear
from you again.
I would say it was the water mixing with the blood.but, hey, I'm
no medical specialist...LOL
Suzieq
--
[CMLHope]
A support group of http://cmlhope.com
Carolyn/LeeI too, switched from Gleevec to Sprycel about a month ago.
My history in short form is as follows...
Tom Dunham, BD:8/1941
DX CML 12-23-2008
MDA Protocol: Tasigna-400mg; 2xday-1/09
Q PCR bone@ 0.17 7/09
Acute Pancreatitis-7/5/09
Stopped Tasigna-7/13/09
Q PCRU blood-7-29-09 !
Sta
Thank you for your prompt reply.
On Nov 22, 3:55 pm, "John Kuptz" wrote:
> Hi Lee,
> I was switched from Gleevec to sprycel because I developed Gleevec induced
> hepititis. The doctors had to wait for Sprycel to be FDA approved. I was
> then started on 70 mg bid which proved way to strong, just
Thank you!
On Nov 22, 11:47 am, Tanya Metaksa wrote:
> My husband switched to Sprycel several years ago because Gleevec had
> too many side effects. It has worked well with fewer side effects.
> As for going back to Gleevec, I doubt it, but there is Tasigna (sp?)
> as well.
>
> Tanya
> On No
Hi here is the link http://www.rxlist.com/sprycel-drug.htm good luck.
Suzan
--- On Sat, 3/14/09, Tanya Metaksa wrote:
From: Tanya Metaksa
Subject: [CMLHope] Re: Sprycel
To: CMLHope@googlegroups.com
Date: Saturday, March 14, 2009, 2:03 PM
Hi there,
could you post the site that you found
Hi there,
could you post the site that you found concerning side effects with
Sprycel. My husband has been on Sprycel for approx
two years and has had terrific stomach aches. He has had all the
stomach tests and nothing has been found, so the onc decided to
stop Sprycel for a month. Now he is
Hi Suzan,
I had those skin ulcers on Gleevec.
They would start out looking like a small blister and then grow to the size
of a boil. They sure were painful. Then one day, they went away.
I failed on Gleevec and am now on Tasigna.
We have a special Tasigna support group for CML WARRIORS who
It is likely too early to tell. You will need to give it a few weeks
to know for certain if you cannot tolerate Sprycel. Even then, some
need to start-stop-restart if the first response on the new drug is
not positive. You could also experiment taking it with either a
little or lot of food, and
Carl, so sorry to hear about your hospitalization.
I hope your are on your way to recovery now.
I have never taken Sprycel, but have had some nausea from Gleevec; not so
bad I couldn't get it under control.
Blessings to you and yours,
Jeanie<3
In a message dated 3/9/2008 9:20:31 A.M. Pacific
Hi Mat and Great! Keep on keeping on.
Blessings to all,
Jeanie<3
** See what's new at http://www.aol.com
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
Congratulations Matt.
Rob
On 9/12/07, Matt V <[EMAIL PROTECTED]> wrote:
>
>
> I was diagnosed with CML in 02/06 with (and forgive me if my way of
> describing this is not technically accurate) 89% BCR-ABL cells.
> Gleevec stopped working after 14 months (and I was down to 8% with
> some new mutat
Matt
We are so happy for youWe wish you continue success.
Take care of yourself.
Teepee710
** See what's new at http://www.aol.com
--~--~-~--~~~---~--~~
[CMLHope]
A support group
Dear Matt,
I am delighted to hear this news. Warmest congratulations to you!
You have had some rough patches in your CML journey and have come
through with courage. Enjoy your CCR status, Matt, celebrate big
time. I hope your doc is now monitoring you via quantitative PCR and
wishing you on
Congratulations, Matt. You give us all hope! Some day my son will be
in the Zero Club!! I can't wait to call him a big Zero!! Sue
On Sep 12, 9:44 am, Matt V <[EMAIL PROTECTED]> wrote:
> I was diagnosed with CML in 02/06 with (and forgive me if my way of
> describing this is not technically ac
Matt, I am so happy for you and your fantastic
report!
Dee Hedman
--- loewen1 <[EMAIL PROTECTED]> wrote:
>
> Dear Matt,
>
> Congratulations. There certainly is reason for
> hope and reason to plan for
> the future.
>
> Never give up!
>
> Susan Loewenkamp
> - Original Message -
>
Great news, Matt..congratulations!
I'm hoping my next blood work comes back negative once again
next appointment is the end of October.
Keep Looking Up,
Suzieq
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
Wonderful news.
Matt, did you have to stop your HIV meds totally or for just awhile?
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to
WOW, THAT'S GREAT, OVER A 1000 PEOPLE IN THE ZERO CLUB.
Greenie
Springfield, MO.
** See what's new at http://www.aol.com
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[CMLHope]
A support group of http://cmlhope.com
---
*YAHOOO!!! YIPPEEE!!!*
*Number 1095 in the Zero Club*
*Zavie*
On 9/12/07, Zavie Miller <[EMAIL PROTECTED]> wrote:
>
>
>
> -- Forwarded message --
> From: Matt V <[EMAIL PROTECTED]>
> Date: Sep 12, 2007 9:44 AM
> Subject: [CMLHope] Sprycel Hope
> To: CMLHope
>
>
> I was diagnosed
Hi Matt: I was on Gleevec since it became available and have had CML for a
couple of years longer then that. I don't keep trackterrible, huh? I
figure I'm lucky to be here. I didn't go into remission with
Gleevec.close, but not all of the way so they switched me to Sprycel.
Right now I
Dear Matt,
Congratulations. There certainly is reason for hope and reason to plan for
the future.
Never give up!
Susan Loewenkamp
- Original Message -
From: "Matt V" <[EMAIL PROTECTED]>
To: "CMLHope"
Sent: Wednesday, September 12, 2007 9:44 AM
Subject: [CMLHope] Sprycel Hope
>
> I
ether and
are trying to keep up on things. I guess it's a wait and see thing. I will
post any and all progress with this new drug. Again, thanks for your input.
Millie
- Original Message -
From: <[EMAIL PROTECTED]>
To: "CMLHope"
Sent: Monday, August 13, 2007 11:3
Milie,
If your still having fluid retention problems, your Oncologist can
prescribe another drug (example lasix) that may halp with the
symptoms. Also, you might benefit from a lower dose of Sprycel. If
you Oncologists is unaware of the data on 100 mg once a day, he/she
can contact the manufact
In a message dated 8/10/2007 1:22:34 P.M. Pacific Daylight Time,
[EMAIL PROTECTED] writes:
Thanks for listening to me. It helps to have a place to air my
thoughts.
Millie
We will all be thinking of you Millie and I give you my many blessings in
your trial.
Jeanie<3
*
It sure takes a lot to get you down, Millie! Good grief! I've been on
Sprycel for a year and have dropped three logs so my future is much more
hopeful than it was. Best of luck to you and keep sharing your counts and
just vent if you want to.
Cheers!
Susan L
- Original Message -
F
HI Anjana
Thank you for the information. It is good to get a definate answer.
Regards Lisa
>From: anjana <[EMAIL PROTECTED]>
>Reply-To: CMLHope@googlegroups.com
>To: CMLHope
>Subject: [CMLHope] Re: Sprycel and A Fissure or Sprycel and Surgery
>Date: Mon, 04 Ju
> is always good to be aware of possible side effects.
>
> Regards Lisa
>
>
>
>
>
> >From: anjana <[EMAIL PROTECTED]>
> >Reply-To: CMLHope@googlegroups.com
> >To: CMLHope
> >Subject: [CMLHope] Re: Sprycel and A Fissure or Sprycel and Surgery
> >Date:
I had never heard of it before. It
is always good to be aware of possible side effects.
Regards Lisa
>From: anjana <[EMAIL PROTECTED]>
>Reply-To: CMLHope@googlegroups.com
>To: CMLHope
>Subject: [CMLHope] Re: Sprycel and A Fissure or Sprycel and Surgery
>Date: Fri, 01 Jun 200
Dear Lisa,
Here's a link which explains anal fissures.
http://www.medicinenet.com/anal_fissure/article.htm
Lisa, what dose are you on and do you take the Sprycel dose once or
twice a day? Recently, studies have come out from BMS saying once a
day dosing gives less side-effects than twice a
Dear Matt,
Sorry you are having so many problems on Sprycel. My husband is on
Gleevec but I help out with the Sprycel patients in our clinic trials
so I am a bit familiar with side-effects from Sprycel.
Coincidentally, just 2 weeks ago, one of my friends on Sprycel
reported anal fissures to th
Hi Matt
I have been on Sprycel for 10 mths. I have many side effects but they all
started 5 yrs ago on Interferon, then Gleevec & now Sprycel.
I have occasionally had some strange tingling, shooting pains in the back of
my head recently which concerned me. Where have yours been located? It is
Hi Matt,
Sorry for your troubles. I can speak a bit about Sprycel side
effects. I have been on Sprycel for over three months. The bone
pain, including headaches lasts for a couple of weeks then go away.
The case of the hives is also a side effect Sprycel, and in most cases
the hives clear up i
Hi Matt
Sorry about your troubles. It sounds painful.
I don't know about Sprycel but I have been on Gleevec for 5 years June
11. The side effects were cyclic for me - coming and going all the
time. I wonder if Sprycel will also have side effects that will come
and go as well? I hpe your new d
Give it a couple of weeks to see if it settles down. If not, then
maybe he can get on a Nilotinib trial. During last night's LLS
teleconference, boths Drs. Druker and Shah enmphasized the need for
patients willing to participate in these trials.
My words of comfort are that it is very likely th
Dear Deb,
I started Sprycel beginning of October at 140mg daily. Within 15 days my
WBC went from 67 thousand to 8.6 My Platelets went from 1 million 700 thousand
down to 460 thousand. I also had mild swollen glands, and mild fatigue, but
the biggest was the blistered hives which I had al
Hi Zarko,
I have sent you the file. You will need Adobe Acrobat Reader to read
it. There is a free download at http://www.adobe.com
Best Regards,
Anjana
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[CMLHope]
A support group of http://cmlhope.com
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Hi Anjana,
your e-mail seems to not working.could you please mail me at
[EMAIL PROTECTED] Tnx.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subsc
Thanks for you answer.I'm sending you an-email.
Best regards Zarko
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
Hi Zarko,
We did a survey from the patients of the support groups on Sprycel
and Gleevec and have tabulated the results. If you mail me, privately,
I can attach the file of the side-effects to you. My e-mail is
[EMAIL PROTECTED]
Most patients complain about headache in the first week, for
Hi, Lora. My experience with Allopurinol was the same as Trey's. I
agree you should ask his doctor why it's necessary. Warm regards.
David (Dov)
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[CMLHope]
A support group of http://cmlhope.com
--
Allopurinol is used to decrease uric acid in the bloodstream. After
initial diagnosis and when initially starting Gleevec or Sprycel,
CMLers usually have a very large number of leukemic WBCs in the blood
and marrow. Gleevec and Sprycel cause these cells to die very quickly,
and that fills the bl
Hey there Lora
I am so glad to hear the Terry is doing so much better - thats really
wonderful :-)
Steven was also only told to use the Allopurinol for about two weeks
right in the beginning of the Gleevec treatment..
Annie
Steven's mom
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I'm sure you will hear from some Sprycel users here, and there is also
another online forum where Sprycel is the main topic of discussion, and
there are many postings about Sprycel related subjects, including the
side effects people have encountered:
http://www.newcmldrug.com/bms_discuss/default.a
Hi all,
I was told that I would have to get Medicare Prescription coverage if my insurance company didn't have a better plan and that my insurance company would have to send me a letter stating they had a better plan; my insurance did send me that letter. Thank heavens.
But we don't know what to
as been to get off disability and work fulltime again. I really need to build up some retirement funds. So, I'm concerned what this will mean for my paycheck. As far as I know I can keep Medicare for 5 years which is when I become eligible for it by age anyway. But medigap insurance is a
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